Welcome, Guest. Please login or register.
October 20, 2017, 05:06:22 PM

Login with username, password and session length

  • Total Posts: 720994
  • Total Topics: 58482
  • Online Today: 312
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 3
Guests: 251
Total: 254


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Berlin Patient Update  (Read 4157 times)

0 Members and 1 Guest are viewing this topic.

Offline loneranger

  • Member
  • Posts: 16
Berlin Patient Update
« on: September 22, 2009, 10:27:49 AM »
Hi All

Came across an article on thebody.com website (link below). Basically an update on the patient in Germany who has been cured as a result of a stem cell transplant. What I find intriguing about the article is that Dr Laurence is saying they cannot find hiv ANYWHERE in this patient, including the brain, liver, kidneys etc.. More importantly the hiv antibodies in this guy are decreasing - Dr Laurence expects that if a hiv test is given to the patient in a few years time it will be negative!

I'm well aware that this approach to cure hiv is dangerous and will only be used for a small number of patients BUT it is a proof of concept, the only one so far as I'm aware. If only they can figure out away to delete our CCR5 gene without performing a traditional transplant ..... I know they're working on it so fingers crossed!  :) :)


Offline Inchlingblue

  • Member
  • Posts: 3,120
  • Chad Ochocinco PETA Ad
Re: Berlin Patient Update
« Reply #1 on: September 22, 2009, 11:45:23 AM »
Not to go off topic with the state of health care in the United States, but this section jumped out at me:

Our second problem has to do with money. This could never, ever have been done in the United States first. It could be done in Europe because they have a socialized medicine system. No one asked the question who's paying for this. Forget about HIV right now -- if you have leukemia in the United States, and you need a bone marrow transplant, most insurance companies will pay for 10 screens. Some of the more unusual ones might pay for 20 at a time. So you can search through the 13 million in the adult bone marrow registry. If you need to, you can also go through the cord bloods. You come up with a bunch of matches and insurance will pay for calling in the first 10.

The likelihood that you'll find a person who is available is very good.

Usually, we don't even need to go through all 10. But that's not going to help someone with HIV. As I mentioned, Dr. Hütter's patient had 232 matches. They could have taken the first one. He wouldn't have gotten to number 61. He wouldn't have gotten to number 10, certainly not number 20, or 30, or 40. It took him 61 tries. They would have never been able to call in patient number 61 after having had 60 other perfectly good matches.

In Germany, Dr. Hütter was able to go through all of that because he didn't have to worry about doing the extra tissue typing and whether the patient was going to be able to afford it and so forth and the patient wasn't even a German citizen.
« Last Edit: September 22, 2009, 11:52:48 AM by Inchlingblue »

Offline loneranger

  • Member
  • Posts: 16
Re: Berlin Patient Update
« Reply #2 on: September 22, 2009, 03:04:17 PM »
Indeed Inch, makes me feel very lucky and privileged to be living in the UK.

For a country that is so advanced in so many ways and that boasts many of the world's leading HIV research facilities and scientists, I am amazed at how backward it's healthcare system is!

Offline tommyga

  • Member
  • Posts: 12
Re: Berlin Patient Update
« Reply #3 on: September 22, 2009, 07:01:55 PM »
I think this is totally rad, and that's an understatement. I think the concept is there, as you say. Gene therapy has got to be the way to a cure.

What do we do really to get this more press? I told a friend about it, and she and I both agreed there should be more coverage on this.

Offline sensual1973

  • Member
  • Posts: 197
Re: Berlin Patient Update
« Reply #4 on: September 22, 2009, 11:54:16 PM »
am very ammaized that the Germany patient case has not made alot of media coverage.
God grant me the serenity to accept the things i can not change.

Offline madbrain

  • Member
  • Posts: 1,208
  • No longer an active member
    • My personal site
Re: Berlin Patient Update
« Reply #5 on: September 23, 2009, 07:08:36 AM »
am very ammaized that the Germany patient case has not made alot of media coverage.

It has, relatively, but HIV stories don't seem to stay in the mainstream media news very long. And this isn't news anymore.


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.