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Author Topic: Information Overload. What happens to me Next?  (Read 911 times)

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Offline Mondo

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  • Posts: 6
Information Overload. What happens to me Next?
« on: June 14, 2009, 10:04:52 PM »

Hi all , this is my first vist to the forum.

I was thinking the other day about the problem of information overload. By that I mean that there is so much information out there and lots of people that are willing to share their experiences with the infection and treatment. I sometimes find myself having mood swings based on the vast and varied content of the information. I get scared and start looking in the mirror for the first signs of body shape changes, hair loss and swelling around the glands my neck etc.

I think one of the key strategies for me to gaining benefit from forums and info from the internet etc, is to be mindful of a few key factors that must considered when searching for answers.

Everyone has a different medical profile. No two people were the same age, weight, etc when they contracted the infection. We all carry a history of illnesses from our life before HIV. Our medical intervention and treatments commenced at different stages of the infections progress and the medications we take are often different from others. So the list goes on.

I have (and still do at times) read articles and have trawled the net for info and came away convinced that I was eventually going to have all these horrific things happen to me.

No wonder we get depressed, isolate ourselves and feel like lepers.

I知 sure there are others that get scared and think that the problems that some people have will eventually happen to them.

I think it is beneficial to share our experiences, seek and give support. We also have responsibility to maintain our mental health. If we can be mindful that although we have the infection in common, we are unique in the way our body and mind will respond to this infection.


Just because I知 paranoid doesn稚 mean I知 not being followed.
« Last Edit: June 14, 2009, 11:18:18 PM by Mondo »
Just because I知 paranoid doesn稚 mean I知 not being followed.

Offline hotpuppy

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  • Posts: 555
Re: Information Overload. What happens to me Next?
« Reply #1 on: June 16, 2009, 03:57:59 PM »
  Someone once told me that HIV is not a race, it's a marathon.  I think that's important to keep in mind.  In a 50 yard dash you look at all 50 yards as you race through them.  You look for pot holes, rainstorms, loose dogs, and more. 

In a Marathon you can't see all 27 miles at once.  You have to take each block, each mile as you get to it.  Life with HIV is alot like that.  You are right, we are each unique.  No telling if you will suffer from any number of horrific things.  However, if you do, you know what to look for.

Education is your friend.  Knowledge is power and I am grateful for the knowledge passed on by others who have gone before me.

One thing that will help tremendously is to get out there and start making friends.  I often jokingly refer to HIV as if it is the pet you can't get rid of.  Like any good pet owner, I like to socialize with others who have the same pet.  I wouldn't take my cat to a dog park, and I don't particularly enjoy taking my HIV to certain places.  I do enjoy having friends who have HIV because we have common challenges, headaches, and successes that we can talk about.

In most areas there are HIV support groups.  In Houston we have several to choose from.  If you are gay, you may also be interested in SIN.  SIN is the Strength In Numbers network.  SIN is a social networking group for gay men.  There are similar things for str8 folks and lesbians.  In Houston the straight version is called Living Large.  What they all have in common is that they get together, do things, and meet one another.

You can run, but you can't hide, HIV will be right by your side.  You can give it away (although we wish you would't) but you can't get rid of it.  You can try to ignore it, but it will make a mess of you and your life.  The only way to win with HIV is to not let it rule or ruin your life.  HIV is not a death sentence, ignorance and failure to adhere to treatment are a death sentence.

Lastly, you eat a whale one forkful at a time.  Quit trying to swallow the Whale by the tale and you will find that you don't choke as much.  You have lots of time, lots of life to learn about HIV and there is no need to run out and learn it all at once. 

Welcome to the forums.
Don't obsess over the wrong things.  Life isn't about your numbers, it isn't about this forum, it isn't about someone's opinion.  It's about getting out there and enjoying it.   I am a person with HIV - not the other way around.


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