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Author Topic: Could Use Some Encouragement  (Read 1965 times)

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Offline BigPlans

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  • Posts: 14
Could Use Some Encouragement
« on: January 14, 2009, 08:02:17 PM »
I started meds exactly 2 weeks ago.  Lexiva, Norvir, Epzicom.  The first five days I felt absolutely nothing - no side effects at all.  Then I started having headaches and feeling hot an hour or so after taking it.  I've been trying to be a positive thinker about this - but I have to admit tonight that I'm feeling pretty damn shitty often.  It hasn't been debilitating or anything - I've still gone to work, I've worked out almost every day.  But it's quite bad at times - headache, running hot, malaise... I'm wondering if anyone can give me a little hope that it will even out soon.  Two weeks isn't that long, but I know I've read that things maybe should be better by now.   Has anyone had a rough patch and then hit a breaking point where the side effects diminished significantly?  Thanks and be well.

Offline Assurbanipal

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Re: Could Use Some Encouragement
« Reply #1 on: January 14, 2009, 08:26:19 PM »
Not on those meds, so don't have any personal experience to offer.  Except that if you are really feeling pretty damn shitty for the last week you probably should call your doctor.  Honest.  It isn't being too needy. 

When you are transitioning onto a new drug the docs want to hear from you if it doesn't go well in case there is anything major wrong.  If they think your symptoms are likely to go away by themselves they will find a way to tell you that.

Best wishes
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%
2014 VL UD - 48
2015 VL 130 Moved to Triumeq

Offline BT65

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Re: Could Use Some Encouragement
« Reply #2 on: January 14, 2009, 08:42:59 PM »
Big, I don't have experience with that combo (though I have taken Lexiva).  I agree with Assur, I would contact your doctor.  Did you have a flu shot?
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline BigPlans

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Re: Could Use Some Encouragement
« Reply #3 on: January 15, 2009, 12:06:22 AM »
Thanks - I appreciate the response.  I am going to make an appt. tomorrow.  I did get a flu shot, so I don't think it's anything like that.  But there have been some folks with strep throat where I work, so will get them to check that as well.  Thanks for taking the time to respond.

Offline tag_man08

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  • Posts: 118
  • Keep Dreaming!!!
Re: Could Use Some Encouragement
« Reply #4 on: January 16, 2009, 07:39:55 PM »
Good Luck...not on your combo either.  But, I'm always in contact with my nurse.  I give her updates almost every 10days.  Your healthcare team is there for you.  I hope you find out whats going on.
08/30/07:  The HIV diagnosis...
09/07/07:  CD4 299 (21%)  VL 160K
01/07/08:  CD4 396 (26%)  VL 125K
04/21/08:  CD4 478 (25%)  VL 92K
09/03/08:  CD4 313 (23%)  VL 10K
11/03/08:  CD4 338 (23%)  VL 30K
11/21/08:  Isentress & Truvada
12/05/08:  CD4 485 (29%)  VL  undetectable in two weeks
03/13/09:  CD4 575 (30%)  VL  undetectable

Offline Winiroo

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  • Posts: 2,082
  • Positive since 1991
Re: Could Use Some Encouragement
« Reply #5 on: January 16, 2009, 08:05:50 PM »
Hope you get to feeling better soon. I know I feel like total dog doo if I do not eat right before I take my pills.

Good luck.


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