Welcome, Guest. Please login or register.
January 18, 2018, 01:05:57 AM

Login with username, password and session length

  • Total Posts: 725239
  • Total Topics: 59114
  • Online Today: 294
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 1
Guests: 101
Total: 102


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Vasculitis Treatment and HIV Infection  (Read 1620 times)

0 Members and 1 Guest are viewing this topic.

Offline newinseattle2008

  • New Member
  • Posts: 1
Vasculitis Treatment and HIV Infection
« on: August 17, 2008, 12:17:39 PM »
I just spent the evening in the emergency room and was released with a tentative diagnosis of vasculitis. I have a follow-up appointment in two days with a rheumatoligist to verify the diagnosis.

I've been researching a bit on the web, and the prognosis doesn't look to good. Has anyone else experienced this or can anyone point me towards more informative websites so I can read up on this before my follow-up appointment?

About me: just diagnosed in January of this year. At the time of my diagnosis, my CD4 count was 625 and my viral load was 3,2000. At my six-month checkup CD4 count was 675 and viral load was 5700. I'm currently take no meds.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,785
Re: Vasculitis Treatment and HIV Infection
« Reply #1 on: August 17, 2008, 12:39:10 PM »

I don't have any direct experience with vasculitis (I'd never heard of it before reading your post).  I just wanted to welcome you to the forums and wish you good luck.  I wonder if John Hopkin's has a reputable website?
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info http://www.aidsmap.com/Condoms/page/1044833/
Please check out our lessons on PEP and PrEP. http://www.poz.com/factsheets/fs_2014_09_prep.pdf


Offline newt

  • Member
  • Posts: 3,896
  • the one and original newt
Re: Vasculitis Treatment and HIV Infection
« Reply #2 on: August 17, 2008, 03:48:11 PM »
Hello, welcome

Two good sources of information on vasculitis, you may have found already

Arthritis Research Campaign

Vasculitis Foundation

Vasculitis, or vasculitis-like symptoms may be an effect of HIV itself, or HIV's effect on the immune system. Treatment of HIV or vasculitis is not usually more complex because of the other condition being present.

I personally would wait for the full workup from the rheumatologist before getting pessimistic about prognosis. ER docs are prone to drama, as are many internet health info websites.

- matt
"The object is to be a well patient, not a good patient"


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.