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Author Topic: been sick  (Read 3811 times)

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Offline sparks

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been sick
« on: August 01, 2008, 09:45:04 AM »
i have been getting sick for the past yr ,,, its a very strange situation the lymphnodes in my neck keep swelling i keep getting sick the doctor puts me on antibiotics i get better for a bit then im ill again  ive been on bactrum once leviquin twice penicillin once and now im on doxycicline,,,,,,,,,last time it flared up wich was a couple of days ago i ran a consistant 101 fever for two days,,,,, im starting to worry all these antibiotics are not good for me,,doctor is scratching his head telling me what ever it is it has gotten systemic but yet once again im feeling better today im sure its from the medication but im  am scared that when i stop taking it i will once again not feel well,,, for 17 yrs ive had hiv and not had any problems numbers always been good due to early detection not sure what to do except be the good patient  take the medication as prescribed
IM a 17 yr survivor my t-cells have always been 900 or above znd my viral load remains undetectable,, ive known i was positive since i was 20

Offline rondrond

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  • Posts: 1,729
  • 22 years HIV+ yet a yard could be the death of me
Re: been sick
« Reply #1 on: August 01, 2008, 10:48:46 AM »
Hi sparks,

sorry that you aren't feeling well.

just wanted to welcome you to the forums.

(who is having strange exotic rashes that come and then go away)
"I'm not done yet"....Glen Campbell

"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Aug09 Diagnosed: COPD

Tcells 700

Offline redhotmuslbear

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  • Posts: 605
  • A genuine certified freak of nature, and a hot one
Re: been sick
« Reply #2 on: August 02, 2008, 09:10:35 AM »
Sounds like the craziness I had early on when the bugs were settling in during the 80s, and a little like what I experienced three years ago in the fall.  At that time I went to Houston for a college homecoming weekend feeling a bit crumby and had a huge swollen lymph gland in my neck within 48 hours of the first feelings of ickiness.  Went to a local ER and wound up on IV azithromycin for a few hours to get me properly hydrated and to bypass the gut for delivering the meds.  Four more doses of azithromycin 1000mg bid, and I was good as new. 

Also, have you tried lymphatic massage for general maintenance?  It's fairly easy to do on one's self, and it promotes healthful circulation of the lymph fluid.  http://www.ehow.com/how_2301590_do-lymphatic-massage.html

"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!

Offline sparks

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Re: been sick
« Reply #3 on: August 02, 2008, 10:38:10 AM »
you know im hoping the shot of rosafrin and the 15 days of doxycicline knock this out but if it diesnt i believe its time to move to iv antibiotics they work so much better bypassing the gut and ill just have to put my foot down with my doctor and tell him to quit playing games with this thing and lets get serious
IM a 17 yr survivor my t-cells have always been 900 or above znd my viral load remains undetectable,, ive known i was positive since i was 20

Offline YaKaMein

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  • Posts: 368
Re: been sick
« Reply #4 on: August 02, 2008, 11:01:36 AM »
It's awful you're suffering with these symptoms so long with no relief. If possible, it seems time to see some specialists. If your primary doctor is not an Infectious Disease, consider one; Have you had complete workups with blood cultures? Biopsies of the swollen nodes might also be considered. You're getting medical care with random treatments but something's missing here.

Hoping you feel better soon. -YaKa
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline sparks

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Re: been sick
« Reply #5 on: August 02, 2008, 12:42:47 PM »
infectious desease doc yes same one that has kept me so healthy for so long ... blood work yes ,,, specialist yes,  blood culturs no im thinking when i come off this latest dose of antibiotics i need to have them done ,,, you cant do blood cultures with antibiotics on board its a waste of time an ENT  sent me to get a biopsy done 5 months ago showed fatty lymphnodes he told me he could remove the whole chain im wondering if i need to let him?  im going to run this by my infectious desease guy ,,, its just your lymphnodes play such an important role in fighting off desease id hate to give them up,, im wondering if its for the best the little fat guys go
IM a 17 yr survivor my t-cells have always been 900 or above znd my viral load remains undetectable,, ive known i was positive since i was 20


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