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Author Topic: so where do i begin...  (Read 2156 times)

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Offline jshort

  • Member
  • Posts: 32
so where do i begin...
« on: June 27, 2008, 08:53:03 PM »
Hello everyone, I'm new here. I was diagnosed about 9 months ago. Ive been in a state of denial ever since. Although I know it wasn't the right way to handle things instead of getting treated I chose to ignore my diagnosis and go on as if nothing had ever happened. Well, lately theres been a bunch of things going on that force me to think about my status and I'm considering making an apt with the ID doctor in my area. But until I get there maybe some of you guys can help answer some of my questions. Nobody knows of my status, I'm scared and feel really alone.

A few months back I got really sick. I was ill for about two weeks and for the first time in my life I developed a cold sore. (i didnt know it was a cold sore until the dr told me). I got better but now every 2-3 weeks i develop a cold sore along with canker sores inside my mouth. I cant help but think this is HIV related since Ive never had any of these sores in my life. Lately I also feel extremely tired. I wake up tired and stay tired all day long. I feel like I have no energy i just want to sleep all day. Has anyone experianced these symptoms?? Is this normal? Its begining to effect my employment along with my daily routines in general. I guess I just needed to vent as well as find out if what Im experiancing is normal.

Offline next2u

  • Member
  • Posts: 1,802
Re: so where do i begin...
« Reply #1 on: June 27, 2008, 09:58:01 PM »
begin with a doctor, preferably an id (infectious disease) doctor. they will monitor your health and give you personalized information that can help you live a healthier lifestyle. every body reacts differently to the disease. you may be experiencing things related to the disease, stress, or a combination of both. this is where the dr comes in. i hope you find what you need. 

midapr07 - seroconversion
sept07 - tested poz
oct07 cd4 1013; vl 13,900; cd4% 41
feb08 cd4  694;  vl 16,160; cd4% 50.1
may08 cd4 546; vl 91,480; cd4% 32
aug08 cd4 576; vl 48,190; cd4% 40.7
dec08 cd4 559; vl 63,020; cd4% 29.4
feb09 cd4 464; vl 11,000; cd4% 26
may09 cd4 544; vl 29,710; cd4% 27.2
oct09 cd4 ...; vl 23,350; cd4% 31.6
mar10 cd4 408; vl 59,050; cd4% 31.4
aug10 cd4 328; vl 80,000; cd4% 19.3 STARTED ATRIPLA
oct10 cd4 423; vl 410 ;); cd4% 30.2
jun11 cd4 439; vl <20 ;); cd4% 33.8 <-Undetectable!
mar12 cd4 695; vl ud; cd4% 38.6
jan13 cd4 738; vl ud; cd4% 36.8
aug13 cd4 930; vl ud; cd4% 44.3
jan14 cd4 813; vl ud; cd4% 42.8
may14 cd4 783; vl *; cd4%43.5
sept14 cd4 990; vl ud; cd4% *
jun15 cd4 1152; vl ud; cd4% *
oct15 cd4 583; vl 146; cd4% 42
mar16 cd4 860

Offline 27years

  • Member
  • Posts: 145
  • What I did for love I will still do it for love
Re: so where do i begin...
« Reply #2 on: June 27, 2008, 10:31:22 PM »
I suggest you go and see the Dr who will tell you exactly whats affecting you.  Its easier to put the blame on HIV when it might be something else.  Even the neg get ill also, hope you will get better soon and pick yourself up again.  Scary as it might look now things will get better, it might take a while but you will find ways of coping and moreover everyone here is happy to listen and help.  You don't have to tell anyone your status if you don't want to.  You have to be comfortable with your status yourself so that you can cope with whatever outcome from anyone you tell, some people can be cruel at times.  Welcome to the forums and wish you a pleasant day 
Nobody dies a virgin life screws us all up

Offline YaKaMein

  • Member
  • Posts: 368
Re: so where do i begin...
« Reply #3 on: June 27, 2008, 11:22:57 PM »
Welcome to the forums, jshort,
Sounds like a good idea to make that appt with an ID physician and determine what this might be. Getting an idea of your overall health will be beneficial in the long run. We've all had times where we don't feel well ... It's no fun.

hoping you feel better soon, YaKa
« Last Edit: June 29, 2008, 10:46:46 AM by YaKaMein »
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline vivyt

  • Member
  • Posts: 565
Re: so where do i begin...
« Reply #4 on: June 28, 2008, 12:54:19 AM »
Definitely get to a doctor. I was diagnosed a year ago after many trips to many doctors trying to figure out why I was so sick. Believe me, it can get really bad really fast...take care of yourself.

Offline aztecan

  • Member
  • Posts: 5,517
  • 32 years positive, 60 years a pain in the butt
Re: so where do i begin...
« Reply #5 on: June 29, 2008, 10:13:51 AM »
Lately I also feel extremely tired. I wake up tired and stay tired all day long. I feel like I have no energy i just want to sleep all day.

Hey JShort,

You should see a doctor to find out whether the HIV is causing your fatigue or it is something else. HIV can certainly cause it.

As far as the cold sores go, they are caused by the herpes simplex virus. Don't freak about the name herpes, just about everyone has been exposed to this virus.

Could a depressed immune system result in frequent outbreaks? I really don't know. I suppose its possible,

This is just another reason for you to start seeing a doctor.

I went into denial when I tested positive as well. The difference was it was 1985 and there wasn't much that could have been done anyway.

Today, there are excellent treatments, good monitoring techniques and every chance you could live a pretty much normal life and die of old age if you take care of yourself.

So, make that appointment and let us know what the doc says.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)


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