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Author Topic: My 18th year with HIV  (Read 4803 times)

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Offline newbernswiss

  • Member
  • Posts: 260
My 18th year with HIV
« on: March 31, 2008, 05:08:14 PM »
Hello All,
I just got back from the doc's office. My doc and I had a good conversation about the 18 years we have spent together. We started our relationship 2 weeks after I found out I was HIV positive. My CD4 count was in the 30's, my VL back then was ? due to no test being available for such. I remember the panic of getting me on meds and prophylactic meds for CMV and TB since my CD4 count was so low. She told me that I'd probably only live 6 months to a year so get my affairs in order and enjoy the time I had left. . .
I've enjoyed every minute of the last 18 years. Sure I've had my ups and downs, had some very difficult challenges, had to see a few close friends and a partner die, deal with the daily task of living with HIV.
My doc and I reminisced about how much her practiced has changed. When I started seeing her there was only 2 very small exam rooms, 1 nurse, and an office manager. Today their is 8 exam rooms, a state-of-the-art infusion center, lab rooms, and more staff than I'll ever meet. I've watched my doctor age, my doctor has watched me grow and live. I feel like her teenager now. We have a great 18 year bond.  Today the news was CD4 count of 435, undetectable VL, nothing new to complain about. . . just a long way, and many changes for both of us since my first visit.  I'm looking forward to many more years with my doc. 

Offline Snowangel

  • Member
  • Posts: 1,416
Re: My 18th year with HIV
« Reply #1 on: March 31, 2008, 05:14:52 PM »
That is so great you have such a good relationship with your doc.  My first doc was good but his nurse was awesome, she knew everything it seemed.  I have since moved away from them but still send X-mas cards.

Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline AlanBama

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  • Posts: 3,670
  • Alabama: the 'other' 3rd World Country!
Re: My 18th year with HIV
« Reply #2 on: March 31, 2008, 07:00:22 PM »
Congrats on the milestone, honey.   I left my doctor of 18 years at the beginning of last year (not by my choice).   I hope things continue to go well for you!   You're very blessed to have such a good and longlasting relationship with your physician.  Celebrate that too!


"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline BT65

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  • Member
  • Posts: 10,785
Re: My 18th year with HIV
« Reply #3 on: March 31, 2008, 07:17:10 PM »
Newbern, it's great that you've been able to keep the same doc for 18 years.  And congratulations on your numbers!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline mjmel

  • Member
  • Posts: 2,069
Re: My 18th year with HIV
« Reply #4 on: March 31, 2008, 08:03:54 PM »
Hi There! I am having my 18th year anniversary too. Same median figure on VL too. eep!!
Congrats on having a close, long term relationship with your doc.

Offline Texan38

  • Member
  • Posts: 686
Re: My 18th year with HIV
« Reply #5 on: April 01, 2008, 10:55:05 AM »
Congrats!! And here's to many more anniversaries! CHEERS!  :-*
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline gurtzie

  • Member
  • Posts: 7
Re: My 18th year with HIV
« Reply #6 on: April 03, 2008, 10:39:49 AM »
hey i'm right there with you found out in 1990 my t-cell were 98 so they think i got it around 1981 and in 1994 my t-cells were 16 been see my doc for 15 years and now my t-cells are 770 is that crazy are what.best is yet to come......enjoy every day........

Offline aztecan

  • Member
  • Posts: 5,517
  • 32 years positive, 60 years a pain in the butt
Re: My 18th year with HIV
« Reply #7 on: April 03, 2008, 02:42:41 PM »
Congrats Newbern, I wish I could have stayed with my first doc through the past many years. Count yourself lucky.

I had to switch several times over the years, not by my choice either. Alan and I commiserated this, I think.

Anyway, glad you've made the 18 year mark and hope you are around for many, many more.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline simon2

  • Member
  • Posts: 14
Re: My 18th year with HIV
« Reply #8 on: April 03, 2008, 03:41:52 PM »
You are indeed lucky to have had the same, good doctor for 18 years. I have not had the same doctor for one year....
I am an Englishman living in Spain and was diagnosed 3 years ago........
My changing doctors stare at the computer screen, don't look at me, and rarely touch me. I am greatly envious of your caring doctor and think you are truly fortunate to have her.
I am not sorry for myself, as I feel fine.
Just envious!
Hope your great state of mind and great numbers continue....for ever!

Offline Fabrizio

  • Member
  • Posts: 17
Re: My 18th year with HIV
« Reply #9 on: April 09, 2008, 04:27:35 PM »
Thanks for sharing this with us...
Worried and Optimistic Negative Partner


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