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Author Topic: My next NIH research trip  (Read 4352 times)

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Offline OzPaul

  • Member
  • Posts: 410
  • a very blessed 29 year ltnp
My next NIH research trip
« on: October 18, 2007, 03:08:39 AM »
Hi Everyone in our Global Family

It's been a long time since I posted anything. I've been well but keeping a low profile.

I want to let you know that on Saturday morning I begin my long journey from my home near Melbourne Australia to Bethesda Maryland to again participate in the National Institutes of Health (NIH) Long Term Non Progressor (LTNP) study. This is the third year of my participation and second time this year I've participated.

I'm one of a number of Forum members who are in this study among whom are RedHot Muscle Bear. Emeraldize, OakTree and Zephyr.

I'm dedicating this trip to our beloved Forums family Member Christine, who passed away today.   

It is with great sadness and hope that I make this journey. Christine was a remarkably kind and gracious person and I among many will miss her compassionate voice.

In my blessed good health I'll continue these trips to NIH and elsewhere in the hope and prayer that we may one day see an end to this loathsome disease among us.

In Peace and Love

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 31,926
Re: My next NIH research trip
« Reply #1 on: October 19, 2007, 10:30:08 AM »
It's good to hear from you again, Paul. You're making a powerful contribution by participating in the study. You go with the thanks and blessings of all of us.

Safe voyage, 
Andy Velez

Offline aztecan

  • Member
  • Posts: 5,517
  • 32 years positive, 60 years a pain in the butt
Re: My next NIH research trip
« Reply #2 on: October 19, 2007, 10:53:00 AM »
Hey Paul,

Thank you for taking part in this and going the extra mile - literally - to be a part of this study.

Bon voyage,

"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline zephyr

  • Member
  • Posts: 457
    • Zephyr L.T.N.P. Foundation, Inc.
Re: My next NIH research trip
« Reply #3 on: October 19, 2007, 07:36:06 PM »
Dear Paul,

Although we spoke by phone yesterday just prior to your departure, I wanted to publicly say 'THANK YOU' for taking yet
another trip to the U.S. to share those precious cells of yours with science.  Not sure exactly where you are at the moment,
but you know I'm with you in spirit, no matter where you go.

I wish that everyone could know how special you truly are, and how deeply you care about contributing to the studies, both for
the NIH, and with David Cooper in Sydney, and Dr. Walker in Boston.

My dear friend, one day we may be able to celebrate the breakthrough, knowing that we each did the best we could to help
them unlock this mystery.

Wishing you the safest of travel, and love,

"It is character that communicates most eloquently."

Offline J.R.E.

  • Member
  • Posts: 7,540
  • Joined Dec-2003 Living positive, since 1985.
Re: My next NIH research trip
« Reply #4 on: October 20, 2007, 05:54:40 AM »
Hello Paul,

Thanks for keeping us updated. Wishing you a safe trip...Thanks for all you do, it's always good to hear from you !

All the Best--------Ray
Current Meds ; Viramune, Epzicom, 20mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 9/24/2017

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 9/18/2017,  Viral load remains <40
CD 4 @358 /  CD4 % @ 13

 65 years young.

Offline OzPaul

  • Member
  • Posts: 410
  • a very blessed 29 year ltnp
Re: My next NIH research trip
« Reply #5 on: October 21, 2007, 08:53:44 AM »
Thank you Andy, Mark, Zeph and Ray   ;D

I've made it safely here last night. The flights went well and a relatively short 28 hours door to door.

Our wonderfully kind and thoughtful Forum Family member Minh aka "Terpie" met me at the airport, God Bless him !!!

Today he and his partner and I are going to take in a museum and wander about Dupont Circle. As it will be quite warm today, I'll be drinking LOTS of water to get ready for the apherisis on Tuesday. I've found that being extra hydrated helps the blood flow better when hooked up to the machine  :D

I'll let you know how it goes after the big event on Tuesday.

Thanks again !

Paul xxx

Offline redhotmuslbear

  • Member
  • Posts: 605
  • A genuine certified freak of nature, and a hot one
Re: My next NIH research trip
« Reply #6 on: October 21, 2007, 09:44:20 PM »
Don't forget to have the pleasure of seeing me while you're in town!  I'm glad that you're getting to enjoy a few days of remarkably good weather for DC.

"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!


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