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Author Topic: Pissed off, just really pissed off  (Read 5904 times)

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Offline Movingon

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  • Posts: 52
Pissed off, just really pissed off
« on: September 10, 2007, 03:51:45 AM »
well its 5 weeks tommorow since i tested positive. What a roller coaster ride its been to say the least !! The day i found out i went totally cold turkey on coffee, smoking pot, and eating fatty food. I excercise every day and drink water, green tea and eat like a friggin rabbit , in terms of what i consume. I eat alot, but its ALL healthy. Gosh how i am craving a packet of salt n vinegar chips , a pint of guiness and a well rolled joint !

Now i find i am so moody, i feel depressed, i have head aches often, so over the last few days i have been having one coffee in the morning. I still haven't had a good old smoke, and i still have a great diet and loads of excercise .

My questions are - how bad is coffee ? and i know its pretty obvious, but will the occasional joint do me any harm ?

I mean, i feel like this is the most stressful time of my life, but yet i cant do anything (other than exercise) to de-stress. What can we do with this friggin illness ? Feels like i have been sentanced to jail without knowing what crime i committed .

Even my sex life with my wife has being affected, and that was one area where we never had any problems. Its not the whole "sex with a condom" thing, its little stuff like being afraid to kiss each other passionately, no oral sex etc.

She is nagative, i am positive - she isn't scared of me and has been a great support. But it just feels like i have to be SOO careful in EVERYTHING i do. I feel like i have to inform the government every time i want to fart !

is kissing dangerous ? is oral sex dangerous ? (me going down on her expecially) , or do i have to use friggin Clinf film (glad rap to you americans) to go down on my own wife??? Dont worry, we have been very careful , haven't engaged in any oral sex at all, and all sex has been with a condom - but this illness just seems to restricting.

In additon, my parents are here and i see them every day, but i just cant find it within myself to tell them. it will crush them, but they are my parents, they raised me , and i feel like they have a right to know.

The other thing which is worrying me is that 2 weeks ago when i got my first set of lab results my CD4 was at 282. I have to go back in another 2 weeks for the next set. Will my good work at stopping smoking and drinking hardly any alcohol and exercising every day give my Cd 4 a chance to grow ? or will the fact that i am at 284 mean that i am already screwed and on a down ward spiral ? Will / can it go from 284 to under 200 in 4 weeks ?

Thanks to you all for litening to a very pissed off guy all the way over in asia

Offline CallMeSid

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Re: Pissed off, just really pissed off
« Reply #1 on: September 10, 2007, 10:30:10 AM »

I want to respond to your post, but feel the need to preface what I'm going to say with the fact that this is just my OPINION on the questions you raise and not necessarily scientifically-proven facts, so please take this all with a grain of salt.

I understand the urge to make some healthy lifestyle changes, but I would like to suggest that you take it slow and allow yourself time to adjust to the new behaviors (i.e. new exercise routine, dietary changes, etc.).  If you feel a need to take a day off from the gym, give yourself the permission to do so.  An occasionally "fatty" treat is fine.  I'm curious as to why you've chosen to cut out coffee?  Was this recommended by a MD?  The word, as far as I'm aware, is still out on the risk/benefits of coffee in general and I've heard of NO issues with caffeine related to HIV.  So unless a MD has specifically told you to cut out coffee for a specific reason (I've known people with atrial fibrillation, for example, who have had to stop drinking coffee), you might (?) be denying yourself a favored beverage for no real reason.

Kissing your wife passionately (open mouth, "French kissing") will NOT transmit HIV.  You can perform all the oral sex on your wife that you'd like, you pose no risk to her by licking her nether regions.  I would say that your wife can perform oral sex on you (provided that she's NOT exposed to ejaculate) with no risk.  (Some would argue that if she's exposed to pre-ejaculatory fluid, there might (MIGHT) be a small risk, but in my opinion, it's so close to zero, it might as well be zero.)  If she's uncomfortable with the exposure to pre-cum, she can always lick your shaft and suck your balls.  You should probably have an open and honest (and ongoing) conversation with her about what she's comfortable doing and what her fears/concerns are.

The unfortunate reality is that there are NOT absolute, definitive, 100% clear answers to some of your questions (e.g. is it OK for my wife to perform oral sex on me?  will my change in exercise routine and diet improve my t-cell count in the short term?).  Like many other things in life, there's a lot of uncertainty and all I can offer is the suggestion that you educate yourself as best you can and make the best choices you can about taking care of yourself while still giving yourself permission to live your life.

(I hope that was, in some small part, helpful.  As another newly diagnosed guy, I'm pretty pissed off myself.)

Take care,

07/2006 HIV-negative
06/2007 HIV-positive
07/2007 CD4: 795 (40%), VL: <50
09/2007 CD4: 629 (43%), VL: 895  (~2 weeks after measles/mumps/rubella booster)
12/2007 CD4: 854 (45%), VL: <50
03/2008 CD4: 880 (45%), VL: 151
12/2008 CD4: 943 (46%), VL: 116
05/2009 CD4: 865 (44%)  VL: 107

Offline Movingon

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Re: Pissed off, just really pissed off
« Reply #2 on: September 10, 2007, 11:47:35 PM »
Thanks sid - i appreciate your help. I read soemwhere that coffee is bad, and no, i haven;t been told to quit by my doctor. This is the most stressful time of my (our) lives, but yet i can unwind and de stress with a drink and a joint.

Fuck !

Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Pissed off, just really pissed off
« Reply #3 on: September 10, 2007, 11:56:53 PM »
I think you are being way too hard on yourself.  I have been pos nearly 14 years and I drink loads of Diet Coke everyday, I LOVE junk food and I am diabetic.  I really don't think anything has made a difference in my CD4 counts except for being on meds.  When the time came in '95 and my CD4 was 396, I started meds.

I was always worried about the oral sex issue, but have found from reading numerous posts here on it, that it is only a "theoretical" risk.  Just wait till Moderator Ann chimes in, she'll tell you that you have no worries!

You are fortunate to have a caring wife by your side.  Give her a big ole wet passionate kiss!  No harm in that, at all!  :D

HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline Movingon

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Re: Pissed off, just really pissed off
« Reply #4 on: September 11, 2007, 12:44:13 AM »
Thanks Cindy. The reason i am being hard on myself is cos my first set of lab results showed that my CD4 is 284, and that i have slightly high cholesterol. Basically the doctor scared me shitless by telling me that HIV would kill me before HIV does, so hence the reason why i gave up smoking and drinking and i train like i am entering an iron man contest.

Thanks for replying to me


Offline thunter34

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  • His name is Carl.
Re: Pissed off, just really pissed off
« Reply #5 on: September 11, 2007, 01:01:59 AM »
Basically the doctor scared me shitless by telling me that HIV would kill me before HIV does,

You lost me on this sentence.  Did you mean high cholesterol would get you before HIV or what?

If cholesterol, I had a level of about 500.  Brought it down with Crestor.  This came about due to HIV meds.
AIDS isn't for sissies.

Offline Movingon

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Re: Pissed off, just really pissed off
« Reply #6 on: September 11, 2007, 03:25:28 AM »
sorry my mistake, yeah my cholesterol is bordeline high, not too bad, i think this is a result of years of drinking, and eating fatty foods. Smoking pot for 10 years doesn't help either. But i am fit, and now concentrate on doing excercise every day and eating EXTREMELY healthy to bring my cholesterol down before i go on meds.

Speaking of pot - i went from smoking 3 - 5 joints per day to having ZERO over night. This has lasted for 4 weeks, but now i am craving a smoke.

Do any of you still smoke pot even though you are positive ?


Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Pissed off, just really pissed off
« Reply #7 on: September 11, 2007, 03:29:27 AM »
I'll tell Queen to get her butt over here ASAP   ;D
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline Queen Tokelove

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  • Smokey the Smurf
Re: Pissed off, just really pissed off
« Reply #8 on: September 11, 2007, 03:40:39 AM »
Do any of you still smoke pot even though you are positive ? 

OMG!!!!!! I have been poz for 10 yrs and has been smoking for way longer. My docs even know I smoke. I smoke cause it helps me to eat but I also eat healthy when I get the munchies. There are some times when I will eat something sweet or whatever but not all the time. Honey, I smoke so much, I have been given nicknames here such as Green Queen or Queen Tokelove. I'm sure you will prolly hear from some of the other tokers here that it doesn't bother them but to me it is a personal choice. I will be smoking the good green til I can't smoke anymore. ;D
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Movingon

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Re: Pissed off, just really pissed off
« Reply #9 on: September 11, 2007, 04:39:57 AM »
cheers queen and i have sent you a PM. Thanks also Cindy for putting queen on to me.

had a bit of a shit day folks, so i am off home. Its 4:30pm over here in the far east.


Offline Esquare

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  • Posts: 237
Re: Pissed off, just really pissed off
« Reply #10 on: September 14, 2007, 02:17:49 AM »

Man, you sound a bit like me after my diagnosis this time last year. My wife and I were weird around each other for a little while (me pos she neg). We both read several good books listed on thiis website for the newly diagnosed and family. I really think educating ourselves about the virus made it to where we could be intimate again although safely. I go down on her but she doesn't go down on me. Her hand works pretty good though. :) We are cool with everything though.

I took steps to straighten up my life in a few areas. I'm on my second day of quitting tobacco for example. I'd advise to not try to change to much too fast. My cd4 was a bit lower than yours when I found out and I got it up to a respectable level just by being myself mostly with a few less beers and I have cut out hard liquor completely. Oh I haven't told my parents yet either.

If you ever need to talk about anything you can PM me here.


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