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Author Topic: Update  (Read 2391 times)

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Offline RevMC

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« on: July 15, 2007, 08:51:25 PM »
Hello everyone,

Louie has an appointment on July 31'st with the kidney specialist, the doc felt it was very important to see him before the original August 22'nd appointment.

Louie's on Zofran and Phenergan push now for the nausea.  His creatine counts have actually dropped in the past 2 weeks but his count is still a 3, normal is around 1.5.  We're rotating the pushes about every 3 hours to keep him well medicated.  One dose every 6 hours so rotating this way keeps him going.  Though he sleeps a lot because of the meds, he's been able to eat a bit more which is a good thing and keep most of it down.

It seems the Phenergan isn't lasting the whole 6 hours so we're actually doing it about every 5 hours and that seems to be helping for now.  He has his good days and his bad one's too.  Some days he has normal urine flows, other days he's going constantly and barely able to go at all.

I talked to his sister out here and a friend of hers is a nurse so she understands what's going on right now.  When I told her he had renal failure, she said, please tell me your kidding.

The next day she called and the 3 of us got together.  She helped us also for me to be able to get a cell phone.  Once the Jeep is paid off (September) and we get a bit of money saved, we'll be taking over payments of the cell phone.  Until then she said she'll pay for it, activaction fee, everything, until at least December, maybe longer if we need her to.  Her one stipulation was that I got text messaging so if we need her when she's at work I can text her and she can text back and not get into trouble.

Louie's also getting me a new Dell Inspiron 1521 Laptop which should be here in the next week.  So the cell phone and laptop are going to be able to work together because of bluetooth.  So needless to say BOTH will be attached to me at all times.  This way when waiting for his tests, that some can take an hour or more, I can use the computer.  The cell phone has DUN abilities, so I can use it to dial in to the net if I can't find a hot spot.

WOW, I'm getting totally connected.

Well that's it for now I guess, just trying to keep up hope.  Oh by the way, we saw the councelor this week, she's young enough to be our daughter but is real sweet and caring.

She's looking for an AIDS Caregiver support group that I may be able to go to.  She realized my main concern is watching Louie go through all this and possibly thinking about myself going through something like this and being all alone.

She was right, that is my concern.  I have no family except a brother who we've been very distant for years now.  So yes, I am worried about dying alone, not so much about living alone.

The hard part right now is waking up last night every 3 hours so I can give him his meds.  He tries but if he's feeling nauseas it's no good.  So up I get every 3 hours to do my daily routine.  He tries doing it all during the day when I'm at work, sometimes he's getting sick and giving himself one of the push's to help with the nausea.

I know it's terrible for me to think and say, but I just wish that if the good lord is ready to take him that they take him quickly instead of letting this stretch on and on.  I hate to see him suffering like this.

My heart goes out to everyone else out there who is going through the same thing I am.

Part of my story: "Sale Of A Lifetime" POZ December 2003

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE

Love and Light and Reiki sent your way,
Rev. Michae

Offline thunter34

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Re: Update
« Reply #1 on: July 15, 2007, 08:56:46 PM »
On the contrary, I don't find that comment to be a terrible thing to say or think at all.  To wish less suffering for someone you love is the natural compassionate response, in my opinion.  Thanks for the update.  I just saw you online and was getting ready to send a PM to inquire.

Much love and support,

AIDS isn't for sissies.

Offline Matty the Damned

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Re: Update
« Reply #2 on: July 15, 2007, 09:38:38 PM »
Hey Rev,

Matty the Damned agrees with Youth Pastor Tim here. Hoping that someone you love is not in pain and doesn't have to suffer anymore is entirely understandable and not terrible by any stretch of the imagination.


Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Update
« Reply #3 on: July 16, 2007, 05:45:59 AM »

I'm glad to hear that you've been able to find some support for yourself, and I hope your counselor is successful in finding you a group.

I also agree that it's not a bad thing to wish for the end to suffering for your lover. It's only natural, under the circumstances.

Hang in there hun.

More hugs... and pass one on to Louie for me too please.
Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Andy Velez

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Re: Update
« Reply #4 on: July 16, 2007, 09:03:21 AM »
Rev, it sounds like you are doing amazingly well in a tough situation.

Along with everything else going on, that interrupted sleep at night is really, really hard to tolerate. Hope you are able somehow to get the rest you need.

As for your personal future, who knows how things will play out. I certainly apprciate your thoughts about not wanting to be alone at the end. But hopefully that will be in the distant future and when it does come, life has a way of providing an angel or two when needed.

In any case, cheers with getting on with how well you're handling things now.

Andy Velez

Offline Queen Tokelove

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Re: Update
« Reply #5 on: July 16, 2007, 04:39:40 PM »

Sorry to hear that Louie is suffering but agrees with the others that there is nothing wrong with wanting his suffering to end. I'm glad that you are now connected with the cell and laptop, I think it is great that the girl is helping you with the bill.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline bear60

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Re: Update
« Reply #6 on: July 16, 2007, 04:47:24 PM »
Thanks for the update.  I wish you had a caregivers support group to go to.  When I went thru what you are going thru it really helped me greatly.  But just to agree with what has been said....your thoughts are for his comfort and are sincere.
Poz Bear Type in Philadelphia

Offline RevMC

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Re: Update
« Reply #7 on: July 16, 2007, 05:07:54 PM »
TY everyone for the kind words of support.

The social worker that we talked to last week from Home Health/Hospice is looking for a caregivers support group, especially if there is one for people taking care of someone with AIDS.

I had a big panic attack the other day, which I haven't had in a few months, so took my hydroxazine and it helped calm me down, pulse rate was 120.  I hate when I get those, sweety palms, racing heart, feel like running away.  Just like I use to feel on a first date.

Doing better today, slept on and off yesterday, mostly because of the meds.

TY everyone,

Part of my story: "Sale Of A Lifetime" POZ December 2003

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE

Love and Light and Reiki sent your way,
Rev. Michae

Offline thunter34

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  • His name is Carl.
Re: Update
« Reply #8 on: July 16, 2007, 05:09:54 PM »
yeah, those will knock me out fairly quickly.

glad you got past the anxiety a bit and got some rest.
AIDS isn't for sissies.


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