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Author Topic: Can i get some help  (Read 2364 times)

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Offline ubotts

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  • Posts: 347
Can i get some help
« on: June 09, 2007, 12:01:06 PM »
 :oHi all..
i have been hiv for 21 yrs now..starting taking meds in 2004..I waited a bit too long..my tcells were 27 when i started feeling like crap..so i went to see a hiv dr. and they put me on meds right away..
Right now iam on Combiviar and Kaletra..been doing pretty good on that coctail so far..but i noticed my legs and arms are thin and my
belly looks swollen..Iam losing my hair, and iam getting depressed..
I wanted to know if i could take a drug hoilday..or just which meds
so maybe my body would change back, if possible.
I heard of people going on drug hoildays and id like to take one...
just scared if i go back on these meds i wouldnt become resistant..
Ive been ok for yrs but now iam getting scared, andy input as to what i should do...thanks for anything u have to offer in this matter.
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline newt

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Re: Can i get some help
« Reply #1 on: June 09, 2007, 03:06:52 PM »
Hello welcome

A "holiday" is not perhaps the best idea

But, switching off Combivir, which contains AZT, may help with the thin arms etc. There are at least 3 alternatives, tenovir + FTC (Truvada), abacavir + 3TC (Kivexa, Epzicom) or 3TC + ddI.

- matt
"The object is to be a well patient, not a good patient"

Offline pozattitude

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Re: Can i get some help
« Reply #2 on: June 09, 2007, 03:34:41 PM »

Matt is right.  Check with your doctor for an alternative to Combivir.
The thinning hair is probably just nature taking its course, don't think it's meds related, sorry! ???
talk to your doctor about depression and take care of it, don't let it go too long before treating your depression ( I wish I hadn't let 10yrs go by before taking care of my depression).

(who doesn't recommend drug holidays either)
POSITIVE PEDALERS... We are a group of people living with HIV/AIDS, eliminating stigma through our positive public example.

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Can i get some help
« Reply #3 on: June 10, 2007, 12:26:20 AM »

I also am going to agree with Matt. I don't think a drug Holiday is in your best interests right now. And it may not be possible for you to take a holiday. One of the first questions I had asked my doctor, after starting meds, was if a drug holiday would be possible, his reply "most likely not". I started on meds with 16t-cells and a viral load of 500,000

I started just about like you did. Positive since 1985, began first line of treatment in October of 2003, which consisted of Viramune, Epivir , ziagen---then viread was added later. I still have some problem with the distended stomach, but it is nowhere as bad as it was a year ago. As far as the hair falling out, never had that problem.

You need to talk to your doctor again, open up with him... let him know that you are going through depression, see what he can do for you. Also perhaps change the meds, as long as there are no problems in doing that.

Take care-----Ray
Current Meds ; Viramune, Epzicom, 20mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 9/24/2017

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 9/18/2017,  Viral load remains <40
CD 4 @358 /  CD4 % @ 13

 65 years young.

Offline aztecan

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  • 32 years positive, 60 years a pain in the butt
Re: Can i get some help
« Reply #4 on: June 10, 2007, 11:13:26 PM »
Hey Ubotts,

Like the others, I don't think a drug holiday is in the offing. In studies they have done regarding drug holidays, those who didn't begin treatment until their CD4s were low did the most poorly.
They usually had the fastest drop in CD4s and rise in viral loads and had to go back on meds sooner.

I would talk to your doc about switching from the Combivir. As Newt pointed out, there are a number of alternatives.

Switching meds may or may not allow the lipoatrophy to reverse itself. That seems to depend on the individual as well.

Good luck and keep us posted on how things go.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Tempeboy

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  • Like St Francis of Assisi I am wedded to Poverty
Re: Can i get some help
« Reply #5 on: June 11, 2007, 06:30:47 AM »
Ditch the AZT, can cause the tummy and contributes to low mood/energy.
Roughly roundabout somewhere in the eighteenth or nineteenth century, Sodomite begat Homosexual out of moral, medical and legal models, bequeathing him Identity, who inbred with Nuclear Family and Industrialism to spawn Homophobia.

Dean Kiley

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Can i get some help
« Reply #6 on: June 11, 2007, 07:14:11 AM »
Ditch the AZT, can cause the tummy and contributes to low mood/energy.


I'm sure what Tempeboy MEANT to say was "check with your doctor about ditching the AZT".

Tempeboy, I need you to stop prescribing drugs and/or courses of action without mentioning that the doctor MUST be consulted before taking these kinds of actions. I'm very serious about this. We cannot tell people what to do where their health is concerned, we can only make suggestions and qualify them with advice to talk to the doctor before doing anything.

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts


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