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Main Forums => Living With HIV => Topic started by: Pirata on February 24, 2020, 06:32:06 pm

Title: One year later what I have learned
Post by: Pirata on February 24, 2020, 06:32:06 pm
Hello everybody, it has been a year since. Was diagnosed as HIV positive. It was on February the 5th while I was doing my annual check out. I was not expecting these news. When the doctor told me by phone about my diagnostic, I felt that my life was over. I am a teacher and when I talked to the doctor, I was about to start my next class. There were the longest 90 minutes of my life. My VL was 121,000 and my CD4 100. The dollars told me that under 200 it was considered AIDS and I needed to start antibiotics to avoid opportunistic infections. He also prescribed Viktarvy. I was so depressed, even though he told me everything was going to be ok, and talked about the advances in medicine. I also tested positive for syphilis. I have to talk to a person they send from the department of health and it was really humiliating. I was so embarrassed. I started taking my medicine on February the 25th, and had my first labs around March the 21st, VL 155 and CD4 140,  I started to feel better about my diagnosis because the numbers were good.  On June the 6th I got my new results, VL -25 , but CD4 still 140. I felt disappointed because I thought they were going to go up at the same pace they did during my second results. Doctor said that I didnít have to worry because the most important number was my VL and that was showing the treatment was working. I got another results a month later, CD4 150 , VL 50. I started to feel depressed again, I just wanted to reach the 200 and be out of the AIDS spectrum. On August the 2nd, my CD4 went down 140,  but my VL was 31. Doctor started to tell me the importance of being patient. I learned all the bodies are different and some people have a faster process than others, and I was on the slow side. On November my CD4 were 110, and VL 30. Doctor asked me if I wanted to change my Biktarvy and I said no, because I learned from here that if the treatment is working and keeping you undetectable, then nothing needs to be changed, the doctor changed bactrim for dopsone, he said dapsone has lower impact on CD4. Today I received my lab results, CD4 160, 17% the highest I have ever been in both aspects, I havenít had my VL results yet, but I am hoping for good news. I am thankful because I didnít get sick before I was diagnosed, and I have been able to continue my life and my routine. I been going to the gym 5 days a week for the last 12 years, I can go on long walks with my dogs, and I have not missed one day at work, today I can say I am the healthiest I have been in years. HIV under control, syphilis free, and full of hope for the future.
Title: Re: One year later what I have learned
Post by: daveR on February 25, 2020, 02:25:23 am
Sounds like things are looking good for you. When the virus is under control, your body will do the rest itself with your CD 4 count.
Good to see you are still fit and active, nothing has to change now a days. Keep doing what you use to.

Good luck
Dave
Title: Re: One year later what I have learned
Post by: Pirata on February 25, 2020, 05:01:26 pm
And I got my VL <20 I am just happy 😃
Title: Re: One year later what I have learned
Post by: Jim Allen on February 25, 2020, 08:03:17 pm
Congratulations on the results

Quote
I have been able to continue my life and my routine. I been going to the gym 5 days a week for the last 12 years, I can go on long walks with my dogs, and I have not missed one day at work, today I can say I am the healthiest I have been in years. HIV under control, syphilis free, and full of hope for the future.

 :) Great update and really glad to hear things are going well and you feel good.
Title: Re: One year later what I have learned
Post by: Pirata on February 26, 2020, 06:17:00 pm
Thank you Jimmy for your support and knowledge and also all the people in here that have kept me optimistic when I was down, you all are really appreciated
Title: Re: One year later what I have learned
Post by: Tonny2 on February 26, 2020, 08:35:51 pm



        ojo.     Hola pirata, With that cd4 % I wouldnít worry about  your cd4 absolute... What were your percentage before?.,,You will be fine, just take your one pill a day and have a good attitude...Please keep us posted
Title: Re: One year later what I have learned
Post by: Pirata on February 26, 2020, 08:50:07 pm
I have been 14% 12% and this time 17% it was also good news!
Title: Re: One year later what I have learned
Post by: Pirata on February 27, 2020, 06:02:06 pm
I went to my appointment today, the doctor was very happy about my progress and he told me that it was time for me to stop taking the Dopson, I was very surprised and I told him I thought I was going to stop when I reached 200 CD4, he said it was all right because I have been undetectable for almost a year and I am doing good progress. I agreed but I am a little concern, but happy at the same time. Any similar experiences?
Title: Re: One year later what I have learned
Post by: Tonny2 on February 27, 2020, 07:21:08 pm



        ojo.      Your doctor is right and with your Xcd4% I wouldnít worry. Being ud it means you med is working. Now take back control of your life because your med itís taking the virus controlled...please keep us posted. Best wishes
Title: Re: One year later what I have learned
Post by: Pirata on February 27, 2020, 07:37:10 pm
Thank you Tonny
Title: Re: One year later what I have learned
Post by: Jim Allen on February 27, 2020, 09:05:52 pm
Thank you Jimmy for your support and knowledge and also all the people in here that have kept me optimistic when I was down, you all are really appreciated

You're welcome, glad to hear that the forum community has been supportive for you  🙂