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Main Forums => Pre-HAART Long-Term Survivors => Topic started by: denb45 on March 14, 2011, 07:16:34 pm

Title: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 14, 2011, 07:16:34 pm
OK I know this has been done before, but I was way too lazy to look up whatever thread is was on :P
so here's my updated list of Meds, how do yours stack up, I thought this was more appropriate for the LTS forums?

20 years of treatment, 19 different medications.

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx (ddI)
Zerit (d4T)
Ziagen
Hivid (ddC)
Crixivan    
Sustiva
Viramune
Kaletra
Norvir
Viracept
Reyataz
Fuzeon
Isentress
Hydrozyurea
APTIVUS
TRUVADA
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: leatherman on March 14, 2011, 10:58:10 pm
19 yrs of treatment, 17 medications
(positive 26 yrs)
Epivir, Epzicom, Emtriva, Retrovir/AZT, Truvada, Videx, Videx EC, Viread, Zerit, Ziagen, Viracept, Norvir (liquid, gelcap, pill), Sustiva, Viramune, Crixivan, Kaletra (liquid, gelcap), Reyataz
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: RapidRod on March 14, 2011, 11:42:09 pm
27 years positive next month and I've only been on medication since 2005

Sustiva
Truvada

Kaletra for a week

Atripla
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: leatherman on March 14, 2011, 11:54:59 pm
only been on medication since 2005
lucky dog ;) woof, woof!

Kaletra for a week
:D ;D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 15, 2011, 12:44:37 am
27 years positive next month and I've only been on medication since 2005

Sustiva
Truvada

Kaletra for a week

Atripla

WOW Rod, I started AZT back in 1990, been on meds for the last 21 yrs now  ;)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: RapidRod on March 15, 2011, 05:25:28 am
lucky dog ;) woof, woof!
 :D ;D
I have to agree, I was real lucky and thankful I didn't have to go thru a lot of what you all have had to go through. It still hasn't been a walk in the park and I wouldn't wish it on anyone.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: J.R.E. on March 15, 2011, 07:52:24 am

I started meds in 2003

Been on:

Viramune ( still am, started on it)

Epzicom ( still am, but was taking it in the beginning in separate doses)

Trizivir-for about a month ( around 4/04)

Zerit- for about a month ( in 03 )

Viread was added to Viramune and Epzicom - from July of 04 to October of 09.  I was on a four drug regimen, and decided to stop the Viread, and take my chances. So far so good.

Ray
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on March 15, 2011, 12:10:12 pm
Wow, this was a great way to test my memory   ::)

The only way I could remember was in groups of the various regimens.  I think I remembered them all, LOL

Viramune, Epivir, AZT

Viracept, Zerit, Epivir

Ziagen, Combivir

Zerit, Epivir, Ziagen, Rescriptor, Viread (replaced Zerit or Epivir eventually?)

Kaletra, Sustiva, Zerit

Epivir, Zerit, Sustiva

Current: Epzicom, Sustiva
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: AlanBama on March 15, 2011, 12:59:29 pm
I had to use the AIDSmeds treatment list as a "cheat sheet":

Zidovudine (AZT)
Epivir (3TC)
Invirase (Saquinavir)
Viread
Zerit (d4T)
Ziagen
Hivid (ddC)
Sustiva
Viramune
Norvir
Viracept
Truvada
Combivir
Epzicom
Emtriva
 
My "favorite" of these is Saquinavir; it saved my life (literally) in 1996.  My most "hated" is AZT, followed by
a close second, ddC.

Currently, I am taking Viramune, Ziagen, and Emtriva
 

Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 15, 2011, 02:00:33 pm


Alan, it dose jog the ole memoires tho  ;D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: AlanBama on March 15, 2011, 03:16:15 pm
I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: aztecan on March 15, 2011, 03:16:40 pm
Not nearly as many as others have been on.

Let's see . . .

AZT
Epivir (3TC)
Saquinavir (later reformulated as Invirase)
Crixivan
Sustiva (replaced the AZT,Epivir with Combivir)
Reyataz
Norvir
Lexiva
Truvada
Isentress

This, of course, doesn't include the other meds I take for other things, including those caused by the above drugs.

But, it did make me stop and try to remember.

HUGS,

Mark

Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Theyer on March 15, 2011, 04:21:30 pm

I have often thought of trying to make a list of all the medical problems I have had (with HIV) but I could not do it without dr's charts to go by, because I (stupidly) did not keep a journal, was too sick to keep one a lot of the time anyway, and I have only sketchy memories to go by.
[/quote]

I understand, the sketchy memories play havoc ,for me, with having a clear idea off time lines, some years are represented by one or two hyper clear memories and that's it. Off course I was a great believer in herbal pain control,
all most evangelical
love mhtv
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: AndyArrow on March 16, 2011, 05:52:29 am
I also had to use the drugs section on here to help jog my memory because my memory was never very good to begin with and also because I actually tried to forget a lot of these drugs.  Heres the list as best as I can recall.

Emtrivia
Epivir
Truvada
Viread
Zerit
Viramune
Norvir
Kaletra
Prezista
Fuzeon
Isentress

Least favorite - Back when they had trouble producing Norvir (late 90s) and I had to drink that NASTY liquid norvir

Current -
Truvada, Prezista, Norvir, Isentress

Hugs & Stuff,
AA
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: leatherman on March 16, 2011, 10:17:16 am
Least favorite - ... that NASTY liquid norvir
agreed! but what do you expect from a 'gasoline' (ethanol) based medication?!?!  :D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Jeff G on March 16, 2011, 10:51:23 am
I cant begin to remember them all but I will name a few ... and they are not in the right order .
AZT
Zerit
Epivir
Norvir
DDI
Viramune
Isentress
Prezista
Truvada
Sustiva

And now back to Atripla .
 
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 16, 2011, 12:40:28 pm
I cant begin to remember them all but I will name a few ... and they are not in the right order .

And now back to Atripla .
 

You did just fine jg, just fine, thanks for your im-put, this really gives some info, on what we've taken thur the yrs. and maybe some Doctor will come in here and see this, and tell us why were all so fucked up with are health and bodies, you just never know, I hope to find this info out anyway I can, I hope  :(
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: rondrond on March 16, 2011, 08:20:44 pm
AZT
Norvir
Crixivan
Epivir
Zerit
Viramune
Truvada
Epzicom
Ziagen
Isentress
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: heartforyou on March 27, 2011, 07:06:44 pm
AZT
Zerit
Epivir
Norvir (remember the orange liquid that left a bitter taste for hours?  the most horryfying one of all)
Crixivan
Ziagen
DDI
Hivid
Invirase
Viramune
Sustiva
Viread
Epzicom

My guess is I have taken about  75.000 HAART pills since I started.. now, how many full  bathtubs would that be ?

xxx Hermie
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: mecch on March 27, 2011, 07:23:28 pm
.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Miss Philicia on March 27, 2011, 07:28:09 pm
Infected for (at most) 23 years (at least) 21 years, AIDS diagnosis for 18 years, 18 years of treatment, 18 different medications
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 27, 2011, 07:45:21 pm
Infected for (at most) 23 years (at least) 21 years, 18 years of treatment, 18 different medications

We are some old mo fo's  :D I gave my list to my ID-Doctor, and she ask me if she could use my list for training purposes @ the school of HIV/AIDS Medicine @ University of New Mexico, I was quite flattered  ;)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: BT65 on March 28, 2011, 04:48:54 am
Are you talking just about HIV meds?  Or meds in general?  Strangely enough, I cannot remember all the names of the meds.  Like Alan, I never kept a journal, doctor's notes, labs etc.   I know I took all the early ones-AZT, ddC, ddI, 3tc, Crixivan, liquid something (could it have been Kaletra, or maybe Norvir), Viramune, Zerit, Sustiva, Lexiva, Truvada, Abacavir (isn't this the one you have to carry a warning card with you), now on Truvada and Isentress (easiest combo I've been on). 

I'm sure that's probably not a complete list.  I was diagnosed 21 years ago, most likely been infected for 23 or 24, diagnosed with AIDS 16 years ago.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on March 28, 2011, 10:53:43 am
Nope just HIV/AIDS Medicine, but your right Betty, if I did included all of the other ones in 20 yrs. that were for the side effects, then it would be a lot more, and I can't even recall a lot of em'  ;)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: alberche on March 29, 2011, 05:14:57 pm
Dear Denb!!!

I take out my hat for you! LOLOL... a great list, and a great survivor!!! not surprised your doctor has taken your list as a "case-of-teaching".

Mine is a short one:

Truvada
Sustiva
Reyataz
Norvir
Etravirine

I've been lucky, all the times, once a day. Norvir in those lovely and discrete big alcohol smelling capsules. I must confess it helped me to improve my swalowing skills...  ;D

Hugs!
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: David Evans on March 29, 2011, 11:09:54 pm
Alberche,

Just a reminder that this is the Long Term Survivor's forum and only long term survivors may post here.

Thanks for your cooperation.

David
Moderator
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: MarcoPoz on March 30, 2011, 09:17:03 am
I'm lucky (?)  Positive 20 years, this year.

Brief start up on AZT mono therapy, but got off of them quickly.

Waited 5 or so years before going on anything else:

AZT, DDI (puke makers)
AZT, DDI, Viramune
AZT, 3TC, Viramune
Combivir, Viramune

Hmmm, but the list of other meds is MUCH longer ;D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: alberche on March 30, 2011, 04:20:05 pm
Dear David, I take note, and will only post back here when I'm a LTS too, into 15 years or so, I promise! but I hope I can drop from time to time to read LTS colleagues' very interesting posts, from which "not newbies-not LTS" people, just like me, find lots of interesting advises and informations to learn from.

Kind regards :-)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: LabRat on April 17, 2011, 10:38:36 am
Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past. Hence my screen name.
AZT
DDI
Epivir
D4T
Crixivan (kidney stones and surgery due to this drug)
Kaletra (one of my favs...constant diarrhea even with 2 doses of immodium per day)
Viread
Sustiva
Isentress

Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs!  A vicious cycle. LOL
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on April 17, 2011, 10:43:33 am
Good Thread Dennis! I think that doctors are just now discovering the long term side effects of the drugs we've taken in the past.
Plus the other drugs for OI's, drugs to counteract side effects, and more drugs to counteract the side effects of the first counteractive side effect drugs!  A vicious cycle. LOL

Yup, you got that right, Yeah us LTS know this all to well, and we all have the fucked up bodies for proof, I know I'm one of the living dead, but I try not think about it so much  :D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: LabRat on April 17, 2011, 10:56:26 am
LOL Dennis! Reminds of the recent series on AMC..."Walking Dead" :D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: BigDaneDogs on April 21, 2011, 02:22:53 am
You may be the "walking dead" but you dang sure don't look like it - lol!!!!  18 years and 16 different meds (will be 17 with Insentress).   ;)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on July 12, 2012, 07:52:45 pm
:: Bump::

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on July 12, 2012, 08:25:50 pm
:: Bump::

I think this thread needs to be resurrected so that those who are newly diagnosed and/or hesitant about starting a regimen for fear of the side effects (who always read the LTS forum) can see what they were fortunate to have missed out on.

Well we don't wanna scare anyone off, just the mire sight of some of us LTS is bad enough  ;D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on July 12, 2012, 09:20:58 pm
No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   ::)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Miss Philicia on July 12, 2012, 09:28:29 pm
No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   ::)

I'd complain too if I got AIDS because some scheming poz queen lied to me about his infection, or if I'd gotten it by not having sex at all in the first place.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on July 12, 2012, 09:29:35 pm
No, but maybe some of them will stop bitching about having to take ONE pill/day or complaining about something that taking Gas-X will cure   ::)

You've hangin out in the Living w/ and AM threads much too long welcome back to the fold, you've been missed around the LTS Thread  ;)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on July 12, 2012, 09:35:42 pm
I'd complain too if I got AIDS because some scheming poz queen lied to me about his infection, or if I'd gotten it by not having sex at all in the first place.

Oh you mean those gift givers are still up to their dirty tricks?  Quel dommage!!!

You've hangin out in the Living w/ and AM threads much too long welcome back to the fold, you've been missed around the LTS Thread  ;)

I came to my senses after realizing that not everyone can swim with bitchy sharks.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on July 12, 2012, 09:38:52 pm
Oh you mean those gift givers are still up to their dirty tricks?  Quel dommage!!!

I came to my senses after realizing that not everyone can swim with bitchy sharks.

Child PLEASE...you know dam well some of these queers are scared of water...... ;D ;D ;D ;D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Jeff G on July 12, 2012, 10:21:05 pm
I just drop by this forum to wallow in self pity from time to time .
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Miss Philicia on July 12, 2012, 10:25:56 pm
I just drop by this forum to wallow in self pity from time to time .

I drop in here to see if I'm suffering more than anyone else.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: wolfter on July 13, 2012, 06:05:34 am
I just drop by this forum to wallow in self pity from time to time .

 ;D  Thanks for the smile this morning.  I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill.  I'm sure many of us don't even have that option.  I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours.  Critical not to miss a dose.  What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds. 
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: jkinatl2 on July 13, 2012, 01:02:18 pm
;D  Thanks for the smile this morning.  I agree with Solo, perhaps some of the newbies can see our history and have thanks for a one a day pill.  I'm sure many of us don't even have that option.  I believe it was the liquid Norvir that I could barely take and hold down, another medication that had to be refridgerated and yet another one that had to be taken every 4 hours.  Critical not to miss a dose.  What a joy setting the alarm clock to achieve that.

I can't recall, nor care to research, all the combos that I've taken but I know it's close to 15 different meds. 

I remember going to the movies and hearing dozens of watch-alarms go off, and see a bunch of guys make a beeline for the lobby.

They didn't all come back.

Title: 20 years of treatment, 18 different medications.
Post by: denb45 on November 25, 2013, 08:15:36 am
25 years of treatment, 18 different medications.  what were your past & current Meds .......share yours

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx (ddI)
Hydrozyurea
Zerit (d4T)
Ziagen
Hivid (ddC)
Sustiva
Viramune
Kaletra
Norvir
Viracept
Fuzeon
APTIVUS
TRUVADA
Isentress current meds
Complera current meds
Title: Re: 20 years of treatment, 18 different medications.
Post by: aztecan on November 25, 2013, 11:41:15 am
OK, in the order I took them, to the best of my recollection:

AZT (6 capsules a day)
Epiver (3TC) (two tablets a day)
(Eventually switched to Combivir, which is the above two drugs in one pill, twice a day)
Saquinavir (9 capsules a day with full fat meal and grapefruit juice)
Crixivan (6 capsules a day - 2 every 8 hours precisely - on an empty stomach)
Sustiva (1 pill a day)
Reyataz (1 capsule a day)
Norvir (one soft gel capsule a day)
Lexiva (one pill a day)
Isentress (current med) (one pill twice a day)
Truvada (current med) (one pill once a day)

These are just the HIV meds. There is other stuff as well.

HUGS,

Mark
Title: Re: 20 years of treatment, 18 different medications.
Post by: denb45 on November 25, 2013, 02:07:30 pm
Yikes!  ::)  I feel like such a HIV/AIDS dinosaur, just trying to recall of these meds  :-\  guess I'm not alone  :-[


HUGS

DEN
Title: Re: 20 years of treatment, 18 different medications.
Post by: allanq on November 25, 2013, 03:42:35 pm
Den,

I started AZT in 1989, and since then I've taken 20 different HIV drugs.

Currently taking:

Prezista
Norvir
Sustiva
Isentress


Other drugs I've taken:

Retrovir (AZT)
Epivir (3TC)
Videx (ddI)
Zerit (d4T)
Ziagen (abacavir)
Hivid (ddC)
Adefovir (clinical trial)
Rescriptor (delavirdine)
Crixivan (indinavir)
Saquinavir
Agenerase (amprenavir)
Aptivus (tipranavir)
Reyataz (atazanavir)
Viracept (nelfinavir)
Kaletra
Fuzeon

~ Allan
Title: Re: 20 years of treatment, 18 different medications.
Post by: mitch777 on November 25, 2013, 04:39:45 pm
 Here are some that I remember:

AZT
3TC
DDI
D4T
Crixivan
Atripla and the separate components before they were combined in one pill
Isentress (current)
Truvada (current)

There may have been a few more but my memory sucks. :)
Title: Re: 20 years of treatment, 18 different medications.
Post by: Theyer on November 25, 2013, 05:21:35 pm
Can,t remember my present combo without getting the drug bag out.
Title: Re: 20 years of treatment, 18 different medications.
Post by: wolfter on November 25, 2013, 05:49:24 pm
Goodness, I don't remember all the meds I've taken .  Like Theyer, I have enough difficulty remembering my current ones.  Which reminds me, I need to update my laminated list that I always attach for medical purposes. 

I don't remember it's name, but the one that had to be refrigerated was the worst.  Such a pain in the ass when taking trips. 
Title: Re: 20 years of treatment, 18 different medications.
Post by: LongTimeSurvivor on November 25, 2013, 06:58:13 pm
Reading everyone's lists reminds me of playing the "Alphabet Game" when we'd drive on a long trip. You picked the first letter off of billboards as the parents drove. Whoever saw it first got it. The absolute hardest was finding a "Z" but surprisingly there were a few.

Not that that has anything to do with the topic at hand...

Dean
Title: Re: 20 years of treatment, 18 different medications.
Post by: leatherman on November 25, 2013, 08:33:25 pm
same list, just the dates have changed
21 yrs treatment, 17 medications
(positive 29 yrs)
19 yrs of treatment, 17 medications
(positive 26 yrs)

Epivir, Epzicom, Emtriva, Retrovir/AZT, Truvada, Videx, Videx EC, Viread, Zerit, Ziagen, Viracept, Norvir (liquid, gelcap, pill), Sustiva, Viramune, Crixivan, Kaletra (liquid, gelcap), Reyataz
Title: Re: 20 years of treatment, 18 different medications.
Post by: J.R.E. on November 25, 2013, 08:45:32 pm


I got to say, my list is very short.  28 years of living with HIV, but only on treatment a little over 10 years, one month.

Started on Zerit, Viramune and Epivir,  and was only on that briefly.  Also had a 3 week to a month stretch on AZT, The AZT was substituted for the zerit and was taken along with Viramune and Epivir until that was changed. AZT was dropped for
Abacavir.

Viread,was added as a 4th drug, along with Epzicom and Viramune and was on that for about 4 or 5 years. Then I decided to drop the Viread.

But after that, still on

Viramune and Epzicom.

I won't count all those antibiotics of Dapsone, Bactrim, Zithromax, Valtrex, Cipro,  Prednisone  ugh.... and all the Tylenol back in 2003.


Ray

Title: Re: 20 years of treatment, 18 different medications.
Post by: Jeff G on November 25, 2013, 08:55:38 pm
All I can remember is AZT , Stoli Vodka and cocaine and the rest is a blur .

I cant remember those early drugs but they were all nasty . DDI and there was one drug that made me crap just looking at the pills . I had the most horrible luck with meds up until Atripla and considered the suicidal tendency's of that drug a vast improvement to anything before that . Kind of sad but I kept my sense of humor through it all at least .   
Title: Re: 20 years of treatment, 18 different medications.
Post by: Snowangel on November 25, 2013, 09:07:36 pm
On meds since Jan of 97

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx
Sustiva
Viramune
Kaletra
Atripla
Norvir
Viracept
Prezista

I am probably missing some.

The worse for me was the chewable Videx. YUCK!!
Currently on Complera



Title: Re: 20 years of treatment, 18 different medications.
Post by: denb45 on November 26, 2013, 08:59:36 am
AZT & DDI as well as saquinavir (Invirase, Fortovase) (gel caps) I knew i forgot one of them  ::)

so that brings my total up to 19 different medications, I'm sure there was other stuff I took, but I cannot recall as it eludes my memory  :-\

and those horrid Norvir (gel caps) were the worse of them all....

Also that blue Viracept (Nelfinavir Mesylate) would turn your month all blue and yucky looking and scare the be-jesus outta your date or family members,

some kids would cry when they saw that, adults would run outta the room  :(

ahh memories, at least those that anyone of us can remember  :-X
Title: Re: 20 years of treatment, 18 different medications.
Post by: AlanBama on November 26, 2013, 01:06:40 pm
I think this is my complete list (alphabetical):  was Fortovase the same as Invirase?  I'm not real clear on that....

Combivir
Emtriva
Epivir (3TC)
Hivid (ddC)
Invirase
Isentresss
Norvir - capsules
Norvir - liquid
Prezista
Retrovir (AZT)
Sustiva
Truvada
Viracept
Viramune
Viread
Zerit (d4T)
Ziagen

Currently on Isentress, Prezista/Norvir


ALAN
Title: Re: 20 years of treatment, 18 different medications.
Post by: Miss Philicia on November 26, 2013, 04:11:09 pm
Haven't we done this exact same thread previously?
Title: Re: 20 years of treatment, 18 different medications.
Post by: Theyer on November 26, 2013, 05:35:23 pm
If I cannot renember what drugs I am on its quite likely I might repeart threads .

That could be a good nic name for a senile fashion freak,s.  repeat threads.

good nite all
Title: Re: 20 years of treatment, 18 different medications.
Post by: wolfter on November 26, 2013, 05:36:39 pm
If I cannot renember what drugs I am on its quite likely I might repeart threads .

That could be a good nic name for a senile fashion freak,s.  repeat threads.

good nite all

Quite excellent.   ;D  I thought the same thing.
Title: Re: 20 years of treatment, 18 different medications.
Post by: leatherman on November 26, 2013, 07:16:35 pm
Haven't we done this exact same thread previously?
for a while, this seemed like a yearly thread as we had this topic in 2010 (http://forums.poz.com/index.php?topic=34784) (Oct, started by Surf18) and then again in 2011 (http://forums.poz.com/index.php?topic=36945) (Mar, coincidentally started by our current OP).

However, we missed 2012 completely and nearly got to the end of 2013 before this topic resurfuraced.  At least those old threads didn't return as zombies. LOL

repeat threads
the perfect name for a vintage/resale clothing store ;)
Title: Re: 20 years of treatment, 18 different medications.
Post by: denb45 on November 26, 2013, 07:31:08 pm
I think it's important not to forget what some of us LTS had to endure w/ some of the older HIV-durgs,

and it's something that the younger or newly infected need to read about, it's a part of our history, and relevant & germain to this LTS thread,

no matter how many times it's repeated, the point is we must all remember what we can, and NEVER FORGET where we came from

it's our appointed duty to keep this thread ALIVE  ;)
Title: Re: 20 years of treatment, 18 different medications.
Post by: mitch777 on November 26, 2013, 07:50:11 pm
I think it's important not to forget what some of us LTS had to endure w/ some of the older HIV-durgs,

and it's something that the younger or newly infected need to read about, it's a part of our history, and relevant & germain to this LTS thread,

no matter how many times it's repeated, the point is we must all remember what we can, and NEVER FORGET where we came from

it's our appointed duty to keep this thread ALIVE  ;)

This whole site is history in the making. Not sure who will look back when a cure is found but real life stories here do make a difference whether it comes from us LTS or the newly indoctrinated.

Our lives past and present expressed from the heart speak volumes... even the humor of it all.
Title: Re: 20 years of treatment, 18 different medications.
Post by: J.R.E. on November 26, 2013, 08:10:44 pm


After looking at the older thread, I forgot that the AZT I was taking, was in Trizivir.

So add Trizivir to my list, That was the one I was on for about a month.

Ray   
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: charlesEdgar on November 26, 2013, 10:26:44 pm
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: mitch777 on November 26, 2013, 10:42:03 pm
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.

Welcolme to the forums Charles! An unusual first place to post but good as any I guess. lol. :)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: wolfter on November 27, 2013, 02:13:46 am
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.

Straight out of an 80's lecture on sexualism? Sorry, but as a first post, oh well....
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on November 27, 2013, 07:07:31 pm
Zidovudine (AZT) 4 times a day and Hydrozyurea (twice a day) made all of my body hair, chest, legs fall-out, and made me sick & weak

Videx (ddI) twice a day (crushed up w/ water added) made me hurl, and give my horrible GERD, I still have this today

Crixivan twice a day ( 4 tabs a day) messed up my kidneys and give my stage 3 renal problems, along w/ kidney stones

APTIVUS, Kaletra, Norvir and saquinavir (Invirase, Fortovase) (gel caps)  4 tabs a day give me diarrhea

I still have GI disease even today, and a lot of joint inflammation, as well a neuropathy in my feet & hands

also I have Cognitive Dysfunction all of witch is part of my  SSDI- disability

so I cannot really connect the dots to well here, but I'm guessing that some of these older meds caused most these problems, but I know that the above statement is up for debate

 ^ discuss ^ 

Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Theyer on November 28, 2013, 06:38:48 am
Welcome Charles, great first Post . Would you describe yourself as Darwinian ? I know that for a lot off people his work helps on many levels.

I guess another reason subjects are going to be repeated is that new folks are going to come along and for them it will not be so new. Thank the Gods that members like Miss P have I imagine a hyper powerful computer memory bank to back up there own sharp memories and past discussions can be found and shared again.

I can know do my own list as although I cannot bring to memory the names off the drugs I can recognize the ones I have taken. I think its linked to my having a good vocabulary and the most dire spelling , spell check is truly my saviour.

Now I am wondering if you are safe and sound with your family David, or are MrWumps remarks about your driving mean ish.

What a rambling post so I end with
Welcome Charles
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: leatherman on November 28, 2013, 10:48:20 am
I got saw that something unusal happened to this thread overnight. how come this thread got merged into that older thread? Does this mean we shouldn't start new threads? It's like the walking dead and this thread got bit and turned into a zombie thread. LOL  :D
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Theyer on November 28, 2013, 10:53:16 am
Good modding thanks mods .
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Jeff G on November 28, 2013, 11:03:15 am
I got saw that something unusal happened to this thread overnight. how come this thread got merged into that older thread? Does this mean we shouldn't start new threads? It's like the walking dead and this thread got bit and turned into a zombie thread. LOL  :D

It just makes sense to have it all in one place .
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on November 28, 2013, 11:05:05 am
It just makes sense to have it all in one place .

Well Mikie, and Jeff, you know what they say

dementia is a real bitch for some of us

old folks & seniors, I'm trying, and doing doing my best  :-[
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Miss Philicia on November 28, 2013, 12:17:27 pm
It just makes sense to have it all in one place .

All the better to accrue "I Suffered More" points, no?
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Theyer on November 29, 2013, 06:14:55 am
All the better to accrue "I Suffered More" points, no?

People need to be able to state what they are going through. As time goes on and hopefully we as a supportive group tackle the shit off aging, earlier cognative failure,s , cancer,s , surgery,s there will be suffering.

And perhaps at times some might become stuck unable to see other paths and for some there will be no choices.

Those off us reading that Pain will also have to manage how it affects us , and think how our comments affect others who are not as fortunate to be say enjoying a break away from the city with there family.

I think you are better than the above comment, David. However I am angry at it.

Michael.





Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: denb45 on November 29, 2013, 10:18:31 am
All the better to accrue "I Suffered More" points, no?

 As usual you miss the point on what this thread is all about, it's not a competition, and it certainly isn't about who suffers (suffered more) I think we all endured a lot with these older drugs, and still feel some
of the affects  ;)

HUGS

DEN

Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: AlanBama on November 30, 2013, 03:24:22 pm
Must everything be a pissing contest?  I don't think so.  No "poor me" intended, we are simply listing our med history.  Sheesh...
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Theyer on December 01, 2013, 07:27:53 am
Must everything be a pissing contest?  I don't think so.  No "poor me" intended, we are simply listing our med history.  Sheesh...

Exactly.

Anyway an end. ( for me at least )

I have decided to draw and have digitally embroidered ala Boy/Girl Scout badges the names off drugs and illnesses , then off course there will need to be Shirts , Throw,s---David can take Throw division --- Frames to display the Badges , whatever Big Butch folk can make sustainable wood display cabinets.

One can be a walking history or have there own discreet private Gallery.  The problems over disclosure would be a thing off the past and It could certainly help with performance anxiety if possable desired person could cast an eye over what you have recovered from.

This will then fiance my road movie tour off you all and those who post but cannot play here but either have beautiful personalities, dogs, or are just Disgustingly rich and opt to fling the stuff at me .

That will win Oscar for Best Documentary.

We can all go and hold the AMG in West Hollywood or somewhere on the coast a bit out off LA. Oh what the Hell one party place one county/sea side place.

Then I will think off what to do next.

Love you ALL

Michael h t v.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: guitargal on December 01, 2013, 12:42:39 pm
this thread started in 2011!
if i can remember i will add my list..



tested pos in 1992
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: leatherman on December 01, 2013, 03:54:28 pm
this thread started in 2011!
it's kinda  "part two" of that older thread. This thread started a short time ago and then got merged a few days ago. It's kinda the opposite of the Walking Dead - the zombie thread has been brought back to life. LOL  ;D

if i can remember i will add my list..
tested pos in 1992
a cheat sheet to help you put together your list  ;)
(I started meds in 92 and am coming closer to 52, so i'm curious to compare our lists LOL)
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on March 15, 2014, 03:43:25 pm
What better way than to resurface here and participate by resurrecting a zombie thread.

I guess I should update my post (http://forums.poz.com/index.php?topic=36945.msg459939#msg459939) since I recently switched to Atripla from Epzicom and Sustiva (after being on it since its inception).
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: mrtoad on August 17, 2014, 05:34:40 pm
your count of 19 is no doubt close to mine.I don't know for sure and would hurt my small brain to remember all of them.Good ole nueropathy causing azt was the first though.
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: guitargal on August 18, 2014, 12:47:41 am
what a long strange trip it's beenů

Zidovudine (AZT)  diagnosed Nov 1992
Hivid (ddC) short time shooting pain in spine..
Videx (ddI)
Zerit (d4T)
(pancreatius in 1997)
Epivir (3TC)
Viread
Viramune
Norvir
crixavan
Viracept
TRUVADA
Isentress
Complera
Srtibild

abacavir 3tc  (epzicon) current meds
tivicay  current med

whew! i hear they are combining abc/lamividuine(epzicom)  and tivicay in one pill! coming soon !
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: moxieinme on September 02, 2014, 03:30:25 pm
I just happened to fill out a form for a clinical study which asked for my med history. I had never summarized it before, and it took me by surprise. So here's my list as a 25+ year survivor, on treatment 25 of those years. Basically 19 HIV meds (4 current, 15 past). And I'm not including the non-HIV stuff like stuff for hyperlipidemia etc. like lipitor and tricor which I've taken for years.

AZT
DDI
Adefovir (anyone remember this "lovely" short-lived drug? Ugh.)
Effavirenz
Abacavir
Amprenavir
Epivir
D4T
Loprinavor
Kaletra
Viread
Emtriva
Lexiva
Crixivan (Another ugh: hair loss, kidney stones)
Saquinavir

Current meds:
Prezista
Intelence
Isentress
Norvir
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: idee on October 13, 2014, 01:48:34 pm
I have taken many medications. I started in 1995. I don't recall which ones, but it's in my charts. I do remember something called DDC or DDI. It made me have this horrible body odor. Even my friends disowned me. I was glad when it quit working. I took up to four showers a day and it did not help. The pill looked like a smaller Alka-Seltzer and white. I do remember it tasted horrible with Sprite.
 
Title: Re: Do any of you know how many meds you've taken thur the yrs.
Post by: Solo_LTSurvivor on June 23, 2020, 04:39:03 pm
Wow, this was a great way to test my memory   ::)

The only way I could remember was in groups of the various regimens.  I think I remembered them all, LOL

Viramune, Epivir, AZT

Viracept, Zerit, Epivir

Ziagen, Combivir

Zerit, Epivir, Ziagen, Rescriptor, Viread (replaced Zerit or Epivir eventually?)

Kaletra, Sustiva, Zerit

Epivir, Zerit, Sustiva

Epzicom, Sustiva

Atripla

Current: Biktarvy

It's been quite some time since I've been around these parts.  I had to test to see if senility would allow me to remember my log-in information, and also decided to update my meds.