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Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

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Recent Posts

Pages: [1] 2 3 ... 10
1
Do I Have HIV? / Re: Do or die situation pls I need help and urgent advice from you guz
« Last post by Jim Allen on Today at 01:23:09 pm »
Quote
all forums members must post information which are true and correct to their knowledge.

Quote
HIV/AIDS denialists. Any member who posts denialists propaganda -- including direct links to information produced by denialist entities or language encouraging members to research denialism -- will be banned immediately. More benign questions or comments about denialism, especially when raised by a long-term member of the Forums, will be handled on a case-by-case basis.

Quote
Offences that may result in a warning and/or TO include starting threads or posting comments that are designed to provoke an angry response - a practice known as flame-baiting

Like I said apologize or don't come back are your choices.
2
Do I Have HIV? / Re: Do or die situation pls I need help and urgent advice from you guz
« Last post by Jim Allen on Today at 01:16:14 pm »
Hiya,

Quote
My post has been removed coz I have exposed pep

Why admin why you deleting my post

Pls have same respect to reply

Your post has not been removed. Its there for everyone to see, now, its prehaps batshit crazy but it has not been removed and your accusation towards me as admin and the conspiracy theory tone about PEP are baseless and disgusting.

Prehaps you and the "pharmacist" have been spending too much time togather? In short, your story is that your doctor, a qualified MD gave you PEP based on an medical assessment, guidelines and medical knowledge but based some glorified shop assistant concerns you are now stressed... ::)

I will be honest, I do not believe you when you claim a pharmacist said this to you, although i know some pharmacist are idiots, but what you have posted so far and the post titles that I have now updated, all reek of AIDS denialism playbook.


Pretending there is some truth to your story for a moment, PEP as Micheal has explained does not give you HIV or cause HIV antibodies to be produced and doesn't cause you to take HIV meds for life.

HIV antibodies are produced in responce to an HIV infection and PEP is a course of meds, that tries to block HIV from completing its lifecycle post exposure, thus preventing it from taking hold. PEP ins't new and has been around since the late 90s and first guidelines issued in the early 2000s. (See nPEP / oPEP)

In theory, taking PEP could cause delayed detection if it fails to prevent HIV from taking hold (Blunted HIV Infection), but this is why testing guidelines are applied post finishing PEP instead of post exposure date, as Micheal and I have already explained, but to be clear I will explain this again, test to confirm your HIV status six weeks after finishing PEP with a blood draw (lab) HIV antibody test. A non-reactive result at that time would rarely change, and retesting at three months is generally unnecessary.

You asked for respect, well we gave you respect in our initial answers and time we put into them, but in return we got this, so do not return to the forum unless you first are willing to apologize to both of us.

https://www.poz.com/basics/hiv-basics/hiv-life-cycle
3
Do I Have HIV? / Re: Do or die situation pls I need help and urgent advice from you guz
« Last post by shiv3554 on Today at 12:50:37 pm »
My post has been removed coz I have exposed pep

Why admin why you deleting my post

Pls have same respect to reply


My question I am repeating again

—-hello everyone  l recently came to know that .Pep medicines are only given by doctor when your parter is confirmed hiv positive


You don’t need to take it if you are unsure because once you take it ..it will create hiv antibodies in your body which will lead to give false positive result and you will be entitled to take it for life time ..


4
Do I Have HIV? / Re: Do or die situation pls I need help and urgent advice from you guz
« Last post by leatherman on Today at 12:34:27 pm »
Quote from: shiv3554 on Today at 12:08:32 pm
He shouted on me and frightened me saying that PEP is only given when your partner is confirmed hiv positive.

Taking without proper information .,PEP medicines  builds hiv antibodies in your body which will can give you false >:( positive result and bound you to take medicine for rest of life .

Do pep medicines will give hiv virus unnecessarily so that I have to take it for lifetime
I hope the doctor who prescribed the PEP explained it better than this pharmacy doctor.

PEP is prescribed for people who may have been exposed to HIV during sex (for example, if the condom broke), shared needles, syringes, or other equipment to inject drugs, or were sexually assaulted. You were correctly prescribed PEP after having a broken condom.

Just for your own information: if your partner was HIV+, had been adherent to their HIV meds, and had had an undetectable viral load for 6 months, they could no longer transmit HIV to you. The pharmacy doctor was very incorrect in saying that PEP was only given if a partner had HIV.

PEP does not build up HIV antibodies. It does not cause a false positive. It does not cause you to continue taking HIV meds for the rest of your life.

I hope all this helps you not worry any more about doing the right thing (getting PEP after condom breakage). After completing the 28 day course of PEP, remember to get tested again in 6 weeks.

Have a good day,
Michael

Reducing Your HIV risks:
With no exceptions, use condoms correctly and consistently for anal or vaginal intercourse
Talk to a healthcare provider about PrEP as another layer of protection

Get tested yearly for HIV and other STIs.
If you don’t use condoms and/or PrEP, test more frequently

Some sexual practices described as safe in terms of acquiring HIV still pose a risk for other more easily acquired STIs. It is possible to show no signs or symptoms from an STI so testing is the only way to know.

Get tested at least yearly for STIs, including but not limited to HIV, and more frequently if condomless intercourse occurs.

What’s the ONLY way to know if you’ve been infected by HIV or an STI?
Get tested.


Please Note.
As a member of the "Do I have HIV" Forum, you are required to only post in this one thread no matter how long between visits or the subject matter. You can find this thread by going to your profile and selecting show own post, which will take you here. It helps us to help you when you keep all your thoughts or questions in one thread, and it helps other readers to follow the discussion. Any additional threads will be removed.
5
Do I Have HIV? / Re: Do or die situation pls I need help and urgent advice from you guz
« Last post by shiv3554 on Today at 12:08:32 pm »
Hello experts pls :(  help me out

I m freaking very bad

I recently talk to pharmacy doctor after I told him that I have started taking pep for 14 days due to condom brokerage and unknown hiv status
He shouted on me and frightened me saying that PEP is only given when your partner is confirmed hiv positive .

Taking without proper information .,PEP medicines  builds hiv antibodies in your body which will can give you false >:( positive result and bound you to take medicine for rest of life .


I m very scared pls clear the light on it … Do pep medicines will give hiv virus unnecessarily so that I have to take it for lifetime

I m taking it for since 14 days
6
I Just Tested Poz / Re: Intro STLPOS17 - Medical Care
« Last post by Jim Allen on Today at 11:00:49 am »
Hiya,

Sorry to hear about the diagnosis and that the trust has broken down with your current medical care team. I hope you can find a different clinic for care in the future.

Quote
massively violated my HIPPA rights with my employer

So the hospital informed your employer of your HIV status?

Quote from: STLPOS17 on Today at 09:13:17 am
Now my social worker acts like I'm going to the best of the best for health care but I simply have no trust in the schmucks who are treating me. Yesterday I had to listen to a neurologist regale me of the early days of the epidemic before HAART. Sorry, but the dude is smoking something. Had his hospital team not told me I was healthy, I wouldn't have presented months later with stage 3 AIDS and I might not have these neurological problems. His suggestion that the medicine just needs more time to work its way into the brain sounds encouraging, though it goes against some of the stuff I've found online. But I just don't have any TRUST in these people. I wish I knew where to find a doctor I might believe, I don't think it even matters if the doctors I'm working with now are competent nor kind; I always feel like I've been used after leaving the office.

A few questions: What were your initial lab results, VL and CD4? Have there been any improvements since? What medications are you taking? What neurological conditions have been diagnosed, and when did they start?

Best, Jim.

7
AIDS Activism / MOVED: Bad Medical Care
« Last post by Jim Allen on Today at 09:34:01 am »
This topic has been moved to I Just Tested Poz.

https://forums.poz.com/index.php?topic=78098.0
8
I Just Tested Poz / Intro STLPOS17 - Medical Care
« Last post by STLPOS17 on Today at 09:13:17 am »
I don't know where I should post this, but here goes... Has anyone else felt as if the health care community uses us as a means for insurance payments? I don't know where to find a good doctor. I live in the Midwest and the healthcare provider in the area acts as if they are some mythical ethos of Godliness. The reality is that they ignored my request for an HIV test for several months, massively violated my HIPPA rights with my employer, tested me and let me leave the hospital for months without telling me I was positive.

Months later a nurse retested me and apologized for what happened. Now my social worker acts like I'm going to the best of the best for health care but I simply have no trust in the schmucks who are treating me. Yesterday I had to listen to a neurologist regale me of the early days of the epidemic before HAART. Sorry, but the dude is smoking something. Had his hospital team not told me I was healthy, I wouldn't have presented months later with stage 3 AIDS and I might not have these neurological problems. His suggestion that the medicine just needs more time to work its way into the brain sounds encouraging, though it goes against some of the stuff I've found online. But I just don't have any TRUST in these people. I wish I knew where to find a doctor I might believe, I don't think it even matters if the doctors I'm working with now are competent nor kind; I always feel like I've been used after leaving the office.
9
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Joebilly73 on Yesterday at 07:23:50 pm »
Good Evening,

Just wanted to give an update.
September 2024
CD4% 5L
CD4 - 87L
RBC 4.19L (4.20 bottom of threshold)
Hemoglobin 13.0  (13.2 Bottom)

November 2024
CD4% 7L (Highest yet)
CD4 129L (Highest prior was a 147 in March 2024) since then it has been as low as 57.
RBC 3.83L
Hemoglobin 12.6

Overall I feel pretty good.

Any thoughts on why the RBC is down?

Thanks
Joe
10
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 05:53:40 pm »



                   ojo.            Hello everyone!… I saw my cornea specialist yesterday to replace my contact lens. He seems like everything is stable in my eye. I keep reading 20/150, but in real life I feel like my vision is lower. But it is what it is.

I just got the bill for my bionic eye which is just like a big contact lens, piece of plastic, where they paint my Irish and pupil. When I got it done, they told me that he might cost like $4000, I was amazed when I saw the bill, $8000 OMG!! I wonder how many people like to have fed with that money.. I don’t have any out-of-pocket expenses because my insurance paid for it, but still, it is a lot of money… well, I just wanted to let you know how I am doing, the pain in my blind eye is still there, but it is what it is like I said before, I will learn to live with it. I don’t want more surgeries… Hugs.
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