POZ Community Forums
Main Forums => Living With HIV => Topic started by: klassykitty on January 30, 2013, 09:35:21 pm
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YEA!!!! 2 years later my CD4 has gone above 100, (I know it was above 100 before, but it fell back way down so I don't count that).
My VL is still ud
My doctor still calls me his "mystery patient", and still says "see you in 3 months".( I told him he can use me as a test patient to find out why CD4 is such a bugger and VL is doing it's thing) .
There was talk of possibly adding Selzentry, I have 3 months to decide.
Nurse Vampire only got to take blood and didn't get to give shots. I told her maybe this time next year.
Michelle 8)
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Congratulations KK -- glad you've got a devoted doc.
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Happy AIDSaverssary to one of my favorite gals in this forum.
Hugs :-*
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Good to hear. I've heard several people here say they weren't seeing much an increase for a few years, and then they saw increases.
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Congrats. There have been several of us who were slow to see our numbers climb. Mine eventually really started going up and I plan on having more cd4's than anyone. :)
Wolfie
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(I know it was above 100 before, but it fell back way down so I don't count that).
it's probably the "fell back way down" part that really counts. Studies have shown that people who reach a pretty low cd4 nadir (that's the lowest point) often have a hard time recovering cd4s, take a long time recovering, and often never recover very much.
I'll use myself as the example. Having hit some cd4s lows of 5, 17, 12 (these happened in the first 5 yrs of having AIDS), it took me 18 yrs to reach 300. And while 300 isn't all that high and I spent most of the last decade in the low 200s, I also haven't been back in the hospital in 14 yrs 10 months.
So it's not always about how many cd4s you have, but how well they work. ;)
It's really all about staying UD.
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Congrats Michelle . I began treatment with a high viral load and low CD4 count and its taken me 13 or more years to get my numbers above 500 . It took about 5 years to see numbers consistently above 200 ish . Its a long haul but you most likely will get there soon enough . Its been pointed out and its true , its the big picture that counts and yours is looking good ! .
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I also haven't been back in the hospital in 14 yrs 10 months.
I'm glad to know I'm not the only one who counts months. 2 years 3 months here.
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Wonderful news for you Michelle!
:)
Me: Total of 28 years this January HIV+.
I am another one where it took me over 15 years to get over 500 CD4 after starting out under 100. Now undetectable over 12 years and running in the 700s-800s CD4.
So, improvement can indeed happen!
:)
Take care.
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Congrats Michelle! Onward and upward my friend!
-Will
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it took me 18 yrs to reach 300.
and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!
so hang in there Michelle. I'm sure it won't take you decades ;)
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and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!
Congratulations! And to you, Michelle. That's great news. :)
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great news all around! :)