Welcome, Guest. Please login or register.
August 01, 2021, 07:44:34 pm

Login with username, password and session length

  • Total Posts: 760833
  • Total Topics: 64561
  • Online Today: 312
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 1
Guests: 257
Total: 258


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: One Year Later  (Read 1225 times)

0 Members and 1 Guest are viewing this topic.

Offline Diagnosedat50

  • Member
  • Posts: 6
One Year Later
« on: November 29, 2020, 06:27:10 pm »
One year ago today, I got the call from my doctor informing me that I had tested positive for HIV. After seven days of fever, headache and body aches, night sweats, nausea, and negative tests for flu, strep, and mono, at least I had an answer for why I felt so awful.

Fortunately I started treatment on Biktarvy later that day, and I met with an infectious disease specialist the following week for confirmatory testing, especially since the initial test came back positive for HIV antibodies negative for the p-24 antigen. Follow up testing confirmed my HIV infection, along with a VL of 5167 and a CD4 of 187, so I also began a course of Bactrim. The doctor suspects that I had the virus for years before any symptoms presented.

As you might expect, my mind became totally consumed with my new diagnosis, and I wondered if things would ever get back to any sense of normal. Things were rather dark the first month post-diagnosis; the sense of gloom and sadness, combined with trying to recover from what felt like my worst illness ever, made December 2019 a rough period. But as I started to feel better physically, my mood followed.

A year later, I’ve been fortunate too see that life goes on. I became undetectable by the following January, and have remained that way since. The CD4 count has also rebounded from 187 to 484 (as of August). I had been very physically active for years leading up to my diagnosis, running 2000-3000 miles a year since 2007, so I was worried if I’d ever get back to that again. It was slow going at first, but I was back to a consistent routine by spring. And while COVID led to multiple delays in getting medical care with both my primary care physician and my infectious disease specialist, my visits and blood work have all been solid.

At times I still wonder about any long term damage caused by the virus after such a late diagnosis, but so far so good.

So why am I sharing this? First, I hope that my sharing this will offer some reassurance to those who are newly diagnosed. Things may seem dark and awful at first, but it can and does get better. I’m also sharing this as a way to express my appreciation to the people involved in this forum. The posts here have been a huge source of information and comfort during this first year, so THANK YOU!

Offline PozChilean

  • Global Moderator
  • Member
  • Posts: 66
Re: One Year Later
« Reply #1 on: November 29, 2020, 06:46:29 pm »
Welcome, and thank you for sharing your experience with us.

I'm glad you've been UD for almost a year, and please don't lose sleep over what the late diagnosis might cause in the long run. I've been positive for more than 4 years now and I think I've been able to do well because I've blocked those ideas from my head.
HIV 101 - Todo lo que necesitas saber:
HIV 101
Lee más sobre testeo aquí:
Testeo para HIV
Lee acerca del "tratamiento como prevención" (TasP) aquí:
Puedes leer acerca de la prevención del VIH aquí:
Prevención del VIH
Lee sobre PEP y PrEP aquí:

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 17,429
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: One Year Later
« Reply #2 on: December 03, 2020, 09:36:27 am »

Thanks for sharing your story about the first year of your diagnosis.
Glad to read that things have started to get better :)

Best, Jim
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,459
Re: One Year Later
« Reply #3 on: December 03, 2020, 09:40:59 pm »

         ojo.         Hello and welcome!...I’m glad you are feeling better and congrats for your success with your treatment, (one pill a day), I take 4x2 a day.

I’ve been living with hiv/aids and taking medication for 26 years and I have not grown horns nor tail, so, don’t worry about what’s going to happen in the future, live the present and keep making plans for the future because, if you take your med as prescribed, you will be around for a long time, look at me, even, when I was diagnosed with aids with 20 cd4, and I was told that I would live only two more years after my dx, I kept living my live as I used to live it before my dx, I even bought my own house. So, keep up the good work and now that you are positive, you have to live a positive life, do you know what I mean?... Best of luck and please keep us posted...hugs.    ojo


Terms of Membership for these forums

© 2021 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.