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Author Topic: Current ADAP waiting lists 559 people waiting for meds  (Read 7401 times)

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Offline MarcoPoz

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Current ADAP waiting lists 559 people waiting for meds
« on: February 22, 2010, 03:30:25 pm »
From NASTAD:

ADAPs with Waiting Lists (559 individuals, as of February 19, 2010)
Arkansas: 14 individuals
Idaho: 16 individuals
Iowa: 49 individuals
Kentucky: 162 individuals
Montana: 14 individuals
Nebraska: 21 individuals
North Carolina: 97 individuals
South Dakota: 24 individuals
Tennessee: 79 individuals
Utah: 69 individuals
Wyoming: 14 individuals
ADAPs with Other Cost-containment Strategies (instituted since April 1, 2009)
Arizona: reduced formulary
Arkansas: reduced formulary, lowered financial eligibility
Iowa: reduced formulary
Nebraska: reduced formulary
North Carolina: capped enrollment
North Dakota: cap on Fuzeon
Utah: reduced formulary, lowered financial eligibility
Washington: client cost sharing, reduced formulary (for uninsured clients only)
ADAPs Considering New/Additional Cost-containment Measures (before March 31, 2010*)
Indiana: capped enrollment
Kentucky: reduced formulary, client cost sharing
Missouri: reduced formulary
North Dakota: capped enrollment, waiting list, reduced formulary, annual expenditure cap
South Dakota: reduced formulary
Wyoming: lowered financial eligibility, annual expenditure cap
* March 31, 2010 is the end of ADAP FY2009. ADAP fiscal years begin April 1 and end March 31.
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Offline Hellraiser

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Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #1 on: February 22, 2010, 04:30:08 pm »
I have to wonder how Louisiana and Mississippi who are 2 of the poorest states in the union aren't on that list.  Is it because our formulary is so small?

It's terrible that there is a waiting list for ADAP.  I'm using ADAP for the moment but if I want to leave the state will I be added to a new state's waiting list?
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Offline YaKaMein

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  • Posts: 368
Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #2 on: February 22, 2010, 09:56:15 pm »
Louisiana is currently facing a $5 million shortfall between current flat-lined Ryan White Part B [ADAP] funding and increased costs due to demand [need] for treatment. The state department which handles LA ADAP is considering several cost containment measures including several posted by MarcoPoz.

In short, Louisiana will be on that list soon since there are changes which are yet to be determined for the ADAP in Louisiana. I don't know what's brewing in MS.

<<La ADAP covers all FDA approved antiretrovials [ARVs] and 31 drugs for OI, unlike some states, it's bareboned for HIV associated treatments>>

As a member of the planning body for Ryan White Services in the New Orleans EMA, we've been primed for this the past two weeks. It is disconcerting when so much effort has been exerted in identifying new positives only to possibly be unable to offer treatment if needed to those brought into care.

Since each state has specific eligibility requirements, I'd urge you to contact your new state of choice and see what those are. For example, if you move to state which is closed to new enrollees for ADAP or has a waiting list, you could experience an interruption in treatment unless you have the resources [insurance, money, etc] to cover the costs of your meds. Treatment interruptions are unpredictable and may have undesired consequences. -YaKa
« Last Edit: February 22, 2010, 10:00:38 pm by YaKaMein »
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09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #3 on: February 22, 2010, 10:08:18 pm »
so far Florida is holding its own.... Miami-Dade and Fort Lauderdale area typically get a pretty good share of funding based on pr evelance.
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September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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  • It just is, OK?
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Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #4 on: February 23, 2010, 12:04:42 am »
560 people too many. And "socialised" medicine is opposed... why, exactly?
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Offline YaKaMein

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  • Posts: 368
Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #5 on: February 23, 2010, 12:11:07 am »
Ann, it's a conundrum to so many of us in the US. Maybe one day! ???
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09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline Hellraiser

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Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #6 on: February 23, 2010, 12:12:30 am »
Quote from: Ann on February 23, 2010, 12:04:42 am
560 people too many. And "socialised" medicine is opposed... why, exactly?

Because the American "haves" are too greedy to give any sort of charity to the "have nots".  I've gone round and round with my parents and my friends about why I would give a large portion of my income to help people who could not do for themselves (back when I had a reasonable income).  Their counterargument always has something to do with Welfare Queens and exploiting the system.

People will get sick, suffer, and die because the "Richest nation in the world" won't bother to help its citizens.
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Offline edfu

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Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #7 on: March 16, 2010, 04:36:17 pm »
Please sign Project Inform's petition to President Obama urging him to support a $126 million emergency supplemental appropriation for ADAP here:

http://www.change.org/projectinform/actions/view/save_americas_adaps
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Online leatherman

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Re: Current ADAP waiting lists 559 people waiting for meds
« Reply #8 on: March 16, 2010, 05:07:45 pm »
Quote from: edfu on March 16, 2010, 04:36:17 pm
http://www.change.org/projectinform/actions/view/save_americas_adaps
thanks for that link edfu!

Tomorrow 3/17, I'll be attending a rally in Columbia SC protesting against the ADAP waiting list, and the statewide funding cut to ALL HIV/AIDS services - both prevention and treatment
« Last Edit: March 16, 2010, 05:11:15 pm by leatherman »
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