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Author Topic: Issues getting meds for Aunt  (Read 4667 times)

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Offline juno7719

  • New Member
  • Posts: 1
Issues getting meds for Aunt
« on: January 26, 2009, 01:54:05 am »
My aunt in Chicago has HIV---her insurance stopped covering her meds....she has dropped from 550 tcells to 300. AIDSFOUNDATION--is working on it---but so far she hasnt had any luck..3 kids---job pays shit---and no money for meds---will she just die! Is she better off filing for disability? What can I do---I have been working hard on my end---giving her all the right contacts---but I am worried---shes had it for over 15 years---healthy until now---

Offline Assurbanipal

  • Member
  • Posts: 2,177
  • Taking a forums break, still see PM's
Re: Issues getting meds for Aunt
« Reply #1 on: January 26, 2009, 06:27:19 am »
The case workers at AIDS foundation probably have great knowledge of what is available in Chicago (and more specific knowledge of your aunt's situation).  Perhaps you might go to the next meeting she has with the caseworker to ask what steps they are taking to access ADAP or drug company programs for her?  To make sure that there is a common understanding of what she needs.  They should be able to help her evaluate disability as an option too.

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%
2014 VL UD - 48
2015 VL 130 Moved to Triumeq

Offline beck

  • Member
  • Posts: 12
Re: Issues getting meds for Aunt
« Reply #2 on: March 12, 2009, 04:41:47 am »
In some states if you're found "disabled" you can get Medicaid even if you're working (though you might have to pay a small fee for service if you are living above the poverty line). I'm not sure about your state, but you should look into it.

Also, if she goes to a state run clinic or general hospital they have to treat her. They might charge her but paying it off later is much better than becoming very ill. Also, many such clinics and hospitals offer sliding scale programs even if they do require payment.

Hope this helps! Good luck.

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Issues getting meds for Aunt
« Reply #3 on: March 12, 2009, 07:47:04 am »
Hello,

I agree that your Aunt needs a case worker.  See if the following link can provide her with possible services :


http://www.tpan.com/


Click on "Client Services "  And see what help may be available.


Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

 


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