POZ Community Forums
Main Forums => Living With HIV => Topic started by: PeteNYNJ on June 26, 2006, 01:14:09 pm
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Hello Everyone
I hope you all had a nice weekend.
I wanted to know if any of you experienced any Neurological problems early in your infection? I have noticed over the past two weeks that my hands and feet have been having pins and needles on an off. My vision in my right eye is also blurry on and off. This weekend I started to drop things and felt clumsy. I have a doctor's appointment Thursday and I will certainly bring this all up - just wondering if this happend to anyone else.
I tested positive in late October, likely I was infected in late August. My labs have been pretty good so far. Last round was VL in the 20Ks and Tcells around 800 % was normal.
Thanks
Pete
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Hi Pete,
Sorry I can not be of much help to you. It does sound odd to be getting these type of effects this early on in disease progression especially since your numbers are fine. It's good to hear that you have made an appointment with your doctor to discuss these things. Keep in touch and let us know how things work out!
Cheers,
Alan
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HI Pete....
Seems unlikely given your numbers you should be experiencing any problems related to the virus at this stage... Take a note pad when you see your doctor and have these jotted down.. Are you taking any anti-exiety stuff???
Love
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Hi Pete,
I didn't suffer any neurological problems early on in my HIV. I was diagnosed 16 years ago. But about 8 years ago my right eye started feeling strange and then I just had a total "blowout" in that eye and am now completely blind in the right eye. Then 6 years ago I had a massive stroke in my Cerebellum and several T.I.A.'s (transient ischemic attacks)in several other parts of my brain.
My Neurologist says that sometimes "long term" survivors of HIV have weakened vessels in their brain. This allows for the blood to break through in some places. He calls it "Chronic Vascular Disease"
Have no fear though, this doesn't necessarily happen to everyone.
Peace,
angels4kelly 8)
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Hi Pete,
I can relate to what you say. Since being infected in January I had pins and needles in my left arm on and off, a funny sensation underneath in my right foot and what seems like a black shadow sometimes when I turn my eye left to right. I also has some muscular problems with nerve like pain in my shoulder and neck.
Now, pins and needles are gone, so too is the foot problem. The eye problem is still there and I am seeing my 'eye boy' on Thursday about it. (my eyesight usually improves after a visit to this guy!). Muscular problems are possible to do with posture as opposed to anything else.
Dont know if that is of any help at all.
Rob
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I have not experienced any problems similar to yours, but I know someone who did. He and I both joined AidsMeds around the same time. He had a lot of problems with peripheral neuropathy. Perhaps this post isn't even helpful since that is all I know, sorry. I'd ask your doctor about it. It may not be related to the virus.
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I had the same symptoms but didn't experience them until my CD4 count went way down. I went on the meds and the symptoms have since subsided. Hope it works out that way for you too.
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Hello Pete,
I am only speaking for myself. In my 20 years of dealing with HIV, I never had any kind of neurological problems, until I had started on medication. It may have been medication related, virus related , or a combination of both. And those problems started a few months into therapy. For me, it started with the pins and needles in the feet and hands, and eventually progressed to PN. I am not saying, that that is what is happenning in your case. I also had an MRI done, as I was having Cervical spine (neck ) problems, in the c-5 and c-6...If I remember rightly. Also had a nerve function test done, to check for neurological problems, that may have been occurring. The MRI lasted about a half hour, and the nerve function also lasted about a half an hour long.
Make sure to mention, things to your doctor.
The Best----Ray
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Naw, it's been 16 years and never had that happen to me. Thank God.
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My first doc said she thought the viral meningitis I was diagnosed with in June 1980 was an acute reaction to my seroconversion.
Apparently, some people have very adverse reactions to initial infection and she thought I was one of them. Unfortunately, those who suffer these types of responses also tended to be short-term survivors. I wasn't, so who knows.
Aside from that, I now have the tingling in my feet, but it is neuropathy caused by the meds and maybe the HIV as well. But it wasn't early on.
HUGS,
Mark