POZ Community Forums
Main Forums => Living With HIV => Topic started by: Growler on August 11, 2012, 11:33:14 pm
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have jelly legs on and off for past week. forgot what is happening in shower this morning, scary. staying in shelter tonight and tommorow going to aids council for help. Feel detached and weird, hate it!!!!
Thank-you
Love you all
GROWLER
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Be well Growler.
-Will
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Take care of yourself Growler..
Ray
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Thinking of you and hoping for a good turn of events soon.
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hi growler,.
i'm concerned about you. I hope everything goes well must be heard to have to deal with that along with everything else.
mike
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Hi Growler,
Hope you are getting the care you need and that you are comfortable with it.
With love
Michael
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Sorry to hear about your situation, hope you feel better soon.
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Hugs to u
Hope you feel better soon
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in hospital. Ok. being treated for brain bug.Confusing sometimes and headache but ok. bear is with me.safe.
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Hey Growler, I'm VERY happy to hear that this is being taken care of and that you're in a safer place!
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Thank you all.
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((((HUGS))))
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in hospital. Ok. being treated for brain bug.Confusing sometimes and headache but ok. bear is with me.safe.
Yay. Glad you're getting that taken care of. Also glad Sebastian the Bear is watching over you ;)
-W
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Thank u all!
Still waiting further results from lumbar puncture done last week. Fucking headache. Seizures getting stronger and more frequent (I am fully awake when they occur, no pain just jerky and weird speech). Today I became convinced they must be psuedo seizures and it was mental illness and I tried to leave hospital. Drs sat me down and said they think it's real and they think it's an infection but still waiting results for which bug.I was so relieved I cried which I only do when I watch E.T.
Spoke to my sister and told her about doing. living will. She said she wouldn't want me to suffer and would totally support my wishes. I cried again I am so happy. Doctor s will do a NFR order in the interim tomorrow.
Sebastian says hi.
GROWLER (Joe)
(http://i1102.photobucket.com/albums/g457/growler69/hospital.jpg)
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My heart goes out to you, be safe and get well.
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Hey Joe, I'm glad you're keeping us updated. I may not have posted in your thread up to now, but I do think about you often and wonder how you're doing.
Sorry to hear you got the LP headache - my bf went through that recently and it wasn't pretty. I hope it gets better soon.
I totally understand your relief at getting a diagnosis of sorts. I remember when I was being told that how I felt was all in my head, then I got the hiv diagnosis (on top of hep C - I kept being told [wrongly] that hep C couldn't possibly cause the symptoms I had). I'll never forget when the doctor said "no wonder you feel like shit" (his actual words) - I also cried with relief. So yeah, I get it.
Hang in there Joe. I hope they manage to sort you out soon and that you feel much better quickly.
Hugs,
Ann
xxx
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Growler- You hang in there man and get better!
Peace,
Billy
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Hang in there! And get this thing diagnosed and treated! Thinking about you.
-Will
Ps- The bear is looking good.
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Hi Joe
Sending warm wishes your way and a big hug. Hope you feel better soon.
K
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Hi guys
out of hospital a couple of days . All ok, except for ongoing psychosis but I have risperadone to stop the voices and the vampires.. ...lots of fun! Memory is frustrating, used to be almost photographic now strangers who dont know me talk at me like I'm simple. Getting lots of help.....too much!!! People practicaly climbing over each other to save me; overwhelming! They want me on a pension and in my own appartment but I think I'd fuck it up but that doesn't stop them. I'm going to insist on a quiet place with balcony for growing flowers near Oxford St (gay central in Sydney), that should stump them :-)
Take care kiddies
GROWLER (The Vampire Slayer)
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Getting lots of help.....too much!!! People practicaly climbing over each other to save me;
This is GOOD!
They want me on a pension and in my own appartment
This is even BETTER!
LEt them help you. You and the bear really need a roof over your head, and a place to grow flowers.
-Will
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Dear Growler
Mr WUMP speaks the truth , let them help you , Sebastian and your good self need a safe place to make sense off this world and then post your findings here , it helps us all dear Growler.
love
michael.
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Growler,
Glad to know that you are getting help.
Keep us updated.
And, please take care yourself.
All the best.
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Sorry, I just feel guilty, having so much while others are in distress. I'd prefer it helped someone in Africa because I can't imagine going through this stuff and being poor, it would be a nightmare!!!
No need to worry about us, we're having a couple of days rest at a shelter. Side effect of risperodone is insomnia. 3 days with a total of 8 hours sleep was enough to persuade me I needed a short break.
GROWLER
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I'm going to say bye again for a little while. I get confused and embarrass myself and so if I set a rule not to post for a while I'll follow it. My life is now lists and rules :-)
I'm being watched over closely so no need to worry about the bear and I. They'll drag me in if I go off.
I'll still be reading. Thanks all, you're all very patient and caring. I hope Matty's ok, I don't see him here?
Take care
GROWLER
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All the best to you Growler, you got alot of peeps who love you and are pulling for you ;)
-Will
Ps- tell the bear hi.
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Finally some good news. I was taken to see a community housing one bedroom appartment yesterday. It's in a complex of 12 that are all tenented by positive people and it has a community garden! It's a 10 minute walk to the best HIV hospital in Sydney, 5 minutes to a train station and 15 minute walk to the gay heart of Sydney. I can stay as long as I want (forever if I need to) and it's affordable. It's all a bit overwhelming but I've decided I'm not ready to give up fighting, so I am going to say yes and accept the place and beat the HIV in the brain.
Thanks everyone for your encouragement and supporting words. I'll keep you posted.........We're finally going to be off the streets!!!!!!!!! :)
GROWLER & THE BEAR
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.........We're finally going to be off the streets!!!!!!!!! :)
GROWLER & THE BEAR
This is by far the best news I've heard all day ;)
-Will
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Finally some good news. I was taken to see a community housing one bedroom appartment yesterday. It's in a complex of 12 that are all tenented by positive people and it has a community garden! It's a 10 minute walk to the best HIV hospital in Sydney, 5 minutes to a train station and 15 minute walk to the gay heart of Sydney. I can stay as long as I want (forever if I need to) and it's affordable. It's all a bit overwhelming but I've decided I'm not ready to give up fighting, so I am going to say yes and accept the place and beat the HIV in the brain.
Thanks everyone for your encouragement and supporting words. I'll keep you posted.........We're finally going to be off the streets!!!!!!!!! :)
GROWLER & THE BEAR
That's a perfect set up for you darling -- you'll have some non-medical support from the other tenants hopefully plus the doctor(s) so close by. I'm very proud that you've been dealing with this clusterfuck so well all things considered.
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What Philicia and Wumpy said. Growler you don't know how happy it makes me to see that you're getting everything sorted out. Keep us updated and take care of yourself and Sebastion.
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This is really good news and I hope its the start of something that's going to be very good for you , best wishes and a hug for you and the bear .
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Growler, take care of yourself and sebastian.
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This is wonderful news! I've been following this thread even though I haven't posted. But I couldn't read about your getting off the street without letting you know how happy that makes me. Congrats!
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Hi !
Great news..I hope that you will be feeling better soon
Britchickx
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Wow, I'm so happy your getting the help you need and your feeling better! Really great news:)
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Hi Growler
like Betty i have been following your post but not posting until now. i had tocome in and say that I was please to hear things are going well fo you and you are not ready to give the fight...I'm sure bear needs you to stick around.
I will be crossing the ditch in January heading for Maitland and then Tamworth, I'll give you a wave on my way through.. ;)
Take care
Aroha
Jan :-*
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I'm out of the refuge and in a proper motel until I move into my new place in about 3 weeks time. The doctor thought it would be a more appropriate accommodation for me being quieter etc. I couldn't go back to the refuge anyway. The staff were questioning me in front of other clients about which community organization was helping me. I couldn't remember the name so I just blurted out that it was an AIDs organization.....not something you want known in a homeless refuge.
The motel room is an 80's pastel nightmare but nether-the-less is wonderful. I slept 7.5 hours straight last night, and have a refrigerator and a TV and my own bathroom. I feel conflicted about the help and attention I'm receiving and pissed that it's come to this but hey I figure how can I pass on another 20 or 30 years tormenting the world before joining Steve Jobs in external damnation ;)
I will be crossing the ditch in January heading for Maitland and then Tamworth, I'll give you a wave on my way through.. ;)
OMG Jan, Tamworth! You're a country and western fan aren't you?! You're forgiven since I do have a soft spot for Dolly Parton. Love to say hi and I promise to show you the best restaurant dumpsters in Sydney to get a gourmet feed :)
GROWLER
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Growler, I'm so happy for you and Sebastian! This is the bestest news I've heard in ages.
(((((((Growler & Sebastian)))))))
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I am so happy to hear this news Growler. :) Hope you start feeling well real soon!!
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The motel room is an 80's pastel nightmare but nether-the-less is wonderful.
The 80s are coming back, dear. Next you'll be seeing women wearing dresses with shoulder pads. And big hair!
I slept 7.5 hours straight last night, and have a refrigerator and a TV and my own bathroom.
Splendid!
I feel conflicted about the help and attention I'm receiving and pissed that it's come to this but hey I figure how can I pass on another 20 or 30 years tormenting the world before joining Steve Jobs in external damnation ;)
I can imagine this help and attention is a big change. But you deserve it. I'm happy to see all of these positive changes for you. Steve Jobs can wait.
Cheers,
Henry
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Hi Growler ... You have been on my mind and your thread here got me thinking ... from what you shared with us its almost like you feel you don't deserve a home or a place to nest into and be happy . I know from the replies people have left here for you to read that every one is over the top happy that you are safe and will soon have a place to call your own . It was the best part of my week hearing this news ... be happy and know you deserve this as much as the next guy .