POZ Community Forums
Main Forums => Living With HIV => Topic started by: #1 mom on August 04, 2008, 02:20:05 am
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Hi, I'm new to this site. I have an adopted son who will turn 2 August 30. His birthmother was HIV & Hep C +. When we met him in the NICU his initial tests were negative and he was getting AZT prophylactic. He was premature somewhere between 28-31 weeks gestation and weighed 3# 3.5 oz. At about a month while still in the NICU he became very anemic. Before transfussing him they tested him again and he was still negative. I was told that it was unlikely with two negative tests that he would become +. After 48 days in the NICU he was well enough to come home. He did well and gained 1 # in the first week home. :) Our pediatrician sent us to an infectious disease doctor right away to be sure everything was done right. The ID examined Lucas and said he felt that Lucas was negative but ran tests again. This time he had a detectable viral load. :'( His viral load skyrocketed between his initial test, confirmatory test and test at the start of medication (~1mo time). Fortunately he responded to the cocktail and quickly became undetectable and stayed that way. His CD4 has always been normal. Once he was over 18mo. we confirmed he does not have Hep C. :)
Lucas also has Cerebral Palsy but has done amazingly with therapy. His deficits are so slight most people would not notice now. He is a bright, loving, happy child and I'm lucky to be his mom. I want to do what is best for him. If there is anyone that has an HIV+ child that could give me tips I would appreciate it. I'd also love to hear from anyone living with HIV who can give me advice. Thank you. :)
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Welcome to you and Lucas. :)
We have a special lessons section for Women and Children (http://www.aidsmeds.com/articles/WomenAndChildren_7400.shtml) and we have at least one other mother of an HIV positive child here too.
MtD
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Thank you for the welcome. :-*
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Welcome to the forum mom
Lucas
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Welcome Mom and Lucas
He looks real happy on that tractor. :D
ronnie
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Welcome to the forum, mom. I've found very useful information here. And comfort too.
I hope you do too.
Auspoz
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Hello Mom,
I will send a PM to you --look in the upper lefthand of the screen and you'll see notice of such messages in bold type. Perhaps there will be some information I may offer you as my adopted child is HIV+. Further, you may be able to help me as the second child I am in the initial phases of considering adopting has cerebral palsy.
Em
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Welcome, mom's are always number 1! ;)
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Welcome to AIDSmeds. i love your screen name.
The ladies are currently chit chatting in the thread located here
http://forums.poz.com/index.php?topic=22284.msg284053#msg284053 (http://forums.poz.com/index.php?topic=22284.msg284053#msg284053)
You are welcome to join us. Minismom is the other mommy with a pos child. I had a pos child but he passed away a long time ago. Its not neccesary to say I'm sorry or anything. Thank you.
We look forward to getting to know you. ;D
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Welcome mom,
Your son is very fortunate to have such a loving mum. Minismum posts in the thread mentioned by Winiroo above. Maybe you two can connect. I hope to hear more from you. Oh, give your son a kiss from me.
Luv,
Betty
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Welcome welcome welcome!
hugs
Sharkie
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Howdy No. 1 Mom!
Welcome to the forums. I am very glad you found us and have joined in.
I think little Lucas is a very lucky lad.
I look forward to hearing more from you.
HUGS,
Mark
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Hi #1 Mom,
Welcome to the forum !!
Your courage and affection is admirable. Keep up the good work, and visit here often. I've sent you a PM, and we should arrange and talk. I will share with you various tips and tricks I've learned over the years..
rgds, DanKeny
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omg, cutest little boy...ever!
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:-* :-* :-* :-* :-*
Thank you everyone for such a warm welcome!
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He is absolutely adorable, Mom! Glad you found us, and I look forward to hearing more from you.
Hugs to you and the little one,
Alan :-*
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hes a cutie welcome mom !!!
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Welcome, Mom. Glad you both found us!
Peter Staley
Founder
AIDSmeds.com
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A very big welcome to a #1 mom.
Mike
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Welcome! He's adorable ;D
You'll get lots of help here, don't worry about that!!
To know there are people like you in this world puts a huge smile on my face~
Paul
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Now Mini has a boyfriend - and they have the SAME birthday (but she's 6yrs older). So, how does Lucas feel about older women? :P
Mum
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Welcome Mom,
Lucas is adorable! Sounds like he's in great loving hands. Am glad you've connected here.
-YaKaMein
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Welcome Mom!
This forum is a great resource for information and support. Lucas is adorable!!
:-) Tim
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Welcome Mom and Lucas!