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Main Forums => Living With HIV => Topic started by: #1 mom on August 04, 2008, 02:20:05 am

Title: New to forum
Post by: #1 mom on August 04, 2008, 02:20:05 am
Hi, I'm new to this site. I have an adopted son who will turn 2 August 30. His birthmother was HIV & Hep C +. When we met him in the NICU his initial tests were negative and he was getting AZT prophylactic. He was premature somewhere between 28-31 weeks gestation and weighed 3# 3.5 oz. At about a month while still in the NICU he became very anemic. Before transfussing him they tested him again and he was still negative. I was told that it was unlikely with two negative tests that he would become +. After 48 days in the NICU he was well enough to come home. He did well and gained 1 # in the first week home.   :) Our pediatrician sent us to an infectious disease doctor right away to be sure everything was done right. The ID examined Lucas and said he felt that Lucas was negative but ran tests again. This time he had a detectable viral load. :'( His viral load skyrocketed between his initial test, confirmatory test and test at the start of medication (~1mo time). Fortunately he responded to the cocktail and quickly became undetectable and stayed that way. His CD4 has always been normal. Once he was over 18mo. we confirmed he does not have Hep C.  :)
Lucas also has Cerebral Palsy but has done amazingly with therapy. His deficits are so slight most people would not notice now. He is a bright, loving, happy child and I'm lucky to be his mom. I want to do what is best for him. If there is anyone that has an HIV+ child that could give me tips I would appreciate it. I'd also love to hear from anyone living with HIV who can give me advice. Thank you.  :) 
Title: Re: New to forum
Post by: Matty the Damned on August 04, 2008, 03:08:32 am
Welcome to you and Lucas. :)

We have a special lessons section for Women and Children (http://www.aidsmeds.com/articles/WomenAndChildren_7400.shtml) and we have at least one other mother of an HIV positive child here too.

MtD
Title: Re: New to forum
Post by: #1 mom on August 04, 2008, 03:37:10 am
Thank you for the welcome. :-*
Title: Re: New to forum
Post by: lucas clay on August 04, 2008, 03:48:20 am
Welcome to the forum mom

                              Lucas
Title: Re: New to forum
Post by: rondrond on August 04, 2008, 04:33:06 am
Welcome Mom and Lucas

He looks real happy on that tractor. :D

ronnie
Title: Re: New to forum
Post by: auspoz on August 04, 2008, 07:07:48 am
Welcome to the forum, mom. I've found very useful information here. And comfort too.

I hope you do too.

Auspoz
Title: Re: New to forum
Post by: emeraldize on August 04, 2008, 07:31:17 am
Hello Mom,

I will send a PM to you --look in the upper lefthand of the screen and you'll see notice of such messages in bold type. Perhaps there will be some information I may offer you as my adopted child is HIV+. Further, you may be able to help me as the second child I am in the initial phases of considering adopting has cerebral palsy.

Em
Title: Re: New to forum
Post by: Alain on August 04, 2008, 08:02:55 am
Welcome, mom's are always number 1! ;)
Title: Re: New to forum
Post by: Winiroo on August 04, 2008, 10:31:58 am
Welcome to AIDSmeds.  i love your screen name.

The ladies are currently chit chatting in the thread located here
http://forums.poz.com/index.php?topic=22284.msg284053#msg284053 (http://forums.poz.com/index.php?topic=22284.msg284053#msg284053)

You are welcome to join us. Minismom is the other mommy with a pos child. I had a pos child but he passed away a long time ago. Its not neccesary to say I'm sorry or anything. Thank you.

We look forward to getting to know you.  ;D
Title: Re: New to forum
Post by: BT65 on August 04, 2008, 10:35:17 am
Welcome mom,

Your son is very fortunate to have such a loving mum.  Minismum posts in the thread mentioned by Winiroo above.  Maybe you two can connect.  I hope to hear more from you.  Oh, give your son a kiss from me.
  Luv,
Betty
Title: Re: New to forum
Post by: sharkdiver on August 04, 2008, 10:48:17 am
Welcome welcome welcome!

hugs

Sharkie
Title: Re: New to forum
Post by: aztecan on August 04, 2008, 11:29:15 am
Howdy No. 1 Mom!

Welcome to the forums. I am very glad you found us and have joined in.

I think little Lucas is a very lucky lad.

I look forward to hearing more from you.

HUGS,

Mark
Title: Re: New to forum
Post by: DanKenny on August 04, 2008, 01:21:30 pm
Hi #1 Mom,

Welcome to the forum !!

Your courage and affection is admirable. Keep up the good work, and visit here often.  I've sent you a PM, and we should arrange and talk.  I will share with you various tips and tricks I've learned over the years..

rgds, DanKeny
Title: Re: New to forum
Post by: letmebeyourhero on August 04, 2008, 01:37:46 pm
omg, cutest little boy...ever!
Title: Re: New to forum
Post by: #1 mom on August 04, 2008, 04:12:54 pm
 :-* :-* :-* :-* :-*
Thank you everyone for such a warm welcome!

[attachment deleted by admin]
Title: Re: New to forum
Post by: AlanBama on August 04, 2008, 04:50:20 pm
He is absolutely adorable, Mom!   Glad you found us, and I look forward to hearing more from you.

Hugs to you and the little one,

Alan   :-*
Title: Re: New to forum
Post by: 100proofBrandy on August 04, 2008, 06:04:30 pm
hes a cutie welcome mom !!!
Title: Re: New to forum
Post by: Peter Staley on August 04, 2008, 08:08:28 pm
Welcome, Mom.  Glad you both found us!

Peter Staley
Founder
AIDSmeds.com
Title: Re: New to forum
Post by: mjmel on August 04, 2008, 08:28:03 pm
A very big welcome to a #1 mom.

Mike
Title: Re: New to forum
Post by: Longislander on August 04, 2008, 08:58:53 pm
Welcome! He's adorable ;D
 You'll get lots of help here, don't worry about that!!
To know there are people like you in this world puts a huge smile on my face~

Paul
Title: Re: New to forum
Post by: minismom on August 04, 2008, 09:20:04 pm
Now Mini has a boyfriend - and they have the SAME birthday (but she's 6yrs older).  So, how does Lucas feel about older women? :P

Mum
Title: Re: New to forum
Post by: YaKaMein on August 04, 2008, 10:04:19 pm
Welcome Mom,
Lucas is adorable! Sounds like he's in great loving hands. Am glad you've connected here.
-YaKaMein
Title: Re: New to forum
Post by: dolcevita08 on August 05, 2008, 01:02:47 pm
Welcome Mom!

This forum is a great resource for information and support. Lucas is adorable!!

:-) Tim

Title: Re: New to forum
Post by: Iggy on August 05, 2008, 03:54:21 pm
Welcome Mom and Lucas!