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Recent Posts

Pages: [1] 2 3 ... 10
1
Living With HIV / Re: vampires
« Last post by leatherman on Today at 09:43:38 am »
Quote
DTG + RPV + 3TC
that's not a bad choice. It's similar to regimens Larry and I are taking.

Larry takes
DTG + RPV + DRV/c
Tivicay, Edurant, Prezcobix

while I use
DTG + DRV/c
Tivicay, Prezcobix

Now that I'm writing this down, I realize I'm basically on a dual therapy. :o :o Not bad for how many ARVs I've used through the years, along with several bouts of resistance. Take that, all you "salvage" regimens I had to go through to get to this point! :D I do also take acyclovir daily, which while not an ARV does have antiviral properties.

Epivir/3TC is an interesting one. I developed resistance to it way back when. Which was an f-ing bother as it is such a tiny pill in comparison to the huge norvir/Ritonavir capsules I was also taking in that regimen. (I mean, really! If I had to lose a medication it couldn't be the terrible ones or the huge ones; but the easiest of all ARVs to swallow. UGH! LOL) It's interesting because the mutation itself is defective and eventually a patient will lose the mutation and be able to use epivir again.


well, I downloaded a thesis study about DTG + DRV/c from the 25th CROI to read on our plane trip to AZ next week (Larry and I are going to visit his family out there). Just a little light reading to break up from my MM novels. ;D
https://livrepository.liverpool.ac.uk/3076608/1/201151845_Oct2019.pdf
2
Forums Gatherings / Re: Biweekly Peer Support Call
« Last post by numbersguy82 on Today at 08:19:22 am »
The invite was just sent. Please let me know if you didn't receive it or would like to be added to join in! See you all soon!
3
Forums Gatherings / Re: Biweekly Peer Support Call
« Last post by Jim Allen on Today at 06:52:30 am »
Greetings all you fine earth beings… oh and Jim…

😂
4
Forums Gatherings / Re: Biweekly Peer Support Call
« Last post by numbersguy82 on Today at 06:03:13 am »
Greetings all you fine earth beings… oh and Jim… tonight we offer peer support at 7pm EST, so to be added to the invite please just PM me with your email address. Looking forward to seeing everyone (especially you Kent after being absent last time) for a fun and insightful call.

Alan
5
Will firstly, welcome back! What a post full of ups and downs. I’m so grateful that you’re still here and able to inspire others who may worry about their long term quality of life.

I know for certain that you will provide relief to those who only look at their cd4s as a gauge on their health or outlook on life. Sometimes cd4s just don’t rise to the levels most ranges consider normal.

Your family has seen so much tragedy and I’m sorry for all of your loss. How are you doing today? What fills your time and inspires you today? If you ever want to participate, we have a biweekly peer support meetup every other Friday. Our next one is this evening at 7pm EST.

Wishing you all the best and continued health.

Alan
6
Living With HIV / Re: vampires
« Last post by Jim Allen on Today at 05:17:03 am »
You can't tolerate the TAF component of Biktarvy ?

I'm not willing to risk finding out.

To give some context, since TDF came out millions of people have taken it and it's fine for the overwhelming majority. TAF also seems to be going well. However, my experince with TDF was so bad (I'm the exception) that although TAF is the updated version, I will not risk it.

If my only treatment option included TAF I would rather risk a break from treatment. This is also something I have discussed with my partner.
7
Living With HIV / Re: vampires
« Last post by Grasshopper on Today at 05:09:57 am »
You can't tolerate the TAF component of Biktarvy ?
8
It's been about ten years since I posted anything on here. I always think of Good Friday as the first day that I started my anitviral medicines. It was actually April 10th 2009 but since Easter always changes I find it easier to remember Good Friday as my start date.
Just a quick bit of personal background to save you from going back fifteen years of posts.
I was diagnosed in late March of 2009 with AIDS after a year of having health problems. I was 51 years old and had been laid off work 6 months prior and was just about out of money.  I had all of symptoms of HIV but 7 doctors missed it. Since I didn't know any one with HIV I never put 2+2 together to figure it out. I finally figured it out myself by reading a newspaper article on a baseball player who's girlfriend was sueing him for giving her HIV and it listed all the symptoms. I had them all except for the night sweats which started soon after. My CD4 count was 21 (no I didn't forget a number). Luckly I was pretty healthy considering the absence of any large numbers CD4's. 
Back to present day I still doing pretty good, but have had a few health issues.  Currently my CD4's are 186 which is about average for me. I think my highest count was around 208.  In 2016 I was diagnosed with COPD which currently is really my only major health problem. It's under control with puffers and not bad enough to require oxygen. In 2018 I had problems with my voice being horse sounding which was due to hyper vocal cord dysplasia. For three years I was having day surgery (microlaryngoscopy) every six months to get rid of the bumps on my vocal cords.  The surgery was quick and painless. I was in and out of surgery in less than 4 hours.  The worst part was that I couldn't talk at all four days. I had to gradually increase my talking over the next threee weeks. Since I'm a talker that was pretty ruff. After my 6th surgery the surgeon reccomended that I go for radiation. The biopsys showed a "perpensity to turn into cancer". I had 21 days of fairly light radiation on my throat in February of 2021.  Luckily the cancer hospital is only a block away.  From the time I left home until my return home, most days, it was only 45 minutes.
      I have been really lucky with all of my medical and hospital appointments as I have never had much of a wait time. The only Covid hickup was that I was supposed to have my 5th operation in May 2020. The surgeon called me to go in March the 13th as she knew that the hospitals were going to close. I ended up getting bumped until August as they closed the operating rooms on March 12th. 
    Two days after my 5th operation my sisters lung cancer (which she fought for 11 years) spread to her adrenal gland and leg bone.  Within a week the cancer progressed to her brain. She ended up having 3 tumors removed and was given 6 months at most.  If that wasn't bad enough two days before she was supposed to get released from hospital my brother, who was two years younger than me, passed away from a major heat attack a month befor his 60th birthday.  My sister did passaway in April 2021, 6 weeks after her 65th birthday.
  This is geting pretty long and it's late so I'll sign off for now.
Hoping everyone is doing as well as they can and wishing you all good Easter. Take care.
9
Living With HIV / Re: vampires
« Last post by Jim Allen on Yesterday at 07:16:37 pm »
So I finally had an hour to myself today... I don't want, TDF, TAF, EVG, BIC  or Injectables.

On the "Yes" list:

DTG + RPV + 3TC
DTG + RPV + FTC

DTG + DOR + 3TC
DTG + DOR + FTC

(DTG + DOR is not usually combined, but has been tested as a potential therapy and was safe)


On the "Crazy but Yes" list:

AM: DTG + 3TC & PM: FTC
(3TC is very similar to FTC and not normally combined, However, the FTC in this scenario is only an evening booster, FTC has greater potency and a more favourable pharmacokinetic profile than 3TC

My guess is they will not like these options but its either this, nothing or continue with Truimeg 

I will update the thread on the 11th of April
10
I Just Tested Poz / Re: tested positive
« Last post by Tonny2 on Yesterday at 11:47:37 am »



            Iojo.           Hello there!… Well, you will see that you medication will start suppressing the virus and, according to you, if it is a new infection, you would be undetectable and your next lab’s Results and year soldiers will increase, yes, take the medication as prescribed. Good luck… Hugs. By the way, I’m glad that you are feeling more relaxed.
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