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Author Topic: I'm worried about Lipodystrophy  (Read 3961 times)

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Offline motobuchi

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  • Posts: 11
I'm worried about Lipodystrophy
« on: April 23, 2012, 10:15:40 am »
Hey all,

I've been researching lypodystrophy a lot as its a side effect of the drugs I am on.  Prezista/Norvir/Truvada.  My CD4 count is 48 and my viral load is 750k.  I'm so worried that I'll have to deal with lypodystrophy on top of everything else.   While my doctor says that it IS a side effect of the drugs, I'm fearing he's not telling me how common so he doesn't skew my hopes for some reason.

So I figured I'd ask on this board.  Anyone have to deal with this yet on a similar treatment regimen?  Is there a way to make sure this doesn't happen?

I'm 25, 5'9 and 133 lbs.  I've gained 2 pounds since my last visit as well, but I've also started working out more which could explain the slight weight gain.  Tho my stomach looks SLIGHTLY bigger - which might also just be paranoia.

Anyone have any advice or experience with this?

Thanks so much.
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Offline survivor703

  • Member
  • Posts: 113
Re: I'm worried about Lipodystrophy
« Reply #1 on: April 27, 2012, 02:44:40 pm »
your stomach being slightly bigger is paranoia. The onset of lypodostrophy is not a quick thing from what I've seen in research. Also, one of the things that reduces the chances of getting it is, guess what, -- EXERCISE. So you should be fine. No worries. 
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02/14/2012 Diagnosed (Happy valentines day)
02/15/2012 CD4 502 21%, VL 69,134
04/10/2012 CD4 607 22%, VL 60,893
10/08/2012 CD4 615 15%, VL 155,981
03/01/2014 CD4 340 17%  VL 65,689
05/05/2014 1:18PM EST Started Truvada + Tivicay
06/03/2014 CD4 620 20% VL 30 (almost UD!)
09/08/2014 CD4 822 22% VL 55
03/02/2016 CD4 961 42% VL UD
03/02/2016 Switched to Genvoya
06/13/2017 CD4 1025 35% VL UD

Next Labs 02/01/2018

Offline buginme2

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  • Posts: 3,426
Re: I'm worried about Lipodystrophy
« Reply #2 on: April 27, 2012, 03:41:35 pm »
Lipo issues were mainly caused by some older drugs that are rarely used anymore (ie azt, crixivan, zerit etc).  The regimen you are on of Prezista, norvir, truvada has a low rate of causing these problems.

That said, you may gain some weight the first year of starting meds.  Your body has been fighting an infection, and losing, as evidence of your cd4 count and viral load.  Its not uncommon to gain weight as you begin to regain some health and your body stops fighting so hard.  I gained 20 pounds in 6 months when I started meds.


Also this is important >>>gaining weight is not lypodystrophy<<<

Looking back. I look much better now than before I started meds.  Seeing that you are 5'9 and 135llbs you could probably stand to put on a few.
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Don't be fancy, just get dancey
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