Welcome, Guest. Please login or register.
March 29, 2024, 03:35:09 am

Login with username, password and session length


Members
  • Total Members: 37614
  • Latest: bondann
Stats
  • Total Posts: 772947
  • Total Topics: 66310
  • Online Today: 741
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 0
Guests: 541
Total: 541

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: "HOPE DIES LAST"  (Read 71267 times)

0 Members and 1 Guest are viewing this topic.

Offline Tonny2

  • Member
  • Posts: 2,938
"HOPE DIES LAST"
« on: January 13, 2017, 04:01:31 pm »


        OJO        HELLO EVERYONE...I'M NOT SURE IF THE TITTLE OF THIS THREAD MAKES SENSE.

IN AUGUST 2006, AT MY ID DOCTR'S OFFICE, I WAS TOLD THAT THERE WASN'T ANYMORE THE DOCTOR CAN'T DO FOR ME, WE HAVE TRIED EVERY MED AVAILABLE (RESISTANCE), SO I WENT HOME TO WAIT FOR AN OI TO KILL ME...OCTOBERS SAME YEAR, DOCTOR CALLED ME TO OFFERED ME A TREATMENT, NOT APROVED BY THE FDA YET, FOR PEOPLE WITH MY SAME RESISTANCE SITUATION...I STARTED THIS NEW TREATMENT IN JANUARY 2007 (PREZISTA/NORVIR AND INTELENCE), I EVEN GOT THEM FOR FREE FOR ONE YEAR....THREE MONTHS AFTER STARTED THE TREATMENT, MY CD4 WENT FROM 36 TO 360, AND FOR THE FIRST TIME SINCE MY DIAGNOSIS IN NOVEMBER 94, I GOT UNDETECTABLE, WOOHOO!!!. THE DOCTOR ADDED ISENTRESS TO MY TREATMENT THAT SAME MONTH,, MARCH...TEN YEARS LATER, SAME TREATMENT,  I WENT T SEE THE ID DOCTOR AND DRACULA LAST TUESDAY, I GOT MY RESULTS TODAY; CD4=649, CD4%-29 AND STILL UNDETECTABLE....SINCE MARCH 2016, MY CD4 HAVE BEEN ABOVE 600, FOR A GUY WHO STARTED THIS JOURNEY IN NOVEMBER 1994, WITH AN INITIAL CD4=20, I GUESS, I CAN'T COMPLAINT ABOUT MY NEW CD4 RESULTS...JUST WANTED TO SHARE WITH ALL OF YOU NEWLY AND NOT THAT NEW DIAGNOSTED MEMBER, V.I.P. AND OTHERS, THAT, WHEN YOU TAKE YOUR MEDICATIONS AS YOU ARE SUPPOSED TO DO, A GOOD ATTITUDE, BEING POSITIVE (NO PUN INTENDED), WE ALL CAN BE LIVING A HAPPY AND NORMAL LIFE, WE JUST HAVE TO KEEP LOOKING FORWARD, BECAUSE HIV IS NOT GOING ANYWHERE WITHOUT FIGHTING IT (TAKING OUR MEDS), WE CAN'T TURN BACK TIME, IT IS WHAT IT IS...BEST OF LUCK...HUGS                OJO

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,792
Re: "HOPE DIES LAST"
« Reply #1 on: January 13, 2017, 04:21:00 pm »
THANKS FOR YOUR UPLIFITNG MESSAGE OF HOPE.  I WISH YOU MANY MORE YEARS OF GOOD HEALTH AND HIGH CD4'S!

I HOPE ALL NEWBIES READ YOUR MESSAGE AND TAKE IT TO HEART.  YOU ARE A GREAT EXAMPLE FOR EVERYONE WHO VISITS THESE FORUMS!
« Last Edit: January 13, 2017, 06:37:28 pm by Ptrk3 »
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline TheNormalLife

  • Member
  • Posts: 222
  • Rules have changed; giving up is never an option
Re: "HOPE DIES LAST"
« Reply #2 on: January 16, 2017, 07:31:57 pm »
TONNY2:

AMAZING NUMBERS! CONGRATULATIONS. ITS ALWAYS A BIT NERVE WRECKING WAITING FOR THE RESULTS EVERY SIX MONTHS.

RAY
09/14 Conversion
12/14 Diagnosed
12/14 CD4-6; VL-4245 (wrong CD4 test)
01/15 CD4-530 (pheeew)
01/15 CD4-755
03/15 CD4-545; VL-14401
04/15 CD4-623; VL-4531
04/15 Truvada/Efavirenz
07/15 CD4-595; VL-UD
08/15 CD4-763; VL-UD
11/15 CD4-581; VL-UD
03/16 CD4-523; VL-UD
07/16 CD4-655; VL-UD
09/16 CD4-820; VL-UD
03/17 CD4-544; VL-UD
03/17 CD4-669; VL-UD

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #3 on: January 17, 2017, 08:44:51 pm »


         ojo         hi,THANKS FOR REPLYING ptrk, AND I APPRECIATE YOUR KING WORDS...I'M SHARING MY STORY, AS OTHERS DO, TO LET EVERYONE KNOW THAT, EVEN FOR A GUY LIKE ME, WHO WAS DIAGNOSTED WHEN GETTING AN HIV/AIDS DIAGNOSIS WAS STILL A DEATH SENTENCE, AS A MATTER OF FACT, I WAS TOLD I WOULD LIVE TWO MORE YEARS. I WAS DIAGNOSED IN NOVEMBER 94, STARTED TREATMENT IN JANUARY 95...MY CD4 =20 WHEN DIAGNOSED...FROM 95 TO 2000, I LIVED WITH AIDS DUE TO TREATMENT FAILURE, SO, I GOT LOTS OF OIS: THREE EPISODES OF PCP, MAC, MOLLUSCOUS, CMV RETINITIS, WHICH LEFT ME LEGALLY BLIND...SOMETIME IN 2000, I  STARTED A NEW TREATMENT THAT FINALLY WORKED FOR ME (KALETRA, AGENERASE, SUSTIVA), MY CD4 WENT UP TO 351, SO, MY CMV RETINITIS AND MOLLUSCOUS INFECTIONS STOPPED, UNFORTUNALLY, THE DAMAGE WAS ALREADY DONE TO MY VISION. ANYWAY, THIS TREATMENT WORKED FOR FIVE YEARS, THREE DIFFERENT EPISODES OF PANCREATITIS, SO, I WAS SWIRCHED TO REYATAZ, NORVIR, LEXIVA, THID WAS IN AUGUST 2005, THEN, BACK TO AIDS, RESISTANCE,...AND, AS I MENTIONED ON MY POST, HOPE DIES LAST, I'M STILL HERE, WHIT THESE NUMBERS THAT I NEVER THOUGHT I COULD EVER GET, NOT EVEN MY DOCTOR THOUGHT IT...SO, IF THIS HAPPENED TO ME, THE NEWLY DIAGNOSED AND OTHERS CAN HOPE FOR THE SAME, EVEN BETTER NUMBERS BECAUSE MEDS ARE GREAT NOW, EVEN JUST ONE PILL A DAY DOES THR TRICK, WE JUST HAVE TO HEAVE DISCIPLINE IN TAKING OUR MED/S AS PRESCRIBED AND THINK POSITIVELY, A GOOD ATTITUDE HELPS, AT LEAST, IT HAS HELPED ME ALL THESE 22 YEARS LIVING WITH HIV/AIDS...AGAIN, THANKS PATRICK FOR YOUR ENCOURAGING REPLY...HUGS

@THENORMALLIFE...AMIGO, GRACIAS, I'M VERY PROUD OF YOU, SINCE THE FIRST DAY ON THESE FORUMS, I JUST TESTED, LIVING WITH HIV AND VIVIR WITH HIV, YOU WERE ALWAYS VERY POSITIVE ABOUT BEING POSITIVE (NO PUN INTENDED), GIVING OTHER MEMBERS A KIND WORD OF SUPPORT EVENTHOUGH YOU WERE GOING THROUGH YOUR OWN ADJUSTMENTS AFTER GETTING A DIAGNOSIS...KEEP UP THE GOOD WORK, I ADMIRE YOU...AND YES, I KNOW WHAT YOU MEAN ABOUT THE FEELINGS WHEN YOU ARE WAITING FOR THE BLOOD WORK RESULTS, EVEN, IT HAPPENES TO ME, AFTER DEALING WITH THIS FOR THE LAST 22 YEARS...NOW, I HOPE, I CAN BECOME A VIP OF THIS CLUB ONE OF THESE DAYS, BECAUSE I TAKE FOUR PILLS  TWICE A DAY, IT SEEMS IMPOSIBLE DUE TO ALLERGIES TO TENOFOVIR AND ABACAVIR...AGAIN MY FRIEND, THANKS FOR REPLYING...TQM...HUGS         OJO

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #4 on: January 21, 2017, 09:54:46 am »
TONNY,

MANY THANKS FOR THE UPLIFTING NEWS.
I FEEL TEARS FLOWING IN MY EYES IMAGINING HOW YOU FELT BEING TOLD THERE WAS NOTHING TO DO BUT WAIT TO DIE.   THANK YOU FOR BEING THERE.
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #5 on: January 28, 2017, 07:28:05 pm »


         ojo      HELLO MY DEAR FRIEND DANIEL; THANKS FOR REPLYING. THANKFULLY FOR LOTS OF PEOPLE INFECTED WITH HIV, NOWADAYS, YOU GUYS  DON'T HAVE TO GO THROUGH WHAT SOME OF US LTSs HAVE TO GO THROUGH...YOU ARE A FIGHTER, KEEP UP THE GOOD WORK...HUGS...ARIGATO                                                ojo

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #6 on: February 10, 2017, 12:13:03 am »
TONNY,

  YOU ARE A  GOOD KIND PERSON .
I ALWAYS WISH YOU THE BEST.

WE HAVE HAD COLD WEATHER IN TOKYO .
MUCHO FRIO .
Japanese National.
Language:  Japanese and English

Offline tryingtostay

  • Member
  • Posts: 591
Re: "HOPE DIES LAST"
« Reply #7 on: February 22, 2017, 09:27:20 pm »
THAT IS GREAT TO HEAR, TONY!  HAVE A WONDERFUL DAY :)

Offline MrThankful

  • Member
  • Posts: 15
Re: "HOPE DIES LAST"
« Reply #8 on: February 23, 2017, 08:57:36 am »
Awesome, awesome, awesome stuff! It's amazing what can happen when you don't give up...and how quickly medicine has been able to turn the tables on this nasty virus!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #9 on: February 23, 2017, 02:22:51 pm »


        OJO       HELLO @TRYINGTOSTAY...THANKS FOR REPLYING...HUGS ON YOUR WAY

@MRTHANKFUL, YOU ARE RIGHT, MEDS HAVE MADE THE DIFFERENCE, ALL WE NEED TO FIGHT THIS VIRUS IS A GOOD ATTITUDE AND NEVER GIVE UP, DON'T LET THE VIRUS CONTROL YOUR LIFE, THE MEDS WILL CONTROL IT, SO YOU CONTROL YOUR LIFE, IT IS WHAT IT IS, LIFE GOES ON...THANKS FOR REPLYING...HUGS              OJO

Offline veryscary

  • Member
  • Posts: 4
Re: "HOPE DIES LAST"
« Reply #10 on: March 04, 2017, 05:28:27 am »
Hello Tonny2 ,
I'm clinging to your words as a life west........
just been diagnosed 7 days ago and started treatment right away but my initial CD4 is 120 and VL is about 26000 , which means I am to be diagnosed with AIDS not just latent HIV+ .
I am soooo scared for my life  and especially for those dependent of me , I have a long term girlfriend who is negative ( thank God we used condoms for a contraception) and now don't know what to do next...... Do i have a chance for a  longer that 20 y life ?! My girlfriend want's to have children with me which may be doable but very risky .......... I am just soooo scared........sometimes I think it's better to just disappear.......no more pain......

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #11 on: March 04, 2017, 05:37:47 am »
@ Veryscared.

Look I setup a thread of your own and merged the other posts you had into that thread. Its in the "I just tested positive" section, try to keep you own fear in that thread so people can help you. I also sent you a PM on this and hope you are okay.

This is so members can help each other (you) better and in other peoples threads we can focus on the OP.

Jim

https://forums.poz.com/index.php?topic=65719
« Last Edit: March 04, 2017, 06:22:45 am by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #12 on: March 05, 2017, 08:31:51 pm »


       OJO      HELLO EVERYONE...SOMETIMES I CAN USE A BIG HUG               OJO

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,792
Re: "HOPE DIES LAST"
« Reply #13 on: March 05, 2017, 08:37:21 pm »
TONNY2:  MANY PEOPLE ON THESE FORUMS SEND BIG HUGS YOUR WAY EVERY DAY!  DON'T EVER FORGET THAT! :) :D ;D
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #14 on: March 05, 2017, 08:41:13 pm »
THE SAME TO YOU .
Japanese National.
Language:  Japanese and English

Offline anniebc

  • Member
  • Posts: 6,185
  • AM member since 2003
Re: "HOPE DIES LAST"
« Reply #15 on: March 05, 2017, 09:12:52 pm »
Hi Tony

So glad you are still here to encourage the guys on the forums adn to show them that giving up is not really an option.

I have just recently been told I have become resistance my last line of defense, I have no more meds in NZ to fall back on, but like you I'm not about to give up, we just haven't found a way round things yet, but we will.

Thanks again for the inspiration you are giving the guys here.

I haven't been on the forums for a while now but it's good to come back and see the encouragement you are giving to the members.

I have one request and please don't be offended, but it's really hard reading a post when it's written in capitals, especially if it's a long post, it's also considered shouting...just saying. :D

Hugs
Jan


-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline OneTampa

  • Member
  • Posts: 3,021
  • "Butterflies are free."
Re: "HOPE DIES LAST"
« Reply #16 on: March 05, 2017, 09:47:27 pm »
To Tonny, Daniel, Trying, Very, Jim, Ptrk, Normal and Many Other Board Members I Feel Compelled To Paraphrase a Current Inspirational Movie Title:

   "We Here Are Hidden Figures But Visible Enough To Inspire Many Many Others." ;)

The Strength, Compassion, Caring, Loyalty, Awareness, Sharing and Life Journeys That Define Us Continue To Serve and Touch Many.

Even As A  Long Term Survivor Now In My 33rd Year HIV+ And Told At The Outset That I Had Only 2 Years To Live, I Still Find Encouragement From Everyone Here.



Wishing Everyone The Very Best,

OT

 :) ;)
« Last Edit: March 05, 2017, 09:50:24 pm by OneTampa »
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #17 on: March 06, 2017, 02:04:10 pm »


          OJO      HELLO AGAIN

@PTRK3  AND #DANIELTAKASHI, THANKS FOR YOUR KIND WORDS AND YOUR HUGS

@ONETAMPA. YOUR STORY IS SIMILAR TO MINE, I WAS ALSO TOLD HAD TWO MORE YEARS TO LIVE AFTER MY DX IN 1994, IT'S BEEN 22 YEARS AND I'M STILL HERE..I, ALSO GET ENCOURAGMENT READING THE NEW MEMBERS AND SEEING THEM SHARING EXPERIENCES AND SUPPORTING EACH OTHERS...THSNKD FOR REPLYING...NICE PIC

@anniebc  please, do not worry, i don't get offended, on the contrary, i thank you for pointing this out...it's ironic, that's why i posted the need for a hug, mu vision is getting worse, and i get frustrated trying to reply to some posts even while writing with capital letters, that's why i use capital letters, the moderator haven't yelled at me, i think they understand. jimdublin told me how to increase the size of the fonts, but i'm a dumb guy, i still can't get it...anyway

I'm sorry to hear about your situation, i was in the same situation in the summer of 2006, my doc sent me home to wait for an oi to kill me, i even got a living will asking to do not be resucitated, but as you said,do not give up, i'm sure you will find something to help you keep fighting...i was offered a treatment in october of 2006, "salvage treatment", (prezista/norvir, intelence, i started taking it on january 2007, three months later, my cd4 went from 34 to 360 and for the first time since my dx, i was UNDETECTABLE, the doctor added one more medication that march, isentress, i've been on the same treatment since then, ten years, and my cd4 now is 649 and still UD. hsve you tried this combo?, it is prescribed for people like you and me with hisory of resistance, i hope you can get it or you are not resistance to it...i will be thinking of you, sending you good vibes...please keep us posted...lots of hugs on your way...hang in there, by the way, what's your cd4?                                            ojo

ps i apologized in advanced for any mistyping, remember, i'm legally blind

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #18 on: March 06, 2017, 10:07:58 pm »

HI, TONNY

YOU ARE VERY SPECIAL TO US.
ALWAYS NICE TO US ALL .
THANK YOU.

NEVER WORRY ABOUT MISTYPING.
« Last Edit: March 06, 2017, 10:11:57 pm by DANIELtakashi »
Japanese National.
Language:  Japanese and English

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #19 on: March 07, 2017, 05:49:01 am »
« Last Edit: March 07, 2017, 05:52:52 am by DANIELtakashi »
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #20 on: March 07, 2017, 10:36:45 am »


       OJO      HELLO DANIEL, THANKS FOR YOUR REPLY...I ALREADY HAD A PROBLEM FOR MISTYPING, SOMEONE WAS DISGUTED WITH MY ERROR, I ALREADY APOLOGIZED FOR IT AND I THINK A CLEARED THE PROBLEM   ;)

I'M VERY PROUD OF YOU FOR HELPING AND SUPPORTING THE "NEWBBIES", BY SHARING YOUR EXPERIENCES DURING THE DARKEST DAYS OF OUR LIVES WHEN TOLD, "YOU ARE POZ", I DO REMEMBER YOUR FIRST POST, AGAIN, PROUD OF YOU MY JAPANESE AMIGO.

THANKS FOR THE PICTURES, BEAUTIFUL, I DON'T THINK WE HAVE IT IN MEXICO
                                                                                                                    OJO

Offline anniebc

  • Member
  • Posts: 6,185
  • AM member since 2003
Re: "HOPE DIES LAST"
« Reply #21 on: March 07, 2017, 05:23:19 pm »
HI TONNY

Quote
, (prezista/norvir, intelence, i started taking it on january 2007

I WAS ON THIS COMBO LAST YEAR AND HAD A REALLY BAD SIDE EFFECT AFTER ABOUT 3 MONTHS, MY FACE AND THROAT STARTED TO SWELL UP RATHER BADLY AND I HAD TROUBLE BREATHING SO HAD TO COME OFF IT, WE THINK IT MAY HAVE BEEN THE NORVIR BUT COULDN'T DO A GENOTYPE TEST  TO VERIFY THAT AT THE TIME BECAUSE  MY NUMBERS WERE IMPROVING AND I WAS UD.

WE ARE STILL WORKING ON A SOLUTION TO MY RESISTANCE.

TAKE CARE AND KEEP UP THE GOOD WORK.

HUGS
JAN
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #22 on: March 07, 2017, 06:21:39 pm »
HI, TONNY,

THANK YOU FOR YOUR NICE WORDS.

WE APPRECIATE YOUR COMMENTS AND POSTINGS, ALWAYS .

DON'T  WORRY ABOUT MISTYPING OR CAPS.
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #23 on: March 08, 2017, 03:04:41 pm »


        OJO      HELLO AGAIN

@anniebc, THANKS FOR YOUR REPLU. I WILL BE THINKING OF YOU. BEST OF LUCK

@DANUELTAKASHI...THANKS. I LOVE YOU                                                      OJO

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #24 on: March 08, 2017, 09:58:58 pm »
TONNY,

THANK YOU ALWAYS.

YOU ARE GREAT TRYING TO REACH OUT TO MANY IN SPITE OF YOUR EYE PROBLEM.
« Last Edit: March 08, 2017, 10:04:42 pm by DANIELtakashi »
Japanese National.
Language:  Japanese and English

Offline abrokenman

  • Member
  • Posts: 52
Re: "HOPE DIES LAST"
« Reply #25 on: March 12, 2017, 01:42:55 pm »
Tonny2  :)

Glad to hear of your new #'s and that you are doing well! Keep positive attitude and fighting.
You put One foot in front of the other

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #26 on: March 13, 2017, 08:36:06 pm »
Tonny2  :)

Glad to hear of your new #'s and that you are doing well! Keep positive attitude and fighting.

         OJO       HELLO @ABROKENMAN, THANKS FOR REPLYING...I KNOW THAT IT IS DIFICULT WHEN GETTING AN HIV DIAGNOSIS, BUT TRUST ME, IT WILL GET BETTER, ALL OF US HAAVE OUR OWN HISTORIES, SOME BAD, OTHERS NOT THAT BAD, BUT, I THINK, IF WE LIVE IN THE PAST, OUR PRESENT AND FUTURE WILL BE JUST AS BAD AS OUR PAST. TURN THE PAGE, ENJOY THIS NEW OPPORTUNITY OF LIVE, YOU STILL HAVE LOTS TO DO AHEAD, JUST ONE PILL A DAY AND ENJOY LIFE. LIFE IS STILL BEAUTIFULEVEN WHEN LIVING WITH HIV, TAKE IT FROM SOMEONE WHO HAS BEEN LIVING WITH HIV FOR 22 YEARS AND LEGALLY BLIND SINCE 2000, DUE TO CMV RETINITIS. I DO ENJOY LIFE, YOU CAN DO IT TOO, YOU JUST HAVE TO SET YOUR MIND TO DO IT...HUGS                                                                                                     OJO

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #27 on: March 13, 2017, 08:43:13 pm »
HI, TONNY,
GREETINGS FROM JAPAN .
Japanese National.
Language:  Japanese and English

Offline Greg01

  • Member
  • Posts: 24
Re: "HOPE DIES LAST"
« Reply #28 on: March 13, 2017, 11:05:59 pm »
Hi Tonny  :)

Thank you for sharing your very uplifting experience! 

Best,

Greg
01/09/2017 - Reactive HIV Antibody test
01/18/2017 - Diagnosed HIV Positive
02/14/2017 - CD4 373, VL 80,690
03/09/2017 - Started Triumeq

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #29 on: March 14, 2017, 02:10:54 pm »


          OJO          HELLO
@DANIELTAKASHI...THANKS MY FRIEND

@GREG01, THANKS AND WELCOME TO THE CLUB

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #30 on: March 31, 2017, 08:50:49 pm »
 :(    hello everyone....Last Monday, I was feeling so sick that I had to go to the ER, dx, dihidrated and pneumonia, gibing augmentin 750mg twice a day...feeling like crap. I can use a hug and some positive energy...cybeer hugs to all                          ojo

Offline awakening

  • Member
  • Posts: 146
Re: "HOPE DIES LAST"
« Reply #31 on: March 31, 2017, 10:05:20 pm »
Wishing you a quick recovery Tonny. Stay strong, spring is in the air!
~~~~
[month/date/year]
3/1/16: Tested neg (Oral swab)
6/17/16: Diagnosed poz (finger prick), confirmed w/Multispot assay
6/17/16: VL 22,900, CD4 - 524 cells/uL (30%)
7/2/16: Started Triumeq (DTG+ABC+3TC)
8/1/16: VL 30
10/4/16: VL <20, CD4 - 630 (31%)
1/4/17: VL 90
2/7/17: Undetected
4/17/17: Undetected, CD4 - 695 (33%)
7/20/17: VL 75
8/21/17: VL <20
11/27/17: VL<20
3/26/18: VL<20, CD4 - 701 (36%)
5/14/18: Switch to Juluca (DTG+RPV)
6/11/18: VL<20
7/25/18: Undetected, CD4 - 632 (38%)
1/22/19: VL<20

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,792
Re: "HOPE DIES LAST"
« Reply #32 on: March 31, 2017, 11:00:35 pm »
My thoughts are with you, Tonny2, and I truly hope you feel much better soon!
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline vrsan

  • Member
  • Posts: 36
Re: "HOPE DIES LAST"
« Reply #33 on: April 01, 2017, 04:51:09 am »
HELLO TONY, I HOPE YOU ARE FEELING BETTER ALREADY TODAY, AND WILL FEEL EVEN BETTER TOMORROW! HUGS

Offline paintedroom

  • Member
  • Posts: 375
  • Dx`d July 2016
Re: "HOPE DIES LAST"
« Reply #34 on: April 01, 2017, 06:15:16 am »
LIKEWISE TONNY,BIG LOVE GOING OUT TO YOU FROM IRELAND.
WE HAVEN`T EXCHANGED MESSAGES IN A WHILE BUT I REMEMBER YOU VERY WELL  AS BEING SO HELPFUL TO ME IN THOSE FIRST FEW SCARED TO THE BONE WEEKS.
I REALLY HOPE TODAY FINDS YOU FEELING A LITTLE BETTER.YOUR MESSAGES ARE IMPORTANT - I`M SOMETIMES IN DANGER OF TAKING THINGS FOR GRANTED..SOMETIMES I NEED TO UNDERSTAND HOW LUCKY I AM JUST TO BE ALIVE.

AGAIN,BIG HUG FROM IRELAND XO
Dx`d mid July 2016
8/8/2016 - CD4 50     VL 50,000
5/9/2016 -  CD4 150
13/9/2016  VL  undetectable.
March `17 - CD4 193   VL undetectable.
March  `18 CD4 214    VL undetectable
March 2019 CD4 325  VL UD
Genvoya - Changed to Biktarvy feb 2021

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #35 on: April 01, 2017, 08:06:54 am »
TONNY,

PLEASE GET WELL SOON.
YOU ARE SPECIAL TO ME.
Japanese National.
Language:  Japanese and English

Offline Wade

  • Global Moderator
  • Member
  • Posts: 3,447
Re: "HOPE DIES LAST"
« Reply #36 on: April 01, 2017, 08:36:30 am »
TONY, I AM SO SORRY TO READ THIS
GET WELL SOON DEAR FRIEND.
I KNOW YOU WILL, WE'RE TO TOUGH TO BE SICK !

BIG HUGS SENT YOUR WAY, WADE
HIV 101 - Basics
 HIV 101
 You can read more about Transmission and Risks here:
 HIV Transmission and Risks
 You can read more about Testing here:
 HIV Testing
 You can read more about Treatment-as-Prevention (TasP) here:
 HIV TasP
 You can read more about HIV prevention here:
 HIV prevention
 You can read more about PEP and PrEP here
 PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #37 on: April 05, 2017, 07:59:18 pm »


        ojo       Hello everyone...Thanks for your kind words, I think, I'm back, still coughing, but feeling better.

I think that when I went to the ER lsdt week, I caaught the flu, because last friday I was feeling sicker, last monday I went to see my GP, tested me for influenza, and it was positive...my pneumonia is gone, one more day of antibiotics, for the flu. it was too late to get tamiflu, already 72 hours have passed since symtomps appeared, so I had to deal with it. As I said, feeling better...THANKS AGAIN for all of you who took the time in replying...cyber hugs                                                                         ojo

Offline BubbaPat

  • Member
  • Posts: 153
  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #38 on: April 05, 2017, 10:00:07 pm »
Howdy sunshine!!!
Sorry to read that you've been busy with not feeling well.
I'll send you warm wishes, big smiles, rays of Texas of sunbeams and big bubba hugs!!
You get better!!!

Bubba hugs!
Patrick
Bubba hugs!

Offline klauss

  • Member
  • Posts: 18
  • Keep the fight going...
Re: "HOPE DIES LAST"
« Reply #39 on: April 06, 2017, 04:12:30 pm »
HEY TONNY,


I'M VERY GLAD TO HEAR THAT YOU ARE FEELING BETTER ,PLEASE TAKE CARE  :)

DX: 05.12.2016

12.12.2016 CD4 347,CD8 1032,VL= will now soon
07.01.2017 Start meds
Emtriva+Tenofovir+Tivicay (first two make Truvada,but not available yet in my country)
18.05.2017  VL -UD
18.102017 cd4 633   cd8 907 Vl

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #40 on: April 08, 2017, 09:15:46 pm »


         OJO        HELLO

@BUBBAPAT, YOU ALWAYS MAKE MY DAY WITH YOUR MESSAGES, THANKS FOR REPLYING...YES, I'M DOING WELL NOW...I WAS IN YOUR NECK OF THE WOOD LAST JANUARY, NO BUBBA HUG  ;(...I HOPE I CAN MEET YOU ON MY NEXT TRIP TO TEXAS

@KLAUSS, THANKS MY FRIEND FOR REPLYING...I GUESS A BEAT THE PNEUMONIA AND THE FLU, BUT, THEY ALMOST GOT ME, I WAS OUT FOR A WHOLE WEEK FEELING SO SICK, THANKFULLY, I'M DOING BETTER...CYBER HUGS FOR BOTH OF YOU      OJO

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #41 on: April 08, 2017, 09:46:21 pm »
TONNY,

GLAD THAT YOU ARE FEELING BETTER .

YOUR FRIEND IN ASIA.
Japanese National.
Language:  Japanese and English

Offline RossH

  • Member
  • Posts: 17
  • Life goes on!
Re: "HOPE DIES LAST"
« Reply #42 on: April 09, 2017, 02:33:56 am »
Tonny
Good to hear your positive news!  I've been HIV+ a year this May. Starting to adjust but  don't know if oneever does.  Life changes so drastically with this diagnosis. I find it isolating. Hope you have lots of support and  no resistance again with the new treatment. 
HUGS TO YOU TONNY
Ross
5/16/16    VL  62800. CD4 882 34%
Triumeq started 6/15/16
7/13/16.   VL 52. CD4 718 40%
10/28/16  VL UD CD4 1478 43%
3/1/17       VL UD CD4 930 41%

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #43 on: April 09, 2017, 04:34:30 pm »


           OJO        HELLO AGAIN

@DANIELTAKASHI, MY Fvorite japanese friend. Thanks for your message, you make me feel well

@rossh. Thanks for replying...I know it is difficult to adjust but it's  doable if we want to keep living a happier life...I have had my bad days, especially, when I started to lose my vision, I wanted to throw the towel, losing my independence, not being ablr to drive anymore made me isolate myself, but  I have a mother who depends on me, and family who wants me around, and I guess, they are worthy to keep fighting for...Hang in there and I really hope you learn how to live with the virus, your med will take control of it, so youu can take back control of your life, because life is to short to be wasting it in something that we can not change...ENJOY LIFE, your partner, your family, friends, etc, etc....cyber hugs on your way fellow ohioan, we might be neighbors                                                                                                    ojo

Offline RossH

  • Member
  • Posts: 17
  • Life goes on!
Re: "HOPE DIES LAST"
« Reply #44 on: April 09, 2017, 11:14:32 pm »
Hey Tonny
Hell if you got through all that I'll work on being more positive. I'm in the Dayton area. Is that near you?

Hugs
Ross
5/16/16    VL  62800. CD4 882 34%
Triumeq started 6/15/16
7/13/16.   VL 52. CD4 718 40%
10/28/16  VL UD CD4 1478 43%
3/1/17       VL UD CD4 930 41%

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #45 on: April 10, 2017, 09:13:42 pm »
Hey Tonny
Hell if you got through all that I'll work on being more positive. I'm in the Dayton area. Is that near you?

Hugs
Ross

         OJO        HELLO AGAIN ROSSH...THAT'S THE ATTITUDE, I HOPE YOU WAKE UP EVERY MORNING AND THANK LIFE FOR ANOTHER DAY, AND HOPEFULLY, YOU WILL LIVE THAT DAY AS IF WERE THE LAST DAY OF YOUR LIFE, THAT'S THE WAY I DO EVERY DAY OF MY LIFE, I LIVE IT AT THE FULLEST.

I LIVE BETWWEN CLEVELAND, OH. AND PITTSBURGH, PA...I GUESS WE ARE A BIT APART...PLEASE KEEP US POSTED, WISHING YOU THE BEST...CYBER HUGS ON YOUR WAY                                                     OJO

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #46 on: May 19, 2017, 03:48:35 pm »


         ojo        Hello everyone.

Last Tuesday, I went to see my ID doctor and "Dracula", and I just got my latest blood work results, according to "Dracula"...cd4=556; cd4%=28 and still UD...as I mentioned
previously, I've been taking the same treatment for ten years and it is still kicking ass. I'm still sorprised with this kind of numbers, it's been a year and a half with cd4 over 500, previous results over 600, for nine years my "soldiers" were 300-400. I started this treatment in January 2007 as a "salvage treatment", because of resistance, my cd4 then was 36 and I was told in the summer of 2006 that there was nothing else the doctor could help me with...yes, hope dies last, while there is hope, there is life...cyber hugs for everybody                                                                                        ojo

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,792
Re: "HOPE DIES LAST"
« Reply #47 on: May 19, 2017, 04:28:02 pm »
Congratulations on your numbers!  Your persistence and positive attitude is an inspiration to us all.  Best wishes to you for continued health and happiness.
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #48 on: May 25, 2017, 08:50:00 pm »


       ojo        Hello Patrick, thanks for your reply and kind words...as days go by, it's becoming more difficult for me to participate on these forums, my vision is getting worse....I guess losing my vison, most of it, has been the worse thing that has happened to me, even worse than knowing about my diagnosis. I still rememver with sadness when I started noticing the lost of my peripherial vision while the treatment I was using to treat CMV wasn't working  ;(...The worse part is, no being able to drive since rhe year 2000, I have lost my independence, this situation has made me isolate muself from all my friends...They would call me, when I just lost my vision, and I didn't want to go out, they keep calling to take me out, I would say no thanks, so, the phone stopped ringging...I guess life goes on, I still have my family and good friends, long distance friends, I guess, I can't complain...anyway, eenough venting...again, thanks for taking the time on replying, I know you are a busy moderator, I really appreciate it...cyber hug                                                                            ojo

Offline Ptrk3

  • Global Moderator
  • Member
  • Posts: 2,792
Re: "HOPE DIES LAST"
« Reply #49 on: May 25, 2017, 11:32:39 pm »
GOD BLESS YOU, KIND SIR, AND MUCH LOVE AND MANY HUGS COMING MY WAY TO YOU.   :)
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #50 on: May 26, 2017, 02:23:01 pm »


        ojo       Thanks you...your reply made me feel good...cyber hug whereever you are, I really appreciate your kind words, I really need that sometines   ;p         ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #51 on: September 06, 2017, 09:34:46 pm »


       ojo         Hello everyone again...Well, it was time again to see Dracula and the ID doctor, I went yesterday and today I got my vampire's results...cd4=737, cd4%=32, VL wasn't ready yet but I expect it to be UD...It is amazing and sad a the same time, to me, why I couldn't get this kind of results when I was diagnosed, I wouldn't had lost some battle to hiv/aids, like being legally blind due to CMV Retinitis, but I'm greatful that I'm still alive, here, sharing with all of you my story...I never thought I would get these kind of numbers, two tears ago, I was around 300-400 for eight years, even when in 2006 I was sent home to wait for an OI to kill me because there was no more treatment where to chose from for me (resistance)...In January of 2007, started a new treatment, it wasn't aproved by the FDA then, a year later was approved, That treatment is PREZISTA/NORVIR, INTELENCE AND ISENTRESS, (after three months of taking this treatment, I was UD  for the first time since my dx in November 1994 and my cd4 went up from 36 to 350), almost eleven years after, the same treatment is still kicking the virus ass/ Isn't this greaat?...Even though, I'm not one of the lucky members of this hiv club whom are taking just ONR PILL A DAY, I'm very greatful to be arounnd and witness, the great changes there are on the treatment of hiv...I always think about the people who are not that lucky like us, people who are still taking multiple pills a day, (I take four, twice a day), and older medications,  good meds tho, and I think about people from other countries who have to drive around five hours away from their home, to find the closest hiv clinic where they are treat it and get their once supply medication, and they have to do this every month, get their med, (I get my three months supply in the mail), and I think about all of us LTS, what we went through all those initial years of pandemia and the amount of pills we had to take, toxic and, do you guys remember the taste of the NORVIR in liquid form?, YIKES, also, I think about all of those friend of ours, and all the people who didn't have any option to survive this virus, millon of people...So, let's all of us, newbies and not that new members, before we complain about"I have to take a pill a day for the rest of my life", how easy we have it and let's think about the people a mentioned previously...just a thought...best of luck to all of you...hugs    ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #52 on: November 29, 2017, 07:29:54 pm »


        ojo      hello everyone

One more year living with hiv/aids...23 years already, who would have thought i would live this long. i lost some battles to aids, but i have won, a bunch of nephews, nieces, even seven great nephews/nieces...OMG, i'm an old fart...just wantes to share the good news, there is TONNY2 for another 23 years more, ..hugs                     ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #53 on: March 15, 2018, 08:44:38 pm »

       ojo      hello everyone

last tuesday i went to see my id doctor and dracula, it was time for my new blood work test, the previos one was on september 5, 2017, where my cd4 were 737, cd4% 32 and vl-ud,,,,today, i got the results from tuesday's visit to the vampire, cd4 638, cd4%35, no viral load yet but i'm expecting a vl undetectable...my doctor can not believe these numbers, after he sent me home eleven years and a half ago, to wait for an oi to kill me because he told me, he couldn't do anything else for me due to my history of resistance to all the meds there were in those days. well, i guess, good things come to those who wait, to bad i didn't get these kind of results before i lost almost all my eyesight, as a good friend said to me earlier, at least you can still see something , he is right, not only can see, but i have been living overtime in this game called life, where i have been witnessed  the birth of so many nephews, nieces, even great nephews/nieces, i can not complain...on the other hand, i have made lots of good friend on this site, sharing experiences and getting to know lots of good people, fighters, people who want to live, but they need a kind word of support, a cyber hug, sometimes, a slap on the face with a white glove with the intention to make them understand, that life goes on even with a hiv diagnosis, just look at my story as proof of what i'm saying...best of luck to all...hugs                                                     ojo
« Last Edit: March 15, 2018, 08:54:33 pm by Tonny2 »

Offline Archimexican

  • Member
  • Posts: 31
Re: "HOPE DIES LAST"
« Reply #54 on: March 15, 2018, 10:14:49 pm »
Congrats! you are a great person and an inspiration to us all! thanks for all your advice and support, We love you man! Abrazos!  :D

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #55 on: March 18, 2018, 02:24:39 pm »


       ojo        thanks compatriota, you are so kind...you will see that, the sooner you guys learn how to live with this virus, the better, so you can go back to live a pretty normal lives, well, there are somethings that we have to change, hut first let's learn how to live with the virus...hugs to everybody                                              ojo

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #56 on: March 21, 2018, 08:25:21 am »
Hi, TONNY,

   
LONG TIME NO WRITNG AND I AM VERY SORRY.
I WILL CHECK IN MORE OFTEN FROM NOW.
Japanese National.
Language:  Japanese and English

Offline Chel

  • Member
  • Posts: 13
  • Aloha!
Re: "HOPE DIES LAST"
« Reply #57 on: March 21, 2018, 07:50:54 pm »
Hello Tonny,
You have a great history. I'm really touched by this.  :'(
It's inspiring!
Let's keep on fighting!
Chel :)

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #58 on: March 22, 2018, 01:56:10 pm »
Hi, TONNY,

   
LONG TIME NO WRITNG AND I AM VERY SORRY.
I WILL CHECK IN MORE OFTEN FROM NOW.


      ojo     Hello my friend, how nice to hear from you again. It makes me happy to know that you finally learned how to live with the virus, so now, you have taken back control of your life and have been enjoying life again...welcome to your new normal, because there is a good life even wihen living with hiv...hugs amigo                                                                                                                                       ojo                           

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #59 on: March 22, 2018, 02:01:19 pm »
Hello Tonny,
You have a great history. I'm really touched by this.  :'(
It's inspiring!
Let's keep on fighting!

          ojo      hello there, thanks for replying and for your kind words...it has been a difficult and long jouney, but, here we are, still fighting, I have a mother to take care of and a great family and friends to keep giving them hard time, lol...welcome to the forum...hugs                                                                                ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #60 on: October 19, 2018, 09:46:29 pm »


     ojo.      Hello there.  Here I'm again, with my latest blood work results.

Cd4=725

Cd4%=31

VL= UD

If you read my original post, you will notice that I'm pretty lucky in having this kind of numbers...all that it takes is discipline in taking our meds as prescribed and a good attitude towards life...by the way, I've been taking the same treatment for the last twelve years and it's still kicking ass... just wanted to share the good news with all of you...hugs.                            ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"time
« Reply #61 on: April 20, 2019, 10:43:53 pm »


      ojo.       Hi,  I visited Dracula last Tuesday results are in
Still UD after taking the same treatment for 12 years...cd4 631,% 31

Offline Mindless

  • Member
  • Posts: 362
Re: "HOPE DIES LAST"
« Reply #62 on: April 21, 2019, 04:07:50 am »
Happy for you Tonny!

Keep up with the good work.


Hugs
Dx Feb. 2018, CD 320, %14

- Atripla Feb/18 -->
- Complera (generic) 2019 -->
- Dovato (generic) 2021 -->

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #63 on: April 30, 2019, 05:26:44 pm »


HI TONNY,

  SORRY FOR MY LONG SILENCE.
I AM STILL HERE.
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #64 on: October 25, 2019, 04:15:14 pm »


      ojo.        Hello everybody

Last Tuesday I visited Dracula, latest results: cd4=734, cd4%=33 and still UD, same treatment for the last 13 years...great news for someone who was told in the summer of 2006, "we can't do anything else for you"...here I'm, still. All it takes to defeat HIV is, discipline and a positive attitude...hugs.                             ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #65 on: March 26, 2020, 04:57:22 pm »



       ojo.      Hello everyone!

I will like to share with all of you my ladies lab results...cd4 674, still undetectable after taking the same treatment for the last 13 years...hugs

PS. Due to my poor vision, I dictated this post, if you notice an error please forgive me.

Offline baylav

  • Member
  • Posts: 13
Re: "HOPE DIES LAST"
« Reply #66 on: April 02, 2020, 04:07:14 pm »
Hello Tonny it’s me here. Thanks for
Always being an inspiration to all. I remember when I was suicidal you checked up
On me regularly with words of Encouragements. God bless you for me. I have my life back thanks to adhering to your advice.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #67 on: September 22, 2020, 05:09:35 pm »


         ojo.        Hello everyone, hoping everyone is hanging in there...well, I’ve been dealing with a córnea infection for a long time, my doctor was considering stitching my eyelids close for three to four weeks blind, because, it’s the only eye functioning, and my right eye is blind. Anyway, it wasn’t necessary to go under the knife because the infección went away, we switched eye drops and, voila!, infection gone, so, my vision it’s getting better little by little which makes me happy...the other day, when I couldn’t see to well for the infection (I saw everything too foggy), how many thing have I gone through since my AIDS dx almost 26 years ago, and, I have decided to keep fighting, although, I should admit, that I was about to throw the towel after dealing with this córnea infection for almost a year, going to see the specialist every two weeks was driving me crazy (I have to ask someone to take me see the doctor an hour away from where I live), but, like I said before, as long as my mom doesn’t quit, I will not quit, she is fighting along my side for all these years, now she is 86 years old and has more energy than me. THANKS MOM!...well, we are still here, it hasn’t been easy but IM STILL ALIVE, almost blind but still breathing...hugs.                        ojo

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #68 on: October 10, 2020, 06:40:05 am »
HELLO, TONNY.

THIS IS DANIEL.
SORRY FOR MY LONG SILENCE.  I AM DOING WELL.
Japanese National.
Language:  Japanese and English

Offline Fareast4116

  • Member
  • Posts: 25
Re: "HOPE DIES LAST"
« Reply #69 on: October 16, 2020, 11:11:52 am »
I just came across this and really, Tonny, you are one strong man. Where many (including me) wouldve given up, you fought and won!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #70 on: October 16, 2020, 09:23:45 pm »



         ojo.           @Fareast, thx for your reply, it hasn’t been easy, I’m sure that there are other LTS with stories more dramatic than mine, but, for some reason, we are still here sharing our stories so, the newly diagnosed see that there is hope...best of luck to you and you are not alone anymore.

@daniel, how nice to hear from you...hugs

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #71 on: October 18, 2020, 03:37:39 am »


TONNY2,

THANK YOU FOR YOUR REPLY.
THE OLYMPIC GAMES 2020 TOKYO WAS CANCELLED AND THE CORONA ISSUE IS STILL GOING ON HERE BUT I AM DOING WELL.  TAKE CARE.
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #72 on: October 20, 2020, 04:24:18 pm »


         ojo.        Hello everyone!

I just got my blood work results from my visit with Dracula last week...VL=UD, cd4=848, cd4%=34...it’s been 13 years  on a “salvage treatment “, it still kicking ass my combo and I’m very happy for it.

Also, I got news from my father, he is doing great, no need for oxigen, doctor said, he is sad and feels abandoned. Tomorrow we will have a video conference with him, hopefully he will feel better...hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #73 on: November 29, 2020, 07:55:57 am »



            ojo.         Hello everyone!!

Celebrating one more  HIVERSARY, yes, 26 years of overtime and enjoying every minute of my life even though I have lost some battles during this journey but, I’m still alive...life goes on even after an hiv dx...hugs.                       ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #74 on: December 24, 2020, 05:19:03 pm »




                    ojo               Hello everyone, I hope everybody is doing fine, I am hanging in there. It is going to be a sad Christmas because the passing if my father almost two months ago due to coronavirus, but life goes on...wishing you all a MERRY CHRISTMAS...Hugs                                                             ojo

Offline crisbarcelona

  • Member
  • Posts: 72
Re: "HOPE DIES LAST"
« Reply #75 on: December 25, 2020, 04:05:20 pm »
TONNY2, THANKS A LOT FOR YOUR MESSAGE. YOU ALWAYS ARE HERE GIVING SUPORT AND ADVICES.
SORRY FOR YOUR FATHER....
MERRY CHRISTMAS FOR EVERYVODY.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #76 on: December 26, 2020, 03:51:58 pm »



        ojo.      Hello Chris!!...thanks for your reply and your kind words I really appreciate you reading me...remember that before I die I have to go to your country and I will need someone to show me around, vale?...hugs.                                    ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #77 on: April 29, 2021, 09:15:43 pm »



             ojo.         Hello again!!


Well, it’s that time of the year, visit to the ID doctor and Dracula, still good news...cd4=616, down from 767 (no change), cd4%=37, up from 33, still UD...so, this is to give newly exes members that there is light at the end of the tunnel all we need to do is being disciplined taking the meds and a good attitude towards life, we all know how difficult reviewing an hiv dx, but, that’s why we are here for, sharing our stories to try to make you newly diagnosed members make the día gestion of the bad news easier...HOPE DIES LAST, I’m living proof of that...best wishes to all...hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #78 on: June 09, 2021, 09:12:16 am »



           ojo.           Hello everyone!!!

I knew that you may get in trouble with the justice system if you do not disclose your hiv positive to your sexual partner but, I never thought that the punishment for not doing it was to harsh. Yesterday I accompany a friend of mine to the hiv clinic for his six months appointment, I was talking to the nurse practitioner and for some reason we started talking about the “disclosure thing”, she told me that, they know of two men and two women, were in jail because their sexual partners found out about their hiv positive status, she also told me, that they we’re sentenced to EIGHT YEARS in prison for not disclosing…WOW!!!, I’m impressed for the harsh punishment. What say you?…oh!, I live in Ohio.                                                                                    ojo

Offline BubbaPat

  • Member
  • Posts: 153
  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #79 on: June 09, 2021, 08:12:50 pm »
Howdy my little sunshine!!

Sorry to hear the doctors have given up.  Glad you haven't thought.
Sunshine... you're gonna make those kiddos work for their degrees, I know you are.
Your energy brightens all of our days and makes us want to give some back to you.
I too had a putz for a doctor a few times.  One even told my husband to call my family and make arrangements.  Well.... 19 years later, I'm still here.  My life my not be perfect but I muddle through. 
YOU young man, are a part of my inspiration!

BIG HUGE Bubba hugs from Texas kiddo!!
I'll cross my fingers, say a prayer, send positive energy, maybe even do a little dance to see if I get the spirits in the universe to help.

Bubba hugs sunshine!!
I know we'll talk again soon.
Bubba hugs!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #80 on: June 10, 2021, 09:56:46 am »



         ojo.          @bubbapat, how nice to hear from you, I feel your love and I appreciate your beautiful message…I will be ok, I, like you, was told I would live two more years after my AIDS dx, twenty seven years later, I’m here reading your kind words.

I hope you are doing ok and I’m very happy to “hear” from you my sunshine…hugs and kisses on your way to Texas.                                                                           ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #81 on: July 01, 2021, 11:02:13 pm »


M.      ojo.       Hello everyone!

I have a dilema and I would love your feedback .

If you have read my story you know that I’m legally blind and I’m blind in of my right eye since 1999. Anyway, this blind eye sometimes gets painful, before, the pain wasn’t that often, but lately, it’s giving me so much trouble, pretty’ painful, worse than a toothache. The solution is getting rid of it, removing it. As you may understand, it’s a difficult sedición to make, well, for me, it’s difficult that’s why I’m counting on your advices to help me make the sedición to have it removed. If I do it, I have the option of wearing a patch (becoming a pirate) or wearing a prosthesis. HELP!!…thx in advance

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #82 on: July 02, 2021, 03:49:41 am »
Hola Tonny2,

Since the eye is of no use anymore and it causes constant pain and discomfort, If it were me, I would have it removed and replaced with a prosthesis.

My aunt has a degenerative eye disease and has gone 100% blind in one eye, and 95% in her other eye. The 100% blind eye has been causing her immense pain and discomfort and now an infection of the tear duct. It was treated twice with antibiotics, and a month ago the surgeon performed surgery through her nostril to unclog the tear duct. The surgeon is anticipating that the tear duct will clog again, and recommended removal of the eye, and replacing it with a prosthetic eye. She just turned 70 and is very conscious about her appearance, and is reluctant of having the eye removed. I told her to imagine the permanent relieve of all the discomfort and pain she's been having and the dangers of another infection that could easily spread to her brain.

Good luck and strength with whatever you decide/choose to do.
« Last Edit: July 02, 2021, 03:52:09 am by Grasshopper »

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #83 on: July 02, 2021, 06:25:37 pm »



         ojo.      @grasshopper, thanks for your feedback. I think I’m like your aunt, it is difficult to look “different”, besides that, I wonder if I were to have it removed, I wonder if I still will feel the pain, the doctor can not be sure, you know, sometimes even if you get a leg ampúte, you will still feel it. Anyway, I guess I have to make up my mind if I don’t want to keep dealing with one more pain, I live with pain 24/7 (neuropathy) and I don’t take anything for it either…thanks again and I will let you know if I go under the knive. I got the surgeon’s phone number, I will call him so he can answer all my doubts…hugs.                                                        pjo                   

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #84 on: July 03, 2021, 03:49:35 am »
Make sure you ask the surgeon about the phantom pain syndromeand weigh the pros and cons. To be honest I didn't even consider that posibility, or knew that it even possible.

https://www.aao.org/eye-health/news/phantom-eye-syndrome-after-surgery

Offline DANIELtakashi

  • Member
  • Posts: 862
Re: "HOPE DIES LAST"
« Reply #85 on: July 05, 2021, 05:55:02 am »
TONNY,

This is Daniel.  I am sorry I did not get connected for almost half a year.
I am glad to see your name.
Japanese National.
Language:  Japanese and English

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #86 on: July 07, 2021, 12:05:44 am »




         ojo.       @Grasshopper, thanks i will make sure to ask the right questions. Although, I must confess, I am worry because part of I being blind is due to bad surgeries, but, I have nothing to lose other than the eye anyway. Lol


@Danieltakashy my favorite Japanese friend, hehe, the only Japanese I “know”. It’s always nice to hear from you specially that you are doing great after all these years but, I beat you, I’ve been hiv positive 20 years more than you, hehe…you are a strong man and the reason I’m still here, supporting everybody that wants to be supported, I think I’ve been participating on these forums (Spanish too) since 2009, I will have to check that.

Again, so nice to hear from you. Please keep in touch…hugs.        Sayynara

Offline Bucklandbury

  • Member
  • Posts: 148
Re: "HOPE DIES LAST"
« Reply #87 on: July 18, 2021, 01:19:55 pm »
This thread is wonderful to read! I thank you very much for it, and I wish us all much good health.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #88 on: July 26, 2021, 09:59:21 am »
This thread is wonderful to read! I thank you very much for it, and I wish us all much good health.


             ojo.          Hello there!!, thx for reading my thread, we are here, sharing our experiences so others can learn something by reading them…good luck to you!!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #89 on: July 26, 2021, 10:12:10 am »


         ojo.           Hello my friends!!!, well, it’s time for my colonoscopy, my older brother died of Colon cancer eight years ago and now, I have to be checked, every five year…the procedure itself is quick and easy, the problems is the liquid diet you have to follow to clean your intestines before your test, you have to drink some solution that will keep you on the “throne” all day long, ouch!!…well, I will let you know the results of such test…wish me luck, please…hugs
« Last Edit: July 26, 2021, 10:16:03 am by Tonny2 »

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #90 on: July 27, 2021, 08:22:11 pm »




        ojo.          Hi!, well, everything went fine with my colonoscopy, next one in five years…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #91 on: August 12, 2021, 11:51:26 am »



        ojo.         Hello everyone!!! Hoping everybody are doing good.

Question: anyone, especially those whom took prednisone sometime, any problem with AVASCULAR NECROSIS?. I was diagnosed with this condition, it happens in the hips and rarely in the shoulders, I have it in my shoulders, both of them which it makes it even more rare. I will need shoulder replacement as my pain gets worse…anyone with the same problem?, I will appreciate your feedback…thx.                                     ojo

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #92 on: September 14, 2021, 06:21:04 pm »




           ojo.               Hi everyone!!

It was time to visit Drácula again, also, my ID doctor and cornea specialist. Well, with the cornea specialist I got bad news, it’s time for a córnea transplantation which it doesn’t guarantee that my vision will get better so, I’m not doing surgery.

With Dracula and my ID doctor, still UD after 14 years on same combo, 4x2…cd4=598, %=32, no bad.

I’ve been having some pain on my ribs, left side, the doctor sent me for an X-ray, it shows a nodule, I didn’t know it was there, radiologist compared it with an xray done in 2015, he sees no changes but he wants to repeat it soon…latest update after 27 years of living with hiv/AIDS…best.                                                    ojo

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #93 on: September 15, 2021, 09:06:01 am »
Hola,

How about the other eye that was/is bothering you ?

Talked the other day with my Aunt about her "dead" eye and it's causing her a lot of discomfort. She is still very reluctant about having it removed and replaced with a ocular prosthesis.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #94 on: September 16, 2021, 02:53:24 pm »



        ojo.          Hi everyone!!

@geasshopper, thx for your reply…I’m just like your aunt, although, the pain used to be  sporadic, now, it’s Moore frecuéntate and painfully, which is making me think seriously to get rid of my right eye, the blind one, even it has gotten smaller and people can tell there is something wrong with it…I will let you know when I have the “cojones” de do the surgery, if I knew I to upload a picture in here, I’d show it in here (my beautiful brown eye in a glass jar) lol…hugs for you and your aunt

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #95 on: September 17, 2021, 11:12:32 am »
 a good sense of humor is always your best friend.....glass jar.....

If you manage to live another 100 years, maybe by then they would have figured out a way to grow a new eye ;-)

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #96 on: September 22, 2021, 05:39:57 pm »
a good sense of humor is always your best friend.....glass jar.....

If you manage to live another 100 years, maybe by then they would have figured out a way to grow a new eye ;-)


           ojo.          Hi grasshopper, thanks for your reply…it would be nice to have a new eye, as a matter of fact, no being able to drive, losing my independence, it’s been the worse news of all this journey, it didn’t hurt me found out I was diagnosed with aids, not even when the doctor told me “you may live just two more years” after my dx, but, when I started losing my vision, I started to feel hopeless, lost. I lost the vision of my right eye first, I kept working, nobody at work knew I was blind of that eye, then, I starting having problems with the other eye (no peripheral vision) and then, cornea problems, I see everything blurry, it was the end of my day ndependence, no more driving. ;(…and some of my blindness is due to CMV RETINITIS, and the other part due to medical errors, it is what it is…my last day at work was on augusto 21 of the year 2000, it was a Saturday…I remember having gone to renew my drive’s license and I couldn’t pass the eye examination test that, who ever did the test felt so sorry for me that instead of giving me a DL, he gave me one of those handicapped cards. Maybe, if I would have gotten the DL, maybe, I would have kept working, maybe no, it was dangerous for me and others me driving…well, I’m still alive, living with lots of problems, physical, but, still enjoying life, even, last week, I rode 6 roller coaster at Cedar Point and visited five hunted houses, needless to say that I didn’t get spoook because I couldn’t see lol…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #97 on: November 04, 2021, 11:03:55 am »




       ojo.           Hello everyone!!!…hoping everyone is doing fine.

Well, after  26 years of taking meds, finally I got my first broken bone (in my foot, not a toe) due to my bones being brittles for my poor bone density, even though I didn’t take tenofovir for a long time (acidosis). My bone has healed by itself but, I was limping for a while, now I have plantar fascitis, I’m wearing a boot, uncomfortable…I guess I can’t complaint after living 14 years of overtime, 2006 I was sent home to wait for an OÍ to kill me as I was resistance to all medications then…I will be fine, I am going back to see the specialist in two weeks…still having cornea problems but, I’m still able to be in here, as for my painful blind eye, I haven’t decided to get rid of it, I wonder if I would look nice as a pirate, lol…no matter what the med’s side effects might be in the future, it’s better to take ARVs because no doing it for being worried about the long term side effects of the meds means DEATH…let’s worry when we have something to worry about in the future, when something goes wrong like in my case, we take care of it, as I’m doing it right now, COMPRENDE?…hugs


Ps. English is my second language, I hope you understand my post

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #98 on: November 29, 2021, 01:53:07 am »



          ojo.         Hi !…happy  HIVersary to me!!!…today, November 29, 27 years ago, I was dying, PCP, AIDS only 20 cd4. I was told that I would live two more years. 27 years later, I’m still here sharing with you that there is hope…yes, there’s life after an hiv diagnosis…I couldn’t be here, alive, if wouldn’t be for my mother whom has been fighting with me since the beginning of this awful journey, especially the first five years after my dx…as I mentioned before in here, one of many times I was admitted to the hospital, one of the nurses of the hospital, whom I knew her for so many times she took care of me, she asked me, “tonny2, wouldn’t be easier to just let go”?, I responded, yes, it might be easier just to quit fighting but, I told her, “do you see that lady sitting on the chair in the corner of my hospital room”?, she said, “yes”, I responded, “well, she is my mother, when she stop fighting I will stop fighting”, she, my mother, was 60 years old then, now, she is 87 years old and still, strong and determined, she still goes with me to all my doctor’s appointments. She is my inspiration and my strength to carry on…again, happy 27 HIVersary to me…hugs

Offline crisbarcelona

  • Member
  • Posts: 72
Re: "HOPE DIES LAST"
« Reply #99 on: November 29, 2021, 11:04:53 am »
Hello, Tonny2

I want to tell you only this: congratulations and wonderfull.
thanks for everything

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #100 on: January 24, 2022, 10:09:39 am »



           ojo.              Hi crusbarcelona for replying…well, I’m still here after 27 years of living with AIDS (five years, and hiv 22 years. Now, after taking so many medications, I’m having problems with bone density, I had my first broken foot bone, it’s healing now, but, it’s one more pain to deal with Jessie my neuropathy and Bo be eye’s pains, I guess I will reset my brain’s pain control system, hehe, because I don’t take pain’s meds, at least until the pain is unbearable, especially, my eye’s pain, it’s awfull, I’m still debating whether n getting rid of my blind eye. It’s so difficult for me to decide get mutilated, anyway, time will tell…thanks all for reading my story, I hope, it makes some of the newly diagnosed members, realize how lucky they are, after getting the awful dx, that they won’t go through what some of us, LTS, are going through now…just take your “vitamins” everyday, and try, no, TAKE BACK CONTROL OF YOUR LIFE, that your “vitamin me” will take care of the virus and also think that, in some parts of the world, they don’t have the life saving treatments we have…good luck. There is a great life, after and hiv diagnosis, just be positive now that you are positive…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #101 on: January 24, 2022, 10:22:40 am »




        ojo.      I hope you guys, can understand, my previous post, being legally blind and using dictation on my cellphone, sometimes, my cellphone decides what to type…sorry

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #102 on: April 05, 2022, 08:12:18 am »



             ojo.          Hello again!!…well one more visit with Dracula some more results. VL=490, hopefully a blip. CD4=798, CD4%=38. Liver, kidneys, etc, normal…I never thought I would see these numbers, even my ID doctor is amazed with these numbers too bad they came to my life too late but, I’m still here…well, let’s wait and see my next visit te the vampire (in six months) to check my VL hopefully it will be UD again…let’s keep living a normal life with our buddy hiv…hugs

Offline BubbaPat

  • Member
  • Posts: 153
  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #103 on: April 13, 2022, 01:39:16 am »
BUBBA HUGS my sunshine!!!
I am glad you are still here.  You don't realize that you make me smile and have hope!

Big HUGE Bubba Hugs from Texas!
Thank you of being you and your fantastic self!

Patrick
Bubba hugs!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #104 on: April 13, 2022, 09:54:34 pm »





          ojo.         Aww!!, my dear friend bubba, you made my day when I read your reply in the morning, thanks for being such a great friend. I really appreciate your kind words and you can count on me if you need someone to talk to, my can even give you my cell phone number so, whenever you feel down we could talk on the phone. That’s what friends are for… I am sending you my I don’t know appreciation and positive vibes. Sunshine


Offline juliofromid

  • Member
  • Posts: 6
  • Being kind, over being right.
Re: "HOPE DIES LAST"
« Reply #105 on: April 19, 2022, 04:41:11 pm »
Reading this thread made me smile and it gives me so much hope. Thank you so much for making my day! Hope we all can go through this just like you!
Julio

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #106 on: April 19, 2022, 11:46:34 pm »




          ojo.          Hi Julio, thanks for reading my thread and I appreciate your reply…I’m glad that my story gives you hope and makes you smile, reading your reply also made my day. Since I found these forums, I knew I needed to share my story because I was suppose to die two more years after my AIDS dx and, even though I lived with aids for five more years after my dx, I can’t, still, believe I’m here, that’s why I chose the name of the thread, if there was hope for me, there is hope for all of us, especially nowadys, miracle drugs, it takes just one pill a day, discipline in taking your med and a good attitude, you are back in control of your life…I will read your story and, if you need a shoulder to lean on once in a while, I have two, shoulders. Comprende?…good luck and, remember that, la esperanza muere al último…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #107 on: July 13, 2022, 08:58:31 am »



          ojo.           Hello everyone…well, if you have been reading my thread, las VL came back as 490 copies, I thought it was a blip my ID doc said, lab error, so he told me to repite the test in two to sec weeks, which a did it after two weeks. The results came back UD again, happy to see that because I have a history of resistance and I thought that, after 15 years on the same treatment, it might have gotten resistance too, but it’s still kicking hiv butt.

Well, I also commented that I have another fight to face during these 28 years of fighting hiv/aids. This new battle is due to low bone density, brittle  bones, being at risk of getting a broken bone  easily. Next month I will see a bone specialist, I will let you guys and gals know what treatment I will have to start, more meds for my poor liver and body, but we have to do what we have to do, remember, if you have read my story, as long as my mom doesn’t quit, she just turned 88 years old and was accompanying me yesterday, to see my cornea’s specialist, another battle I’m facing for the last 12 years, I’m not quitting, I’m tho, sometimes it’s so difficult, I live with pain 24/7 due to neuropathy’s pain, blindness nd eye pain, I haven’t gotten rid of it, plus everyday problems, but, it is what it is…hope dies last and who said that life was easy…I just met a 61 y/o man, hiv negative, whom takes 35 pills a day (heat transplant, diabitis, etc), I just take 11 pills a day, eight for hiv and three for my little heart. I share this because I read some new members who say, “I have to take a pill for the rest of my life”, not just us, hiv positive people take meds for life. Just think that you are taking a vitamin a day that will make you feel well and more importantly, it will keep you alive, if you are one of the lucky ones taking one pill a day, and maybe, gaining time for a cure, although, I think that taking a pill a day, it’s a “cure”, you can even have babies while on treatment, without worrying of passing the virus on to your aexual partner…sorry for the long post. Could you imagine how much longer my posts were if I could see and speak English 100%…hugs

Offline SFlSurvive

  • Member
  • Posts: 48
Re: "HOPE DIES LAST"
« Reply #108 on: July 13, 2022, 03:44:41 pm »
I am glad the treatment is still working for you Tonny! You have helped me so much along the way and I really appreciate it!  :)
God got me through!

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #109 on: July 13, 2022, 07:40:48 pm »
The results came back UD again, happy to see that because I have a history of resistance and I thought that, after 15 years on the same treatment, it might have gotten resistance too, but it’s still kicking hiv butt.
Great on the numbers!
Sometimes, less now than 5 yrs ago or so, I worry about "the other shoe dropping". But then it doesn't, and that's kinda freaky. But, YEA!, I'm been UD for a long time so I'll just keep thinking about that silver lining

I just met a 61 y/o man, hiv negative, whom takes 35 pills a day (heat transplant, diabitis, etc), I just take 11 pills a day, eight for hiv and three for my little heart. I share this because I read some new members who say, “I have to take a pill for the rest of my life”, not just us, hiv positive people take meds for life.
all these peeps worrying about pills. LOL I was 29 yrs old taking 28+ pills and 4 tablespoons of liquid meds a day. And thank goodness! Those meds kept me from dying. Now I'm 60 and take 2 hiv meds and 2 other pills.

Could you imagine how much longer my posts were if I could see and speak English 100%…hugs
ROFL
then your posts would look like mine! But who cares? LOL We have a lot to say and are more fun to read than those people with one line posts! screw that TL;DR nonsense and type away. LOL
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #110 on: July 13, 2022, 08:45:19 pm »



          ojo.         @SFIsurvive, thanks for replying and I’m glad to read that I’ve been helping you reading my story…when I lost my first friend to aids, a fellow member of the Spanish forum, before his passing, when he told me he had non Hodgkin lymphoma, I told him that I was going to quit these forums because, I thought it wasn’t fair that he (TONNY), had that cancer after just one year after his AIDS dx while I had so many years since my AIDS dx and I wasn’t suffering something as lethal as his cancer, I still remember him telling me to don’t do it, he said, “you have not idea how much you have helped me and others by sharping your experiences”, so, since then, after his passing, I changed my profil name to “TONNY”, to honor him. I never asked him why TONNY with two “Ns”…now, reading your reply, I guess TONNY was right and it makes me happy knowing that by sharing my story I’m helping others. Thanks for your kind words, you made my day…hugs


@leatherman, I have told you before that your story is almost like mine, I even will turn 60 years old next month, tho, I was 32 y/o when I got my AIDS dx.

Thanks for replying to my post and you are right, I also used to take 20 pills a day in the 90s, and that nasty liquid norvir, it was so bad that I got empty capsules (from Mexico) and I filled them with that “poison” norvir…right now I’m still taking a lot of pills, eight a day plus theee more for my heart, due to etraverine.

But it’s he way, weren’t you having issues with resistance too?, and now you take just two pills?, I will talk to you my doc about the chance to switch meds, although, I know, if it isn’t broken why fixing it, or something like that, hehehe…again, thx for replying…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #111 on: August 13, 2022, 01:15:37 am »





          ojo.           Hi all!!…today I found out I have osteoporosis, one more battle that fight the n these 28 years of war against hiv/aids, and my I’m going to fight it…treatment, one injection under the skin every night for 24 months, yes!, two years, and I will take calcium citrate and vitamin D, hopefully I will reverse this condition before I break a hip or some other bone…it’s a pain in the butt living with hiv/aids, isn’t it?, but, it is what it is and I will continue to fight whatever comes my way…when there’s life, there’s hope!!…hugs and be strong

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #112 on: August 23, 2022, 11:31:32 am »





             ojo.            Hi all!!


LIVING WITH HIV has been a life changing event, it has made me more appreciative of what I have, family, friends, also, it has made me more sensible to other people’s pain.


I just just celebrated my 60th birthday, omg, I’m and old fart!!, I never thought I would live this long after everything I’ve gone through…yes!!, there is hope, there’s life after an hiv/aids diagnosis, we just need to choose to be fighters and not victims…I’ll be “seeing” you in maybe, ten more years…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #113 on: August 23, 2022, 03:01:19 pm »
Happy Birthday!!!

Congratulations on all the good times and the bad times that you got through to get to here!

leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #114 on: August 25, 2022, 11:32:32 am »



          ojo.           Hi leatherman, thx for replying, at least I didn’t spend my birthday in the hospital, tho, I was in the ER a week before my bd, I went in thinking with abdominal pain, sane kind of pain when I got pancreatitis, thankfully it was just indigestion and I was sent to see an specialist because there is something wrong with my digestive system…I’m old hehehe…thanks again mikie

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #115 on: August 25, 2022, 03:52:54 pm »
at least I didn’t spend my birthday in the hospital
birthdays NOT in the hospital are the BEST birthdays!!! :D :D

I was in the ER a week before my bd, I went in thinking with abdominal pain, sane kind of pain when I got pancreatitis, thankfully it was just indigestion
ugh. sorry to hear that.

getting old definitely has it's advantages (you're not dead is the best thing!) even if it's got some disadvantages. (like my creaky neck and my aching knee. thankfully though these days it's mostly getting-old issues and not HIV issues ;) )
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #116 on: August 25, 2022, 10:04:19 pm »
Belated Happy birthday

HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #117 on: August 25, 2022, 10:35:21 pm »





             ojo.           @leatherman, in 2010 I celebrated my birthday in the ICU, hemolytic anemia) I was admired 08/15 and discharged 08/23. Definitely it’s not fun being in the hospital today is your birthday, not knowing if you’re going to make it out alive, fortunately I’m still here.


I was wondering if it is true that people like me who is has been living with HIV/AIDS for so long, that we aged faster than people who are HIV negative, cording to any study that i read in the research forum. Now, I am lactose intolerant , osteoporosis, ED, hehehe, that one is a joke, “Pancho” still works…anyway, it is what it is, we have to do what we have to do to be around a few years more, by the way, I will start my osteoporosis treatment next week, one injection every night for two years. A 3900 dollars a month treatment, wow!!!. Sometimes I feel bad spending so much money when we can use that money to feed the poor, anyway…thx mikie



@jim Dublin, thank you for your reply.I like my 95 y/o uncle, I just turned 39 y/o…thx again.



Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #118 on: August 27, 2022, 12:22:42 pm »
in 2010 I celebrated my birthday in the ICU, hemolytic anemia) I was admired 08/15 and discharged 08/23. Definitely it’s not fun being in the hospital today is your birthday, not knowing if you’re going to make it out alive, fortunately I’m still here.
wow. i didn't realize we had a birthday in the hospital in common too.  :o

For years I've been telling people that any day you're not in the hospital, no matter how bad the day is or how sick you are, is still a great day! ;D ;D ;D

Sometimes I feel bad spending so much money when we can use that money to feed the poor
Even though it frustrates me every time I attend some Ryan White meeting with lunch and a small pharma presentation., I understand that state funds are always tight so that offering lunch for all the attendees (usually directors or Ryan White managers who had to travel in from all over the state) and getting the food cost subsidized by a pharma rep is just good state business; but that money could have lowered drug costs or provided free meds to who knows how many (or for that matter it could have paid for my gas/travels cost to attend as an unpaid consumer. The principle of "Meaningful Involvement of People with HIV/AIDS" (MIPA) needs a lot of work in my opinion. sigh) And don't get me started on all those med adverts on American TV. Your doctor should be talking to you about what prescriptions you might need, and all these ads are a gross indulgence by fat-cat pharmaceuticals. ugh!**

But even with that rant, the real problem is that America actually has enough $$$ to feed the poor and cover the costs of our medications. Never feel bad-guilty :-[ about the situation; feel bad-mad >:( about the screwed up health care system we have that doesn't care for people.  ;)



**(sorry about that rant, POZ. ;) :D I've been around here so long you know that I understand it's a double-edged sword. I rather have your magazine available in so many clinic and doctor offices helping out PLWH even with those glossy glossy ads than not having that information available to those who need to get that information. At least those Norvir ads of cute people outdoors mountain climbing are gone - because that was just damn false advertising. >:( >:( Even though it wouldn't have helped sales, emaciated people looking for the nearest bathroom would have been a more realistic ad) and now those happy active people dancing away in those Devato ads are actually the results of taking meds these days.)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #119 on: September 06, 2022, 06:16:38 pm »





                 ojo.               Hi leatherman, thanks for your reply. Yes, our stories have some similarities, both being LTS, almost dying of PCP, etc, etc, even complaining about the tastefull flavor of luquid norvir, you remember it? Hehehe.


Don’t worry about the rant. I remember when I had three diferent infusions, I can’t remember the name of the med, antway, the bill came home, $164 000 omg!!, I was surprise how expensive it was. I called my insurance to find out if they would take care of the bill and, the representative is spoke to that day told me NO, I almost passed out, I couldn’t sleep that night. Next day I called back the insurance and the person I talked ti that time told me, of course we pay for it, what medicare doesn’t pay, we do, I was relieved of the stress that big bill gave me. I remember telling my ID doctor about how many poor people we could have fed and he told me, tnny2, you are worrthy, so sweet the man, wasn’t he?. Anyway, again, thanks fir your reply…hugs

Offline beauraingdance

  • Member
  • Posts: 11
Re: "HOPE DIES LAST"
« Reply #120 on: September 08, 2022, 04:30:52 pm »
Thank you this is very encouraging , I was in the same situation it was a hopeless, I just kept going on ,at the same time very aware of my situation .my CD count now is in the 300 up from 15. Life for me is a complete change but not a bad life just very different. I am so happy and thank full to wake up everyday do  the same job I have passionately done  since  I was 8 years old. you seem to have a zest for life , The late stages of Aids is  something very different from having HIV ( I think). Yes! I understand what your going through, it takes a special person. Zoltan

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #121 on: September 11, 2022, 03:25:50 pm »
Thank you this is very encouraging , I was in the same situation it was a hopeless, I just kept going on ,at the same time very aware of my situation .my CD count now is in the 300 up from 15. Life for me is a complete change but not a bad life just very different. I am so happy and thank full to wake up everyday do  the same job I have passionately done  since  I was 8 years old. you seem to have a zest for life , The late stages of Aids is  something very different from having HIV ( I think). Yes! I understand what your going through, it takes a special person. Zoltan



                ojo.         Hello there!!… thanks for your reply. I am glad that your soldiers are going up, mine went from zero to 360 and they stayed like that for some many years, read mr thread, now my soldiers are 828 and my cd4%=36, UD for 15 with same treatment, no, I didn’t take one pill a day, I take 4x2 but i’m still alive…keep take ng your med/s as prescribed, aand a good attitude helps….good luck

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #122 on: September 11, 2022, 03:31:35 pm »




         ojo.           Hi everyone!!!

Well, already one week with my osteoporosis treatment. So far so good, although, I must admit, is taking me a little bit of time to adjust the this bew ritual. I feel like in the beginning half my HIV/aids treatment, almost 29 years ago. But I guess, I have to give it time to get used to it if I want to keep being around without a broken bone. I would keep you posted…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #123 on: September 29, 2022, 10:35:05 pm »




           ojo.            Hi everyone!


Well, I finished my first box of
FORTEO, treatment for osteoporosis, 28 days of injecting myself every night, ough!! what a pain in the ass, when I’m ready to go to bed, after taking my 12 pills a day and applying my mud mask for my wrinkles, I remember rhat I haven’t poked myself so, here i go, downstairs to the fridge to get my “pencil” get the needdle on and clean the tummy, where I’m supposed to go n inject myself, then, put everything back in the fridge, well, it is what it is, hopefully my neighbor hasn’t seen me in the middle of the night, through the window, with my mud mask…I’m having some myscle and bones pain due to the side effects of the med but, I’ve been living with pain for so many years that, sime mire pain doesn’t bitter me…anyone know n here with same osteoporosis?… I will keep you posted hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #124 on: September 30, 2022, 08:36:40 am »
hopefully my neighbor hasn’t seen me in the middle of the night, through the window, with my mud mask
ROFLMAO
beauty always come at a cost  ;D

Hopefully that treatment will help you out although side effects always suck.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #125 on: November 29, 2022, 05:45:54 pm »






            ojo.              Hi everyone!



November 29 (Tuesday) 1994 I got my AIDS dx, today, Tuesday, November 29, 2022 I’m celebrating my  28th hiversary and my latest lab results, cd4 680, cd4% 34 and UD. 15 years UD same treatment “salvage “ after being sent home to wait for an OI to hill me due to resistance. No bad at all, although, it hasn’t been easy, the virus has made some damages
At, I’m still alive…HOPE DIES LAST (la esperanza muere al último)…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #126 on: November 29, 2022, 08:48:32 pm »
Congratulations!

Last weekend (11/20) I celebrated my 39th year since infection and in just a couple of weeks (12/26) I'll hit the anniversary of 30 yrs since diagnosis.

And we're both still kicking!  ;D Cheers to Us!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #127 on: November 30, 2022, 10:02:18 pm »






           ojo.               Thx for replying Mikie



Your story is almost like mine, I got my Full blown AIDS (do you remember the term?), dx in 1994 and my infection was eight years earlier. On Sep/Oct 1986 I got a blood transfusion in a hospital after a bad traffic accident in a freeway in Mexico, after leaving the hospital, around one or two weeks, watching rhe news on TV, the newa anchor was advising  people who has gotten a blood transfusion in the same hospital I was treated to be checked for hiv because the hospital found out that there was some blood infected with hiv. When I heard that I got scared but, I didn’t wasn’t feeling sick plus ignorance, I said to myself I didn’t get that much nfected blood, time went by and I forgot about it. Firtunally I always practice safer sex and always in long time relationships that neither if my four exes is hiv positive. After my aids dx I explained the doctor my accudent experience and asked him how I could have firgotten about the hispital advice to be checked fir hiv, he told me that it might have been related to the contusion I had in that accident, as a matter of fact, around 15 years after my accident, while taking a shower, alk if the sudden, I remembered things about the accudent that I didn’t remember, like the bus company I took to travel and the way the driver was lying on the floor out of the bus not knowing if he was dead or just unconscious, weird. Anyway, that’s part of my story. Hiv is hiv, it doesn’t matter how we acquired…what I’m not sure if you got a history of resistance to meds as I had, that’s why I almost died twice of PCP and one more time almost die of hemolytic anemia. Also got all kinds if OIs because after my aids dx I continue to live with aids for five more years. Kaletra, Agenerase and efavirenz, on the year 2000 saved me for losing completly my eyesight and of course, that treatment saved my life. I’m not sure why I’m still alive, I want to think that working ling hours while luving with aids could have helped me being here sharing my story and, working fir the federal goverment, that couldn’t fire me fir calling iff sick so many times…sorry for the long reply, not always celebrate so many years of kicking hiv’s ass, Am I right my friend?…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #128 on: February 02, 2023, 02:27:27 pm »






                       ojo.              Hi all!…living with hiv is not just to be disciplined by taking your meds and keeping your ID doctors visists, it’s also keep living with everyday problems like work, illnesses, family members and friends passing, etc., dfc.


Unfortunately, a few days ago, my aister got terrible news, she was diagnosed with breast cancer (ILC), so bad that she got to go through the removal of both breast. After that, the oncologist will decides if my sister will need quimio or radio therapy or both…she is a strong woman but I can’t say the same about her husband, we’ll see what happens, i will keep you pisted.


Mow about me, I will have to get my good eye stiched up, couple of stitches, to close a little bit my eyelids so I don’t lose so often my special contact lens (cornea), and now that I’m seeing the plastic surgeon, I will talk to him about removing my blind eye once and for all, I guess it’s time to get rid of the pain that I’ve been living for a long time due to the blind eye…wish us luck and I will keep you pisted…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #129 on: February 22, 2023, 08:59:08 am »











             ojo.           Hello all!!…well, I’m having my small surgery done on February 28. Since my last post I have lost three contact lenses. I got a new one put in last mornonday, I hope it stays in until the day of my surgery.



My life is getting a little bit more difficult because my vision has decreased and, it makes me so sad having to depend on my 88 years old mother. She has been fighting with me HIV/aids, since my diagnosis. Oh well, I will have to start looking for help so I tell had to depend on my mom and relatives anymore… I will keep you posted. By the way, for those who read me, my sister’s surgery will be the same day I am having my, what a coincidence. Although there’s not compilation between her seven hour surgery and May 15 minutes surgery. But I know, the both of us will be OK. Please send us good and positive energy, we, their family, will need it…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #130 on: March 01, 2023, 06:12:56 am »
          ojo.            Hello everyone!… finally I got my surgery yesterday, everything went fine, it’s painful, but hopefully the pain we go away in a couple of days.



My sister’s surgery, which lasted yes four hours, went well too. Now she has to wait a couple of weeks for the lab results, hopefully she won’t need chemotherapy. Yesterday was a long day.



This is part of the living with HIV…hugs

                              ojo

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #131 on: March 01, 2023, 06:41:44 pm »
glad everything went well. Here's hoping for a speedy healing and recovery for both of you.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #132 on: March 10, 2023, 03:05:00 pm »










                    ojo.            Hello everyone!





@ leatherman, thanks for your reply and you are good energy. Well, my eye is doing better. My contact lens is still in my eye, although, now wants to pop out from the other side of my eye. I will see the specialist until April, I think that may be my body is reacting that foreign object in my eye. I will keep you posted about this situation.




My sister is still recovering, everything seems to be OK, next week. We will know about the biopssy’s results. Please cross your fingers so everything is fine. I will keep you posted.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #133 on: March 26, 2023, 02:31:57 pm »










             ojo.           Hello there!.
.. well my surgery went well and I’m doing fine now. I am going to need another surgery to open up my pupil. So we can see if it will help me to see better. it is a small surgery too. I will keep you posted. Sometimes living with HIV, in my case, it feels sometimes, over whelming, but we had to do what we had to do.





About my sister, bad news, she will need to go and get some chemotherapy and her cancer went from phase one to three. she will start three minute next Thursday. Please keep her in your thoughts…
I will keep you posted. Hugs.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #134 on: April 19, 2023, 04:51:27 am »











                   Ojo.                 Hello everybody.!!

Well, I am starting to get used to my eyelids stiched up up, it’s a pain in the butt but I’m sure that I will get used to it. Engine 19 I will have another small surgery in my eye. My pupil doesn’t dilate due to too many surgeries in my eye so, this specialist is going to delete it with surgery to try if I can get a little bit inside my house. I hope so!. And, my pupils been dilated their retina specialist will be able to see and check that everything is OK with my friend TINA and my optic nerve, he hasn’t been able to see the back of my eye for a while. So, we will know how he’s my optic nerve, the retina and the maculula, hopefully they are still there.





How about my sisters cancer, she started last Friday her first give me a treatment, so far so good, no major side effects, she will have to go through three more 03 minutes of quimio with two medication, invasive treatment, 13 minute every 21 days, then she will have to go through several weeks more, I can’t remember how many more, but use one medication. I will let you know what happena… Times For Your Good Wishes.

Hugs





Offline Jackmydin

  • Member
  • Posts: 91
Re: "HOPE DIES LAST"
« Reply #135 on: April 19, 2023, 06:59:42 pm »
Hi Tony,

Hope your eye surgery goes well. Sorry to hear what happened to your sister, I'm sure she is a fighter like you too. Get better soon OK for both of you.


Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #136 on: May 05, 2023, 04:18:17 pm »








               ojo.            @jackmydin, how nice to hear from you and I appreciate your good wishes and yes, my sister who is the youngest of the family, is stronger than me, she even lost all her hair, I guess it has to be very difficut not only that, she had both breadt remved, tho, she got new boobies, hehe. Two more aggressive treatment of chemo which she has been handling pretty well, after that, 13 more treatments but just one less aggressive chemo. Thanks again for your kind words. Sending you my best.





Well, I have been having pain on my pancreas area, and I was concerned they could itbe another episode of pancreatitis, so I called my nurse to request some bloodwork to check my pancreas, and she also irdered cd4 level and CV.


I just got my blood work results, pancreas enzymes, normal. CBC everything normal to. I was impressed when I read my cd4 results, on January 31 my soldiers were 550, %32 and now cd4 1040 and %40, incredible I guess hope dies last. My CV in the last three lab. works, my levels come out well. The first one it was 30 the second one 25 and this last one is 31. I haven’t been.<20 UD, since April 2022. we’ll see what the doctor has to say…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #137 on: July 27, 2023, 02:57:36 pm »





         ojo.             
Hello everyone!


Well, almost ready to get rid (remive) my painful blind eye… this is the surgery I will have done, I already went through some tests and we are ready to schedule the surgery but, we had to wait until I get rid of an infection that I got in my good eye…bump…hugs



https://youtube.com/watch?v=InIccT0MlI0&feature=shareb

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #138 on: July 27, 2023, 03:15:00 pm »
 
Hugs and if you need to talk let me know
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #139 on: July 27, 2023, 03:23:43 pm »
Best wishes for an easy surgery and fast recovery with minimal pain
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #140 on: July 27, 2023, 03:42:21 pm »






              ojo.            Thank you guys I really appreciate it, like I said we had to wait until the infection in my good eye Gassaway. I went to Mexico for the wedding and I lost my Bandish contact lens causing an Therefore an infection. It’s funny, I got Moctezuma’s curse in my eye not in my stomach. Hehe



Thanks Jim I appreciate the offer, do you use WhatsApp.?. Because I’d rather a phone conversation, then typing and reading…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #141 on: August 17, 2023, 04:04:32 am »







          ojo.        hello everyone!


well, finally the specialist (cornea) found out what the problem is with my cornea, there isn’t any infection, it is some calcification formed in my cornea due to some eyedrops are used for years ago. August 30, I will have treatment to get rid of that calcification that does not let me see clearly. I will keep you posted about it and the situation.


I can’t believe that is banned already one year, since I started my osteoporosis treatment, time goes by fast, one more year to go with this injections every day. Why osteoporosis?, According to the doctor is due to living so long with a cronic condition, all of the we know that tenofovir causes bone problems. I am allergic to that medication so I didn’t take it.. I will keep you posted

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #142 on: August 17, 2023, 05:31:35 am »
Glad to hear they found the problem and have a treatment plan. Keep us posted, hugs. Best, Jim.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #143 on: August 21, 2023, 07:32:18 am »





                 ojo.            Hi all!!!… diagnosed in 1994 with aids, 20 Cd4, I remember asking my doctor how much longer I would live, he told me around two more years, I was 32 years old, now, 29 years later, I am celebrating my 61th birthday, so, happy birthday to me and happy 29th birthday to HIV/aids. As many as you know, it hasn’t been easy, but I’m still alive sharing with all of you my story.
..hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #144 on: August 21, 2023, 08:54:06 am »
Happy Birthday!!!

You know, every time you post part of your story I'm just amazed at how similar our stories are. I turned 61 in march. I was just 30 when dx'ed in 1992. And look at us! Both of us old guys still here and kicking. We got pretty damned lucky though, you know? Just being infected a year earlier like my first partner was, and quite frankly, we'd probably be like him ... and not here. :( We got so lucky to barely make it to something more than just AZT.

Cheers to getting older, cheers to being here (in whatever shape our ageing bodies are in), and many more Happy Birthdays to you!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #145 on: August 21, 2023, 10:22:52 am »
Happy birthday! I hope you have a good one. Best Jim
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #146 on: August 21, 2023, 01:44:12 pm »





          ojo.         @ leatherman thanks for your reply and your your good wishes. Yes, our stories are similar, although I had to live with aids for five more years after my DX due to bad absorption of the medications. how could I forget AZT, he was killing me (anemia). But, as you said, we are still here. Thanks again for replying.

@jimdublin, thanks for replying and your good wishes. Hugs

Offline virgo313

  • Member
  • Posts: 358
Re: "HOPE DIES LAST"
« Reply #147 on: August 21, 2023, 01:46:00 pm »
Happy Birthday Tonny.!
« Last Edit: August 21, 2023, 01:48:28 pm by virgo313 »
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / Chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #148 on: August 29, 2023, 03:02:41 pm »







          ojo.              Thank you very much my friend Diego., I really appreciate your good wishes. Hugs.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #149 on: August 29, 2023, 03:22:38 pm »







             ojo.              Hello, everyone!!



Yesterday, while eating my salad, I realized how blind I am, because I couldn’t see what I was eating, to tell you the truth, I felt scared. Well, I’m not sure if that was the right sensation bath, I felt concerned and worried about what am I going to do with my vision gets worse.


If you had read my thread, you know that when I got my cat, my DX, I wasn’t that worried, when I asked the doctor how much longer I would live, and he told me around two years, it was Dan went I felt like yesterday. I was in bed for four or five days until I realized that I was already. wasting some days off those two years that I was supposed to live so I got out of bed, took a shower and called the office to let them know that I was going to be in the office the next day to go back to work. Now it’s different , I think, I guess I will have to start looking for some help and how to live with my blindness. I know that I’m going to be OK but still, a hug will be appreciated…

Offline Kirat

  • Member
  • Posts: 38
Re: "HOPE DIES LAST"
« Reply #150 on: September 03, 2023, 12:39:30 am »






             ojo.              Hello, everyone!!



Yesterday, while eating my salad, I realized how blind I am, because I couldn’t see what I was eating, to tell you the truth, I felt scared. Well, I’m not sure if that was the right sensation bath, I felt concerned and worried about what am I going to do with my vision gets worse.


If you had read my thread, you know that when I got my cat, my DX, I wasn’t that worried, when I asked the doctor how much longer I would live, and he told me around two years, it was Dan went I felt like yesterday. I was in bed for four or five days until I realized that I was already. wasting some days off those two years that I was supposed to live so I got out of bed, took a shower and called the office to let them know that I was going to be in the office the next day to go back to work. Now it’s different , I think, I guess I will have to start looking for some help and how to live with my blindness. I know that I’m going to be OK but still, a hug will be appreciated…

 Your story is inspiring and you are a true warrior. Omg, what you've been through! You are admirable, my friend!
I'm sorry about your vision and I hope you can manage it the best way as possible. Thank you for sharing your story and give us hope!
Switched meds again on 21/21/2023 because I had no changes with the new meds. Now, taking Dolutegravir + Lamivudine only, the dual therapy.
11/01/2023 VL : U                       CD4 452 - 21.52%
Switched meds on 10/26/2023: Darunavir + RTV + TDF/3TC ( 3 pills).
08/10/2023 VL : U                      CD4: 397 - 23.22%
06/20/2023 VL : U                      CD4: 422 - 20.73%
01/17/2023 VL : 1430/mL           CD4: 300 - 10.45%
Started Dolutegravir + Tenofovir/Lamivudine

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #151 on: September 03, 2023, 02:03:13 pm »






            ojo.            Thanks for reading and replying and yes, I’ve had the “fortune” to deal with so much that it has made me stronge, back then, either you wanted to live or die, I chose the latter and, I’m still fighting, fighting all my vision.

Last week I saw the cornea specialist and scraped some calcification on my cornea, very painful, now I am still having problems to see, that we are doing what we had to do. Next visit with a specialist will be next Wednesday, hopefully there’s not an abrasion therefore, an infection after the procedure he did last week… I will keep you posted… life goes on with vision or not vision I just had to adjust to whatever day comes…hugs

Ps. Forgive my typos.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #152 on: September 07, 2023, 04:04:29 pm »





            ojo.        Hello there!… well, I saw the cornea specialist yesterday, and there is no god news, we have tried everything and it hasn’t worked. I’m still having problems, I see everything foggy. We do no one to go to an aggressive treatment of a cornea transplation cause that would mean taking antirejection medication which neither the cornea specialist, nor my infectious disease doctor recommend. So I guess, after 29 years. A fighting dish condition and 13 years trying not to go blind I guess there’nothing else to do. wwell, it is what it is. I will continue here using my cell phone to communicate with you…hugs
..

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #153 on: September 08, 2023, 09:37:49 pm »





           ojo.             Well, it was a long day. My best ggest supporter during these last 29 years fighting this condition had a surgical procedure, my mother, and everything went well. Plus, it was my sister last chemo therapy treatment. it is time to relax for three weeks before her radiation treatment. So far so good. I guess it is part of living with HIV, we are not just the protagonist of our family stories, we also have to deal with our families and friends health issues…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #154 on: October 29, 2023, 05:58:13 pm »






             ojo              Hello everyone!!….well, I’m having a dilema and it makes me think about Miss Philicia, R.I.P., I remember he did not want the be a burden for his family and I think that i’ve gotten to that point of
No, wanting to be a burden, but anyone so I have to start looking for solutions. Any suggestions?. Being legal lying makes my living conditions a bit difficult, are you ready? Had someone from the BLIND community to teach me how to be more independent but still, I do not feel safe cooking for myself. Well, I will appreciate any feedback if you know of somebody with the same condition…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #155 on: November 02, 2023, 08:25:36 am »



          ojo.          Hello everyone!… just ranting. How difficult is to know that a relative is suffering and waiting for the end. My cousin has terminal cancer and she started hospice care. I remember that my ex when we found out that I was living with AIDS

And, according to my doctor, then, I was supposed to leave for two more years after my diagnosis, my ex told me that I will outlived everybody. I guess he was right because I’m still here and so many loved ones have passed away before me… I feel weird, I still think why I’m still here while my cussing is waiting
to died…
Have anyone felt this way?…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #156 on: November 02, 2023, 11:49:15 am »
Survivor's guilt can be a hard thing to deal with sometimes. It can strike at any time, sometimes over little things and sometimes bigger things; but that's not surprising as it's all about death - the death of others and not ourselves.

Every once in a while I think about my classmates from my old baptist high school. Out of a graduating class of a paltry 43 people, 5 have already passed away. For a while in the late 90s, I was sure I was going to be the first of my classmates to die - but I didn't. Now I sit here, and except for the one who was killed by her ex, I wonder how those other 4 could be gone when I've been the one living with a deadly disease.

How to cope with this odd feeling of not being dead while others are?
...Allow yourself to feel your feelings. Try to work through them and process them. Others being gone while we're still here is not something we control. People dying is just how life is.
...Exercise mindfulness. Focus on positive truths about yourself and the life you lead.
...Don’t isolate from others. Staying connected with people can be the support to help you through your struggle. Sharing grief can be cathartic.
...Do something good. Putting good out into the world can help. Give your time to a local organization that helps people in your community, and you will feel better about yourself while making a difference in the lives of others.
...Seek professional help. A therapist can help when mental health challenges are too much to deal with on your own.

Of course, you and I (and several others we know) as long term survivors have to deal with this kind of issue a lot. Too, too many of our peer group (gay men of the 80s and 90s) are gone leaving us here to wonder how we are the ones surviving. For me, I think I survived by luck, timing (by not being infected 6 months earlier), and determination to see the next morning.

hugs!!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #157 on: November 02, 2023, 02:50:40 pm »




         ojo.            Hi Leatherman, thanks for reading me. it doesn’t get to that point of needing professional help. It’s just that I grew up with my cousin and I feel so bad for her although she has been pretty strong and has a good attitude even though she knows that her days are counted. also, my sister is fighting her bottle too with cancer, so far so good, she tolerated the Kimia treatment and now she sang her second week of radiation treatment. Aside up all these problems, my brother just found out that he has prostate cancer, he seems that we are, as family, having to deal with so much. Thankfully, we are a strong, family and very supportive of each other … again, thanks for reading, and the good tips…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #158 on: November 02, 2023, 06:53:29 pm »
So sorry to hear how many people in your family are having to deal with cancer. Hopefully, even with so many people dealing with their own illnesses, your family can give each other the support you all need to get through these tough times.  :-*

hugs to you and your family!!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #159 on: November 04, 2023, 12:49:47 pm »



          ojo.            @ Leatherman. Thanks again for replying, and we had to do what we had to do, fortunately, we have each other. My oldest brother died of colon cancer 10 years ago since then, we had to be checked, and now, with my brothers prostate
 Cancer diagnosis, we have to be careful and check periodically. So far the rest of us are doing good. Thanks again for the hugs sometimes, even virtually, shows the kind of person you are, and I appreciate it. Gracias.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #160 on: November 09, 2023, 02:14:41 pm »



          ojo.           
Hello everyone!!… he was time to visit Dracula and my ID, DOCTOR, vital load, still undetectable, after 16 years of taking same treatment (eight pills a day), CD4, 758 and  cd4% 34. I also, so my cornea specialist just to replace my contact lens because I sit before, there is nothing else we can do about my cornea. Fortunately, there is no infection or inflammation, so far so good.
Thanks for reading…hugs

Offline BubbaPat

  • Member
  • Posts: 153
  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #161 on: November 14, 2023, 03:23:30 pm »
Hugs Tonny!!

You're in my thoughts, prayers, good energies and well wishes every day.

I believe I can actually hear and see your smile when you write.  I know you get down sometimes but you find a way to be hopeful and give good energy to the universe.

I send you the biggest bubba hugs i can.

Stay healthy and with us kiddo.  You brighten a person's day no matter where you are.

Bubba hugs! Patrick
Bubba hugs!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #162 on: November 29, 2023, 07:27:50 am »



         ojo.             @bubbapat, my favorite guy, you always made me smile. thanks for reading me and for your kind words, but I am OK specially, reading messages like years… hugs Francis sunshine tonny2.


Hello everybody!!…. happy 29th HIVersary to me. Yes, one more year since my diagnosis aids. Even tho I am almost blind, life is still good…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #163 on: November 29, 2023, 03:43:19 pm »
happy 29th HIVersary to me
Congratulations!
Heaven know you've lived through enough to deserve the congratulations for surviving and still being here....even though age, time, health, genetics and HIV have tried to stop you. :D Congratulations on your bravery and stamina!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #164 on: December 02, 2023, 03:56:12 pm »



        ojo.             @ Leatherman., thanks for replying and yes, you are right, he’s been difficult to deal with so many illnesses and conditions related to HIV/aids. I remember that I started with PCP, Mac, retinal detachments due to CMV, crypto, PCP again, neuropathy, vasculitis,DILS, hemolytic, anemia, awful reaction to abacavir, CMV retinitis which left me legally blind but, we are still here after 29 years fighting every day. It is what it is come, life goes on, there are people in worse conditions than me, and they are still fighting to survive… thanks again for reading me, and taking the time to reply…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #165 on: December 14, 2023, 11:44:01 am »



           ojo.        Hello all!!…I was wondering if someone one on here, specially LTS, although I just necessary Mente them, has problems like me, low vision, drop foot due to neuropathy. I would like to know how you deal with this problems… feedback would be appreciate it…thanks.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #166 on: December 15, 2023, 02:15:44 pm »



         pjo.              Hello everyone.!… I forgot to mention that another condition that I have due to the use of prednisone is a vascular necrosis. There are some doctors, well, in my case, a doctor gave me an antibiotic for pneumonia, but also gave me prednisone. I asked my infectious disease doctor about the prednisone and he told me why, I was prescribed it, he told me to not take it. I used prednisolone when I got hemolitic anemia. So I guess there are times that you have to use it… watch out!

         https://www.mayoclinic.org/diseases-conditions/avascular-necrosis/symptoms-causes/syc-20369859

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #167 on: December 23, 2023, 06:04:26 pm »



           ojo.         Hello everyone!… just to wish you a merry Christmas for those who celebrate it and happy holidays… remember that now HIV is considered a chronic condition and as long as you take your medication as prescribed, we will be celebrating with our loved ones many holidays…hugs


Ps. remember, if you go partying, don’t forget the balloon, because even though we know that and detectable equals transmissible, the anti retrovirus protwon’t protect you from other STIs.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #168 on: December 31, 2023, 08:44:21 am »



           ojo.            Hi all!…. we started the year 2023 with bad news, the breast cancer, diagnosis of my sister, so far so good, Dan, another cancer, diagnosis in the family, my brothers prostate cancer, so far, DOCTOR says no need to do anything for now, he says that everything is gonna be fine and that he’s going to live and normal life, but they are going to be checking him periodically. In my case, no more treatment for my cornea so my vision will get worse with time. But we are still here and hopefully next year finally, I will get my blind eye removed because it has gotten so painful to live with it.

I wish everybody a happy and healthy new year. Life goes on, there’s life after an HIV diagnosis…. Hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #169 on: January 15, 2024, 01:06:40 pm »



         ojo.         Happy new year to all of you!!

I don’t know about you but, leaving with HIV/AIDS, gives us the benefit to be checked for  other illnesses and health conditions, I guess that’s a good thing. I’m telling you this because my best friend from college died yesterday. He didn’t know that he had cirrhosis and was too late and he lost the bottle can stay this. May he rest in peace… again, I don’t understand why I’m still here even though hi lived with zero cd4 for so long and he made me sad seeing my loved ones dying before me. Sorry for the rant…
hugs


Ps he was my platonic love for four years. We were in love, but we never decided to confessed to each other for being afraid to the stigma

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #170 on: January 15, 2024, 08:09:04 pm »
again, I don’t understand why I’m still here even though hi lived with zero cd4 for so long and he made me sad seeing my loved ones dying before me. Sorry for the rant…
That's not a rant. :) That's just your truth....and the truth of a lot of long term survivors.

You know I can understand my two partners and numerous friends who had HIV in the old days dying before me. Having AIDS sucked and a lot of us didn't make it. What gets me is the "other people" who have died. Old classmates from the 70s, friends without HIV, friends much younger than I. What the hell is up with that?!? Then there are the people who haven't lived as long as me with HIV who have died. I mean, I didn't do anything special to stay alive, why aren't they? It just makes me feel extra or doubly sad losing these people who really should have "outlived" me.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #171 on: January 16, 2024, 02:55:43 am »
@Tonny2 Sorry to hear that your friend passed away. Hugs.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #172 on: January 16, 2024, 01:32:03 pm »



          ojo.          @ Leatherman and Jim Allan.. thank you for reading me and understanding how I feel. Here is when you notice that when you need peer support, he reflected, and you replies… as you set the Leatherman, it is difficult to understand why we are the lucky ones in still be here. When back in the days we used to make plans for our funeral, and I even remember that the insurance company would buy back your life insurance if you were to leave us a more months,, are there people will max up their credit cards for the last vacations. It was sad. In my case, when my doctor told me that I would leave two more years, I just decided to keep working, and I think that working hard kept me alive . .. again, thanks for reading me guys you two are the best people on this forum because you had always concerned about the members of these sites (Jim on the spanish forum)…hugs

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #173 on: January 17, 2024, 03:11:16 pm »
I think that working hard kept me alive
for me, it was my dogs. :-* All seven of them!  ;D
Now it's for my 2 doggos and hubby.  :-* :-* :-*
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #174 on: January 17, 2024, 04:54:36 pm »
for me, it was my dogs. :-* All seven of them!  ;D
Now it's for my 2 doggos and hubby.  :-* :-* :-*


                ojo.            It is ytue, when I was in the hospital. Well, all the times that I was in the hospital, there were so many that I can even remember, I always missed my dog. And every time when I came back from the hospital, he would be so excited to see me, as a matter of fact, last time that I went to the hospital because of the Himalia anemia, my dog was telling me that there was something wrong with me. I would be watching TV and he would be, jumping on my lap, something that he would never do, how we put him down and then he would jump again on my lap. Two days later I was in the hospital where I got a heart attack for the lack of blood in my body due to death  anemia. Now I had to dogs and thankfully, none has let me know that something is wrong…hugs

Hemolitic anemia*

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #175 on: January 25, 2024, 09:51:50 pm »



          Ojo.             Hi everyone!!… I just read my first post on this thread, and I realized that it has more than 60,000 views maybe because it’s front 2017. I hope that reading my thread I have given some hope to those who have visited my thread. Even though, I said on my first post that I have a 🦊🐾SAUL treatment in 2007 my sturdy didn’t start then, even though in 1996 we started it to get HAART, life-saving treatments, all the medication’s didn’t work for me until 2000 when I started taking Kaletra, sustiva and one more that i dont recall its name (maybe an oldtimer can help remember the name, big gel capsules that i had to take six in the morning and six at night because intereacted con kaletra), this treatment saved my life and vision, I was dealing with an infection of CMV retinitis that stole must on my vision. I had zero CD4 when I started this treatment and my CD4 level went up to 360. Thankfully I didn’t get Iris. This treatment worked for me for five years, I had to stop it because I got three different episodes of pancreatitis and treatment dating help to suppress the virus. The rest my story is at the beginning of this thread… I was infected around October 1986 after I got a blood transition in the hospital where I was treated after a bad traffic accident. obviously nobody knew that I was getting blood infected with HIV. Two or three weeks after my accident while watching TV in my house, I her on the news that the hospital where I was treated after my accident they were asking people who got the transmission in there to get check for HIV. When I heard that I felt sick to my stomach but I was feeling well and healthy so I put that in the back of my brain and never thought about it until November 1994 when I was diagnosed with aids with only  2p cd4… one thing. Interesting that happened to me that after 20 years, by then, I was sleeping here in the USA, all of a sudden I started to remember lots of things that happened during my accident. It is incredible how your mind protects you from trauma, or was the contusion I got…. anyway, it is sweat. It is, HIV is HIV doesn’t matter how you acquired, we had to keep looking forward, because there is life after an HIV diagnosis, there are a lot of people here who are proof for that…. sorry for the long post…hugs


Ps. i’m sorry for the typos and I hope you guys can understand my post.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #176 on: February 01, 2024, 08:38:01 pm »



            ojo.            Hello everyone!!… the last couple of days I’ve had awful headache pain due to my blind eye. I know that I’ve been talking about removing my blind eye for a while, but I’m really afraid of surgery because I have had problems with bad surgeries before, as matter fact, my blind eye is result of a bad surgery. My left eye, I have cornea problems because of another bad surgery. The first surgery for a piece of mine. I want to consider it a surgery risk but, the second one the surgeon, a crooked DOCTOR Tried to cover his mistakes by lying to me. So now I just wonder what can happen next even though I go to a very repeatable clinic. Obviously, I will look for a different surgeon but the clinic is an educational institution sometimes the surgeon let the residence to the surgery for them, even though I have asked the last surgeon to do the surgery with himself, but he didn’t listen to me… but definitely I had to get this eyes removed because is the reason on my headaches… anybody with same experience, bad experience with surgeries?… sorry for venting.


Ps. please forgive my typos.

Offline BubbaPat

  • Member
  • Posts: 153
  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #177 on: February 05, 2024, 04:51:09 pm »
Sweet man... NEVER apologize for venting. Never.  Most everyone who has chatted with you has benefitted from your experience and your ability to find the sunshine on a cloudy day.
If it's a new doctor, tell them your concerns and why.  You don't have to throw anyone under the bus, just tell them you don't want to feel swindled again.
If that doesn't work.. let them know you are friends with a Texan.  While that alone should be enough to scare any sane person in the world, simply because we have bad reps as being nut jobs with guns, also.. it's mostly true.  Most of us don't have a sensible brain and if we don't own guns, we have access to guns.
Tell them your friend Bubba Patrick wants you taken care of.

And at my age, I have acquired who friends who owe me favors with no questions asked.  Plus they all know I don't ask favors for others unless they are truly worth it and Sunshine... you are worth it.

Talk to them and get better.  Lot's of us still need you around and the new folks on here need you to, they just may not know it yet.

Bubba hugs kiddo!!!
Bubba hugs!

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #178 on: February 05, 2024, 08:22:29 pm »



          ojo.         @bubbaPat, you are my favorite member of these forums and you are the sweetest guy even though you have your own problems, you always put a smile on my face and come night now even made me cry… thanks for replying, and you’re good vibes. No being able to drive. It makes my life more difficult specially, when I had to go and see the specialist which he is an hour away from where I live. And I had to depend on my cousin to take me there. I think that I had decided to have a surgery here in town where I live, so I don’t have to go to Cleveland to the preoperative then to the surgery, then, the next day to the postoperative, then, one week later, for check up, it is just too much traveling , any cost me a lot of money, because gas and I treat my cousin to dinner, etc., etc…. besides side of the surgery here, the doctor, we do the surgery and no a resident like in the Cleveland Clinic, which is an educational clinic. Anyway, my friend really appreciate your reply. You are so funny, I am Mexican and he seems like my doctors don’t care about the Mexican mafia. Maybe I will follow your advice, and I will tell them about my Texan friend. Do not mess with my  bubbaPat  buddy… thanks for being there when I need a hug….tonny2 hugs to you


Ps. sorry for the typos.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #179 on: February 15, 2024, 05:38:50 pm »



          ojo.          Hello everyone!!


I was sent yesterday to see the vampire, Dracula, to check my vitamin D levels, and the doctor said to check everything as well even though my last visit  to Dracula was in the first week of November. Usually I get to see Dracula every six months but, anyway Very results are back :UD, soldiers 785,% 39… vitamin D is low even though I am taking a supplement, so I have to wait for the doctor to tell me what to do about it… impressive numbers for someone who has been living with HIV/AIDS for 29 years and a lucky one to be alive after have been sent home to die in the middle of 2006… life is even with an HIV diagnosis, legally blind, and with pain, 24/7… keep strong, keep living…hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #180 on: February 21, 2024, 02:28:31 pm »



           ojo.         Hello everyone!… well, finally I’ve decided to have my surgery. Maybe it will be scheduled for next month because I would be leaving for Texas next week and coming back March 13 so after my trip I’m going to schedule the surgery because my pain has become unbearable. Here is a video, up to surgery that I will go through.… hugs


https://youtu.be/zreZaJyne7c?si=XH_Wg61gumpkzWEx

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #181 on: March 03, 2024, 04:17:18 pm »



                   ojo.          Hello everyone!… Well, I started this new year with the death of my best friend friend from college, then last month, somebody assaulted my nephew and killed him and now my 96 years old uncle, the best Man in the world, my mothers, brother, died from pneumonia. i’ve never thought that I would live this long to see so many loved ones dying before me. It feels weird and painful obviously but I guess it’s part of living with a condition that back in the day considered a  death sentence and we were making plans for our own funerals, Nowadays, thanks to technology, we all can expect to live long lives, as long we take our medications as ordered by the doctor, and just keep living a normal life where we have to witness did that our loved ones as I’m witnessing now.


Finally, I have scheduled my eye surgery. I don’t know who mentioned that I wait put it then. Keep it bottle with alcohol. Lol. It is called evisceration. I think I already put the YouTube link at the procedure. It will be March 19, as soon as I get back home from South Padre Island in Texas. Hopefully my pain will go away for good and I will have a better quality of life getting rid of one pain.… I will keep you posted… Hugs



Ps. sorry for the typos.

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #182 on: March 18, 2024, 07:23:55 am »



             ojo.             Hi everyone!!…Well, I guess  there is no way back, tomorrow I will have, finally, my eye surgery, evisceration, after so many years of having eye pain (blind eye), I couldn’t handle the qwful pain anymore, I guess I wanted to die whole, lol…wish me luck and I mught have to add to my collection rofile’s name “tonny2 the pirate”. Can I Jim?, LOL…I will keep you posted

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #183 on: March 18, 2024, 10:42:53 am »
Best wishes for a speedy, easy recovery with little pain!  ;) ;D

I'm sure this has got to be a big terrible decision to make and I certainly don't envy you that. I've been regularly taking my mom to an eye doctor. She only has peripheral vision in one eye and is trying to keep the other one working with injections every 8 weeks. I have been thinking about the issues she will be facing and the issues you have been facing for quite a while. All you can do is make the best medical decisions for the better outcome. Sometimes that means just relieving the pain.

Take care and when you get the chance let us know how you're doing.

“tonny2 the pirate”
LOL
Then here's your costume for next Halloween!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #184 on: March 18, 2024, 10:49:08 am »
Quote
I wanted to die completely although, they had already cut off a little piece of my skin when I was young, you understand, hahaha (foreskin).
OMG LOL
what about tonsils or wisdom teeth? You sure you haven't already lost other pieces? LOL

Quote
I think they had already seen a video of the surgery, they will not remove my entire eye, only the pupil and iris, the sclera, the white of the eye will remain, and after the eye recovers they will have me make a prosthesis.
oh WOW!

That's disturbing...and awesome. The things modern medicine is able to cure, treat, correct, alleviate, or reconstruct is absolutely amazing.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #185 on: March 18, 2024, 02:45:59 pm »



                 ojo.           @ Leatherman, tonsils still in me, wisdom, teeth, you’re right they are gone. I don’t even know what I’m saying that I want to die in one piece if when I die, I want to be cremated.


I’m sorry about your mother situation. It sounds like  macula degeneration, hoping she gets better.


Thanks again for your support. I will keep you posted… Heart.

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #186 on: March 18, 2024, 03:50:58 pm »
Best wishes with the surgery tomorrow and a speedy recovery

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #187 on: March 18, 2024, 04:28:52 pm »



           ojo.         @ grasshopper, thank you very much for your good wishes. I will keep you posted. The clinic just called me, my surgery will start at 6 AM.…hugs

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #188 on: March 18, 2024, 11:23:44 pm »
Quote
Finally, I have scheduled my eye surgery. Hopefully my pain will go away for good and I will have a better quality of life getting rid of one pain.… I will keep you posted… Hugs

Hugs and fingers crossed this improves things for you. Keep us posted. 
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #189 on: March 19, 2024, 04:19:26 am »



                ojo.               Thanks Jim, and n my way to my surgery at the Cole Eye Institute in the Cleveland Clinic one hour away from where I live. Surgery starts at  6 am…thanks for the peer support, even an old timer like me needs from others POSITIVE energies…
I would keep you posted for sure… Hugs

@ Leatherman
@ grasshopper
@ Jim Allsn

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #190 on: March 24, 2024, 11:53:03 am »
How is the post surgery recovery going?
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #191 on: March 24, 2024, 01:15:40 pm »




            ojo.             Hello Jim!… Well, Tuesday had my surgery and since then it’s been pretty painful but my pain is starting to be more tolerable. that’s why I haven’t been on here lately. I am wearing a big patch that is going to be removed next Tuesday, my highlights are stitch together, and they’re gonna stay like that for two more weeks to let Clara to heal. Then the doctor will open my eye and I will have to wait two more weeks before I get upper stasis fit in. I hope and the surgery they scare of the pain that I was getting before the surgery that I couldn’t handle anymore. It’s gone for good….. I will get you busted and thanks for asking… Hugs

Offline Grasshopper

  • Member
  • Posts: 737
Re: "HOPE DIES LAST"
« Reply #192 on: March 24, 2024, 01:59:17 pm »
a Speedy recovery and hope that the pain is manageable

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,593
  • Google and HIV meds are Your Friends
Re: "HOPE DIES LAST"
« Reply #193 on: March 24, 2024, 02:24:17 pm »
thanks for giving us an update. I have been worried about how things were going for you. Glad you hear that you are recovering .... even if recovery has some difficulty and isn't fast. Here's hoping that every day you feel 100x better!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #194 on: March 24, 2024, 06:34:25 pm »

Mm

            ojo.           @ Grasshopper, thanks Your Good Energy
@ Lederman, thanks for being concerned, but we are still here fighting for a better quality of life. We’ll see what happens in a couple of weeks if my pain is gone for good otherwise, at least we tried. I will give you guys posted. Still in pain but it is getting better… Hugs

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,263
  • Threads: @jim16309
    • Social Media: Threads
Re: "HOPE DIES LAST"
« Reply #195 on: March 25, 2024, 01:26:52 pm »
Quote
Still in pain but it is getting better

Glad to hear it and I hope things continue to get better. Hugs, Jim.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #196 on: March 25, 2024, 04:06:42 pm »





               ojo.                Thanks Jim, I will keep you guys posted.… Hugs

Offline Tonny2

  • Member
  • Posts: 2,938
Re: "HOPE DIES LAST"
« Reply #197 on: March 27, 2024, 08:38:37 pm »



                ojo.           Hello everyone!… Well, today, the doctor removed the eyepatch, I look like if somebody beat me up, my eye is swollen, and the pain isn’t that bad. Now I have to wait until May 28 to see again deduct and oculist for a prothesis. So far so good… I will keep you posted… Hugs.

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.