POZ Community Forums
Main Forums => Living With HIV => Topic started by: pozhope on September 08, 2009, 05:45:44 pm
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Hey everyone! I hope this reaches you in great spirits.
Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?
Examples:
Dignity
Resolve
Uncured
Accountability
I'm interested to hear everyone's response(s) - feel free to give multiple ONE word answers.
Get creative!
Best
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Today --- unrelenting
To go --- oblivion
v
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redefined
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tedious
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SAD!!!
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Degrading
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Wearisome
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Most days:
* adjustment [to a life that's changed]
* resignation [to something that I can't change]
* determination [to keep myself healthy]
* admiration [towards those who have been fighting this for many years before me]
* humility ['cause I realise that I have it "easier" than many --by comparison]
Some days:
* disappointment [in myself]
* anger ['cause I may not be able to trust people again -- or at least for a good while]
* fear [of the unknown]
* sadness [when I think of what others before me have endured]
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incurable
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Devastating.
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Invasive.
Unwanted.
Jan
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Love.
(I'll clarify if asked, but you did ask for ONE word.)
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I'm with Dachshund
TEDIOUS sums it up
but if you want another new one unique to me it's
BUGGER!
- matt
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Struggle.
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WOW, I'm really enjoying reading all your words!!! keep them coming ;D
best
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For everyone that has it-undetectable
For those who don't- prevention
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honestly, I would agree with ALL the words mentioned. Having lived with this for some time, I've gone through stages where any and all of the previous words could have summed up some period of my live with AIDS.
However, I can give you one word not yet used:
Death
this disease brought death to nearly every friend I had in the early 90s
Twice it tried to kill me, but the hospital doctors and newer drugs barely saved my life
However, it did succeed in bringing about the death of not one but two partners
every day that I'm alive (and right now I'm actually healthier and feeling better that I ever have in over a decade), I can't help but notice that my partners are dead; so underneath anything else that I think about it, I am quite sure that AIDS=Death.
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*New!
*incurablebutmanageableandchronic
..ok ok I know I cheated on the second one but you have to forgive me due to answer #1....newbies don't know nuttin' ;)
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defenestration
banal
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Expensive
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stigmatized
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As with Bluemoon, the first word that came to mind was "Degrading"
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Change
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challenge
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Alone.
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EWWW!
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LIMBO
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BIO HAZARD..............I hate that, but that's the way I feel, having AIDS
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GREAT WORDS!
I'm really interested in Hopeful ONE words or phrases that unify us all in the struggle affected and infected
Thrive
Banded
Strive
Overcome
Upward
Preserver
*please leave 5 of ONE word ideas!
excited to see everyone's responses ;D
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Gratitude ( ..not for the HIV --but to live in a country that provides an amazing health care system to keep me healthy --at no cost ;D
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FITNESS
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Uncertain. Because HIV/AIDS throws every single aspect of your life into constant turmoil.
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Needs to go? Id say the word is
education.
Way too many young kids still think they can't get it.
And if they do, its no big deal treating it.
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Legacy
Memories
Many
Love
Cost
Tears
Lost
Laughter
Anger
Help
Shoulder
Amazed
Friends
Family
Future
Still
Here
Years
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erm
as to hope...
LISTEN
STATISTICS
WE, THE PEOPLE
STATiSTICS
SPEAK
In that order
Good advocacy depends on understading the science well, and what this means for people
- matt
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teh suxorz
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Isolated
Stigmatized
Marginalized
Fear
Judged
Forgotten.
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Observed.
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foreever
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cranky
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coping
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today: prevention.
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Devastated forever.
Forever forgotten.
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Forever forgotten? ??? After the "The Power of Positive" post of Aug. 29. I would not have expected that.... :'(
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sucks.
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NEXT!
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Forever forgotten? ??? After the "The Power of Positive" post of Aug. 29. I would not have expected that.... :'(
Yes, all the millions who have simply vanished, due to HIV, forever forgotten.
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i think about them all the time
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I have two words.
I guess the one word that everyone is missing so far is right in front of our eyes.
POSITIVE
the second one is:
LUCKY
I'm positive that:
My blood is bad.
Life is far different today than it was before I found out I was sick.
That I can't beat this but will manage it the best way possible.
Pills will be needed to keep me alive.
HIV/Aids meds will keep improving and make all of our lives better and longer.
That I will have good days and bad days.
At some point I will have more bad days than good.
The number of HIV and Aids cases will grow as kids today don't see it as being a death sentence but a manageable disease much the same as diabetes. Sad but true.
I'm lucky that:
I read the article in the paper (one I would have not normally read) that listed all the symptoms I had leading me to get tested.
I live in a city that has great HIV/Aids testing and medical services.
I got to see an Aids specialist on his day off the day after I was diagnosed.
I have great support groups that are there to look after all my needs when required.
I found this website with great people that have and share a wealth of knowledge. They also give a ton of support to people that they don't even know.
My health is still good where OI's are concerned and overall I feel great.
I got funding for my drugs.
I got subsidized housing in about 7 weeks instead of the normal 7 years.
My family (even my homophobic brother in'law) are 150% behind me.
I truly have the most amazing & generous friends in the world.
The internet is what it is. All the knowledge that is known about HIV/Aids is available with the click of a mouse. Some of you could be my next door neighbour or could be half way around the world.
Above all I'm positive that I have the will and strength to fight for life.
I'm lucky that I was able to live today the best way possible and that I would have no regrets if my life were to end tonight.
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resilient (2 times)
1) the bugger won't go away
2) neither will we
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Yes, all the millions who have simply vanished, due to HIV, forever forgotten.
...ah...I thought you were talking about yourself.
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Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:
http://www.wordle.net/show/wrdl/1133956/%22One_Word%22_by_AMF_members (http://www.wordle.net/show/wrdl/1133956/%22One_Word%22_by_AMF_members)
...I will test the link and if it doesn't work will attach a screen-print.
:)
Steve
note: I pasted all the words into the "wordle" site that generates the image but can't guarantee they all made it into the final product.....I think they did but apologies if the generator dropped "your" word.
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my word
a-major-pain-in-the-ass
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Rejected
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ineffable
is effable a word?
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Confident-
The wordle was cool, thanks for creating it!
Snow
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Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:
Steve, that was very neat. Good work :)
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Forever
Hope
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permanent
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wow Steve - the wordle is very cool
thanks
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Today the word is "Explosive D" but that's because I've had this every fucking morning for the past 10 days, and just today figured out it was because I had the brilliant idea of using Xylitol (http://en.wikipedia.org/wiki/Xylitol) in place of sugar so that I could peel off 5-8 lbs to appease my sense of vanity. Unfortunately when I bought this I didn't realize that diarrhea is a common side effect, and I guess combined with Norvir it was triple the effect.
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Today the word is "Explosive D"
Philly, I figured that at some point someone would have to use "diarrhoea" as the word of the day :)
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Indefinite
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challenging
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wisdom
shift
conscouise
power
change
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compromised
sucks
unwanted
undesireable
rejected
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Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?
misunderstood (reason: stigma, fear, discrimination, recrimination, disrespect)
genes (reason: medical possibilities)
8) -megasept
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Consuming
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we all got some great words! they are all so true. Notice how much HIV still wares on us, even though it is a treatable condition. It sure doesn't seem that way the way it effects us all
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Today: Indignity
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today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)
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today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)
Yay! Hope it was great (and I loved the film adaptation of 'The Devil Wears Prada').
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Unforgiving.
Yet we need to move on, and kick its ass.
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pain
struggle
re-evaluation (of life)
heart-ache
headache
sorrow
im sure there are other things.....
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ineffable
is effable a word?
effableDefinition from Wiktionary, a free dictionaryJump to: navigation, search
[edit] English[edit] Adjectiveeffable (comparative more effable, superlative most effable)
Positive
effable
Comparative
more effable
Superlative
most effable
(archaic) able to be spoken of; able to be expressed
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depriving
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Mindfuck
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Successful!
because from life's perspective, this virus is incredibly successful at perpetuating its lineage
because that is what my meds are when keeping the virus under control. They are not perfect but if it wasn't for their success I would most probably be dead by now
because it is what we, people living with this virus, all are. By living one more day with this predicament
because it is what human beings will be one day when, like many times before, they will find a way to eliminate the virus from one's body
Pat
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Hi all,
My vote is for FOREVER, today. Tomorrow it most likely will be something else.
I would also like to say I keep ALL of my friends, lovers, acquaintances and strangers known to have died of AIDS or any other disease or accident alive in my mind, memories, heart, soul or whatever you would like to perceive "it" as.
Good wishes to all,
Richard
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death
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Terror
Disillusionment
Frailty
Consequence
Silence
Providence
Disillusionment
Nothingness
Clarity
Silence
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NIGHTMARE!
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Unrelenting
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Lonliness... It has been really hard to find someone to love
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Accountable
- I'm accountable for getting the disease
- I'm accountable for managing my disease
- I'm accountable for educating others about my disease
- I'm accountable for informing others (sexually) about my disease
- I'm accountable for my physical and mental well-being
- I'm accountable for not letting the disease define who I am and how it effects me
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For the state of HIV in society:
Obsured
For my personal connection:
Visceral
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intruder
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gadzooks
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SOBER
(for each morning that i wake up in disbelief and regret)
AWAKENING
(for making me realise that I, together with other hiv+ and hiv- people alike should be responsible in taking care of our selves)
HUMAN
(that are only ordinary people who commit mistakes of acquiring this disease)
HELP
(to remind us to extend our hands to those who've been diagnosed recently and totally lost in space.)
FAITH
(for believing that in my lifetime and those of the younger generations, the cure to completely eradicate the virus will be discovered and be made available to all infected without personal gains and injustice)
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Gassy,
or that could be the turkey
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martini.
..which I need right now
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Death
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Mindfuck
I was reading the words and the more I read the more I agreed ... then I saw Mindfuck and thought .. PERFECT ... summarizes all the rest of it for me ... HIV tosses everything into turmoil and fucks with your mind ... so my word is MINDFUCK
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buttfluparade
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''Ooops!''
Just about sums it up for me in one word.
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elusive
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Fear
Isolation
Devastation (both emotional and financially)
Mortality
Suicide
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*Appreciation*
Of those good days....
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abandoned :'(
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Overwhelming