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Main Forums => Living With HIV => Topic started by: pozhope on September 08, 2009, 05:45:44 pm

Title: what's ONE word that captures the state of HIV/AIDS to you?
Post by: pozhope on September 08, 2009, 05:45:44 pm
Hey everyone! I hope this reaches you in great spirits.

Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?

Examples:
Dignity
Resolve
Uncured  
Accountability

I'm interested to hear everyone's response(s) - feel free to give multiple ONE word answers.

Get creative!

Best
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: veritas on September 08, 2009, 06:02:05 pm


 Today --- unrelenting

 To go --- oblivion


 v
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: mecch on September 08, 2009, 06:11:44 pm
redefined
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Dachshund on September 08, 2009, 06:17:45 pm
tedious
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Moffie65 on September 08, 2009, 06:25:23 pm
SAD!!!
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: BlueMoon on September 08, 2009, 06:27:56 pm
Degrading
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Puckslinger on September 08, 2009, 06:38:12 pm
Wearisome
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 08, 2009, 06:58:41 pm
Most days:
               * adjustment [to a life that's changed]
               * resignation [to something that I can't change]
               * determination [to keep myself healthy]    
               * admiration [towards those who have been fighting this for many years before me]
               * humility ['cause I realise that I have it "easier" than many --by comparison]
          
Some days:
               * disappointment [in myself]
               * anger ['cause I may not be able to trust people again -- or at least for a good while]
               * fear [of the unknown]
               * sadness [when I think of what others before me have endured]
          
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: PeteNYNJ on September 08, 2009, 07:33:30 pm
incurable
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: BT65 on September 08, 2009, 08:19:50 pm
Devastating.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: anniebc on September 08, 2009, 08:39:35 pm
Invasive.
Unwanted.

Jan
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Basquo on September 08, 2009, 09:11:05 pm
Love.

(I'll clarify if asked, but you did ask for ONE word.)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: newt on September 08, 2009, 10:20:13 pm
I'm with Dachshund

TEDIOUS sums it up

but if you want another new one unique to me it's

BUGGER!

- matt
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: GNYC09 on September 08, 2009, 10:25:04 pm
Struggle.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: pozhope on September 08, 2009, 10:34:25 pm
WOW, I'm really enjoying reading all your words!!! keep them coming ;D

best
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Snowangel on September 08, 2009, 11:06:43 pm
For everyone that has it-undetectable
For those who don't- prevention
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: leatherman on September 08, 2009, 11:11:05 pm
honestly, I would agree with ALL the words mentioned. Having lived with this for some time, I've gone through stages where any and all of the previous words could have summed up some period of my live with AIDS.

However, I can give you one word not yet used:
Death

this disease brought death to nearly every friend I had in the early 90s
Twice it tried to kill me, but the hospital doctors and newer drugs barely saved my life
However, it did succeed in bringing about the death of not one but two partners

every day that I'm alive (and right now I'm actually healthier and feeling better that I ever have in over a decade), I can't help but notice that my partners are dead; so underneath anything else that I think about it, I am quite sure that AIDS=Death.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: confidentIwillbeOK on September 08, 2009, 11:11:41 pm
*New!

*incurablebutmanageableandchronic

..ok ok I know I cheated on the second one but you have to forgive me due to answer #1....newbies don't know nuttin'  ;)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: the trebmeister on September 08, 2009, 11:28:31 pm
defenestration

banal
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: GSOgymrat on September 08, 2009, 11:36:28 pm
Expensive
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Jeffreyj on September 09, 2009, 12:26:22 am
stigmatized
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: LBpozguy on September 09, 2009, 12:37:13 am
As with Bluemoon, the first word that came to mind was "Degrading"
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: skeebo1969 on September 09, 2009, 07:46:14 am


  Change
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: joemutt on September 09, 2009, 08:03:02 am
challenge
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Texan38 on September 09, 2009, 08:12:39 am
Alone.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: piercedPINOY on September 09, 2009, 09:02:26 am
EWWW!
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: ARMANDO on September 09, 2009, 09:17:54 am
LIMBO
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: denb45 on September 09, 2009, 09:36:10 am
BIO HAZARD..............I hate that, but that's the way I feel, having AIDS
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: pozhope on September 09, 2009, 11:18:12 am
GREAT WORDS!

I'm really interested in Hopeful ONE words or phrases that unify us all in the struggle affected and infected

Thrive
Banded
Strive
Overcome
Upward
Preserver

*please leave 5 of ONE word ideas!


excited to see everyone's responses  ;D



Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Scotian on September 09, 2009, 05:14:33 pm
Gratitude   ( ..not for the HIV --but to live in a country that provides an amazing health care system to keep me healthy --at no cost  ;D
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: denb45 on September 09, 2009, 05:17:17 pm
FITNESS
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: SoSadTooBad on September 09, 2009, 05:52:30 pm
Uncertain.  Because HIV/AIDS throws every single aspect of your life into constant turmoil. 
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: randym431 on September 09, 2009, 05:54:02 pm
Needs to go? Id say the word is
 
education.

Way too many young kids still think they can't get it.
And if they do, its no big deal treating it.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: OneTampa on September 09, 2009, 06:33:48 pm
Legacy

Memories

Many

Love

Cost

Tears

Lost

Laughter

Anger

Help

Shoulder

Amazed

Friends

Family

Future

Still

Here

Years



Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: newt on September 09, 2009, 06:58:50 pm
erm

as to hope...

LISTEN
STATISTICS
WE, THE PEOPLE
STATiSTICS
SPEAK

In that order

Good advocacy depends on understading the science well, and what this means for people

- matt
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Miss Philicia on September 09, 2009, 07:01:37 pm
teh suxorz
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: LTSurviver on September 10, 2009, 03:56:14 pm
Isolated

Stigmatized

Marginalized

Fear

Judged

Forgotten.

Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: BM on September 10, 2009, 04:15:04 pm
Observed.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: onemoretime on September 10, 2009, 09:51:00 pm
foreever
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: mecch on September 11, 2009, 06:26:24 pm
cranky
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Cliff on September 11, 2009, 07:20:47 pm
coping
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 11, 2009, 07:23:25 pm
today: prevention.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Joe K on September 11, 2009, 08:12:03 pm
Devastated forever.

Forever forgotten.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: confidentIwillbeOK on September 11, 2009, 10:44:44 pm
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: dingowarrior on September 11, 2009, 10:49:39 pm
sucks.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: webontheweb on September 11, 2009, 10:51:52 pm
NEXT!
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Joe K on September 11, 2009, 11:19:23 pm
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(

Yes, all the millions who have simply vanished, due to HIV, forever forgotten.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: onemoretime on September 11, 2009, 11:25:12 pm
i think about them all the time
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Dale Parker on September 11, 2009, 11:43:42 pm
I have two words.
I guess the one word that everyone is missing so far is right in front of our eyes.
POSITIVE
the second one is:
LUCKY

I'm positive that:
My blood is bad.
Life is far different today than it was before I found out I was sick.
That I can't beat this but will manage it the best way possible.
Pills will be needed to keep me alive.
HIV/Aids meds will keep improving and make all of our lives better and longer.
That I will have good days and bad days.
At some point I will have more bad days than good.
The number of HIV and Aids cases will grow as kids today don't see it as being a death sentence but a manageable disease much the same as diabetes. Sad but true.

I'm lucky that:
I read the article in the paper (one I would have not normally read) that listed all the symptoms I had leading me to get tested.
I live in a city that has great HIV/Aids testing and medical services.
I got to see an Aids specialist on his day off the day after I was diagnosed.
I have great support groups that are there to look after all my needs when required.
I found this website with great people that have and share a wealth of knowledge. They also give a ton of support to people that they don't even know.
My health is still good where OI's are concerned and overall I feel great.
I got funding for my drugs.
I got subsidized housing in about 7 weeks instead of the normal 7 years.
My family (even my homophobic brother in'law) are 150% behind me.
I truly have the most amazing & generous friends in the world.
The internet is what it is.  All the knowledge that is known about HIV/Aids is available with the click of a mouse. Some of you could be my next door neighbour or could be half way around the world.

Above all I'm positive that I have the will and strength to fight for life.
I'm lucky that I was able to live today the best way possible and that I would have no regrets if my life were to end tonight.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: next2u on September 11, 2009, 11:59:27 pm
resilient (2 times)

1) the bugger won't go away
2) neither will we
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: confidentIwillbeOK on September 12, 2009, 12:37:46 am
Yes, all the millions who have simply vanished, due to HIV, forever forgotten.

...ah...I thought you were talking about yourself.

Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: confidentIwillbeOK on September 15, 2009, 11:49:20 pm
Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:

http://www.wordle.net/show/wrdl/1133956/%22One_Word%22_by_AMF_members (http://www.wordle.net/show/wrdl/1133956/%22One_Word%22_by_AMF_members)

...I will test the link and if it doesn't work will attach a screen-print.

 :)

Steve

note: I pasted all the words into the "wordle" site that generates the image but can't guarantee they all made it into the final product.....I think they did but apologies if the generator dropped "your" word. 
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: sharkdiver on September 16, 2009, 10:56:22 am
my word

a-major-pain-in-the-ass

Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: traveltramp on September 16, 2009, 11:40:50 am
Rejected
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: the trebmeister on September 16, 2009, 12:31:21 pm
ineffable


is effable a word?
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Snowangel on September 16, 2009, 02:25:57 pm
Confident-
The wordle was cool, thanks for creating it!

Snow
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 16, 2009, 07:38:51 pm
Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:


Steve, that was very neat.  Good work :)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: antibody on September 16, 2009, 08:39:14 pm
Forever
Hope
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: ruralguy on September 17, 2009, 05:15:21 pm
permanent
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: ruralguy on September 17, 2009, 05:17:20 pm
wow Steve - the wordle is very cool

thanks
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Miss Philicia on September 17, 2009, 05:21:02 pm
Today the word is "Explosive D" but that's because I've had this every fucking morning for the past 10 days, and just today figured out it was because I had the brilliant idea of using Xylitol (http://en.wikipedia.org/wiki/Xylitol) in place of sugar so that I could peel off 5-8 lbs to appease my sense of vanity.  Unfortunately when I bought this I didn't realize that diarrhea is a common side effect, and I guess combined with Norvir it was triple the effect.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 17, 2009, 09:04:52 pm
Today the word is "Explosive D"

Philly, I figured that at some point someone would have to use "diarrhoea" as the word of the day :)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Buckmark on September 17, 2009, 11:04:15 pm
Indefinite
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: isitthatbad on September 18, 2009, 04:14:26 am
challenging
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: hjeffs on September 18, 2009, 12:25:03 pm
wisdom

shift

conscouise

power

change
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: positively_me on September 18, 2009, 01:17:58 pm
compromised

sucks

unwanted

undesireable

rejected
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: megasept on September 18, 2009, 02:30:57 pm
Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?


misunderstood (reason: stigma, fear, discrimination, recrimination, disrespect)

genes (reason: medical possibilities)

8) -megasept
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Assurbanipal on September 18, 2009, 05:31:13 pm
Consuming

Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: onemoretime on September 18, 2009, 06:46:45 pm
we all got some great words!     they are all so true.   Notice how much HIV still wares on us,  even though it is a treatable condition.   It sure doesn't seem that way the way it effects us all
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 18, 2009, 06:52:09 pm
Today: Indignity
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Miss Philicia on September 18, 2009, 06:55:44 pm
today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 18, 2009, 07:20:50 pm
today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)

Yay! Hope it was great (and I loved the film adaptation of 'The Devil Wears Prada').

Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: tash08 on September 18, 2009, 11:06:42 pm
Unforgiving.

Yet we need to move on, and kick its ass.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: lidriver on September 18, 2009, 11:51:26 pm
pain
struggle
re-evaluation (of life)
heart-ache
headache
sorrow

im sure there are other things.....
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: tash08 on September 19, 2009, 12:46:13 am
ineffable


is effable a word?

effableDefinition from Wiktionary, a free dictionaryJump to: navigation, search
[edit] English[edit] Adjectiveeffable (comparative more effable, superlative most effable)

Positive
effable
  Comparative
more effable
  Superlative
most effable
 

(archaic) able to be spoken of; able to be expressed
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: sensual1973 on September 19, 2009, 09:47:04 am
depriving
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: onemoretime on September 25, 2009, 11:34:01 pm
Mindfuck
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: frenchpat on September 26, 2009, 03:42:50 am
Successful!

because from life's perspective, this virus is incredibly successful at perpetuating its lineage

because that is what my meds are when keeping the virus under control. They are not perfect but if it wasn't for their success I would most probably be dead by now

because it is what we, people living with this virus, all are. By living one more day with this predicament

because it is what human beings will be one day when, like many times before, they will find a way to eliminate the virus from one's body

Pat
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: rioz on September 27, 2009, 04:36:29 pm
Hi all,

My vote is for FOREVER, today. Tomorrow it most likely will be something else.

I would also like to say I keep ALL of my friends, lovers, acquaintances and strangers known to have died of AIDS or any other disease or accident alive in my mind, memories, heart, soul or whatever you would like to perceive "it" as.

Good wishes to all,
Richard
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: mewithu on September 27, 2009, 05:55:07 pm
death
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Rev. Moon on September 27, 2009, 09:13:42 pm
Terror
Disillusionment
Frailty
Consequence
Silence

Providence
Disillusionment
Nothingness
Clarity
Silence
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: david25luvit on September 27, 2009, 09:35:14 pm
NIGHTMARE!
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: minismom on September 30, 2009, 06:40:56 am
Unrelenting
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: PRMike on September 30, 2009, 08:12:47 am
Lonliness...  It has been really hard to find someone to love
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: WildcatCC on October 01, 2009, 03:35:45 pm
Accountable

- I'm accountable for getting the disease
- I'm accountable for managing my disease
- I'm accountable for educating others about my disease
- I'm accountable for informing others (sexually) about my disease
- I'm accountable for my physical and mental well-being
- I'm accountable for not letting the disease define who I am and how it effects me
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: MarcoPoz on October 01, 2009, 03:41:30 pm
For the state of HIV in society:

Obsured

For my personal connection:

Visceral
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: clsoca on October 03, 2009, 02:44:36 pm
intruder
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: dtwpuck on October 04, 2009, 08:15:17 pm
gadzooks
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: mikee on November 28, 2009, 12:06:26 pm
SOBER
(for each morning that i wake up in disbelief and regret)

AWAKENING
(for making me realise that I, together with other  hiv+ and hiv- people alike should be responsible in taking care of our selves)

HUMAN
(that are only ordinary people who commit mistakes of acquiring this disease)

HELP
(to remind us to extend our hands to those who've been diagnosed recently and totally lost in space.)

FAITH
(for believing that in my lifetime and those of the younger generations, the cure to completely eradicate the virus will be discovered and be made available to all infected without personal gains and injustice)
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: sharkdiver on November 28, 2009, 04:20:55 pm
Gassy,
or that could be the turkey
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: bear60 on November 28, 2009, 04:47:47 pm
martini.
..which I need right now
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: TheRoof on November 28, 2009, 10:20:07 pm
Death
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: wow1969 on November 29, 2009, 11:13:52 am
Mindfuck

I was reading the words and the more I read the more I agreed ... then I saw Mindfuck and thought .. PERFECT ... summarizes all the rest of it for me ... HIV tosses everything into turmoil and fucks with your mind ... so my word is MINDFUCK
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Jeff G on November 29, 2009, 11:24:30 am
buttfluparade
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Peacock on November 29, 2009, 02:55:05 pm
''Ooops!''
Just about sums it up for me in one word.
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: max123 on November 29, 2009, 03:03:05 pm
elusive
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: ga1964 on December 01, 2009, 02:05:23 am
Fear

Isolation

Devastation  (both emotional and financially)

Mortality 

Suicide





Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: skeebo1969 on December 01, 2009, 02:31:20 am


   *Appreciation*

   Of those good days....
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: elf on December 01, 2009, 10:52:51 am
abandoned  :'(
Title: Re: what's ONE word that captures the state of HIV/AIDS to you?
Post by: Florida69 on December 01, 2009, 11:50:38 am
Overwhelming