POZ Community Forums
Off Topic Forums => Off Topic Forum => Topic started by: Dan J. on November 29, 2007, 11:02:31 am
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Here in Jackson my ASO is having a short "walk" (just a few blocks) downtown & then they are having their annual "Christmas Party" for the clients. Everything they do is low key. The people that "run the show" don't like to bring too much attention to themselves or the group. they live in fear that the community will backlash at us for being HIV +. What a shame.
Do you have any plans for Dec 1st?
All of the members of this forum will be in my thoughts that day... As you are everyday.
Dan
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I will be riding my bicycle from Golden Gate Park to Sausalito and then to Mill Valley and back with my cycling group "Positive Pedalers". We will all ride wearing red and there will be simultaneous rides all over the country ( NY, Philly, L.A etc....). We will have media coverage and there will be a memorial at Golden Gate's AIDS memorial gardens (the same place we had our memorial at AMG).
I will have a flag on my bike with the names of all the loved ones we have lost to AIDS. If you would like to have a name of someone you want to remember, please let me know I will be honored to add it their names to my flag and to the list of names we will read out loud during the memorial.
You will all be with me in spirit as I ride out Saturday morning.
Rich
(who knows he will need a box of tissues with him that day)
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Well recently I mailed all my family and friends a red ribbon and a bumper sticker that has a red ribbon on it that reads
Aids Awareness
Education
Compassion
Prevention
I've ask them to wear the ribbon to bring awareness and show support for those that are infected /affected by HIV/AIDS and to display the bumper sticker on their car/trucks.
No plans yet, trying to find something to get into that day. So if you know of any Atlanta events let me know;
Thanks
Paulette
I will be riding my bicycle from Golden Gate Park to Sausalito and then to Mill Valley and back with my cycling group "Positive Pedalers". We will all ride wearing red and there will be simultaneous rides all over the country ( NY, Philly, L.A etc....). We will have media coverage and there will be a memorial at Golden Gate's AIDS memorial gardens (the same place we had our memorial at AMG).
I will have a flag on my bike with the names of all the loved ones we have lost to AIDS. If you would like to have a name of someone you want to remember, please let me know I will be honored to add it their names to my flag and to the list of names we will read out loud during the memorial.
You will all be with me in spirit as I ride out Saturday morning.
Rich
(who knows he will need a box of tissues with him that day)
Thanks for taking us along; wishing you the best on your journey.
Paulette
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Talk about coincidence... I'll celebrate my 40th birthday on Dec 1st. ;D
Some friends come around to my place, everybody brings food and booze and eventually, we all get stuffed and, hopefully, happy. Some of them are poz too, and it's been a rule that we don't discuss our illnesses that day. Later on, we'll go out to a charity disco party. Fortunately, it's a Saturday.
As for WAD action, there's a booth of the local AIDS support group in the city center to raise awareness. They collect money, give out flyers and free condoms, and sell red ribbons, mulled wine and the annual edition of the AIDS bear. There's a new bear design every year, and in 2007 it's gonna be the rap bear (see below). As you can imagine, I have already a collection of these bears since I've gotten one as birthday present for quite a few years. :D
(http://img141.imageshack.us/img141/2097/rapbearzo2.jpg)
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I will be spending it how I do every year, crying. I buried my 198th friend three months ago and have lost one friend in each of the past five years. While I admire those who can actively participate in a greater purpose, I just let the tears flow or my heart would surely burst.
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While I admire those who can actively participate in a greater purpose, I just let the tears flow or my heart would surely burst.
I don't see anything "lesser" about your purpose, Joe. Not a damn thing.
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You are right Thunter, I chose the wrong word, because to me there is no greater purpose on AIDS Day than to mourn and honor my friends and loved ones. Thank you for the beautiful sentiment, you really made my day.
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I don't see anything "lesser" about your purpose, Joe. Not a damn thing.
Amen youth pastor Tim!
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I'll be working as usual, but will remember those who walked before me, those who are walking with me now, and those who will walk after me...
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Maybe this just a passing mood on my part, but I don't think so. Sometimes, and this year is one of those times, I get really angry about World AIDS Day. Because it just seems to me as if it's an opportunity for politicians, media and many others to pay some lip service to the epidemic and then go back pretty much to business as usual after the services, the promises, the remembrances.
What I would like is 364 World AIDS Days and 1 day No attention to AIDS DAY.
I didn't promise I would be rational about this.
I don't want to cry right now and I don't want to mourn at this moment.
How are we supposed to take anything seriously that any public official says about AIDS or remembrance when we know that AIDS still carries a huge stigma, one that is baldly reflected in the onerous restrictions on travel into the US by foreigners. I mean, GET REAL! For starters, I'll believe something is changing for the better when those restrictions are lifted without any reservations.
And when ADAP is sufficiently funded to make waiting lists a thing of the past. And there are monies for realistic prevention programs that result in a drop in new infections. Those are what I would call events worthy of a real WORLD AIDS commemoration. And those kinds of actions would be meaningful ways of honoring those we have lost in the epidemic. And continue to lose.
Feel free to ask anyone WHAT ARE YOU DOING ABOUT AIDS THE REST OF THE YEAR is how I see it.
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andy i hear ya, i really do
ok so here's my this year's wad rundown:
wed - article featuring yours truly in regional paper (i have to confess under a fake name because i quite like my house having windows & also it's a disciplinary offense for me to talk to the papers) having a bit of a moan about stigma and the hypocrisy of [negative] people
fri - 'wear red to work day' awareness & fundraising + info & awareness compiled by moi on bbc public info screen in my city
sat - world aids day vigil (which i am on the steering group of) + info & awareness compiled by moi on bbc public info screen in my city + article on US travel ban featuring your very own englishgirl and emma (gemini20) on times online travel section, plus in the morning im gonna turn up to a session my local mp is doing and berate him for ignoring my communications re the travel ban
we've decided one our steering group aims for the next few years is to raise enough for a memorial of some form in our city, so fingers crossed on that one...
now cerrid how do i get my hands on one of those bears?
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Still has no clue about what is happening around here WAD. I will be giving thanks for still being here and to those who go out there on behalf of us. And lighting a candle for those who have passed.
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Tomorrow (friday) I'm doing an interview on the local radio. We talked about postponing it because I'm still a little wobbly after my recent break-up, but we came to a rather interesting compromise.
My argument for postponing was "AIDS isn't just for December first, ya know". Kinda like the "a puppy isn't just for Christmas" thingy. His argument for NOT postponing was "but like it or not, WAD is NOW".
So here's the compromise. I'll do the interview tomorrow and he'll have me back on the show in six months time. I'm gonna hold him to that too.
The interview will start around 11am my time, that's 6am on the East coast, USA. You can listen to it live, or you can listen to it afterwards. Here's the link:
http://www.manxradio.com/listenagain.aspx
The show is called "Talking Heads".
If you want to listen to it live, you can go to the same link and look for the "listen AM" and "listen FM" buttons near the top right-hand side of the page. I'm not entirely sure, but I think you want FM.
Now I've got to get my ass in bed or I'll be talking gobbledegook tomorrow. I've had bad brainfog all day (took me ages to drag the word "compromise" out of my head) and I hope I'm not like that tomorrow too. Otherwise, you'll hear me saying "thingy" and "whatsis" loads of times and I probably won't get asked back next summer.
Ann
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Matty the Damned intends to advance his plans for World DominationTM.
MtD
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We've honestly never celebrated - never knew there was such a thing, actually. We used to have a red ribbon on our car, but thought that the red was taken over by MADD so we took it off. However, I REALLY want one of those bears. If there's a link to buy one, please post it or IM me. But, for this year we already had plans to decorate for Christmas. We'll keep our plans and say a prayer for all of our new friends.
mum
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Going to a World Aids Day BBQ at the local Positive Living Centre here in Adelaide, South Australia.. taking the negative partner, and HOPEFULLY his two kids :-D
J
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Oooh, an AIDS picnic in Veale Gardens. How appropriate. :)
MtD
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I'm going to a friends house and having a potluck dinner with several pos buddies.
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Like Joe, I cry a lot on Dec 1st. It's a tough one for me. We've lost so many and every day, more and more people become positive.
I think this is a good opportunity for me to post the prayer that Jan and I handed out on our memorial cards at AMG 06 in Montreal:
Dear Father/Mother God,
Behold, visit and relieve
all persons with HIV/AIDS; give the power
of healing to those who remember and
care for them and to those who seek a cure;
strengthen the weak,
encourage those who fear,
and comfort those who mourn,
that our sickness may be turned into health
and our sorrow into joy.
Use us as ambassadors of hope and healing,
and assist us daily as we walk
faithful in our calling.
Unite us in love, and let us
always remain connected to the power of....
THE CIRCLE OF LIGHT
and so it is......
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Oooh, an AIDS picnic in Veale Gardens. How appropriate. :)
MtD
Nah, thats where they held the picnic in the park this year (cough) allegedly it was well attended!
J
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Matty the Damned has fond memories of being held in Veale Gardens.
Boom-Tish!
MtD
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Matty the Damned has fond memories of being held in Veale Gardens.
Boom-Tish!
MtD
Never went to veale, much prefer to go to 431.. unlimited hot showers! (I finished harry potter and the order of the phoenix there.. sad eh?)
J
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I dunno, there's just something about the smell of trough lollies and wet earth that only a public beat can bring to an amorous encounter.
:)
MtD
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Matty the Damned intends to advance his plans for World DominationTM.
MtD
Scary, but I'm wearing my World Domination t-shirt today.
For World Aids Day, I intend on hanging around the park across the road from about 9pm onwards to see if I can't catch me some stray meat leaving the Summer Gay Day Out, or whatever it is called. How sad (or exciting) is that.
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Exciting! And congratulations on breaking the 1000+ post count. ;)
MtD
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I'm ashamed to say I forgot it was Worlds Aids day Dec 1st. Now that I know I will donate some money to an Aids charity. I will also remember to give thanks for all those people who have died before me that went through so many medical trials to make it possible for me to have HIV medications that work for me now.
Thanks for posting this.
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Here in Sonoma County we have an annual event called "Dining Out for Life" There is usually about 40-50 restaurants which donate about 10% of the dinner and drink checks to Food for Thought, Sonoma Counties AIDS Food Bank.
Over the weekend (Saturday and Sunday) there will be a presentation of the AIDS Quilt Project at the Guerneville Veterans Hall followed by cocktails at Rainbow Cattle Company in Guerneville.
I ran into my friend Ginger in the clinic waiting room the other day. Ginger founded an HIV Support for Heterosexual people living with HIV. She spoke of a presentation at Sonoma State University by her group with the founder of the Quilt Project as keynote speaker.
Somewhere in one of my pockets is a list of events but can not find at the moment. I plan on having dinner at one of the restaurants sponsoring Dining Out for Life, seeing the Quilt and having a drink. Have the best day
Michael
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I'm going to sell a quarter pound of hash to a friend from Vancouver sometime in the early afternoon then meet up with some friends for dinner and drinks before heading to the Tool concert where I have floor seats.
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saturdays is multi-lingual Scrabble day round mine. might wear my new scarf to the park, for a bit of cloud spotting & thinking too.
other than that, i will be living with aids. same as every other day.
increasingly, that feels enough.
kate
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I think I will get drunk, but I will wear red while doing it.
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I am sad to discover that Charlotte has no official event on Dec 1.
They are doing a one hour ceremony at 4:00 p.m. today which angers me somewhat. That they would do it on the day before World Aids Day and at a time when most people will still be in work is very telling of how much HIV and AIDS is still being hidden in my new home.
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I know what you mean Iggy...
Birmingham AIDS Outreach held their W.A.D. event yesterday (Nov 29th)...
It's a different day and age....as Andy stated above, just another "photo op" for officials, etc.
I remember one especially moving W.A.D. event back in the early 90's in Atlanta...I think it had something to do with "a day without Art" (not sure on that) but they had this huge projector and were projecting images of PWA's and their lives on the outside of the High Museum. I remember standing out in the cold, crying and looking at those images on that stark white buildling. This was pre-protease days, and AIDS was definitely still a death sentence.
On Dec. 1st, I will be remembering all those we have lost, and the loss of many of my good friends, including James and Christine from AIDSmeds.
Alan
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
Rich,
That is absolutely fantastic! I love what you wrote in the email and I hope you have nothing but positive, supportive reactions. Good luck - and let us know how it goes.
Good luck with the bike ride tomorrow as well. I hope the weather is just perfect for you.
Hugs,
Ann
xxx
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I put my thoughts and reflections in my blog this month about World Aids Day....
www.peakoutofthebox.blogspot.com
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Git up. Walk Three miles. Hit golf balls for a few hours. watch football. Sleep.Walk Three miles. Eat dinner. Go to bed.
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I'm going to sell a quarter pound of hash to a friend from Vancouver sometime in the early afternoon [...]
What a clever thing to write in a forum that's public and cached by Google and every other major search engine. Shall I send the subpoena from the feds to your home or work address?
Tim Horn
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
Rich, wow! You are quite an inspiration, my friend!
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What a clever thing to write in a forum that's public and cached by Google and every other major search engine. Shall I send the subpoena from the feds to your home or work address?
If you'd like. I live in British Columbia. The police really don't care. With the serious drug problems we have here (crack, heroin and meth) marijuana is the least of their problems. You can smoke it openly on the streets and no one will say anything. Also since it isn't going to be broken up into smaller quantities, I couldn't be busted for trafficking. I love lax Canadian pot law. Technically illegal, just like jaywalking...
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
Just adding another voice of support (and gratitude) to Rich for what he has done.
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If you'd like. I live in British Columbia. The police really don't care. With the serious drug problems we have here (crack, heroin and meth) marijuana is the least of their problems. You can smoke it openly on the streets and no one will say anything. Also since it isn't going to be broken up into smaller quantities, I couldn't be busted for trafficking. I love lax Canadian pot law. Technically illegal, just like jaywalking...
Either as an error or upallnight you just don't have much to offer. Good luck in your future aids decisions.
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Either as an error or upallnight you just don't have much to offer. Good luck in your future aids decisions.
Wow! Another jab in internetland. Perhaps my days would be better spent googling the world wide web for news stories on hypocritical republican indiscretions, or creating fake accounts on dating sites to manipulate others into providing me with information that I'd otherwise never have? Those would certainly be great offerings!
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
rich youre the greatest, bravest, most totally fab person.
i hope your day has been everything you hoped and nothing you feared. if your colleagues have half as much respect for you as we all do here then you'll be their hero.
in total respect (and hoping to follow in your footsteps one day)
THANK YOU
tons of love
xxxx
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Well done Rich!
:-*
MtD
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So very proud of you Rich..and I love the E-mail you sent to your co-workers.
Have a great day.
(((hugs)))
Jan :-*
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Rich! So Brave...so bold. You Go!
:-*
Mike M
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I JUST CAME OUT AT WORK
I'm still not sure how people will react but honestly I don't care! All I care is that they (my co workers) can't say they don't know anyone who has HIV...and that hopefully it will inspire at least one person to join me in the fight against HIV/AIDS.
So how did I do it...
I am wearing red and a T-SHIRT that reads CHANGE THE COURSE OF THE EPIDEMIC. I made red ribbons for the entire office and pinned it on everyone at work. Than I sent a blast email about my bike ride tomorrow morning and the letter begins with " Do you know anyone who has been affected by HIV/AIDS? The answer is YES YOU DO...YOU KNOW ME!!!! "...
Rich
(who is an emotional wreck right now)
Hey Rich!
You deserve a drum roll for your actions. OOPS, the percussion department is on strike today... ;D Would you settle for some Republican Congress toe tapping? Rat a Tat Tat, Rat a at Tat Tat, Rat a Tat Tat ;D ;D ;D ;D ;D ;D ;D ;D ;D Have the best day
Michael
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Tomorrow (friday) I'm doing an interview on the local radio. We talked about postponing it because I'm still a little wobbly after my recent break-up, but we came to a rather interesting compromise.
My argument for postponing was "AIDS isn't just for December first, ya know". Kinda like the "a puppy isn't just for Christmas" thingy. His argument for NOT postponing was "but like it or not, WAD is NOW".
So here's the compromise. I'll do the interview tomorrow and he'll have me back on the show in six months time. I'm gonna hold him to that too.
The interview will start around 11am my time, that's 6am on the East coast, USA. You can listen to it live, or you can listen to it afterwards. Here's the link:
http://www.manxradio.com/listenagain.aspx
The show is called "Talking Heads".
If you want to listen to it live, you can go to the same link and look for the "listen AM" and "listen FM" buttons near the top right-hand side of the page. I'm not entirely sure, but I think you want FM.
Now I've got to get my ass in bed or I'll be talking gobbledegook tomorrow. I've had bad brainfog all day (took me ages to drag the word "compromise" out of my head) and I hope I'm not like that tomorrow too. Otherwise, you'll hear me saying "thingy" and "whatsis" loads of times and I probably won't get asked back next summer.
Ann
i just listened to all 24 minutes of Ann's radio interview on Manx Radio. She was great. It's well worth a listen.
Just go to http://www.manxradio.com/listenagain.aspx, then click the "Talking Heads 1" link under "Friday Shows".
Brava, Ann!
Peter
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I listened to the link proved in the other thread and agree that I am truly proud to have Ann be a public face for us.
I'm going to also add my awe at someone else here (please hold back the chokes of lovely dovey couple stuff :D) but I have to admit that Jeromy truly impressed me greatly on the day...and sort of gave a clear proof to something that was brought up in Ann's interview about being poz and people not even knowing it because they can't visually tell.
What Jeromy did was wear a shirt that said "We all have AIDS" and then went about his business as if it was just another day. Not counting previous discussions about the merit of that particular phrase for HIV and AIDS awareness, what impressed me the most was the symbolism of it all as I just mentioned.
He let the world around us make their own thoughts and decisions of whether he was poz or not (though he would have very easily stated so if asked as he has in the past) and let their own internal or external discussions begin as we shopped in Target for Christmas decorations or a furniture store for a lamp.
A number of people did notice and stopped and stared, and I think it was great for people to realize that someone next to them shopping or going to a movie or just quarreling with their partner (my fault, I admit ;) ) may be positive, and outside of that are not so strange or scary, and in some ways quite the same with their concerns and daily life (per se) that the non-infected have.
We only had one sort of bad encounter...though it really wasn't bad in the end result. We were going to a local store for EVEN MORE DOOR DECORATIONS (sorry...the quarrel of that day seeped through) and we passed this couple. The guy saw Jeromy's shirt and laughed and said "He shirt says we all have AIDS" and without missing a beat, the woman just looked at him and with a certain tone to be relished said "It is WORLD AIDS day."
Based on that expereince, I do have hope that maybe people do get the point.
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Ann, you did a great job on the interview. I'm proud of you.
Rodney
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Iggy -- what a great story! Jeromy certainly has balls. Yes, we've all seen his balls, but you know what I mean. I loved what he did -- reminds of the ACT UP days when our various t-shirts were always a little risky and bold, especially the "Read My Lips" and "AIDSgate" t-shirts.
Peter
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Those were a little risky, back then. Hell they'd be risky now.
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I did nothing apart from light a candle and send a prayer out to all those I've lost to HIV/AIDS on 1st December itself.
BUT in the run up ie. the previous week I did a total of 8 talks in six different schools in 4 days. I estimate I spoke to between 700-800 young people (15-18 year olds) last week about safer sex, HIV and AIDS and gave them some insight into the realities of living day to day with HIV. Hopefully my talk has broken down some of the stereotypes and myths that some teenagers still carry with them today when it comes to this disease.
By the end of the year I will have given a total of 94 of my talks in 75 different schools across the UK - so at least I know that many people are thinking about this issue across the year rather than just on World AIDS Day.
And here's just a couple of recent quotes from students who have listened to me at their schools to give you some idea of the impact hearing an HIV positive speaker can have:
"Thank you so much for the inspirational talk which you gave last week at my school. I heard nothing but positive feedback from everyone else. I think the way you are educating and inspiring others is very admirable. Thank you ever so much. I can't say how educating it was to listen to you and would like to thank you as i was particularly ignorant and stereotypical about my view of aids and those who contracted it, however, i realise how wrong i was."
"I just think it was amazingly brave of you to come and talk to us all about it, and also tell us so much personal stuff about yourself. To be honest, i walked into that talk thinking i would know it all, because my father is a doctor and we've always been open in our family about these sort of things and also we've done all the stuff in class, but i was amazed about how much I didn't know."
It's always so satisfying to get feedback from students and always a good source of encouragement whenever I have my 'off-days'.
Emma
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I went to the World Aids Day "Celebration" in Bangkok.
It was organised by the Thai Red Cross under the protection of Princess Somsawali,
wife of the Crown Prince. First all donors to the aids projects of the red Cross here received a small golden token of recognition, very funny , you had to bow, walk three steps, kneel, stretch out your hand and the
royal hand deposited the amulet in your hand. By this time I was crying, because I never had been with so many HIV collaegues in one place (over a hundred).
then the Princess, who is a formidable woman and who has been in charge of esp. mother to child infection for a decade held an open mike, all the people with aids and hiv pased the mike and asked her help or made comments.
And then to good Thai tradition and there was a show with the most-known Thai singers and actors, a buddhist monk who is also big in aids prevention did a stand-up comic routine.
And then we all lit a candle from the light of a huge candle, sang the royal anthem and that was that.
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Emma,
I want you to know that you've been an inspiration to me for years now, ever since I saw you in that BBC documentary, long before I knew you here. Your courage and efforts have helped to give me the courage to make my own efforts (yes, all your fault! ;) ) and I cannot thank you enough.
Hugs,
Ann
xxx