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Author Topic: "HOPE DIES LAST"  (Read 34452 times)

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Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #100 on: January 24, 2022, 10:09:39 am »



           ojo.              Hi crusbarcelona for replying…well, I’m still here after 27 years of living with AIDS (five years, and hiv 22 years. Now, after taking so many medications, I’m having problems with bone density, I had my first broken foot bone, it’s healing now, but, it’s one more pain to deal with Jessie my neuropathy and Bo be eye’s pains, I guess I will reset my brain’s pain control system, hehe, because I don’t take pain’s meds, at least until the pain is unbearable, especially, my eye’s pain, it’s awfull, I’m still debating whether n getting rid of my blind eye. It’s so difficult for me to decide get mutilated, anyway, time will tell…thanks all for reading my story, I hope, it makes some of the newly diagnosed members, realize how lucky they are, after getting the awful dx, that they won’t go through what some of us, LTS, are going through now…just take your “vitamins” everyday, and try, no, TAKE BACK CONTROL OF YOUR LIFE, that your “vitamin me” will take care of the virus and also think that, in some parts of the world, they don’t have the life saving treatments we have…good luck. There is a great life, after and hiv diagnosis, just be positive now that you are positive…hugs

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #101 on: January 24, 2022, 10:22:40 am »




        ojo.      I hope you guys, can understand, my previous post, being legally blind and using dictation on my cellphone, sometimes, my cellphone decides what to type…sorry

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #102 on: April 05, 2022, 08:12:18 am »



             ojo.          Hello again!!…well one more visit with Dracula some more results. VL=490, hopefully a blip. CD4=798, CD4%=38. Liver, kidneys, etc, normal…I never thought I would see these numbers, even my ID doctor is amazed with these numbers too bad they came to my life too late but, I’m still here…well, let’s wait and see my next visit te the vampire (in six months) to check my VL hopefully it will be UD again…let’s keep living a normal life with our buddy hiv…hugs

Offline BubbaPat

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  • Bubba hugs!
Re: "HOPE DIES LAST"
« Reply #103 on: April 13, 2022, 01:39:16 am »
BUBBA HUGS my sunshine!!!
I am glad you are still here.  You don't realize that you make me smile and have hope!

Big HUGE Bubba Hugs from Texas!
Thank you of being you and your fantastic self!

Patrick
Bubba hugs!

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #104 on: April 13, 2022, 09:54:34 pm »





          ojo.         Aww!!, my dear friend bubba, you made my day when I read your reply in the morning, thanks for being such a great friend. I really appreciate your kind words and you can count on me if you need someone to talk to, my can even give you my cell phone number so, whenever you feel down we could talk on the phone. That’s what friends are for… I am sending you my I don’t know appreciation and positive vibes. Sunshine


Offline juliofromid

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  • Being kind, over being right.
Re: "HOPE DIES LAST"
« Reply #105 on: April 19, 2022, 04:41:11 pm »
Reading this thread made me smile and it gives me so much hope. Thank you so much for making my day! Hope we all can go through this just like you!
Julio

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #106 on: April 19, 2022, 11:46:34 pm »




          ojo.          Hi Julio, thanks for reading my thread and I appreciate your reply…I’m glad that my story gives you hope and makes you smile, reading your reply also made my day. Since I found these forums, I knew I needed to share my story because I was suppose to die two more years after my AIDS dx and, even though I lived with aids for five more years after my dx, I can’t, still, believe I’m here, that’s why I chose the name of the thread, if there was hope for me, there is hope for all of us, especially nowadys, miracle drugs, it takes just one pill a day, discipline in taking your med and a good attitude, you are back in control of your life…I will read your story and, if you need a shoulder to lean on once in a while, I have two, shoulders. Comprende?…good luck and, remember that, la esperanza muere al último…hugs

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #107 on: July 13, 2022, 08:58:31 am »



          ojo.           Hello everyone…well, if you have been reading my thread, las VL came back as 490 copies, I thought it was a blip my ID doc said, lab error, so he told me to repite the test in two to sec weeks, which a did it after two weeks. The results came back UD again, happy to see that because I have a history of resistance and I thought that, after 15 years on the same treatment, it might have gotten resistance too, but it’s still kicking hiv butt.

Well, I also commented that I have another fight to face during these 28 years of fighting hiv/aids. This new battle is due to low bone density, brittle  bones, being at risk of getting a broken bone  easily. Next month I will see a bone specialist, I will let you guys and gals know what treatment I will have to start, more meds for my poor liver and body, but we have to do what we have to do, remember, if you have read my story, as long as my mom doesn’t quit, she just turned 88 years old and was accompanying me yesterday, to see my cornea’s specialist, another battle I’m facing for the last 12 years, I’m not quitting, I’m tho, sometimes it’s so difficult, I live with pain 24/7 due to neuropathy’s pain, blindness nd eye pain, I haven’t gotten rid of it, plus everyday problems, but, it is what it is…hope dies last and who said that life was easy…I just met a 61 y/o man, hiv negative, whom takes 35 pills a day (heat transplant, diabitis, etc), I just take 11 pills a day, eight for hiv and three for my little heart. I share this because I read some new members who say, “I have to take a pill for the rest of my life”, not just us, hiv positive people take meds for life. Just think that you are taking a vitamin a day that will make you feel well and more importantly, it will keep you alive, if you are one of the lucky ones taking one pill a day, and maybe, gaining time for a cure, although, I think that taking a pill a day, it’s a “cure”, you can even have babies while on treatment, without worrying of passing the virus on to your aexual partner…sorry for the long post. Could you imagine how much longer my posts were if I could see and speak English 100%…hugs

Offline SFlSurvive

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Re: "HOPE DIES LAST"
« Reply #108 on: July 13, 2022, 03:44:41 pm »
I am glad the treatment is still working for you Tonny! You have helped me so much along the way and I really appreciate it!  :)
God got me through!

Offline leatherman

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Re: "HOPE DIES LAST"
« Reply #109 on: July 13, 2022, 07:40:48 pm »
The results came back UD again, happy to see that because I have a history of resistance and I thought that, after 15 years on the same treatment, it might have gotten resistance too, but it’s still kicking hiv butt.
Great on the numbers!
Sometimes, less now than 5 yrs ago or so, I worry about "the other shoe dropping". But then it doesn't, and that's kinda freaky. But, YEA!, I'm been UD for a long time so I'll just keep thinking about that silver lining

I just met a 61 y/o man, hiv negative, whom takes 35 pills a day (heat transplant, diabitis, etc), I just take 11 pills a day, eight for hiv and three for my little heart. I share this because I read some new members who say, “I have to take a pill for the rest of my life”, not just us, hiv positive people take meds for life.
all these peeps worrying about pills. LOL I was 29 yrs old taking 28+ pills and 4 tablespoons of liquid meds a day. And thank goodness! Those meds kept me from dying. Now I'm 60 and take 2 hiv meds and 2 other pills.

Could you imagine how much longer my posts were if I could see and speak English 100%…hugs
ROFL
then your posts would look like mine! But who cares? LOL We have a lot to say and are more fun to read than those people with one line posts! screw that TL;DR nonsense and type away. LOL
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

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Re: "HOPE DIES LAST"
« Reply #110 on: July 13, 2022, 08:45:19 pm »



          ojo.         @SFIsurvive, thanks for replying and I’m glad to read that I’ve been helping you reading my story…when I lost my first friend to aids, a fellow member of the Spanish forum, before his passing, when he told me he had non Hodgkin lymphoma, I told him that I was going to quit these forums because, I thought it wasn’t fair that he (TONNY), had that cancer after just one year after his AIDS dx while I had so many years since my AIDS dx and I wasn’t suffering something as lethal as his cancer, I still remember him telling me to don’t do it, he said, “you have not idea how much you have helped me and others by sharping your experiences”, so, since then, after his passing, I changed my profil name to “TONNY”, to honor him. I never asked him why TONNY with two “Ns”…now, reading your reply, I guess TONNY was right and it makes me happy knowing that by sharing my story I’m helping others. Thanks for your kind words, you made my day…hugs


@leatherman, I have told you before that your story is almost like mine, I even will turn 60 years old next month, tho, I was 32 y/o when I got my AIDS dx.

Thanks for replying to my post and you are right, I also used to take 20 pills a day in the 90s, and that nasty liquid norvir, it was so bad that I got empty capsules (from Mexico) and I filled them with that “poison” norvir…right now I’m still taking a lot of pills, eight a day plus theee more for my heart, due to etraverine.

But it’s he way, weren’t you having issues with resistance too?, and now you take just two pills?, I will talk to you my doc about the chance to switch meds, although, I know, if it isn’t broken why fixing it, or something like that, hehehe…again, thx for replying…hugs

Offline Tonny2

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  • Posts: 2,576
Re: "HOPE DIES LAST"
« Reply #111 on: August 13, 2022, 01:15:37 am »





          ojo.           Hi all!!…today I found out I have osteoporosis, one more battle that fight the n these 28 years of war against hiv/aids, and my I’m going to fight it…treatment, one injection under the skin every night for 24 months, yes!, two years, and I will take calcium citrate and vitamin D, hopefully I will reverse this condition before I break a hip or some other bone…it’s a pain in the butt living with hiv/aids, isn’t it?, but, it is what it is and I will continue to fight whatever comes my way…when there’s life, there’s hope!!…hugs and be strong

 


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