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Main Forums => Living With HIV => Topic started by: RapidRod on September 08, 2006, 05:18:41 pm

Title: My Labs <suck>
Post by: RapidRod on September 08, 2006, 05:18:41 pm
Received a call from my ID Dr. today. CD4 dropped from 207-92 9% VL undetectable. Histo level went from 8 - 52. She increased my Histo medication 100 mg more x2 so that's 600 mg vs. 400 mg a day. She's trying to get some new medication that is on Trial that isn't FDA approved yet, to see if that will work and if not it's back to the IVs again. We'll know in November. All my other levels were good. So more or less it sucked. It's back to the drawing board.
Title: Re: My Labs <suck>
Post by: appleboy on September 08, 2006, 05:37:11 pm
your undetectable VL wise but your CD4 went from 207 down to 97?
Title: Re: My Labs <suck>
Post by: jack on September 08, 2006, 05:39:30 pm
have you tried prezista yet? just approved. First time I have ever been undectectable for more than a month.
Title: Re: My Labs <suck>
Post by: Matty the Damned on September 08, 2006, 06:31:10 pm
Hey Roddles,

It must be all those deadshit WW's we deal with. My numbers suck too. Here's a

-huggles-

coz I don't got anything better than that. :-*

MtD
Title: Re: My Labs <suck>
Post by: Alain on September 08, 2006, 06:41:07 pm
.
Title: Re: My Labs <suck>
Post by: Nadine on September 08, 2006, 07:35:58 pm
Rodney,

They caught it this time before it got way out of control. I am confident they will get your histo levels back down and with that, your CD4's will go up...just hang in there!

(((BIG HUGS)))

p.s. less than 2 weeks now and I'll be giving you those hugs in person!  ;D
Title: Re: My Labs <suck>
Post by: cubbybear on September 08, 2006, 08:17:02 pm
Hey Rod,

We'll get those numbers up soon I'm sure, but as one of many forum nurses, I'd recommend taking matty's advice and staying away from the WWs.. just looking at the fears forum makes my CD4's plummet!

Hang in there buddy.
Woofs
Matt
Title: Re: My Labs <suck>
Post by: AlanBama on September 08, 2006, 09:20:15 pm
Rodney, hang in there honey.   It's gotta get better!   Sending love, hugs and positive energy your way....

Alan   :-*
Title: Re: My Labs <suck>
Post by: J.R.E. on September 09, 2006, 12:00:47 am
Hello Rodney,

Just want you to know that I am thinking of ya, and sending good thoughts your way.


    ((((HUGS ))))
Title: Re: My Labs <suck>
Post by: RobT on September 09, 2006, 12:14:56 am
Rodney-
Odd hearing that ur CD4's dropped that quickly. That is something I never understood...the movement of CD4s. I am sure urs will improve. Mb it was a blip or u were sick that day, who knows. I am confident ur CD4s will improve though.

RobT

9/27/2005-1st test results
Viral Load >1,000,000
CD4 204
CD4%age 18
CD4/CD8 ratio .23
11/24/2005- Sustiva/Truvada
04/18/2006
Viral Load 140
CD4 402
CD4%age .21
CD4/CD8 ratio .39
06/27/2006
Viral Load 42
CD4 409
CD4%age .21
08/01/2006
Viral load- undetectable
CD4 493
CD4%age .33

Next appt. 09/22/2006
Title: Re: My Labs <suck>
Post by: Jena on September 09, 2006, 07:12:04 am
I'm sorry about your not so wonderful numbers Rod. Hang in there, you have great docs.
Hugs
Jena
Title: Re: My Labs <suck>
Post by: Ann on September 09, 2006, 09:30:36 am
Hey Roddles,

It must be all those deadshit WW's we deal with. My numbers suck too. Here's a

-huggles-

coz I don't got anything better than that. :-*

MtD

Feck. Maybe Matty's on to something there, because my CD4s went south too, percentage-wise as well. VL up as well, but it's one of those log whatchamacallits where it's not as bad a hike as it looks to a mathmatically challenged person like me.

Hang in there buddy, got everything crossed for you.

Big hugs and a  :-* for good measure

Ann
xxx
Title: Re: My Labs <suck>
Post by: Andy Velez on September 09, 2006, 11:40:05 am
My immediate thought Rod is that you should make sure you do something you really enjoy today. It can be quite simple. Doesn't have to be any big hoopla. It's a great rx for the immune system.

While I do appreciate how discouraging this drop can be the numbers are only a part of the story. And as you know from experience and from reading these pages they very often bounce back up.

I'm also glad you're having it all carefully monitored.

In the meantime, and I know this takes discipline, just enjoy each day and let the friggin' future and its numbers take care of themselves.

Big hug en route to you,
Title: Re: My Labs <suck>
Post by: Lis on September 09, 2006, 04:50:44 pm
hang in there man... I'm with the big chief Andy.... find yourself today... i learned awhile ago to stop letting what others told me to make my life... try the meds.. wait and see, do the prophylactics that are needs with a low CD4 and live your life... Ive been on prophylactics for 3 years... WE CAN DO THIS!!!!!!!

lisbeth
Title: Re: My Labs <suck>
Post by: RAB on September 09, 2006, 08:14:19 pm
Rodney

Well poop!

The VL news is certainly good that's no question.

But the Histo shit is indeed a troubling turn.  Keep us posted on what your doctor can do with the possibility of the new medicine you mentioned.

(((((HUGE HUG!)))))

RAB

Title: Re: My Labs <suck>
Post by: Eldon on September 10, 2006, 01:25:37 am
Hello RapidRod,


Hang in there man and have the BEST Day!
Title: Re: My Labs <suck>
Post by: sweetasmeli on September 10, 2006, 04:30:21 am
Awww, crap! Hang in there Rod!

Thinking of you and sending you a cyberhug.

(((Rapidrod)))

Melia :)
Title: Re: My Labs <suck>
Post by: cmhjeff on September 10, 2006, 09:11:18 am
Hey Rodney, I'm not familiar with histo so you'll have to tell me about it sometime. Sure hope your docs can get a handle on that right away! The VL is great! CD setbacks do SUCK and I hope they rebound quickly!!

Hang in there - Be Strong!

Big Ohio Buckeye Hug

Jeff
Title: Re: My Labs <suck>
Post by: aztecan on September 10, 2006, 09:31:42 am
Hey Rod,

Sorry the CD4s took a dive on you. I am sending positive energy your way.

HUGS,

Mark