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Main Forums => Living With HIV => Topic started by: phildinftlaudy on January 10, 2013, 04:32:24 pm

Title: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 04:32:24 pm
Just released from UM hospital.... Was kept overnight with pericarditis (inflammation around the sac-like covering surrounding the heart)..... Have to take high doses of NSAIDS for next three weeks.... Follow up with doctor next week - and hope that it clears up.... Otherwise, will have to get more aggressive treatment. UGGGHHH!!!! Always something - but, I am glad to be home and grateful for the excellant care I received at University of Miami Hospital.

Docs believe the culprit was the flu I had mid-December. I was having continuous chest pains that started worsening on Monday. By Tuesday it was hurting to sit up, lay down, walk, and breath (which is difficult to try not to do). So, yesterday when I saw ENT for follow up on throat issues, she listened to heart and after hearing symptoms advised me to go across the street to ER at UM.

I went to ER and was promptly admitted. After many tests, poking and prodding the diagnosis was made. I am on heavy doses of NSAIDS for next three weeks. Follow up with doc next week. If it worsens, next step would be to put my on high doses of steroids - and if problems continue I would be readmitted to have fluid drained from the sac area......

In the meantime, we are closely monitoring it.... with strict orders to immediately go to ER if it worsens of if I start having severe stabbing pain, etc - as this likely be cardiac arrest (worst case scenario).....

So, 2013 doesn't seem to be starting off any better healthwise than 2012 ended. 

Other irritating part if this can last a few weeks up to a few months - I am hoping that it clears quickly.

The doc was happy that she had a good case of pericaditis for the 20 medical students/residents who came to my room to have a chance to see.   ;D   Always happy to do my part to help the future generation of docs.
Title: Re: Just released from hospital - Pericarditis
Post by: NY2011 on January 10, 2013, 04:35:43 pm
wishing you all the best, man. 
Title: Re: Just released from hospital - Pericarditis
Post by: buginme2 on January 10, 2013, 04:58:20 pm
Dayummm, I hope you feel better.  Take it easy for awhile.  Rest up.  Get caught up on your Netflix. 
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 05:03:19 pm
Thanks NYC and bug -
I plan on getting some rest....   ;)
Have school work to do and will do some work from home tomorrow - but other than that, I will be resting.

Title: Re: Just released from hospital - Pericarditis
Post by: Miss Philicia on January 10, 2013, 05:25:44 pm
You sure are in the hospital a lot, Phil. Have you been checked for AIDS?
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 05:32:30 pm
You sure are in the hospital a lot, Phil. Have you been checked for AIDS?

Dayummm, I didn't think of that - do you think I should post my symptoms in the AM I section?

And I only have been admitted to 3 of Broward and Miami-Dade Counties many hospitals (Memorial-Pembroke, Aventura, and UM).... Haven't been to Jackson (although I worked there for a bit), Broward General, Holy Cross, Mercy, Mount Sinai, Plantation General, or a host of others.

I really didn't want to go this time. Prior to leaving the ENT I called my mother and told her that I wasn't about to go to the ER. Of course, mom scared me with talk of cardiac arrest (running in the family), etc - so, I went ahead and went - but I really have gotten to the point where I do not want to have to be back in the hospital again for quite some time. I had a good stretch where I wasn't admitted from 2001 until 2012 - so that isn't too bad.

Seems that my health issues have increased since I have taken on a bit more of worry regarding my mom... so, I am going to have to address that, as I can't endlessly worry about her at the detriment of my own health.

Please advise as to the symptoms of teh AIDS....
Thank you  ::)
Title: Re: Just released from hospital - Pericarditis
Post by: Dachshund on January 10, 2013, 05:46:48 pm
Dayummm, I didn't think of that - do you think I should post my symptoms in the AM I section?

And I only have been admitted to 3 of Broward and Miami-Dade Counties many hospitals (Memorial-Pembroke, Aventura, and UM).... Haven't been to Jackson (although I worked there for a bit), Broward General, Holy Cross, Mercy, Mount Sinai, Plantation General, or a host of others.

I really didn't want to go this time. Prior to leaving the ENT I called my mother and told her that I wasn't about to go to the ER. Of course, mom scared me with talk of cardiac arrest (running in the family), etc - so, I went ahead and went - but I really have gotten to the point where I do not want to have to be back in the hospital again for quite some time. I had a good stretch where I wasn't admitted from 2001 until 2012 - so that isn't too bad.

Seems that my health issues have increased since I have taken on a bit more of worry regarding my mom... so, I am going to have to address that, as I can't endlessly worry about her at the detriment of my own health.

Please advise as to the symptoms of teh AIDS....
Thank you  ::)

Did you ever date Rock Hudson?
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 05:52:08 pm
Did you ever date Rock Hudson?

Shhhh -
No one is supposed to know - non-disclosure agreement and all (or, when I'm feeling especially horny, I prefer to call it a "gag" order)....

I also dated Freddie Mercury (well, that was more of a one-night stand and happened during a dream).

Are either of these two above events risky for teh AIDS?

Oh, and there was also Easy-E.... uumm ummm, the stories I could tell.
Title: Re: Just released from hospital - Pericarditis
Post by: Mrmojorisin on January 10, 2013, 05:53:14 pm
Dayummm, I didn't think of that - do you think I should post my symptoms in the AM I section?

Please advise as to the symptoms of teh AIDS....
Thank you  ::)

 They symptoms of AIDS are dry mouth, wet mouth, high fever, low fever, itchy ass, sneezing, coughing, stuffy head, dizzyness, sleepyness, constipation, diarrhea, vomiting, dry heaves. If you have any of those symptoms you have the AIDS. It is highly advisable that you do not touch anybody or anything, as it is so highly contagious that even walking by you house is dangerous... :P
Title: Re: Just released from hospital - Pericarditis
Post by: Dachshund on January 10, 2013, 05:57:30 pm
Shhhh -
No one is supposed to know - non-disclosure agreement and all (or, when I'm feeling especially horny, I prefer to call it a "gag" order)....

I also dated Freddie Mercury (well, that was more of a one-night stand and happened during a dream).

Are either of these two above events risky for teh AIDS?

Oh, and there was also Easy-E.... uumm ummm, the stories I could tell.

For God's sake please tell me you haven't been gay anal dipping?
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 05:58:40 pm
They symptoms of AIDS are dry mouth, wet mouth, high fever, low fever, itchy ass, sneezing, coughing, stuffy head, dizzyness, sleepyness, constipation, diarrhea, vomiting, dry heaves. If you have any of those symptoms you have the AIDS. It is highly advisable that you do not touch anybody or anything, as it is so highly contagious that even walking by you house is dangerous... :P

Dry mouth - check
Wet mouth - check (although, that comes in handy)
High Fever - check
Low Fever - check
Itchy ass - check (I thought that meant I was in heat)
Sneezing - check (more pronounced when I snort pepper)
Check on all other symptoms...
Dayummmm, I may have teh AIDS - I may have to up my dose of Atripla (which I currently take for purely recreational reasons).

Oh, question - can someone catch teh AIDS from just looking at me? How about if they look at me through sunglasses (we have a lot of that in Florida)?
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 06:00:15 pm
For God's sake please tell me you haven't been gay anal dipping?

That sounds like an ice cream cone I could order at Baskin and Robbins...

Customer: Hello, I would like a chocolate, gay anal dipped cone

Baskin and Robbins: Would you like that with nuts?

 :P
Title: Re: Just released from hospital - Pericarditis
Post by: Mrmojorisin on January 10, 2013, 06:02:41 pm
For God's sake please tell me you haven't been gay anal dipping?

 Is that the same as straight anal dipping?
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 06:05:05 pm
Is that the same as straight anal dipping?

I think at Baskin and Robbins the straight anal dipping cone comes with a Pinnochio nose   ::)
I/J/S 
Title: Re: Just released from hospital - Pericarditis
Post by: Dachshund on January 10, 2013, 06:09:16 pm
It could be caused by nasal discharge and a nose picking transmission.
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 06:16:38 pm
It could be caused by nasal discharge and a nose picking transmission.

I tried to have doc give me an STD shot for the nasal discharge..... (Since Don't Ask Don't Tell was rescinded, do they still do discharges from the nasal?)

I usually allow others the joy of picking my nose.
I once had to buy a transmission for my car (it was expensive) - how much does a nose picking transmission cost?

I think I might be having a slight post-morphine drip occurring  ;D    That is probably the only part of being at the ER that makes it "do-able." 

Me thinks my post may not make sense - It rained so hard the day I left, the weather it was dry, the sun so hot I froze to death....

Title: Re: Just released from hospital - Pericarditis
Post by: Solo_LTSurvivor on January 10, 2013, 06:18:27 pm
I heard you could catch teh AiDS only if you've been gang banged in your shitty, un-douched chute while smoking meth on a makeshift light bulb pipe.
Title: Re: Just released from hospital - Pericarditis
Post by: Dachshund on January 10, 2013, 06:19:09 pm
I tried to have doc give me an STD shot for the nasal discharge..... (Since Don't Ask Don't Tell was rescinded, do they still do discharges from the nasal?)

I usually allow others the joy of picking my nose.
I once had to buy a transmission for my car (it was expensive) - how much does a nose picking transmission cost?

I think I might be having a slight post-morphine drip occurring  ;D    That is probably the only part of being at the ER that makes it "do-able." 

Me thinks my post may not make sense - It rained so hard the day I left, the weather it was dry, the sun so hot I froze to death....

Susannah don't you cry.
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 06:22:00 pm
I heard you could catch teh AiDS only if you've been gang banged in your shitty, un-douched chute while smoking meth on a makeshift light bulb pipe.

Dayummm, I did that exact thing just last week....
Does it matter what wattage the light bulb pipe was?
Is there a greater risk with a 100 watt as opposed to a 60 watt?

What watt?
Title: Re: Just released from hospital - Pericarditis
Post by: Jeff G on January 10, 2013, 06:27:12 pm
Phil ... I'm declaring you pre - disaster-ed for the rest of the year so get well and stay well ! .

And its common knowledge Rock Hudson got the aids from Kissing Linda Evans on Dynasty so you bitches stop trying to hog the aids credits . 
Title: Re: Just released from hospital - Pericarditis
Post by: Solo_LTSurvivor on January 10, 2013, 06:28:25 pm
Dayummm, I did that exact thing just last week....
Does it matter what wattage the light bulb pipe was?
Is there a greater risk with a 100 watt as opposed to a 60 watt?

What watt?

I heard you get the maximum toxic dosage from a blacklight CFL and the best rush.  They also say you can see your ass glowing when you siro convert,

(http://upload.wikimedia.org/wikipedia/commons/e/e9/Black_light_bulb.jpg)
Title: Re: Just released from hospital - Pericarditis
Post by: texaninnyc87 on January 10, 2013, 06:30:37 pm
i use those eco friendly coil lights to smoke meth. its tricky to figure out the logistics, but its better for the planet and has completely cured my fatigue.
Title: Re: Just released from hospital - Pericarditis
Post by: Jeff G on January 10, 2013, 06:33:15 pm
I was concerned about my health when I was a meth addict so I asked my doctor for a port but he declined , cant remember why . Sarcasm of course but don't think I didn't think about it LOL .   
Title: Re: Just released from hospital - Pericarditis
Post by: Solo_LTSurvivor on January 10, 2013, 06:50:13 pm
I was concerned about my health when I was a meth addict so I asked my doctor for a port but he declined , cant remember why .

Speaking of points... um, ports.  An eternity ago, I remember seeing this queen stand in front of a mirror and dart right in the jugular.

I got the feeling that I might be watching a live version of Scanners (http://youtu.be/YI3NoBeNwfk) and was ready to run away in case the medical examiner was called to the scene.

Back to your regularly scheduled programming: carry on.
Title: Re: Just released from hospital - Pericarditis
Post by: buginme2 on January 10, 2013, 07:03:21 pm
For God's sake please tell me you haven't been gay anal dipping?

What the H is gay anal dipping? 

Is that like saying "just the tip"
Title: Re: Just released from hospital - Pericarditis
Post by: Buckmark on January 10, 2013, 07:08:51 pm
Was kept overnight with pericarditis (inflammation around the sac-like covering surrounding the heart).....

Phil, pericarditis is serious!  I'm glad you are getting treatment.

Back in 2009, a good friend of mine who was visiting for a few days had pericarditis.  He woke me up at 4AM saying he had chest pains, and I freaked out, and drove him to the hospital.  They sent him home, saying it was just a panic attack, because nothing showed up on the EKG.  They sent him home with valium.  A few hours later, I was driving him back to the hospital because his symptoms were even worse.

Don't you like how I made this thread all about me, instead of all about you?   ;)

Quote
Have to take high doses of NSAIDS for next three weeks....

I am very surprised you are not on steroids (methylprednisolone).  You should be very careful, and if you don't improve, ask your doctor about them.

Hope you are better soon. 
Title: Re: Just released from hospital - Pericarditis
Post by: Solo_LTSurvivor on January 10, 2013, 07:11:26 pm
What the H is gay anal dipping? 

Is that like saying "just the tip"

It's all the latest rage!  Thought you knew  :o

http://forums.poz.com/index.php?topic=46785.msg570369#msg570369

http://forums.poz.com/index.php?topic=46795.msg570482#msg570482
Title: Re: Just released from hospital - Pericarditis
Post by: mitch777 on January 10, 2013, 07:50:40 pm
I am thinking you are schnoooozing like a baby now Phil. (unless you are able to enjoy the fine hospital cuisine. ;))
Prior to your nap your sense of humor was in full force. WoW!!!
Sleep tight and don't let the hunky male nurses bite... at least not too hard.
Please get yourself well SOON!

edited:
"just released" just hit me.
 :-[

well...
sleep tight and don't let any hunky neighbors bite?

Title: Re: Just released from hospital - Pericarditis
Post by: bocker3 on January 10, 2013, 08:27:21 pm
Thanks NYC and bug -
I plan on getting some rest....   ;)
Have school work to do and will do some work from home tomorrow - but other than that, I will be resting.

Doing work from home is NOT RESTING......  If your job can not do without you for a few days as you recover from a serious health issue, well -- you probably want to discuss your salary with them, as whatever it is, it can't possibly be enough.  Please, please, take your docs seriously and just focus on getting better.  The world will still be here in a few days / week (remember, we made it past 12/21/12).

I'll cut you a little slack on school -- but you are doing it online, so I'm guessing your deadlines are more self generated, so really -- DO TRY AND ACTUALLY REST PHIL!!!

Hugs,
Mike
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 10, 2013, 09:51:47 pm

I am very surprised you are not on steroids (methylprednisolone).  You should be very careful, and if you don't improve, ask your doctor about them.

Hope you are better soon.

Hi Henry:
I was on steroids in hospital - they have me on the NSAIDs here at home, but if I don't see improvement within three-four days, doc says they will have to switch me to steroids.

Sorry for the delay in responding..... I stepped out to pick up the scripts and now I'm home and not feeling all the well....

My aunt (who is a nurse) has advised me in the strongest of terms, not to over exert myself for at least the next 48-72 hours and to be especially focused on any signs that the problem is worsening (i.e. sharper pains, swelling in legs or ankles, sweating) and to get to hospital ASAP if any of these occur.

Funny thing is, I just put together my advanced directives last week and standard will --- ain't that some shit.... LOL

But, this too shall pass... Just have to take it easy for a few days. Which I will do - at least comparatively speaking with normal routine.

I will say that this thing definitely causes some serious pain in the chest - and the worst part is its continuous, which is really frustrating.
Title: Re: Just released from hospital - Pericarditis
Post by: Jmarksto on January 10, 2013, 10:00:52 pm
Hey Phil;

Wishing you the best of get wells!

...and you are off the hook on the whole bike riding thing.

Take care,

JM
Title: Re: Just released from hospital - Pericarditis
Post by: WillyWump on January 10, 2013, 10:42:13 pm
Geez Phil, Happy New year ? :-[

anyways Hope you feel better. Mom had Pericarditis a couple times and sounds like the same type treatment. She got over it very quickly and did well. Of course, she is no longer with us, but that's another story.

Get better soon

-Will
Title: Re: Just released from hospital - Pericarditis
Post by: tednlou2 on January 10, 2013, 11:02:30 pm
I heard you could catch teh AiDS only if you've been gang banged in your shitty, un-douched chute while smoking meth on a makeshift light bulb pipe.

OMG, I had a very similar experience.  But, it had nothing to do with AIDS. 

Phil, I hope you feel better soon.  This is definitely not a great way to start the year. 

Take care. 
Title: Re: Just released from hospital - Pericarditis
Post by: coreFighter on January 10, 2013, 11:38:47 pm
Get better !!!
I'm dealing with weird heart palpitations. But it's getting better.

I love that you have a great sense of humor about all this. I need to bring mine back.
Title: Re: Just released from hospital - Pericarditis
Post by: Matty the Damned on January 11, 2013, 06:14:27 am
Just released from UM hospital.... Was kept overnight with pericarditis (inflammation around the sac-like covering surrounding the heart)..... Have to take high doses of NSAIDS for next three weeks.... Follow up with doctor next week - and hope that it clears up.... Otherwise, will have to get more aggressive treatment. UGGGHHH!!!! Always something - but, I am glad to be home and grateful for the excellant care I received at University of Miami Hospital.

Docs believe the culprit was the flu I had mid-December. I was having continuous chest pains that started worsening on Monday. By Tuesday it was hurting to sit up, lay down, walk, and breath (which is difficult to try not to do). So, yesterday when I saw ENT for follow up on throat issues, she listened to heart and after hearing symptoms advised me to go across the street to ER at UM.

I went to ER and was promptly admitted. After many tests, poking and prodding the diagnosis was made. I am on heavy doses of NSAIDS for next three weeks. Follow up with doc next week. If it worsens, next step would be to put my on high doses of steroids - and if problems continue I would be readmitted to have fluid drained from the sac area......

In the meantime, we are closely monitoring it.... with strict orders to immediately go to ER if it worsens of if I start having severe stabbing pain, etc - as this likely be cardiac arrest (worst case scenario).....

So, 2013 doesn't seem to be starting off any better healthwise than 2012 ended. 

Other irritating part if this can last a few weeks up to a few months - I am hoping that it clears quickly.

The doc was happy that she had a good case of pericaditis for the 20 medical students/residents who came to my room to have a chance to see.   ;D   Always happy to do my part to help the future generation of docs.

My Nan had pericarditis.

The she died.

If you suddenly turn into an old racist Presbyterian white woman contact your doctor immediately.

Otherwise give the Matteh some lurve because you're almost certainly fiiiiiiiiiiine. :-*

(http://www.winostuff.com/images/BreakingNews/bunghole.jpg)

MtD
Title: Re: Just released from hospital - Pericarditis
Post by: J.R.E. on January 11, 2013, 06:44:36 am
Phil,


Wishing you a speedy recovery. Listen to your Doctor !!


Ray

Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 11, 2013, 09:31:46 am
My Nan had pericarditis.

The she died.

If you suddenly turn into an old racist Presbyterian white woman contact your doctor immediately.

Otherwise give the Matteh some lurve because you're almost certainly fiiiiiiiiiiine. :-*

(http://www.winostuff.com/images/BreakingNews/bunghole.jpg)

MtD

If I suddenly get the urge to buy a handbag, spray on Chanel #25, and change my eyewear to Walgreen's over 60 glasses, I will take that as the early signs that I am becoming that old racist Presbyterian white woman and will immediately seek medical attention.....

Oh, and I tried to insert it into the hole - but broke the monitor on my computer in the attempt.... How shall I ever explain that?   ::)

Thanks Matty - I was feeling kind of yucky last night, but woke up feeling much better... hopefully this is a good sign.... 
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 11, 2013, 09:35:18 am
Phil,


Wishing you a speedy recovery. Listen to your Doctor !!


Ray

Thanks Ray and everyone else -

One thing I have learned having teh HIV/AIDS is to keep a sense of humor (as much as possible).....
Getting too down about things isn't going to make them any better. So, while I do get frustrated - particularly with the various health issues - my issues pale in comparison to the many issues that so many others (particularly LTS') have had to go through, went through, and continue to experience many times.... (I keep that in mind whenever I go through a little hiccup).
Title: Re: Just released from hospital - Pericarditis
Post by: wolfter on January 11, 2013, 09:53:29 am
Were you tested for an active CMV infection?  Both of my pericarditis episodes were attributed to that virus due to having a weakened immune system.

Get well and REST!!!!  You won't be a great performer if you're dead. ;)

Wolfie
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 11, 2013, 10:35:01 am
Were you tested for an active CMV infection?  Both of my pericarditis episodes were attributed to that virus due to having a weakened immune system.

Get well and REST!!!!  You won't be a great performer if you're dead. ;)

Wolfie

Hi Greg:
I have no idea if they tested for CMV or not - I see my doc on Wednesday, so I will have her look on the system and see if they tested for it - If not, I will see if she thinks we should... 

As you can see in my signature line, my CD4s have been on a steady decline - still not in the "danger" area at all - and doc attriubutes the decline to the various infections, etc. I have been having (and not the other way around)..... I will make sure I bring up the CMV to her and see what her thoughts are on it.
Title: Re: Just released from hospital - Pericarditis
Post by: wolfter on January 11, 2013, 10:43:25 am
http://www.nlm.nih.gov/medlineplus/ency/article/000568.htm

I had never heard of this particular infection until I had my first heart attack and started having other heart related issues. 

I assume you're under the care of a great cardiologist? 
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 11, 2013, 10:48:58 am
http://www.nlm.nih.gov/medlineplus/ency/article/000568.htm

I had never heard of this particular infection until I had my first heart attack and started having other heart related issues. 

I assume you're under the care of a great cardiologist?

I have been tested in past for CMV (I am pretty sure)...
But don't know if it was part of the many tests that were done when I was in hospital.
Not under the care of cardiologist just yet - see my ID doc on Wed. and she will probably hook me up with one from UM at that time.
Title: Re: Just released from hospital - Pericarditis
Post by: aztecan on January 11, 2013, 11:14:21 am
Phil,

Rest means rest, not working from home, not keeping up with your schedule, etc.

If you're not going to be a good boy, Mother Mark will have to come down there and spank you with a spatula!  8)

And put down that handbag!  :o

Be well, young one. Feel better soon.

HUGS,

Mark
Title: Re: Just released from hospital - Pericarditis
Post by: wolfter on January 11, 2013, 11:17:36 am
Yeah, what Mark said. :D  And he can stop and pick me up on the way and then we'll have a gang spanking. 

G
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 11, 2013, 12:22:36 pm
Phil,

Rest means rest, not working from home, not keeping up with your schedule, etc.

If you're not going to be a good boy, Mother Mark will have to come down there and spank you with a spatula!  8)

And put down that handbag!  :o

Be well, young one. Feel better soon.

HUGS,

Mark

Bring the spatula!!!  LOL
I actually have a conference call at 1:00 regarding a Dept of Education grant opportunity... I was supposed to travel to our InterAmerican Campus for it, but will be doing the call from home - I couldn't get out of it...and because it is a time sensitive opportunity, needed to have the planning meeting today. I just finished reviewing and highlighting important parts of the RFP (Request for Proposals), so that I would be at least somewhat prepared for the call.

I hear you on taking some down time - unfortunately, the federal government is not going to extend deadlines to accommodate my little health problem, so I gotta do what I gotta do ----- but I am prepared for my spanking (who knows, it may just put the swelling in an area other than my heart sac - perhaps some other sac  ::)   )

Now, to develop the proposal development timeline....
Title: Re: Just released from hospital - Pericarditis
Post by: skeebo1969 on January 11, 2013, 12:28:35 pm


  Dayum Phillip, sorry to hear about the latest issue.  Take care of yourself... I'd follow wolfie's advice and see whether or not you've been tested before for CMV.  If that test was negative you should probably get it done again.  It can be a pretty serious issue when the numbers are declining.

  I hope you feel better soon!
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 15, 2013, 10:00:22 am
So, I see the ID doc tomorrow - will definitely inquire about CMV...

Also, need to check on some of the lab results that were posted to my health record:

Anion Gap    7.0    Normal range = 10 - 20  mmol/L

Neutrophils  30.3   Normal range = 36.0 - 66.0%

and the big one...

Lymphocytes Relative     54.7   Normal range = 23.0 - 43.0%

The high lymphocytes relative could indicate CMV or some other type of infection  (???)

Title: Re: Just released from hospital - Pericarditis
Post by: britchick on January 15, 2013, 10:07:46 am
Hope you feel a lot better soon.You've had as tough time and deserve a better 2013.

britchickx
Title: Re: Just released from hospital - Pericarditis
Post by: BT65 on January 15, 2013, 09:42:53 pm
God Phil, what is wrong with you?  You've had so many health problems recently I certainly hope this is it for a long while.  Please rest as much as you can and do what the doctor says!  I don't spank people as Mark does, but I can sock you in the jaw. :-*
Title: Re: Just released from hospital - Pericarditis
Post by: Jeff G on January 16, 2013, 06:43:29 am
God Phil, what is wrong with you?  You've had so many health problems recently I certainly hope this is it for a long while.  Please rest as much as you can and do what the doctor says!  I don't spank people as Mark does, but I can sock you in the jaw. :-*

This is the best get well speech eva ! , get well or get a beat down . I'm with Betty Phil , its time for tough luv so don't make me drive her down there  .  ;) .
Title: Re: Just released from hospital - Pericarditis
Post by: pozniceguy on January 16, 2013, 11:51:19 pm
Phil ,, you have had some  super  good  advice  from folks  who have seen a lot of issues    rest means  rest/lay down/take a nap/ unplug phone/ take battery out of  cell phone/ we want to have you around for a long time....


Nick
Title: Re: Just released from hospital - Pericarditis
Post by: freaky_dream on January 17, 2013, 05:09:51 am
I had a bout of acute percariditis last year and it was the worse experience of my life. It knocked me on my ass, could barely walk and had trouble breathing. Like Buckmark's friend, my EKG came back completely normal. However the hospital took the extra precaution to test for troponin enzymes and threw me in a hospital room when they saw elevated levels. Had a fever and cough the entire time. Not sure what I caught but it passed in a few days. The doctors ran countless blood cultures and could not come up with anything. At least the morphine was boss.
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on January 17, 2013, 10:25:20 am
Thanks for the supportive words everyone and the concerns...

Here is the post-doctor visit update:
1) We are now "watchful waiting" - this means that I am to continue the course of NSAIDs....
2) I will have labs done the third week of February - regular ID doc visit is 3/6/13. Doc wants me to wait as long as possible to get labs done to give the infection time to clear...
3) She was not overly concerned with the elevated lymphocites, as this is most likely indicative of the current infection that is being treated; however, she said if they go up on the labs to be done end of March - we will have to do more tests, including an echocardiogram and explore more possibilities of what could be wrong
4) If my CD4 drops anymore - it has fallen from 1,200 several months back to 549 on last labs - we will also have to do more tests... She said that because there has not been a spike in VL (it remains UD), that if the CD4 does fall, it is not attibutable to the HIV - but would have to be something else going on...
5) She said we will be in a particularly concerning situation if WBCs go up, lymphocites rise, and CD4 drops as this most likely means something more menacing is occuring.

And to conclude.... We are "watchful waiting" - as there is nothing else that can be done right now (other than continue the NSAIDs) until we get a clearer picture one way or the other from the next lab draw.

Title: Re: Just released from hospital - Pericarditis
Post by: pozniceguy on January 17, 2013, 01:52:26 pm
hope it  gets better  quickly......

Nick
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on February 20, 2013, 10:10:20 pm
Showing how quick things can change -
Latest labs are in:

          CD4    %    VL
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20

Unfortunately, lymphocites are up (absolute and %); white cells up; platelets and hemoglobin down... Not in the danger zone - but out of range.

Doc sent me a message and she is arranging a visit to an oncologist (which I personally think is premature, but I shall follow her orders - It's just that typically when she sends me to other specialists, they basically want to wait for other tests to come back).... Also, she has ordered some additional labs...so, I'm hoping that the visit to the oncologist is scheduled for after the new labs come back...

I've decided that I only want to share about this here for right now....I want to keep this on low profile until I see what is going on.... With other things going on in the family, don't want to add an additional worry - especially, if it may be needlessly. So, FB will hear that "labs are good" - which, in regards to HIV, they are.... Mom is supposed to be down this way mid-March for a visit w/ my younger brother - so, if something needs to be told to them, it will happen then....

Should have additional answers within the next couple of weeks... More waiting....ugghhhh....

At least the CD4s and CD4 % are back up...   :D
And I made it clear to her that London trip shall go forward no matter what we find out.

Title: Re: Just released from hospital - Pericarditis
Post by: buginme2 on February 20, 2013, 10:18:59 pm
Phil, I hope everything is ok and the oncologist is able to clear things up with your labs.  What a stressful situation.  I'm sorry to hear.  I hope it's all ok.
Title: Re: Just released from hospital - Pericarditis
Post by: oksikoko on February 20, 2013, 10:20:30 pm
Latest labs are in:

          CD4    %    VL
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20

Unfortunately, lymphocites are up (absolute and %); white cells up; platelets and hemoglobin down... Not in the danger zone - but out of range.

All in all this is good, though, right? The only numbers here I understand are the CD4 and VL, not the lymphywhatsycyteys. It sounds OK, though?  :-\

Anyway, wishing you the best from NYC.

Oh, and I just saw this thread for the first time. You people set back AIDS/HIV rights, like, 20 years at least.  I would call NAPWA if they hadn't gone bankrupt. In fact, the timing of their bankruptcy to this thread is a bit suspicious...  :o
Title: Re: Just released from hospital - Pericarditis
Post by: Jeff G on February 20, 2013, 10:22:41 pm
Hi Phil ... Im a fan of Phil so Im wishing you the best and sending positive thoughts and energy your way . Hugs buddy !
Title: Re: Just released from hospital - Pericarditis
Post by: bocker3 on February 21, 2013, 07:35:57 am
Phil,

Wishing you well on your Oncology visit.......  I'm sure this is more than a little stressful.  Sending you all the good vibes the I can!  Will dump even more as I fly over you tomorrow on our way to San Juan.

Hugs,
Mike
Title: Re: Just released from hospital - Pericarditis
Post by: phildinftlaudy on March 08, 2013, 12:45:22 pm
Update:
Had additional labs done
Saw oncologist March 6th
Good report - no worries at present time - No lymphoma/leukemia

Have to get a few more labs done and follow up w/ him in June just to make sure nothing was missed.

Yes - I was relieved, to say the least.

Title: Re: Just released from hospital - Pericarditis
Post by: wolfter on March 08, 2013, 01:19:19 pm
Glad you dodged that bullet.  Did you ever have a test for CMV?  I apologize if you already updated us about that, but I don't recall.
Title: Re: Just released from hospital - Pericarditis
Post by: bocker3 on March 08, 2013, 06:16:59 pm
Great news Phil!

M