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Author Topic: Two weeks pos diagnosis need an anchor  (Read 1808 times)

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Offline Dezzz

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  • Posts: 5
Two weeks pos diagnosis need an anchor
« on: May 06, 2022, 01:55:12 pm »
I was diagnosed two weeks ago. Got on meds immediately, Biktarvy and Prezcobix due to being infected with a mutated strain. I have my first counseling session Monday. Otherwise really have no idea how to navigate through this with no real support group being single and bi. Physically feel pretty good only a short while after starting meds. Mentally I don't know where to start. Stuck on meds for life, financials of being able to afford the medications even with adap. So much I can't even begin to wrap my head around. I keep trying to realize things will get better and I will cope better with time but right now I am struggling.

Offline SFlSurvive

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Re: Two weeks pos diagnosis need an anchor
« Reply #1 on: May 06, 2022, 02:21:28 pm »
Sorry to hear about your diagnosis. It is a lot to take in. Just give yourself time to adjust and feel the emotions that cones along with a nee diagnosis. Once you start seeing your numbers get under control it will make you feel better. This is a great support group. Hang in there. It will get better.
God got me through!

Offline Tonny2

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Re: Two weeks pos diagnosis need an anchor
« Reply #2 on: May 08, 2022, 12:17:22 am »




          ojo.           Hello Dezzz!

Iím sorry about your dx, I donít know why you got tested for hiv but, whatever the reason, now you know you are hiv positive now you get treatment. Too bad you got some resistance but I guess your doctor knows how to treat you and he will find the best treatment, I have a history of resistance and my doctor found the best treatment for me, Iíve been taking the same meds for the last 14 years and Iím still UD.


You are not alone, we are here for you and you can ask you for information or moral supportÖthe formula to keep the virus under control is, , itdiscipline taking your meds as prescribed and a positive, no pun intended, attitude , you will be find, good luck and please keep us posted

Offline leatherman

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Re: Two weeks pos diagnosis need an anchor
« Reply #3 on: May 08, 2022, 08:36:23 am »
but right now I am struggling.
do you feel unwell? if your answer is no, then things are already better.  :D Being on meds is the only way to deal with HIV, and you're already doing that!  :D :D Oh, and although "meds for life" sounds terrible to be quite honest, 66% of adults take daily medications. Believe it or not, these days, the only thing "special" about being HIV positive is that with a daily pill or two life goes on pretty much as it normally would.

Don't misunderstand me though. I'm not trying to minimize your concerns, fears, and worries. I'm just trying to put some perspective on the issues you mentioned. As someone who has lived with HIV for 38 years, and has needed decades of ADAP assistance, after you get past the first bit of wrapping your brain around the diagnosis, getting your access to healthcare and prescriptions worked out, and adhering to daily meds (and because this is 2022 and not 1992), living with HIV becomes a non-issue.

Give yourself some time to adjust...... and then move on to the things you want to accomplish. ;)
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Dezzz

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Re: Two weeks pos diagnosis need an anchor
« Reply #4 on: May 08, 2022, 01:21:54 pm »
Thank you for your replies and encouragement. If someone can direct me to sites, give me insight to adap and how best to get all the financial help possible I would appreciate it. I start medicare in a few months and looking for the least expensive health ins which is surprisingly expensive so that will be what I am working with as well as getting adap. With two HIV drugs and the labs needed it looks expensive.
Thank you

Offline leatherman

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Re: Two weeks pos diagnosis need an anchor
« Reply #5 on: May 08, 2022, 07:54:58 pm »
If someone can direct me to sites, give me insight to adap
different states manage ADAP, which is part of the Ryan White Care Act, differently. you can check with your state's health dpt.

here's a list of links to state ADAP departments, per POZ magazine.
https://www.poz.com/basics/hiv-basics/drug-assistance-programs#ADAP

If you mention your state and/or area here, you might get some more guidance from someone local

you might also want to check with the ryan white/adap representative at the clinic where you're getting healthcare. of course, getting the right coverage might take a bit to work out and take time to get there.
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Dezzz

  • Member
  • Posts: 5
Re: Two weeks pos diagnosis need an anchor
« Reply #6 on: May 09, 2022, 01:30:16 am »
Thank you. I'm in CA for the next one year maybe 1.5 and hoping to move after that.
« Last Edit: May 13, 2022, 03:48:08 pm by Jim Allen »

Offline leatherman

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Re: Two weeks pos diagnosis need an anchor
« Reply #7 on: May 09, 2022, 08:16:26 am »
hoping to move after that.
Family in the area, moving for work, or just changing your scenery?

The weather is great here (no blizzards....ever!), and the countryside is beautiful. When you get around to moving here, let me know what area your moving to and I'll check my sources with the Ryan White program (I've been a consumer advocate , Ryan white programs for the last decade) on suggestions about the doctors and HIV clinics in the area where you'll be moving. ;)
« Last Edit: May 13, 2022, 03:51:48 pm by Jim Allen »
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Dezzz

  • Member
  • Posts: 5
Re: Two weeks pos diagnosis need an anchor
« Reply #8 on: May 09, 2022, 03:18:32 pm »
the humidity is the one thing I will have to adjust to in summer. Thank you
« Last Edit: May 13, 2022, 03:49:42 pm by Jim Allen »

Offline Dezzz

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Offline leatherman

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Re: Two weeks pos diagnosis need an anchor
« Reply #10 on: May 10, 2022, 07:54:53 pm »
have to adjust to in summer
air conditioning  - everybody's got it! and/or swimming pools.

I'm working on re-leveling the area we put up our pool this week, so I can get the pool up before the heat barrels in. I running a couple weeks late because of our vaca to AZ; but that's been okay, because this week has only been in the low, but sunny, 70s. the 80s crank up next week. WooHoo!  8)
« Last Edit: May 13, 2022, 03:50:27 pm by Jim Allen »
leatherman (aka mIkIE)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jim Allen

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    • HIV Lessons
Re: Two weeks pos diagnosis need an anchor
« Reply #11 on: May 13, 2022, 04:09:39 pm »
Hi Dezz,

I can't offer you any practical advice with regards to accessing healthcare in the US as I am based in Ireland but it seems like the other forum members have already pointed you in the right direction.

Hope you are feeling okay and have managed to navigate things. keep us posted, you are not alone and we're here if you need us.

Best, Jim
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