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Main Forums => Living With HIV => Topic started by: oksikoko on April 02, 2013, 11:31:24 am

Title: Someone Who Isn't Me
Post by: oksikoko on April 02, 2013, 11:31:24 am
Hi, everyone.

I know I'm persona non grata around here, but I've got a serious question for a friend (yes, I have one, and I need him to stay healthy a long time). It's really not me: I take Stribild.

He's run out of Atripla and can probably not get a new prescription for two weeks. He has Medicaid, but it's in the process of being renewed, so money/insurance is an issue. Does anyone have advice on options in these cases? We're in NYC and I'll do whatever needs to be done. PM me if you have any answers or advice.

Thanks,
Lee
Title: Re: Someone Who Isn't Me
Post by: Matts on April 02, 2013, 02:53:08 pm
Can't You order cheap generic Viraday online in the US?

Anyway, I thought everybody gets affordable HealthCare meanwhile, and the poor people have MedicAid or so, or Am I wrong?
It has to be possible to get lifesaving drugs even when You're in a renewing process or something is terribly wrong with the laws.
Title: Re: Someone Who Isn't Me
Post by: Miss Philicia on April 02, 2013, 04:10:02 pm
ASO's can usually fill out an "emergency form" for one months of meds.
Title: Re: Someone Who Isn't Me
Post by: Miss Philicia on April 02, 2013, 04:16:45 pm
... who misses oksikoko greatly
Title: Re: Someone Who Isn't Me
Post by: bmancanfly on April 02, 2013, 04:22:20 pm
... who misses oksikoko greatly
Ditto

Check your PM's
Title: Re: Someone Who Isn't Me
Post by: mecch on April 02, 2013, 05:19:37 pm
oksikoko - nice to see you!
Hope you are a successful angel on this quest.  :D
Title: Re: Someone Who Isn't Me
Post by: thunter34 on April 02, 2013, 09:46:00 pm
ASO's can usually fill out an "emergency form" for one months of meds.

Not here in Georgia.  The moment your eligibility expires, the wheels stop.  No meds - none - nada - zilch -until you get all your T's crossed and I's dotted.  With duplicates.

Title: Re: Someone Who Isn't Me
Post by: tednlou2 on April 02, 2013, 11:15:28 pm
Oksikoko,

I hope your efforts work out for your friend.  And, I hope you will come back and keep in touch here. 
Title: Re: Someone Who Isn't Me
Post by: Miss Philicia on April 03, 2013, 02:52:28 am
Not here in Georgia.  The moment your eligibility expires, the wheels stop.  No meds - none - nada - zilch -until you get all your T's crossed and I's dotted.  With duplicates.



I had it done here when I moved from NYC, one month only while my application was being processed. Grant it this was 9 years ago, nor is it heavily advertised and must be signed by both a case worker and a medical doctor.

My eligibility wasn't "expired" because I was a new applicant -- perhaps that is the difference. You know, like when someone is on death's door in an emergency room they will expedite your application.
Title: Re: Someone Who Isn't Me
Post by: BT65 on April 03, 2013, 05:07:23 am
At the ASO I work at, though it's not advertised, we are often able to get our hands on actual meds for someone who has a temporary window of being without them.  Some doctors actually get samples, and we get them from the doctor, or when people change meds they often donate the ones they will no longer be taking. 

I would check with the ASO's in your area.
Title: Re: Someone Who Isn't Me
Post by: Miss Philicia on April 03, 2013, 07:40:44 am
At the ASO I work at, though it's not advertised, we are often able to get our hands on actual meds for someone who has a temporary window of being without them.  Some doctors actually get samples, and we get them from the doctor, or when people change meds they often donate the ones they will no longer be taking. 

I would check with the ASO's in your area.

same here
Title: Re: Someone Who Isn't Me
Post by: Jeff G on April 03, 2013, 09:26:30 am
This subject came up at our Patient Advisory Board meeting last night . The social workers and nurse practitioners put up with red tape and jump through the hoops to get meds from ADAP but if the patient isn't compliant or fails to get his meds one month it really messes the system up and new proscriptions don't get sent .

Patients at the clinic are complaining about 3 hour waits at the pharmacy while the social workers sort through meds , ADAP and shipment of meds when things go wrong . 
Title: Re: Someone Who Isn't Me
Post by: oksikoko on April 03, 2013, 04:18:57 pm
Thank you, everyone. I believe it's been sorted thanks to the advice and generosity of the members of this forum.

Gratefully,
Lee
Title: Re: Someone Who Isn't Me
Post by: Fisher on April 04, 2013, 08:30:55 pm
Persona non grata?

I have no idea why you would be.  But I'm relatively new here. But I do know that time heals, and the hearts I've felt here are full of life and forgiveness . . . even though the teeth are sharp and sometimes bite.  But rarely.