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Author Topic: Vertigo - Sustiva + Kivexa  (Read 2579 times)

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Offline McGlap

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    • My HIV treatment blog
Vertigo - Sustiva + Kivexa
« on: April 13, 2011, 02:42:04 pm »
Dear all,
I was browsing the forums reading about different experiences, however i didn't find any clear answer to what i am experiencing now hence i have decided to post this question.
Four weeks ago i have started my very first HIV treatment (approx. 8 years after i have been diagnosed). My doctor started me on Sustiva and Kivexa, suggesting that i should take them before bed time due to the dizziness feeling. I have to admit that the first day of treatment about 1 hour after taking the pils the feeling became very strong and i went to bed. I didn't sleep well the first night, however after that the dizziness or vertigo feeling became less and less noticeable. I've also haven't experienced any other side effects. Until now !!! I have just started the week 5 and since yesterday i have vertigo also during the day. Is this normal ? Or is this something i should be worried about ? Thanks in advance for all your comments.

Offline eric48

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Re: Vertigo - Sustiva + Kivexa
« Reply #1 on: April 13, 2011, 05:09:51 pm »
Hi,

I take Kivexa but not Sustiva

Vertigo is something I have not experienced. I think Kivexa is giving me additional stress.

I would not call it adverse effect, but noticeable enough, eventhough my doc thinks it is more diagnosis induced stress.

I do not think so...

I have changed the dosing time (morning or evening) a few times (just to see which fits me better). stress during the day can after your work and mood, while stress during night affect sleep.

Every time I changed, I was so happy for the change for the first few days, and then, after a few weeks, things have worsened (although tolerable, it is noticeable)

I had tried to take Kivexa in the morning (may be 2 or 3 month into treatment) and had to revert back to evenings.

Recently, I moved it up again in the morning (now 9-10 months into treatment) and it seems more bearable.

all this to say that :

- 'strange' effects can happen with a few weeks delay
- seems to fade off (although very slowly)

I would not be surprised to see myself fully adjusted and comfortable with the CNS effects no earlier than 12 months into treatments.

Be well

Eric
NVP/ABC/3TC/... UD ; CD4 > 900; CD4/CD8 ~ 1.5   stock : 6 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: Clin. Trial NCT02157311 = 4days ON, 3days OFF ; 2015: https://clinicaltrials.gov/ct2/show/NCT02157311 ; 2016: use of granted patent US9101633, 3 days ON, 4days OFF; 2017: added TDF, so NVP/TDF/ABC/3TC, once weekly

Offline McGlap

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Re: Vertigo - Sustiva + Kivexa
« Reply #2 on: April 14, 2011, 11:59:53 am »
Thanks Eric !!!
I have to say that today i feel much better. the Vertigo feeling is still there but much more bearable...
I guess i simply need to wait.

 


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