, (prezista/norvir, intelence, i started taking it on january 2007
Tonny2 :)
Glad to hear of your new #'s and that you are doing well! Keep positive attitude and fighting.
Hey Tonny
Hell if you got through all that I'll work on being more positive. I'm in the Dayton area. Is that near you?
Hugs
Ross
Hi, TONNY,
LONG TIME NO WRITNG AND I AM VERY SORRY.
I WILL CHECK IN MORE OFTEN FROM NOW.
Hello Tonny,
You have a great history. I'm really touched by this. :'(
It's inspiring!
Let's keep on fighting!
This thread is wonderful to read! I thank you very much for it, and I wish us all much good health.
a good sense of humor is always your best friend.....glass jar.....
If you manage to live another 100 years, maybe by then they would have figured out a way to grow a new eye ;-)
The results came back UD again, happy to see that because I have a history of resistance and I thought that, after 15 years on the same treatment, it might have gotten resistance too, but it’s still kicking hiv butt.Great on the numbers!
I just met a 61 y/o man, hiv negative, whom takes 35 pills a day (heat transplant, diabitis, etc), I just take 11 pills a day, eight for hiv and three for my little heart. I share this because I read some new members who say, “I have to take a pill for the rest of my life”, not just us, hiv positive people take meds for life.all these peeps worrying about pills. LOL I was 29 yrs old taking 28+ pills and 4 tablespoons of liquid meds a day. And thank goodness! Those meds kept me from dying. Now I'm 60 and take 2 hiv meds and 2 other pills.
Could you imagine how much longer my posts were if I could see and speak English 100%…hugsROFL
at least I didn’t spend my birthday in the hospitalbirthdays NOT in the hospital are the BEST birthdays!!! :D :D
I was in the ER a week before my bd, I went in thinking with abdominal pain, sane kind of pain when I got pancreatitis, thankfully it was just indigestionugh. sorry to hear that.
in 2010 I celebrated my birthday in the ICU, hemolytic anemia) I was admired 08/15 and discharged 08/23. Definitely it’s not fun being in the hospital today is your birthday, not knowing if you’re going to make it out alive, fortunately I’m still here.wow. i didn't realize we had a birthday in the hospital in common too. :o
Sometimes I feel bad spending so much money when we can use that money to feed the poorEven though it frustrates me every time I attend some Ryan White meeting with lunch and a small pharma presentation., I understand that state funds are always tight so that offering lunch for all the attendees (usually directors or Ryan White managers who had to travel in from all over the state) and getting the food cost subsidized by a pharma rep is just good state business; but that money could have lowered drug costs or provided free meds to who knows how many (or for that matter it could have paid for my gas/travels cost to attend as an unpaid consumer. The principle of "Meaningful Involvement of People with HIV/AIDS" (MIPA) needs a lot of work in my opinion. sigh) And don't get me started on all those med adverts on American TV. Your doctor should be talking to you about what prescriptions you might need, and all these ads are a gross indulgence by fat-cat pharmaceuticals. ugh!**
Thank you this is very encouraging , I was in the same situation it was a hopeless, I just kept going on ,at the same time very aware of my situation .my CD count now is in the 300 up from 15. Life for me is a complete change but not a bad life just very different. I am so happy and thank full to wake up everyday do the same job I have passionately done since I was 8 years old. you seem to have a zest for life , The late stages of Aids is something very different from having HIV ( I think). Yes! I understand what your going through, it takes a special person. Zoltan
hopefully my neighbor hasn’t seen me in the middle of the night, through the window, with my mud maskROFLMAO
ojo. Hello, everyone!!
Yesterday, while eating my salad, I realized how blind I am, because I couldn’t see what I was eating, to tell you the truth, I felt scared. Well, I’m not sure if that was the right sensation bath, I felt concerned and worried about what am I going to do with my vision gets worse.
If you had read my thread, you know that when I got my cat, my DX, I wasn’t that worried, when I asked the doctor how much longer I would live, and he told me around two years, it was Dan went I felt like yesterday. I was in bed for four or five days until I realized that I was already. wasting some days off those two years that I was supposed to live so I got out of bed, took a shower and called the office to let them know that I was going to be in the office the next day to go back to work. Now it’s different , I think, I guess I will have to start looking for some help and how to live with my blindness. I know that I’m going to be OK but still, a hug will be appreciated…
happy 29th HIVersary to meCongratulations!
again, I don’t understand why I’m still here even though hi lived with zero cd4 for so long and he made me sad seeing my loved ones dying before me. Sorry for the rant…That's not a rant. :) That's just your truth....and the truth of a lot of long term survivors.
I think that working hard kept me alivefor me, it was my dogs. :-* All seven of them! ;D
for me, it was my dogs. :-* All seven of them! ;D
Now it's for my 2 doggos and hubby. :-* :-* :-*
“tonny2 the pirate”LOL
I wanted to die completely although, they had already cut off a little piece of my skin when I was young, you understand, hahaha (foreskin).OMG LOL
I think they had already seen a video of the surgery, they will not remove my entire eye, only the pupil and iris, the sclera, the white of the eye will remain, and after the eye recovers they will have me make a prosthesis.oh WOW!
Finally, I have scheduled my eye surgery. Hopefully my pain will go away for good and I will have a better quality of life getting rid of one pain.… I will keep you posted… Hugs
Still in pain but it is getting better
I am doing better, although my eye is still swollen no more pain tho.I know this isn't how you would have really wanted things to go; but I am glad for you to hear that you're not in pain. Healing is always a slow process, and you're getting there little by little! ;)
But I can’t complain, I have had a good life, sometimes a little difficult but still life itselflife itself! amen to that.
I am doing better, although my eye is still swollen no more pain tho.
today I paid off my mortgageOMG!! :) :)
I was going to die, then I go and get a mortgage for 30 yearsMy first partner and I signed a 15-yr land contract. By that point, I knew Randy wasn't going to making it very long and figured I wouldn't either. It seemed like a fine deal to us as dying 30yr olds. At least we'd have a home while we got sick and died; but we've never have to worry about paying off the land contract.