POZ Community Forums
Main Forums => I Just Tested Poz => Topic started by: Peterdenmark on November 01, 2013, 12:36:37 pm
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Hi all,
Just want to share my best news since my diagnosis in april.
Today my cd4 jumped to 260, after being at 120 the last 5 months.
Actually also means I dont have aids anymore, just only hiv.
Have a nice weekend everybody.
And for other people close to zero, keep fight and have hope - our meds truly works :-)
Hugs
Peter
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That is wonderful news Peter ! We need to dress our pill bottles in little ninja outfits because these ARV's are kick ass .
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That is wonderful news Peter ! We need to dress our pill bottles in little ninja outfits because these ARV's are kick ass .
YES,
Its amazing,
I called my doc Harry Potter today, and he couldnt stop laughing.
Have a nice weekend Jeff :)
Hugs
Peter
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Great news Peter!! :)
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Great news Peter!! :)
Thx Mitch,
Im so happy :)
I feel like I win in lotto, 6 month ago death was holding my hand, and now I feel alive and back.
Hope this can giver other people in same situation hope :)
Hugs
Peter
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Your post is making me smile.
Congratulations Peter
Enjoy your Day
Michael
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Your post is making me smile.
Congratulations Peter
Enjoy your Day
Michael
Thx michael
Same to you - u always give positive feedback to many people here on the forum :)
Hugs
Peter
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Peterdenmark!!!!!!
(((((Yippee!!!!!!!Thats great news.Have a fantastic weekend with your family)))))))))
britchickx
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8) Hi Pedro
gode nyheder tillykke ven
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8) Hi Pedro
gode nyheder tillykke ven
Haha Rene
U Can write Danish :-)
Thx - and congratz with u beating Brazil In football
Hugs
Peter
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Peterdenmark!!!!!!
(((((Yippee!!!!!!!Thats great news.Have a fantastic weekend with your family)))))))))
britchickx
The evening have just started :-) on my Way out to have steak and Wine :-)
Nice weekend to u too
Hugs
Peter
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:)Hi Peter and everybody who reads this.
I just want to let you all know, how great it feels, when one of us, is getting these kind of news and see you all being so happy for Peter. THANK YOU members, for this kind of replies I signed up for this forun.
PS bear with me, English it's still my second language, ok
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I'm so happy peter! I hope your molluscum is better too!
I'm 164 after three months and hoping for a similar result after 6 :)
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I'm so happy peter! I hope your molluscum is better too!
I'm 164 after three months and hoping for a similar result after 6 :)
Hi Wolfthorn,
Yes my MCis almost gone, think its because my cd4 count is rising fast. (Earlier I thought it was because of basiron acne creme lol)
I Only have some Ofuji left, but whats left is no problem - I thought a month ago I would never look normal again - som Im very happy now. My look was same the really ugly pictures from the 80's .
Wolfthorn, you was low on cd4 too, but Im sure you will rise fast and soon.
Plz give feedback on yr next lab results, and best of luck from here :)
Hugs
Peter
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thats great ur out of the so called danger zone under 200...i hope i get some good news like that aswell. im doing bloodwork tommorow so ill see in a week! hope ur progress continues as good as it has so far. congrats
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Hi agaiń everybody,
I hope its ok to continue to write in this tread.
Just came back from doc, and my cd4 are now 280, but probably the most important thing is that my cd% doubled from 10 to 20 :)
Furthermore I will not need monthly appointment anymore - only once every 3 months now - so things are certainly better.
Wish U all a beatifull Xmas and a happy new year.
Thank you everybody for always being here, and to listen and help :-)
Xmas hugs
Peter
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Hi Peter . That's some crazy good progress you are making, congratulations !
It good you posted here because it keeps your progress and thought's in one place to see and comment on .
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Great news Peter! And you're right, it's very important that you have experienced a doubling of your CD4 %. Hopefully your absolute CD4 count will follow suit very soon!
Hugs back atcha!
Ann
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What meds are you on?
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Hey Peter I just want to make a comment on your post I don't think anyone else could have put it better than you when u said "don't have AIDS anymore JUST hiv. Emphasis on the JUST. I think we all need to remember this is just what it is a virus. Good luck and wishing u many more healthy years ahead.
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What meds are you on?
Hi again,
My meds are Isentress and Truvada - its really working for me.
And close to zero sideeffects, if any... :-)
Kind regards
Peder
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Hey Peter I just want to make a comment on your post I don't think anyone else could have put it better than you when u said "don't have AIDS anymore JUST hiv. Emphasis on the JUST. I think we all need to remember this is just what it is a virus. Good luck and wishing u many more healthy years ahead.
Hi
Thank u so much, and I hope the same for u and everyone here.
Merry Xmas to u all :-)
Hugs
Peter
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Peter!
The additions to this thread slipped through my fingers. :-[
Thanks for telling us of your great news! :)
Wishing you the best of holidays!
m.
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Great news! Great number! :)
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hi everybody,
Hope its Ok, once again to share some good news
I just received my new CD4 counts from my Doc, and it went over the roof - its now amazing 590.
I'm very happy, and i feel good.
To newcomers here - I was tested poz April 2013, with a CD4 of zero - and several OI,so if I can make it - we all can :-)
Thx to all of u for being here
Hugs
Peter
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Great News! Gives me hope for myself. :)
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Thank you. Thank you. Thank you for posting your journey.
It certainly has given me hope - and proof that this can be done!
Congrats!
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Peterdenmark,
Good to hear from you .......and great numbers!!!
Have a fantastic weekend.
britchickxx
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Well done PeterDenmark! I have followed you since last year and hoped for the better. I am so glad about your CD4; you have made a serious but positive improvement. I hope your story will encourage others on this forum.
If Peter can go from Zero to 590, then anyone here feeling life is over for them know there is a massive pile of HOPE! All you need to do is brace yourself and get on the meds. I am not saying it is easy....
Blessings to all.
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Hi everybody,
I hope its OK to give an update, and also I would like some info
The good news are continuing, my CD4 count are now amazing 800, and my percentage went up to 29 ;D
Im feeling good, still have some smaller issues with my skin. But due to the fact that Im a heterosexual man, Its very normal - i know gay men look better than me :-)
Its not a big problem anymore, and due to my numbers, the doctors dont think its hiv related anymore - or the Ofuji can still make some flares now and then.
My question is in regard to my new meds, they put me on today.
My combo before was Truvada and Isentress, and the new one is Truvada and a new "stuff" named Tivicay - have anyone here experiance on this meds ?
Thx in advance - and hope everyone out there will have a nice weekend.
We are poz, but we always need to have a possitive mindset :-)
Hugs and love
Peder
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Hey Peder...
It's always OK to post here and update your news! I don't know much about Tivicay except that it is new and is supposed to be "easier on your system." My ID doc has talked to me about changing my med from Atripla to Epzicom/Tivicay because it minimizes side effects like issues with Triglycerides and Creatine.
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Hey Peder...
It's always OK to post here and update your news! I don't know much about Tivicay except that it is new and is supposed to be "easier on your system." My ID doc has talked to me about changing my med from Atripla to Epzicom/Tivicay because it minimizes side effects like issues with Triglycerides and Creatine.
Thx
U are always very helpfull and informative :)
I read some info from google - and the list of sideeffects was crazy.... Buts they write that on all meds... Lol
Hope I will feel fine with this new one too
Thx again :-)
Peder
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Thx
U are always very helpfull and informative :)
I read some info from google - and the list of sideeffects was crazy.... Buts they write that on all meds... Lol
Hope I will feel fine with this new one too
Thx again :-)
Peder
Hej min ven...good things always come for those who wait...I'm so envious of you hehehe, but super happy for u...CONGRATULATIONS..question?, why the change of meds?...hugs minven
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I read some info from google - and the list of sideeffects was crazy..
anytime anyone wants to know something about a med, they should google the name of the med and the words "Package insert" (ie google "Tivicay package insert"). This will get you the official doc about that med.
https://www.viivhealthcare.com/media/58599/us_tivicay.pdf
------------------------------ ADVERSE REACTIONS ------------------------------
The most common adverse reactions of moderate to severe intensity and
incidence ≥2% (in those receiving TIVICAY in any one adult trial) are
insomnia and headache. (6.1)
6 ADVERSE REACTIONS
The following adverse drug reactions (adverse events assessed as causally related by the
investigator or ADRs) are discussed in other sections of the labeling:
• Hypersensitivity reactions [see Warnings and Precautions (5.1)].
• Effects on serum liver biochemistries in patients with hepatitis B or C co-infection [see
Warnings and Precautions (5.2)].
• Fat Redistribution [see Warnings and Precautions (5.3)].
• Immune Reconstitution Syndrome [see Warnings and Precautions (5.4)].
Psychiatric
Insomnia <1% <1% 3% 2%
Abnormal dreams <1% <1% <1% 2%
Nervous System
Dizziness <1% <1% <1% 5%
Headache <1% <1% 2% 2%
Gastrointestinal
Nausea 1% 1% <1% 3%
Diarrhea <1% <1% <1% 2%
Skin and Subcutaneous
Tissue
Rasha
0 <1% <1% 6%
Ear and Labyrinth
Vertigo 0 <1% 0 2% a
Includes pooled terms: rash, rash generalized, rash macular, rash maculo-papular, rash pruritic,
and drug eruption.
In addition, Grade 1 insomnia was reported by 1% and <1% of subjects receiving
TIVICAY and raltegravir, respectively, in SPRING-2; whereas in SINGLE the rates were 7%
and 3% for TIVICAY and ATRIPLA, respectively.
(the part was a really nice chart that didn't copy-n-paste very well LOL)
so pretty much only about 2% of patients experienced any side effects at all, with almost all effects being short term. ;)
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Hi Peter,
Congrats on your numbers you big showoff ;D you must be a freakin mutant.. I know I look like one .. Seriously, I'm happy for you..
I'm on Tivicay/Truvada now and all I can say its much better than Atriping but haven't seen numbers yet, not till end of the month.. got my fingers crossed, wish me luck.
Wishing you continued success and all that stuff :)
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Hi Peter -
I tested poz July 11 (seems to be a few others who did as well). VL was 12,700 and CD 730. Started Truvada and Tivicay July 25. Blood test on Monday August 18. I have had no side effects other than actually feeling more focused. Also I take my meds in the morning and look forward to it--weird I know, but I do. Will keep you posted on my counts. I noodled around on google to find out what the best meds were for HIV, all I found is that one site said Truvada is very potent and that Tivicay did well in trials. I don't speak math or science language at all. But another doc at my clinical said my ID doc is a "rock star". So if a rock star says take this combo I am going with it.
Great news about your CD 4 counts. Let me know how the combo is going for you. Cheers!
NTM
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Hej min ven...good things always come for those who wait...I'm so envious of you hehehe, but super happy for u...CONGRATULATIONS..question?, why the change of meds?...hugs minven
Thx my friend :)
My doctor said this meds is easier to take, because only 1 tablet per day, furthermore its very potent, but should have less sideeffects..
@Leatherman
Thx for all the needed info - I will read it all ;D
Hi Peter,
Congrats on your numbers you big showoff ;D you must be a freakin mutant.. I know I look like one .. Seriously, I'm happy for you..
I'm on Tivicay/Truvada now and all I can say its much better than Atriping but haven't seen numbers yet, not till end of the month.. got my fingers crossed, wish me luck.
Wishing you continued success and all that stuff :)
Hi your number will rise same mine did - our situation was similar.
I cross my fingers for yr number to skyrocket - best of luck :)
Hi Peter -
I tested poz July 11 (seems to be a few others who did as well). VL was 12,700 and CD 730. Started Truvada and Tivicay July 25. Blood test on Monday August 18. I have had no side effects other than actually feeling more focused. Also I take my meds in the morning and look forward to it--weird I know, but I do. Will keep you posted on my counts. I noodled around on google to find out what the best meds were for HIV, all I found is that one site said Truvada is very potent and that Tivicay did well in trials. I don't speak math or science language at all. But another doc at my clinical said my ID doc is a "rock star". So if a rock star says take this combo I am going with it.
Great news about your CD 4 counts. Let me know how the combo is going for you. Cheers!
NTM
Hi NTM
If this meds are a "rockstart" it really must do something heavy shit with the virus lol :)
I will guess yr next test show that U are uD, and with even higher CD count.
Best of luck - and thx for yr info
Hugs
Peter
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Nice to hear the update Peder. Great rebound! :)
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Thx my friend :)
My doctor said this meds is easier to take, because only 1 tablet per day, furthermore its very potent, but should have less sideeffects..
Best of luck - and thx for yr info
Hugs
Peter
thanks my friend and good luck with the new pill...I hate u heheheh
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I'm loving that you are doing so well.
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congrats !!
when first tested i only had 48 t-cells and that was a 100 yrs ago.So it may not be the end of the world after all i reckon.
On a sad note, I'm out of almond joys now.
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Hi Peter --
I started Truvada Tivicay on July 25 . On August 18, I was UD with an assay that shows detectable if greater than 20. So this is a good combo. Keep me posted.
NTM
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I was reading an article about if over 50 years old and have AIDS, one's CD4 can never reach above 350. But Peter, your CD4 increase from 0 to 800. Your story would encourage many people.....really happy for you.