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Recent Posts

Pages: [1] 2 3 ... 10
1
Forums Gatherings / Re: 18th July - Peer support call - HIV Meds.
« Last post by Tonny2 on Yesterday at 09:18:32 pm »



                ojo.          @JimAllen, my friend I forgot the ask you that send ne an invite, I can’t wait to see what the expert Michael have shared with you guys… please, Jim, I want to participate in the peer support group. Although next month, I will have something better to do. I would be suffering on the beautiful wishes of Cancun, MEXICO, but maybe for September I will be able to attend, obviously if you invite me.


Just to remember all those years when all of us were learning about the pandemic makes me sad. What I remember the most is when people were dying alone and the doctors and nurses had to wear like astronaut suit. Just like people with Covid hat to endure. As remember, my father telling his girlfriend via video camera that he felt so lonely because nobody was able to visit him. He died depressed because he didn’t want to be tubed… anyway, it is what it is. Times have changed for better speaking of HIV treatment so call me let’s stop playing the victims let’s be VICTORS because we can still make plans for the future and for those who want to have babies, they can have them HIV free… Hugs
2
Forums Gatherings / Re: 18th July - Peer support call - HIV Meds.
« Last post by numbersguy82 on Yesterday at 06:30:32 pm »
My notes will be posted tomorrow instead, sorry all.  Without going into details it's been a dramatic day and I need sleep.

Best, Jim.

 ;D Thanks, you make me blush, I wish I could take credit but it stems from my first ID that said to survive  you need to learn more than the doctors. Times have changed thankfully.

Uhhhh ohhhh who packed the Drama Llama???
3
Forums Gatherings / Re: 18th July - Peer support call - HIV Meds.
« Last post by Jim Allen on Yesterday at 05:48:55 pm »
👍

A very informative session and an excellent presentation and I loved the discussion and questions. I will post some notes including a link to the deck presented by Micheal later today.

My notes will be posted tomorrow instead, sorry all.  Without going into details it's been a dramatic day and I need sleep.

Best, Jim.

Speaking of Jim, a big thanks :-* to him for giving such great information in the Q&A session afterwards. While I've learned a lot about HIV in my 40 yrs. living with it, and I've taken a lot of the medications, I can't even begin to rattle off all those generic drug names and regimens like Jim does. Dude! You're brilliant! :D

 ;D Thanks, you make me blush, I wish I could take credit but it stems from my first ID that said to survive  you need to learn more than the doctors. Times have changed thankfully.
4
Do I Have HIV? / Re: HIV Paranoia and OCD.. Help
« Last post by Jim Allen on Yesterday at 05:00:06 pm »
Quote
’m fighting my HIV phobia and ocd as hard as I can until I get tested again in September for my annual physical.



Quote
So I know that insertive oral sex is not a risk for HIV.. but I went and got tested a couple of days ago which was on the 6th week (43rd) day after the oral sex incident. I went and got tested only because I haven’t been tested in over 4 months anyways and it’s for piece of mind.

I'm not buying it. It's July, not September and you did not need testing, you just ran out and got tested for no reason and with the wrong test given the time frame even if it was a risk (it was not a risk, so that's good) and this isn't going to resolve your issues, you need a psychiatrist.

Anyhow being somewhat dehydrated or not makes no difference. Please don't post about this again, thank you.
5
Do I Have HIV? / Re: HIV Paranoia and OCD.. Help
« Last post by Floridaboy1992 on Yesterday at 04:40:58 pm »
Hey Jim, I have been getting better with it. I have learned quite a bit over theee months. So I know that insertive oral sex is not a risk for HIV.. but I went and got tested a couple of days ago which was on the 6th week (43rd) day after the oral sex incident. I went and got tested only because I haven’t been tested in over 4 months anyways and it’s for piece of mind. I went to a STD clinic nearby and they did a 2nd gen Rapid HIV test along with rapid Syphillis and rapid Hep C test. All came back negative.

The question that I have which is just out of curiosity is, can being dehydrated possibly interfere with a HIV test accuracy let’s just say in general? They took my blood from my finger with no issue for the HIV test and Hep C test, but for the Syphillis test, it required a lot more blood from my finger and the guy pricked my right finger and not enough blood was coming out and he said that is from dehydration, which I was dehydrated. So he pricked my left finger instead. I’m just curious to know, thank you.
6
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 01:43:51 pm »



                ojo.             @Brian1966, I’m glad that everything is okay after your crazy lonoscopy and yes, you are right, my doctor wants the be proactive and that’s good…about your blood wirk results and ekg, you are going to be fine.


ojo means like “take a look” then my post but in spanish means eye…i use it as my own emoji the two circles represent my eye balls and the j my nose…hugs
7
Forums Gatherings / Re: 18th July - Peer support call - HIV Meds.
« Last post by leatherman on Yesterday at 01:29:43 pm »
Thanks! I was really glad that I could present this information about the HIV life cycle, medications and what they do, and what drug resistance is and how to not have that problem (take your daily meds!)

Jim will be posting a link to a pdf version of this presentation. If anyone would like to know more about how HIV meds work against HIV make sure to grab it and a take a look! If you have any questions, please feel free to PM me or post your question here....or make plans to attend our peer support group next month. You're going to be on ARVs for the rest of your life, you might as well know what they're doing for you!  ;) :D

Speaking of Jim, a big thanks :-* to him for giving such great information in the Q&A session afterwards. While I've learned a lot about HIV in my 40 yrs. living with it, and I've taken a lot of the medications, I can't even begin to rattle off all those generic drug names and regimens like Jim does. Dude! You're brilliant! :D
8
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 01:09:53 pm »



             ojo.                Hi Michael, I think it was called amprenavir, the dose was two capsule twice a day but I was taking Kaletra which contains  ritonavir and  intereacted with amprenavir that’s why instead of two caps I will take six twice a day…norvir luquid form , awful taste, I remember…And you are right, we still have just two choices in treading hiv , taking meds and live or worrying about what’s going to be the ling time effects of taking the meds and dying for not taking them.… I guess we, long time survivors, have been taking meds for a long time and we are still here. We will be warring when we have something to worry about. so far so good… Hugs


Ps. again, excuse my typos, trust me I’m trying my best to avoid them
9
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Brian1966 on Yesterday at 12:43:11 pm »
@ Tonny2  What does "ojo" mean?
Thanks
10
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Brian1966 on Yesterday at 12:41:38 pm »
@ Tonny 2

Your English is fine for me.  I've been around a lot of people who English isn't their native tongue and I'm pretty used to it.  I had my first colonoscopy in 2022, a few months prior to my hospitalization & diagnosis that November.  My doctor had me come in for a second follow up colonoscopy the following year even though there were no polyps because I have a family history of colon cancer and they didn't have a baseline on me.  In 2023 I went in for my 1-year follow up and is was again no polyps so it went back to 5-years.  I think it's just out of an abundance of caution since colon cancer can be so aggressive in some people.  I look at it as just a necessary pain in the butt.

The doctor was also able to see where the 3 inches of intestine had been removed and my intestine sewed back together when I had a pinched off hernia.  He said it looked like it healed well.

The good news is that it sounds as if your doctor cares about your well being so that's something to be thankful for.

Just got my routine labs pulled yesterday and had a followup echo-cardiogram this morning, will get my labs results on August 6 and the cardiologist will call me with the results after he evaluates it.  I hate the waiting.  My brain is my worst enemy whenever I wait for any test results.

Take care everyone. 
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