POZ Community Forums
Main Forums => Living With HIV => Topic started by: Life on August 31, 2006, 10:15:56 pm
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AIDS2HIV (or by his real name Co) Had dropped out of site for the past month. He has been active here for awhile but has quit posting... He just posted on another site and I am extremly worried about him.. His virus is at him again.. Here is a small post that I copied and brought with me... I know he would not mind... Hes such a good man.. Can anyone suggest something for him.... I TOLD CO TO GET HIS ASS OVER HERE...
Co's Post...
well first let me thank you all for your concerns I went to my specialist yesterday to be told my disease is mutating and becoming resistant to my meds. Oral candida & hairy leukoplakia have returned, weight loss has began again, and it just keeps getting better from there. My eyesight is no good, my memory has been eaten up.
My Heart is broken, my spirit is ready, if it werent for my 5 yr old, id just give in, and let this disease run its course
doc has added another protease inhibitor to see if it will reguvinate the regimon im on, Im on Viread, Viramune, and Epivir, now reyataz also...
Ive already been through the crap of laying in the hospital to the poster who mentioned it, i spent 3 months of 2005 confined to a bed, in and out of hospitals. When i was diagnosed i was full blown aids, with OI's, was meant for death, but just couldnt let go of what i wanted in life, since then I've done alot of what ive wanted. Doc also added prozac to my mix....so those will be some funny ass posts when those get here*
So far ive resisted trizaver,kaletra,,and a list of others, right at diagnosis. They got me on Viread and Virume & Epivir, cuz the others they first tried didnt work, after 1 1/2 yrs on it, my Tcells all time high is 212, but now my counts are fluctuating quite a bit, my viral load is steadily rising, and my percentage is dropping...Im on my way to another doctor to be checked for skin cancer this afternoon....yippy*
Im not so sure i wanna keep prolonging things, no one lives in a fairytale life, and mines no different. My house makes daiseys look like an episode of Happy Days. To thine own self be true, is one thing i believe in.
/end
Co. has helped so many many people come to terms with living with HIV... He needs help!
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Sounds like he has already been to hell and back. I never got a chance to know him, as I have not been around here all that long.
My thoughs and prayers go out to him anyway.
Patrick
PS -- Eric, you are a good friend to many people from what I have been reading. Kudos to you, dear.
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I feel helpless... :(
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Eric,
Some perspective, perhaps. I think it's great that you're seeking help for Co. I admire him very much and am saddened to hear that he's unwell. I think Gerry and Newt will comment appropriately and soon too. They're definitely the ones to handle this.
But babe, don't get too worked up about this. Take a breath and remember you can only do so much. We don't want you to burn out, ok? Ultimately this is up to Co, and complex decisions like this are best made in a calm environment.
Fondly,
MtD
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Thanks Matty... I am just concerned - He made such a difference in my life a year ago...
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Thanks Matty... I am just concerned - He made such a difference in my life a year ago...
I know honey. I appreciate that you're concerned, and I think you're being a good mate to him. I'm just saying the best results in these situations are achieved when we don't become over-wrought. I don't think you are, but it never hurts for someone to say, "take a deep breath queen." ;)
He's lucky to have you as a friend.
MtD
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i have left a couple messages to try and get him to keep on trying and not give up,and you know eric,hes helped me out on the other site too,i feel bad that hes in such a rotten place in life right now,hopefully others will help pull him out of the duldrums,god knows im trying.i hope he continues to remember his child and use that for insipation.take care
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Only 2 things I can say, both kinda technical:
1. Resistance tests? (please).
2. He should be using a Norvir booster with Reyataz if he's taking Viramune because this drug reduces the level of Reyataz in the body by an important amount.
N good luck eh?
- matt
Now playing: James Taylor, Danny's Song
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Hi Eric,
Like Matt said, it's kinda difficult to comment based on the information provided. If he can give a little more detail about his treatment history and response, resistance test results, etc., then it might be more possible to make constructive comments...or get answers from expert sources. Hope he gets back to us.
Gerry
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Eric, everyone.....thanks for the concern in this, things will work out, i do appreciate your friendships, and i do appreciate the concern. I'll figure things out, its just that feeling out phase, all over again, with meds. I been viramune, viread, and epivir for a lil over a yr now.....my C4's have gone down, i went from a percentage of 33.61% down to 18.28%, my viral load is back on the rise, as are the OI's i had at diagnosis. Im being referrred to a dermo, for a skin biopsy to see if i have any cancers from this all. Today i started reyataz, into my regimon.
i been on a shitload of pills since the very beginning, was resistant to most, and i have a fatal allergic reaction to anything with an azt base in it.(it kills my bone marrow, stopping red cells of oxygenated blood supply,depriving my body of oxygen) Everyone is stressed about it but me. Ive had my fun, and ive paid all my consequences, I fully accept anything that comes my way in life, even death. I do what i do simply because i dont want others to have to be in my shoes, if possible. I spent three months confined to bed of 05, when i was diagnosed, and in the late stages of aids. I dont like the bed after that. I was unable to feed myself, or care for myself in any way. Im stuck between the doctor and the politician when it comes to income, a doctor that wont release me to work, and a politician that has yet to give me a disability hearing...(scheduled for january of 07). Stress is huge at my house, always is.....i have 7 daughters and wife.....that many women, that many PMS guns, thiers bound to be drama and stress*
Thank You Eric, You are a great friend, and im honored to have you as such, im flattered that you think of me so highly, im just a man with aids, trying to do the right thing before i leave this Earth. You would think as many Kotex products ive had to buy over the years, that company would step up and help me out, but i guess not*.....maybe instead of a casket, i can but into a giant plastic applicator* LOL
at any rate, ive got hurdles to jump, and a race to win, just gotta tune up my pit crew* Thank You everyone, and thank you Eric....You are a very dear friend* God Bless*
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A2H,
I'm glad you are reading the well wishes and concerns. I know where you are at, because I watched my husband go through what you are dealing with.
Please be open with your wife, and children, and tell them what's on your mind. Tell them how you are feeling, emotionally and physically. They will understand and support you.
Just remember, that while there is still breath in your body, you have a fighting chance. The fight will be difficult, but at least you will give it your best shot.
Hang in there, A2H. You are greatly loved by many.
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AIDS2HIV....Hi, I am so very sorry you are going through a difficult time bud. I hope you can reach down deep inside yourself to find the strength you will need to get through this hard time. It sounds like you are.:) There are several people in here that care an awful lot about you. and Eric is the at the top of that list. and we are all very lucky to have such an inspiring, loving and caring person in our midst. Eric is an amazing person.
ID like to thank you for making me realize how precious life is, and how each day we all have is meaningful and awesome. I hope and pray you are able to jump these hurdles in front of you.
All the best,
Jeff
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Co... Please do what Matt and Gerry are asking you to do as far as resistance testing with your doc if you have not already. Tam and the kids need you and you cannot do this stuff by yourself.. You know that better than me. Otherwise I am coming down there and hauling your ass out of there by god and taking you myself !
Love Eric & William !!!!!!!!!
PS. William sends you his love and is concerened about you deeply...
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o my,a2h, i had no idea you were surrounded by so many women,and i thought i had it bad.mabey your just a little tierd from waiting for the privy in the am.anyway please do what needs to be done as far as the tests that are being mentioned,i agree with eric,i will come ant help him,im good for up to 270 in lbs i can deadlift so im sure we can drag you where you have to go.and dont give up not only your immediate family needs you but so do we,remember kicking me in the head when i first started going on the boards?you and eric tagged up on me,well im ready and able to return the help now,as for the plastic applicator thats too funny,keep that sence of humor,take care ;)
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Co
You know you can count me as another person here on the boards who thinks very highly of you. It is so amazing to hear your humor coming back....thats right. Plastic applicator !!! Hey when I go I have considered having my ashes mixed into a glaze and put on a pot and fired up. Hows that for dramatic.
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Hello Co,
Do what you need to do in order to get those test results back. You will pull through this, you are a strong man with a lot of support from us.
Have the BEST Day!
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Co... Whats the news? Please let us know how you are doing!
Love