Welcome, Guest. Please login or register.
July 21, 2024, 03:07:51 pm

Login with username, password and session length


Members
Stats
  • Total Posts: 774139
  • Total Topics: 66457
  • Online Today: 573
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 1
Guests: 168
Total: 169

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Positive since September 2023  (Read 9569 times)

0 Members and 1 Guest are viewing this topic.

Offline Pizza4life

  • Member
  • Posts: 3
Positive since September 2023
« on: October 17, 2023, 09:00:46 pm »
Iíve been having a lot of emotional days. And Iíve been disconnecting from conversations and moments. Itís not in a suicidal way, more of a reminiscing way. I keep wondering how it could happen to me. Iíve never had an std before. My first std, HIV! And I get tested monthly even if Iím celibate. One year I was celibate and I still got tested because Iím on top of my health.

Itís September 2023. Iím in NYC. I am an Asian transwoman, 37. I was dating a guy I met on Grindr. He was a video editor. I donít think he knew he was positive. I started having symptoms immediately the following week because Iím a bottom. The diarrhea was a red flag, I thought it was a parasite. I went to my doctor and they mistakenly prescribed me medication for parasites. One week after that the fever and headaches began. I finally went to the ER. I asked them to test for STDs. Iíll never forget September 21 11am. Mount Sinai called me to tell me I tested positive. I screamed No!!!!!!! They couldnít fit me into their schedule for treatment so I grabbed my bag and went to Callen Lorde.

At Callen Lorde they did a rapid test and I was negative. I asked for the longer test and it was positive. I took my first biktarvy. I let the news burn my soul and guts for one whole day. It hurt so deep. I told my family and friends the next day, I needed them to know. I was scared. I cried alot. Ive been living amongst heterosexuals too long i forgot HIV existed and i thought my life was over.

My viral load 10,000. My CD4 192.

I flew home to be with family. 5 days on Biktarvy, my diarrhea finally stopped. Iím really into my body and health. I watch my poop everyday. Iím not from USA, Im from Asia. We pay attention to these things. After reading this forum I learned HIV likes to attack the gut. I understand it, it needs to destroy our microbial to thrive.

Itís now October 2023. Almost one month since my diagnosis. I feel empowered. Iíve educated myself about the virus. Every day I watch 1-3 hours to learn about the virus, following any news about a cure, and reading so many things.

October 6: I went to Mount Sinai infectious diseases to see what they could offer. Iíd like to join any clinical trials for a cure or vaccine but they told me they donít do research. They took my blood.

My viral load is below 1000. CD4 451

Iím returning back to Callen Lorde for continued treatment. My provider is expecting Iíll be undetectable very soon because I stopped it early. Letís change the stigma and empower people.

As someone newly diagnosed in NYC, Iím looking for any resources anyone could recommend. Iíve joined HASA already but it seems finding an apartment is quite challenging. Iím unemployed and confused how I can find work if I need Medicaid to get my medication paid for. I was a sugar baby previously and stupid decided to date a normal guy because he was hot. Well there goes my sugar baby career. 😩😂
« Last Edit: October 17, 2023, 09:08:06 pm by Pizza4life »

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 22,704
  • Threads: @jim16309
    • Social Media: Threads
Re: Positive since September 2023
« Reply #1 on: October 18, 2023, 02:22:09 am »
Sorry to hear about the diagnosis. Glad you have access to treatment and have started treatment.

Don't overdo it on the reading stuff, take it easy.


HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,699
  • Google and HIV meds are Your Friends
Re: Positive since September 2023
« Reply #2 on: October 18, 2023, 09:00:42 am »
Iím unemployed and confused how I can find work if I need Medicaid to get my medication paid for.
You should talk to the people at Callen Lorde about this issue. Many agencies/providers have representatives that can help with this kind of issue. Often these representatives are liaisons with the Ryan White program which helps people living with HIV have access to medications and medical visits.

Medicaid does allow people to earn some money and still receive medical assistant. The dollar amount varies by state  (unfortunately the amount is often quite limited), so that's why it's best to speak to someone locally about this issue. Of course there's also the option to get employment that earns more, but then you would need to look at getting insurance to cover you medical expenses. The Ryan White program can also help when you're employed to cover the cost of insurance and to fill in gaps that insurance doesn't cover. Also most drug manufacturers have drug costs assistance programs that can help .


If you're looking for more information about HIV, medications, etc. there's a lot of information at POZ.com. If you check out the menu at the top under HIV/AIDS Basics.  https://www.poz.com/basics/hiv-basics
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Tonny2

  • Member
  • Posts: 3,077
Re: Positive since September 2023
« Reply #3 on: October 18, 2023, 01:09:44 pm »




           ojo.         Welvome to the forum!ÖI as Jim,recomend you to go easy about reading about hiv cure, all you are lucky to take a pill a day to keep making plans for the future, donít waste time reading about a cure, your doctor will is time to stop taling that and ne pill a day which, yo me, its almost a cureÖbest of luck and please keep us postedÖthere is life after an hiv diagnosis you just nedd to learn to live with hivÖhugs

Offline numbersguy82

  • Member
  • Posts: 592
  • Adrian Alan
    • Instagram
Re: Positive since September 2023
« Reply #4 on: October 20, 2023, 07:00:30 am »
Hello and welcome to the forums. I do hope that youíre staying upbeat and focusing on the good things instead of dwelling on the negative. An HIV diagnosis isnít the end of your life nor your career.

If you find that youíd like an outlet with like minded people, there is biweekly support every other Friday. Once youíve posted 3 times you will unlock your ability to private message. If youíre interested please PM myself or @Leatherman with your email address and we will ensure that you receive the Google meet link.

Friday October 27th will be the next one. Hang in there ❤️

Peer Support is returning, every THIRD Thursday beginning in July. New Time, New Day, New Format!

Offline Pizza4life

  • Member
  • Posts: 3
Re: Positive since September 2023
« Reply #5 on: October 24, 2023, 05:58:48 pm »
Hello and welcome to the forums. I do hope that youíre staying upbeat and focusing on the good things instead of dwelling on the negative. An HIV diagnosis isnít the end of your life nor your career.

If you find that youíd like an outlet with like minded people, there is biweekly support every other Friday. Once youíve posted 3 times you will unlock your ability to private message. If youíre interested please PM myself or @Leatherman with your email address and we will ensure that you receive the Google meet link.

Friday October 27th will be the next one. Hang in there ❤️



Thank you!

Offline leatherman

  • Global Moderator
  • Member
  • Posts: 8,699
  • Google and HIV meds are Your Friends
Re: Positive since September 2023
« Reply #6 on: October 26, 2023, 10:29:24 am »
And I get tested monthly even if Iím celibate. One year I was celibate and I still got tested because Iím on top of my health.
I happened to reread your post and wanted to mention a few things about this.

That sure was an overkill on testing...especially since testing doesn't stop a person from getting infected. All it can do is tell you whether you've already been infected or not. The same for other STI testing too. Getting tested when you've been celibate for an extended period, and not sharing injection needles, really isn't being on top of your health. It's really a waste of time (both yours and the clinic that did the test), money (yours or your insurance company), and resources (the clinic that did the test) for an already known result.

I know this doesn't apply in your case any longer but a lot of people read through these posts and I just wanted to point out that using prevention (condoms, PrEP) is better than testing so frequently.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.