Welcome, Guest. Please login or register.
March 28, 2024, 10:00:24 am

Login with username, password and session length


Members
Stats
  • Total Posts: 772945
  • Total Topics: 66310
  • Online Today: 377
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 3
Guests: 341
Total: 344

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: How fast can neuropathy develop?  (Read 12429 times)

0 Members and 1 Guest are viewing this topic.

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
How fast can neuropathy develop?
« on: June 20, 2010, 06:43:02 am »
What does neuropathy feel like? All the descriptions I read don't describe what I feel. It started about 6 weeks ago when I went on a PI - Prestiza and Norvir.

Symptoms -

1) always hurts to walk barefoot or in socks - feels like Im walking on bone. Not a shooting pain - just feels uncomfortable like every surface is made of concrete.

1) always feels like the day before I did a walkathon - I haver permanent muscle aches, sore tendons.  Walking, standing. Its uncomfortable but NOT shooting pain and not tingling either.  Some days or hours worse than others, but always have it.  When its really bad I feel like I could loose balance.

I see my ID at the end of next week.  Just wondering if these symptoms sound familiar to anyone???

Best
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: How fast can neuropathy develop?
« Reply #1 on: June 20, 2010, 07:49:17 am »

For me, my feet  always feel cold, but are normal temperature to touch. My PN started after I began therapy. ( about 5 months , I believe) The first time I noticed it, I was siting in the living room watching TV. I started feeling( out of nowhere) a mild to moderate tingling and numbing. Just like my feet were asleep.   I also want to mention, that about two weeks before the tingling, and pain started, I was tripping over my feet.  The feet were not hitting the ground right.

It never went away after that, it only got worse, before it got better.  At one point, it was so bad, I couldn't drive the car, The soles of the feet hurt so badly , like ground glass embedding itself in the bottom of my feet. It was also in both hands,and halfway up to the elbows

 There were also sensation of burning feet, and the same time the feet felt like they were frostbitten.

I spent a lot of money in 2004, trying to find a comfortable pair of shoes.

With shoes on,  It always felt as though there were small pebbles in the shoes.  Things eventually got better, But the tingling, the numbness, and mild to moderate pain still exists.


The neuropathy was at it's worst, when my t-cells were at their lowest.  It was less intense as the t-cells rose.  

Currently I don't feel the need to take anything for it.  Walking is not a huge problem for me right now.

My bigger concerns, is the slight pain I get in the hips.  Do a search here for PN, you'll find a lot more.



Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline Inchlingblue

  • Member
  • Posts: 3,117
  • Chad Ochocinco PETA Ad
Re: How fast can neuropathy develop?
« Reply #2 on: June 20, 2010, 12:33:21 pm »

1) always hurts to walk barefoot or in socks - feels like Im walking on bone. Not a shooting pain - just feels uncomfortable like every surface is made of concrete.


What you are describing with the feet sounds like it could be a loss of some of the fat padding at the soles of the feet; this is not uncommon with HIV.

I sometimes get very mild "pins and needles" on the feet and on the hands up to the elbow, it could be PN but if it is it's very mild. My doctor has all his HIV patients undergo a "Nerve Conductivity" test and mine came out with normal results.

I find that when I exercise it greatly improves the symptoms, which might indicate that it also has something to do with blood circulation.

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #3 on: June 20, 2010, 12:58:17 pm »
JRE - you had PN before you went on HAART, correct?

My situation - seroconversion and almost directly put on HAART. 

Doubt I have suddenly lost fat on my feet. Haven't lost it anywhere else :)  the reverse :)

Well, we will see what the doc says.  But I dont have pins and needles either.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: How fast can neuropathy develop?
« Reply #4 on: June 20, 2010, 12:59:44 pm »
Neuropathy can be a tricky thing because there are many forms of it .

I have had small nerve neuropathy since the early 90's . It began in my feet then began to affect different parts of my body as time passed . Some days are better than others and I never know where I will be hurting next but thankfully I don't get it much these days in my feet .

I used to get really freaked out by my phantom pains but have come to terms with it in the last few years . I used to think if I was hurting all over the end must surely be near but have learned it is painfull but its not killing me .

Small nerve neurapathy according to my neurologist is pretty common in HIV patients but under diagnosed and written off my by many doctors as some thing imagined by the patient .  
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #5 on: June 20, 2010, 01:05:42 pm »
And how to treat it???
How many times will I have to switch combos.  This happened just with the newest combo - prezista norvir.

What about all that carnitine and stuff like that? supplements to prevent mitochondria damage.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Inchlingblue

  • Member
  • Posts: 3,117
  • Chad Ochocinco PETA Ad
Re: How fast can neuropathy develop?
« Reply #6 on: June 20, 2010, 01:06:43 pm »
  But I dont have pins and needles either.

You had described getting "tingling" which is what I mean when I say "pins and needles."  These things can get hard to describe verbally but aren't they the same thing?

A Nerve Conductivity test can diagnose if it's PN or not, at least that's what my doctor said.

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #7 on: June 20, 2010, 01:22:35 pm »
no, I said no tingling, and no pins and needles.
yeah I guess the doc will figure it out, but I think this is one of the hard to diagnose and treat things.

maybe its not pn at all, but its something.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Inchlingblue

  • Member
  • Posts: 3,117
  • Chad Ochocinco PETA Ad
Re: How fast can neuropathy develop?
« Reply #8 on: June 20, 2010, 01:54:33 pm »
no, I said no tingling, and no pins and needles.
 

Sorry, I misread it.

You should ask about the Nerve Conductivity test, it's pretty simple. They connect wires and then measure the currents going through.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: How fast can neuropathy develop?
« Reply #9 on: June 20, 2010, 02:12:45 pm »
The nerve conductivity is a good test and the standard for most PN diagnosis .

In some cases such as mine with small nerve PN the conductivity test is not always of value . The way to diagnose small nerve neuropathy is a tissue sample of the skin .
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline WillyWump

  • Member
  • Posts: 7,367
  • EPIC FIERCENESS!
Re: How fast can neuropathy develop?
« Reply #10 on: June 20, 2010, 03:24:44 pm »
Intersting thread. I started having problems coincidentally right after my diagnosis (and before meds). Everything Iver read indicates that PN develops slowly over time, but in my case it seemed to come on rather suddenly.

My symptoms mirror JRE's, the most pronounced is the sensation that my feet are cold, but yet are warm to the touch. I also get the "frostbitten" feeling. less pronounced are the buring and pin prick sensations. the symptoms come and go, I can go several days without any symptoms, but then suddenly I get them. If I wear any sort of shoes(especially tennis shoes) it seems to flare up, sometimes I have to walk around with my tennis untied, or worse have to take off my shoes while im driving due to the pain. Sandals pose no problem, and I am now evolving into wearing primarily sandals, flip flops.

I didnt have any nerve conductivity tests, my doc just prescribed me Neurontin when I discussed the issue with her. BTW, Neurontin is a vile pain in the ass, all it does it make me so loopy that all Iw ant to do is sleep, I would rather put up with the pain which for now is minor than to take that horrid drug.

As a side note, Smoking can also constrict the vessels in your feet which may produce symtpoms that mimic PN.

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: How fast can neuropathy develop?
« Reply #11 on: June 20, 2010, 04:44:26 pm »
I was having pretty severe sensations in my extremities before starting HAART.  In fact I think I commented on a couple of threads about them.  My hands and feet were continually cold and when I would take a hot bath both extremities would begin feeling prickly and tingly for roughly an hour or two afterward.  All of this has since gone away but it persisted for probably 2-3 months.  I figured it was just poor blood flow because most people seem to think the PN comes as a result of the medication more than the disease.

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: How fast can neuropathy develop?
« Reply #12 on: June 20, 2010, 05:35:22 pm »
I figured it was just poor blood flow because most people seem to think the PN comes as a result of the medication more than the disease.

In general that's true, but there are several different types of PN, and while less frequent there is one type that is just from HIV infection itself.
"I’ve slept with enough men to know that I’m not gay"

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: How fast can neuropathy develop?
« Reply #13 on: June 20, 2010, 05:37:54 pm »
In general that's true, but there are several different types of PN, and while less frequent there is one type that is just from HIV infection itself.

None of them heal, however, right?  I'm no longer having any of those issues.

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: How fast can neuropathy develop?
« Reply #14 on: June 20, 2010, 05:38:04 pm »
JRE - you had PN before you went on HAART, correct?



Hi,..

No,  I didn't have any signs of PN prior to starting HAART. It was about 4 or 5 months into having started that issues with PN began.  I also had the nerve conduction tests done shortly after it started. and the PN was confirmed then.

Like I mentioned earlier, first it was tripping over the feet, then it started. All in a matter of about 2 weeks.




I want to repeat that besides the numbness, tingling, and cold sensation, there was an awful lot of pain.  And I mean foot pain.Like will,  I was prescribed Neurontin for it, but got very little relief from it.  I also believe that this was just about the time the Tinnitus started, or shortly after.

Any discomfort that I am having in my feet now ( besides related to PN) is also related to the fact that I lost a lot of padding in the bottom of my feet.l   I believe Inch, else has mentioned something on this also.

Some days are worse than others, but I am glad it's nowhere as bad as it was in 2004.


Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: How fast can neuropathy develop?
« Reply #15 on: June 20, 2010, 05:43:12 pm »


I wanted to add this also , But I'm sure you've already read this from the lessons :


http://www.aidsmeds.com/articles/Neuropathy_6910.shtml


Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: How fast can neuropathy develop?
« Reply #16 on: June 20, 2010, 06:06:44 pm »
None of them heal, however, right?  I'm no longer having any of those issues.

Was I diagnosing you personally?
"I’ve slept with enough men to know that I’m not gay"

Offline newt

  • Member
  • Posts: 3,900
  • the one and original newt
Re: How fast can neuropathy develop?
« Reply #17 on: June 21, 2010, 03:17:18 am »
As an alternative to consider, and perhaps relevant to the switch to a PI, is a peripheral vascular condition, a characterisitc of which is pain, weakness, numbness, or cramping in muscles from decreased blood flow.
"The object is to be a well patient, not a good patient"

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #18 on: June 21, 2010, 07:05:59 am »
THANKS NEWT -
And how do you know this is linked to PI??  Is this personal experience or can you give me like to research or something so I can show my doc. 
Many thanks.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline newt

  • Member
  • Posts: 3,900
  • the one and original newt
Re: How fast can neuropathy develop?
« Reply #19 on: June 22, 2010, 06:11:45 am »
None I can put up a link to that give access without subscription, or are not nerdy nerdy basic science that you need to be a physiologist to understand properly.

But, note, there is a wealth of research on PIs and an effect on cardiovascular physiology and pathology, and while the studies reported tend to be the ones concentrated on the biggie bad outcomes, eg type 2 diabetes, heart attack etc, there is enough content within these to make any decent physician wise to the possibility of peripheral vascular effects.

On the basic science, it seems highly likely that ritonavir affects important aspects of vascular metabolism which stop blood vessels relaxing and contracting properly. At least this is true for pigs, since most of the basic science been in pig tissue.

Personally, I know if I take an extra ritonavir, as sometimes happens, my fingers go like they've been outside in the cold. Ritonavir metabolism is very personal, so I wouldn't jump to the PN conclusion without looking at the circulation option. It's easy for your doc to assess this with a posh blood pressure test on your ankle too.

- matt
"The object is to be a well patient, not a good patient"

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #20 on: June 22, 2010, 03:49:39 pm »
Ok thanks man.  Amazingly precise.

(Oh by the way I read scientific English and have access to all scholarly journals online)  ::)

What is a "posh blood pressure test"  -  push? or you mean posh ironically??

I really would prefer to have a lower side effect profile than this!  The only reason I went on the PI again is that Intelence gave me a rash!  

So far its been
Sustiva - crazies
Reyataz - rash (pretty bad)
Intelence - quite a long run, then a rash (not so bad but doc said I should have no side effects)
now Prezista

Is there a non PI based combo I might inquire for?  Would it be nuts to try PI without the boosting?

Of all the side effects so far, Id say rash is better than painful feet and crazy mind!

Newt - you are a wealth of info - many many many thanks for generously sharing it so precisely.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: How fast can neuropathy develop?
« Reply #21 on: June 22, 2010, 06:18:44 pm »
Are Isentress & Truvada not available to you?

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #22 on: June 22, 2010, 08:47:18 pm »
Not sure about Isentress this year.
It wasnt available when i started, not sure why the ID wanted me on a PI again this year, but he was correct that the intelence rash would go away.

All good questions to ask him, of course.

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #23 on: June 29, 2010, 06:24:39 am »
Answers to questions to ID:

1) Isentress was approved only 2 months ago here, so he switched me today to Isentress.

2) Norvir was probably the cause of my mobility issues - and if so, they should go away within 2 days of stopping.

3) Another tiny blip to  80 rather than undetectable - 2 possible explanations:
    a)  I was reinfected
    b)  I have hay fever.

I responded that I have horrible hay fever this summer so he said it was that.

This is the 2nd time I have had a blip and 3rd time he explains unusual numbers by saying it could be reinfection.  I got just a subtle little itsy-bitsy-poo of gay sex prejudice.  He clearly takes reinfection seriously - I'll have to ask him next time to state his professional opinion on it. Cause he said "an explanation could be reinfection but I can't know because I don't know your sex life", at the same time it was clear he was not inviting me to discuss my "sex life".

There's kind of a weird interpersonal tension whenever I meet this guy.  Its neither negative nor positive energy, just sort of charged.

Also I try not to look at his strange hair treatments - dye jobs?? plugs? toupee??  Maybe he thinks I am what I am, a queen judging his beauty treatments.  I really do try NOT to look, but can't resist taking a peak.

Well, I'm just glad hes a big expert and can quickly apply all his experience and I don't have to fret too much. Full confidence in his professional knowledge though his bedside manner is well-known to be a bit off.

Also THANK GOD I live in a country with great medicine and great insurance to pay for it all!


« Last Edit: June 29, 2010, 06:28:18 am by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline newt

  • Member
  • Posts: 3,900
  • the one and original newt
Re: How fast can neuropathy develop?
« Reply #24 on: June 29, 2010, 06:51:08 am »
Well, docs are entitled to their opinion but reinfection does not cause blips it causes surges. 80 v 30, 40 or 50 copies is well within the margin of error for any viral load test. good about dropping the Norvir.

- matt
"The object is to be a well patient, not a good patient"

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: How fast can neuropathy develop?
« Reply #25 on: June 29, 2010, 10:03:35 am »
If every time you blip he's bringing up reinfection without even asking if you had unprotected sexual encounters I'd be looking for a new doctor.  What a jackass.  "Well you could be reinfected"...yes because I did attend that raw pozzie orgy where I was the gangbang bottom.  What a dick.  Sorry Mecch but if you're not pissed off about that I'm pissed off for you.

Offline Inchlingblue

  • Member
  • Posts: 3,117
  • Chad Ochocinco PETA Ad
Re: How fast can neuropathy develop?
« Reply #26 on: June 29, 2010, 11:03:30 am »
Why would he think it was due to hay fever? This might have an effect on CD4 counts but why would it have an effect as far as blips?
 
Blips can just happen, they have been shown to be clinically insignificant.

Siciliano has shown that residual viremia is not actively replicating virus but rather virus coming out of reservoirs. It's probably a good thing to have an occasional blip, it likely means the reservoirs are shedding more virus.

"Blips" in HIV Treatment Are No Cause for Alarm

SMALL INCREASES OR “BLIPS” IN HIV LEVELS DO NOT SIGNAL MUTATIONS LEADING TO DRUG-RESISTANT HIV


LINK:

http://www.hhmi.org/news/siliciano.html

http://www.hopkinsmedicine.org/Press_releases/2005/02_15_05.html

http://www.thebody.com/content/toparts/art50467.html

http://www.hopkins-aids.edu/q_a/patient/laboratory_tests/cd4_counts_and_viral_loads/viral_load__blip_.html?contentInstanceId=527951
 
« Last Edit: June 29, 2010, 11:37:44 am by Inchlingblue »

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: How fast can neuropathy develop?
« Reply #27 on: June 29, 2010, 12:09:07 pm »
Inchling is completely correct about blips.  I've had two of them in the past four years and they've never worried me, and I don't even get retested the next month.  One should always keep in mind that you're only being tested every 3-4 months.  If you could see lab results on a daily or weekly basis you'd probably see frequent low number VL blips.

And yeah, I don't see why it warranted a hay fever connection comment, much less the reinfection one.  I find that a bit odd and potentially troublesome frankly.
"I’ve slept with enough men to know that I’m not gay"

Offline mecch

  • Member
  • Posts: 13,455
  • red pill? or blue pill?
Re: How fast can neuropathy develop?
« Reply #28 on: June 29, 2010, 01:03:15 pm »
1)  He said he has noticed blips during patients' hayfever periods and maybe it has to with some effect on shedding. He said with some conviction - oh if you have hayfever, that probably explains the blip.

2) I do bareback with HIV+ guys -- maybe about 2 a month now for several months.  But since he didnt invite me to talk about this, we didn't, but in any case he checks for STD when I get my labs.

Comment of this:  I thought I couldn't expect a doctor to "OK" barebacking - that they are generally bound to the conservative pronouncement that reinfection is a risk. Or that barebacking in anycase is inadvisable for STD  reasons.   I thought it is only HIV+ gay barebackers who have come to terms with the low risk???

« Last Edit: June 29, 2010, 01:04:54 pm by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Ann

  • Administrator
  • Member
  • Posts: 28,134
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: How fast can neuropathy develop?
« Reply #29 on: June 29, 2010, 02:08:39 pm »

[size=9pt=Comment of this:  I thought I couldn't expect a doctor to "OK" barebacking - that they are generally bound to the conservative pronouncement that reinfection is a risk. Or that barebacking in anycase is inadvisable for STD  reasons.   I thought it is only HIV+ gay barebackers who have come to terms with the low risk???


The hiv doc that my bf and I share knows we bareback, and we have his blessing. However, I don't think we would if we were barebacking with random pozzies, because of the risk of other STIs (not reinfection). We use condoms outside our relationship.
Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline newt

  • Member
  • Posts: 3,900
  • the one and original newt
Re: How fast can neuropathy develop?
« Reply #30 on: June 29, 2010, 04:29:34 pm »
80 is not a blip, it's within the margin of error for a test after "undetectable". 800 would be a blip, or 500, but not 80. (bring me my whip and white coat).
"The object is to be a well patient, not a good patient"

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: How fast can neuropathy develop?
« Reply #31 on: June 29, 2010, 06:14:08 pm »
Ann got at what I was thinking, barebacking other pozzies to me isn't really a fear of reinfection, but a fear of acquiring Hep C, Herpes, Drug resistant syphilis, etc...  All things that could worsen the current situation.  If you're both honest with one another about your hiv infection and you're both seeing a doctor I would imagine that you know if you have anything else and disclosing that information would also be par for the course.  I'm to the point where I frankly just don't believe in reinfection amongst those of us who are on meds.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,134
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: How fast can neuropathy develop?
« Reply #32 on: June 30, 2010, 07:37:05 am »
(bring me my whip and white coat).

Hang on, just let me put on my nurse's cozzie on first.
Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.