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Autor Tema: Being POZ in a foreign (Thai) land - support for "farrangs"?  (Leído 1919 veces)

0 Usuarios y 1 Visitante están viendo este tema.

Desconectado terrymoore

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Hi guys,
I am not sure if i am posting this in the right section - please move if i am in the wrong place.
One of the challenges i have faced being POZ in Thailand over the past 2 years is the lack of support groups for foreigners/non-Thai speakers. I have been told about a weekly group at the Thai Red Cross, but it is for locals, and, besides the language barrier, we also have completely different issues to face compared to the local Thais (cultural, practical day-to-day etc.).
I have noticed a number of members are in Thailand and was wondering of we should start our own thread to 1. exchange more relevant and focused info in one easy-to-find spot and 2. perhaps start a support group of our own.
Just a though... Feel free to weigh in!

Desconectado Gladragsguy

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #1 en: Mayo 28, 2017, 01:39:20 am »
There is a group in Bangkok message me for more info.

Desconectado JimDublin

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #2 en: Mayo 28, 2017, 02:12:05 pm »
Hi Gladragsguy​,

At the moment nobody can pm you yet, for 1 this is not available for new members until they have posted 3 times.

As a new member perhaps you can start your own thread and introduce yourself to the forum. Thanks.

Jim
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Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #3 en: Mayo 29, 2017, 10:14:17 am »
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Hi Gladragsguy​,

At the moment nobody can pm you yet, for 1 this is not available for new members until they have posted 3 times.

As a new member perhaps you can start your own thread and introduce yourself to the forum. Thanks.

That explains a lot! I thought i was going nuts!

@Gladragsguy - please either post some more or just reply here with the info. Thanks!

Desconectado Tonny2

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #4 en: Mayo 29, 2017, 01:21:02 pm »


       OJO        HI @TERRYMOORE...HAVE YOU TALKED TO VIRGO313?, MAYBE HE CAN HELP YOU WITH SOME INFO...CAN SOMEBODY TELL ME WHAT IS SO GREAT ABOUT THAILAND?, THERE ARE LOTS OF FOREIGNERS, MEMBERS OF THIS FORUM, LIVING THERE...I HOPE YOU CAN FIND A SUPPORT GROUP, I'VE NEVER BEEN IN A SUPPORT GROUP MYSELF, WHEN I WAS DIANOSED 22 YEARS AGO, WHEN GETTING AND HIV/AIDS DX WAS STILL A DEATH SENTENCE, AS A MATTTER OF FACT, I WAS TOLD, I'S LIVE TWO MORE YEARS AFTER MY DX. MY DOCTOR ASKED ME IF I WANTED TO ATTEND A SUPPORT GROUP, I TOLD HIM, NO, BECAUSE I DIDN'T WANT TO BEFRIEND PEOPLE AND THEN SEE THEM DYING. NOW, IT'S DIFFERENT AND I WOULD LOVE TO BE A PART OF ONE OF THOSE GROUPS, UNFORTUNALLY, WHERE I LIVE, THE ONLY SUPPORT GROUP NEAR ME, IS 40 MILES AWAY, AND I DON'T DRIVE ANYMORE  ;(...ANYWAY. WISHING YOU THE BEST, IF YOU FEEL DOWN, WE ARE HERE FOR YOU.

Desconectado virgo313

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #5 en: Mayo 31, 2017, 12:02:05 pm »
Hi Tonny / Hi Terry,

I am from Malaysia, so my views may be wrong.
I am a bit surprise to hear that Thailand do not have support group.
I might be wrong, but i think that there is some support group for "farang"(westerners). TH is a very friendly & tolerant country to the extend that LGBT is part of their "culture". with huge population & lots of farang staying there, i am sure there is support group.

I do agree with you to some extend that language is slightly an issue, but with new younger generation, it is much more easy to communicate nowadays.

It takes time to understand culture, i am sure you can tell that they are usually soft spoken, helpful. Perhaps you like to check out below link.
http://www.thepoz.org/about.html
https://www.angloinfo.com/how-to/thailand/healthcare/support-groups

I believe being Poz & living in TH is one of the best country one could lived in (in Asia).

Can't really advise of any support in TH as i do not live in TH. In Malaysia, we have PT - http://ptfmalaysia.org/v2/ . info for those in Malaysia.

Hope i can offer more info, But really do not know of any support group in TH.

Thanks 
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000
CD4 - 65 (7/03/16) / VL - UD
CD4 - 153 (8/09/16) / VL - UD (20) / CD4% -6%
CD4 - 215 (11/03/17) / VL - No Result / CD4% -8%
CD4 - No Result (10/04/17) / VL - UD (20)

Desconectado Tonny2

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #6 en: Mayo 31, 2017, 08:23:31 pm »


        OJO        HELLO ALL

@VIRGO313, I Qa thinking wELIWE bout thT, YOU LIVE EN MlAY, aorry, i'm old ND FORGET THINGS

@TERRYMOORE, I'M SORRY, MY MISTAKE...LET ME CONTACT A FRIEND OF MINE, MAYBE HE CAN HELP US OUT...CYBER HUGS FOR BOTH OF YOU                       OJO

Conectado daveR

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #7 en: Mayo 31, 2017, 08:40:27 pm »
A support group would be a good idea. I tried to find one when I was diagnosed. There use to be one in Pattaya I was told a long time ago but not any more. I relied on chatting to people on the internet. I think one problem wpuld be that we are living in different areas so meeting up in person would be hard as a group. I could see a possible thread running so newly diagnosed people could state their location and then arrange to meet up with others in their area for support. Or just use messenger services like LINE. That is what I ended up doing.

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #8 en: Junio 01, 2017, 01:02:20 am »
@Tonny2 - thank you for the hug and tryig to help. To answer your previous question as to what the great attraction is to Thailand...well, it is called the "land of smiles" for a reason. :-) People are very friendly, very accepting, tolerant, non confrontational, easy going, and you can  enjoy "1st world" luxuries at "3rd world" prices (not always, but generally speaking). Of course it is not perfect, but no where is perfect.
@virgo313 -your info is valuable and helpful and i will explore. And yes i agree that Thailand
Citar
being Poz & living in TH is one of the best country one could lived in (in Asia)
. Definitely!
@DaveR - exactly my thoughts. A LINE group and dedicated thread HERE (poz.com) would be helpful. I don`t necessarily think we need to physically meet per se - just  place where we can consolidate all info and find/meet people from the same place. If you have such a LINE group, please send me the details in PM.
Thanks!

Desconectado Tonny2

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #9 en: Junio 01, 2017, 09:19:53 pm »


       OJO        @TERRYMOORE...I KNEW I HAVE A FRIEND LIVING IN BANHKOK *AMERICAN LIVING THERE). I ASKED HIM ABOUT A SUPPORT GROUP FOR FOREIGNERS, HE TOLD ME, "I DON'T KNOW", BUT HE GAVE ME A LINK WHERE YOU CAN GET SOME INFORMATION...ADAMSLOVE.ORG... HE TOLD ME, YOU MIGHT BE ABLE TO FIND SOME RESOURCES IN THAT LINK.

HE IS WILLING TO TALK TO YOU, I WILL SEND YOU A PM WITH HIS PHONE NUMBER IN BANGKOK. ALSO, I HAVE ANOTHER FRIEND, FROM THIS FORUM, HE IS WILLING TO SHARE HIS WHATSAPP NUMBER WITH YOU...MAYBE, YOU CAN START A SUPPORT GROUP AMONG YOURSELVES...I HOPE THIS HELP YOU FEEL BETTER AND FIND A WAY TO GET TOGETHER AND HAVE SOME COFFEE...CYBER HUGS                          OJO

PS. THANKS FOR THE INFO, MAYBE I SHOULD GO AND CHECK IT OUT MYSELF, ALTHOUGH, I DON'T LIKE THE HEAT OR MOSQUITOS  ;P

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #10 en: Junio 01, 2017, 10:39:03 pm »
thanks Tonny2!
Very helpful.
Bangkok does not have many mosquitos - don`t worry about that!
The heat..well, it gets getting used to. Plus there is A/C in every mall, room etc.
Im sure if you visit you would love it. :-)

Conectado daveR

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #11 en: Junio 02, 2017, 02:30:32 am »
Sorry Terrymoore. There was no LINE group. Just a couple of very helpful people who helped me through my first couple of weeks with sound advice. I contacted them via another non hiv related forum.

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #12 en: Junio 02, 2017, 07:08:29 am »
@daveR - no issue. All good here. Have a great weekend bro! 8)

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #13 en: Junio 09, 2017, 01:26:22 pm »
I know a few people have been wondering if Tivicay is available in Thailand. Well, just in straight form the press, it is now being sold at the Red Cross. Info here:
http://www.adamslove.org/en-agallery.php?mid=124
"I am pleased to report that Tivicay is now available at the Thai Red Cross AIDS Research Centre.

Dolutegravir 50
Trade Name: TIVICAY
Price/Tablet: 350.00 THB
Price/Bottle: 10,500 THB (30 tab)

As we have reported before, we anticipate that Triumeq will become available in September.

Adam's Love Team"

Desconectado Dantheman

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #14 en: Junio 14, 2017, 08:00:36 pm »
 @Gladragsguy I would love to know more about support groups in Thailand for expats, or non-thais.  Would you be able to give info? Thanks!

Desconectado Mindless

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #15 en: Junio 17, 2017, 12:14:46 pm »
Hi Terry and all,

I'm in for a "support" group: not that I have much to offer to other actually since I'm kind of newbie (not so young though  :-\) but I've been looking for something like that myself. By the way, thanks for all the advices!

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #16 en: Junio 18, 2017, 11:27:22 pm »
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Hi Terry and all,

I'm in for a "support" group: not that I have much to offer to other actually since I'm kind of newbie (not so young though  :-\) but I've been looking for something like that myself. By the way, thanks for all the advices!

Well we can start here! :) If you have any questions feel free to ask (you can PM too).
Take care!

Desconectado joemutt

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #17 en: Julio 19, 2017, 09:06:48 am »
I now live in a village 700 km from Bangkok and only visit my doctor and anonymous Clinic there; after 20 years I have no acute need for a support group.
I do not think at this stage, for me, my needs for physical and mental health are all that different from my many poz Thai friends.
Yoga and mindfulness practices helped me a lot.

If I can help anybody you're always welcome to ask me.

I was diagnosed in 1997 and after 11 years on my own I found a support group in 2008 that no longer exists now.

For a long time there was an English speaking group at Anonymous Clinic also defunct now, however I think it would be easy to restart it as all you need is a meeting room- which they have.

Easier might be to self start a group, places enough to convene.

An alternative resource to start up a group might be http://www.hivfoundation.com/
they do outreach for foreigners/migrants. I have very good experience with them. Facebook : https://www.facebook.com/thfthailand/

Take care everybody.
« última modificación: Julio 19, 2017, 09:31:47 am por joemutt »

Desconectado terrymoore

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #18 en: Julio 20, 2017, 11:50:17 pm »
@joemutt - thanks and it is nice to hear (and encouraging!) that someone is doing so well after being poz for so long. Thanks for the good advice!

Desconectado Mindless

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #19 en: Agosto 06, 2017, 08:57:27 am »

If I can help anybody you're always welcome to ask me.

Hi joemutt,

yes you can! I could use all the support you can give. Unfortunately I live in BKK though. My main issue at the moment is mental.

Thanks for sharing the above information.

Conectado shizukav2

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #20 en: Agosto 06, 2017, 10:41:29 pm »
Mindless....

Just want to check... but you are on ART drugs already i hope....

The first doctor I saw was still using old guidelines to not start ART medication until cd4 dropped etc etc - NOTE THIS IS UTTERLY OUT OF DATE - both Usa and Thailand guidelines have recommended immediate art drug therapy for some time now... so if you haven't the you need to see another doctot, get a second or third or fourth opinion until you find one who is current. I was fortunate to have a very close friend who is clinical research director ( born in Thailand) who let me know three particularly well regarded Doctors for HIV in Thailand....

I'm emphasing it becuase it is a major step in coming to terms with hiv  to realise with proper early treatment your life expectancy is pretty much unchanged.... and it is very likely you'll be at undetectable viral load levels within a couple of months and so uninfectious.

Conectado shizukav2

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #21 en: Agosto 06, 2017, 10:45:33 pm »
Here's the three doctors recommended just so any other Thailand based people see this thread...

Here is a list of the very top doctors at the cutting edge of HIV research in Bangkok.
 
1.       Dr Kulkanya Chokephaibulkit, Siriraj Hospital
a.       Contributes to the HIV treatment guideline in Thailand and collaborates with CDC in Atlanta.
b.      Guideline is attached. It is on a technical side but give a good overview of the breath of treatments available.
 
2.       Dr Praphan Phanuphak, Bumrungrad Hospital
a.       Director of HIV-NAT (see below)
b.      Diagnosed first HIV cases in Thailand and has pioneered many initiatives for treatment, infrastructure etc  for patients, caregivers, relatives.
c.       See https://www.bumrungrad.com/doctors/Praphan-Phanuphak
 
3.       Dr Torsak Bunupuradah, Thai Red Cross AIDS Research Centre (HIV-NAT)
a.       A key research center for many drug companies
b.      See http://en.trcarc.org/

Desconectado joemutt

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #22 en: Agosto 07, 2017, 08:14:58 am »
Hi joemutt,

yes you can! I could use all the support you can give. Unfortunately I live in BKK though. My main issue at the moment is mental.

Thanks for sharing the above information.

Welcome.

-I can recommend (again) http://www.hivfoundation.com/
they do outreach for foreigners/migrants and
can link doctors, services and Anonymous Clinic;
guy in charge of that free service is Al.
Facebook : https://www.facebook.com/thfthailand/
02 634 054;

-hotline/counseling and FB for Adam's Love :
Tel: 02 252-2568-9
Mon - Fri 7.30 - 1.00 hr, Sat 8.30 - 16.00 hr.
www.facebook.com/adamslovethailand ;

-with all due respect, two of the doctors in the post above are hiv pediatricians (Kulkanya and Torsak), Kulkanya is at Sririraj which is a hassle, Praphan and Torsak are mainly researchers though Praphan still follows up some of his old patients.

-there is a 3 week wait list for regular doctor appointments for HIV patients on treatment at Anonymous, though for acute STDs one is at hand that can still see you; they will then mostly send you on to Bangkok Christian Clinic.
There is also a "night time clinic" at Anonymous which is more expensive and is less busy.
http://en.trcarc.org/?page_id=632 ;

-I think the best option remains to see a specialist at one of the big hospitals (I see Krirk at BNH) and do your tests/get your medicine (with a doctor's prescription) at Anonymous;

-now for the mental part :
-when I was diagnosed with HIV I was also diagnosed with chronic depression (apparently went all the way back to my childhood) and I took anti-depressants from 1997 to 2011 and then built them down and stopped. I learned to manage my depression through mindfulness. This is not medical advise. I used the book 'The Mindful Way through Depression' by J Mark G Williams, joined a meditation group, did yoga, did a few meditation retreats. maybe it's not for everyone and do consult a doctor before taking any action, it worked for me;

-a good psychologist in the Sukhumvit area is Dr Ben Weinstein at PSI, http://psiadmin.com/index.php?option=com_content&view=article&id=12&Itemid=2&lang=en, he helped me through dark times;

-how is the support group coming along? ;

Be Well.
« última modificación: Agosto 07, 2017, 08:37:07 am por joemutt »

Desconectado Mindless

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Re: Being POZ in a foreign (Thai) land - support for "farrangs"?
« Respuesta #23 en: Agosto 13, 2017, 04:28:03 am »
@shizukav2: I started ART about 6 months ago, thanks for asking (I opened a thread in the "I just tested poz" section on case you're curious about details)

@joemutt: thanks for all the advices, very valuable to me. I'm thinking to contact the "shrink" you mentioned to possibly get some counseling about my situation. Thanks again!

 


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