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Author Topic: Constipation and Neuropathy  (Read 2411 times)

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Offline beauraingdance

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  • Posts: 11
Constipation and Neuropathy
« on: September 09, 2022, 09:42:51 pm »
Hi, I was wondering the different condition we experience with Neuropathy,
Since my Aids diagnosis I have developed  Neuropathy in both my legs, I take Gabapentin 300 MG- 3 times a day,  luckily  do not have pain just stiffness and a poor balance  and my gait is off, I also have little feeling in my limbs.
 If I do not push myself, I end up walking like a 80 year old man, I have a appointment with my Neurologist next Month, she will do a nerve test.
As active as I am, I feel my condition is getting worse, I fear what is ahead, Has anybody has experience with long term conditions from Neuropathy?
I do not think it is the Meds as this developed as soon as I left the hospital and I only had been at the time on Biktarvy  for 6 weeks. my digestion is also not normal anymore I end up taking laxatives , I feel like these Organs are frozen. I am  a a very optimistic person I feel I probably deal with anything at this point. I never seem to get a clear answer from my Physicians. Wishing you all good health and peace. Zoltan

Offline wardp

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  • Posts: 222
Re: Constipation and Neuropathy
« Reply #1 on: September 10, 2022, 10:05:00 am »
Sorry to here that what laxative do you take?.i have to take sodium chloride enemas as my bowels won't move as normal I also take flax seed every morning it seems to soften the stools.i hope you get the help you need.
Diagd 20,July 2017. Cd4 289, 21% vld .3,462  atripla 4/8/2017, 5/10/2017 cd4 384 21%, ud. Switch to complera 4/11/2017 switched to stribild 15/11/17. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, uD cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62. Dec 2020.ud.jan21 cd4 453. 25.7% June 5 2021.UD. cd4 621;{27.21%} Oct 19 2021 UD.cd4 420; 28%.apr 19;2022 UD cd4 455' 26%.oct 22,UD, cd4 381,27% 10/4.23 UD CD4 462 29%.

Offline beauraingdance

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  • Posts: 11
Re: Constipation and Neuropathy
« Reply #2 on: September 10, 2022, 10:43:34 am »
I take Ducolax, I have taken Sodium Chloride and suppositories nothing works , I will try flax seed. Thank you much appreciated

Offline harleymc

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  • Posts: 1,483
Re: Constipation and Neuropathy
« Reply #3 on: September 19, 2022, 07:58:36 pm »
I'm not sure if what I suffered from in the late 90's early 2000s was neuropathy.  But the symptoms sounded similar.

I found cycling with toe clips on,  strengthened my legs and gradually I had some ( not complete) regain in sensation

Offline Shazam9cd4

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  • Posts: 24
Re: Constipation and Neuropathy
« Reply #4 on: November 16, 2022, 10:16:20 am »
About the time the onset of my early syptoms - this time last year and before i was diagnosed i started having frequent episodes of restless leg syndrome.  I used to get mild symptoms of  this on a plane which went away after taking an aspirin.  It was infeequent.  But last year it started to occur very frequently and was sleep disruptive. RLS is incredibly annoying.  Feels like tickly inside your legs, alwys wanting to shift around and never able to stay still.   I now believe  it was caused by this illness.  My GP at the time prescribed pregabalin which eliminated my RLS.  Need to be careful because it has serious withdrawal symptoms if you forget to take it.  This happened to me but they quickly went away as soon as i was able to take the next days dose.  I thereafter reduced my dose to 75g only at night. After i was diagnosed with AIDs and post   my ICU and 30 day stay in the hospital i weened myself off all the drugs i had been given - xanax,  brentillix,  immovane et al.  Took time and i had to shave and cut down doses.   I tried to go off pregabalin but restless leg would return.  What i managed to do was experiment with increasingly lower doses and found that 25mg was just enough to prevent RLS from impacting me.  At some stage in the future ill try again to go off it all together but at moment happy to relieve myself at this low dosage.  Although no one really knows what causes RlS im convinced the restless Legs were related to the early onset of my symptoms and may have been a form of peripheral neuropathy.    Hard to say.  You may want to ask your doc about pregabalin start low. Her is an article comparing both. https://www.pharmacytimes.com/view/how-gabapentin-differs-from-pregabalin

Offline Loa111

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  • Posts: 343
Re: Constipation and Neuropathy
« Reply #5 on: November 25, 2022, 05:33:59 am »
restless leg syndrome. RLS is incredibly annoying.  Feels like tickly inside your legs, alwys wanting to shift around and never able to stay still.   I now believe  it was caused by this illness. 

I've RLS too. I did mention it to my ID doc about this annoying sensation in my left leg, especially when I'm in bed at night & I want to keep moving & kicking out my leg. ID Doc even tested me for Diabetes, which came back negative.  Doc did not really come to any other conclusion on the RLS. It's just an annoying thing.
I do wonder did me having a very advanced hiv DX cause it?



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