Surviving Hiv and HepatitisB

[wildrat]

In '79 i had hepatitisB and it stayed chronic, in may '89 i did a STD test to find out if i was still carrier of Hep.B. I was, had a syphillis in 2nd stadium and as it was told, by the way your hiv+.   My world collapsed, cause a good friend of mine convinced me that hiv wasn't a direct death sentence, but a untreated syfillis was.   I went in the hospital, was treated and expected to die of aids in the coming years.   I am still around and more scared of developing cirrose and die cause of it, then of HIV.  Nowaday everyone talks about co-infection with Hep.C.  That is treatable, Hep.B is only treatable with epivir or truvada, epivir i took in in trials,  later my combination was switched and switched cause of symptoms who were diagnosed as rash.  Are there more people surviving with coinfection ?   Cannot imagine i am the only one.   I am scared cause of hiv i cannot have liver transplantation, and notice often darkening of urine.  Happily it still goes back to normal, viral load hiv is undetectable, viral load Hep.B is >10.000    Comparing myself with people who have only Hiv as long as me or longer, my energylevels are so low, and dropping very slowly.   Docs say i am lucky, i just wanna live, can still live independent, when i need daily care i am ready with life. Please reactions from similar long time survivors with a coinfection,   GREETINGS OUT OF HOLLAND

[bear60]

Hello,   out of Philadelphia.  Pa USA   Welcome

Well I have a friend who had a liver transplant ..with HIV and Hep C.  It can happen.

[deibster]

Hello and welcome from gay Provincetown on Cape Cod, MA USA

The donation of organs by people with HIV to other people with HIV, in the USA, is under debate. The ban on donation could be lifted in several years, OR, the ban could be overruled on a case-by-case basis by a judge.

I know I have an Organ donor symbol on my driver's license even though I'm HIV poz. My hiv is under control & in case of an accident, someone else could use my organs. The HIV is not making me sick. The side effects of medications are making me sick. I lost all of the fat on my forearms & shins & I bruise extremely easily. A few times a year I end up at the hospital because of a bad bruise or skin infection in these areas.
Best of luck.