Welcome, Guest. Please login or register.
April 23, 2024, 02:08:57 pm

Login with username, password and session length


Members
  • Total Members: 37649
  • Latest: MSB92
Stats
  • Total Posts: 773266
  • Total Topics: 66346
  • Online Today: 361
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 0
Guests: 332
Total: 332

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Johns Hopkins Moore Clinic Retreats In Hiv Care  (Read 9797 times)

0 Members and 1 Guest are viewing this topic.

Offline FiercenBed

  • Member
  • Posts: 183
Johns Hopkins Moore Clinic Retreats In Hiv Care
« on: August 18, 2007, 11:17:38 am »
When first diagnosed I had two very serious hiv related skin conditions going on. So serious my doc said id have to see a dermatologist. So I punched around on the computer and found a dermatologist at hopkins specializing in hiv infections. sounded like my guy.

Well the appointment thing was a whole mess. Check out my previous post for background if interested. took over three months for an appointment.
http://forums.poz.com/index.php?topic=10913

Anyway a biopsy, laser treatment & pap smear <ouch> later, things seem to be getting under control. So @ my last follow up the doc gives me a letter saying hez leaving Hopkins to open his own practice. Great I think another doctor. I ask him whoz taking over dermatology at Hopkins HIV Moore Clinic. He stated “no one”. They <Hopkins I assume> wouldn’t meet his contract.

Holy cow I was in shock. Dermatology is a major fricken issue with hiv & aids. The mother hospitals in treatment is going to leave a major specialty open for hiv care.

So I guess I follow the guy to his private practice. His letter sez his practice will still ‘be dedicated to skin problems associated with HIV.’ But he also “ specializing in restylane <trade mark>, juvederm <trade mark>, levulan <trade mark>, and a list of other ‘procedures’ aka cash cows that iv never heard of. Though my insurance isn’t on the list of 8 providers. Now I get to sit in the waiting room with a buncha women waiting for botox <trade mark>….lol it really is all about money; duh.

I know someone from Hopkins must read these forums. A comment I think would be in order.
« Last Edit: August 18, 2007, 11:19:27 am by FiercenBed »

Offline CallMeSid

  • Standard
  • Member
  • Posts: 117
Re: Johns Hopkins Moore Clinic Retreats In Hiv Care
« Reply #1 on: August 28, 2007, 08:47:15 pm »
hi.

although i can't comment directly on the HIV care at the moore clinic, as a former employee of JHU, i can tell you that they are an EVIL institution.  yes, there are some leading doctors and researchers in their schools of medicine and public health, but the administration is morally bankrupt and views f*****s and n*****s with HIV/AIDS as cash cows.  the morale of the employees at the hospital is in the toilet almost completely across the board and the support staff (billing, medical records, patient services) is littered with barely literate, lazy, incompetent morons.

i'm sooooooooo sorry you have to deal with this.  have you looked into whether there might be a dermatologist with HIV-related expertise at the U of MD's evelyn jordan clinic (HIV-related care) in baltimore?

wishing you the best,

sid
07/2006 HIV-negative
06/2007 HIV-positive
07/2007 CD4: 795 (40%), VL: <50
09/2007 CD4: 629 (43%), VL: 895  (~2 weeks after measles/mumps/rubella booster)
12/2007 CD4: 854 (45%), VL: <50
03/2008 CD4: 880 (45%), VL: 151
12/2008 CD4: 943 (46%), VL: 116
05/2009 CD4: 865 (44%)  VL: 107

Offline FiercenBed

  • Member
  • Posts: 183
Re: Johns Hopkins Moore Clinic Retreats In Hiv Care
« Reply #2 on: September 06, 2007, 01:17:11 pm »
hey sid.....thanx for the reply

im often told that i over react to situations like this so it is refreshing to hear that i am not 'crazy'. the clinic is literally a free for all. it is dirty, grungy, and depressing. they almost got away with billing shy of $800 for one doctors appointment that i didn't need. part of that fee, $400,  was not covered by my insurance and they wanted me to pay it out of pocket. they sent it to a collections agency. your absolutely right about the support staff. they are rude and arrogant and just plain ole stupid! i can name names but guess i shouldnt on this site.

then after i opened an 'investigation' i got an apology letter stating it was a 'mistake in operational procedure'. not only did they refund the insurance company and myself but i got my next appointment free 'in consideration for their error'. free medical care!? musta bn a big mistake. after all that i was referred to an 'outpatient clinic' in the suburbs where while im waiting for hiv treatment i can get a quick dose of botox...lol.

iv gota host of docs  for a variety of problems.....but dealing with hopkins has by far been the worse experience.
ill look into umms' jordon clinic.
 

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.