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Author Topic: Ever stop taking Antiviral Rx?  (Read 7544 times)

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Offline RemyG1971

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Ever stop taking Antiviral Rx?
« on: November 17, 2017, 06:13:53 pm »
Been on Atripla for several years. I know it’s dumb but stopped taking medication several weeks ago. I plan on going back on meds after Tofurkey Day. What’s the risk of becoming drug resistant?

Offline Mightysure

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Re: Ever stop taking Antiviral Rx?
« Reply #1 on: November 17, 2017, 06:46:35 pm »
It's a risk. I don't know how much. I don't think anyone can assess how much. Resistance is the result of mutations of replicating virus. They're random and there's really no thyme or reason.
Can't really know until a resistance test is done.

Offline bmancanfly

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Re: Ever stop taking Antiviral Rx?
« Reply #2 on: November 17, 2017, 07:39:53 pm »
Why are you not taking your meds?
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline daveR

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Re: Ever stop taking Antiviral Rx?
« Reply #3 on: November 17, 2017, 08:05:02 pm »
The standard answer will be consult you ID specialist. They can run any tests required. From what I have read on other HIV sites the chances of resistance is low if you stopped taking them instantly compared to if you stopped taking them haphazardly as the drugs would have been flushed from your system before the virus came back in any number. Whether or not you were detectable or undetectable at the time of stopping also has an impact.

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #4 on: November 17, 2017, 08:38:24 pm »
Why are you not taking your meds?

Just needed a break.

Offline Tonny2

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Re: Ever stop taking Antiviral Rx?
« Reply #5 on: November 17, 2017, 09:34:44 pm »


          ojo        taking a break of taking a pill a day?, does it makes you feel sick?...you are not only risking becoming resistance to the med, but, you have had a routine of ten years that, i think, you will need to get used to again...anyway, i have been taking mefd for 23 years, now i'm taking 4 pills twice a day for eleven years; years before that, i was taking more than twenty pills a day, i and a lot of LTS, ..well, i wish you the best, please keep us posted and if you are taking atripla, i'm guessing you are not a V/I.P.  member of this club, are you?///hugs                                  ojo

Offline den2542

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Re: Ever stop taking Antiviral Rx?
« Reply #6 on: November 18, 2017, 06:38:25 pm »
I don't want to be an alarmist but my relative had a husband that did exactly that.  Just got tired of taking drugs and would go on and off. He passed last year bc he did that with all his meds. As he neared death, he said he wished he had not been no precarious with adherence. He died of lymphoma on the brain. I too came close to dying. Had 46 CD4 in 2002. Dr said I'd die if I didn't take meds. I was afraid to take meds. I took them and am grateful for a chance, no the chance to live. I urge everyone to take the pill.

Offline mecch

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Re: Ever stop taking Antiviral Rx?
« Reply #7 on: November 18, 2017, 06:59:04 pm »
Just needed a break.

I think you should elaborate on this statement, out of respect for yourself and for people who communicate here on POZ.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kentfrat1783

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Re: Ever stop taking Antiviral Rx?
« Reply #8 on: November 18, 2017, 08:08:27 pm »
VIP member?
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline Jim Allen

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Re: Ever stop taking Antiviral Rx?
« Reply #9 on: November 18, 2017, 08:49:37 pm »
VIP member = Anyone in a location with access to modern healthcare and latest HIV medications and care. (Costly or not)



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Offline kentfrat1783

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Re: Ever stop taking Antiviral Rx?
« Reply #10 on: November 18, 2017, 09:04:28 pm »
Ahh.  I thought it was a joke about Atripla.  I'm starting month 6 and the side effects really aren't their.  I'm happy about that. 
Date - CD4 - Percent - VL
08/23/23 - 366 - 26%
06/20/23 - 349 - 21% - UD
04/15/23 - 229 - 19% - <20
11/14/22 - 486 - 24% - 73
10/12/22 - 316 - 19% - <20
06/20/22 - 292 - 21% - <20
01/25/22 - 321 - 22% - <20
09/22/21 - 278 - 19% - <20
02/02/21 - 225 - 19% - <20
06/08/20 - 257 - 20% - <20
03/17/20 - 285 - 19% - 101 (2.00)
12/17/19 - 290 - 20% - <20
09/17/19 - 218 - 16%
06/18/19 - 173 - 16% - <20
03/13/19 - 170 - 16% - <20
January 2019 - Started Triumeq
12/05/08 - 174 - 18% - <20
08/28/18 - 166 - 15% - <20
05/08/18 - 106 - 11% - <20
03/05/18 -   90 - 10% - <20
12/11/17 -   60 -   8%
09/07/17 -   42 -   6% - 54 (1.70)
May 2017 - Started Atripla
05/11/17 -    2 -    1% - 169,969 (5.23)
OI's: PCP
Dx`d May 11, 2017
Location: US

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #11 on: November 22, 2017, 08:49:39 am »
VIP member?

I really don’t know how to. Kinda llost trying to find my way again. Been struggling with severe ptsd, insomnia, suicidal thoughts, undiagnosed mental head issues etc etc etc In process of big change in life that I don’t want to address

Offline den2542

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Re: Ever stop taking Antiviral Rx?
« Reply #12 on: November 22, 2017, 10:21:53 am »
Remmy. I and I'm sure many others don't want to get in ur business, but if there's one thing I learned from this site and the loving kind people here on this board is that there isn't no one that hasn't been thru some various forms of issues that perhaps you are experiencing. I feel this board is a safe place to share. I hope you can share as well. That's what we are all here for is support. We don't condemn, ridicule, hurt or judge anyone. For myself I went thru an 18 yr hetero  loveless marriage with kids in which I was sidelined, marginalized, ridiculed in the marriage by my ex and was told "I hope you die." All this time I had HIV and tried to survive. I was a lurker here for most of the 18 years bc I thought no one could ever feel and think what I did. I've been where u r. What i found here was that most if not all have been thru the exact same or very similar situations whether in a gay, str8t or bi situation.  Sometimes I regress and there are guys here that take time out of their busy lives that say something that help so much. I'm sure that when and if you are ready to share you'll find loving caring people here ready to help. I did. Hugs my friend. PS you can also PM me for private email. Dennis

Offline Tonny2

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Re: Ever stop taking Antiviral Rx?
« Reply #13 on: November 22, 2017, 04:31:44 pm »


          ojo         hwllo there...i'm sorry about wht you have been through, so, i guess, you are not a VIP member of this hiv club (rich coountry), because, apparently, you don't have a different option of treatment...if you are sopping treatment for all those problems, i guess, i will talk to my doctor and see if there is another treatment for you...i guess, all those symptoms you mentioned, might be related to efavirenz...may we know, where are you from?, maybe, there is someone else in here from your country, and he/she might help you with information...i guess, living for ten years with these problems, must have been very hard for you, i apologize if my reply sounded harsh, but i remember asking if you were having side effect problems...all of us, here, try to support our fellow members, everyone has his/her own style, rememberm we have membeers from different countries, myself inclued, so, please, don't take it personal any reply, i tell you this for experience...i wish you can find a different combo instead of stopping your regimen, if not, talk to your docctor about the chances of becoming resistance to atriola or any of its components...the remedy can not be worse than the syndrome we are dealing with...wishing you the best of luck...big bear hug on your way                                                               ojo

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #14 on: November 23, 2017, 07:25:16 am »

          ojo         hwllo there...i'm sorry about wht you have been through, so, i guess, you are not a VIP member of this hiv club (rich coountry), because, apparently, you don't have a different option of treatment...if you are sopping treatment for all those problems, i guess, i will talk to my doctor and see if there is another treatment for you...i guess, all those symptoms you mentioned, might be related to efavirenz...may we know, where are you from?, maybe, there is someone else in here from your country, and he/she might help you with information...i guess, living for ten years with these problems, must have been very hard for you, i apologize if my reply sounded harsh, but i remember asking if you were having side effect problems...all of us, here, try to support our fellow members, everyone has his/her own style, rememberm we have membeers from different countries, myself inclued, so, please, don't take it personal any reply, i tell you this for experience...i wish you can find a different combo instead of stopping your regimen, if not, talk to your docctor about the chances of becoming resistance to atriola or any of its components...the remedy can not be worse than the syndrome we are dealing with...wishing you the best of luck...big bear hug on your way           
                                                    ojo
I have a very hard time opening up to people not just on this site but life in general. I’m a mixed nut. Ex Military served in combat, actual days in a theatre of comvat since 9/11 =‘s 916. Ex Police Officer (Major City in CA), Ex Private Security contractor where I was injured.

Horrible Insomnia usually take anywhere between 30mg-40mb Ambien nightly with alcohol, times if on hand I add valium and/or xanax in order to turn off head and pass our for a few hours. I deal with uncontrollable rage anger with scares me with 30+ years of both jiujitsu & judo hardcore training. The rage anger has caused every relationship to end.

I’m extremely violent when that button is pushed. I’ve done somethings I should be in prison for. No friends, no family, once told a VA Dr what I was thinking they wanted to commit me on the spot sooooo many other issues.

Just started using cocaine & heroin. I guess part of me knows that if I don’t go back on meds that I’ll die which is welcoming.

San Diego.

Offline Jim Allen

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Re: Ever stop taking Antiviral Rx?
« Reply #15 on: November 23, 2017, 07:32:48 am »
Un-diagnosed mental health issues is a real concern and the self medicating does not help either.  Not sure were to start but I think you should focus on the mental health issues first, as long you don't have that under control everything else including yourself will suffer.

On the HIV meds, well to be honest with the other concern you have Atripla I belive is simply is not the right drug for you, given its nature to "enhance" moods and pre-exsiting mental or emotional problems.

Sorry I can't be of more help, but wishing you all the best and my thoughts are with you this Thanksgiving. 

Jim   
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Offline Tonny2

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Re: Ever stop taking Antiviral Rx?
« Reply #16 on: November 23, 2017, 04:57:48 pm »


        ojo       hello there...first of all, thanks for your service, and thanks for opening up in here, now we can offer you a better advice and support...as Jim saig, ATRIPLA idn't the right medication for you, not a doctor, but everybofy knows about the mental isde effects efavirenz causes it, the goof thing is that you are a VIP menber of this club, you have acces to other medication with kess or non side effects, talk to your doctor, please, do not stio your medications, dying from an OIs isn't the best way to die, it would be nice to just go to sleep and never wake up, but it is not the case, i almost fie three times due to OIs, it is very painful and sad, so. please talk to your doctor to give you a different medicarion, i bet, you will feel better.

i'm so sorry for your mental problems, not being able to sleep, your anger, etc, you need to seek professional help, i know that you people from the molotary come back from wars with a lot of problems, but i also know, that there are resoirces for you to help and make you feel better...about the use of drugs, like cocaine and heroine, i just can tell you, that there are not going to help with your problems, i've never used drugs, but i'm sure, you won't think straoght and might cause you more problems...life is good, even living with hiv, we just need to accept it and learn to live with it, you have done ot for ten years, with the wrong medication, i guess, you will feel better for other ten years, with a different medication, that will help you feel better mentally...ask your doctor for TRIUMEQ, GENVOYA, better options for you, and , please, seek professional mental help, you fought for a better life for us and for YOU..best of luck, please, keep us posted and a big bear hug on your way to San Siego, thanks again for your service, we need you sane                           ojo

Offline mecch

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Re: Ever stop taking Antiviral Rx?
« Reply #17 on: November 23, 2017, 05:09:26 pm »
Atripla which contains Efavirenz is not for you. 
I hope you can manage to see a doctor - and an HIV doc at that - to prescribe you an easy to take combo.  For example isentress and truvada. Whatever.  No doctor would really give Atripla to a guy with your mindset and situation.

I have nothing constructive or judgmental to say about coke and heroin.  You medicate the way you need for the moment.

I do say with love, you DO NOT WANT to get sick with untreated HIV.  Dying of AIDS is painful and horrible and nasty nasty nasty.   Really - not getting AIDS means taking a pill a day. HIV is easy to treat.  Your other challenges a lot more difficult.   Don't do it like that man.  Take the HIV medicine and figure out other shit as you go along.  AIDS is a very shitty suicide plan.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #18 on: April 03, 2018, 05:04:21 am »
Been off of all meds since 10/31. Living in Mexico eating 100% Vegan and feeling fantastic. No real plans on going bCk on meds ever.
« Last Edit: April 03, 2018, 05:07:20 am by RemyG1971 »

Offline Jim Allen

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Re: Ever stop taking Antiviral Rx?
« Reply #19 on: April 03, 2018, 05:16:32 am »
Hmmm

A slow and often nasty way to commit suicide without even a buger to enjoy along the way. HIV rotting your insides away unnoticed by you at first, feeling okay yet dying and until your health falls off the clif so to speak when reality smacks you in the face with a dose of AIDS or death.

End of the day your choice of course to check out this way but I would instead urge you to take your meds before hiv causes permanent damage to your immune system and the rest of your body , brain, organs and nervous system and talk to your doctor about this or a therapist face to face

Jim
« Last Edit: April 03, 2018, 05:19:33 am by JimDublin »
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Offline leatherman

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Re: Ever stop taking Antiviral Rx?
« Reply #20 on: April 03, 2018, 05:55:50 am »
what happened to your blog? that link is a 404

No real plans on going bCk on meds ever.
In a few more months, when you dealing with an AIDS situation, you'll be changing that opinion. ;)

after living with HIV for more than 30 years, and more than a decade of peer counseling, I've been in your situation and seen others in this situation. In all those years, I've seen plenty of people go off meds. The odds are that by the end of this year, you'll either be dead of AIDS or back on meds. It's a choice for you to make now - while you can still make the choice. So be proactive, make the right choice and get your mind wrapped around adhering to your daily HIV meds. Or make plans for what to do with your body after you pass away in the hospital from an HIV related OI.

Doctor several times suggested making the switch from Genvoya from Atripla. I have been on Atripla since 2011 and my #'s continue to improve every round of blood work. I do not see the sense is switching and have refused.

I say if it ain't broke, don't fix it.
what happened between August and November 2017 that caused you to stop meds? Especially after your doctor had suggested a change off of Atripla to Genvoya (which doesn't have the mental/cognitive effects that Atripla can have).

did you ever check into getting some counseling about your mental health issues? Did you tell your doctor about these issues and ask about another HIV medication? (one without possible cognitive issues like Atripla has been known to cause)

Clearly you're conflicted about your decision to not take meds (and you should be conflicted about such a bad decision) or you wouldn't come here months later to remind us that you have stopped taking meds. Since you'll never get anyone to agree that your decision is right, you must be looking for the information and encouragement to get back onto meds. So here it is: please see your doctor as soon as possible and explain your mental issues and how you have quit taking meds. Your doctor should be able to prescribe a better regimen for you, link you to mental health counseling, and maybe even connect you with a fellow peer (a person living with HIV from your clinic/area) who could personally explain why taking ARVs is so important to remaining alive, much less healthy.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Mightysure

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Re: Ever stop taking Antiviral Rx?
« Reply #21 on: April 07, 2018, 02:25:35 pm »
I get that you don't want to take meds. That's your choice. But I'll never understand what's the purpose in telling us? A few of the folks on here are long term survivors and lived with this in a time when nothing worked and they're still dealing with the scars from that.
So dont be shocked if you get harsh responses from them. We've seen on this very board how this "no meds" thing ends. 

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #22 on: April 07, 2018, 04:56:47 pm »
I’m just expressing my story. I’m not the slightest bit concerned how it may or may not be received.

Its been 6 months and I feel better than I have in 6 years.

I started listening to Anthony De Mello on YouTube. Changed a lot for me.

As for the Rx despite the circumstances I’m never taking the meds again. My choice, now we’ll truly see how much a diet can control the body.

I’m back to swimming, Yoga, Pilates, BJJ, Cooking, Playing w/ Pets.

Blessed...


Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #23 on: April 07, 2018, 05:01:34 pm »
what happened to your blog? that link is a 404
In a few more months, when you dealing with an AIDS situation, you'll be changing that opinion. ;)

after living with HIV for more than 30 years, and more than a decade of peer counseling, I've been in your situation and seen others in this situation. In all those years, I've seen plenty of people go off meds. The odds are that by the end of this year, you'll either be dead of AIDS or back on meds. It's a choice for you to make now - while you can still make the choice. So be proactive, make the right choice and get your mind wrapped around adhering to your daily HIV meds. Or make plans for what to do with your body after you pass away in the hospital from an HIV related OI.
what happened between August and November 2017 that caused you to stop meds? Especially after your doctor had suggested a change off of Atripla to Genvoya (which doesn't have the mental/cognitive effects that Atripla can have).

did you ever check into getting some counseling about your mental health issues? Did you tell your doctor about these issues and ask about another HIV medication? (one without possible cognitive issues like Atripla has been known to cause)



Clearly you're conflicted about your decision to not take meds (and you should be conflicted about such a bad decision) or you wouldn't come here months later to remind us that you have stopped taking meds. Since you'll never get anyone to agree that your decision is right, you must be looking for the information and encouragement to get back onto meds. So here it is: please see your doctor as soon as possible and explain your mental issues and how you have quit taking meds. Your doctor should be able to prescribe a better regimen for you, link you to mental health counseling, and maybe even connect you with a fellow peer (a person living with HIV from your clinic/area) who could personally explain why taking ARVs is so important to remaining alive, much less healthy.


Thank you for your honesty but no I’m done with the meds not just for now but forever. I feel great and definitely give myself more than a year. No1 gets out alive:)

Offline RemyG1971

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Re: Ever stop taking Antiviral Rx?
« Reply #24 on: April 07, 2018, 05:03:18 pm »

Offline Jim Allen

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Re: Ever stop taking Antiviral Rx?
« Reply #25 on: April 07, 2018, 05:20:38 pm »
Quote
As for the Rx despite the circumstances I’m never taking the meds again. My choice, now we’ll truly see how much a diet can control the body.

Your choice indeed. Diet will not control hiv or the damage done to you or your immune system.

I don't mind that your choosing death sooner rather than living longer. I'm fine with that as hash and as horrible as it sounds, I can't change your choices and we have giving you fair notice and feedback why to choose your meds. You know the facts and choose to ignore them.

Most don't know it here and over the years I've avoid questions and topics when I could but I've been down this road, I did not treat my hiv for over a decade and I have the scares & damage to show for it, I'm still embarrassed by myself.

You're making a mistake but it is yours to make, its your journey

That said don't imply you can control HIV with a diet. You're getting very close to that and it would lead to a ban from the forum if you do, so this is your only warning on that front.

No more vegan diet talk or horseshit about yoga or magic fairy man with a YouTube account and a spinning wheel when talking about or in relation to hiv meds or hiv treatment threads from you, not even in your own thread.

Jim
« Last Edit: April 07, 2018, 05:49:31 pm by JimDublin »
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Offline RemyG1971

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  • E ho'a'o no i pau kuhihewa Try it to end the panic
Re: Ever stop taking Antiviral Rx?
« Reply #26 on: April 07, 2018, 07:17:31 pm »
Your choice indeed. Diet will not control hiv or the damage done to you or your immune system.

I don't mind that your choosing death sooner rather than living longer. I'm fine with that as hash and as horrible as it sounds, I can't change your choices and we have giving you fair notice and feedback why to choose your meds. You know the facts and choose to ignore them.

Most don't know it here and over the years I've avoid questions and topics when I could but I've been down this road, I did not treat my hiv for over a decade and I have the scares & damage to show for it, I'm still embarrassed by myself.

You're making a mistake but it is yours to make, its your journey

That said don't imply you can control HIV with a diet. You're getting very close to that and it would lead to a ban from the forum if you do, so this is your only warning on that front.

No more vegan diet talk or horseshit about yoga or magic fairy man with a YouTube account and a spinning wheel when talking about or in relation to hiv meds or hiv treatment threads from you, not even in your own thread.

Jim

I’m documenting my journey not yours. I’m not advocating that anyone stop taking their medication. I’m documenting what I’m doing with my diet, my workouts and my spirituality. I’m a proud Vegan even before HIV+ I was a proud Yogi/BJJ practitioner and talking about those as part of my iwn treatment (which they are) but they are mine no one else’s.

You are so not ready to be Awoken.

Offline Jim Allen

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Re: Ever stop taking Antiviral Rx?
« Reply #27 on: April 07, 2018, 07:27:07 pm »
Look as I said do whatever you like, its fully your own journey and it seems you are not at the stage yet to understand that. I hope you do get there soon and don't hurt yourself or others around you whilst figuring it out.

There's a big difference between choosing a path and pushing that path as truth to others or claiming it as treatment for hiv, even when its your own.  You have crossed that line.

I wish you well and take care I mean that. No amount of diet or YouTube videos, dead guru's will control your hiv or treat your condition.

Jim

Last post removed, OP banned, thread locked.


1) HIV/AIDS denialists. Any member who posts denialists propaganda -- including direct links to information produced by denialist entities or language encouraging members to research denialism -- will be banned immediately. More benign questions or comments about denialism, especially when raised by a long-term member of the Forums, will be handled on a case-by-case basis. 

     2) Overt marketing of a proven or unproven modality for the treatment of HIV/AIDS. New members will be banned immediately; older members will be warned first.

« Last Edit: April 07, 2018, 09:02:19 pm by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
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Read about PEP and PrEP here
PEP and PrEP

My Instagram
Threads

 


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