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Author Topic: Update ... melanoma  (Read 5475 times)

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Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Update ... melanoma
« on: March 26, 2008, 07:37:05 pm »
Today I got the results of the biopsy.

It is skincancer, lentigo maligne melanoma.

The good news is they have removed the tumor completely.
The bad news is I will need more surgery to have a piece of skin removed from my leg and sewed onto my back  to restore the 2.5 inch circle of open flesh , left by the removed tumor...

Oh well... I will survive, after my two tumors in my rectum last year....

Thanks for your support and I'll keep you updated.

Love

Hermie ;)
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.

Offline mjmel

  • Member
  • Posts: 2,069
Re: Update ... melanoma
« Reply #1 on: March 26, 2008, 07:39:46 pm »
Good news, indeed.
Hang in there, Hermie.

Mike

Offline Miss Philicia

  • Member
  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Update ... melanoma
« Reply #2 on: March 26, 2008, 07:40:37 pm »
Good luck, Hermie
"I’ve slept with enough men to know that I’m not gay"

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Update ... melanoma
« Reply #3 on: March 26, 2008, 08:59:19 pm »
Yes indeed Hermie, that is good news.

Offline anniebc

  • Member
  • Posts: 6,185
  • AM member since 2003
Re: Update ... melanoma
« Reply #4 on: March 26, 2008, 09:16:55 pm »
Glad to hear they removed the tumour Hermie..good news indeed.

The skin graft will be fine just a wee bit of discomfort until it heals.

Thinking of you

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline fearless

  • Member
  • Posts: 2,191
Re: Update ... melanoma
« Reply #5 on: March 26, 2008, 10:05:20 pm »
WOW, Hermie. This is great news.

When you mention melanoma to Australians it sends a shiver down our collective spines. It is the most aggressive form of skin cancer and kills about 1 500 Australians each year. We have the highest rates in the world and we've all got a horror story of friends/relatives that have been diagnosed one day and dead within a few months.

I was very worried when you mentioned it, but am now so relieved that they have found it early and appear to have removed it all.
Be forgiving, be grateful, be optimistic

Offline Matty the Damned

  • Member
  • Posts: 12,277
  • Antipodean in every sense of the word
Re: Update ... melanoma
« Reply #6 on: March 26, 2008, 10:24:18 pm »
Yup, metastisised melanoma is brutally fast.

Ick.

MtD

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: Update ... melanoma
« Reply #7 on: March 26, 2008, 10:26:05 pm »
I'm glad they caught it when they did.  Good luck to you, sweetie.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info https://www.poz.com/basics/hiv-basics/safer-sex
Please check out our lessons on PEP and PrEP. https://www.poz.com/basics/hiv-basics/pep-prep

https://www.poz.com/basics/hiv-basics/treatmentasprevention-tasp

Offline Longislander

  • Member
  • Posts: 2,489
Re: Update ... melanoma
« Reply #8 on: March 26, 2008, 11:04:37 pm »
Good to hear they got it all Hermie :D
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Update ... melanoma
« Reply #9 on: March 27, 2008, 01:18:53 am »
I think this is good news?

You're making a cat look silly!
Positive since 1985

Offline Dragonette

  • Member
  • Posts: 1,190
  • Spring symptoms
    • NotPerfectAtAll
Re: Update ... melanoma
« Reply #10 on: March 27, 2008, 04:18:19 am »
Good news! I'm quite relieved Hermie. Phew.

"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

tendai

  • Guest
Re: Update ... melanoma
« Reply #11 on: March 27, 2008, 05:07:55 am »
yeah, good they got it all in time. the skin grafting should be a breeze though huh? good luck with that

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Update ... melanoma
« Reply #12 on: March 27, 2008, 07:44:54 am »
Herman,

Glad to hear that the doctors got it all !! That 2.5 inch circle, on your back, should start healing up pretty fast. Make sure to keep it clean. Also, make sure to get yourself more frequent checkups. Like I was mentioning in another thread, I see my dermatologist, almost as often as my ID doctor.



Take care---Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline Queen Tokelove

  • Member
  • Posts: 6,031
  • Smokey the Smurf
Re: Update ... melanoma
« Reply #13 on: March 27, 2008, 08:17:48 am »
Great News Hermes
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Re: Update ... melanoma
« Reply #14 on: March 28, 2008, 08:42:51 pm »
I had an appointment with the dermatologist today at my HIV clinic.
My HIV doc told me I gave her a huge scare when I told her about the diagnosis.
She lost 3 HIv pos men last year... from melanoma.
Apparently I was lucky the cancer had not spread into my bloodstream.
Well, I am not going to worry about the IF's.

The doc said the healing is proceeding well. I need to have the ointment put on every day and have the bandage changed daily as well by a nurse for the next three weeks.
If everything goes well, I will NOT need a skintransplant... yeah......

It still hurts of course, but it is bearable.

So far so good....
But to all of you : keep a close eye on whatever spot on your body that is changing in shape, appearance, color or thickness... it can be deadly.


Thanks to you all and love from Belgium

Hermie :-*
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: Update ... melanoma
« Reply #15 on: March 28, 2008, 10:32:16 pm »
Hermie, so glad to hear your good news.  You hang in there sweetie.
  Luv from the states :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info https://www.poz.com/basics/hiv-basics/safer-sex
Please check out our lessons on PEP and PrEP. https://www.poz.com/basics/hiv-basics/pep-prep

https://www.poz.com/basics/hiv-basics/treatmentasprevention-tasp

Offline PatrickBXL

  • New Member
  • Posts: 1
Re: Update ... melanoma
« Reply #16 on: March 29, 2008, 07:19:12 am »
Sweetie,
you're a fighter,
yes, I'm very happy about your results and sure it will only improve!
 ;)
Keep it on and live it all well!
 :D
your lovebud Patrick


[attachment deleted by admin]
Diagnosed in 2006 and living it well.
My CD4 are still high, no need of medecine for now.

Taking the bright side of life,
finally it's all a question of ... LOVE and respect.

Offline hudstar

  • Member
  • Posts: 130
  • 2010
Re: Update ... melanoma
« Reply #17 on: March 29, 2008, 08:12:26 am »
Today I got the results of the biopsy.

It is skincancer, lentigo maligne melanoma.

Thanks for your support and I'll keep you updated.

Love

Hermie ;)

I go in for a biopsy on Monday. Two spots have appeared on my body, one on my left shin, the other on my temple.
diagnosed 1988
POZ personals - hudster

Offline Robert

  • Member
  • Posts: 2,658
Re: Update ... melanoma
« Reply #18 on: March 29, 2008, 11:14:20 am »
Glad to hear all this Hermie.

It's sounds like you've gotten over the worst of it, but the would itself can be very troubling.  Make sure you get that wound cleaned and changed everyday.  I was in the hospital with PCP for 3 weeks.  Ended up getting a bed sore on my butt and that's what almost killed me.  It was infected and had the infection spread into my blood I would have been a goner.  It took a good 6 weeks of constant cleaning and attending to by a  home nurse to fix it.

robert
..........

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Update ... melanoma
« Reply #19 on: March 29, 2008, 02:47:33 pm »
Hermie~

I'm so glad to hear that things have turned out for the best -- they could have been much worse!

You are one lucky guy!  Best of luck on that wound healing up fast!

~ Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline AlanBama

  • Member
  • Posts: 3,670
  • Alabama: the 'other' 3rd World Country!
Re: Update ... melanoma
« Reply #20 on: March 31, 2008, 06:53:42 pm »
Hey Herman,

Glad it was caught 'in time' honey.....  chalk one up, you dodged it again!

Hope the spot heals rapidly, and you don't have too much pain with it.

hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline joemutt

  • Member
  • Posts: 1,167
Re: Update ... melanoma
« Reply #21 on: March 31, 2008, 11:02:04 pm »
I am glad that seems to be going well. Take Care.

Offline komnaes

  • Member
  • Posts: 1,906
Re: Update ... melanoma
« Reply #22 on: April 01, 2008, 03:37:28 am »
You're a toughie Hermie... hang in there. Best of luck.
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

 


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