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Author Topic: Juluca : anyone with muscle pain and stiffness?  (Read 7085 times)

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Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Juluca : anyone with muscle pain and stiffness?
« on: April 19, 2021, 03:49:45 am »
Hi,

I have recently ( 1 month) switched from Genvoya to Juluca.
It seems like the most obvious side effect is in the muscle area and lower back. I am very sporty and never had muscle pains in the past.
Anyone ?

Thnx

Grtzs
Logged
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #1 on: April 19, 2021, 06:36:03 pm »
One of the side effects is "Muscle or joint Aches"

Not being on that medication, I cant really supply any more info.

Here's the website: ( Of Side effects)

https://us.juluca.com/risks-and-side-effects/?gclid=EAIaIQobChMI4NGRla6L8AIVhLzICh2kiADAEAAYAiAAEgIa7fD_BwE&gclsrc=aw.ds

I would also bring to to the attention of your doctor


Ray
« Last Edit: April 19, 2021, 06:39:18 pm by J.R.E. »
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #2 on: April 19, 2021, 06:44:38 pm »
Hi,..

If you were developing a rash with the muscle pain and aches, then there's the possibility of a problem.


Ray
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #3 on: April 19, 2021, 06:46:20 pm »

PS,..

Haven't seen you here in quite some time,... Hope everything else, is going well for you.

Ray
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #4 on: April 20, 2021, 10:52:52 am »
Hi Ray,

Thank you so much for your help.

I have seen my doctor today and it was decided to switch me to Dovato as these muscle pain may very well have been caused by Juluca. I also had hot flashes ( and my penopause has long gone) and allergic reaction  in my face, with redness and a constant hot feeling.
I am doing very fine ( well except for my essential trombocetemia, which i treat with the chemotherapy ( Hydrea) ).

But life has been good to me. I turn 66 and will soon have 40 years of infection on my list. 

keep safe and healthy and thanks again. Hope you are doing fine

herman
Logged
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #5 on: April 21, 2021, 10:27:38 am »
Quote from: heartforyou on April 20, 2021, 10:52:52 am
Hi Ray,



I have seen my doctor today and it was decided to switch me to Dovato as these muscle pain may very well have been caused by Juluca

I am doing very fine ( well except for my essential trombocetemia, which i treat with the chemotherapy ( Hydrea) ).

But life has been good to me. I turn 66 and will soon have 40 years of infection on my list. 



herman


Hello Herman,...

Hopefully the switch to Dovato, may help to resolve the muscle pain. And the trombocetemia, is being treated,  so that's great.

Everything is going pretty good this way. I will be 70 this year.  :P Damn !!  :) But getting by each day.


Take care of yourself, and I hope the Dovato works out for you !

Ray  8)
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #6 on: April 21, 2021, 10:32:39 am »
Herman,..

One of the reasons I remember you, Is because years ago , you and I were on the same or similar 4 drug regimen.  At least I think it was you, I may be wrong the brain is getting older these days !  ;D

I think we both had Viread added to our regimens.


Take care---Ray
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #7 on: April 21, 2021, 11:38:04 am »
Yes Ray,

I do remember that. I have been on so many regimes, as so many of them failed. But I am still around.
Remember at the beginning.... at last in the 90's when I swallowed 36 pills a day .

It is such a miracle to still be around. But hey... let's go on living.

grtz

Herman
Logged
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.

Offline Grendal

  • Standard
  • Member
  • Posts: 36
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #8 on: July 20, 2021, 05:44:17 pm »
How is dovato working for you? I got rhabdomylosis from tivicay but do ok on genvoya. Really wish I could’ve tolerated anything with tivicay because the pills are so small.
Logged

Offline heartforyou

  • Member
  • Posts: 1,132
  • I must be a survivor in many ways...
Re: Juluca : anyone with muscle pain and stiffness?
« Reply #9 on: July 21, 2021, 08:11:22 am »
Hi Grendal,


I had no complaints about Genvoya. Splendid. But due to my start with Hydrea I had to switch to Juluca. That wasn't good at all.

I do well on Dovato. No side effects for me.

All the best

Herman
Logged
Infected 1983. Diagnosed in 1987 and still kicking
Dovato once daily. Hydrea

Happiness is the freedom of breathing fresh air every day.
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