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Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

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Recent Posts

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1
Living With HIV / Re: Viral Blip. Mental spiral.
« Last post by daveR on Yesterday at 11:33:27 pm »
I can relate to how you feel. After years of being undetectable I had three six monthly checks all with increasing numbers. Ranged from 22 to just over 200. Then two months ago back to undetectable. The Dr at the time showed no concern what so ever. She initially blamed the laboratory on the first one and just shrugged at the next two results.

Try to relax and stop thinking about the numbers, you are on good medication, I am sure yours will do the same as mine did and drop back down. Occupy your mind some how, when not working I read. Meditate daily. Possibly find a hobby that helps you relax.

Dave
2
Living With HIV / Re: Viral Blip. Mental spiral.
« Last post by harleymc on Yesterday at 10:07:32 pm »
It took over 6 years to get over 200 t4 cells.


Try and book in to see a counsellor recommended by your HIV health care service and or start booking longer dr's appointments do you can talk these issues through.

Good luck
3
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 09:09:38 pm »



            ojo.            Hello again!… I was thinking that back in the day before I started having problems with CMV retinitis, I would tell my doctor, they should specialist, that I wanted to buy me a new car and I remember he telling me, no if I were you, I would wait, I think he knew that I was going to go blind I was going to die, then I go and get a mortgage for 30 years. Like I said, I told to myself if I die, the bank would take the house back problem solved, but I never thought the same about buying me a new car. I guess I was too happy  with my Mercury cooler otherwise I wouldn’t have listened to the doctor… Those years were really bad and we had to take difficult decisions like Leatherman stopping Sustiva come. I remember the awful taste of Ritonavir, and we, still took it, The tablet Videx, The T20, Fuzeon, an injection every night, leaving me, some bumps on my tummy, the huge capsules, I can’t remember the name of the medication, but I remember that I had to take six in the morning and six at night because of the interaction with Ritonavir, well now to survive this chronic condition all it takes is one pill day, how lucky you guys are!… Sorry for the rant
4
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 07:56:03 pm »



                    ojo.            Thanks leatherman, noe I can start making plans tomorrow move down south to Texas (border line) to be closer to family. Thanks for replying… Hugs.
5
Living With HIV / Re: Viral Blip. Mental spiral.
« Last post by Tonny2 on Yesterday at 07:50:58 pm »



           ojo.             Hello there!… no need to feel bad for not being here that often, as a matter fact, I tell everybody as soon as they know that they’re treatment is working to go back to their normal lives… well, two blips, they don’t look too bad to me, but, what did your doctor say about it?. Do you know your CD4%?… try to relax because if indeed you treatment is not working, you will have more options of treatment.… Good luck, and please keep us posted and try to relax, fortunately, now a days it’s not the end of the world… Hugs
6
Living With HIV / Re: "HOPE DIES LAST"
« Last post by leatherman on Yesterday at 07:10:40 pm »
Quote from: Tonny2 on Yesterday at 03:08:58 pm
today I paid off my mortgage
OMG!! :) :)
Congratulations!!!!!
That's a great accomplishment.
7
Living With HIV / Re: downside to outliving people
« Last post by leatherman on Yesterday at 06:51:19 pm »
Thanks everyone.

You know, really even with the way HIV messed up my life and health, I don't get down too often. I've even come to grips with having two deceased partners. (You know, you kinda have to. Life keeps fk-ing moving on and eventually you're dragged along with it.)

No matter how much I miss them at times, I do have my Larry with me now...and I'm still alive. I'm the luckiest guy on the planet! But every once in a while a date or an event will happen, and I'll think about either Randy or Jim (or often both) and what they have missed out on. Of course, sometimes I imagine the what-could-have-beens too. Sigh. I love what my life is now; but I think I would have also loved it if I could have lived it out with either Randy or Jim.

In remembrance of Jim I spent the last two days getting the pool cleaned up and starting to fill back up for another summer.

Quote from: Grasshopper on Yesterday at 02:08:40 pm
however the sadness has transformed into resignation
ooo, that's a very astute realization. Yes, numerous times rather than feel despondency, I've felt resignation. I'm going to keep that word in mind.

Quote from: Grasshopper on Yesterday at 02:08:40 pm
just about 25% left to go
I like to think that I'll live as long as my grandmother did (104),  so I've just passed 50%. ;)
8
Living With HIV / Viral Blip. Mental spiral.
« Last post by Allthefeelings on Yesterday at 06:45:34 pm »
I've experienced a viral blip for the second time in four months; it was 32 in April, and now it's 104. I've been extremely diligent with my medication, but I can't help obsessing over my lab results. I'm aiming to switch from Biktarvy to either Dovato or Cabenuva, but it feels like a distant goal. When I was diagnosed in April 2022, my initial viral load was 80,000 and my CD4 count was just 22. Since then, my CD4 count has only slowly climbed above 200, and now with two consecutive blips, I'm feeling hopeless. I regret that I only reach out here when things are tough, but I don't really have anyone else to talk to about this.
9
Forums Gatherings / Re: Monthly Virtual Gathering - Saturday 4th of May.
« Last post by Jim Allen on Yesterday at 03:41:45 pm »
The email invite has gone out.  :)

If you have not signed up yet, but still want to join just let me know, and I'll add you to the invite.


POZ Monthly Virtual gathering, Saturday 4th of May.

Meeting time:

08:00 PDT
09:00 MDT
10:00 CDT
11:00 EDT
16:00 Ireland
16:00 CAT (Central Africa Time
17:00 CEST 
20:30 IST
01:00 Sydney NSW (Sunday 5th of May)
10
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 03:08:58 pm »



           ojo.            Hello everyone!… In 1998 while I was  living with aids, 0 cd4, I was still working since my diagnosis in 1994, I thought to myself that I was going to beat aids and decided to get a mortgage to buy a house, in the back of my head, I thought that if I work today, the bank would take the house back. Anyway, I remember back in the day that lots of people who were diagnosed during the 80s and early 90s when getting a Diagnosis of HIV was a debt sentence, they would go and maxed up their credit cards to get their last vacations, etc., etc., I decided to keep working and I think that working my life, anyway, when I going is to let you guys know that today I paid off my mortgage, even though I became legally blind in 2000 fortunately, I still could make my mortgage payment with my pension and Social Security… Never lose. Hope, there is always slight at the end of the tunnel, sometimes it seems very difficult to keep going, but you had to hold onto something to go on with your life because there is life after HIV diagnosis… This is part of living with HIV…hugs



Ps. I’m sorry for the typos
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