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Main Forums => Pre-HAART Long-Term Survivors => Topic started by: wolfter on April 09, 2014, 11:47:26 pm

Title: An on-going thread
Post by: wolfter on April 09, 2014, 11:47:26 pm
We need a thread where the conversation is continual and can do a quick update on those we care about.  If someone starts such a thread it'll eventually have the most hits. 

It's best to post after our common medicine.  :)
Title: Re: An on-going thread
Post by: Theyer on April 10, 2014, 07:28:59 am
Good idea , though then you will see that in any 24 hour period I can go from unable to make a cup off tea to walking the dog.I do think I am left with the physical bi-polar.
bi-health?
Title: Re: An on-going thread
Post by: weasel on April 10, 2014, 08:51:45 am
Good idea , though then you will see that in any 24 hour period I can go from unable to make a cup off tea to walking the dog.I do think I am left with the physical bi-polar.
bi-health?

    Me too   :( 

     There are many types of moods and energy levels in my day ; the MEDS make me feel dreadful , my
   coffee  perks me up to high speed   :)
    I say noon to 6 PM are my perky times .

                                                                               Weasel

     P.S. Bring on Spring , as I am in my 6th month of molting  :o
Title: Re: An on-going thread
Post by: wolfter on April 10, 2014, 01:14:55 pm
Good idea , though then you will see that in any 24 hour period I can go from unable to make a cup off tea to walking the dog.I do think I am left with the physical bi-polar.
bi-health?

capture the days that we can?  :)

Title: Re: An on-going thread
Post by: wolfter on April 10, 2014, 01:21:26 pm
Almost time to log off this thing.  We're having an absolutely beautiful day and I plan on being totally unproductive today.  I've been on extreme overdrive of late and am wearing myself thin...literally. 

I knew I was focusing on accomplishing the many tasks that I'm undertaking, but working every single day on different projects for the last couple of months is ridiculous. 

Planning on taking a long walk and finding a place to grab a meal.  I've actually dropped below my ideal weight and want it back.  Being under 140lbs was attractive when I was young, not so much being middle aged.
Title: Re: An on-going thread
Post by: Theyer on April 10, 2014, 05:05:37 pm
On one level I am struck by why you described, introduced the piece as being unproductive and yet it sounded like it was/is just what you need. Therefore if you achieved it it would be a very productive day .

Its OK I tie myself up it the same knots, This week has been very sleepy and not much achieved and therefore I am fighting the blues , yet it might be just what I need, trouble is its not what I want.

Wolfie we know you and weight is important and your Mother,s health and demands have been constant for awhile ,so the only one who is likely to change my dear is you.

And if after 10 years I still cannot live well with the level of energy I have , who the hell am I too say ought.
Title: Re: An on-going thread
Post by: wolfter on April 11, 2014, 08:25:35 am
YEAH, finally am figuring out how to use the new windows on my work computer.  I hated it at first but am comfortable enough now to log into my sites without fear of leaving traces of wastefulness instead of doing my job.  :)

and now, I find Microsoft will not be supporting older versions of windows.  I guess my newer laptop with XP will have to be upgraded.  Doesn't seem rightly fair as I purchased it not long ago and it's almost $200 to upgrade.

Have a great day all.
Title: Re: An on-going thread
Post by: Theyer on April 11, 2014, 11:35:45 am
As a Mac user running a now ancient OS I am well aware off buying something for it to be obsolete, but I have had good mileage from it and will now stay with Mac when the time comes for the eventual up grade. In the UK we pay the same amount in £ as you do in $ so Mac,s are bloody expensive . So I will get a mac mini next or even Mac Air tablet . It is frustrating when I am locked out off app,s due to not having the OS.
Title: Re: An on-going thread
Post by: BT65 on April 11, 2014, 05:16:23 pm
I've been a bit busy lately so have not been on much.  I'm doing advocacy and a women's support group, that seems to run on all days of the week.  What I mean is, the ladies contact me on off-group days.  Which is fine.  I get paid for it, for even the work I do at home.  My supervisor (she refuses to be called boss, says it equates to slavery), has been around here and in the HIV field for over 20 years; I've known her that long.  So, she's easy to work for, but expects excellence at the same time, which is fine. 

One of my former clients is in the group and calling me, and I'm going with her to the doctor this coming Tuesday.  She's having stomach issues and the doctor is not doing anything other than telling her to "breathe" (WTF), so I'm going in with her to insist something be done.  Yeah, I've been known to do shit like that lol.

I'm tired.  Very tired. Emotional energy and all that.  My hip is doing pretty good, my knees are shit.  Not going to get a replacement any time soon, that hip surgery was enough for me for now.

Greg, I know you're going through a lot of stress.  I hope you had a good day when you said you were going to be "unproductive."  We need days like that.  Please pace yourself and don't get worn down.

Michael, I love your posts.  They're just so witty, and always make me smile.  I think of you often, and hope you're doing well.  I know about on and off days, believe me. 

I'm going to try to be on more, when there's not a crisis happening.  The man who lived in the back apartment passed away a couple weeks ago, so I've also been helping his girlfriend get his apartment cleaned out, and figure out how to pay for his cremation.  His daughters are not helping because he didn't have a big pay out. >:(

I hope everyone else is doing well.  I think this thread is an excellent idea. Thanks for starting it, Greg.
Title: Re: An on-going thread
Post by: harleymc on April 11, 2014, 10:38:56 pm
Hi all,
 haven't posted in ages ... couldn't really ever justify a new thread for my bits and pieces that were happening in dribs and drabs, so happy this thread is here.

Big changes in my life over the last 6 months. Started physio to fix a bung shoulder, I'm not as compliant as I should be with the exercises but have had significant improvement. It was sore doing it, but the shoulder held out for a summer season of slowpitch softball.

Broke up with the ex, readjusting to single life after 8.5 years together is odd. Moved house about Xmas time.

I'm now 2 months into a couple of vocational courses (business administration) and (travel and tourism),  the big aim is to be back into work by July. (Fingers crossed) I'm battling with Centrelink (Australia's social security) I was getting income support before starting study but have been cut off for 13 weeks... Lodged an appeal yesterday. Stressful to the max!

cd4s have shot up to 140 YAY, some stresses are worth it!

Title: Re: An on-going thread
Post by: Theyer on April 12, 2014, 08:36:23 am
Hello Harley, Are you only going to post your own thread if you say survive a Shark attack, twice?

There,s enough in your post for a collection . Kudos,s to you for your presentation and up beat-ness and good luck with the Battle . Where exactly are you , your Island not being the smallest place on the planet. Loved your post Harley it gets my understated Jeez reaction off the week. But don,t be a stranger to us ,

And BETTY , dear darling Betty , there,s a Fun Fair camped out on Clapham Common so off course my walk with the Dog includes thinking about you. I am not surprised to hear you are emotionally tired, there is a lot off energy you are giving out , .The daughters sound a lovely collection , sorry you are having to sully your good self by having to have contact with them.I would be tempted to give the Gentleman a New Orleans style funeral with the bills going directly to them.

Some people Betty my dear have no grace.

And CARL how is the kitchen. Am I the only person totally immune now to caffeine. I love the taste but drink a large mug off an strong Italian blend and promptly wake up two hours later.


More postings please , eager to know how us band off doughty die hards are fairing.
Title: Re: An on-going thread
Post by: wolfter on April 12, 2014, 03:04:57 pm
seems such a simple way to stay in touch and update on our mundane lives.  :)

I truly enjoy the updates from people, even the simple things.

@ Betty, I decided to be unproductive until I saw my golf clubs and decided to spend an afternoon cleaning and polishing them.  That weather is finally upon us. 

And because mom's been in the hospital I decided to deep clean her home. 

I also love Michael's posts, but I'll admit that I don't understand them half of the time.  :)  I've had to use google many times.

Hope you all have a great rest of the weekend.  Just got off work and have a bowling party to attend later so I have to grab an hour or two of sleep before heading back to my last night of work.

hugs all
greg
Title: Re: An on-going thread
Post by: harleymc on April 12, 2014, 05:29:27 pm
I certainly will not start a thread if I only survive one of the shark attacks.
Title: Re: An on-going thread
Post by: Theyer on April 12, 2014, 06:13:21 pm
I certainly will not start a thread if I only survive one of the shark attacks.

Off course you would not , like any self respecting Australian you would simply get out the duct tape complete the repairs and enjoy what is it yes ----a cold one. So so butch , and quite admirable in many ways .

Now I as a yapping pom I must post the slight tickle my throat has.
Title: Re: An on-going thread
Post by: Jeff G on April 12, 2014, 06:23:48 pm

Now I as a yapping pom I must post the slight tickle my throat has.

Is that British slang for choking on a pubic hair ?
Title: Re: An on-going thread
Post by: Joe K on April 12, 2014, 08:52:38 pm
Is that British slang for choking on a pubic hair ?

I have this feeling that Michael is referring to a tickle way, way, down the throat.   ;)

Joe
Title: Re: An on-going thread
Post by: Theyer on April 12, 2014, 09:15:01 pm
British slang for choking on pubic hair    " amateur "
Title: Re: An on-going thread
Post by: weasel on April 13, 2014, 10:20:16 am

   And CARL how is the kitchen. Am I the only person totally immune now to caffeine. I love the taste but drink a large mug off an strong Italian blend and promptly wake up two hours later.

    Theyer , The kitchen is coming along well , I just made a fine post , that
    went poof ! So I will leave it at that for now .

                                                                               Carl
Title: Re: An on-going thread
Post by: Jeff G on April 13, 2014, 11:07:52 am
I have made a chipmunk friend . Its nice out so I have the back door open and this little chipmunk has been sitting on my tool bench in my carport about 10 feet away everyday for weeks now watching me on my computer by the door . I fed him pumpkin seeds yesterday and crackers this morning . He is getting brave now and doesn't run away as much . He is living under the the tool cabinet and probably chewing it up under there but I cant see much I can do about it . I have seen him or her come and go from under there for the last 5 years and since they are solitary animals I assume its the same critter .     
Title: Re: An on-going thread
Post by: BT65 on April 13, 2014, 12:10:43 pm
Oh, that's so cool about the chipmunk.  Wild animals are so interesting to watch.  I like to watch squirrels chase each other.  They have a lot of energy.

Greg, I just deep cleaned my bedroom and moved everything around.  Yes, I took everything out of the bedroom.  It took the whole day yesterday, but I'm glad I did it.  I haven't gotten out the spring/summer tops yet, but will after I do laundry tomorrow. 

I also have to have a dexa scan tomorrow, Tuesday I see the surgeon.  I'm tired of these doctor appointments, and I know you all can relate.

Today I cleaned the living room rug, so I feel better about that.  Hope everyone is having a good day.  And oh, I didn't understand that remark about the throat either.  :)

Betty
Title: Re: An on-going thread
Post by: Theyer on April 13, 2014, 02:55:58 pm
Woke up at 2am in sweat soaked bed, with a almighty headache, temp. bones aching and sore throat . it,s now 19.50 and my temp is gone. Very slow and wobbly . Feel weak .
Title: Re: An on-going thread
Post by: wolfter on April 13, 2014, 03:40:34 pm
I think animals have a natural instinct when it comes to humans.  Several wild critters around here don't run off and usually await the treats I bring them.  Our little fat squirrel roosts a mere few feet away while I will his food bin.

A couple of summers ago, I discovered a group of baby opossums on mother's porch that were obviously abandoned.  They had settled on the bottom shelf behind some clutter and were starving.  Eventually, I was able to pet them while feeding them.

I've been checking the rescue sites for several weeks looking for a new doggie.  I'm specifically looking for an older pet as they usually have a difficult time finding a forever home.

Now, it's time to turn on the air as the oppressive heat has started.  Almost 80 outside.  Or, since it's Ohio, I could simply hold off as we're expecting snow in 2 days.  Only here do you wear a bikini and a parka in the same week.
Title: Re: An on-going thread
Post by: mitch777 on April 13, 2014, 04:04:15 pm
Woke up at 2am in sweat soaked bed, with a almighty headache, temp. bones aching and sore throat . it,s now 19.50 and my temp is gone. Very slow and wobbly . Feel weak .

Is this an example of your bi-health Michael? Hope you feel better soon hun.

As for myself, nothing much new other than a pinched nerve in my back from having too much gusto too soon after a relatively sedentary winter. I spread around some mulch in the garden and have pretty much been walking the old man shuffle since.

Oh, and my mother is moving into assisted living at the end of the month. She is NOT happy as she thinks she is self sufficient when we all know she isn't. (geez, four "she's" in one sentence, lol.) This move will kind of force her in some ways to socialize more and that's exactly what is needed. Time for her to be more of a yapping pom or is that what she has been doing?  :-\  :)
Title: Re: An on-going thread
Post by: Theyer on April 14, 2014, 08:22:04 am
No darlin this is something above and beyound , seeing Doctor tomorrow , its a bug but then I also get urine infection so blah blah blah
Title: Re: An on-going thread
Post by: Theyer on April 14, 2014, 08:28:01 am
Is this an example of your bi-health Michael? Hope you feel better soon hun.

As for myself, nothing much new other than a pinched nerve in my back from having too much gusto too soon after a relatively sedentary winter. I spread around some mulch in the garden and have pretty much been walking the old man shuffle since.

Oh, and my mother is moving into assisted living at the end of the month. She is NOT happy as she thinks she is self sufficient when we all know she isn't. (geez, four "she's" in one sentence, lol.) This move will kind of force her in some ways to socialize more and that's exactly what is needed. Time for her to be more of a yapping pom or is that what she has been doing?  :-\  :)

It still makes me smile my Mothers absolute refusal to identify as old and needing care, as she fully intended to get better and unlike the " old people  " she lived with there was lots off life in her. Age 92 , bed ridden this was still her position .
Title: Re: An on-going thread
Post by: wolfter on April 14, 2014, 11:23:58 am
I hope you feel better soon Michael.  I had something that lingered for a couple of weeks.  At least we're experienced enough to not think the AIDS was getting us.  :)

Christ sakes, every little sniffle in the 80's scared the shit out of me. 

I'm just hanging out at mother's today since she might be coming home from the hospital tomorrow.  She has been in there a few days now.  Her home will reek totally of bleach as I'm doing a thorough cleaning for her.  She continues to smoke and that nasty grime settles upon everything pretty quickly.

Also taking a break from working on the new place.  I've exhausted myself of late and I'm working a couple of extra shifts at work this week.  I've followed my time line pretty well and am on schedule.  My goal was to have the inside completely finished by June which will happen.  Then I can focus on the outside and finally get a true appraisal and determine the next course of action.
Title: Re: An on-going thread
Post by: BT65 on April 15, 2014, 06:46:51 am
I've been checking the rescue sites for several weeks looking for a new doggie.  I'm specifically looking for an older pet as they usually have a difficult time finding a forever home.

Now, it's time to turn on the air as the oppressive heat has started.  Almost 80 outside.  Or, since it's Ohio, I could simply hold off as we're expecting snow in 2 days.  Only here do you wear a bikini and a parka in the same week.

Good luck with the new dog search Greg.  I think it's wonderful you're going to adopt an older dog. 

Ohio isn't the only one where weather changes in a matter of two days.  Two days ago, it was in the 70's.  Yesterday afternoon it was like 35F.  This morning it is 29F, with the projected high being 36F.  Tomorrow it's supposed to be in the 50's.  Snowing out right now.  So sick of this, but realize what area of the country this is.

I still have not gotten out my spring/summer tops yet.  I am debating getting a new bed.  I've had the same one for like 10 years. It's still in good shape, but I'm just thinking a new bed would be nice.  I have a frame, so would only need the mattresses. 

Did not make the Dexa scan yesterday, but am going to the surgeon this morning.  He should tell me how things are going, hip wise.

Michael, I hope you feel better soon!!
Title: Re: An on-going thread
Post by: Theyer on April 15, 2014, 09:35:03 am
I do feel better but fact is I am ill and  weak.


For the past 3 weeks I have noticed an alarming swelling at the end off the day around my socks elasticated tops , it occurs regardless off level off activity, so in truth the visit to the Doc is two fold , I for see investigations re heart troubles I had in the early2000,s and I do not want them .

I want enough energy to get to Orkney with the sense and piece off mind that it is not irresponsible to go somewhere so isolated .

I am not the happiest bunny at Easter at the moment and am sick to death off posting my boring on going health problems.

It would be fitting if I was 85+, but it is not for the nature off a physically active man of 56 or 7 .

If I was not conserving energy I would roar and scream
Title: Re: An on-going thread
Post by: Jeff G on April 15, 2014, 09:44:10 am
I do feel better but fact is I am ill and  weak.


For the past 3 weeks I have noticed an alarming swelling at the end off the day around my socks elasticated tops , it occurs regardless off level off activity, so in truth the visit to the Doc is two fold , I for see investigations re heart troubles I had in the early2000,s and I do not want them .

I want enough energy to get to Orkney with the sense and piece off mind that it is not irresponsible to go somewhere so isolated .

I am not the happiest bunny at Easter at the moment and am sick to death off posting my boring on going health problems.

It would be fitting if I was 85+, but it is not for the nature off a physically active man of 56 or 7 .

If I was not conserving energy I would roar and scream

Its good to get your heart checked out in cases like this . I cant wear socks all day or my ankles or the area at the top of the socks becomes inflamed due to my nerve damage in that area, its painful and troublesome but in my case the solution is to remove the socks . 
Title: Re: An on-going thread
Post by: wolfter on April 15, 2014, 11:47:16 pm
When are you leaving Michael?  If I remember correctly, we'll not hear from you for a while you're on travels.  Certainly hope everything checks out ok.

@Betty, you better be getting that scan.  That might cause you to rethink falling in the future.  You mention a new bed; I was noticing mine sort of has a sag in it and I became a little upset knowing what we paid for it.  It should last several years minimum.  Then it dawned on me just how long ago we bought it...lol  Hell, Bill's been dead for 8 years now and I know we spent a lot of time on it. 

Title: Re: An on-going thread
Post by: Theyer on April 16, 2014, 09:51:52 am
When are you leaving Michael?  If I remember correctly, we'll not hear from you for a while you're on travels.  Certainly hope everything checks out ok.

@Betty, you better be getting that scan.  That might cause you to rethink falling in the future.  You mention a new bed; I was noticing mine sort of has a sag in it and I became a little upset knowing what we paid for it.  It should last several years minimum.  Then it dawned on me just how long ago we bought it...lol  Hell, Bill's been dead for 8 years now and I know we spent a lot of time on it.

Lord knows I certainly don,t I am awaiting Dental appointments and now have to get over this. I hate the idea off just going for 2 weeks , its a place I go and live in or was. Very low about it all truth be told . I have not recovered health fully from the Hospital stay , now I am ill again, the Dentist has washed her hands off me as its beyond her skills , and the fluid retention will need to be investigated. The GP yesterday , which could be a post in itself, particularly emphasized getting the fluid retention looked at due to my past heart problems.

Struggling to remain adult ,
m
Title: Re: An on-going thread
Post by: wolfter on April 17, 2014, 09:04:37 am
I'd find a new dentist if I had one who washed her hands of me.  I fired my long term dentist about a year ago and found one who specialized in PLWHA.  I interviewed several before I chose my current one.

I'm glad to say that I went from a complete basket case to a place of extreme serenity.  This entire week has seen calmness and I've slept the best that I have in years.  It even dawned on me that I've not had a cocktail since Saturday night.

hugs and luvs to you all

OH, and we're possibly back to air conditioning weather today.  :)
Title: Re: An on-going thread
Post by: mitch777 on April 17, 2014, 01:16:22 pm
Lord knows I certainly don,t I am awaiting Dental appointments and now have to get over this. I hate the idea off just going for 2 weeks , its a place I go and live in or was. Very low about it all truth be told . I have not recovered health fully from the Hospital stay , now I am ill again, the Dentist has washed her hands off me as its beyond her skills , and the fluid retention will need to be investigated. The GP yesterday , which could be a post in itself, particularly emphasized getting the fluid retention looked at due to my past heart problems.

Struggling to remain adult ,
m

I've been a bit preoccupied the past few days with my dearest friend dealing with heart surgery and a blood infection. I sincerely hope you get it checked out soon.

I can hear the frustrations in your posts here and wish you well soon as I know how you so enjoy your time spent in Orkney. So hate it when health blips get in the way of our fun!
Title: Re: An on-going thread
Post by: Theyer on April 20, 2014, 10:39:41 am
Forgive me for forgetting to inquire about your friends progress, I hope they are on the mend . I am at least up and dressed this Easter Sunday , feeling OK isk .Beginning to grow concerned about complete lack off appetite. The kitchen is groaning with food stuffs all off which the brain/stomach revolt at .

So , tis case off least revolt maximum force, at least twice a day . I think its french bread done with sour dough and eggs and maple syrup which I can at least type without gagging. Saint Mark is providing food stuff,s and dog walking and without him life would be much the poorer. I must be one off the few folk whose helpers is a straight Oxford  1st  brainiac Management Business consultant , all the tasks off the day are programmed around Rugby on the Television.

However Saint Mark deserves much credit , more so as he would not dream off seeking it.

All the Best Easter wishes to ALL OF YOU , drop by and lets have a resurrection.
Title: Re: An on-going thread
Post by: mitch777 on April 20, 2014, 11:14:06 am
Thanks for asking. He had a blood infection (unknown cause) and was having trouble breathing. they discovered damage to his heart. (he is hiv-) They normally would have waited to do the surgery but the cardiologist said he wouldn't have lasted for 2 days. Two valves replaced. He will also be on an IV for the infection for about 6 weeks.

They moved him out of ICU yesterday. He is exceeding their expectations. Yay! He and I have known each other for 37 years. I can't imagine what life would be without him. We are leaving soon to pay him a visit. It's been a scary week.

Eat Michael, eat.  :)
Title: Re: An on-going thread
Post by: Jeff G on April 20, 2014, 11:36:55 am
 :) :) :) ^ . Good to hear he is much improved .
Title: Re: An on-going thread
Post by: Theyer on April 20, 2014, 01:41:51 pm
Thanks for asking. He had a blood infection (unknown cause) and was having trouble breathing. they discovered damage to his heart. (he is hiv-) They normally would have waited to do the surgery but the cardiologist said he wouldn't have lasted for 2 days. Two valves replaced. He will also be on an IV for the infection for about 6 weeks.

They moved him out of ICU yesterday. He is exceeding their expectations. Yay! He and I have known each other for 37 years. I can't imagine what life would be without him. We are leaving soon to pay him a visit. It's been a scary week.

Eat Michael, eat.  :)

Can not blood infections cause damage to the heart?
Title: Re: An on-going thread
Post by: wolfter on April 20, 2014, 02:35:59 pm
So glad your friend is doing well Mitchy.

Title: Re: An on-going thread
Post by: mitch777 on April 20, 2014, 06:21:40 pm
Thanks guys. And yes Michael, the blood infection seemed to be the culprit.

The visit was great. He looked good but has lost some weight. Full of good humor as usual.

Just after recovering from surgery he was dialing 911 to report the nurses. lol. The next day he was feeling more like himself and was singing to one of his nurses on the intercom. Daisy was her name and Daisy he sung.

His current roommate is a born again Christian. NOT my friends cup of tea but they seem to be a very nice family. They all fell in love with him and the roommates grand daughter (about 8 years old) wrote him a beautiful letter and brought him a Teddy Bear during our visit. We bought him the gaudiest gold cross neckless we could find at the hospital gift shop. He cracked up and the picture of him with it and Teddy is priceless.

He will probably be released in a couple of days! 
Title: Re: An on-going thread
Post by: wolfter on April 21, 2014, 11:21:45 am
So excited to get started on my fire pit today.  Never understood why they placed the fire pit in such an area that the adjacent fenced in lot is unaccessable.  It's a huge lot and I need to get all the fun stuff completed for my first annual camp party.

Already have the driving range done, but must get the horse shoe pits done along with the darts area.  The electric is already done so we'll be able to set up the campers pretty easily.  I have a plumber coming to give an estimate for installing a dump station into the existing sewer. 
Title: Re: An on-going thread
Post by: Jeff G on April 21, 2014, 01:15:34 pm
Im probably going to have a molar pulled this afternoon . I have had two root canals done that hasn't taken . I probably not in compliance with local Alabama anti pretentiousness ordinances for having a full set of chompers anyway .   
Title: Re: An on-going thread
Post by: Jeff G on April 21, 2014, 03:53:48 pm
Well Hell . I had my dental appointment and all they did was make another appointment to have it pulled . I have bone loss in my jaw, hope it doesn't migrate south . 
Title: Re: An on-going thread
Post by: mitch777 on April 21, 2014, 04:38:22 pm
Well Hell . I had my dental appointment and all they did was make another appointment to have it pulled . I have bone loss in my jaw, hope it doesn't migrate south .

Are they sending you elsewhere for the pulling? My dentist did. I guess everyone's a specialist these days.

Btw, how do they determine if you have bone loss in the jaw?
Title: Re: An on-going thread
Post by: Jeff G on April 21, 2014, 04:46:14 pm

Btw, how do they determine if you have bone loss in the jaw?

They throw you across the room and if the dog doesn't bring you back there is no bone . That and they do a this scan where the camera goes around the jaw and face, real highteck stuff that instantly pops up on a monitor, even I could see it  .

And yes ... they are sending me back to the dentist that sent me to him .
Title: Re: An on-going thread
Post by: wolfter on April 21, 2014, 10:28:40 pm
I had a tooth issue last year after I was already diagnosed with osteoporosis.  My dentist did that same scan to make sure I wasn't suffering bone loss in my jaw.  Never heard of such a thing before then.

And being a West Virginian derivitative, it's imperative to retain my toothies til death. ;D

What else causes bone loss in the jaw?  I'm assuming at your age, you've already had a BDS?
Title: Re: An on-going thread
Post by: Jeff G on April 21, 2014, 10:37:11 pm
I have never been BDS'ed . I didn't ask a single question but now that you mention it I will ask about that . I have grown fond of the bones in my face would hate to part with more of them . I go back next Monday for the extraction and will let you know .

Then we can start a thread in LTS and talk about how living with HIV for thirty years will cause your head to become a deboned water balloon . 
Title: Re: An on-going thread
Post by: wolfter on April 21, 2014, 10:55:01 pm
I've recently mentioned this in another thread; my doctor is now routinely ordering BDS on all of his long termers.  He is seeing a large percentage of us with osteopenia and osteoporosis way too soon.

I urge everyone to get a base level early.  So far, there's no cause and affect reasoning for early bone loss but his best guess is the early meds.  imagine that!  It could also be lack of nutrition.  How many of us spent years hoping we could hold down at least part of meal?

It seems reasonable that if we were wasting in other areas, that the bones would weaken also.
Title: Re: An on-going thread
Post by: Jeff G on April 21, 2014, 11:06:27 pm
Im prone to waiting till its broke to fix it . I have had bad stomach pain for a few years that I didn't see a doctor about until Ann made me . I thought it was just more of the same chronic pain I live with but it was stomach ulcers and H pylori . Just finished a 10 day course of antibiotic cocktail today for that . Between that and the bronchitis I had now been on harsh antibiotics for the last 50 days . I'm done I tell you .   
Title: Re: An on-going thread
Post by: wolfter on April 22, 2014, 12:22:34 am
Im prone to waiting till its broke to fix it . I have had bad stomach pain for a few years that I didn't see a doctor about until Ann made me . I thought it was just more of the same chronic pain I live with but it was stomach ulcers and H pylori . Just finished a 10 day course of antibiotic cocktail today for that . Between that and the bronchitis I had now been on harsh antibiotics for the last 50 days . I'm done I tell you .

Me too, that's what led to a prolonged recovery with my broken leg.  I get chastised for procrastinating so I'm throwing it right back at you. ;D 

I had a duodenial ulcer a long time ago and it was complete agony.  I tolerated it to the point where it had to be surgically repaired.  Another wolfism...lol    Glad you got those nasty issues taken care of and am looking forward to your bone results. 

Title: Re: An on-going thread
Post by: mitch777 on April 22, 2014, 06:43:10 pm
With all of my teeth issues last year I'm thinking that the high tech jaw dissolving test would be a good idea. My dentist never mentioned it. I've become less happy with him as time goes by. He always seems to be tying to be a salesman.

Finally had my Dexa Scan last week. Will find out the results at the end of the month.

Jeff, so glad you are done with those antibiotics! How is the ulcer?
Title: Re: An on-going thread
Post by: Jeff G on April 22, 2014, 08:01:26 pm
With all of my teeth issues last year I'm thinking that the high tech jaw dissolving test would be a good idea. My dentist never mentioned it. I've become less happy with him as time goes by. He always seems to be tying to be a salesman.

Finally had my Dexa Scan last week. Will find out the results at the end of the month.

Jeff, so glad you are done with those antibiotics! How is the ulcer?

I had a bad night last evening and was up and down allot so I still have a way to go .

I also have been planning on stopping my Zyrtec allergy meds and did so . I have been on it for years and have been broke out in hives for the last 3 days since quitting but that is getting better too .
Title: Re: An on-going thread
Post by: Theyer on April 23, 2014, 07:21:26 am
How or what will the tests be to see if the ulcer is history, birthday boy
Title: Re: An on-going thread
Post by: weasel on April 23, 2014, 06:02:13 pm


       So  I see peeps posting about going back to work  :o

        I have been working on building cabinets and finishing up sheet rock
       at my sister's beach house ; hurricane Sandy destroyed most of the house
       but we saved it  :)
            Tomorrow  will be a Month I have been in CT.  , other than a few dinner
      parties I have not done noth'n but work  :(
         I am so tired , I made a reservation to fly home for a month to see my
        husband and enjoy some of our Spring before it gets to be 112 degrees .
          I HOPE  that the people going back to work think about how much
        energy they have stored up . I thought I was good , but I can't do it  :-[
         First thing I am doing is to fill up my  5 foot x 20 foot pool , Bob will bring
       me a cocktail once in while as I baste'

                                         That is all for now ,
                                                                          Carl

       P.s.  Monday I have an EYE appointment  to check my eye pressure ,
      I'm having issues  :'(
     P.P.S.    Two  I.D.   Doctors appointments coming up also  .   
Title: Re: An on-going thread
Post by: LongTimeSurvivor on April 23, 2014, 08:47:42 pm
Weasel...you build cabinets!!!

Uh...

I would love to have a cabinet built in my kitchen...with drawers, shelves and doors. Do you think you could whip one up for me?

LongTimeSurvivor
Title: Re: An on-going thread
Post by: mitch777 on April 23, 2014, 09:18:01 pm

       So  I see peeps posting about going back to work  :o

        I have been working on building cabinets and finishing up sheet rock
       at my sister's beach house ; hurricane Sandy destroyed most of the house
       but we saved it  :)
            Tomorrow  will be a Month I have been in CT.  , other than a few dinner
      parties I have not done noth'n but work  :(
         I am so tired , I made a reservation to fly home for a month to see my
        husband and enjoy some of our Spring before it gets to be 112 degrees .
          I HOPE  that the people going back to work think about how much
        energy they have stored up . I thought I was good , but I can't do it  :-[
         First thing I am doing is to fill up my  5 foot x 20 foot pool , Bob will bring
       me a cocktail once in while as I baste'

                                         That is all for now ,
                                                                          Carl

       P.s.  Monday I have an EYE appointment  to check my eye pressure ,
      I'm having issues  :'(
     P.P.S.    Two  I.D.   Doctors appointments coming up also  .   

Ain't that the truth. Ageing with hiv is one thing but being a LTS AND ageing is a different animal. The pace just seems to get a bit more unpredictable as time goes on.

Hope you soak in the spring and your hubby. Would love to touch base when you return.
Fill us in on your eye issues when you can.
 

 

Title: Re: An on-going thread
Post by: BT65 on April 24, 2014, 04:49:31 am
I will be working the polls on mid-term election day, May 6; went to the training last night.  It pays $85, so why not?  A little extra money. 

I have to be there from 5:30 am 'til about 7:00 pm.  And have to go the night before to set things up.   

I'll be a judge, so will help anyone who needs it, and stand and eye everyone suspiciously. 
Title: Re: An on-going thread
Post by: wolfter on April 24, 2014, 02:27:03 pm
I will be working the polls on mid-term election day, May 6; went to the training last night.  It pays $85, so why not?  A little extra money. 

I have to be there from 5:30 am 'til about 7:00 pm.  And have to go the night before to set things up.   

I'll be a judge, so will help anyone who needs it, and stand and eye everyone suspiciously.

I can see an uptick in "am I".  I found out my poll worker had HIV and touched my voting screen, was this a risk and should I test?

Sorry, I found humor in it.  :) 

@ Carl, is it too soon to invite you over to help me build custom cabinets?  I tried finding stock ones, but have determined I'll custom build them.  I'm converting a large alcove into a dry bar area.  I'll have to share pictures of the beautiful bar that my brother bought in Turkey 30 years ago.

aha, found it.

(http://i940.photobucket.com/albums/ad246/wolfter/bararea_zps113e373e.jpg)
Title: Re: An on-going thread
Post by: BT65 on April 24, 2014, 08:47:02 pm
I can see an uptick in "am I".  I found out my poll worker had HIV and touched my voting screen, was this a risk and should I test?

Sorry, I found humor in it.  :) 
Cute.  In the training, they were talking about what people could and couldn't bring into the polls, and this one redneck said, loudly, "but they can bring in guns, right?"   And people can!  I did not know this, though am not surprised living in Indiana.  I swear, more and more the attitudes in this state are so surreal.  It's like Indiana should be by Mississippi and not up North.
Title: Re: An on-going thread
Post by: wolfter on April 25, 2014, 06:01:41 pm
In Ohio, if you have a CCW permit, you can carry a gun anywhere. 

Now I'm off for my 7:00 cocktail hour.  Hope everyone has a great weekend.

huge hugs, see you all in a couple of days.  :)
Title: Re: An on-going thread
Post by: wolfter on April 30, 2014, 02:11:47 pm
Been a stressful couple of days, and I'm proud to say I handled it damn well.  Mom was actually released from the hospital and is doing quite well considering. 

Also, made an appointment with the eye doctor.  I'm trying to avoid denial and have recognized that my vision is failing again.  It is what it is I guess.  I've witnessed a steady decline recently and it was quite telling today while driving my mother home. 

I spend a fortune on glasses and the thought of replacing them grates on my nerves.  I'm recalling my past where I was virtually blind and could only see shadows.  But it's time to get er done.
Title: Re: An on-going thread
Post by: Theyer on April 30, 2014, 04:49:53 pm
Cute.  In the training, they were talking about what people could and couldn't bring into the polls, and this one redneck said, loudly, "but they can bring in guns, right?"   And people can!  I did not know this, though am not surprised living in Indiana.  I swear, more and more the attitudes in this state are so surreal.  It's like Indiana should be by Mississippi and not up North.

I guess a bullet hole is as good as a X.
Title: Re: An on-going thread
Post by: wolfter on May 02, 2014, 02:42:57 am
Not a single comment on the bar?  LOL  Perhaps it's not as cool as I thought which explains why it has been in storage for years. 
 
We're in a frenzy trying to figure out the logistics since mother's latest episode.  I was truly afraid we lost her.  Enough so that all her sisters are coming in this weekend.  Being me, I am focusing on accomodations.  Mother is the only smoker and I can't imagine her siblings wanting to hang out in her nicotine laden home. 

My aunt from Florida has already said that my brother and I can take Uncle Ron anywhere.   She'll soon forget though.  After 50+ years of marriage, why bother arguing?  Plus, we've already planned for the younger uncle who is only 70 to contrive the situation.  :)

They left Florida on Thursday which means they should be here around Saturday. Yeah, we're taking uncle Ron out regardless.
Title: Re: An on-going thread
Post by: Theyer on May 02, 2014, 08:15:00 am
Oh Greg this is clearly the time to start taking recreational drugs ,when all the Aunts and Uncles have arrived just copy whats on there medicine bottles , post it and between us all we should be able to come up with a good cocktail with safe dosage which will mean you will glide through the whole event , promise.
Title: Re: An on-going thread
Post by: weasel on May 03, 2014, 04:26:25 pm

      I love whipping up cabinets  :)
      The train ride into the city should be fun  ;)

      Wolfter , Your bar looks very cool , I can imagine  cabinets behind it
       why no sink ?   
     
       A table saw and an air compressor is all you need to build cabinets , along
      with a a few nail guns and a few sanding gizmos . 
       I use Brushing Lacquer over minwax stains .   Makes for a nice finish , as I
      can not stand to spray large amounts of poison into the air .

      My pool is still not full of water   , We've had dreadful weather . By next
      week it will be into the 90's  .   

       I'm enjoying my time with my Honey Bun  ;D   
       Not looking forward to driving back to Missouri .

                                                        That is all ,  Weasel

      P.S.   : We've had a wonderful DogWood season , very lush this year .
Title: Re: An on-going thread
Post by: mitch777 on May 03, 2014, 06:14:29 pm
When are you coming back to Connecticut Carl?
Title: Re: An on-going thread
Post by: Theyer on May 04, 2014, 09:36:15 am
When are you coming back to Connecticut Carl?

Carl fancy a working Holiday painting putting up shelfs in London. ? Remember the flat,s in London so its about the size off Mr Mitch,s Garage in his Connecticut home.
Title: Re: An on-going thread
Post by: weasel on May 04, 2014, 11:35:27 am
Carl fancy a working Holiday painting putting up shelfs in London. ? Remember the flat,s in London so its about the size off Mr Mitch,s Garage in his Connecticut home.

      A working vacation in London , cool !

     Have you seen Mitch's garage ?   I could live very comfortable in that  :)

     I shall be flying into Bradly International  may 22nd , staying  for three weeks , then driving home .
      My car registration expires the end of June .  So time is limited , I really hope all goes according
    to plans .   Otherwise my sister will have a kitchen with no doors  ???


     It's a lovely day , I'll be working in the flower beds today  ;D

                                                                                 Carl 
Title: Re: An on-going thread
Post by: mitch777 on May 04, 2014, 11:47:29 am
      A working vacation in London , cool !

     Have you seen Mitch's garage ?   I could live very comfortable in that  :)

     I shall be flying into Bradly International  may 22nd , staying  for three weeks , then driving home .
      My car registration expires the end of June .  So time is limited , I really hope all goes according
    to plans .   Otherwise my sister will have a kitchen with no doors  ???


     It's a lovely day , I'll be working in the flower beds today  ;D

                                                                                 Carl

Stop on by if you get a chance.  :)
Title: Re: An on-going thread
Post by: BT65 on May 05, 2014, 05:15:42 pm
I went to set up today for the polls tomorrow.  The "inspector," (which is what they call the supervisor) is a hard-core Republican.  He was going on about guns, and how he would level anyone that tried to take his lol.  So tomorrow should be interesting.

I now have to be there at 5:00 am.  I have to take a shower before I leave, and eat a little something.  So I'll be getting up in the middle of the night.  Oh well, I do that sometimes anyway thanks to the menopause.

Mitch, you were talking about aging and being a LTS'er and you are so right.  I take a prescription antacid, but this weekend had to go to the drug store and get some Gaviscon and Beeno.  Ah, the fun.  Well, wish me luck tomorrow at the polls, I hope everything goes smooth and I believe it will since this is only the primaries. 
Title: Re: An on-going thread
Post by: Theyer on May 06, 2014, 07:05:41 pm
Betty darkink please post soon so we all know that you did not get shot by some over enthusiastic lover off freedom and democracy.
Title: Re: An on-going thread
Post by: mitch777 on May 07, 2014, 09:14:58 am
Betty darkink please post soon so we all know that you did not get shot by some over enthusiastic lover off freedom and democracy.

I was thinking the same thing.

Betty? BETTY!?
Title: Re: An on-going thread
Post by: BT65 on May 07, 2014, 03:23:49 pm
Lol, no it was actually pretty slow and quiet.  The "inspector" was probably the only one to bring a gun.  There was a 93-year old man who worked the polls with us.  He was a retired chief of police.  Very nice man, talked about how different law enforcement used to be before it was politicized.  He's right on about that.

Otherwise I talked to the ladies who were the poll clerks, for most of the day.  Got there at 5 am, left at 6:30 pm.  It was a long ass day.  And I was told it will take 3 weeks to one month before getting a check.  That's going to majorly suck. 

I'm sure it was slow due to hardly anyone being on the ballots.  It's a slow election year. But I'm hoping Jackie Walorski will get voted out.  She's the congresswoman for this district, and also helped me with the whole Social Security fiasco (well, one of her caseworkers did).  But she's a tea-party'er so, ick.  I survived though, lol.
Title: Re: An on-going thread
Post by: Theyer on May 07, 2014, 04:39:58 pm
The Police man sounds fascinating , and the money will come. Now you are on the books Betty does this mean you get the gig for every election ?
Title: Re: An on-going thread
Post by: BT65 on May 08, 2014, 02:31:35 am
The Police man sounds fascinating , and the money will come. Now you are on the books Betty does this mean you get the gig for every election ?

I've heard the council usually calls persons who work an election, when the next election comes up.  Which will be November. 
Title: Re: An on-going thread
Post by: wolfter on May 14, 2014, 12:13:51 am
I've been conspicuously absent from most media for a while.  I've had to mature more in the last year than I did my entire life.  I allowed myself to own my feelings and beliefs while maintaining the magnitude of what our family is dealing with.  To see all my mother's sisters to show up and refuse to leave is priceless. 

My most favorite aunt and uncle have been here and they're planning on staying.  I don't know their ages but I know they've been married 59 years this summer.  They're hopefully 70.  I forbade them about something yesterday and my uncle cussed at me.  He never does that and almost immediately apologized. 

What I did was be a logistics/finance planner.  Old people don't need to sit in a hospital 8 hours day unless they're the patient.  Mother is stable as long as she stays in the hospital.  I spoke with my mother about it and she agreed.  She doesn't want people in her room all day.  So they're staying for a while, which I totally am happy about, but they only have to drive that long distance and can only stay 2 hours unless something truly worsens.

They were so relaxed after being in charge of the depressive vigil they've been enduring.  We sat on the porch and laughed and had a nice evening. 
Title: Re: An on-going thread
Post by: Theyer on May 14, 2014, 03:09:48 pm
Hi Greg, the Politics off Hospital visits. There's a PHD in there for someone. It sounds good though ,there with there sister making sure  time is shared and life shared too.
Good luck with it all
Michael
Title: Re: An on-going thread
Post by: BT65 on May 16, 2014, 08:32:09 am
Well that's some good news, Greg.  I'm so glad you got to visit with your aunt and uncle.  I hope good things continue in your life!

I've been delivering phone books.  I needed some money and that's a very easy job to get, so I am doing a route.  Now, this route consists of a little over 400 places to drop the book at.   I've delivered almost 400 papers.

I cannot tell you how sore my hip/legs/knees are.  When I got to the place doing this, the ladies tried to talk me out of it.  But I was determined.  I'm almost done, and am only home because the rest of the places I have to deliver to are businesses, and they're not open for another 1/2 hour. 

I won't be doing this again anytime soon, if at all.  It's been killing my left side (the side I broke my hip on).  I need to rest it this weekend. 

But, if I want money to get through until the end of the month, I need to do something to earn it.  I know it's not a "high-end" job, certainly not what I went to school for, but it's a quick way to make money.  I am supposed to be paid next Friday if everything checks out alright.   I messed up the route book pretty bad, and think I may have done something to their GPS (they use that to track people ).  Well, wish me luck and please cross fingers, legs, eyes, etc., that everything checks out and I can get paid.  Thanks!
Title: Re: An on-going thread
Post by: Theyer on May 17, 2014, 04:13:54 pm
Betty that is a hard and tough road , wish with all my heart it gets lighter soon.


Do you know the game People I Choose to be in my life boat  // I will now always add you .

Hats off love from Michael who is crossed in bits.
Title: Re: An on-going thread
Post by: BT65 on May 17, 2014, 05:09:05 pm
Thanks, Michael. 

When I took the GPS and extra left over books back, the lady wanted to know why I had extra books.  I told her there were many vacancies, abandoned buildings etc., and I thought the lady had over-estimated my route.  She accused me of not delivering.  I told her I started at 6 am Thursday and Friday, and got done at 5 pm.  She accused me of lying.

So, do not know what will happen.  Just wish me luck.  I busted my ass, and if I do not get paid for this, I'm going to the paper.  And you all know I will lol.
Title: Re: An on-going thread
Post by: mitch777 on May 17, 2014, 05:52:01 pm
Shame on you Betty! Delivering phone books to abandon buildings deprives the rats from looking up their next meal ticket.

You better get paid!

ps- if you DO write to the paper I want a framed copy of your letter.
Title: Re: An on-going thread
Post by: wolfter on May 18, 2014, 03:58:49 am
That seems so ridiculous Betty.  If you were really going to scam to get a paycheck, you would/could have simply thrown them away.  A logical personal would automatically assume that.

That does seem like a lot of stress on your recent injury.  Certainly hope you're not over doing it.  (yeah I know, I'm really one to preach )   ;)



Title: Re: An on-going thread
Post by: zach on May 18, 2014, 07:45:44 am
they still make phone books? jeez, i haven't seen one in years... ah the smell though, memories
Title: Re: An on-going thread
Post by: Jeff G on May 18, 2014, 09:13:04 am
I read that NYC is converting phone booths into wi-fi hot spots around the city . I still get phone books on my door step every year but throw them out or use the pages to line my flower beds for weed block . I think they should only send phone books out upon request, it might save a tree if they did . 
Title: Re: An on-going thread
Post by: wolfter on May 18, 2014, 01:27:04 pm
We always rec'd new phoneboos via us mail until a few years ago.  Now they just put them in the lobby and you can grab one if you want.  I always keep an undated one in my truck as I detest paying for information fees if I need a number.  And I absolutely am resisting changing to my cell phone to one of those new dumb smart phones. By the time I zoom in on one of those I only have a few characters on the screen and have to scroll like hell.
Title: Re: An on-going thread
Post by: BT65 on May 18, 2014, 06:30:47 pm
Greg, my daughter sent me a "smart" phone.  Yesterday I just figured out how to answer it lol.  I don't know 1/2 the stuff it does.  I hadn't had a new cell phone in like 3 years, so she said I was over-due for an upgrade.  We'll see how it goes.

Yeah, maybe they should only send phone books to people who request them, but that would be a difficult venture to find out exactly who would and would not want them.  It's damn hard labor delivering those, and cost a fortune in gas.  Oh well, I will never do that again.
Title: Re: An on-going thread
Post by: wolfter on May 19, 2014, 12:22:26 am
I'm medicated and really should not be posting but the elderly aunts who have taken up camp here think I have a curfew.  They couldn't sleep til they knew I was in the house.  Gotta love them. 

I've had such a great time with them in spite the terrible situation that brings them from Florida to Ohio. 
Title: Re: An on-going thread
Post by: Theyer on May 19, 2014, 05:11:53 am
Elderly Aunts are a fine tradition.
Title: Re: An on-going thread
Post by: wolfter on May 19, 2014, 12:40:52 pm
Elderly Aunts are a fine tradition.

I'm truly enjoying their company.  My uncle Ron had to drive my Aunt up here from Florida and I'm so thrilled with that.  They've settled in and plan on staying several months.  They've been a blessing, helping with a lot of issues that arise when a loved one is struggling with a terminal illness.

I did come in last night and locked up the place and pretended to go to bed.  I waited a short while and snuck out the back door and enjoyed the cool late night air.  :)
Title: Re: An on-going thread
Post by: Theyer on May 19, 2014, 02:16:11 pm
Most Aunts ,n, Uncles need medicating at night , booze, Pills or a mixture served with blind decorum.
Title: Re: An on-going thread
Post by: Joe K on May 20, 2014, 01:11:58 pm
Greg, my daughter sent me a "smart" phone.  Yesterday I just figured out how to answer it lol.  I don't know 1/2 the stuff it does.  I hadn't had a new cell phone in like 3 years, so she said I was over-due for an upgrade.  We'll see how it goes.

Yeah, maybe they should only send phone books to people who request them, but that would be a difficult venture to find out exactly who would and would not want them.  It's damn hard labor delivering those, and cost a fortune in gas.  Oh well, I will never do that again.

Betty,

I'm in the same situation as you... first smartphone and it's like a computer that can also make phone calls.  What worked for me, was to download the manual for the phone.  That way you can read it on your computer, while you actually play with the phone.

Joe
Title: Re: An on-going thread
Post by: wolfter on May 21, 2014, 06:01:08 am
Sadly, smart phones will eventually be the only option available in the future.  My contract is up with Verizon and the rep tried pushing me into getting one.  My basic phone works just fine so I'll stay month to month until I see a real need to upgrade.  Hopefully there'll be at least ONE "grandpa" style phone.

I do feel awfully lacking when I watch my elderly uncle using all his electronic gadgets.  He has all that crap; smart phone, e-readers, gps tracking in his car and totally understand how to use them all.    Lordy, I still miss having a huge home phone with large enough buttons that I didn't need a magnifying glass to operate.

It's also frustrating that everything that's being manufactored has very tiny buttons and such.  My new tv remote requires that I stare at it under a bright light while using the tri-focal portion of my glasses.  Even the alarm clock for goodness sake has little ass buttons.  My stereo system has the much needed flashlight next to it so I can study the buttons.

I want large button and controls to return.  :)
Title: Re: An on-going thread
Post by: Jeff G on May 21, 2014, 10:05:57 am
I got my first smarty phone a few months back and its a modern marvel . I sent my first text message ever just a few months ago and now I wonder how I lived without it .

Also ... no matter where I am I can get a message and my daily dose of verbal abuse from Miss P . She is kinda scaring me lately because she is being really sweet but that just makes me feel like she might be sneaking up behind me with a ball bat .   
Title: Re: An on-going thread
Post by: leatherman on May 21, 2014, 10:13:41 am
i had to finally upgrade a couple months ago. If I knew then what I knew now I would have found the money somehow and switched yrs ago!

buttons? who needs buttons? (maybe check out one of the larger Galaxy phones. their screens are pretty big) I talk to my phone for everything. It's gotten where I hate meetings now because I can't talk out loud to send any texts or anything. But still, with the net via 4g and txting to people across the table, it certainly has made even the most boring meetings tolerable finally. ROFL
Title: Re: An on-going thread
Post by: Jeff G on May 21, 2014, 10:18:31 am
i had to finally upgrade a couple months ago. If I knew then what I knew now I would have found the money somehow and switched yrs ago!

buttons? who needs buttons? (maybe check out one of the larger Galaxy phones. their screens are pretty big) I talk to my phone for everything. It's gotten where I hate meetings now because I can't talk out loud to send any texts or anything. But still, with the net via 4g and txting to people across the table, it certainly has made even the most boring meetings tolerable finally. ROFL

I have the Galaxy Note 3 and love it . They need to give the speech recognition software an upgrade to be able to interpret southern accents but other than that its great .   
Title: Re: An on-going thread
Post by: wolfter on May 21, 2014, 11:28:49 am
I'll have to make one of my younger family members take me back so I can revisit the idea.  I'd hate to make a wrong decision and be stuck with a piece of equipment I hate. 
Title: Re: An on-going thread
Post by: leatherman on May 21, 2014, 04:13:06 pm
I have the Galaxy Note 3 and love it . They need to give the speech recognition software an upgrade to be able to interpret southern accents but other than that its great .   
s3 mini here

luckily my yrs in Ohio helped me to have a nice indistinct accent so the speech recog does fairly well for me. I find the suggested word list helps me get through some of the trickier Southern idioms I say from time to time. However, it does trip out a bit (just like the Yankees did) whenever I say "y'all".
Title: Re: An on-going thread
Post by: Miss Philicia on May 21, 2014, 06:02:25 pm

Also ... no matter where I am I can get a message and my daily dose of verbal abuse from Miss P . She is kinda scaring me lately because she is being really sweet but that just makes me feel like she might be sneaking up behind me with a ball bat .   

I should devise a Daily Verbal Abuse app complete with video and my Capote-esque voice for audio. I'm sure I could make good money on this.
Title: Re: An on-going thread
Post by: BT65 on May 21, 2014, 06:32:51 pm
My daughter made me upgrade to a Samsung Galaxy S4.  It's quite the modern marvel, but I really don't like to spend a ton of time learning everything it does.  It also has voice recognition but I don't like to use it, other than when I'm busy driving and need to send a text. 
Title: Re: An on-going thread
Post by: wolfter on June 01, 2014, 06:59:18 am
Haven't been able to spare much time of late to stay in touch.  You all can imagine the hetic ass month I've had.

I decided to enjoy myself after getting off work yesterday.  I specifically stated my goal of getting drunk and passing out.  I know I'm too old for that game, but it was needed.  Perhaps smoking a little stopped me from drinking too much as I don't have any lingering affects.  ;)

you all take care now.
Title: Re: An on-going thread
Post by: Theyer on June 01, 2014, 08:00:51 am
I understand the desire for oblivion but the thought off the hangover and the week it would take me to get over it soon puts a stop to any excessive drinking .

However get me a ton off hash , diazepam, a little champagne and I will diligently work my Way through it , it,s the one thing that I am addicted too, all things leaf , therefore i buy small amounts and have big gaps between them.

Sometimes though the desire for some really good Bolivian Marching Powders, Johnny Walker Black Label , a little diazepam is so strong it makes me groan out loud.
I should devise a Daily Verbal Abuse app complete with video and my Capote-esque voice for audio. I'm sure I could make good money on this.

I have a idea like this though its called Mike,s Handy Hints, like how to make neat Dog jumpers out off old Ski socks , Getting the cheapest air/ train Fairs and web sites that have Sales on Sorel Boots /Moleskin sketch Books  stuff that the Daily Mail would run a headline HOW DO THEY AFFORD THESE ON BENEFITS.

Maybe we could combine it David ! yin yang and all that , though my voice is devoid of any Fame thing.


I am saving for an iPad mini 2013 , couple off weeks to go. I am getting quite excited like a child anticipating Christmas. I like the idea off Skping when travelling showing friends what I am seeing , and making little films , then bigger ones that lead to some success at obscore film Festivals in Bulgaria then George Clooney see,s it coz he,s practically always in London or Lake Como now and his sexy wife to be and I become bf,s , to my astonishment it gets short listed for the Oscar's, -----Euro fllcks no up standing American would be seen dead watching catergory and................
Title: Re: An on-going thread
Post by: zach on June 01, 2014, 08:04:53 am
However get me a ton off hash , diazepam, a little champagne and I will diligently work my Way through it , it,s my one thing that I am addicted all things leaf , therefore i buy small amounts and have big gaps between them.

ha! i just knew you were a pothead
Title: Re: An on-going thread
Post by: wolfter on June 01, 2014, 08:15:26 am
Michael, I discovered I didn't even drink that much.  Both bottles of zin are still corked.  I only had a couple of drinks (vodka and cranberry) at work and then a couple of beers while sitting on the porch. 

Smoking does me in quicker than anything.  I really don't even enjoy it that much.  I imagine a lot of us LTS have used it as script in the past?  When I was deadly sick with the meningitis, my brother brought me some and insisted I use it.  At that point, I couldn't even hold water down, let alone think of eating.  It did allow me quite a bit of comfort and improved my appetite.

Title: Re: An on-going thread
Post by: Theyer on June 01, 2014, 08:26:56 am
ha! i just knew you were a pothead
[/quote

OOh like one had to be Sherlock to work that out Son off Colombo , any way I am not a pot head I am a Canaboid Aficionado
Title: Re: An on-going thread
Post by: BT65 on June 02, 2014, 07:30:21 pm
Went to the bone doc's office today for follow up on this "healthy bones" thing his office has.  The nurse practitioner does it.  Anyway had a bone scan a couple weeks ago.  Showed severe osteoporosis, and I will most likely be starting Forteo in the next month.  Hopefully this will help. 

When I was in the office today, my blood pressure was 80/52.  No wonder I have waves of dizziness.  :o
Title: Re: An on-going thread
Post by: aztecan on June 02, 2014, 09:52:08 pm
Hey Betty,

Sorry to hear about the osteoporosis problem. We are starting to do DEXA scans on everyone now. It seems HIV causes bone loss even when well controlled.

I will be getting one soon, myself.

Hope you do well with the new med.

HUGS,

Mark
Title: Re: An on-going thread
Post by: AusShep on June 02, 2014, 11:11:54 pm
I've been planning to ask my doc to schedule a full body DEXA scan in my appointment next month.  My current insurance only covers it for 50+, but I think nearly 20 years of HIV and a metric ton of Truvada should get me a waiver. 

My vitamin D levels are good through supplementation, and surprisingly my testosterone is better than it was in 2008 or 2009 when I had a testosterone Rx for several years, maybe the zinc is helping, so I'm hoping things aren't too bad...
Title: Re: An on-going thread
Post by: BT65 on June 03, 2014, 02:35:21 am
My vitamin D levels are in a good range, also.  And the bone loss seems to be worse in my back than in my right hip (strangely, even though I broke my left hip in Feb). 

I guess this is not surprising.  I've had bone issues in my back, starting with scoliosis, since 1st grade.  Besides the Forteo, weight bearing exercises were of course also recommended. 

In talking with the people at the specialty pharmacy the Forteo is mixed up at, I was told this med could be used no longer than 2 years.  But it's the only one that actually builds up the bones.  I feel like I was given so much info yesterday, especially one about the para-thyroid I'm going to have to re-read, that my head was spinning by the end of the day.

It seems my para-thyroid is abnormal.  I was told this was much different than the thyroid that I take Synthroid for.  I have to have an appointment with an ENT doctor for a scan, to make sure there are no tumors, prior to starting the Forteo. 

Wish me luck with this.  I should be getting a call today with an appointment for the ENT.  I'm surprised my head is clear enough to post this, since it is only 2:35 am here, and I"m up for the day (thanks, insomnia).
Title: Re: An on-going thread
Post by: AusShep on June 03, 2014, 02:55:06 am
Dang, that's a lot to take in.  Hope you get clearance from the ENT for the Forteo and get some bone mass back.
Title: Re: An on-going thread
Post by: Theyer on June 03, 2014, 07:51:19 am
Not the sort off news you want , still a good one to get if that is the case Betty . I am interested in the drug you have been offered , Forteo is it a new one?

It will not be long before I will be taking a Dictaphone to my med meetings , I already jot notes down insitu

So apart from breaking your hip, knees that create agony and osteo how are you dear. Hopefully the universe will start to smile upon thee.SOON
love
Michael
Title: Re: An on-going thread
Post by: Jeff G on June 03, 2014, 07:54:08 am
Best of luck Betty . When you found out a while back that your hip was not healing properly I think you suspected your bone health was worse than you had initially thought if I'm remembering correctly . I still have to giggle every time you say you are going to the healthy bone clinic ... Don't know why but that cracks me up . 
Title: Re: An on-going thread
Post by: wolfter on June 03, 2014, 10:20:45 am
I imagine you're not too surprised Betty.  This will be a new wave of issues us oldsters have to deal with.  I've said it enough times that I hope it starts clicking with people.  My dear doctor indicates that he's seeing a large % of patients who are dealing with this issues regardless of the regimen they're taking.

I'm confused about the med you're on.  It's the only one that helps build bone mass?  Then I'm going to ask my doc why the hell I'm on Boniva.  Also, my vit B and calcium levels are fine but I still developed the ole osteo issues. 
Title: Re: An on-going thread
Post by: mitch777 on June 03, 2014, 11:21:34 am
Betty, good luck with all of the bone stuff but I'm wondering about your blood pressure. 80/52 ? What's up with that?
Title: Re: An on-going thread
Post by: BT65 on June 03, 2014, 07:31:10 pm
Well, other than the bone issues, I'm okay.  I do have these white bumps on the inside of my mouth, most near the corners of my mouth, which are cracked.  These have not responded to either Diflucan or Nystatin swish and swallow so my doctor wants me to make an appointment.  The inside of my cheeks feel like they're on fire.  Don't know what's going on with that.

Have not heard yet on an appointment for the para-thyroid.  But I'm sure that will happen next week (hearing about the appointment, not the actual appointment).  I was not surprised to hear about the severe osteo.  I know we long term'ers are facing this more and more. 

Mitch, I have no idea what's going on with the low BP.  When I got out of surgery for the hip, it was like 52/30.  They kept giving me more IV fluids in hopes of bringing it up, and then it only came up to like 80/40.  I'm on 1/2 a Lopressor every day, but for heart issues, not BP.  Don't know if that is causing such a low dip or not but if I remember I will discuss with the doctor when I have my appointment.

That's it.  Sorry for such a long post.  If I can get these white bumps gone, the burning stopped, and my bone mass built back up, I will be a happy camper. Oh and Michael, yes, the Forteo is a brand new med.
Title: Re: An on-going thread
Post by: aztecan on June 03, 2014, 11:20:26 pm
We have to change health insurance. The company we had is closing down and we have been transferred to Blue Cross/Blue Shield.

Upon discussion with the agent today, I discovered my copays for each of the HIV meds will go to $100 a pop. Same for the Advair I use to try to keep the COPD from getting worse too soon.

All told, my copays will go up to $370 a month in July.

I am less than enthused.

When I asked the rep about it, she suggested I go on the mail order program, that way I could get three months for the price of two copays.

I asked her if she had a spare $740 laying around. She didn't appreciate my humor.

I spoke with my doctor. He didn't know what to do either, with the exception of possibly dropping my COPD med.

I guess I can try it and see what happens.

I have a coupon for the Isentress that is good until October. I am not sure if it will be renewable, but it would help with one of the copays. That will still leave me at $270 a month.

I am going to try to qualify for the insurance assistance program through the state. I make more than usually allowed, but sometimes they will make an exception for those facing a hardship.

If that doesn't work, I will have to do some severe belt tightening and probably still have to cut out some of the meds.

I am so tired of dealing with this stuff. I just went through several months of trying to get people either on Medicaid or covered through HIX.

Now, if nothing gives, I will be looking at doing with a lot less and, in some cases, doing without.

What the hell, breathing is overrated anyway.

HUGS,

Mark
Title: Re: An on-going thread
Post by: BT65 on June 04, 2014, 03:27:22 am
Wow Mark, that's awful.  It should be illegal to charge such a high co-pay for meds.  I hope you're able to renew the Isentress card.  Is there any type of help you can get with the Advair? 

I hope something is able to be worked out.  I hope you're able to get help through the state.  Good luck and please let us know how things work out. 
Title: Re: An on-going thread
Post by: Theyer on June 04, 2014, 09:33:24 am
Mark I am sorry and angered at the cruel situation you find yourself in and it is horrible irony that it comes after your own work to secure a degree off care for your clients.

It seems just intolerable that any Health company can close without any effort to cover there client group, still my disbelief is not going to help you get back your enjoyment in breathing , which I see as top priority for all of us.

Keep on Posting to us Mark , if only to argh!!! and vent , I hope that a workable solution is discovered , wish I had some knowledge off the US system , other than it seems hugely complicated and differs from state to state.

Take great care off yourself Mark , lots of love
Michael
Title: Re: An on-going thread
Post by: Jeff G on June 04, 2014, 11:36:24 am
Mark ... I am so sorry you are going through this ... its brutal and unfair . Getting healthcare and providing for myself has been a lifetime struggle for me so I feel for you and understand what this means and what you are up against . There is not much I can say that can change your circumstance but please know you are in my thoughts .
Title: Re: An on-going thread
Post by: Jeff G on June 04, 2014, 02:54:49 pm
I just had lunch with Alanbama and Layne ... We discussed all of our LTS stuff like where does it hurt ... all over is the same answer to the same old story .

If we were not able to laugh about it a little it would be truly sad . I see allot of us struggling with the same issues, we have to go see specialist to find out if the fatigue and pain are caused by something new or is it a nasty cancer that's making life miserable .

We can appreciate the fact that we are grateful just to be alive and cope with the fact we have been damaged and try to keep laughing and smiling when we find our new normal and quality of life has been chipped away at the edges again .

We had a very good visit and its great to be around my fellow LTS friends who are able to talk about these things and not feel burdened by it all because even though we are damaged we know damn well we are the lucky ones who are still here and still kicking .

Not trying to be vague or talk in riddles but I just bet some of you know exactly what I am saying .   
Title: Re: An on-going thread
Post by: Theyer on June 04, 2014, 03:08:07 pm
I just had lunch with Alanbama and Layne ... We discussed all of our LTS stuff like where does it hurt ... all over is the same answer to the same old story .

If we were not able to laugh about it a little it would be truly sad . I see allot of us struggling with the same issues, we have to go see specialist to find out if the fatigue and pain are caused by something new or is it a nasty cancer that's making life miserable .

We can appreciate the fact that we are grateful just to be alive and cope with the fact we have been damaged and try to keep laughing and smiling when we find our new normal and quality of life has been chipped away at the edges again .

We had a very good visit and its great to be around my fellow LTS friends who are able to talk about these things and not feel burdened by it all because even though we are damaged we know damn well we are the lucky ones who are still here and still kicking .

Not trying to be vague or talk in riddles but I just bet some of you know exactly what I am saying .   


Oh yes indeedee Plain as a Pikestaff understand 100%toe gotcha erhuh without a doubt YES.
Title: Re: An on-going thread
Post by: wolfter on June 04, 2014, 04:45:52 pm
That's a most excellent sentiment Jeff.  I imagine a lot of LTS laugh about a lot of what we deal with as it certainly beats the alternatives.  In a selfish way, it's comforting to know others suffer the same ailments as it indicates it's not a unique individualized problem.

I try to put it into perspective whenever I start to bitch and complain.  All I have to do is remember the beautiful faces of all those I lost at such a young age. 

I do get to mention a new issue I had last night.  After several hours of working, my feet started aching badly.  I kept working and then it started to feel like fire ants were biting me all over my feet.  It's lessened a bit today but a little burning sensation remains.  I might just take it easy for a while and see if it's something I can dismiss as an anomaly.
Title: Re: An on-going thread
Post by: Jeff G on June 04, 2014, 04:59:46 pm
That's a most excellent sentiment Jeff.  I imagine a lot of LTS laugh about a lot of what we deal with as it certainly beats the alternatives.  In a selfish way, it's comforting to know others suffer the same ailments as it indicates it's not a unique individualized problem.

I try to put it into perspective whenever I start to bitch and complain.  All I have to do is remember the beautiful faces of all those I lost at such a young age. 

I do get to mention a new issue I had last night.  After several hours of working, my feet started aching badly.  I kept working and then it started to feel like fire ants were biting me all over my feet.  It's lessened a bit today but a little burning sensation remains.  I might just take it easy for a while and see if it's something I can dismiss as an anomaly.

One thing we talked about was how we can't afford to assume new symptoms are from old injury's and we have to get it checked out ... but I see it all too often how nerve damage and pain with fatigue are a common LTS experience .

I tell you what I really feel bad about and that is what Mark posted today ... that really hits me in a very personal way when I hear about him spending his whole adult life getting people the care they need and end up being pushed out of treatment options simply for working... and its a sad irony that he is going to have to do without meds that he makes sure others can get  ... its just so fucked up and makes me spitting mad .

The same old crap that happened to Betty when she made a few measly $$$ than the limit and lived for over a year waiting to find out if she was going to have healthcare and income the next month . end rant .
Title: Re: An on-going thread
Post by: Theyer on June 04, 2014, 05:41:52 pm
It makes me wonder where are the investigating journolists now? You get them POSTING on the trawl for sensationalist lies , material that is happening gets completely ignored .
Title: Re: An on-going thread
Post by: mitch777 on June 04, 2014, 06:09:48 pm
Feeling beat today once again and reading this thread hits home. Not much to add to what's been said. Jeff described it best, being chipped away at the edges. Humor keeps me going.

I too am mad as hell about Mark's situation. Shame on this country for allowing it to happen.

...And I'm still worried about Betty's blood pressure let alone her new mouth issues.

Greg, hope it was just an odd day for your tootsies.

Glad you had a nice day with Alan and Layne.

I had a date with a snapping turtle in the pond today. Took all day but he/she has found a new home on the other side of the river.

Title: Re: An on-going thread
Post by: BT65 on June 05, 2014, 04:53:40 am
We all have to keep humor in mind it seems.  Mitch, don't be concerned about my blood pressure.  My mouth seems stable at the moment. 

I also am very pissed off about Mark's issue.  I would only hope someone there would step up and try to help him as he's helped so many others.  Like Theyer said, where is the reporting?  These stories need to get out.

Since starting the women's support group, one of the ladies I have become close with is a LTS'er, and is blind from CMV.  However, she lives by herself, is independent, even wears beautiful outfits.  I asked her how she puts her clothes together, if someone comes over to help her.  She said no, she tells by the feel.  I have no idea how she does it.  Blindness has always been a fear of mine, I can't imagine living alone being blind, not being able to see what's going on. 

I guess we never know what we can deal with until it's dealt to us.  I always think "I can't take on anything else," until something else happens, and I think "well, what other choice do I have besides to deal with it."  It gets so tiring, but as you all have said, it beats the alternative.

Title: Re: An on-going thread
Post by: harleymc on June 05, 2014, 05:41:41 am
Betty sorry to hear about your osteo issues.
Mark sorry to hear your insurance scheme is leaving you so out of pocket.

Title: Re: An on-going thread
Post by: harleymc on June 05, 2014, 05:51:19 am
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!
Title: Re: An on-going thread
Post by: wolfter on June 05, 2014, 07:59:54 am
Mark, so sorry I missed your post....that is absolutely freaking awful.  I certainly hope they make some sort of concession for you.  How horrible to have to deal with this after all you've done to assist others.

This is another prime example of why it's difficult to chose to work instead of relying solely on SSDI.  Made that mistake in the past and it scares the heck out of me at the thought of ever loosing access to medication.

huge hugs buddy
greg
Title: Re: An on-going thread
Post by: Jeff G on June 05, 2014, 09:03:30 am
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

That is horrifying . I was thinking how awful the be assaulted with a cleaver or knife ... Here in America that probably would not happen, you and your friend would have been shot and killed most likely . There is no rational way to compare the two but the thought of getting knifed is really frighting to me . I got stuck with something in Chicago when I was mugged but it was a pin knife and didn't even bleed that much . The police said I was lucky because if the guys had a gun it would have been the end of me   ... I'm happy you were able to dodge the assault and I'm afraid you would not have been so lucky here ... very sad .   
Title: Re: An on-going thread
Post by: BT65 on June 06, 2014, 07:24:00 am
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

My God, that's horrible.  So glad the idiot missed you all.  That would most likely keep me inside for a couple weeks. 

Title: Re: An on-going thread
Post by: mitch777 on June 07, 2014, 01:16:05 pm
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

Yikes!! Glad you had the wits to see it coming! I think I would have just fainted.
Title: Re: An on-going thread
Post by: aztecan on June 07, 2014, 01:58:50 pm
Wow, that must have been scary. I am glad you hjad the presence of mind to both detect it and act.

HUGS,

Mark
Title: Re: An on-going thread
Post by: AlanBama on June 07, 2014, 05:28:20 pm
Mark, I am appalled that this is happening to you.   As we've discussed, every year that passes our healthcare situation seems to get WORSE.   Like Jeff, I am very P.O.'d that you are having to face this.   It is so WRONG, on so many levels.

Meanwhile, I have been reading my POZ magazine 20th anniversary issue.  Seems that everyone is a "somebody", in the world of HIV/AIDS.   Well, here's a message from a "nobody" -  we've gone through it the same as every one of you, without our photos in magazines and articles written about our "amazing survival".  We go about our business, the business of surviving, day in and day out, with little help and no recognition or accolades about our "grand accomplishments".  Sorry if I sound a little bitter, but I think I'm entitled to it.

I'm missing the voice of Daddy Tim here, and Lisa, and Ric, and RAB -- and all those we have lost along the way.

Jeff, it was so good spending time with you.  We both love you, my friend.   Mark, all I can say is I am thinking of you, and wishing you nothing but the best, always.  Know that you are much loved and respected. 

Keep the faith, keep fighting back.   We may go down, but let's go down swinging.

Alan 
Title: Re: An on-going thread
Post by: aztecan on June 07, 2014, 10:19:40 pm
As Alan just said, I have no intention of going down without a fight.

To wit, I have decided what is sauce for the goose is sauce for the gander.

I completed enrollment paperwork to enroll myself in the agency for which I work.

This sounds really bizarre, but, with new increased income limits, I can qualify.

I also spoke to my supervisor, who agreed to write the hardship letter to the state to allow me to have assistance for my med copays.

There are still no guarantees, but it is still worth a shot.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Jeff G on June 07, 2014, 10:27:30 pm
Thanks for the update Mark ... you have been on my mind .
Title: Re: An on-going thread
Post by: AlanBama on June 08, 2014, 03:27:26 pm
Mark, I hope your enrollment is approved, and that this works out as a solution for you.

Unfortunately, we gotta have those MEDS !!! 

HUGS,  Alan
Title: Re: An on-going thread
Post by: BT65 on June 09, 2014, 05:51:35 am
Good luck, Mark.  I don't see any reason why you shouldn't be eligible for assistance through your ASO, whether you work there or not.  You're an HIV consumer.  Please let us know how it goes.
Title: Re: An on-going thread
Post by: Theyer on June 09, 2014, 09:14:45 am
It most certainly is worth a shot Mark , Good luck with it all
Title: Re: An on-going thread
Post by: wolfter on June 09, 2014, 10:17:53 am
I would be shocked if they didn't figure out a way to make you qualify Mark.  In the mean time, I can spare some of my back-up supply.  We're on the same meds and I have plenty if you need something to hold you over until the process is completed.

I also really need to focus on logging out of the dang computer.  Haven't been around for a couple of days and realized I was still active. ;D
Title: Re: An on-going thread
Post by: wolfter on June 15, 2014, 05:58:58 am
Have been working feverishly to get my new place ready to move into.  Luckily, my beloved former hairdresser (Mrs. Karen) spent the entire week helping me finish the damn painting and all the little things.  She's my former hairdresser as I no longer anything more than complete buzzes that I can do myself with my dog trimmers.  :)

For 6 months now, every time I entered the damn master suite, I became overwhelmed at the amount of work to be done.  A complete tear out to the joists with having to redo the work that I paid a "contractor" to do.  Another "you get what you pay for" lesson.

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself.  The last one in my 40's.  Not too bad considering what I was told on the day I tested positive; "I could possibly live to be 30 if everything goes well".  That statement has stuck in my brain like a nagging hourglass, slowly waiting for the sands of time to run out.

Thankfully, advancements in research has allowed my hourglass to be refilled many times.  :) 

Mrs. Karen gave me the strangest look when I indicated that I'd repaint the place after I got settled.  Being color blind, you'd think I wouldn't be able to tell the color of the place.  Well, I can't and the gray on gray walls look too blue on blue. 


Title: Re: An on-going thread
Post by: Miss Philicia on June 15, 2014, 07:12:11 am

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself.  The last one in my 40's.

You're younger than I am? Impossible.
Title: Re: An on-going thread
Post by: weasel on June 15, 2014, 07:36:58 am
Have been working feverishly to get my new place ready to move into. 

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself. 

   Good luck with that   :)
     That is very exciting !   Hope it's a great party !!!!   I'm heading into a new decade in August , starts
 with a 6  :o
   Speaking of color !!!!! My niece had as stroke when I suggested painting the inside of the kitchen french
  door " Cantaloupe "   It looks lovely  ;D   

      I've finally got Kitchen cupboards up @ThebeachHouse  ;D   
   Only the uppers .   The new  solid Oak floors go in on the 18th !    We are working feverishly on getting
   all painting done ; then we need to place all the appliances on the deck  , the flooring guy says one day
 to do the whole house   . It's little .   I will get a break from traveling 90 miles a day to work , but will be painting all the cabinet doors . The floors need three days to cure , when we are ALL done they will come back and put a final coat of glopp on the floors .
    Have to order the counter tops  this week , I REALLY doubt that installing them will  be my project  :-\
  I am so tired and achy , the thought of driving back to Missouri sounds dreadful  :(

                                                        It's 7:30 AM Sunday !

                                                          Waiting on my twin to wake so we can go go go

                                                                                                 Carl

   P.S.  Bob says my pool looks wonderful  ;)  ..... and I need to mow .....
Title: Re: An on-going thread
Post by: leatherman on June 15, 2014, 09:14:35 am
A complete tear out to the joists with having to redo the work that I paid a "contractor" to do.  Another "you get what you pay for" lesson.
ah! no wonder you wanted me to come up and "visit". After the front-wall-to-back-wall remediation/remodel we did here, I have the skills. Although when I didn't have the skills, I did have the most awesome contractor - my baby brother! We still have the two bathrooms to finish up at some point; but I'll be able to do most of the work in those rooms - except for the showers.

" Cantaloupe "   It looks lovely  ;D   
sigh! My mom and I have had some serious arguments during the last of this remodeling, which are basically me "explaining" that white, cream and beige are NOT colors. Cantaloupe (which are very yummy) sounds beautiful!

in other news, I'm still UD but my tcells fell below 300. sigh!
It's going to be hotter than blue blazes this week, so I'll be over at the water park in Carowinds a lot!  8)
Title: Re: An on-going thread
Post by: wolfter on June 16, 2014, 04:51:06 am
Oh no Carl, I painted all the 6 panel doors a bright high gloss white along with all the trim.  :)  I would NEVER put color on such things.  Hopefully you'll get the project done soon.  I know how much you've been dealing with.  Isn't cantaloupe like yellow?  I've had to try and stay neutral in case I decide to sell this place in the future.

@ Mikey, I still have the 3rd bedroom to finish.  After you get your remodeling done, your visit will be greatly appreciated and we can knock out my last room in no time and then enjoy a great visit.  ;)

I purposely decided to misbehave last night.  I drank things I've never heard of before and smoked some much needed medication.  I was so far out there and it felt great to numb myself beyond all cognition.  :)  Still trying to piece things together ie...why did I undress on the deck?  Did I pretend I was young and decide to streak like it was the 70's?  Did I have company who brought all these Coors lite beer cans?  I guess it sometimes is better to not remember all the details....lol
Title: Re: An on-going thread
Post by: Miss Philicia on June 16, 2014, 07:52:14 am
Still trying to piece things together ie...why did I undress on the deck?  Did I pretend I was young and decide to streak like it was the 70's?  Did I have company who brought all these Coors lite beer cans?  I guess it sometimes is better to not remember all the details....lol

You became so messy you took off all of your clothing? Charming.
Title: Re: An on-going thread
Post by: wolfter on June 16, 2014, 07:59:10 am
You became so messy you took off all of your clothing? Charming.

Like most of us haven't gotten blitzted and taken off clothes?.... :)
Title: Re: An on-going thread
Post by: Theyer on June 16, 2014, 09:44:47 am
ON Friday night I  broke/cracked my left rib on bathroom tub ledge must off past out after getting up from Lav, off my face thankfully at the moment, can walk with two sticks but opiates do not aid my posting . Feels better than yesterday but I am still crying out coz it hurts so .dam it .

Quite Michael on FORUMS while he is so medicated
Title: Re: An on-going thread
Post by: Miss Philicia on June 16, 2014, 09:54:08 am
ON Friday night I  broke/cracked my left rib on bathroom tub ledge must off past out after getting up from Lav, off my face thankfully at the moment, can walk with two sticks but opiates do not aid my posting . Feels better than yesterday but I am still crying out coz it hurts so .dam it .

Quite Michael on FORUMS while he is so medicated

That sounds awful. Please take care.
Title: Re: An on-going thread
Post by: zach on June 16, 2014, 02:23:00 pm
i now realize, the bathroom is trying to kill us all
Title: Re: An on-going thread
Post by: Joe K on June 16, 2014, 02:27:25 pm
i now realize, the bathroom is trying to kill us all

Zach,

This forum is for members who tested poz PRIOR to 1996 only.  No harm done, but please do not post in this forum anymore.

Thank you for your cooperation.

Joe
Title: Re: An on-going thread
Post by: wolfter on June 16, 2014, 04:31:18 pm
Damn Michael, that is dreadful.  They can't even do anything for broken ribs and it takes so damn long to heal.  And definitely remember, even when the pain subsides and you think you're healed, you still have to be cautious for about 2 months.  I was a month into recovery with a broken rib when I reinjured it had to start the healing all over again.

take care and best wishes
greg
Title: Re: An on-going thread
Post by: Jeff G on June 16, 2014, 04:53:26 pm
Im sorry to hear about the ribs Michael . You are going to have to heal and then sit quietly until you are able to come visit ... so please wrap yourself caution tape and be careful with yourself .

Those that know me know that I am the its all ways something guy ... You and Mitch are now official members of my its always something club .
Title: Re: An on-going thread
Post by: Theyer on June 17, 2014, 03:18:04 pm
Many thanks everyone.No morphine for 24 hours and survived a poo.

Pain now when I burp , lay too long in any position , blow my nose , or jar my boy. Frequency off all this happening much less , though level off Pain still is involuntarily combined with a vocal reaction to it. Or in other words I scream.

Bloody exhausting time off it though , and yet again my imaginary man servant , Raul ,  is away .Yet again his poor old aunt in Munich is ill !

Title: Re: An on-going thread
Post by: weasel on June 18, 2014, 12:57:57 pm
Many thanks everyone.No morphine for 24 hours and survived a poo.

Bloody exhausting time off it though , and yet again my imaginary man servant , Raul ,  is away .Yet again his poor old aunt in Munich is ill !

   OMG !  I hope you survive with no Man Servant  :o  , I could not .....    LOL's

 I do hope you are feeling a little better each day . Sounds dreadful !   
   I'm like an old person now , I put grab bars in my shower . Never know when a leg or two will
 give out while taking a shower  :-[

                                                                                   Carl

  P.s.  On a good note :   We got all painting done  ;D

        AND I SLEPT TILL NOON TODAY !!!
Title: Re: An on-going thread
Post by: Theyer on June 18, 2014, 02:43:27 pm
   OMG !  I hope you survive with no Man Servant  :o  , I could not .....    LOL's

 I do hope you are feeling a little better each day . Sounds dreadful !   
   I'm like an old person now , I put grab bars in my shower . Never know when a leg or two will
 give out while taking a shower  :-[

                                                                                   Carl

  P.s.  On a good note :   We got all painting done  ;D

        AND I SLEPT TILL NOON TODAY !!!

Noon Noon your are a Lark Carl, I am typing this at ,mac said ,1913 and I have just managed 1.5 pain de raisons and a half Gallon of coffee and fresh raspberry and apple juice.

But still no morphine and far less turret,s like episodes off body jerk and scream noise.

As to Raul my imaginary Man Servant is nether here when needed , he seems to have extended family all over Europe , though they do seem to only live in Fashionable Europe . He also has 4 Passports and the worlds largest collection off credit cards , which he intends to do something Jeff Koons with , at least that's the best defense I can come up with when he is done for Fraud. However his insurance Policy , a range off pictorial evidence off Raul and the many Men in High power he has known and there expressions off physical fondness for him they just had to declare will probably steel the deal.

The only reason I get 80 hours a year care is that  so he can claim Volunteer nurse status , a gig his uncle got him with the World Health Authority.

Anyway enough off Raul.
Is the working holiday still appealing ? for God,s sake do not agree to anything that Raul may Post about work offers. The last man who did I have just located in a state psychiatric Hospital in Bulgaria .

I am working towards dealing with what appointments I may have missed due to my ribs and the medical treatment that though pretty effective had a side effect off me being completely off my face..

Yours in solidarity
Michael
Title: Re: An on-going thread
Post by: mitch777 on June 18, 2014, 07:04:32 pm


Those that know me know that I am the its all ways something guy ... You and Mitch are now official members of my its always something club .

No offense but I desperately want OUT! I'm getting the feeling I bought an nonrefundable lifetime membership.

In the last three days I had 3 dental visits and a tech guy sent from HP who arrived an hour after we had a power outage. Dermatologist on Friday. Been very behind on catching up here. Maybe tomorrow. lol.
Title: Re: An on-going thread
Post by: Jeff G on June 18, 2014, 07:07:46 pm
No offense but I desperately want OUT! I'm getting the feeling I bought an nonrefundable lifetime membership.

In the last three days I had 3 dental visits and a tech guy sent from HP who arrived an hour after we had a power outage. Dermatologist on Friday. Been very behind on catching up here. Maybe tomorrow. lol.

The only way out of the its always something club is in a coffin ... and it will probably leak because its always something .
Title: Re: An on-going thread
Post by: mitch777 on June 18, 2014, 07:28:32 pm
The only way out of the its always something club is in a coffin ... and it will probably leak because its always something .

Ha! I'm going with cremation.
Title: Re: An on-going thread
Post by: Theyer on June 18, 2014, 07:34:29 pm
The best bit is its only a part off what goes on ,which M & J when you think about it is hilarious,
Title: Re: An on-going thread
Post by: Jeff G on June 18, 2014, 07:38:32 pm
The best bit is its only a part off what goes on ,which M & J when you think about it is hilarious,

It would take fingers and toes to count the woe's
Title: Re: An on-going thread
Post by: mitch777 on June 19, 2014, 12:58:02 pm
ON Friday night I  broke/cracked my left rib on bathroom tub ledge must off past out after getting up from Lav, off my face thankfully at the moment, can walk with two sticks but opiates do not aid my posting . Feels better than yesterday but I am still crying out coz it hurts so .dam it .

Quite Michael on FORUMS while he is so medicated

I've been slow to catch up here. Yikes! (((Michael)))
Title: Re: An on-going thread
Post by: Theyer on June 19, 2014, 03:50:41 pm
I've been slow to catch up here. Yikes! (((Michael)))

Dats OK your insensitivity has only been partially crushing.

I am however surprised how this  healing has progressed.I have gone from the weekend  in huge pain if I moved and had physical jerks also while still.

Could not imagine that by today I am on the whole pain free to the extent I changed the bedding. But I still have these jerks ,spasms, twitch.s and though less painful there still a for a short while incapacitating ,sudden pain so I cannot prevent crying out , they hurt. In between ,nothing.

Anyway physio at Hospice takes a Gander tomorrow, and its a pound to a penny I am off for x-rays.

Any stories would reassure ,
Title: Re: An on-going thread
Post by: mitch777 on June 20, 2014, 06:09:39 pm
So sorry to have partially crushed an already crushed man. Glad you are feeling better and are on the mend. I see from your thread that no broken ribs were involved. Next time make sure to put on your toilet seatbelt. Safety first.

Went to the dermatologist today. Most likely another basal cell surgery on the agenda... an inch or so from my eye. Will delay it until after my return from Alabama. Something to look forward to y'know.
Title: Re: An on-going thread
Post by: LongTimeSurvivor on June 20, 2014, 07:30:15 pm
Why, in the HELL, are you going to Alabama?! Especially this time of year. Do you like to wilt in the heat and humidity? I mean, I have to go because I have family down there. There are just some things you have to do. What's YOUR reason!!!

Did I give it the right amount of drama and incredibility?

Hugs, kisses...
Title: Re: An on-going thread
Post by: Jeff G on June 20, 2014, 07:35:39 pm
Why, in the HELL, are you going to Alabama?! Especially this time of year. Do you like to wilt in the heat and humidity? I mean, I have to go because I have family down there. There are just some things you have to do. What's YOUR reason!!!

Did I give it the right amount of drama and incredibility?

Hugs, kisses...

He is coming to see me ... your banned  ;) . It was rather shocked my self when he volunteered to come visit in the summer . I do have them there fancy cold air holes in the ceiling so he wont heat stroke out on me .
Title: Re: An on-going thread
Post by: Miss Philicia on June 20, 2014, 08:47:02 pm
I must agree. It's the height of craycray to visit the Deep South in the summer. Especially mid-July through the end of August.

Of course, it's crazy to visit 'Bama any time of the year unless you're attending a Klan meeting.
Title: Re: An on-going thread
Post by: Jeff G on June 20, 2014, 09:12:44 pm
I must agree. It's the height of craycray to visit the Deep South in the summer. Especially mid-July through the end of August.

Of course, it's crazy to visit 'Bama any time of the year unless you're attending a Klan meeting.

You are just jealous because Im fabulous ... non fabulous people are always saying hateful mean things to fabulous people to make up for their lack of fabulousness .
Title: Re: An on-going thread
Post by: Theyer on June 22, 2014, 01:52:09 am
So sorry to have partially crushed an already crushed man. Glad you are feeling better and are on the mend. I see from your thread that no broken ribs were involved. Next time make sure to put on your toilet seatbelt. Safety first.

Went to the dermatologist today. Most likely another basal cell surgery on the agenda... an inch or so from my eye. Will delay it until after my return from Alabama. Something to look forward to y'know.

I do not understand what the Basel  therapy is, however an inch or so above the eye sounds alarming and I do not like the sound off it
Title: Re: An on-going thread
Post by: wolfter on June 22, 2014, 05:23:54 am
I must agree. It's the height of craycray to visit the Deep South in the summer. Especially mid-July through the end of August.

Of course, it's crazy to visit 'Bama any time of the year unless you're attending a Klan meeting.

Plus, it'll be like the real housewives of Connecticut join HeeHaw.  :)
Title: Re: An on-going thread
Post by: mitch777 on June 22, 2014, 12:22:30 pm
I do not understand what the Basel  therapy is, however an inch or so above the eye sounds alarming and I do not like the sound off it

It's the most common kind of skin cancer. The biopsy isn't confirmed yet but she seems pretty convinced. It's actually under my eye along my nose. A tender area. I had one removed near my temple a couple years ago. It wasn't really all that bad but I'm not looking forward to this one because of the location. Probably too much worry on my part.

Oh, and she also said that I have the early signs of Rosacea. Prescribed some cream that needs to be applied daily... forever. Add another script-for-life. :( I have fair skin like my dad. He has the same issue but I don't think he does anything about it.

------------------------------------------

As for my trip to Alabama in July, my original thought was to visit in September or October but recently discovered that my disability hearing will likely be taking place anywhere from Sept-Nov. Backlog bummer. So, needing a break from the stress and a battery recharge I chose to go now. Heat and humidity be damned. Craycray maybe, a real housewife of Connecticut, lol.

Title: Re: An on-going thread
Post by: Miss Philicia on June 22, 2014, 02:12:14 pm

Oh, and she also said that I have the early signs of Rosacea. Prescribed some cream that needs to be applied daily... forever. Add another script-for-life.

Child please. I'm younger than you and have already had this issue for 8 years. Get in the back of the line. What cream did you get -- my recommendation is to insist on the clear stuff. Insurers used to balk at it (Metrogel) because it wasn't generic and the white ugly cream was, but as of the past year they now have Metronidazole Gel, USP 1% that comes in a handy pump. Do you also have enlarged pores from the rosacea with gargantuan amounts of puss building up? Do you look like Rudolf when you don't use your cream?
Title: Re: An on-going thread
Post by: BT65 on June 22, 2014, 06:29:28 pm
Child please. I'm younger than you and have already had this issue for 8 years. Get in the back of the line. What cream did you get -- my recommendation is to insist on the clear stuff. Insurers used to balk at it (Metrogel) because it wasn't generic and the white ugly cream was, but as of the past year they now have Metronidazole Gel, USP 1% that comes in a handy pump. Do you also have enlarged pores from the rosacea with gargantuan amounts of puss building up? Do you look like Rudolf when you don't use your cream?

Have you ever used a Clarisonic?
Title: Re: An on-going thread
Post by: mitch777 on June 22, 2014, 08:51:58 pm
My heavens! I just got diagnosed with it two days ago. Kenny forgot to bring home the script so I honestly don't even know what it is yet.

As for the symptoms, they are minor. So minor that I didn't bother even mentioning it to her. I just thought it was heredity. Thin skin and blood vessels coming to the surface with aging. No large pores, no puss, no Rudolf. Maybe she was wrong? Maybe she sees it in it's earliest stage and is looking to prevent further issues? I'm not a doctor and really have no reason to doubt her.

It doesn't seem to be a big deal at this point but just not thrilled with another lifetime prescript to be filled and another lifetime regimen. My plate is spilling over in so many ways already. Tired and just didn't need it now.

Title: Re: An on-going thread
Post by: Miss Philicia on June 22, 2014, 11:07:38 pm
It's actually called nasal sebum (http://en.wikipedia.org/wiki/Nasal_sebum) -- fabulous! :-\

Supposedly you can squeeze out the excess and apply to heal chapped lips.
Title: Re: An on-going thread
Post by: weasel on June 25, 2014, 09:15:40 am
  " Went to the dermatologist today. Most likely another basal cell surgery on the agenda... an inch or so from my eye. Will delay it until after my return from Alabama. Something to look forward to y'know. "

     OMG !    I hope you will be OK , sounds dreadful to me .

     Sending you a big hug to bring to Jeff  ;D

      Have a great time !!!!

                                                                  Carl   
Title: Re: An on-going thread
Post by: mitch777 on June 25, 2014, 04:53:34 pm
Child please. I'm younger than you and have already had this issue for 8 years. Get in the back of the line. What cream did you get -- my recommendation is to insist on the clear stuff. Insurers used to balk at it (Metrogel) because it wasn't generic and the white ugly cream was, but as of the past year they now have Metronidazole Gel, USP 1% that comes in a handy pump. Do you also have enlarged pores from the rosacea with gargantuan amounts of puss building up? Do you look like Rudolf when you don't use your cream?

It's the clear stuff in the handy pump. Applied my first dose and I'm still here to talk about it.

@Carl- I'll live but probably will not be able to wear my glasses for a week or so. I will still pass along your hug. Is there a specific technique that you would like me to use?  :)
Title: Re: An on-going thread
Post by: Miss Philicia on June 25, 2014, 06:38:51 pm
It's the clear stuff in the handy pump. Applied my first dose and I'm still here to talk about it.


So it's the same as what I have. You have to use it every day. If I skip a few days it comes roaring back and then takes another few days to get rid of -- by then a week has gone by and my face looks dreadful.

Also, for some reason travel activates it too. I think it's if I go from some location that has "hard water" versus "soft water". Just google "hard water rosacea" and you'll see what I mean.

This happens every time I go home to visit my parents -- the difference in the water between here and there always causes a breakout even if I'm using my rosacea medication.

I've also started to use a facial cleanser before putting on the rosacea medication that has argan oil and is sulfate-free -- it's made here in Philly at a store downtown specializing in natural products and is meant for problem skin types. If you want some you can order it here (http://www.durossandlangel.com/for-the-face/592-face-off-facial-wash-8oz.html).
Title: Re: An on-going thread
Post by: mitch777 on June 25, 2014, 08:23:09 pm
my face is not a mess. i think she is just seeing the early signs and is being proactive about it.
Title: Re: An on-going thread
Post by: wolfter on June 27, 2014, 05:17:33 am
Being as I have very lovely skin, I can only imagine the issues you all are suffering.  ;D  Perhaps it's the over exposure to the sun for all these years?   ;)

Mitch, I hope this doesn't get any worse and is taken care of.  You've sure had your load to carry of late.

Title: Re: An on-going thread
Post by: BT65 on June 27, 2014, 05:56:36 am
Yeah those skin issues sound awful.  So sorry you're going through that on top of everything else.

Today I'm supposed to start moving; well, whatever boxes I can fit in my car.  So, in my true fashion, I have strained my right lower leg (that's my good side) and pulled a muscle in my right lower leg.  I went to a Med Point (walk in clinic) yesterday and begged the doctor for a couple day's worth of Prednisone.  He acted like I was asking for keys to the vault lol.  He ended up giving it to me though. So, I'm hoping if I take that I can move without too many issues.

The bad thing about where I live is that there are 2 steep steps going off my porch (I mean, very steep), and that makes getting things out difficult, for me.  Then, you have to walk about 1/2 a city block to get to the back where the vehicles are parked.  So that's even more challenging.  But, whatever.  Today is like pre-move day, but I will be taking like the frozen food and my clothes over to the new house, then tomorrow is the "big" move.  Which means, my friend who is helping is getting here at 7 am and we will go get the U-haul.

Wednesday was the closing, and I have keys, and the remote that opens the garage door.  I can't believe it.  It's surreal, and probably will be until I actually have stayed there for about a week.  Please wish me luck and send all the good energy possible!!
Title: Re: An on-going thread
Post by: wolfter on June 27, 2014, 07:20:42 am


Wednesday was the closing, and I have keys, and the remote that opens the garage door.  I can't believe it.  It's surreal, and probably will be until I actually have stayed there for about a week.  Please wish me luck and send all the good energy possible!!

Absolutely sending you positive energy.  I know what you mean, it seems surreal for me also.  I'm obviously upset about my mom's passing, and yet excited at the same time.  That's one hell of a mental conflict. 

Sure wish I lived a tad closer as I'd certainly jump in and help.  DON'T be over-doing it!!!! 
Title: Re: An on-going thread
Post by: Jeff G on June 27, 2014, 07:31:41 am
Betty ... be careful . My momma told me once when I was doing something I shouldn't that if I broke my neck she was going to kill me ... I wont kill you but I would hate to drive that far to meet you for the first time just to give you a spanking . Just saying .
Title: Re: An on-going thread
Post by: mitch777 on June 27, 2014, 10:33:45 am
Congratulations Betty! Wish I were there to help as well. I would tell you to take it easy but we both know THAT'S not going to happen. Guess I will just have to get in the spanking line. Good luck with the move and I hope it all goes smoothly!

On another note, I got the call yesterday about the biopsy. Basal cell confirmed. She said this one will be more difficult for the surgeon but really didn't explain why. She is sending me to Yale. Hope to get an honorary Yale basal cell diploma when he is finished with me.
Title: Re: An on-going thread
Post by: Theyer on June 27, 2014, 12:15:15 pm
Yale A if you are not careful Mitch my dear I might start calling you Ivy.

Never something to look forward to    face  op .  Time to concentrate on 50 years ago when the story would not be so good . None of these fancy creams , just a bucket if you lived in the country, Brown Paper Bag for them there city folk. The village ordered my Great Great Uncle Shawnebus Elindin Ezekiel  To never be seen in public without a milking Pale over his head. Mind you those where the years off the Manor House being the seat off the Mammer-Stokkes . And they where always trying to annoy the Bloomsbury lot.

At least that's what I do , If its possable . Just the breaks in my ankle 50 years ago would off left Me with a lumpy bony fragile foot , which I have got , but so much less lumpy than it would off been and far stronger.

Same way for grafts X years ago majour skill level op leaving evidence know you would never know plus healing faster too , it works for me dear mitch give it a go , you can go as far back as you like



Betty I hope this new Home sees you in one pain controlled ecstatic nestting home maker extraordinaire Dowerger Duchess, invites please , I send all hope that your home will be your Castle , and for your staff to be honest and loyal.

Details please.

Where how and what are you going to do with it . My tip is to simply invite Greg make sure all the bits and pieces needed for re decorating are in the house ,lying around in full view , after 2 hours he won.t be able to stop himself mending making building .

xx
Title: Re: An on-going thread
Post by: aztecan on June 30, 2014, 11:13:53 pm
That is fantastic, Betty!
I remember the feeling terror and giddiness I felt when I bought my house.
Lots of happy, boisterous energy heading your way.

I know you'll love it.

HUGS,

Mark
Title: Re: An on-going thread
Post by: BT65 on July 01, 2014, 08:32:33 am
Thanks everyone.  My first time back here since Saturday morning.  Today I'm seeing the doctor (well, nurse practitioner) for my right leg.  It is now swollen and tight, has been since Saturday. 

But, I got my room all put together, and we (myself, my best friend and her son) have the whole upstairs together.  I texted Jeff a couple pics of part of the deck and back yard if he wants to post them here, it's fine with me.  It's beautiful, and was dirt cheap for the type of property it is, and the area.  It's a 2 level (luckily the stairs are not cheap), 3 bedrooms, bath and 1/2, family room, huge living room, dining area, and kitchen with a shitload of cupboard space and an island, which I'm loving.  Oh, and it has its own private spring fed lake.

Moving went well, even with it being about 90F with 95% humidity.  We had lunch for everyone once the boxes were all brought in.  I now live in Michigan, though am keeping the monthly premium Medicaid in Indiana so I can continue to get the Medicare premiums paid for, and see my doctors without huge co-pay. 

My friend has a chihuahua that is very friendly.  However, my cat is not into it yet, she's anti-social lol. 

I'm very excited, and will have pics following, but I'll have to have someone else post them, as I don't know how to do it and don't want to learn right now.  So again, thanks everyone.  It's nice!
Title: Re: An on-going thread
Post by: wolfter on July 01, 2014, 09:17:23 am
awesome.  Just take it slow and easy and enjoy the journey. 

I got really lucky after my most recent injury.  Even the NP was surprised that nothing was broken considering how huge the knee was swollen.  Hopefully that means the Boniva is working.  :)  I am able to bend it a little today, so hopefully it won't a god awful healing time.
Title: Re: An on-going thread
Post by: leatherman on July 01, 2014, 02:25:43 pm
It is now swollen and tight, has been since Saturday. 
how's the thrush? please tell us that it's long gone ;)


we're finally about to get a stove back into the house. We had black mold and the house was gutted from front to back (remodeling in the bed and bath rooms is on the schedule for later this month). We trashed the lop-sided, burners-don't-hardly-work stove when we had a trash pickup to remove the front yard's worth of old moldy house pieces. So we haven't had a stove for two months.

Now, what do I cook first? I could make my "aids cookies". well they are actually chinese almond cookies that I ice with smiley faces and "+" symbols when I give them out to Legislators. the peeps at my ASO say I should, especially when giving them to Legislators, call them "positive cookies"; but i love the look on people's faces when I call them my "aids cookies". ROFLMAO or I could make my AMG-cookbook famous lemonbars. or I could make a pecan pie. the last one I made, in the old stove, cooked for 4 hrs and would never set, so I threw it away. And lasagna! I really need to make a pan of lasanga. I just so excited that I will be able to cook food in something other than a microwave and toaster oven.
Title: Re: An on-going thread
Post by: BT65 on July 02, 2014, 07:45:52 am
The thrush is gone.  I went to see the nurse practitioner at my doctor's and she gave me a 14 day course of Diflucan and a refill on the Nystatin.  That knocked it out. 

Yesterday I went to see her again, but for my injury.  She sent me to have an ultrasound to rule out a blood clot.  No blood clot, but a torn tendon.  So, now I have to stay off of it as much as possible (yeah, right), and elevate and ice. 

Greg, I'm glad your knee's not broken.  One of mine was fractured years ago and it was painful.  We both have to heal.  But I can't see either of us staying down lol.

Mikie, I can only imagine how excited you are to be able to cook and bake.  Whatever you  make, please send some up to me lol.  No really, I'm glad you're getting a stove.

My friend's mother is paying for a landscaper to come, one time, to take care of the grounds here, as a house warming gift.  I have texted Jeff some pics, so if he knows how to do it, he's welcome to post them.  They were only a couple pics of the back yard and part of the deck.   

Next week I have an appointment with an ENT doctor to investigate what's going on with my para thyroid.  Which reminds me, I have paperwork I have to take and give to them prior to the appointment, and since I'll be in that area today, I'll try to get that done this morning.  I keep forgetting about it lol.                    I hope everyone else is doing alright.  This is definitely something new and, for the time being, very exciting.  My friend told me there are grapevines on the property.  Hmmmm.......
Title: Re: An on-going thread
Post by: Jeff G on July 02, 2014, 09:25:28 am
The thrush is gone.  I went to see the nurse practitioner at my doctor's and she gave me a 14 day course of Diflucan and a refill on the Nystatin.  That knocked it out. 

Yesterday I went to see her again, but for my injury.  She sent me to have an ultrasound to rule out a blood clot.  No blood clot, but a torn tendon.  So, now I have to stay off of it as much as possible (yeah, right), and elevate and ice. 

Greg, I'm glad your knee's not broken.  One of mine was fractured years ago and it was painful.  We both have to heal.  But I can't see either of us staying down lol.

Mikie, I can only imagine how excited you are to be able to cook and bake.  Whatever you  make, please send some up to me lol.  No really, I'm glad you're getting a stove.

My friend's mother is paying for a landscaper to come, one time, to take care of the grounds here, as a house warming gift.  I have texted Jeff some pics, so if he knows how to do it, he's welcome to post them.  They were only a couple pics of the back yard and part of the deck.   

Next week I have an appointment with an ENT doctor to investigate what's going on with my para thyroid.  Which reminds me, I have paperwork I have to take and give to them prior to the appointment, and since I'll be in that area today, I'll try to get that done this morning.  I keep forgetting about it lol.                    I hope everyone else is doing alright.  This is definitely something new and, for the time being, very exciting.  My friend told me there are grapevines on the property.  Hmmmm.......

I would try to post them but I cant seem to email them from my phone or figure out photo bucket ... I bet Miss P would post them for you ... he is a whiz at that and fast at doing it .

I loved the pics and I can tell from talking to you how excited you are ... not sure its the same for you but when I was able to buy a home it had many different layers of emotions other than Yay I bought a home . It was relief from my struggle to provide security for myself and made me feel hopeful and more secure in how I saw my future .

We have had a hard knock life living with HIV so this is a very big deal and I could not be happier for you . 
Title: Re: An on-going thread
Post by: Theyer on July 02, 2014, 04:35:19 pm
Betty Darling enjoy every exciting minute preparing my holiday retreat , much love
m
Title: Re: An on-going thread
Post by: BT65 on July 02, 2014, 10:21:13 pm
I will have to text David tomorrow and send him the pics and ask him to post them.  I am excited.  I feel like doing yard work every day (which is unusual), because it's mine.  It's different when it's mine.  The apartment, I did flowers in last summer, but did not want to do it again this summer.  I do feel more stable also, like you were saying Jeff.  Although I never felt uncertain I don't believe.

Michael, you are more than welcome to stay with us.  If you are ever in the US, in Southwestern Michigan, you have a bed.

Edited to add:  One huge difference-we have well water here and I've always (I mean, always) had city water.  The smell is something I have to get used to.  Though the lady does have reverse osmosis and a separate faucet in the kitchen where the well water is very well filtered.   

We had a horrible storm here a couple nights ago, and lost power.  My friend informed me that when that happens you can't even flush when you have well water.  Different.

Title: Re: An on-going thread
Post by: Jeff G on July 02, 2014, 10:31:30 pm
I will have to text David tomorrow and send him the pics and ask him to post them.  I am excited.  I feel like doing yard work every day (which is unusual), because it's mine.  It's different when it's mine.  The apartment, I did flowers in last summer, but did not want to do it again this summer.  I do feel more stable also, like you were saying Jeff.  Although I never felt uncertain I don't believe.

Michael, you are more than welcome to stay with us.  If you are ever in the US, in Southwestern Michigan, you have a bed. 



OH OH ... the urge to yard work can get expensive fast ... but its so rewarding and worth it in the end, its also really good exercise . I have neglected keeping my house as clean as I prefer because I have been loving the yard work and gardening .

I can't wait to see more pics !
Title: Re: An on-going thread
Post by: Miss Philicia on July 03, 2014, 08:07:45 am
Uh, Betty -- you sent me a text of a video slideshow. Not sure how you expect me to post that on a web forum.
Title: Re: An on-going thread
Post by: Jeff G on July 03, 2014, 08:08:46 am
Uh, Betty -- you sent me a text of a video slideshow. Not sure how you expect me to post that on a web forum.

Thats what I was hung up on ... didn't know what to do with it .
Title: Re: An on-going thread
Post by: mitch777 on July 03, 2014, 10:24:37 am
Yay Betty! I can't wait to see pictures of you in the garden!
Title: Re: An on-going thread
Post by: wolfter on July 04, 2014, 10:06:30 am
You're absolutely correct Jeff.  I think when those in our situation are finally able to buy a home and have a sense of security, it has an entirely different meaning.  I think that's partly why I got wrongly upset about the trailer comments.  My dream home was never a doublewide but I'm also grateful to have it.  I've managed to turn it into a nice home. 

Betty, I so disagree about well water.  I grew up with well water and detested the water when I moved to Pataskala where everyone was on city water.  It smelled and tasted nasty to me.  I would always pour myself a cold glass of tap water whenever I visited mom.  I'm on a well at my new place and have no plans to change it.  We have the option of city water, but no thanks!

And the toilet thing?  Too funny.  You can still flush your toilet you just won't have any water replacing the water in the tank.  Having lived country life most of my life, I'll share a couple of tidbits.  ALWAYS keep a few 5 gallon buckets in the closet.  If you suspect power outages, fill them and leave them in the tub.  You just pour water into the bowl and it'll send everything down just fine.

Also, try to keep several gallons of water on hand just in case.  Fill things like your coffee pot, kettle, pitchers...etc.
Title: Re: An on-going thread
Post by: Jeff G on July 04, 2014, 10:14:08 am
Be proud of your home Wolfe ... My aunt just bought a mobile home and if I were the type I would be a bit envious because its really a wonderful home .

I love being in the city but miss living where I can do what ever I want without a permit of the city breathing down my neck ... if not for the convenience of where I live I would probably have bought a mobile home and spent twice as much on a work shop out back as I did my home .
Title: Re: An on-going thread
Post by: wolfter on July 04, 2014, 10:16:52 am
Also survived my first major storm here.  A few nights ago, we had on-going lightening all night long.  It knocked out my central air unit, phone, cable and internet.  The following night, I called my brother to come take me to a hotel as I can't sleep when it's hot.  He brought me a damn fan and placed it next to my bed.  He said it's ridiculous to go to a hotel because of no air.  Screw him...lol

Was surprised I was able to get it repaired so quickly.  I also managed to get the cable company here within a day.  I was a bit shameless...oh well.  They should never send tall goodlooking thin men with southern accents to my home.  :)  I flirted somewhat and he stayed well over an hour.  I gave him a wicked smile when he asked me if I wanted him to check out the bedroom outlet.

We hung out on the deck for about 15 minutes when we were done.  I did the ploy of throwing out a comment about some guy I used to date.  That's a quick way to discover information.  He didn't flee immediately and started asking about where I hang out and such.  I invited him to stop over for a beer anytime he's in the hood.   :o  and he said he just might.
Title: Re: An on-going thread
Post by: BT65 on July 05, 2014, 08:55:11 pm
Yay Betty! I can't wait to see pictures of you in the garden!

I have no idea how to post pics on here.  I can take them with my cellphone, still haven't found my camera yet.  I suppose I should e-mail them to myself or something, but I don't want to right now lol.  If anyone wants to pm me their cell phone number, I will text the pics to you.

Betty, I so disagree about well water.  I grew up with well water and detested the water when I moved to Pataskala where everyone was on city water.  It smelled and tasted nasty to me.  I would always pour myself a cold glass of tap water whenever I visited mom.  I'm on a well at my new place and have no plans to change it.  We have the option of city water, but no thanks!

And the toilet thing?  Too funny.  You can still flush your toilet you just won't have any water replacing the water in the tank.  Having lived country life most of my life, I'll share a couple of tidbits.  ALWAYS keep a few 5 gallon buckets in the closet.  If you suspect power outages, fill them and leave them in the tub.  You just pour water into the bowl and it'll send everything down just fine.

Also, try to keep several gallons of water on hand just in case.  Fill things like your coffee pot, kettle, pitchers...etc.

Greg, I never drank the city water.  I had a Brita, or drank bottled water.   

My friend said at her old house, when they knew a storm was coming, they got buckets of water so they could flush their toilet.  Guess we didn't expect to get knocked out the other night, but it was a pretty bad storm.  They've had 11 confirmed tornadoes in the surrounding counties, with many people in this and a neighboring county, just getting their power back on today. 

We did find a nice farm mart about 5 minutes away.  They have an orchard and make all sorts of homemade goodies..fudge, different salsas, jams, plus having berries, cherries, and soon peaches and pears.  My friend bought a peach salsa, and it's to die for.  I bought some pumpkin pie fudge and it is soooo good. 

Greg, sounds like you may have a future cable guy in your itinerary.  You should have him fix it so you can get cable for free.  Maybe if you're good he will do that lol. 
Title: Re: An on-going thread
Post by: wolfter on July 05, 2014, 09:17:10 pm


Greg, sounds like you may have a future cable guy in your itinerary.  You should have him fix it so you can get cable for free.  Maybe if you're good he will do that lol.

Even I found it a tad strange when he called later that night to inquire how everything was working.  Perhaps he liked the red silk boxers and tight black tank I was wearing.  I truly was dressed like that because of the crutches, but I probably pranced (even on crutches) a little more than necessary.  :)

Too bad I hadn't had a couple of wines when he called.  We chatted for quite a while considering and I threw that offer out about a cocktail to which he said sure.  I just oh so hate disclosing the next morning...lol  JK folks.

I had peach salsa once but I found it too sweet. 


OH, and I'm having such a thrilling Saturday night.  Paying all my bills online and balancing the check book....whoot, thrills I tell ya.
Title: Re: An on-going thread
Post by: weasel on July 11, 2014, 07:20:24 am

    We NEED our DISH up-dated  :)

      I will  have beer on hand  ???

        I love your posts Greg  .

                                                                     Carl
Title: Re: An on-going thread
Post by: weasel on July 11, 2014, 07:29:54 am
The beach house is done !   I will be home in 6 hours . HAPPY ANNIVERSARY TO MY HUSBAND BOB !   



     OMG !    I am so tired !    Been a long summer . House is beautiful !!!
       My sister is so excited to have a new home , nothing is in the same place ,all rooms have been re- porpoised  :o

    All I forgot was the BIG WHALE on the front of the house   ???

                                                                    Carl

    P.s.  Pool is ready , Bob is great to keep it up and running , he never uses it .   I ready to relax , and ....................
       Start my new Pills replacing Norvir ??  Hope it goes well , my kidneys
     will hopefully  get back to normal  .

    P.P.S.  : Way over 30 years together , Bob still makes makes me glow  :-*
     
Title: Re: An on-going thread
Post by: leatherman on July 11, 2014, 01:11:00 pm
Been a long summer
What?!?! :o ;D 8) Summer hasn't even been here a month! (June 21th was the first day)

But I do know what you mean. Here in SC it's been hotter than hades since April, and the main portion of our house remodel is nearly finished. The black mold is gone, the foundation is fixed, the living and kitchen are totally redone. All that's left is for me to finsh painting the cabinet doors now that the primer is done ;)

Congrats to you and Bob. Congrats on the house work that you completed!
Title: Re: An on-going thread
Post by: wolfter on July 12, 2014, 06:24:32 am
Glad we're all getting our projects completed.  Not too bad for a bunch of LTS.  :)

Carl, does this mean you're completely done with your sister's house?  That has to be a huge relief.  I know how it's played havoc with you.  Now, float around the pool with an ice cold beer and relax for a change.

Mikie, your renovation project looks awesome.  Where do we get the fortitude?

I was happy as could be yesterday.  Even with my gimpy leg, I managed to finish the laundry room and get the washer and dryer installed.  Was too tired to start laundry last night but already have 2 loads completed this morning.  I haven't done a load in about 6 weeks so I definitely have a backlog. 

I did go buy new clothes to make sure I had enough to get by. :o  And I'm still waiting for my on-line orders to arrive.  First time ordering shoes via the internet so I guess I'll discover if it's a good way to shop.

Hope everyone has a fantastic day. 
Title: Re: An on-going thread
Post by: weasel on July 12, 2014, 02:01:06 pm
Glad we're all getting our projects completed.  Not too bad for a bunch of LTS.  :)

Carl, does this mean you're completely done with your sister's house?  That has to be a huge relief.  I know how it's played havoc with you.  Now, float around the pool with an ice cold beer and relax for a change.

Mikie, your renovation project looks awesome.  Where do we get the fortitude?

I was happy as could be yesterday.  Even with my gimpy leg, I managed to finish the laundry room and get the washer and dryer installed.  Was too tired to start laundry last night but already have 2 loads completed this morning.  I haven't done a load in about 6 weeks so I definitely have a backlog. 

I did go buy new clothes to make sure I had enough to get by. :o  And I'm still waiting for my on-line orders to arrive.  First time ordering shoes via the internet so I guess I'll discover if it's a good way to shop.

Hope everyone has a fantastic day.

Yes Greg  , I am totally done with all renovations of beach house . 
   I will float around with a glass of wine :)   

 Going to the pool soon , Needs a good suck job on the bottom  8)

   I slipped and pulled ligaments in my left leg , Taking pain pills now  :'(

                                                                                      Carl 
Title: Re: An on-going thread
Post by: wolfter on July 13, 2014, 11:05:13 am
Take care of that leg Carl.  Remember, you don't need as much wine when you're on pain meds.  :)  Hopefully I won't be injured the next time you drive through.  I so wanted to see you again and show you around the lake.  I should have my own boat by then instead of borrowing one.
Title: Re: An on-going thread
Post by: weasel on July 13, 2014, 07:49:46 pm
Take care of that leg Carl.  Remember, you don't need as much wine when you're on pain meds.  :)  Hopefully I won't be injured the next time you drive through.  I so wanted to see you again and show you around the lake.  I should have my own boat by then instead of borrowing one.

  Greg  I will make a point of visiting next trip !
   This trip home was exhausting , so much road work .
 
                                                                             Carl
   
Title: Re: An on-going thread
Post by: BT65 on July 13, 2014, 08:52:20 pm
I'm still having swelling in my right foot, ankles, and lower leg.  I'm not so sure it's a torn tendon, but what do I know.  I know it's painful, but I've been putting heat and ice on it.  I will be making an appointment with my doctor tomorrow for something else, and if it's not better, will have him check it out.  Or I'll make an appointment with my orthopedist.

Ugh, why do we have to get fragile and brittle? 
Title: Re: An on-going thread
Post by: wolfter on July 14, 2014, 08:17:39 am
I'm having an MRI done on my knee this morning.  I tried having one last week but she put my leg in such a position that holding it still for 30 minutes was impossible.  I even told her so before we started the procedure.  It throbbed so bad and my foot was totally numb after 15 minutes.  So today I'm order to take a pain pill before the procedure which will probably put me right to sleep.

He think I have a acl injury to my ligament.  I'm beginning to think it'll heal before I ever get the results though.  I'm finally gimping around with crutches.  The knee is horribly swollen still but I see constant improvements.

My maternal grandmother who turned 96 2 days ago isn't as frail as I am.  I figure my bones will be all powder if I live that long. :o
Title: Re: An on-going thread
Post by: mitch777 on July 14, 2014, 04:13:06 pm
Betty and Greg,

Good luck to you both and rest your weary bones in the mean time. Ya, like that's going to happen.
Title: Re: An on-going thread
Post by: aztecan on July 14, 2014, 11:26:30 pm
Hey Gang,

Well, i am still waiting for the state to decide whether I will be given an exception and allowed to access assistance for my med copays.

So far, I have had to pay the new copays for two months. I thought I would only have to pay one, but that didn't work out.

On the plus side, at least I had the $800 to cover the costs. On the minus side, that was my vacation money.

I know, there are worse things on the planet. But I was looking forward to a getaway.

I hope to hear something soon. I may have to change pharmacies, using a mail-order rather than a local pharmacy.

I don't like that idea, but I may have no choice right now. I prefer local pharmacies.

We'll see.

HUGS,

Mark


Title: Re: An on-going thread
Post by: BT65 on July 15, 2014, 05:30:48 am
Greg, I can't remember who (either Ms P or Jeff) came up with the idea, not long ago, of having a nursing facility built just for those of us who are suffering from LTS'er effects. and now it doesn't seem like such a bad idea lol.  You and I need to get together some day and try to keep each other balanced.

Mark, what the hell is taking so long?  Does the state usually move that slowly?  Doesn't seem right, not at all.  You need a vacation when doing case management, it's vital.  That's horrible and I hope they find in your favor soon.

I'm up very early.  For the past 3 days I have not been able to access my e-mail.  Comcast fuck-up.  I'm still waiting for them to fix it so I can once again get my e-mails.  I'm sure by the time they fix it, I will have over 1000 e-mails.  I always have at least 50 if I don't check it for like 4 or 5 hours, so I can't imagine 3 days (plus today makes 4).  I was on the phone with Comcast for about 45 minutes yesterday, for about the thousandth time in 3 days, with the tech trying different things to get it going, but to no avail.  So, we'll see what today holds.  The tech said he would call me later this afternoon, which means I'll have to call them. 

I bought these socks at CVS that are supposed to help with tired, achy feet, swelling, and varicose veins.  Well, I wore them for about 5 hours, and wow, when I took them off they were extremely tight and I could hardly get them off.  They kept my right ankle/foot swelling down, but they caused such imprints on my legs I question whether I should continue wearing them or not.  I also bought this thing that's supposed to be an ankle support, and that ended up hurting after a couple hours.

In other news, still getting settled.  I opened up an account at a local credit union.  When I changed the routing and account numbers on SS's website, for direct deposit, the website said it would not take effect until September, so I guess it's too late for August's check.  I will just go there on the 1st and close my account. 

Also have been discovering various local farms with markets that make all sorts of good things, like peach salsa, and pineapple salsa, cakes and pies, fudge, peanut butter, all made right at their locations.  It's been fun.  Today I'm going to the farmer's market in South Bend (IN) to try to get some local peaches.  Though a lady at the one farm market I've visited a couple times, told me there's going to be very few due to the extended period of cold last winter.  Sweet corn is available now, though, so I will get some of that. 

Ok, this is becoming a book.  I'm going to see my bone doctor's nurse practitioner Thursday, for some "healthy bone" appointment.  I was supposed to see an ENT doctor to figure out what's going on with my parathyroid, but didn't make it due to losing the appointment sheet while moving, thus not knowing when the appointment was.  Ugh.
Title: Re: An on-going thread
Post by: wolfter on July 15, 2014, 09:10:34 am
Damn Mark, I certainly hope they make this happen soon.  I absolutely feel for you.  I guess I'm fortunate that I've not had major issues with mail order prescriptions.


I also just read another thread where Michael is in the hospital with a broken foot.  I still have a nagging fear that continued weakened bones will be our ongoing bane.

@ Mark, I can't imagine anything that will keep Betty and me down. 

@ Betty, it would be too funny to watch all of us LTS in a nursing facility.  Most would need to be locked in their rooms lest we wonder.   lol  I didn't manage to get a garden in this year so I'm also relying on farm stands for my local produce and such.  We're lucky to be in the heart of farmland country where all the local farmers have their own stands.  They're pretty much everywhere.  One near by farmer just rented an empty lot about 75 yards from me to have a produce stand.  So awesome that I can have a fresh salad anytime I like simply by hobbling for a few moments.

On another note, my home is progressing so quickly.  I've pretty much got everything arranged.  Haven't done any decorating until I decide if I'm content with the basic layout.  I'm having difficulty with the living room.  It's actually too large and doesn't lend itself to traditional decorating standards.  It measures 24' by 22'. 

I broke down and ordered a composite tv stand that arrived yesterday.  I hadn't purchased anything but solid wood furniture for years.  I did it because of cost but it actually is quite nice and looks like real wood.  They've made great improvements through the years.  Now, I'll have to buy a large tv.  My little one looks strange sitting on this stand.

OK, now I'm writing a novel.  Hope everyone has a great day.
Title: Re: An on-going thread
Post by: Miss Philicia on July 15, 2014, 10:17:34 am
In a mere three hours this strapping young man will be looking up my sphincter -- meet my new colorectal specialist, David!

(http://i58.tinypic.com/2ikdwm8.jpg)
Title: Re: An on-going thread
Post by: Jeff G on July 15, 2014, 10:55:36 am
He is a very handsome sphincter gazer .
Title: Re: An on-going thread
Post by: Miss Philicia on July 16, 2014, 08:57:44 am
This strapping man was even nicer looking in person. I did some sleuthing though and he's actually only three years younger than I am, or 46. Amazing. Methinks he's had some nip&tuck or just blessed with good genes. Didn't look a year over 36. Anyway, for any of you in need of a colorectal specialist in the Greater Philadelphia metro area he comes highly recommended -- very centrally located a few blocks north of City Hall on the Broad Street subway, or a short walk from Suburban Station for regional rail users, or right off Vine St Expressway if driving. Plus the office is directly across from Hahnemann Hospital which is where he does any surgical stuff.

In other news, in his view high-resolution anoscopies are not needed and actually can lead to over-treatment of anal dysplasia, meaning a regular anoscopy suffices to detect something high-grade and in need of further treatment ie. infrared coagulation. So in the end my anal inspection was quickly done in 3-5 minutes, after which Dr. David pronounced my sphincter to be "incredibly boring". But he still wants to see me annually, along with colonoscopies every five years due to my last one showing benign polyps.

So, in short, for those of you who have foregone having this done because you could not locate someone doing high-resolution procedures you should just go to a colorectal specialist and have a normal one done.
Title: Re: An on-going thread
Post by: Jeff G on July 16, 2014, 09:02:26 am
Not the same I know but I have to have a colonoscopy next week and I am dreading it . No food or drink after midnight the night before and the test isn't until 2:30 the next day . 
Title: Re: An on-going thread
Post by: BT65 on July 16, 2014, 09:17:12 am
Not the same I know but I have to have a colonoscopy next week and I am dreading it . No food or drink after midnight the night before and the test isn't until 2:30 the next day . 

Maybe it has to do with different areas of the country, but doctors here say a person can drink clear liquids while preparing for a colonoscopy.  Otherwise there's a high risk for dehydration.  Plus, in your case, crashing blood sugar. 
Title: Re: An on-going thread
Post by: wolfter on July 16, 2014, 09:47:52 am
Mrs. P has a boring butt....lmao  glad all is clear.  :)

Jeff, I think many doctors are changing the orders, allowing clear liquids to be consumed.  I was allowed to drink as much water as I wanted.

I go get my results of my MRI today at 2:00.  Just so hoping it's not awful news.    Other than that, am absolutely enjoying this fabulous weather.  Way below normal for a while.
Title: Re: An on-going thread
Post by: Miss Philicia on July 16, 2014, 11:03:57 am
Mrs. P has a boring butt....lmao  glad all is clear.  :)

The Holland Tunnel is pristine these days, completely renovated for the 21st Century and practically virginal -- undefiled and immaculate.

Now onward to next week's neurologist appointment and another podiatrist one (never-ending) followed by an HIV doctor visit. Oh, and I've finally scheduled a dermatologist appointment but they had no openings until late September. Plus it's in the same building as Hunky Rectal Dave so a mere 10 minute subway ride away, no transfers.

ps: I'm quite sure I was allowed liquids during my colonoscopy prep two years ago -- but it had to be certain things like broth. I think I could even eat jello as long as it was not red.
Title: Re: An on-going thread
Post by: Dachshund on July 16, 2014, 11:07:23 am
The Holland Tunnel is pristine these days, completely renovated for the 21st Century and practically virginal -- undefiled and immaculate.

You have a Joan Rivers pooper.
Title: Re: An on-going thread
Post by: Miss Philicia on July 16, 2014, 11:14:21 am
You have a Joan Rivers pooper.

More than you know. After my anal warts rectal surgery in 1998 I developed smallish labia like folds back there. The rough trade I'd pick up down at the piers were enamored, but that's when the Tunnel was in a concupiscent degenerate state.

Like an anal camel toe.
Title: Re: An on-going thread
Post by: aztecan on July 17, 2014, 12:21:12 am

Like an anal camel toe.

OK, that is a mental image that won't go away.  :-X

I believe I was allowed liquids like clear broth and water.

David, what is going on with your feet? I don't remember you having that much trouble when we were in Mexico City.

Of course, that was six years ago. My time flies.

Oh, by the way, I received good news. I was given an exception for the copay assistance. Looks like I will not have to shell out that chunk-o-cash again for my meds.

That is a relief.

HUGS,

Mark
Title: Re: An on-going thread
Post by: harleymc on July 17, 2014, 04:38:10 am
Mark
congrats on the assistance for the co-pay.
Title: Re: An on-going thread
Post by: BT65 on July 17, 2014, 06:02:05 am
Mark, good news on the co-pay!  That's got to be a relief.

Betty
Title: Re: An on-going thread
Post by: Miss Philicia on July 17, 2014, 06:51:32 am

David, what is going on with your feet? I don't remember you having that much trouble when we were in Mexico City.

Seriously girl? You must not have read a single "medical" post of mine in the past 3 years.

Short story -- I think it began after the year I saw you. Wasn't sure what it was because it progressed slowly. Ended up having 3 foot surgeries from '11-'13 while simultaneously developing extremely bad neuropathy along with sciatica, the latter likely related to the lipoatrophy in my buttocks and thighs. But it's in the last year that the nerve stuff has kicked into super-high gear and am seeing a new neurologist to sort out any treatment. Anyway my pain issues are constant and I am kind of screwed for life now, I guess.
Title: Re: An on-going thread
Post by: mitch777 on July 17, 2014, 10:49:22 am
Great news Mark!
Title: Re: An on-going thread
Post by: wolfter on July 17, 2014, 11:11:03 am
That is indeed great news Mark.  Congrats!!!!!
Title: Re: An on-going thread
Post by: Jeff G on July 17, 2014, 11:30:11 am
Congrats ... You deserve all the help you can get and I'm so happy its all come together for you . 
Title: Re: An on-going thread
Post by: BT65 on July 17, 2014, 06:47:23 pm
OMG!! I can access my e-mail again!  Finally someone at Comcast got his head out of his ass and fixed it.  But, all my e-mails between the day it went down (the 11th) and today were lost.  Oh well, it's working, that's what counts.  I'm just so excited!!
Title: Re: An on-going thread
Post by: Jeff G on July 17, 2014, 06:55:42 pm
OMG!! I can access my e-mail again!  Finally someone at Comcast got his head out of his ass and fixed it.  But, all my e-mails between the day it went down (the 11th) and today were lost.  Oh well, it's working, that's what counts.  I'm just so excited!!

YAY ... you got mail !
Title: Re: An on-going thread
Post by: Miss Philicia on July 17, 2014, 10:01:59 pm
I feel like shit and think I have bronchitis.
Title: Re: An on-going thread
Post by: wolfter on July 17, 2014, 10:43:35 pm
I feel like shit and think I have bronchitis.

R U scheduled to have a follow up?  not normal for this time of year
Title: Re: An on-going thread
Post by: Miss Philicia on July 17, 2014, 10:49:49 pm
R U scheduled to have a follow up?  not normal for this time of year

Well, I should say it's an upper respiratory infection -- and yes I have caught them in the summer. Seasons mean nothing to a virus.
Title: Re: An on-going thread
Post by: aztecan on July 18, 2014, 12:08:53 am
David,

Now I do remember you having the surgeries. Sorry, old AIDS, I guess.

I didn't realize it had progressed as it had.

Take care of that respiratory infection. Those things can be nasty.

HUGS,

Mark
Title: Re: An on-going thread
Post by: aztecan on July 18, 2014, 12:23:59 am
I have an appointment with the doctor next week.

I was wondering if others make a list to tell the doc. If I don't, I forget to ask.

A couple of my humps and lumps are returning. Not as bad as they were in the past, but they are there and I can feel them.
This is basically and FYI for the doctor, since there is nothing to do about them.
No, I am not going under the knife again, at least, not yet.

Then there are the usual issues:

Neuropathy in my feet and lower legs - pretty much the same as usual.

Elevated CPKs and corresponding muscle aches - pretty much the same.

A couple of new things:

Plantar fasciiaitis, or however its spelled. This is no fun at all. I am relegated to one pair of shoes that give the support and comfort to allow me to keep walking.

Most of the rest of the shoes are destined for the trash bin. Not a bad thing. I have too many shoes.

Hmmm, not bad, really. Considering hoe long I have lived with the bug, and someone who took some of the old meds with their peculiarities, and someone who has managed to get as old as I am, I really haven't much to complain about.

HUGS,

Mark
Title: Re: An on-going thread
Post by: BT65 on July 18, 2014, 06:22:42 am
Mark, one pair of shoes?  Awful.

So, I was going to try to move everything (Medicaid, license, car insurance etc.) to Michigan.  However, after talking to people yesterday, I'm keeping everything in Indiana.  I applied to Medicaid, but am going to withdraw the application.  I talked to the insurance rep here for the auto, and it would cost $50 more a month in Michigan for just the basic (PLPD) insurance, compared to $50 cheaper in Indiana for full coverage.  Michigan is a no fault state,and people pay a high price for that.

When talking to the Part D carrier, once I told them I moved to Michigan, they told me I would "need to do a new application."  Well, I am in no mood right now to go through all that, especially since I get the extra help, which I believe is due to having Medicaid (though it is the Medicaid I pay for since I am employed part time).  Also, the Medicaid pays the premiums for Medicare, and switching over is always such a hassle when dealing with this issue.  I can't remember how long it took to kick in when I moved to Indiana the last time, since I was pretty strung out. 

So, I am using the ASO's address in South Bend for my insurances, have to change the address for SS back to South Bend before they start hassling me over having Michigan Medicaid to pay the premiums, and am going to withdraw my app for Michigan Medicaid.  They will tell me I have to cancel my Medicaid in Indiana prior to them approving the app anyway. Come the end of October, when it will be time to renew all the insurances, I may then think about switching everything to Michigan.
Title: Re: An on-going thread
Post by: Miss Philicia on July 18, 2014, 06:52:37 am
Mark, have you tried daily stretching exercises used in physical therapy for plantar fasciitis issues.

And yes, I write lists now for the doctor -- but only in the past year have I begun doing so. There were just too many things going on with my body. However I'll probably wing it for my neurology follow-up on Tuesday and my HIV doctor the following week. I do the notes on my computer and then sync them with my smartphone.

ps: dreadful sleep last night due to taking Mucinex -- it's always like meth to me for the first couple of days dosing. I even woke at 3am and took two ambien and still got up at 6:30am.
Title: Re: An on-going thread
Post by: harleymc on July 18, 2014, 09:45:00 am
Miss Philicia, I'm sure all of us are doing daily stretching exercises!
Title: Re: An on-going thread
Post by: J.R.E. on July 19, 2014, 10:01:42 am
 :)

We decided on a little change for tonight, so yesterday,  we went to the Eight O' Clock Theater in Largo,  and got ourselves two tickets for  "Hair".

It's been a while since we watched a live performance !

Show time :  8:00  :P


http://www.eightoclocktheatre.com/shows-Hair.shtml


http://www.tampabay.com/things-to-do/stage/largos-eight-oclock-theatre-puts-on-the-musical-hair/2187988


Ray 8)
Title: Re: An on-going thread
Post by: wolfter on July 19, 2014, 10:13:20 am
I love live theater and watching a Broadway musical is still on my bucket list. 

Hope you enjoy it and have a great time.

greg
Title: Re: An on-going thread
Post by: wolfter on July 20, 2014, 11:39:50 am
We have been having the most glorious weather that I've ever experienced during the Summer in Ohio.  I've not had the air on in over a week.  I actually got cold chills yesterday morning and put on sweats for a while. 

Sheot, just remembered I have a work meeting at noon.  y'all have a great day.
Title: Re: An on-going thread
Post by: Jeff G on July 20, 2014, 12:21:07 pm
We have been having the most glorious weather that I've ever experienced during the Summer in Ohio.  I've not had the air on in over a week.  I actually got cold chills yesterday morning and put on sweats for a while. 

Sheot, just remembered I have a work meeting at noon.  y'all have a great day.

Its the same here ... nice and cool .
Title: Re: An on-going thread
Post by: mitch777 on July 20, 2014, 02:40:16 pm
Its the same here ... nice and cool .

Sure... once I left the hot air disappeared.
Title: Re: An on-going thread
Post by: Jeff G on July 20, 2014, 03:21:31 pm
Sure... once I left the hot air disappeared.

I didn't say that   :o
Title: Re: An on-going thread
Post by: BT65 on July 20, 2014, 04:41:13 pm
Sure... once I left the hot air disappeared.

lol that's funny.
Title: Re: An on-going thread
Post by: wolfter on July 22, 2014, 09:51:14 am
Looks like it's time to finally turn the air back on but I won't complain.  It has been beyond beautiful weather that we've never experienced in July that I recall.

Other than that, just waiting patiently for my upcoming surgery.  5 days and counting down.  The timing really sucks though.  Every year, I facilitate an awesome Indy party.  It's an all afternoon event with plenty of food, entertainment and prizes.  I'll be sipping water while everyone else will be enjoying free booze.   >:(

I raised enough money so far this season that we're giving away a couple of tvs and a laptop in addition to several smaller items.  My events always bring great revenue to the post.  Who better to throw an awesome party than the middle aged gay man and his hoard of hags.   lol  Actually, most of the male members adore me as I entertain their "ole ladies" while they enjoy their war stories.
Title: Re: An on-going thread
Post by: weasel on July 23, 2014, 08:48:02 pm
lol that's funny.

       
That is very very funny Mark   :)

                                                                           Carl 

    We're creepy hot here  ::)
Title: Re: An on-going thread
Post by: mitch777 on July 23, 2014, 09:15:30 pm
LOL Carl.  :)
Title: Re: An on-going thread
Post by: wolfter on July 24, 2014, 08:25:57 am
Now I'm pissed.   ;D  How did you all figure out how to make words scroll? 
YAH, I think I learned something new today



I see over use of this feature for a while....lol
Title: Re: An on-going thread
Post by: wolfter on July 24, 2014, 08:28:53 am
Also, what happened to all the early risers?  I feel so alone in the mornings lately!!!! 

Title: Re: An on-going thread
Post by: Miss Philicia on July 24, 2014, 08:59:18 am
Child please. I was up at 6am this morning.

I used to rise much later but since May I've been waking up at 6 or 7 every day. My midday nap throws everything off but I can't help it. I lay down on the sofa and can't stay awake.
Title: Re: An on-going thread
Post by: wolfter on July 24, 2014, 09:28:38 am
Since switching off the Isentress, I sleep in until about 6:30 or so everyday.  Previously, I was always up having coffee by 4:00.  I went from a mere few hours per day to about 5 now.  I don't take naps but have found myself resting more often. 

Even with my lame leg, I'm heading down to mow at the post.  We are so short handed and everyone has been taking up my slack. 
Title: Re: An on-going thread
Post by: Miss Philicia on July 24, 2014, 09:31:44 am
You only get five hours of sleep everyday? That doesn't sound very healthy.
Title: Re: An on-going thread
Post by: wolfter on July 24, 2014, 10:25:29 am
MissP, I've expressed this concern ad naseum with my doctors to no avail.  But I also no longer feel exhausted so perhaps it's my "normal"?  What I experienced with the Isentress wasn't normal and I was so exhausted that I couldn't function correctly.

I've continued on with the Trazadone that my doctor prescribed a while back (before the med change) which doesn't really help with the sleep issues.  But I saw other benefits after a while.  Not sure what it's actually supposed to do, but it has slowed down my scattered brain and improved my focus.  OH, and my mood has stabilized and I'm enjoying my perfected personality.   ;D

Oh, that really should be addressed in another thread.  :)
Title: Re: An on-going thread
Post by: BT65 on July 25, 2014, 05:42:06 am
Also, what happened to all the early risers?  I feel so alone in the mornings lately!!!! 



Greg, I'm up by 4:30 every morning.  I'm usually on here no later than 5 am, and usually don't get off until 6 or 7.  So, I'm here, just earlier than you I'm afraid lol. 
Title: Re: An on-going thread
Post by: wolfter on July 25, 2014, 07:09:07 am
Good Morning Ms. Betty.  I slept in until almost 7:00 this morning which is definitely rare.  I was also asleep by 9:30 last night so this is one of the best night's sleep I've gotten in a long time. 

I'm sure the cause was that I worked super duty hard yesterday.  I have been stressing about the rest of my belongings in the outbuilding at my mom's.  I made several loads yesterday by myself.  An uninjured person could have done this in a couple of hours but it took me all day.

1 small load left!!!!!  I even managed to get the yard table down here.  Flipped it upside down into the back of my truck.  I was so exhausted that I planned on coming home and showering, grabbing a bite to eat and enjoying a nice glass of wine.  Instead, I showered and passed out on the couch for the entire night.  Normally, I find couches too uncomfortable to sleep on but it was great.

When do we get to see pictures of your new place?  You can email them to me if you want me to post them.


Title: Re: An on-going thread
Post by: Miss Philicia on July 25, 2014, 07:17:55 am
This nortriptyline my neurologist just prescribed to me definitely makes me sleepy. I think I went to bed at 10:30pm and got up at 7am.
Title: Re: An on-going thread
Post by: wolfter on July 25, 2014, 07:25:00 am
This nortriptyline my neurologist just prescribed to me definitely makes me sleepy. I think I went to bed at 10:30pm and got up at 7am.

Is that a long term affect until your body gets used to it?  Aren't you already on other similar meds?
Kinda weird to actually feel a tad tired after a long night of sleep.  :)
Title: Re: An on-going thread
Post by: Miss Philicia on July 25, 2014, 07:52:26 am
Is that a long term affect until your body gets used to it?  Aren't you already on other similar meds?


I think the sedating effects are long term which is why it says on the bottle to take it at bedtime. It's a tryicyclic antidepressant used for neuropathic pain relief which I am taking with gabapentin. We're giving it two months to see if it does anything for me.
Title: Re: An on-going thread
Post by: wolfter on July 25, 2014, 07:55:34 am
Definitely hope that finally gives you some much needed relief.  I am EVER so grateful that this is one issue I don't deal with.  I hear all y'all's stories and it sounds horrid.  Best of luck
Title: Re: An on-going thread
Post by: Theyer on July 25, 2014, 08:34:55 pm
I often go to bed at 5 am if it's a very good book
Title: Re: An on-going thread
Post by: BT65 on July 26, 2014, 04:50:41 am
When do we get to see pictures of your new place?  You can email them to me if you want me to post them.

If you would like to pm me your e-mail address, I will try to get them to you.  I've taken some with my cell phone and texted them to Jeff, but when I do that they come out as  a slide show, so I guess that means they cannot be posted.

I will try to e-mail them to myself, then forward them to you.  Unfortunately, I cannot find my camera, or I would have done that a while ago. 

So yes, pm me your e-mail and I'll see what I can do.  Thanks dear.  I hope you're not in too much pain from your poor leg issues. 

Betty
Title: Re: An on-going thread
Post by: aztecan on July 26, 2014, 10:25:09 am
I had some good news the other day.
I attended my 6-month doctor visit and things look OK.

Lipids are not great, but tolerable. The doctor also took me off the Advair inhaler. I am to see how it goes because he said my lungs have sounded fine for a while.
I have it on hand and am instructed to use it PRN.

So, one less med is a good thing.

HUGS,

Mark
Title: Re: An on-going thread
Post by: aztecan on July 26, 2014, 10:30:38 am
Did I mention they diagnosed me with angina pectoris?
It is pretty stable so I don't worry much about it.

I do routinely carry nitroglycerin with me now, though.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on July 27, 2014, 01:07:46 am
 8)  sorry, im zing currently
Title: Re: An on-going thread
Post by: Theyer on July 28, 2014, 06:29:47 am
Mark good to have a reasonably stress free Dr appointment.


Hope the new Drugs work out for you  Miss P
Title: Re: An on-going thread
Post by: mitch777 on July 28, 2014, 07:52:21 pm
So after a visit with my doc today I'm finally changing my meds from Isentress to Intelence. The insomnia has been getting worse even with Trazodone. Hopefully this will help although insomnia is listed as a possible side effect. I was sleeping about 12 hours on Atripla and it's been whittled down to 5 hours on Isentress. Just looking for a happy medium.

Also brought up newer research to him about the shingles vaccine. He agreed!! I don't know if he had it on hand but both of us forgot about it by the time I left the office. I'll call tomorrow and will hop on down to get the shot ASAP.

My blood work was within the norms other than that pesky high red blood cell count.

Disability attorney appointment followed and I'm beat.
Title: Re: An on-going thread
Post by: wolfter on July 28, 2014, 07:53:57 pm
Did I mention they diagnosed me with angina pectoris?
It is pretty stable so I don't worry much about it.

I do routinely carry nitroglycerin with me now, though.

HUGS,

Mark

Have they ruled all other factors for the angina?  Care of yourself buddy!
Title: Re: An on-going thread
Post by: wolfter on July 28, 2014, 07:56:50 pm
Mark, I certainly hope you see the immediate benefit like I did when switching off the Isentress.  I wish I would have waited though as I still haven't built up a reserve.  I couldn't believe how quickly I regained some of my whacked brain function....probably due to finally sleeping.

take care buddy
Title: Re: An on-going thread
Post by: mitch777 on July 28, 2014, 08:00:52 pm
Mark, I certainly hope you see the immediate benefit like I did when switching off the Isentress.  I wish I would have waited though as I still haven't built up a reserve.  I couldn't believe how quickly I regained some of my whacked brain function....probably due to finally sleeping.

take care buddy

Oh I'm waiting and building up a two month reserve! Acreedo is such a suck ass inept company that suffering though another two months of less sleep is nothing compared to the stress dealing with them. I happened to have enough supply of Isentress to hold me through thanks to a member here. ;)
Title: Re: An on-going thread
Post by: mitch777 on July 30, 2014, 08:22:32 pm
So it turns out that my ID doc doesn't give the shingles vaccine. Makes sense I guess since it's not contagious. They told me to contact my PC doc. They don't have it either.
They sent a script to CVS to puncture me. My how times have changed! Just a few short years ago getting anything other than a flu vaccine would be expected from ones PC.

Old fart rambling.  :P

It really doesn't matter in any case.
Title: Re: An on-going thread
Post by: Jeff G on July 30, 2014, 08:28:31 pm
So it turns out that my ID doc doesn't give the shingles vaccine. Makes sense I guess since it's not contagious. They told me to contact my PC doc. They don't have it either.
They sent a script to CVS to puncture me. My how times have changed! Just a few short years ago getting anything other than a flu vaccine would be expected from ones PC.

Old fart rambling.  :P

It really doesn't matter in any case.

Old farts do not ramble, they rumble . 
Title: Re: An on-going thread
Post by: wolfter on July 31, 2014, 10:40:31 am
I was going to check with my doctor on my next visit, but I'm pretty sure I remember him saying I didn't need the vaccine either.  He said we're at no greater risk than the general public.  He might not have said anything like that at all.....I think I make shit up sometimes.  :)

Just like with my foot injury, I decided to start my own therapy and do my method of dealing with the knee.  After 2 days of sponge bathing only, I felt grungy and couldn't imagine a whole week with out a shower or bath.  SO, I undid all the dressings and cleaned up the area.  Doesn't look too badly, so I wrapped it really well with saran wrap and took a nice shower.

They also wanted to me to rent a therapy machine for $125.00 a week to work the knee.  I vetoed that and am doing my own exercises.  I can already almost bend it to 90 degrees.  :)  Also down to one crutch again so I should be well to go very soon.

It's strange that he used staples as I thought they stopped doing that.  OH well, I'll dig out my ole staple puller when it's time.  They're not sucking more money out me than is absolutely necessary.    :o

I was also borderline on be constipated again thanks to the pain meds.  Fortunately, I was quite ravenous last night so I had a difficult BM this morning. 

I'm also eyeballing the last bottled of chilled wine that has been taunting me during my recovery.  :)
Title: Re: An on-going thread
Post by: wolfter on August 03, 2014, 12:34:53 am
We had our annual VFW golf outing today.  I co facilitate the event and the proceeds all go to children of fallen soldiers. 

It was great to be out and about for that length of time.  I was a little saddened that I couldn't golf so I became productive instead.  I decided to drive the beer cart around.  That was actually quite fun.  I really didn't think I'd sell that much beer at 8:00 am, but WOW. 

Towards the end of the outing, my leg was quite swollen and aching pretty badly.  I made the reasonable choice to go home instead of attending the banquet.   :( 

Where's Miss Betty at?  Haven't seen her around much of late.
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 07:37:55 am
Hi Greg, I'm around, just kind of busy, and usually I'm on here at like 3 or 4 am. :o

I have never done any golfing other than putt-putt.  But I'm told it's extremely relaxing.  That's really cool you help organize that outing, and that you took part in it.  I know how aggravating limiting activity can be.  Just something we have to do I guess.

Which I know all about.  Between the avascular necrosis and osteoarthritis, it seems I have to restrict certain types of activities more and more.  Which may be troublesome in an upcoming event....the job I have now is very, very part-time and is a grant job, which may run out next year.  So, I decided I needed to get a part-time job in order to supplement, and just in case I need something in the future.

I applied to many places (online), and was interviewed by a few.  Now, I do not want the responsibility that I've had with social work, both when I was working at the ASO, and this year doing the women's support specialist work.  So, I applied to positions that had much less responsibility, and no special training or education.  One of the places I interviewed with is a direct service provider for persons with developmental disabilities.  I was told during the interview that I was "overqualified," and if I got hired and they had an opening I may want to consider becoming a supervisor.  I was telling myself "hell no, I don't want that kind of responsibility," lol, but I did not tell them anything.

So, they called last week and told me as long as my references checked out, they would send me a welcome letter and forms that needed to be filled out online and sent back prior to the first day of training.  I knew my references would check out because I had contacted the people ahead of time and warned them I had given them as references.  So, anyway, I was offered the job and tomorrow start training.

The bitch is, the training is Mon-Fri, 9am-5pm.  For two weeks.  So that pushes me very, very close to the limit SSA allows persons on disabilities to make.  Which means I have to restrict income from my other job, as well as the rest of this month with the new job.  Well, we'll see how that goes.  I did not tell the recent employer that I am on disability, so if they schedule me, after the training, more than the 2 days they said I would have, I'm going to have to come up with something to tell them for which I would have to restrict my hours.  My friend that I live with, said to tell them I have Obamacare and cannot make over a certain amount or my premium would be something I could not afford.  I'll go with that.

So now, since Greg said I have not been here, I wrote a book lol.  Too long, I know.  Just wanted to share what has been going on.  I'm going to be doing 2 jobs starting tomorrow-a women's support specialist, and a direct service provider.  During the training, I may be screwed at one point-the last day they have first aid/CPR training, and the lady told me that involves kneeling on the ground when giving the person CPR.  I cannot do that due to issues with my knees.  I may ask them to move the dummy up on a table, so I can bend over to do it.  We'll see. 

Otherwise I've been busy taking care of this place, still having issues with raccoons, and a new issue that I'll talk more about later, but it's becoming bothersome.  I've discussed it with Jeff, and he told me it can be caused by neuropathy-it's night time urinary frequency, with me not being able to hold it all until I reach the toilet.  Which means I have had to buy those thick pad things (Tena) to wear at night.  I do not empty my bladder all the way, but on the way to the toilet, I've been leaking.  I've researched this in order to find ways to reduce this, and will start doing the things I've found to see if any of it helps. 

That's all folks.  Sorry I've posted so much, but I could not find a way to dense it down lol.  Greg, I hope you continue to heal, please do what you're supposed to, though I know how difficult that is.  You and I are like the beacons for injuries, and have to watch ourselves.  My right foot/leg are still acting up (with the broken bone in the foot and torn tendon in the leg), and staying off of them is next to impossible.  I'm thinking of you, though, especially when my knees start to ache. :-*

Betty
Title: Re: An on-going thread
Post by: Miss Philicia on August 03, 2014, 08:53:02 am
Betty, I have some bladder issues (as well as saliva and tear production) that they thought might be neuropathy related but ran several blood tests with names I'd never heard of and they actually came back normal. Just did those last week.
Title: Re: An on-going thread
Post by: Jeff G on August 03, 2014, 09:10:56 am
I think Betty told me the doctors didn't see a reason to do an invasive test because she is a long term diabetic and already has neuropathy and its something she is going to have to live with unless it gets really bad . The few drugs that treat bladder incontinence are not tolerated well with those of us that that are in treatment for diabetes because they can cause low blood sugar episodes.

I treid the drugs and was so weak I had to discontinue them in a weeks time . 
Title: Re: An on-going thread
Post by: Miss Philicia on August 03, 2014, 10:33:14 am
Mine were, as previously stated, blood tests -- not invasive. I can look up what tests they were if anyone is curious. They are tests for autonomic neuropathy.
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 10:50:00 am
Well, at least I can take comfort in the fact that other LTS'ers have bladder issues as well lol. Apparently women have worse issues than men because of anatomy differences.  My doctor is going to refer me to a neurologist because of ongoing severe neuropathy issues, and my doctor is going to quit doing chronic pain management, due to all the new government regulations etc.   It just seems it always takes his office a while to get appointments to other doctors, but that's fine.

You know what happened to me yesterday? My left foot was itching on the inside, and it's a bitch when that happens, you try to itch it with your other foot, and can't feel it lol.  Ah, the joys of being a LTS'er.
Title: Re: An on-going thread
Post by: Miss Philicia on August 03, 2014, 10:56:39 am

You know what happened to me yesterday? My left foot was itching on the inside, and it's a bitch when that happens, you try to itch it with your other foot, and can't feel it lol.  Ah, the joys of being a LTS'er.

Same thing happens to me -- but with the addition that it then sets of nerve pains on the OTHER side of my foot.

Oh, so finally I am being assigned to a pain management clinic. My prognosis package was sent over to them so now I'm just waiting for a call back this coming week for an appointment. Hope it's not a long wait because over the past several months everything has increased exponentially, plus my neuropathy is in my ankles and going up my legs. Actually maybe it's already been in my legs. It's all confusing until suddenly your more sure because everything is so painful.

But once the pain management clinic gets me straight on a treatment I'll be able to do the monthly refill stuff through my HIV clinic which is convenient because there is a pharmacy on the ground floor, and they only do HIV stuff so they won't hassle me.
Title: Re: An on-going thread
Post by: Jeff G on August 03, 2014, 11:08:48 am
I get the inside itch thing in my right foot . I was standing in line at a store the other day and it was driving me nuts and I was squirming around so much my friend asked me did I have ants in pants and I told him that it was invisible ants inside my foot . I have had that feeling like I'm being stuck in my foot by a needle for years too . In the last few months its gotten a lot worse and more intense ... it used to be a quick jab feeling but now it can go on and on and its no longer a pin, its a nail . I hope that I never get where that is a constant feeling because I could not tolerate that . It woke me up the other night and I jumped out of bed and almost fell . 
Title: Re: An on-going thread
Post by: wolfter on August 03, 2014, 12:31:20 pm
There seems to be some core issues that we regularly deal with.  I've been complaining for a couple of years about my constant need to urinate.  Not just at night either.  I followed my doctor's recommendation about no liquids at 6:00 etc.  He performed a prostrate exam to rule that out.  Many times, I only have mere seconds to make it to the toilet lest I dribble.  Being on crutches, I've had a few accidents of late.

I'm going to address narcotic pain management with my doctor.  I've always been adamant about not taking them.  What I've discovered in the past 6 weeks is that I actually benefit greatly from the prescription pain meds.  One issue I always had was that they always knocked me out.  I'm now able to function well on them.  And I've noticed great improvements in my legs and feet. 

Perhaps I've just not realized what I was actually experiencing with my feet.  I thought that internal "itching/burning" feeling was normal.  I've been using hot foot baths for many, many years to alleviate it.  It's second nature to constantly give myself foot massages.

Betty, I hope the new job goes well.  You already know to be careful about that income issue.  I totally understand about the lack of desire to be in a supervisory/managerial position.  I was recently asked if I'd consider managing all aspects of our canteen.  I could do this while waiting for complete recovery so that wasn't the issue.  I'm happy with the roles that I perform currently and don't want added stress.  Anyways, best wishes with your new roll.

I'm so grateful we have the ability to share these experiences here.  It's difficult to address them solely with a doctor.  I mean, which complaint do we want to use our time addressing? 
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 02:40:39 pm
I'm grateful also, Greg, that we can share our maladies here and compare, and sympathize.

David, I'm glad you're getting into a pain management clinic, finally.  I need to tell my doctor that's what I want, since he's got this notion that he's not doing pain management anymore.  Another thing he actually told me was "my staff and I have been to workshops where we learned people on chronic pain therapy do just as well off the pain meds."  I wonder what workshop that was-totally misinformed.  Plus, it could be so for people who are not LTS'ers and have not only neuropathy but knees that are so painful and arthritic that they're deformed.  Anyway, let me know how you come out at the pain clinic.

It's been a busy day so far, and I have to e-mail my boss to let her know we have to figure something out regarding this month's pay.  She only pays once a month, on the last day, saying it has something to do with her taxes, making it easier.  I don't like that, getting paid for the job only once a month, but what can you do. 

I just did some watering of the outside plants; it's so humid here that if the plants that are potted are not watered every single day, they droop.  Such a pain in the ass, but they do look nice. 
Title: Re: An on-going thread
Post by: Miss Philicia on August 03, 2014, 03:45:03 pm
I actually didn't outright ask for pain management. During my last visit with my HIV doctor I just had a discussion about what was going on with my neurologist and what he was doing to address my pain situation and how, due to his office being so over-booked that solving it was going to take forever -- meanwhile I've become a hermit except for going to medical appointments and food shopping (well, mostly). Then he said something about my being a patient that underemphasizes his pain issues usually so he knows its actually worse and that he's sending me pain management.

I guess I've always, to my detriment, not wanted to be seen as one of these patients working all angles to get on the pill train -- you know the type. I just can't handle it anymore, I'm about to jump out a window (metaphorically). Though since I am on the 4th floor and would land on concrete down below I guess it would do the job.

Whatever they end up putting me on I expect to only solve 50% of the issue so I don't know where that will leave me. I'd like to be able to at least spend a half day in a museum or walking in a park. Is that too much to ask?
Title: Re: An on-going thread
Post by: Jeff G on August 03, 2014, 04:07:41 pm
I actually didn't outright ask for pain management. During my last visit with my HIV doctor I just had a discussion about what was going on with my neurologist and what he was doing to address my pain situation and how, due to his office being so over-booked that solving it was going to take forever -- meanwhile I've become a hermit except for going to medical appointments and food shopping (well, mostly). Then he said something about my being a patient that underemphasizes his pain issues usually so he knows its actually worse and that he's sending me pain management.

I guess I've always, to my detriment, not wanted to be seen as one of these patients working all angles to get on the pill train -- you know the type. I just can't handle it anymore, I'm about to jump out a window (metaphorically). Though since I am on the 4th floor and would land on concrete down below I guess it would do the job.

Whatever they end up putting me on I expect to only solve 50% of the issue so I don't know where that will leave me. I'd like to be able to at least spend a half day in a museum or walking in a park. Is that too much to ask?

Its not too much to ask, not at all . I hope you get what you need to feel better. 
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 07:18:05 pm
David, I know exactly how you feel.  And no, it's not too much to ask for some pain relief so you can leave your apartment other than the absolute necessities.  When I go grocery shopping, I lean on the cart.  And I do not go out walking anywhere, I can't handle it. 

And I know what you mean about people playing the situation to get pain meds.  I had some clients like that.  One of them actually had his pain meds stolen one time and he went through horrible withdrawal.  But he was on Oxy and Percocet. 

I hope you get some relief with what med the pain doctor decides to prescribe.  But you are right, it does not totally get rid of the pain.  You're tough, though.  Not that I want you to continue to have pain, but I know you can handle what the pain med can't.

I trying to figure out how I'm going to kneel during my training to do the CPR.  It's so extremely painful to do, I just don't do it.  So when exercising, if it involves kneeling, I skip that part.  I guess I will practice. 

I hope everyone has a good upcoming week, or at least a week that has low stress.  I will probably be on at some point in the morning.  Early in the morning, you know me. Love you guys!
Title: Re: An on-going thread
Post by: Jeff G on August 03, 2014, 07:24:48 pm
David, I know exactly how you feel.  And no, it's not too much to ask for some pain relief so you can leave your apartment other than the absolute necessities.  When I go grocery shopping, I lean on the cart.  And I do not go out walking anywhere, I can't handle it. 

And I know what you mean about people playing the situation to get pain meds.  I had some clients like that.  One of them actually had his pain meds stolen one time and he went through horrible withdrawal.  But he was on Oxy and Percocet. 

I hope you get some relief with what med the pain doctor decides to prescribe.  But you are right, it does not totally get rid of the pain.  You're tough, though.  Not that I want you to continue to have pain, but I know you can handle what the pain med can't.

I trying to figure out how I'm going to kneel during my training to do the CPR.  It's so extremely painful to do, I just don't do it.  So when exercising, if it involves kneeling, I skip that part.  I guess I will practice. 

I hope everyone has a good upcoming week, or at least a week that has low stress.  I will probably be on at some point in the morning.  Early in the morning, you know me. Love you guys!

Can you use knee pads ?
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 07:29:55 pm
I probably could since the ADA (Americans w/ Disabilities Act) says a person has to have reasonable accommodations.  The issue is, my knees only bend so far, so I cannot actually kneel "down;" when I kneel, it is straight up.  I don't know if that makes sense. 
Title: Re: An on-going thread
Post by: Jeff G on August 03, 2014, 07:45:16 pm
I probably could since the ADA (Americans w/ Disabilities Act) says a person has to have reasonable accommodations.  The issue is, my knees only bend so far, so I cannot actually kneel "down;" when I kneel, it is straight up.  I don't know if that makes sense. 

It does . I wonder if this may be a problem if you can't do this in an emergency ? I am not trying to rain on your parade ... just concerned .
Title: Re: An on-going thread
Post by: BT65 on August 03, 2014, 08:58:26 pm
It does . I wonder if this may be a problem if you can't do this in an emergency ? I am not trying to rain on your parade ... just concerned .

No, I know you're concerned.  I can kneel and bend over while kneeling, we'll have to see what they say.  I'm giving it my best shot.
Title: Re: An on-going thread
Post by: wolfter on August 03, 2014, 10:17:27 pm
David, I certainly hope you develop a plan that'll allow some mobility, pain free (or lessened).  Some where along the line, I had already garnered that you were a walking pain med pharmacy.  Perhaps that's an exaggerated persona? 

Unfortunately, we've all known and witnessed people trying desperately to "score" pain meds.  And like you David, I always downplayed the pain and just dealt with it.  I refused pain meds because they made me feel high.  I actually don't like that... 

Betty, I'm sure that in a moment of crisis your adrenaline would kick and you could perform CPR if the need arose. 
Title: Re: An on-going thread
Post by: BT65 on August 04, 2014, 05:27:26 am
Well I am up early and going to eat breakfast in a moment and shower.  I hope it's an easy day today, and that the training doesn't go on the whole day lol.  Really though, I hope it's interesting so it will hold my attention.  One of the problems I have is that when a person talks for an extended period of time, (s)he loses my interest after about 15 minutes, unless what the person is talking about is something I am interested in (like forensic stuff). 

So I limited my liquid last night, after 5:30 pm.  I only drank a glass of light lemonade, and didn't have the usual problems I do when getting up to pee.  Though of course the second time I got up, I did not go straight to the bathroom, so that was a little bit of an issue.  But not as bad.  I was thinking about how I will be sitting for a long period of time with the training, and hope there is a bathroom close by lol.

Title: Re: An on-going thread
Post by: Miss Philicia on August 04, 2014, 09:38:38 am
Some where along the line, I had already garnered that you were a walking pain med pharmacy.  Perhaps that's an exaggerated persona? 

You are confusing medication for anxiety (which in my case is a benzo/sedative) with a narcotic pain killer. Now that I take klonopin as directed, meaning twice daily, I don't even feel anything from it.

The pill I take for neuropathy is only gabapentin, which technically is an anti-convulsant and analgesic originally for epilepsy but used off-label for neuropathy. An analgesic, while a pain killer, is not the same as a narcotic-analgesic which is the class of (some) opioid drugs or an anesthetic.

ps: keep in mind that since 2011 I have had four instances of surgery so at various times I'm sure I referenced post-surgical pain killers.
Title: Re: An on-going thread
Post by: wolfter on August 04, 2014, 12:37:52 pm
I readily admit that I'm ignorant when it comes to all classes of these drugs.  Having been so adamant about refusing them, I never saw the need to learn it all. 

I'll definitely be discussing pain management with my doctor after a month of Oxy's and Hydo's.  They don't affect me mentally yet eliminate so many other aches and pains.  It's kinda like why suffer and deal with it when there's a "pill for that". 

I might be asking some dumb questions in the near future so I hope you all are gentle with me.  :)

We've lived long enough that we no longer should suffer in silence and just deal with it.  Sure, I could exist without them but even with the knee issue, I've actually felt great relief in other areas.

@Betty, that comment about attention is so me.  If I get bored listening to someone, I tend to tune them out pretty quickly.  Best of luck with the training.


OH, and I already fired my PT crew.  I'm further ahead by researching and am far ahead of what should already be accomplished at this point.  One week today and I'm getting ready to go for a short bike ride.  I have a follow appt with the surgeon Wednesday at which time I'll probably tell him that I'm ditching the crutches.  Already down to 1 (again, ahead of schedule).  I can walk around the house pretty well without either.

After my ride, I'm moving back to my BR.  First time ever that I recuperated on a couch.  I sat it all up ahead of time with the essentials near by.  I normally abhor people laying on furniture but I couldn't handle of thought of once again being confined to a bed to recover.

later all, hope you all have a great day.
Title: Re: An on-going thread
Post by: Miss Philicia on August 04, 2014, 01:13:35 pm
Are your pain issues neuropathy and if so are you seeing a neurologist. Exactly what is the diagnosis of your pain issues other than the recent mishaps/accidents/surgery issues?

For me I had to get through the healing process of my various foot surgeries to realize that I'd concurrently been developing worsening neuropathy issues. But now, looking back, I am sure I had low level neuropathy going back to the mid 90's when I was on all four of the HIV meds that caused it. But at the time it only effected me by my no longer being able to walk barefoot anywhere, even at home on a hardwood floor. That definitely began in 1995. Over time things worsened to where I was removing my shoes during movies and on airplanes, because they always felt very tight and hurt but then my neuropathy is exasperated by my structural deformities in my feet, meaning my super high arches.

With so many issues happening concurrently it was near impossible for me as the patient to accurately describe what was going on to my various doctors or for them to accurately diagnose me, at least until the past 12 months when everything worsened exponentially.
Title: Re: An on-going thread
Post by: mitch777 on August 04, 2014, 08:39:06 pm
It's getting hard to keep up with you all here so I'll just wish you all better meds, movement, and relief.

My only constant, and I mean daily constant pains are my headaches which I've learned to live with and my left arm nerve issue from my bulging neck disks. Radiating pain under the biceps crossing over to the top of my forearm and ending in tingling and numbness in my hand. My ID doc is supposed to be sending me to a specialist to inject something (not cortisone) into the disk to relieve the pressure on the nerve but he has been really dropping the followup ball lately. Not sure why my neurologist didn't suggest that approach. I just found out today that he (my ID doc)  never sent in my new script for my med change to Intellence yet. It's been a week. Getting tired and mixing up these sentences. lol.

I too can relate to you guys not being able to explain the pain in a way that gets the attention that it deserves.
Title: Re: An on-going thread
Post by: aztecan on August 04, 2014, 10:13:08 pm
With so many issues happening concurrently it was near impossible for me as the patient to accurately describe what was going on to my various doctors or for them to accurately diagnose me, at least until the past 12 months when everything worsened exponentially.

Oh, do I understand this. I have had a similar experience.
It is hard to tell where the neuropathy in my feet ends and the aching leg muscles caused by my elevated CPKs start.

I don't know what I will do about it. I take about 750 mgs of Naproxen, but that is for joint pain. It doesn't do anything for the leg pain.

Now, the plantar fasciitis is kicking my butt, so to speak. Thanks for recommending the exercises. I did get info on them and have been doing them and it seems to have helped.
I also want to start rolling my feet on a plastic soda bottle filled with water and then frozen. I heard that can be helpful as well.
I tried the shoe inserts, but they really didn't seem to help much.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on August 05, 2014, 05:55:29 am
You can only imagine how difficult it is to express my concerns to my doctor when I can't even do it here correctly. :o  I've been told that my issues probably aren't neuropathy related.  I guess I'm not properly explaining the issues with my legs.  My level of pain isn't so great compared with what you all share.  But I question if I've lost the ability to actually feel the pain? 

The best way that I've described my jello leg issues is that there's absence of feelings almost like being numb.  There are times that I don't even feel my feet hitting the ground...that sounds strange I know.  The severe pain issues only occur occasionally.

But what I do know, is that over the last 5 weeks I've correlated regained sensation with the pain pills I was prescribed. 
Title: Re: An on-going thread
Post by: Miss Philicia on August 06, 2014, 10:11:16 am
Finally have my first pain management appointment set for 27 August, but already was told all they do that meeting is go over my current situation and what pain strategies I've previously attempted, etc. So who knows when I actually will encounter a prescription from this place. My hope is that by the time I go visit my family for Thanksgiving something will have been in place for a couple of months and is at least "somewhat" working so that I can enjoy the holidays better than I did last year.

It always amazes me how slow the wheel turns at least here in Philadelphia. Everything takes long to get referred, medical documents sent, appointments scheduled, and then follow-ups. I know it's like this everywhere but I've also seen city comparisons and Philly is always showing longer lag times, which surprises me with the number of medical specialists per capita we have here due to the numerous medical schools/universities, etc.

Little known factoid: one out of every six doctors in the US pass through Philadelphia at some point in their schooling/residencies.
Title: Re: An on-going thread
Post by: Jeff G on August 06, 2014, 10:22:19 am
It takes forever for referrerls at UAB where I see most of my doctors . I got tired of all that so I get my GP to call and get me in for some things in a weeks time or sometime the same day if its doable . It would not apply to my pain management, those doctors are booked months in advance .   
Title: Re: An on-going thread
Post by: BT65 on August 08, 2014, 05:29:28 am
You can only imagine how difficult it is to express my concerns to my doctor when I can't even do it here correctly. :o  I've been told that my issues probably aren't neuropathy related.  I guess I'm not properly explaining the issues with my legs.  My level of pain isn't so great compared with what you all share.  But I question if I've lost the ability to actually feel the pain? 

It can be difficult to explain the pain from neuropathy accurately.  I mean, does it sound logical if someone tells you a part of their body is numb, yet they feel electrical charges through it?  If it's numb, how can that happen? 

I totally get it.  I go through it.  It's also difficult explaining to someone the level of pain I have in my knees due to the AVN/osteoarthritis.  Yesterday at work we had to learn defensive moves, so I was on my feet for 2 and 1/2 hours.  For some, that's no issue.  But when you're talking about knees that are bone on bone, that's extremely taxing. 

This morning I'm very, very achy.  And I've been up since 3 am.  Yesterday, after leaving work at 5, I had to go get the ladies for my HIV support group, and facilitate the group, then give the ladies a ride home.  The mileage, from picking up the ladies to taking them home, was 52 miles.  And I didn't get home until around 9:30 pm.  So, I'm also bitchy lol. 

I think we LTS'ers are pretty tough.  We've had to endure extreme hardship, and yet we go on.  We had serious physical issues, but go on.   We just keep puttering along lol.
Title: Re: An on-going thread
Post by: wolfter on August 08, 2014, 10:07:26 am
Oh Betty, that sounds dreadfully tiresome.  Just keep remembering the end prize.  How much longer are your classes/courses? 

When you're done, perhaps it's time to plan a long weekend get together.  There are many of us located nearby that we could easily do an inexpensive weekend.  (Just not Detroit).  lol

I had the most glorious day yesterday.  I spent the entire day outdoors, finally completing a couple of projects that have been stressing me something terribly.  My work shop is finally organized and looking good.  My 220 sub panel is complete along with my phone line and cable tv. 
Title: Re: An on-going thread
Post by: Miss Philicia on August 08, 2014, 03:29:21 pm
Just got back from four hours at the dentist: second crown build-up in six months
Title: Re: An on-going thread
Post by: BT65 on August 09, 2014, 06:29:16 am
Greg, I only have one more week of classes.  I believe I will be working primarily weekends.  When I filled out the application I told them I only wanted very part-time, since I'm still doing my other job.  So, the lady said they needed help on the 2nd shift on the weekends and wanted to know if I could do that and I said that would be no problem.  I'm not doing anything else after all.

Getting together would be a blast.  I know Jeff lives close, and I'm sure there are some others (well, not that Jeff lives close, but he's within traveling distance I think).  As long as it's during the week.  Indy?  Don't worry, I wouldn't choose Detroit.  I have relatives there, that's where my parents met.  Well, they live in the outlying areas.  But it's not like I want to go there anytime soon. 

Now, what is a 220 sub panel?  I'm guessing that's what the cables you are talking about go into?  That's very handy you are able to complete all those tasks.  Saves quite a bit of cash I'm sure.  How are you healing?

David, sorry about your ongoing dental issues.  Sometimes having dentures is a blessing, in that I don't have to visit the dentist anymore.  However, I would much rather have my teeth, so I could eat whatever I want.  And I always had to have a lot of work done on my teeth; bad teeth run in my family.

I had to take two tests yesterday; passed them both.  Two of the girls in my class didn't pass.  They weren't that difficult, just tricky questions.  Next week, at the end, we have CPR/first aid, for people who are not certified in these, which I am not.  The trainer told me if I could not kneel, and want to just sit, as long as I could compress the chest down 2 inches, she would have no problems.  She also said if I would like to do the first aid separate from the other people in the class, she would be willing to have me do it privately.  So, that's cool because I was worried about that.  Kneeling is quite the task, and then I have to kneel totally upright, I can't "sit back" while kneeling. 

My friend that I live with (Kathy) had pest control out for the raccoons.  The man put out two traps.  The first night the traps were out, a really big raccoon wandered into one.  They are not the type that cut heads off; they simply snap shut when the raccoon enters.  Well, the big guy was rattling the cage.  When I got up in the morning and turned on the light out on the deck and looked out, there he was, laying there, looking up at me with sad eyes.  So, I couldn't look at him for long because I started feeling sorry for him.  The man who did the traps said it was a male.  So I was thinking, where's the mama?  And for the next couple nights, nothing.  So Kathy and I were thinking maybe the man got the sex wrong and it was the mother; after all, how does one tell what sex a raccoon is?  Not like you can check them yourself.

Well, night before last, the mother wandered into the trap.  She was very adamant about wanting to get out and spent more time rattling the cage than the male did.  The man came and removed her yesterday, and left a trap.  We have no idea where the babies are.  Well, they're not little babies anymore.  We are wondering if they moved on, or if a coyote got them.  We do have a few of those around.  The Critter Ridder was not going to cover the whole area the raccoons were wandering into; they resided in the woody area right by our house.  So, that's what happened with that drama lol.. 
Title: Re: An on-going thread
Post by: wolfter on August 10, 2014, 01:15:15 pm


Now, what is a 220 sub panel?  I'm guessing that's what the cables you are talking about go into?  That's very handy you are able to complete all those tasks.  Saves quite a bit of cash I'm sure.  How are you healing?


My home has 200 amp service.  I ran a 60amp, 220 volt lines out to a sub panel in my work shop.  I also wired it to accomdate a whole house generator.  Considering a natural gas unit but it's about twice the cost, but more convenient.

Also got the the cable and phone installed. 

I really like Indy.  I've spent several weekends there in the past.  Bill and I would go there when we visited his kids while they attended BGU.  We should do this before Winter kicks in.
Title: Re: An on-going thread
Post by: mitch777 on August 10, 2014, 04:17:19 pm
Betty, your truly amaze me doing everything do! Women's group, seeking and training for a new job, moving, and all with a healing broken hip! So much for doing it backwards and in high heels. You have that beat by a mile.

David, ugh. 4 hours in "the chair". Not sure what a crown buildup even is. Much more to go? I've had crowns but the just put in a temporary one until the permanent one is ready. My bottom teeth are giving me trouble. I think they are just getting worn down. The aggravation is on the top edges so at least it's not gum or root related. Not sure what can be done as he has already put some bonding material on 4 of them at $200. a whack.

Greg, I don't usually respond much to your comments as we chat often enough to get caught up. Thought I would mention it so it doesn't look like a snub. lol.

We went to a double graduation party yesterday. Two kids from the same family. It was nice to get out for a change. I worked with the mother over 30 years ago she as well as three of her kids have worked for us over the years. They had three kids and wanted a fourth. Well, the fourth turned out to be triplets. lol. I knew them all since birth but haven't seen several in over a decade. Nice day.
Title: Re: An on-going thread
Post by: wolfter on August 10, 2014, 08:51:59 pm
You're too cute honey.  we discuss more in a few minutes than we could ever type.  :)

We might even allow NE peeps to join us. 
Title: Re: An on-going thread
Post by: mitch777 on August 10, 2014, 09:09:14 pm


We might even allow NE peeps to join us.

When does the limo arrive?
Title: Re: An on-going thread
Post by: wolfter on August 10, 2014, 09:36:14 pm
It's always about the girls.  So whenever Mrs Betty says a date is good I'll work my magic and be there with bells on.
Title: Re: An on-going thread
Post by: BT65 on August 11, 2014, 03:41:55 am
It's always about the girls.  So whenever Mrs Betty says a date is good I'll work my magic and be there with bells on.

Aw, thanks Greg.  Let me get through this last week of training, see what my schedule is going to be, and then we can start planning.  Indy would be the best; it would be better, I think, to do this (as you said Greg) before the winter season.  Lord knows what that will bring this year, hopefully not like last year.
Title: Re: An on-going thread
Post by: AlanBama on August 12, 2014, 03:57:14 pm
Betty, you truly are amazing honey.  I don't know how you do it!

I am still managing to work my little part-time job, which is really full time work that I cram into three days.   I find myself becoming more impatient with people, and that's not good.  I have had one lady who CONTINUES to send me Obama "hate emails", and rants, etc, which I usually IGNORE.  Today, however, it just hit me wrong and I let her have it with both barrels.  She sent a sweet apology. 

I agree with you, we LTSers are a strong bunch.  My partner's been given a "pat on the back" diagnosis by a SUBSTITUTE doctor (his own doctor was out of town), of "Chronic Fatigue Syndrome".  I'm paraphrasing, but he basically said "your clinic providers have done extensive testing and research and this is the best answer we can give you for all your debilitating muscle aches and fatigue".   Uhhh...extensive?  the ONLY thing they have done is blood work!  No neurologist referrals...nothing.   I think it is the 'thing' to just shove us LTS "on down the road", get us out the door, and not spend any time on us.   At least, that is how it feels.   

Well, we'll get over this hump and keep on keeping on.   HUGS to all of you

Alan    :D
Title: Re: An on-going thread
Post by: aztecan on August 12, 2014, 11:57:43 pm
Funny you should mention hump, Alan.

My recent doctor visit went pretty benignly. The HIV is well controlled, my lipids are almost OK.

But, the CPKs are still above 600 despite my efforts to do no exercises two weeks prior to having the blood drawn.

Another down side is my hump is growing again. So is at least one of the lumps at the base of my skull.

The doctor checked and confirmed what I feared was happening.

He asked if I wanted another referral for another surgery. I said no, at least, not now.

I doubt I would go through that again even if it does come back as big as ever. It was not a pleasant experience.

If it starts to cause other maladies, then maybe.

I really can't complain. After reading about Miss P and the difficulties he has been having, my hump is basically a vanity issue.

And so it goes.

HUGS,

Mark
Title: Re: An on-going thread
Post by: BT65 on August 13, 2014, 04:57:34 am
Alan, thanks, that means a lot coming from you.  I just do what I have to, and when it seems like my legs won't go anymore (mostly because of my knees lol), I just tell myself to keep going.  Plus Christmas is coming, and I have 3 grandchildren to buy for.  Plus a daughter and various as sundry other relatives, friends. 

I'm so sorry to hear about what your partner is experiencing.  I agree with you, it seems a lot of doctors don't want to deal with us.  I keep thinking that someday the doctors will be wiser about LTS'ers, but by that time we will be gone.  I know my doctor is so very busy, and doesn't think much of what happens.  He is referring me to a neurologist, though, I just don't know when.  When his office makes referrals, it usually means 3-4 months later that you'll be seeing the referred doctor.  But, your  partner should insist on a better explanation if you tihnk something else is going on.  Don't settle for poor care.  I know, easier said than done.

Yesterday we had to demonstrate we could drive the company's vans safely.  One of my co-workers almost killed us lol.  She wasn't aware that in older vans, the brake petal is difficult to get pushed down (you have to push harder), and when she took the corner, the van almost tipped over.  Needless to say, I don't think she passed. 

I'm very, very tired.  I woke up this morning at 2:45 am.  My daughter called at 3, and I just got off the phone with her a few minutes ago. 

The raccoons are gone I believe.  The parents were moved to a far away location, and I believe the babies have relocated.  There was a groundhog, though, under the house so the pest control man put down a trap and apparently it caughter the animal yesterday.  But, it wasn't the type of trap that just catches the animal so the man can relocate it.  It was one that killed him, unfortunately. They are mean, though, and very destructive. 

I hope everyone's doing well.  I would love to go back to sleep, but it's too late now. Which is fine, I'll probably fall asleep in training again lol.  I hope everyone is doing well. 

Betty
Title: Re: An on-going thread
Post by: mrtoad on August 13, 2014, 05:40:26 am
If you need to upgrade from xp etc to windows 7 or 8,try newegg.com . They have sales often under 100 bucks.However by upgrade I mean a whole new os.you'll have to save your documents on cd/dvd or such.There just aren't many 'upgrades' that let you keep all your info anymore.And the ones that are available (if) will be 2x the cost.Most importantly you need a copy of all your "drivers". Just in case windows disk doesn't have them.Audio,video,lan .you can get them from pc manufacturer,such as hp,dell .
Title: Re: An on-going thread
Post by: wolfter on August 13, 2014, 08:34:42 am
Alan, sorry your partner is dealing with this crap.  I shook my head as I recalled a ridiculous diagnosis I rec'd probably 15 years ago.  I was rotating between extreme exhaustion for extended periods to times of unbelievable energy.  "Occasional chronic fatigue syndrome".  I was like WTF!!!  It can't be chronic if it's occasional. 

I've said before, I'm not sure how I survived with that idiot doctor.  Everything was just a result of HIV infection.  (including a ruptured, ulcerated duoduodenal ulcer).

Betty, unfortunately groundhogs are quite dangerous.  Not only in terms of being vicious but the problems they cause around your property.  My grandfather was a mounted posey deputy who raised quarterhorses.  When I was very young, one of the mares was running across the pasture and her leg went into a groundhog hole.  In those days, not many options but to put the poor thing down. 

I've not much cared them since.

I've quit taking the pain pills even though they really helped with sleep.  I think they were having negative affects on my mood.  For the past week or so, I've just felt "off". 

When do we get to see a new and improved smile from MissP ?  After all that work, his smile should pert near be as fabulous as mine.  :)
Title: Re: An on-going thread
Post by: weasel on August 13, 2014, 10:26:54 am



     A quot from Greg  :  "  I've quit taking the pain pills even though they really helped with sleep.  I think they were having negative affects on my mood.  For the past week or so, I've just felt "off".  "

   I have been taking Pain pills after ripping my thigh muscles , my mood
  has been depressed  :(

    The leg is getting better so I have stopped them .
  I take trazadone for sleep , I occasionally go for a few days to see if I can
 sleep naturally  ; it does not work out well , I just get so tired I can't get
 off the couch  :'(

  Alan , My mother suffered from Chronic Fatigue for many years . It was
  sad that nothing was ever able to help her .  Not sure Doctors really know
  what it is .  I do think that is a reason " reds " were so popular  ::)

  Betty , I read most of what you write , I only wish perkiness was contagious :)   


                                                             Carl

 P.S. Bob and I are going to can 15 gallons of Roma tomatoes today  ;D

P.P.S.   Greg we tried one of jars I thought was over Cilantroed , apparently
 cooking in the water bath mellowed the flavors . It is super yummy ! 
Title: Re: An on-going thread
Post by: wolfter on August 13, 2014, 11:22:21 am
You can differently than I do Carl.  I don't do the boiled jar method for salsa.  But I'm glad the taste mellowed.  I can't stomach cilantro, it's way too bitter for my liking.  I bring my salsa to a boil while my jars heat in the over.  I fill the jars, cap em and turn them upside down.  Much easier and they always seal.

Title: Re: An on-going thread
Post by: mitch777 on August 13, 2014, 11:22:57 am
Carl, I know what you mean about attempting to sleep without Trazodone. It turns out to be a night of tossing and turning and the next day becomes a foggy blur. Oh well, another pill. :P

15 gallons of toomaters?!! Wow! Send me some lasagna please. :)
Title: Re: An on-going thread
Post by: wolfter on August 13, 2014, 11:35:40 am
Carl, I know what you mean about attempting to sleep without Trazodone. It turns out to be a night of tossing and turning and the next day becomes a foggy blur. Oh well, another pill. :P

15 gallons of toomaters?!! Wow! Send me some lasagna please. :)

I'm assuming and hoping he means 3, 5 gallon buckets.  :)  15 gallons of prepared tomatoes is a lot.  Mom went down home every season and picked up a truck bed full of maters.  Our family leases all the homestead farm down yonder to a large grower and we can have as many as we want.  I'm thinking it was usually about 10 - 12 5 gallon buckets full. 

Sometimes it grated my nerves to spend so much time canning with her but I'm already saddened by that loss this year. 
Title: Re: An on-going thread
Post by: mrtoad on August 17, 2014, 01:21:08 pm
Did someone say coffee?? where? yes please
Title: Re: An on-going thread
Post by: Miss Philicia on August 17, 2014, 01:48:43 pm
I just picked up two bags of coffee beans on my way back from the Head House Farmer's Market: Costa Rican Jardin de Aromas Finca Quizzara and Honduran Juan Jose Alvarado Finca Buena Vista; both roasted by Dogwood Coffee of Minneapolis via our newly opened, lesbian owned coffee bar Menagerie on S. 3rd St, Old City.

They also gave me a free cortado while I was there.

#majcoffeesnob
Title: Re: An on-going thread
Post by: mrtoad on August 17, 2014, 03:25:11 pm
they should give you a free cortado just for being able to pronounce those coffee names!
Title: Re: An on-going thread
Post by: mitch777 on August 26, 2014, 01:42:23 pm
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.
Title: Re: An on-going thread
Post by: Jeff G on August 26, 2014, 02:06:54 pm
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.

Thanks for thew update ... get some rest now you hear .
Title: Re: An on-going thread
Post by: harleymc on August 27, 2014, 05:51:34 pm
Mitch  if you haven't had a black eye since you were a kid then you must've been living in some very dull hoods.

Good to here you survived your surgical 'street cred'.
Title: Re: An on-going thread
Post by: mitch777 on August 27, 2014, 07:03:34 pm
Mitch  if you haven't had a black eye since you were a kid then you must've been living in some very dull hoods.

Good to here you survived your surgical 'street cred'.

Just a milk toast life. What can I say. Guess I will have to settle with the surgical Cred. Too funny. Glad to see you noticed my trauma and drama.
Title: Re: An on-going thread
Post by: J.R.E. on August 27, 2014, 08:20:50 pm
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.


Hope you're healing well and quickly. !  Ed had this done ( MOHS) a little while back and it took about the same amount of time.  Four times they had to cut on him.



Ray
Title: Re: An on-going thread
Post by: mitch777 on August 27, 2014, 09:02:16 pm

Hope you're healing well and quickly. !  Ed had this done ( MOHS) a little while back and it took about the same amount of time.  Four times they had to cut on him.



Ray

Thanks Ray. Just was kinda surprised at the extent of it this time. I went through this last year or the year before , just in a better area and less carving.This near-the-eye crap. ugh. Im sure all will be well and good in no time. I just like to bitch about petty stuff like this that keeps interfering with my normal struggles. lol.
Title: Re: An on-going thread
Post by: J.R.E. on August 28, 2014, 06:01:18 pm
Thanks Ray. Just was kinda surprised at the extent of it this time. I went through this last year or the year before , just in a better area and less carving.

When Ed had this done, it was on the upper inside portion of his  ear. There's very little in there to scrape and cut ! When he went back about 4-6 days later, they said he was healing too fast, and the doctor, had to scrape and freshly, reopen it again, to slow down the healing process, to help prevent any scarring. He did well though. Can't even notice where it was done, and thankfully, no signs of anything reoccurring.

I was helping in changing the bandages and applying the ointment everyday( As He has done for me many a time),.. after his procedure. The ear can be very tricky in keeping covered and keeping it looking somewhat neat. It can be tough to bandage.  Ed has always had a tendency to reach for and touch or grab his ears, and run his hands over his face, while sleeping, ( he's been like this ever since I met him) so I was always trying to keep an eye on him, when I felt movement in the bed ! I had to grab his hands while he was sleeping and attempting this, in order that the bandages, and gauge not be torn off.  I was a light sleeper for a week and a half  :)

Several months after that procedure, he then had the procedure with that cream and light :

http://www.thewoodruffinstitute.com/our-services/laser-tratments/photodynamic-therapy-blue-light-treatment/


So far he appears to be doing alright after that procedure.  I haven't noticed anything else, going on with my skin, after that basal cell removal from my nose last year.


Lets hope that your dermatological visits will come to an end, or at least become less frequent ! 

So far for me, everything appears alright. I haven't noticed anything new on my skin, and I do keep a close eye on things ! There's just too much history of Keratosis  and Basal cell carcinoma, for me, so at the first signs, I'm making an appointment !


Take care--Ray
Title: Re: An on-going thread
Post by: mitch777 on August 29, 2014, 09:35:36 am
You are such a good husband Ray.  :)

The link was interesting but makes me a bit more nervous about my having so many areas of Keratosis. I knew they were precancerous but didn't realize the link to squamous cell cancer was so high. I've been freeze-zapped about 20 times in the past two years. Ahh... the joys of getting older with fair skin.

Title: Re: An on-going thread
Post by: mitch777 on September 03, 2014, 08:27:59 pm
I'm happy to report that my face is healing fine I think. There are a few weird lumps and bumps that hopefully will smooth out over time. They told me to come back if I had any issues and that they have a lifetime satisfaction guarantee. It took more out of me physically than expected but it looks like smooth sailing going forward. lol.
Title: Re: An on-going thread
Post by: Jeff G on September 03, 2014, 08:34:31 pm
I'm happy to report that my face is healing fine I think. There are a few weird lumps and bumps that hopefully will smooth out over time. They told me to come back if I had any issues and that they have a lifetime satisfaction guarantee. It took more out of me physically than expected but it looks like smooth sailing going forward. lol.

 :) . We need an emoticon with stitches for us LTS .  :o
Title: Re: An on-going thread
Post by: Theyer on September 07, 2014, 04:20:03 am
Been catching up on all off your life,s and its been quite a summer for a lot off us . So Betty David Alan Mitch Ray Jeff Greg Carl Harley MrToad Alan just wanted to say your stories have helped me this morning and I am glad its my dammed foot that's swollen and not my fingers so I can type.

Pain pissing and persistence that's what the last two pages have been about . And I say Good on us and love to you all.
Title: Re: An on-going thread
Post by: AlanBama on September 07, 2014, 01:26:14 pm
Love to you as well!

HUGS, Alan
Title: Re: An on-going thread
Post by: wolfter on September 08, 2014, 07:29:04 am
Michael, so glad you're on the mend.  I've missed interacting with everyone for a few weeks now.

I needed to take a break because I was getting annoyed each time I logged in but also came to realize I'm missing those I care about.  So instead of getting angry at the ignorance, I'll just ignore their sandboxes.  ;)

I had a filling put in last year that managed to fall out when I was flossing the other night.  Made an appointment only to discover that my new beloved dentist has left the practice.  I reluctantly agreed to meet with a new dentist.  Luckily, I absolutely adore the front staff there and they're always super helpful.

After meeting with the new dentist, it was determined that I might need a root canal and I'll find out after my appointment this morning.  A dentist that I've yet to meet is doing the procedure as I explained to the front staff that I don't care for the jackass dentist that looked at me.  He spoke to me like I was an idiot and admonished me to floss regularly. 

I carry floss with me at all times and I sit around flossing all day long.  Almost OCD about it and to have this idiot and his assistant explain the importance of proper dental care raised my BP.  I even take my portable kit with me so I can brush and floss before being seen.

Title: Re: An on-going thread
Post by: J.R.E. on September 09, 2014, 06:21:41 am
 8)

Well,  it's 6:15 am, had a good sleep last night.  I have an appointment this morning with the ID doctor, @ the VA, to discuss labs taken on August 25th.

We have a lot to talk about today, The MRI, and the 10 page nuero report.  Also my percentage has gone done to 11% from 13%. T-cells are at 402. Can't seem to keep these numbers up !


From August 25th,14                                    Range
CELLS.CD3+CD4+    402 Low    cells/uL    490-1740    
                                                                                 Range
   CELLS.CD3+CD4+/100 CELLS    11 Low    %    30-61

                                                                  Range
   LYMPHOCYTES    3711    cells/uL    850-3900

Also on these past test:
                                          Result
HEPATITIS C VIRUS AB    Nonreactive
   
                                           Result                                           
TREPONEMA PALLIDUM AB    NONREACTIVE    

===========================

I didn't get a viral load test in yet, with the other results, but that will probably be ready when I we get there @ 9:00am
========================


Otherwise, feeling a little sluggish lately, and the neuropathy seems to have kicked in over the past month or so. Not painful, just a lot of numbness. I want to discuss that today, along with the possibility of a med change. ( We'll see how that goes  :P )

I wouldn't mind finding out if Truimeq, could be a possible option, or a complete change of meds.


Later----Ray


Title: Re: An on-going thread
Post by: J.R.E. on September 09, 2014, 03:18:43 pm


It was quite the appointment today.

First we discussed the labs, I still don't know what the viral load is, as it hasn't come in yet. I don't like the trend that's taking place with my numbers.  Then I brought up the subject of possibly changing meds, to TRIUMEQ, or another once a day medication. I mentioned the issues of fatigue and the increased numbness in the feet.

I am all for trying something, that I haven't been on yet !

The Doctor will get back in touch with me  in a week or so, after going over everything, so today he ordered some more labs . Also has to take a look at what is in the VA formulary.  After the appt, I went downstairs to the labs, and they took 4 vials.

They are also checking my testosterone, with today's labs.  I will see the results of these blood tests, in a week. or two.

I also received that new Pneumonia shot today, and lastly an appointment is going to be made for me to see a Neurologist. So I should get that appointment soon.

It was a good today !  A lot was covered, and we had some good discussion.

Almost forgot, we discussed the MRI, and the follow up on that. It was mentioned to me that 10 other patients with HIV had similar results as mine on their MRI. So for now it's just wait and see, and follow up MRI's will be scheduled in the future, for comparison. Aging with HIV was part of the discussion today. Ed and I were there, for about an hour today.

The next appointment I have at the VA is Sep 22nd, This is my annual eye exam !


Ray  8)
Title: Re: An on-going thread
Post by: mitch777 on September 09, 2014, 04:34:02 pm
Hey Ray, sounds like a somewhat mixed report. Mostly good. Geez, these appointments never end do they?

I had an MRI today. Not hiv related but hope to get some relief soon from these darned bulging disks in my neck that make my left arm numb and painful on a daily basis. Here I go caterwauling again. lol. First appointment with the pain management clinic is set for next Thursday after my dermatologist and psychiatrist appointments earlier in the week. :P
Title: Re: An on-going thread
Post by: Miss Philicia on September 09, 2014, 05:08:02 pm
Here I go caterwauling again. lol. First appointment with the pain management clinic is set for next Thursday after my dermatologist and psychiatrist appointments earlier in the week. :P

Well golly-gee -- I have a 12-day period coming up where I see a neurologist, therapist, dermatologist, manicurist, dentist, pain management specialist and a psychiatrist.

Oh yeah -- and all done without a car or loving partner. :P
Title: Re: An on-going thread
Post by: Jeff G on September 09, 2014, 05:37:59 pm
Well golly-gee -- I have a 12-day period coming up where I see a neurologist, therapist, dermatologist, manicurist, dentist, pain management specialist and a psychiatrist.

Oh yeah -- and all done without a car or loving partner. :P

Those poor doctors ... seeing you while your on a 12 day period ... very brave men and women .
Title: Re: An on-going thread
Post by: mitch777 on September 09, 2014, 08:36:23 pm
Well golly-gee -- I have a 12-day period coming up where I see a neurologist, therapist, dermatologist, manicurist, dentist, pain management specialist and a psychiatrist.

Oh yeah -- and all done without a car or loving partner. :P

Should I just disappear?
Title: Re: An on-going thread
Post by: J.R.E. on September 10, 2014, 08:49:00 am
Geez, these appointments never end do they?




It sure appears that way. I just received the call from the VA. The neurologist appointment is set for September 22nd @ 9:00 am, Then the eye exam on the same day @ 1:00pm.
Title: Re: An on-going thread
Post by: wolfter on September 11, 2014, 07:28:35 am
Dang, I won't even complain about having 6 appointments in a 2 week span.  :)  I have an appointment with the ortho guy this morning.  I wasn't scheduled for another couple of weeks but I insisted on being seen.

The screw that he put through my knee is protruding so far out that I'm constantly bumping it.  I swear that it looks like it backed out. 
Title: Re: An on-going thread
Post by: BT65 on September 11, 2014, 08:29:24 am
I've had 3 appointments in the last 7 days, due to the pneumonia and bone issues.  I have a sprained right ankle, and strained Achille's tendon.  And let me tell you, that is painful.  However, due to the pneumonia, I have Prednisone for 10 more days, so that does help the pain a lot. 

My return appointment for the pneumonia was yesterday, and the doctor said she hears mostly wheezing now, not congestion.  That is why she continued the Prednisone, and encouraged me to use the inhaler more often (it does not help by the way), and talked to me about quitting smoking (per usual).  She said what she believes it's gone into now is an exacerbation of COPD. 

Bone wise, other than the strain and sprain, I may be trying this Syn Vysc injection in my right knee next week to see if it helps.  It is fluid injected into the joint that is suppose to provide the cushion that the fluid I no longer have, would have done.  If it works, I'll be getting one in the left knee.  I know I need them replaced, but to tell you all the truth, after getting a rod shoved into my hip earlier this year, I am not in a hurry to get another major bone surgery done.

Greg, I hope you're able to get that screw taken care of, ick.  Something should be done about that. 

Mitch, you don't have to disappear.  We all bear our own burden, no matter how light it may seem to some; it is significant to us.  And while I do agree it is tiresome to hear newbs go on and on about having to take one pill, us LTS'ers have all been through hell. 

David, I am sorry you are having so many issues; I hope the pain doctor is able to help you and that your appointment is successful.

By the way, I do not have a loving partner either, and if we had better public transport around here, I would gladly give up the auto.  It would certainly give me a lot of extra money, without having to do maintenance, gas, repairs etc. 

Since I have Prednisone, I am able to do the floors in my house today without being in constant throbbing pain from my ankle and tendon. I do not know if it is a good idea, but hell, I'll take it when I can get it lol.
Title: Re: An on-going thread
Post by: wolfter on September 11, 2014, 12:45:19 pm
I'm just reeling in anger.  It turns out that the surgeon put a screw through my leg that was so long that it protruded by 1/2" on the other ending up in the muscle.  Why does this freakish shit always happen to me!

UGH, I'm ready for a nap.
Title: Re: An on-going thread
Post by: mitch777 on September 11, 2014, 07:14:25 pm
Thanks Betty. I guess I was just getting a bit overly sensitive with my response but it was meant in jest. I know that others, especially other LTS are far worse off than myself. It's not a competition by any means.

I know you, Jeff, David, Greg, Michael.... and the list goes on, have many issues to deal with yourselves. I just took David's comment more personally because he quoted me.

He always seems to have pride in not having to own a car and as far as not having a loving husband... well, I certainly know that living alone can be a bigger challenge. I think it would make for a great topic!

You on the other hand, dearest Betty, need to be spanked. Granny says give your body time to heal. I know you won't listen but I would be remiss if I didn't say it.  :-*

Greg, I was dumbfounded after seeing your X-ray on FB! WTF?!!! I think you should post the pic here for all to see. You would think they would take some sort of measurements before screwing you. Now you are going to get screwed twice! (or was that the plan.)

David, start a thread about the challenges of living single about aging and being a LTS. I think many can relate. 
btw- Having a partner has challenges of it's own. It's not always a bed of roses. Grass greener and all that.  Hope your coming appointments go as smoothly as possible. Even the manicurist.

edited to add: You don't need a car and you demolished your dad's mirror not that long ago. I may need a minute or 2 to figure out my GPS but you are a granny driver. Admit it! lol.



Title: Re: An on-going thread
Post by: wolfter on September 11, 2014, 07:50:45 pm
I went ahead and posted a pic in my injury thread.  :)

I actually think there are more of us aging alone with HIV than have partners.  Either situation has its unique challenges.  Personally, I've still gotten totall accustomed to being solo.  I miss bond.

I think we're also entitled to get a little bitchy sometimes considered all we've endured and will continue to endure.  For the most part, we handle things quite well considering. 
Title: Re: An on-going thread
Post by: Miss Philicia on September 11, 2014, 08:19:14 pm
I just took David's comment more personally because he quoted me.

Don't be a h8tr.
Title: Re: An on-going thread
Post by: J.R.E. on September 11, 2014, 08:29:33 pm

I had an MRI today. Not hiv related but hope to get some relief soon from these darned bulging disks in my neck that make my left arm numb and painful on a daily basis.

Probably too soon, but have you heard anything yet on the MRI ?


Take care---Ray
Title: Re: An on-going thread
Post by: BT65 on September 12, 2014, 08:18:34 am
I think we're also entitled to get a little bitchy sometimes considered all we've endured and will continue to endure.  For the most part, we handle things quite well considering. 

This is so true.  We do handle thinks remarkably well.  I know personally, I can think of times I was much worse off, so I know if I made it through those times, these are a cake walk.  Even if the walk if painful.

M, I know having a partner has its challenges.  Quite frankly, I am happy I am not in a romantic relationship.  I just cannot be worried about making someone else happy, having to report what my activities will be etc.   But I do not spite others who are in relationships.  We are all different and have different personas.  And trust me, if we had a good public transport system here, like David has in Philly, I would ditch the car in a heartbeat.  I'm so tired of pouring money into it, but at the same time I have to have it to get to work, doctors etc.   A definite necessary evil.

Greg, when will you be addressing the screw issue with your doctor?  I saw that pic and cannot believe it.  The first thing that comes to mind is WTF??? 

I'm still in a lot of pain from the sprain and strain.  I suppose that's how it will be for a while.  Yesterday I took the dog for a long walk and I know that aggravated it, but the poor thing needed to get some exercise.  And it made him extremely happy, he kept licking me when we got back indoors.  As I type this, he has his head laid across my lap, and is leaning on me.  So sweet.  He also tried to get into my kitty's food earlier this morning, and my house mate yelled at him lol.

The cough continues, the sinus congestion continues.  But that's to be expected.  It just feels awful. But I guess as long as I continue smoking I should not complain. I have cut down significantly, to under 1/2 pack a day.  If what the doctor said is true, and it is COPD, I will definitely make a plan to quit.  I saw what it did to my dad, and it was not pretty.  So, everyone please keep their fingers crossed that this time I can make it happen.   

Thanks everyone, for keeping this thread going.  It is definitely a big support for me.
Title: Re: An on-going thread
Post by: Jeff G on September 12, 2014, 08:25:11 am
That screw pic gave me the sympathy pain shivers . I could not help but think I know how to fix that and I have the tools to do it ... and that made my sympathy pains worse .
Title: Re: An on-going thread
Post by: wolfter on September 13, 2014, 09:42:40 am
Thanks guys.  I have surgery scheduled for the morning of the 29th.  I'm actually upset that it's taking so long.  I managed to only be a mild smart ass with the surgeon.  When he asked if it was causing pain I simply asked how he'd feel if he had a screw screwed into his muscle.  My fear now is that it's causing permanent damage to that muscle.

Then to top it all off, I'm dealing with that damn tooth issue again.  I had it fixed earlier this year when a tip broke off of one of my molars.  It fell out a couple of weeks ago and they put in another one until my cap is made.  They're capping it on the 22nd instead of trying to repair it again.  Then last night, the 4 day old fix fell out again.  So I'm once again left with a jagged point that hinders my ability to eat.

(http://i940.photobucket.com/albums/ad246/wolfter/Scan_Pic0007_zps551c718f.jpg)
[/quote]
Title: Re: An on-going thread
Post by: Jeff G on September 13, 2014, 09:55:57 am
Best of luck with your surgery Greg . Our LTS forum nursing home is going to need an operating room, no way around it  .
Title: Re: An on-going thread
Post by: wolfter on September 13, 2014, 10:15:43 am
I envision a ward full of bickering old crippled queens.  Me being force fed and others bitching about the food quality.  :)

Anyways, I'm so close to having my master bath room done that I'm gonna go ahead and finish it this morning.  I reglazed the jaccuzi tub and both sinks and replated the old but good quality fixtures.  I took my first bubble bath in months and it was so relaxing with all those jets doing their job.

I'll soon be running out of projects.  thank goodness.
Title: Re: An on-going thread
Post by: weasel on September 13, 2014, 11:55:48 am
I envision a ward full of bickering old crippled queens.  Me being force fed and others bitching about the food quality.  :)

Anyways, I'm so close to having my master bath room done that I'm gonna go ahead and finish it this morning.  I reglazed the jaccuzi tub and both sinks and replated the old but good quality fixtures.  I took my first bubble bath in months and it was so relaxing with all those jets doing their job.

I'll soon be running out of projects.  thank goodness.

      When you are done being screwed  :o
     Please come to my house , I'll pay for gas  :)
     I hope the removal  of the screw goes  as easy as possible . 

                                                                               Carl
Title: Re: An on-going thread
Post by: mitch777 on September 13, 2014, 03:48:48 pm
Probably too soon, but have you heard anything yet on the MRI ?


Not yet Ray. I left with a disk of my discs though. I think I will find out on Friday with the pain management appointment.
Title: Re: An on-going thread
Post by: J.R.E. on September 13, 2014, 08:55:01 pm



...  After the appt, I went downstairs to the labs, and they took 4 vials.

They are also checking my testosterone, with today's labs.  I will see the results of these blood tests, in a week. or two.


Ray  8)



I am starting to get some of the lab results from the blood tests taken this past Tuesday.  So far nothing seems out of wack:


Test Name:    ERYTHROCYTE SEDIMENTATION RATE
Result:    6
Units:    mm/hr
Reference Range:    
Lab Test:    Sedimentation Rate
Ordering Provider:    
Ordering Location:    CW BILL YOUNG VAMC
Performing Location:    CW BILL YOUNG VAMC 10000 BAY PINES BLVD , ST PETERSBURG, FL 33744-8298
Status:    Final
Interpretation:    

REFERENCE RANGE:
<50 yrs: Male <15mm/hr; Female <20mm/hr
>50 yrs: Male <20mm/hr; Female <30mm/hr

====================================


                                                   RANGE
COBALAMINS    418    pg/ml    190-1200    

                                                   RANGE
FOLATE    9.55    ng/ml             5.9-24.8    
                                                                       RANGE
TESTOSTERONE    288.25    ng/dL    270-1070    Details




EDITED: Still don't have the viral load from8/25/14

Ray  8) So far good news !
Title: Re: An on-going thread
Post by: mitch777 on September 13, 2014, 09:00:43 pm
looking good Ray even though I don't have any clue what most of that means.  :)
Title: Re: An on-going thread
Post by: J.R.E. on September 13, 2014, 09:03:26 pm
looking good Ray even though I don't have any clue what most of that means.  :)

That's all right, I had to do some googling, to find out myslf  ;)


Ray
Title: Re: An on-going thread
Post by: AlanBama on September 14, 2014, 02:27:37 pm
Greg, that X-Ray is painful to look at!  Damn.  I know what you mean about weird shit always happening; I have some weird things too.  I think we are all doing remarkably well, for being LTSers.  I'm so aggravated with my doctor right now, I could slap the dog piss out of her ... making me come in so she can look at my painful lymph node (again) before giving me a referral to an ENT doctor.  The goal seems to be to string us along for months on end, for every issue we have.  One day, I swear I'm going to blow up and tell the whole clinic EXACTLY what I think of them.

Best of luck with that dam screw !

HUGS, Alan
Title: Re: An on-going thread
Post by: mitch777 on September 14, 2014, 04:23:32 pm
  I'm so aggravated with my doctor right now, I could slap the dog piss out of her ...

Alan,
Your doctor drinks dog piss? Somethings not quite right there.  :)
Title: Re: An on-going thread
Post by: wolfter on September 15, 2014, 08:05:18 am
I'm feeling a little better today after speaking with Mitchypoo last night.  I was harboring anger at myself.  As much as I implore people to be their own advocates and not accept inadequate care, I allowed it to happen in this case.

I should have told the receptionist 3 weeks ago to bug off and put me in contact with the surgeon.  By my 3rd phone call, was finally given an appointment a week later.  In hindsight, I should have simply went to that damn office and loudy explained in front of all the other patients what was going on.

I did manage to fix an issue I had with the new place yesterday.  I had section of floor that was sagging in the master bedroom.  managed to crawl underneath to determine the cause.  Cutting out the insulation was the worst part....yuck, I hate even touching it.

I found that a floor joist was sagging.  I was able to jack it up and sister another joist securely to it.  I have a feeling it was like that from the day it was built.  Since it previously had carpeting, it wasn't noticable.  Since I'm getting ready to put in laminate, I was afraid it would be super noticable.  After I got the floor joist leveled, I discovered I had to rehang the double doors that lead to the bedroom.  OH the joys of home ownership.
Title: Re: An on-going thread
Post by: BT65 on September 15, 2014, 08:08:24 am
The plot thickens...besides having a sprained right ankle and strained right Achille's, I have a compression fracture in my foot.  I swear, I can just look at my bones, and one of them will break. 

Thanks to my breathing issues, I still have a couple days of Prednisone left, so that will help the pain.  I have to work tomorrow, after working this weekend.  Kind of tired today, but have to go to the ASO at 3 this afternoon.

I'm just so over all this.
Title: Re: An on-going thread
Post by: wolfter on September 15, 2014, 08:15:49 am
So sorry Betty, I truly feel for you and know exactly how you feel.  I kinda worry that my bones will be in powder form if I make it to 60...lol

hugs
greg
Title: Re: An on-going thread
Post by: Jeff G on September 15, 2014, 09:00:53 am
The plot thickens...besides having a sprained right ankle and strained right Achille's, I have a compression fracture in my foot.  I swear, I can just look at my bones, and one of them will break. 

Thanks to my breathing issues, I still have a couple days of Prednisone left, so that will help the pain.  I have to work tomorrow, after working this weekend.  Kind of tired today, but have to go to the ASO at 3 this afternoon.

I'm just so over all this.

Im so sorry Betty ... I can only imagine how you are feeling right with all this going on . You take care and let me know if you need anything . Love you !
Title: Re: An on-going thread
Post by: J.R.E. on September 15, 2014, 10:54:11 am
Thanks guys.  I have surgery scheduled for the morning of the 29th. 


Greg,..

Good luck with the surgery on the 29th. Every time I see the xray, I think of on ice pic going into my leg.

Is the same surgeon, that used the wrong size screw doing this surgery?  I hope it's a freebie !

Gives new meaning to the expression " Get Screwed "   :o



Good luck to you and hopefully this will be the end of it !



Ray
Title: Re: An on-going thread
Post by: mitch777 on September 15, 2014, 06:38:45 pm
Oh, Betty! Hope your plot thins out soon. :-* :-*
Title: Re: An on-going thread
Post by: BT65 on September 15, 2014, 08:15:01 pm
So sorry Betty, I truly feel for you and know exactly how you feel.  I kinda worry that my bones will be in powder form if I make it to 60...lol

hugs
greg

Thanks Greg.  I'm sorry for your situation as well.  I still can't get that picture out of my mind, with that screw in your bone.  Eesh.

Im so sorry Betty ... I can only imagine how you are feeling right with all this going on . You take care and let me know if you need anything . Love you !

Thanks Jeff, love you too.  I keep wanting to call, but then it always gets too late.  Time is just getting away from me anymore it seems.  But, we will have to catch up definitely.  I miss talking to you!

Oh, Betty! Hope your plot thins out soon. :-* :-*

Thanks M!  I hope so too.  It should.

We all need to watch our bones.  I think we're all getting a little thin lol. 
Title: Re: An on-going thread
Post by: wolfter on September 16, 2014, 11:28:07 am

Greg,..

Good luck with the surgery on the 29th. Every time I see the xray, I think of on ice pic going into my leg.

Is the same surgeon, that used the wrong size screw doing this surgery?  I hope it's a freebie !

Gives new meaning to the expression " Get Screwed "   :o



Good luck to you and hopefully this will be the end of it !



Ray

I considered consulting another surgeon but was worried that they might not want to be involved with a situation where there is possible litigation.  And the time factor as it would take much longer to schedule it with another surgeon.

I'm still quite upset with the entire situation and for the first time ever, I'm wondering is litigation isn't the proper avenue.  Not for the monetary aspect, but to have it fully explained to my satisfaction.  This just seems negligent beyond all realms of standard protocols.  It seems that not only the surgeon "screwed" up but the hospital also.  Wouldn't post surgery xrays be standard?
Title: Re: An on-going thread
Post by: weasel on September 16, 2014, 03:08:45 pm
I considered consulting another surgeon but was worried that they might not want to be involved with a situation where there is possible litigation.  And the time factor as it would take much longer to schedule it with another surgeon.

I'm still quite upset with the entire situation and for the first time ever, I'm wondering is litigation isn't the proper avenue.  Not for the monetary aspect, but to have it fully explained to my satisfaction.  This just seems negligent beyond all realms of standard protocols.  It seems that not only the surgeon "screwed" up but the hospital also.  Wouldn't post surgery xrays be standard?

    When Bob crushed his right leg and foot last Autumn , the first thing after surgery   was a conciliation
    with the surgeon that did the placement of metal bars and rods with screws . He had X-Rays in hand !
   Every followup  was with X-rays .

    Hoping all goes well Greg  :-*

                                                                             Carl   
Title: Re: An on-going thread
Post by: wolfter on September 16, 2014, 05:32:52 pm
Rec'd the call that I in fact have to go through the pre surgery testing bullshit again.  7:30 in the morning for god's sake.  That means navigating through the city during rush hour. 

I will absolutely refuse to have another EKG this soon just so they can feel better about the procedure.  It has been over 5 years since my last heart attack and haven't had any further issues after having the stents put in. 
Title: Re: An on-going thread
Post by: J.R.E. on September 17, 2014, 04:44:06 pm


I am starting to get some of the lab results from the blood tests taken this past Tuesday.  So far nothing seems out of wack:


Received more results today, as usual I had to google !  :P


  TEST                RESULT              RANGE
NUCLEAR AB    NEGATIVE       NEGATIVE

NUCLEAR AB    SEE NOTE      titer    

   
NUCLEAR AB    PATTERN           SEE NOTE    


UNDER THE FIRST NUCLEAR AB NOTE, THIS IS ALL IT SAYS:

Test Performed at:
Quest Diagnostics Nichols Institute
33608 Ortega Highway
San Juan Capistrano, CA  92675-2042      MD, PhD
ANA Pattern
TNP-Reflex testing not required.
ANA Titer
TNP-Reflex testing not required.
Reference Ranges for Anti-Nuclear Ab Titer:
<1:40      Negative
1:40-1:80  Low Antibody Level
>1:80      Elevated Antibody Level
Test Performed at:
Quest Diagnostics Nichols Institute
33608 Ortega Highway
San Juan Capistrano, CA  92675-2042    
=========================

UNDER THE NUCLEAR AB PATTERN (NOTE)Test Performed at: This is the same as above
Quest Diagnostics Nichols Institute
33608 Ortega Highway
San Juan Capistrano, CA  92675-2042     J M Nakamoto MD, PhD
ANA Pattern
TNP-Reflex testing not required.
ANA Titer
TNP-Reflex testing not required.
Reference Ranges for Anti-Nuclear Ab Titer:
<1:40      Negative
1:40-1:80  Low Antibody Level
>1:80      Elevated Antibody Level
Test Performed at:
Quest Diagnostics Nichols Institute
33608 Ortega Highway
San Juan Capistrano, CA  92675-2042



Ray
Title: Re: An on-going thread
Post by: BT65 on September 18, 2014, 06:07:52 am
Greg, I hope your pre-surgery stuff went smoothly.

So, another twist.  Yesterday morning, my right ankle was so swollen, I couldn't put on any other type of shoe other than my Crocs.  So, I went to a walk in clinic, and had several x-rays done.  Guess what!  I have a fractured fibula, and a lesion on my ankle.  This is all from stepping down too hard with my right foot.  This info I got on it, did say that a fractured fibula is usually associated with an ankle injury.  So, I dropped the x-ray disc off at my ortho's office yesterday and will await his call.  The doctor at the clinic did give me an "air cast" and told me to wear it for at least six weeks. 

So, I thought I may have broken a bone in my foot or ankle, but it turns out it's in my leg lol.  I swear, my bones are turning to dust. 

This afternoon I have to work, tomorrow night I have to work, and Saturday I'm working 7 am to 8 pm at my other job.  Fun, fun! 
Title: Re: An on-going thread
Post by: wolfter on September 18, 2014, 06:41:05 am
Damn Betty, it never ends does it.  It just doesn't seem right that the most simple things can cause injuries like these.  Have you had any further testing to see is your osteo meds are working? 

I still have 11 days until surgery but was cleared with the pretesting.  I had another issue with his office yesterday but am in a happy place and don't want to ruin my mojo :)

@ Ray, what are all those those for and what do the results mean?  Hopefully, everything if acceptable.
Title: Re: An on-going thread
Post by: wolfter on September 18, 2014, 07:06:30 am
This thread has mostly been gloom and doom but I'm experiencing some very positive things of late.

I shared in another thread where I had to make a difficult decision a LONG time ago.  I had 2 incredible men in my life and would have been content to have and keep both.  Just seemed so unfair to have such deep feelings for 2 people at the same time.  Whatever decision I made was going to hurt 2 of the 3 of us.

So Greg (yes another one) was the one who ended up hurt.  And hurt badly.  I understood why he had to eliminate me from his life.  I continually thought about him even though we both had mates.  The few times we encountered each other, it was very cold and my heart ached over it.

I reached out to him a few years back and was again ignored.  I finally accepted that it was a choice I made and my responsibility to live with.  Early this week, I logged in to FB and saw a message from him.  A total whirlwind of emotions.

We continued to communicate and made a date last night.  He is recently out of a long term relationship and I worried about that.  Rebounds can be tricky.  I discussed that with him and he assured me that the relationship had been over for years and it was time.  He also expressed how he also continually thought about me.

We made plans for dinner last night and I was like a prom queen waiting for her date to show up.  Nervous as hell.  We met at my house and it was like immediately 20+ years ago.  Within short order, it was like we picked right up where we left off.  We went and enjoyed dinner and returned to my place.

We sipped wine throughout the evening having the most incredible heart felt conversations that just flowed so naturally.  He still retains his Robby Benson looks and the charm that would weaken the strongest man.  As he was leaving this morning, he so cutely asked me if I plan on breaking his heart again.  :)

Sorry this is so long, I'm just so happy for the first time in a long time.  We LTS don't often get opportunities to experience the types of happiness we held in our youths.  Of course I stood on the stoop smiling at him driving away.  The main difference now is that he was leaving in a Mercury Marquis instead of a Pontiac Fiero.  lol  We've become our dads?
Title: Re: An on-going thread
Post by: BT65 on September 18, 2014, 08:04:21 am
Congrats Greg!  I think it's cool you're getting another chance with this guy. You're right, we don't often get to experience the same type of "thrilling" feeling we had in younger years.  So, you got to grab it.

The thread has been kind of gloomy, but then again, that's a reason the thread was developed I believe, for us LTS'ers to be able to talk about not only what makes us happy, but also things that are bothering us, health issues, etc, instead of posting in living with and scaring the hell out of newbs, or being accused of ganging up on people.   I grew tired of reading that. 

I believe when I moved, I mentioned the kitty that lives under the porch outside.  He is expecting me to come feed him in a minute.  It's getting pretty cool out, with the temp only being 43F at the present moment.   There is like a manger outside for him, complete with hay in it.  Which I know will help keep him a bit warm.  There is also a cat door that was built into the garage for him.  He's a beauty, all black, fluffy.  Very jumpy.  He's now letting me get within about 2 inches from him, while I'm feeding him.  But, if I offer my hand, he starts to back up.  Maybe someday he'll let me pet him. 

That's my feel good story this morning-the appreciative look that kitty gives me when I feed him and give him fresh water.  Priceless.
Title: Re: An on-going thread
Post by: wolfter on September 18, 2014, 08:15:57 am
I'm not much of a cat person, but I have compassion for all animals.  I've had to start chasing them away from my property.  I have a group of squirrels that I absolutely love watching.  I have a huge oak tree in my front yard and they frolic every morning.  I have the benefit of observing this out my bedroom window.

Not long ago, one of these wild cats caught a squirrel and I managed to run outside in time to save it.  The cat ran off and my little rodent friend ran up the tree.  When I went and sat back down at my computer in front of the window, the little thing stood on its hind legs on a branch staring down at me for the longest time. 

Unfortunatley, Ohio's laws don't allow for any recourse even when an area is absolutely over run with cats.  No joke, I can look out the back window and see 40 - 50 in the crazy cat lady's yard on the next street over.  She puts out an entire bag of food every day and they cling to her area yet venture constantly into my yard.
Title: Re: An on-going thread
Post by: Jeff G on September 18, 2014, 08:18:00 am
Betty and Greg ... what can I say, sorry you are so breakable ? You guys and Henry have had it so rough this last year it kind of puts all my struggles perspective . Lets hope for better health from here on out .
Title: Re: An on-going thread
Post by: wolfter on September 18, 2014, 08:21:30 am
Betty and Greg ... what can I say, sorry you are so breakable ? You guys and Henry have had it so rough this last year it kind of puts all my struggles perspective . Lets hope for better health from here on out .

We might have broken bones, but not broken spirits.  :)  Not yet at least.  I have a regular doctor's visit today and will find out if I need a dexascan to see if the Boniva is starting to finally work.
Title: Re: An on-going thread
Post by: Miss Philicia on September 18, 2014, 08:24:13 am
Just catching up here -- sorry to hear about your foot, Betty. Please feel better soon.
Title: Re: An on-going thread
Post by: AlanBama on September 18, 2014, 02:15:44 pm
Betty:  My God, what next?  Honey, those fragile bones of yours worry me....and I know it does no good to worry....but can't help it.

Greg:  What a sweet "re-union" date story!  I am so happy for you.  Wouldn't it be FANTASTIC if all of us could take a 'vacation' from our various ailments?  Just leave them behind for about two weeks.....meds too!  I know it can't happen, but it is kinda nice to dream about it.

Ray:  so what do all those results mean?  Please explain it to us, say on a 4th grade level, like the Republicans; or maybe an 8th grade level, like the Democrats... ;D
Title: Re: An on-going thread
Post by: J.R.E. on September 18, 2014, 02:44:18 pm


Ray:  so what do all those results mean?  Please explain it to us, say on a 4th grade level, like the Republicans; or maybe an 8th grade level, like the Democrats... ;D

Hi Alan,

LOL !  I think it's better, if I just direct to a link.  The doctor ordered these tests from post #357 and 372, because of the neurologist appointment I have this coming Monday.

 I think those blood test are required prior to seeing him. When I visited with the doctor on 9/9/14, I was complaining about an increase in fatigue and an increase in the neuropathy, over the past 2 months, in the hands, forearms, and feet.  I am getting that sensation of  heavy, thick rubber bands, squeezing my ankles.  I haven't experienced that since 2004. Also noticing restless legs at nighttime.

As far as the results of these test, I don't think I have anything to be concerned about at this time.

The ERYTHROCYTE SEDIMENTATION RATE is explained here:

http://www.mayoclinic.org/tests-procedures/sed-rate/basics/definition/prc-20013502

"Sed rate, or erythrocyte sedimentation rate (ESR), is a blood test that can reveal inflammatory activity in your body. A sed rate test isn't a stand-alone diagnostic tool, but it may help your doctor diagnose or monitor the progress of an inflammatory disease."


The ANA test ( Antinuclear antibody) Is explained here .  I also seen ANA on one of the vials drawn:

http://labtestsonline.org/understanding/analytes/ana/tab/test/

The antinuclear antibody (ANA) test is used as a primary test to help evaluate a person for autoimmune disorders that affect many tissues and organs throughout the body (systemic) and is most often used as one of the tests to help diagnose systemic lupus erythematosus (SLE).



Ray

Title: Re: An on-going thread
Post by: mitch777 on September 18, 2014, 05:51:06 pm
Betty, I don't even know what to say. I can't keep track any longer of which bone is the latest to break and here you are posting your work schedule. Wow! What a spirit you have! On the topic of your black beauty cat... I'm almost willing to place a bet that he will become an indoor cat this winter. You might say no now. lol.

Greg, I'm so happy for you! I know it's early but who knows? The mating dance was fun from what I can remember. :) ???

Jeff, I noticed you avoided the cat subject. Good move. Tee he.

Ray, I'm too darned tired to do research on your labs but I'm glad you are not worried. That's good for me!  8)

This thread? I agree with Betty. A good safe place to say whatever is going on. I honestly didn't know what direction it would take in the beginning but it seems like our own coffee clutch. Warm and fuzzy.

So.... my minor update is my headaches have been rather crappy lately. I would have hoped that after 3 1/2 years they would have exited my body by now for fear of their lives, but no.

Headed out tomorrow to my first visit with the pain management people in regards to my nerve issue in my left arm. A new neurologist appointment next week to get the results of my MRI. Seems a bit backwards but I'm just squeezing these in when possible. lol.

Not to go on endlessly but... headed next week to see the doc that did my root canal a year ago for a followup. The new dentist I saw this summer could see that the root wasn't completely removed. I'm just keeping my fingers crossed that no more needs to be done as my jaw has only recovered from all of last years dental work recently.

Still feeling pretty good and lucky after reading what the rest of the clutch are going through.

Hugs.
m.
Title: Re: An on-going thread
Post by: wolfter on September 18, 2014, 08:26:34 pm
My doctor went ahead and ordered another dexa scan simply for comparison purposes.  He readily admits he has little knowledge with this issue.  It has only recently  hit the radar of something we're starting to deal with at an earlier age.

He is also referring me to a doctor at OSU hospital.  EEK, FREAKING EEK.  The absolute most trying aspect of driving in Columbus.  I'll "google" her to see what I can learn about her credentials.  Becky Jackson is an expert in the field and he wants her to see me. 

He was also quite upset when I showed him the xrays and explained the entire knee/surgery situation.  Not only that they "screwed" me up but that he wasn't given any copies of my records.  Since he also acts as my PCP, he wants all records. 

So anyways, more referrals and a possible heart attack from driving the campus area.  I think my biggest fear is loosing my vehicle.  Those who have navigated with me in large cities totally understand this.  :)
Title: Re: An on-going thread
Post by: BT65 on September 19, 2014, 05:59:00 am
Greg, I'm going to be watching to see what the results of your Dexa scan are, whenever you get them.  I'd like to know if those meds really do work.  I'm still waiting for the ultrasound on my parathyroid, so I can start the osteo med. 

M, that sucks about the headaches.  Have you tried Imitrex? (sp?)  I believe that's the name of it, a med for migraines.  My sister in Arizona gets terrible migraines to where she vomits for like a whole day.  I used to get them, they're horrible.  Maybe if you get some treatment from the pain doctor for your arm, it will also help your head.   I don't really know if I have "spirit," but I do know if I don't work, I don't get paid lol.

And in all reality, I really don't "have" to work.  But, Christmas is coming and I have 3 grandkids to buy for, plus a daughter, and countless relatives and friends (who will mostly get baked goods and a little something).  In the last couple years, I bought all these small bread pans, and bake holiday breads in these, wrap them in colorful cellophane and give them away, along with cookies and fudge.

My leg/ankle/foot is burning and throbbing, but that's to be expected.  Yesterday I did the grocery shopping, then carried it all in. It involved two cases of water, a few 12 packs of soda and several bags.  So today, prior to going to work, I'm going to try to keep my foot up as much as I can. 

My ortho doctor basically said the same thing the doctor at the walk in clinic said...wear the air cast until I see him in a couple weeks, stay off as much as possible, and he's going to x-ray again when I go in, to make sure it's healing.  That's about it right now.  I hope everyone is tolerating life.
Title: Re: An on-going thread
Post by: wolfter on September 19, 2014, 08:45:12 am
Hey Mark, we all suffer our own woes but I don't know how you handle the mirgraines.  I've been fortunate to only deal with that issue during the AIDS periods.  I had them so horribly during the meningitis era that I litterally begged for death.  I had my mother put blankets over my curtains to totally darken my room.  Every single stimuli was like a dagger being jabbed into my skull.  I couldn't have the tv or stereo on and even hearing noises from the front rooms hurt like hell.

I just wish they could determine the cause and offer a course of treatment to put you at ease. 

Betty, my doctor and his staff are pretty quick about getting things in motion so I imagine I'll have it this coming week.  IIRC, they handed me the results after the test so hopefully I can compare them to my last one.  I'm actually excited about seeing a specialist that deal with osteo issues. 

I love the "stay off of it as much as possible" comments.  Can they quantify that?  Does that mean we should stop working, doing housework, shopping...etc. 

Oh the Christmas thing, I feel for ya.  Fortunately, I immediate family decided years ago to stop that ridiculous tradition.  We don't exchange gifts just because it's a certain day.  We are very generous to each other and routinely buy things throughout the year if we think others will appreciate or can use them. 

I'm still just beyond blissful today.  Things are progressing quickly and nicely in the love life area.  I was so worried about being too forward and moving too quickly.  He was always much more reserved than I am.  Well hell, he has developed into a very assertive person who quickly says what's on his mind.  So far, we've not gone more than a few hours with sending cute little texts.  I've finally learned how to text....whoot!

Title: Re: An on-going thread
Post by: mitch777 on September 19, 2014, 04:53:21 pm
Greg, I think that's a good idea that you will be seeing a specialist. Sorry about the drive needed. I feel the same way about driving to Yale. Traffic can be a bear.

Betty, Throbbing after carrying in all of that? Whatever happened to the days with delivery boys? Oh, actually the major grocery chain here does have home delivery service. I think the extra charge is very minimal. I wonder if you might have that option when you need to stock up on the heavy stuff.

As far as my headaches are concerned... yes they are daily but very few would qualify as migraines. The ratio is about 25% minor, 50% moderate, and 25% severe.
I haven't tried Imitrex but I have tried many other meds as well as acupuncture, chiropractic adjustments, and physical therapy. I am currently on a very low dose of an antidepressant that knocked them down in general about 20% but lately there was an uptick in pain level. I've just learned to live with it but I am hoping the pain management treatments might be of help as my neurologist seems to think they might stem from the same bulging disks in my neck that are giving me issues with my arm. Maybe it will be a two-fer fix?

So... I saw the people at the pain clinic today and have three appointments lined up two weeks apart in October to get steroid injections in my neck. It's going to be a hassle as they need to do it in the operating room and have to put in an IV and put me under each time. :P Possible complications: infection, bleeding around the spinal fluid column, and paralysis. This better work! lol.
Title: Re: An on-going thread
Post by: leatherman on September 19, 2014, 06:38:12 pm
I think my biggest fear is loosing my vehicle.
Jim and I "lost" his silver Honda (do you know how many silver 4-door Hondas there are in the world?!?!) for 45-minutes in the parking lot at Cedar Point one year. (his car didn't have automatic locks, so we couldn't even toggle the alarm to try to find it) So I learned to always take of picture of where I parked.  ;) Just make sure to include some landmarks in the photo and not just the car. (you should know what your car looks like. LOL) Then if you can't find the car, you can try to match the picture or use the picture to get others to help you find your car ;)
Title: Re: An on-going thread
Post by: wolfter on September 20, 2014, 05:45:32 am
The last time I used landmarks as a way of navigating was in DC.  I used an ugly sculpture as a way of knowing where the hotel was.  Didn't realize at the time that those ugly sculptures were everywhere.  :)

And as you know Mikey, I need someone to properly get me headed to the airport.  Miss Keneisha used his handy dandy phone thingy and walked me to the L where I promptly was sent in the wrong direction.  :)  And he doesn't even have this virus...lol

Luckily, some old lady on the L said; "oh honey, you're heading the wrong way and will never make it to the airport in time".  Well I did, barely.
Title: Re: An on-going thread
Post by: mitch777 on September 20, 2014, 06:25:33 pm
Miss Keneisha used his handy dandy phone thingy and walked me to the L where I promptly was sent in the wrong direction.  :)  And he doesn't even have this virus...lol

Luckily, some old lady on the L said; "oh honey, you're heading the wrong way and will never make it to the airport in time".  Well I did, barely.

Miss Kenny has NO sense of direction. You witnessed it the day before getting to the lake and still trusted her. lol. Silly gurl.
Title: Re: An on-going thread
Post by: wolfter on September 20, 2014, 09:46:42 pm
Miss Kenny has NO sense of direction. You witnessed it the day before getting to the lake and still trusted her. lol. Silly gurl.

True dat.  lol  we were probably the only tourists standing with our backs to the largest lake in the region wondering where it was. 

We only found it by shopping and exiting the wrong door.  lmao
Title: Re: An on-going thread
Post by: wolfter on September 24, 2014, 08:35:00 am
I rec'd a call from my dr's nurse questioning my medication list that they have on file.  I hadn't listed vitamin D and calcium as supplements.  OOPS, I started on them immediately after my first dexascan but discontinued them after test results revealed my levels were normal.

I really shouldn't assume things. :o  Turns out that those are recommended supplements to the Boniva to allow your body to better absorb it.

My sister-in-law is a pharmacy tech so I called and asked her to find a supplement that contained both (didn't want to add 2 more pills to the mix) and drop them off at my house. 

Her and my brother stopped by on their way to league play and enjoyed a couple of refreshments.  I could tell my brother had something on his mind.  When his liquid courage kicked in, the discussion moved to Greg.  Which is kinda surreal as we never used to to discuss anything "gay".

He is concerned we're moving too quickly.  To which I laughed, 25 years in the making is not moving too quickly.  Greg and I have been enjoying the most open and honest communication that is so totally new for me.  Of course he wanted answers for my decisions from a long time ago.

Had I not tested positive, I'm absolutely certain we would have ended up an old married couple.  We obviously didn't know much about this virus back then.  He truly accepted my status and said we could work through it and stay together.  But sex was a stressful event back then.  My greatest fear and worry was his safety.  I guess I loved him so much that I couldn't imagine ever infecting him.

We also had an honest discussion about my current health.  He assumed I was currently dealing with some health crisis.  When I questioned him why, he said I kinda look sickly.  I guess my struggle to stay thin doesn't look as attractive as when I was young.  :)  So I've agreed to gain a "few" pounds. 

Title: Re: An on-going thread
Post by: BT65 on September 24, 2014, 04:13:27 pm
OK, I had a nice, long reply typed out, then I hit something on my laptop and it vanished.  Lord....  Greg, I'm so glad you have such a good relationship.  I hope it continues to grow and just gets better!

I'm still gimping along, with my air cast and compression sock.  I have to wear them for at least another 3 months.  The bone doctor will be getting x-rays in about a week and 1/2.  To see how it's healing. Who[ would have known a broken bone, sprained ankle, and pulled Achille's tendon would cause so much hassle?  I'll be so glad when they heal. I can't even tell you how tired of all this I am.

Meanwhile, still doing the two jobs.  The women's support group is kind of getting to me, but mostly because of the constant needs of one of the African ladies.  She needs dire help financially, food wise (which I usually get taken care of), emotional needs, etc.  Not that I mind, it's just that I can only juggle so many balls. 

Still doing the group home.  I worked yesterday, will work there again Friday, then Saturday 7am-8pm.  That is such a rough shift, but oh well.  Christmas is coming and I have grandkids.

I hope everyone else has been doing well.  Anyone?
Title: Re: An on-going thread
Post by: wolfter on September 26, 2014, 08:26:22 am
Betty, that seems like an awful lot to deal with.  Certainly hope you get some relief soon.

And Greg and I are in such an awesome place now.  When the 3 Gregs ran together, we often had people who didn't believe us.  :)  It was strange but cute that we all had the same name.

I just have to be careful and not constantly bore people with my bliss.  ;)  I don't recall ever being so excited and content since my diagnosis.  I never dreamt that I could possibly find love and happiness at my age.  And then to have it happen with someone that I've always loved is beyond my wildest expectations and hopes.

I'll be receiving the call today indicating what time my surgery is on Monday.  I played a little trickery so that I'll have my desired home care.  I've become so accustomed to solo recovering but it will be nice to have someone pamper me and tend to all my NEEDS.   lol
Title: Re: An on-going thread
Post by: BT65 on September 26, 2014, 08:51:20 am
Greg, it is a lot to deal with.  And now, I'm having these stabbing, sharp pains in the lower part of my leg, where the break in the fibula is.  Probably due to not staying off of it.  Who knew you should stay off a broken leg lol? 
 
It is funny that you and your guy has the same name.  When I was reading your previous post, you were talking about your brother saying it was moving too fast.  Well, in the sentence before, you mentioned how the "conversation turned to Greg." I thought you were talking about yourself, and when you said that about your brother, I thought "is this something incestuous?"  Lol.  Then I realized who you were talking about.

I'm glad you've reconnected with this guy and are happy.  Nothing wrong with that, nothing wrong with telling us about it.  I hope things continue to blossom!

As far as your surgery, ick.  But I'm glad it's going to get fixed.  And good for you for getting home care!  How long will that continue?  I would definitely take full advantage of that. 

I feel exhausted.  Ever since this injury has been getting worse, I've felt so tired and have been sleeping a lot.  Not quite sure why this is, or if there is any connection between the injury and being so tired.  Have to work today from 4-9.  It shouldn't be too difficult, well, hopefully not.  The only thing about Friday's is that the other two people I work with don't like to do much work.  I always end up doing almost everything.  That may change tonight, though, and I may pull what they do, and sit and watch them do everything lol.  No, I wouldn't do that.  But, I'm not going to do as much as I normally do.  Especially if I'm stil getting these stabbing pains.

Monday I'm supposed to be getting a Syn Vysc injection in my right knee.  A friend of mine got one and he said he doesn't have near the pain he used to.  So, fingers crossed on that. 
Title: Re: An on-going thread
Post by: mitch777 on September 27, 2014, 01:31:35 pm
Greg, It's nice to hear that you are so happy. Good news is always welcome! Best wishes on your upcoming surgery. (I think I must have said that to you a few other times and I hope this will be the last!) Be sure to get an X-ray pronto! I hope nurse Greg has good bedside manners. ;)

Betty, Hmmm... you really do need to be tethered to a chair. You are beyond bubble wrap. Working a 13 hour shift with a pulled tendon, sprained ankle, and a broken leg seems reasonable...NOT. I think your body is telling you something and I imagine it sounds a bit like "slow down, I need some rest!" or "knock it off!".  :) I can't remember and I'm too lazy to reread through these posts but are all of these injuries on the same foot/leg?

Anyway, I'm sorry to hear about your fatigue and pain. Hoping for good results from your next set of X-rays and wishing you good luck with your upcoming injection. :)

Speaking of injections, I'm scheduled for my first one on Wednesday. First of 3 every other week. I saw my neurologist on Thursday to get the results of my MRI and it showed significant progression of my bulging disks. Boo. It's sounds likely that I might be needing to get this done on a somewhat regular basis, maybe every 6 months to a year. We will see. *sigh*

Wish I had more uplifting news but I've been stressed and depressed. At least my disability hearing will be over with soon. One major hurdle out of the way hopefully. Then onto the joys of closing the business, selling most of my possessions, and relocating in the next two years and finding all new doctors. So much fun! Not sure if Kenny is willing to go on the ride.  :-\
Title: Re: An on-going thread
Post by: leatherman on September 27, 2014, 10:05:57 pm
Then onto the joys of closing the business, selling most of my possessions, and relocating in the next two years and finding all new doctors. So much fun!
Been there, done that, and wish it had been fun. ugh! closed the pet store; buried the 2 partners; gave away most of "our" belongings to all our friends because I had to fit everything into that small uhaul truck; moved to SC and a new doctor.

I would suggest though to find the doctor before the relocation. Make sure you'll get resources, assistance, and doctors in the area before moving there. You wouldn't believe how different things are from state to state. oh! and don't move to the Southern states - HIV and health care access are big problems down here.

Best wishes! ;D
Title: Re: An on-going thread
Post by: harleymc on September 27, 2014, 10:49:40 pm
Hey Mitch,
if you're thinking of relocating, give your new location a test run. 

A visit to an area or memories of an area from years ago, may be very differnt to how things are now.

So a short term rental, a month, extended out to 3 if you like it, to see how you 'fit' with the area and the services. If it isn't right then you have not burned your bridges and can try somewhere else.
Title: Re: An on-going thread
Post by: Miss Philicia on September 28, 2014, 10:08:40 am
Granny's moving to Palm Springs with the rest of the Post-it® Notes Brigade. She won't be able to spit without it landing on an HIV doctor.

Miss P's advice: do not make rash decisions after major life changes such as going on SSDI and/or folding up your sole ownership business, at least for a year. Same advice goes after break-ups, divorces, death of partner, etc.

When one makes a major move it may take several years to asses whether or not you like the place. It took me 3-4 years before I made up my mind that living in Philadelphia was OK after being in NYC for 15 years. I initially was more depressed after the move.
Title: Re: An on-going thread
Post by: Miss Philicia on September 28, 2014, 11:03:51 am
PS: I would never move to a desert location in the midst of climate change

... just saying' -- unless you expect to drop in 10 years
Title: Re: An on-going thread
Post by: BT65 on September 29, 2014, 08:24:11 am
Ms P gives excellent advice.  When I had gone through treatment for substance abuse one of the best pieces of advice was to wait a year before making any major decisions.  Of course, not many people listened.  And most of those people who did make major decisions, such as getting married, moving to a new state, etc., relapsed. 

Anyway, yes M, those injuries are all on the same leg, the right one.  I'm expecting my bones to turn to dust any day now lol.  Today is the day I go to the bone doctor's and we'll see if I get my first Syn Vysc injection.  Last time I went, when I first injured my leg, they didn't do the shot.  I don't see where it would hurt if they did.

By the way M, what injections are you getting?  Cortisone?  I'm sure you said previously, but I can't remember.  Sorry to hear about your bulging discs.  Ouch!

I didn't make it the 13 hours Saturday, only 9.  There was another co-worker who came in, making it two there, so they sent me home.  The supervisor worked in the morning with me and she was like "Betty, I love you and love having you here, but why are you working with an injury?"  What can I say, I'm an hourly pay employee and I need the money lol.  But I am relieved I didn't have to work the whole 13 hours, because I was hardly able to walk by the end of the day.

In other news, my best friend's son's father passed away a couple weeks ago.  He had been in the hospital since July, after a horrific car accident.  He was high, of course; he never quit using heroin and narcotic pills.  And he was 62.  He also had Hep C, and was on disability for cirrhosis.  Anyway, after the accident, both his legs were broken, his hips, and he had several fractures in the upper body.  He was in a medically induced coma for a while, and because of the length of time in the hospital, he had a lot of other infections.  So, he opted to stop the antibiotic treatment, just wanted comfort measures, and finally passed.  It's been super stressful on my friend, as her son is not motivated so she did most of the taking care of final arrangements etc.   

It's been unusually warm here, the last couple of days in the lower 80's.  But, this coming weekend, it's supposed to cool down to more season appropriate temps, so I got out most of my cooler weather clothes.  I hope everyone is doing as best as can be expected.  And M, I'm having really good thoughts about your disability hearing.  Hang in there!
Title: Re: An on-going thread
Post by: Wade on September 29, 2014, 01:38:43 pm
Hi Betty,
Good luck with your appointment today,
Hope you get some relief , can't imagine you walking around with you leg in that shape , but you seem quite the trooper !!

I was getting a series of three shots , if memory serves ,each one was a week apart,
they helped some till my knees were replaced.
Be Well , Wade
Title: Re: An on-going thread
Post by: Wade on September 29, 2014, 01:51:41 pm
Wishing Greg good luck with his surgery today,
Another trooper !!
Best wishes for a Quick Recovery , Wade

Title: Re: An on-going thread
Post by: mitch777 on September 29, 2014, 02:30:55 pm

B, Well, I guess it's better to have all of your injuries on one leg anyway. :P Hopefully you will be able to get your injection and see some improvement! Mine is some sort of steroid but not cortisone. It's supposed to reduce the inflammation around my spinal column.

Thanks for your good thoughts on my disability hearing. I tend to obsess over this and my anxiety increases. It's just in my nature.

I'm glad you didn't have to work the whole 13 hour shift and that your supervisor is showing her concern.

Greg, You should be coming home soon. Hope they measured the screw this time!

As for the move... my best guess it that we will be going out of business next summer. Then it's time to have many tag sales (garage sales) to sell the leftovers and personal items as well as getting the house ready to put on the market by the following spring. We won't have any income coming in that year unless I get approved for my disability and even that won't cover 1/2 of our expenses. Our modest savings will probably be whittled down. More anxiety.

Depending on what's left over after selling the house and inventory will determine if we can afford to downsize to a condo or rent. Not knowing drives me nuts but there seems like there is little I can do about it all. We certainly won't be destitute if we plan well but it's not going to be the retirement I had hoped for just a few short years ago. Oh well.

Wherever we (or I?) end up hasn't been decided yet but I would definitely rent first, at least for a few months I think. There is time to adjust to being on SSDI before moving. I just tend to stress over the unknowns even though logic dictates otherwise. I also realize that moving to a new area will bring with it many challenges and adjustments. Not looking forward to that in the short-term but I know it will be better for me in the long run. In the mean time I will just have to deal with my anxiety as best I can, not an easy task for a personality like mine. lol.

Title: Re: An on-going thread
Post by: wolfter on September 29, 2014, 03:34:00 pm
Betty, even I say that's too many hours to work straight through even if you're not injured.  Add all the other junk into the mix, and we're not cut out for that.  But I understand the desire to overdo it since SS won't cover more than the basics.  I took some peoples' advice here a while back and cut way down on my hours.  The extra income is great but not at the expense of our health.

I truly feel for those who can't work at least a little bit.  During the periods where I only existed on SS, there wasn't much left for a life outside of the needs.  Another awful truth of this LTS situation

Thanks for the well wishes Bubba.

Mark, I totally understand how your stress level is through the roof right now but you have given great advice.  But you guys will work through the issues and make wise decisions.  I'm pretty certain of that.  I learned first hand the reasons for not making radical changes after a life altering event.  In my case, I didn't have a choice and it almost ended with disastrous results.

So far, I'm feeling pretty good after the surgery today.  Perhaps I'm still under the influence and simply not feeling anything.  :)
Title: Re: An on-going thread
Post by: wolfter on September 30, 2014, 01:42:25 pm
Well, I believe the surgery was a success.  At least I only need a cane instead of crutches. 

I don't believe I've ever had these effects after surgery before; All lite headed and feeling like I've been on a week long drinking binge.  And oddly enough, I came too pretty quickly and was totally alert within just a few minutes.  Well, as I'm typing this it dawned on me that it might be that I'm hungry....  Just realized I've not eaten in over 40 hours.

Title: Re: An on-going thread
Post by: BT65 on October 02, 2014, 08:44:30 am
M, I understand not liking uncertainty, I don't like it either. Waiting on something you don't know the outcome on is totally unnerving. It does sound like you have a plan though, financially. I know it's not a permanent plan but at least you're covered for awhile.

Greg, so glad you're doing okay, or at least you were right after the surgery. Is it still going well? As far as work, there is someone else who is going to work some of the hours that I was going to. So I'm back to the schedule I was originally supposed to have. I may try to work a few extra hours here and there, maybe.

Well boys and girls, the mystery that is my leg deepens lol. When I went to the bone doctor, he showed me where the break in my leg is, via X-ray, and it's in the upper part of my lower leg. He said "didn't your leg hurt?" And I said "yes but I attribute leg pain to my knees " lol.  My ankle and leg area around the ankle was swollen and pitting which concerned the dr and nurse practitioner. The dr told me there's a stress fracture there but he believes there may be something else going on. So next Friday I have to have an MRI. Anyway when I was there they did not have the Syn Vysc so I have to go back later today.

Oh and I have a draining boil and don't understand how I got that other than the fact that the house I work at, the clients sometimes use the staff bathroom, and some of them are not very clean. I take a shower every day, even if I am just staying home. So I had some antibiotics on hand and am taking them.

To top it off, I got up in the middle of the night to pee. My laptop was sitting on the dehumidifier in my room. I inadvertently knocked it into the water. So that's gone, finished, caput. Luckily I have this mini iPad I bought earlier this year when I got my taxes. So Jeff, I'm sorry but I can't do approvals until I figure out how I can do it.

No, that's not all. At 3:30 in the morning, I was awoken by my cat wrenching on top of my bed. She puked all over my comforter so I had to get up and wash it.  I tried to lay back down about 7, but kept sweating. Which is either menopause, or my immune system has taken a hit.  Hmmmm.....

That's all for now but the day's not over yet lol. I'm supposed to get the Syn Vysc injection later this afternoon and have to work for a few hours this evening at the HIV organization. Hey, at least I'm on my cane instead of the walker.  My housemate just got up and appears to be in a shitty mood. Hopefully I am not the cause.   I hope all's well with everyone. I may be back later.
Title: Re: An on-going thread
Post by: Miss Philicia on October 02, 2014, 08:51:58 am
Poor Betina -- sounds like someone put a Santería curse on you with all of those concurrent misfortunes. As if the bone/fracture issues wasn't enough, having your laptop go for a swim is a disaster.
Title: Re: An on-going thread
Post by: wolfter on October 02, 2014, 10:58:11 am
Oh dearest Betty, it sounds as if you definitely need a do-over day...ugh  You might just want to warn your room mate of the type of morning you're having.  I certainly hope you get your bone issues resolved.  I certainly relate. :o

I found Medicare will only pay for a bone density test every 2 years so I'll have to pay out of pocket.  I believe it's important enough that I agreed to do so.  One surprising aspect that I've recently discovered; I've not had a single of episode of "jelly leg" since this latest surgery.  Wondering if there wasn't previous damage?

Onward fellow LTS.  We have our work cut out for us.  :)

hugs all
greg
Title: Re: An on-going thread
Post by: mitch777 on October 02, 2014, 01:43:44 pm
Yikes Betty! All I can do is send you a big (((hug))).  :(
Title: Re: An on-going thread
Post by: BT65 on October 03, 2014, 06:24:40 am
Well fellow forum friends, I survived yesterday lol. And I did get the Syn Vysc injection in my left knee. It's kind of sore this morning but a friend of mine had one done and he said his knee was sore for a couple weeks. Oh and my housemate wasn't pissed yesterday.

I did my group yesterday afternoon and talked at length with one of the ladies in the group. She is having grave financial difficulties so I agreed to help her with some food. I was supposed to go to the store to purchase some items then take them to her, but I am not sure about that. It's pouring rain out and it's very difficult for me to walk with a cane and umbrella and try to carry a bunch of bags. If she was totally out of food I would have gotten her some last night but she said she has enough to carry her through the weekend. So anyway this may have to wait until Sunday. I work at my other job tonight, tomorrow, plus Notre Dame has a home game tomorrow and I don't want to get into that traffic mess ( go Irish!).

Greg, it's good to read that your jelly legs seemed to have disappeared. I it continues. How are things with your new beau?

Nothing disastrous has happened yet today but it's early lol. I'm hoping it's an uneventful day and that work goes well tonight. Oh, Philicia, I wonder if I did have a cursed day yesterday lol. We need to talk sometime.       Take care everyone! Wish me luck with this bone, injection, etc. 
Title: Re: An on-going thread
Post by: wolfter on October 03, 2014, 07:01:04 am


Nothing disastrous has happened yet today but it's early lol. I'm hoping it's an uneventful day and that work goes well tonight. Oh, Philicia, I wonder if I did have a cursed day yesterday lol. We need to talk sometime.       Take care everyone! Wish me luck with this bone, injection, etc.

Don't jynx yourself dear, it's too early yet  :)  I know I've asked and you've probably answered; have you had your baseline BDS done yet? Definitely hope that injection finally gives you some much needed relief. 

And being in such an awesome place in the love area, I have to be careful to not bore others with constant talk about it.  It is beyond incredible though.  We're spending every spare moment together and are in continual contact even when we're not. 

I've been worried continually how I'd react if things don't go according to my desires.  I guess a lot of my doubts are why someone as great looking, successful, intelligent and charming as he is would still desire me.  He quickly allievated those fears while wondering why I would be interested in him.  :)

With the way everything is progressing and the things we've discussed, I expect we might be making some announcements soon.  OK, enough as I could go on forever.

hope you all have a fantastic day.
Title: Re: An on-going thread
Post by: Miss Philicia on October 03, 2014, 01:29:44 pm
Oh, Philicia, I wonder if I did have a cursed day yesterday lol. We need to talk sometime. 

If someone has placed a hex on you I highly recommend ordering the Jinx Removing Corta Fluido Spray (http://originalbotanica.com/jinx-removing-spray-p-25631.html) from Original Botanica in the Bronx.

(http://i57.tinypic.com/2upturr.jpg)
Title: Re: An on-going thread
Post by: AlanBama on October 03, 2014, 02:30:37 pm
M :  I understand your fears and concerns.   Not to be Debbie Downer here, but things changed drastically in my life when I went on SSD (1995)  I sold my condo (at a loss) and have been in rental apartments ever since.   It sounds really bad, but it's something I have adjusted to, and am o.k.   Especially since we life in an Apt. complex with mostly OLD folks; many of them have sold their homes, downsized, and moved here to "simplify" their lives (lives that consist mainly of grocery stores, beauty shops, churches, and doctor's appointments).   Actually, that is pretty much MY life (except for the beauty shop thing!   :P  )   You will be o.k. honey.

Greg, glad your surgery appears to have been a success!  that's good news.

Betty, my GOD honey, you sure are going through a lot of issues right now.  I wish there was something I could do to help.  Sending you love and positive energy!

Hope everyone manages to have a good weekend!

HUGS -- Alan   :-* :-*
Title: Re: An on-going thread
Post by: mitch777 on October 03, 2014, 05:04:15 pm
Thanks Alan. I'm sure I will adjust. It's not so much the downsizing as it is the rest. Getting "there" in other words. At this point I'm trying to get my husband on board in more ways than one. I don't want to go into further details about it on a public forum but it is a big part of the stress. I bet those old folks love you living there. :)

On a better note, I had my steroid injection 2 days ago and my arm has improved noticeably. Yay! Still much more room for improvement but I have 2 more injections scheduled. So far no improvement with my headaches. Oh well, I'll take what I can get.

They put me under for supposedly 5 minutes but I didn't even know it. Not during or after. They took 5 minutes out of my life and I think I am thankful. lol.

By the sounds of things I think Greg will be having a great weekend. Betty? Well... hopefully it was just one of those 24 hour curses. Better get that spray just in case!
Title: Re: An on-going thread
Post by: BT65 on October 05, 2014, 08:38:36 am
Well the first half of the weekend hasn't been too bad. I worked 7-3 yesterday without anyone going crazy. There is a blind lady who is one of the clients but is pretty independent personal care wise. She's only mildly impaired and helps with dishes after a lot of the meals. She also does her own laundry and puts together outfits for the week. (the clients go to a community center for the impaired, during the week and get paid for whatever their jobs are). Anyway this lady is incredible on the accordion. 

Also, Notre Dame won yesterday in a nail-biting game. So that was nice. And they played Stanford what is supposed to have the #1 defense in college football. The last couple minutes of the game was exciting.

Today the only plan I have is to clean. I have my laundry done. Oh, I see my doctor Wednesday for the boil and a few other issues. It's also time for my annual labs.   

Greg I really am happy for you regarding your renewed relationship. Quit asking yourself why he's with you and enjoy it!

M I know things will work out.  I'm cheering you on.

Philicia would you send me a can of that spray? I'm sure I will need it soon.

My leg was pretty achy when I got off work yesterday. So I should probably start moving.  I hope everyone is having a good weekend!
Title: Re: An on-going thread
Post by: mitch777 on October 05, 2014, 09:05:56 pm
So, I was a bit elated after my injection but it was soon deflated. The past two days went backwards. Not only did my arm revert to nearly it's original painful state but I had crappy leg cramps last night to boot.

Feeling temporarily defeated but not giving up.

On another note... my disability lawyer said she would go with me to my doc appointment in 2 weeks if she couldn't reach him. WTF? She has had 2 1/2 years!! I emailed her today to tell her that I only see him 4 times a year and I have much to discuss with him and I would appreciate it if she conducted her business with him on her own time. I found it very nervy on her part. She emailed me back and said she understood but am wondering if she will even bother. It's crunch time. I would like to send her a bill for the added unnecessary stress. lol. Hope she pulls through but am not sure. Ugh!

6 more doc visits this month on top of it all. Getting weary. Thanks for cheering for me Betty and everyone. It means more than you know.

Not so full of good cheer tonight. Maybe tomorrow?  :)
Title: Re: An on-going thread
Post by: wolfter on October 06, 2014, 07:20:49 am


Mark, I have a sense that your attorney has had enough cases that she feels it's a slam dunk.  I remember being constantly pissed with mine as it seemed he wasn't doing anything.  He just kept telling me it was pretty much a "slam dunk" with nothing to worry about.  He was correct.  The hearing was a mere few minutes and we didn't even need to address vocational abilities and such.  I walked out of there upset that my attorney didn't even really say anything.  He explained that I won the case on the spot and there was no need to press them.

So, I know it's difficult to state, but try to relax.  I know how much is riding on it but if you win the case then you worried needlessly.  ;)



One week since I had the hardware from my knee removed.  It's definitely better progress than I acticipated.  I was able to flex and stretch it this weekend better than I had since I was a youngster.   ;D

The other Greg and I had another great weekend together.  Seems like it slipped by in a blink of an eye.  And I only smoked 3 cigs the entire time so I'm getting closer to completely stopping.  He says he truly doesn't mind (although he's shocked I even started smoking) but I can't imagine he enjoys that smell on my breath.  It's easier to not smoke than to constantly brush and gargle.

Hope you all have a fantastic day. 
Title: Re: An on-going thread
Post by: BT65 on October 08, 2014, 06:14:24 pm
M, I can relate on the doctor visits. I've been to my bone doctors probably 5 times this last few weeks. Friday I have to have an MRI to see what's going on with my lower right leg. It's still swelling pretty bad. Who knew you need to stay off your feet if you want a broken leg to heal? Lol.

Today I went to my regular doctor to have a boil drained. And you all can guess where it was. My doctor said it was full of infection so I am on antibiotics for 10 days. I don't understand how I got one as I'm pretty OCD about staying clean. The doctor said diabetes and a weakened immune system can make one more susceptible. Just what I wanted lol. And I have to go back to the doctors tomorrow for a wound check.

So, I had gone grocery shopping this morning prior to the doctor and the pain was so intense that I was nauseous. After the doctor, I had a couple places to go and now I'm on my back. I had so much pain that I had to puke twice. Which is bad since I have a high pain tolerance. Very maddening. I haven't eaten since breakfast so I do need to do that soon. I couldn't eat when I got home because of the nausea.  I made homemade chili; even the seasoning is homemade. And I hear it's good  :D. Fresh local ingredients. I just have to go upstairs but it will be worth it.

So, that's my day so far. Yesterday I worked in a different group home than where I usually am. I mean, what can you do? Got to keep going. But slowly lol. I have gone to work using my walker, so there are options. But nothing other than the doctor appointment tomorrow I have nothing else to do so I will be off my feet for the rest of the day.

Greg, I'm thrilled you're having such a good relationship. I'm sure it will continue to grow. Congrats on the cigs. I'm not there yet. Too much stress at the moment. Someday....    Everyone have a good evening. Love you guys, sorry for all the bitching.  I'm sure things will look up at some point.
Title: Re: An on-going thread
Post by: Jeff G on October 08, 2014, 06:58:50 pm
Im thinking of you Betty ... please rest tomorrow and have a good time doing nothing but snuggling with the kitty . Love you .
Title: Re: An on-going thread
Post by: BT65 on October 09, 2014, 06:36:58 am
Thanks Jeff, I love you too. And stay off ladders for awhile lol!
Title: Re: An on-going thread
Post by: wolfter on October 09, 2014, 11:10:45 am
M, I can relate on the doctor visits. I've been to my bone doctors probably 5 times this last few weeks. Friday I have to have an MRI to see what's going on with my lower right leg. It's still swelling pretty bad. Who knew you need to stay off your feet if you want a broken leg to heal? Lol.

    Everyone have a good evening. Love you guys, sorry for all the bitching.  I'm sure things will look up at some point.

I certainly didn't realize you have to stay off of broken bones in order for them to heal.  OH, and go ahead and bitch away.  If we haven't at least earned that right, then something is wrong.  So hoping you get healed up quickly.  Sending the hugest amount of positive energy I can spare.

When I broke my lower leg, it continued to swell for ages and they couldn't find any cause.  Then poof....it started getting better and was actually feeling quite normal until I broke more bones higher up on the same damn leg.  :(  Hopefully you'll see similar results without the need for additional procedures. 
Title: Re: An on-going thread
Post by: mitch777 on October 09, 2014, 12:43:56 pm
(((Betty))) I keep waiting to hear some better news from you. Sending luvs and hugs.
Title: Re: An on-going thread
Post by: BT65 on October 11, 2014, 06:54:10 pm
Ok I guess I thought I posted yesterday but now I see I didn't.  I had my MRI yesterday and they found a broken ankle. So now I have two broken bones in one leg. But at least now I have a fracture boot I can wear that cuts down on the pain quite a bit. Of course the dr told me to stay off of it for six weeks. He asked if there was someone who could cook, laundry etc. and I wanted to tell him that the maid is on vacation lol. So today I did laundry. I was going to clean my room but after doing laundry, loading the dishwasher etc I was tired. And now all my other muscles are sore like they were last night. When I walk, because of my fucked up leg, all my other muscles contract with every step,so at the end of the day they hurt. Oh well, what can you do but keep going forward.

So that's the update on me. I really am okay. I took yesterday and today off work but as long as things keep going well I will go back to work next week. I just still have to use the walker because my "good" leg is still weak from other things (prior hip surgery still not completely healed, AVN, arthritis etc). Lol. This is like a Saturday Night Live episode.

I reminded my dr, when I was having that abscess taken care of a few days ago,that I still need that parathyroid scan so I can start the osteoporosis Ned. My bones don't seem to be doing that well lol. I honestly hope everyone is having a good weekend. I'm watching the Notre Dame game. There have been so many touchdowns this game it's crazy. I hope ND can hold onto that lead, but they've been going back and forth.  Fingers crossed! Love you guys.
Title: Re: An on-going thread
Post by: Jeff G on October 12, 2014, 09:28:16 pm
OK ... I think I can safely announce that I am a non smoker . I quit over two months ago and it was easy to do and I do not want to start back up again ... it feels different this time .

Im not using a vape pipe either . I was foolish to think that using nicotine vaporizer would help me quit, it only perpetuated my nicotine addiction and I now consider a vape pipe the Devils Flute .
Title: Re: An on-going thread
Post by: harleymc on October 13, 2014, 06:38:36 am
YAY Jeff!!!!!
 Congratulations on being so determined.

Now you'll have to put in a bit of extra effort on the exercise and the diet to keep the kilograms/pounds off. But you will look and smell and taste gorgeous.
Title: Re: An on-going thread
Post by: wolfter on October 13, 2014, 08:29:33 am
Congrats Jeff.  I've recently discovered once again just how difficult it truly is to quit.  I have a true motivation to quit now and discovered it's more work than I anticipated.  I'm down to a couple per day but just haven't found that strength yet to make the final leap.

Betty, I have a specialist appt with a bone doctor next month.  She has recently started focusing in depth with HIV+ people and the accelerated rate of bone loss in that populace.  In my mind, I've seen, read and heard enough to believe this will be a great issue that many will face.  Many probably not even realizing they're already in trouble just waiting on the bone to drop.

I still suggest that all of us obtain a baseline BDS as soon as possible.
Title: Re: An on-going thread
Post by: Jeff G on October 13, 2014, 08:41:06 am
YAY Jeff!!!!!
 Congratulations on being so determined.

Now you'll have to put in a bit of extra effort on the exercise and the diet to keep the kilograms/pounds off. But you will look and smell and taste gorgeous.
Congrats Jeff.  I've recently discovered once again just how difficult it truly is to quit.  I have a true motivation to quit now and discovered it's more work than I anticipated.  I'm down to a couple per day but just haven't found that strength yet to make the final leap.


I have been very careful to watch what I eat and keep up with he exercise so I didn't gain weight this time . It was to the point where smoking was making me sick every day so I meditated on it and gathered strength and energy and it was done ... I had a few cravings now and then but it was remarkably easy to quit this time. 
Title: Re: An on-going thread
Post by: Miss Philicia on October 13, 2014, 09:10:36 am
So you vaped for how long decreasing the nicotine and what happened -- you just lit up a cigarette suddenly and began smoking? What did I miss here? So this time did you quit cold turkey or use some other intervention?

I'm seriously about to make a go about quitting, which is a huge ordeal for me as I have not done so since undergoing hypnosis in ~2000. I was going to go to a vape shop this week. Patches, gum and wellbutrin destroy my sleep and I'm scared of that other medication. I should probably just quit cold turkey.

Congrats, though and keep it going.
Title: Re: An on-going thread
Post by: Jeff G on October 13, 2014, 09:35:58 am
So you vaped for how long decreasing the nicotine and what happened -- you just lit up a cigarette suddenly and began smoking? What did I miss here? So this time did you quit cold turkey or use some other intervention?

I'm seriously about to make a go about quitting, which is a huge ordeal for me as I have not done so since undergoing hypnosis in ~2000. I was going to go to a vape shop this week. Patches, gum and wellbutrin destroy my sleep and I'm scared of that other medication. I should probably just quit cold turkey.

Congrats, though and keep it going.

I got sick awhile back and could not vape ... it sent me into coughing spasms so I went back to cigarettes and did not vape for many months . I went cold turkey from 1 and half packs a day and simply stopped . I was truly amazed how easy it was for me this time ... like a gift from the gods .   
Title: Re: An on-going thread
Post by: Miss Philicia on October 13, 2014, 10:13:23 am
That is odd that vaping would make you sick and not smoking cigarettes -- sick as in bronchitis or what?
Title: Re: An on-going thread
Post by: Jeff G on October 13, 2014, 10:33:21 am
That is odd that vaping would make you sick and not smoking cigarettes -- sick as in bronchitis or what?

I had bronchitis and could not vape any more but could manage to smoke a real ciggy ... that's how I went back to ciggy's . I had to quit because of breathing problems and because of chronic sinus infections and stomach ulcers, I really had to quit this this time .

I had said before that for me personally trading one addiction for the other was not a way to quit smoking and in the end I was right. Other people have had luck using a vape but for me it simply was a continuation of my nicotine addiction and if I wanted to taper I could have done it just as easily by smoking less and not spending hundreds of bucks on vape equipment .   
Title: Re: An on-going thread
Post by: Wade on October 13, 2014, 12:03:45 pm
Congratulations on quitting ! I quit at least nine years ago , woke up wheezing one morning , I was done . I was a heavy smoker, at least pack and half a day. I had a good friend who died of emphysema didn't want to go there, I was scared smokeless ,  the first couple days were the worst.

I have had a few puffs here and there when I've been drinking over the years ,always tasted gross and made me cough, had no desire to smoke an entire cigarette. I also gained 15 pounds !  Oh well.... keep up the good work Jeff ,and good luck . After two months your done !
Title: Re: An on-going thread
Post by: Miss Philicia on October 13, 2014, 12:18:25 pm
I've already gained weight from all of the increased gabapentin and other other neuropathy meds in the past two years, the last thing I need is to gain more. Though the latest addition of Topamax is supposed to have the reverse effect and cause appetite loss and weight loss, though I've not noticed any yet (only been on it for 10 days though, but have notices slight loss of appetite and you definitely do not want to drink sweet carbonated sodas on it).

I smoke less than a pack a day so I figure cold turkey is a realistic choice, but was willing to try a vape shop to make it easier. I thought everyone here a year ago was singing their praises. Was this yet another in a long line of internet premature ejaculations?
Title: Re: An on-going thread
Post by: Jeff G on October 13, 2014, 12:39:14 pm
Was this yet another in a long line of internet premature ejaculations?

Yes ... yes it is . Stopping smoking sucks ... if you are determined to try vapeing I will gladly send you about $300 worth of vape supplies and liquid nicotine I have no use for but if you are smart you will say no and just do what you are gonna have to do anyway and bite the bullet and stop . I wish I had never wasted money on vapeing .
 
Title: Re: An on-going thread
Post by: Miss Philicia on October 13, 2014, 01:10:20 pm
Yeah, I don't want to waste money. Nor do I wish to go to a vape store and encounter all of those annoying hipsters having me sample their pricey wares trying to convince me this and that is better than that or this.

Oh, the agony. Plus I'm off to the pulmonary specialist in 24 hours where I'll dutifully lie that I've quit smoking and schedule my next sleep apnea study. Then maybe I'll quit smoking the next day 8) I'd like to go home for Thanksgiving having quit, and be fully done with it all by my 50th birthday in four months. That's always been my long-term goal: the Big 5-0

Plus taxes on cigarettes just went up here ($2) so they're now ~$9.50/pack
Title: Re: An on-going thread
Post by: BT65 on October 13, 2014, 05:11:10 pm
Jeff I guess I don't understand why you spent all that money on vaping. I never spent that much and I can tell you that when I attempt to quit again, that is what I am going to do-vape. And I won't feel guilty in the least. Sorry, I am just too stressed out to go cold turkey. But right at the present I'm not worrying about quitting. I smoke probably a quarter pack a day. The brand I smoke, Kool miles, cost $6.00. I was smoking Newports, but they burn too fast.

Honestly, with my inner conflict over whether or not to seek treatment from a pain specialist, or whether to try what my doctor says and go pain med free, that's got me stressed. Of course the tapering of the med is continuing, into its second month. Oh, I am not planning on not taking any pain med with all the broken bones I have right now. But with the last horrible addiction issue, being addicted to nicotine is jot concerning to me.

Plus trying to work with these broken bones is a bit stressful. One of my best friends told me I should just depend financially on the SSDI, but I hate not working. And Christmas is coming and I have grandkids. I'm not worried about the adults, they know what's going on. But the grandchildren are different.

There, I have laid my soul out lol. Just trying to make it through the day to day.   Without going nuts.  I appreciate being able to share here. A lot of people don't understand so I appreciate those who at,least try.  On a good note, I have lost 20 lbs! 

Edited: sorry, I meant Kool "Milds" not "miles " lol. Damn auto-correct.
Title: Re: An on-going thread
Post by: Jeff G on October 13, 2014, 06:16:42 pm
Dearest Betty ... I don’t think any ones expects you to be perfect like I am .

I spent 119 just for the vaping thingy and then I bought all the extra things and I have about 10 different flavors ... so all in all I spent about 300 on it . Plus I gifted one to Ann and she told me the other day she is not using it either for the same reason, it makes her cough her head off and then fart .

With all you have going on not smoking would be low priority to me also, I honestly don't know how you do it and work... your inner strength must be immense .   
Title: Re: An on-going thread
Post by: Wade on October 13, 2014, 07:38:14 pm
Have friends who use the vapy thing , just seems to be a temporary break , they all teeter back and forth to smoking and vaping  , also know you won't quit till your damn good and ready , think all the gas comes from hot boxing the vapy thing trying to get some smoke !

Nothing wrong with a good fart ,  the good ole Key West mating call !
Title: Re: An on-going thread
Post by: mitch777 on October 13, 2014, 08:33:59 pm
I bought a vaporizer in August. Tried a few of the flavor options and chose two that I thought were ok at the time. Spent $117 total. I found it didn't stop me much from wanting the real thing. Never bought a refill. Just my experience.

Betty, I SO understand the stress part of it even if it's for different reasons. I get your inner conflict and hope everything works out for you. Jeff is perfect. I just know this to be true.  :-\ lol.

I like the sound of "Kool Miles" better btw. I hope we both find the effort to quit when things settle down a bit. Then we will have cooler miles.

Hope your grandkids fall over you this Christmas. You deserve every accidental poke and prod and hug and kiss but please give your bones a chance to heal. I think they would be more happy to see that. In fact I know they would.

Here's a picture just for you. (there are cat haters here y'know) I present you "October Cats".

(http://i1341.photobucket.com/albums/o745/mjm711/DSCN1718_zps5965ff05.jpg) (http://s1341.photobucket.com/user/mjm711/media/DSCN1718_zps5965ff05.jpg.html)


Greg, I know you will find the strength!

Love you guys.
m.




Title: Re: An on-going thread
Post by: Miss Philicia on October 13, 2014, 09:22:53 pm
Betty, I think if you're down to four cigarettes a day quitting cold turkey will not be that difficult. Just don't attempt it until you are over the bone stuff.

I kept saying that I'd quit once I was past all of my foot pain issues but, well... that day isn't ever going to arrive it seems so I'm not using that excuse any longer. Plus if my sleep apnea results come back positive than I really will not have a choice.
Title: Re: An on-going thread
Post by: BT65 on October 14, 2014, 08:26:52 am
I sounded pretty bitchy in my last post I guess. My apologies. Now... Yes, Jeff is perfect lol, but I am so glad he gives room to people like me, to fuck up.

I have been in pain management for the past nine years with my doctor. He and the rest of the medical staff at his practice have decided that they are going to quit prescribing any type of narcotics. So he started me on a pretty severe taper. Which means (and this is an ugly reality of pain management), that in the morning for the first hour, I shake, am nauseous, sweaty, cramps etc.  You all get the picture. Now, my friend who has been an addiction therapist for over 20 years, is now an administrator at the mental health facility she is employed at, and has maintained 26 years of sobriety, told me that the doctor is being unethical, having me taper too quickly, and while having broken bones.

Thursday I have to see the nurse practitioner there and plan on addressing this with her. And while she is not the doctor, he will hear about it from her. I don't plan on being my usual full-of-sunshine self lol.

Oh, did I say I'm in pain? But what can you do, just keep going forward. I think I am going to see if Jeff is available for a morning bitch session lol.  I honestly am okay, and hope everyone else is doing what we LTS'ers do best, hanging in.
Title: Re: An on-going thread
Post by: Jeff G on October 14, 2014, 08:36:56 am
Im here dear ... vent away ! . Its outrageous that your doctor is doing this at any time and even more so now that you are injured . I would go in and tell them calmly but in no uncertain terms that you have done your part and never abused your prescriptions and that you are losing confidence in your doctor for the way you have been left to suffer.

You may want to remind him that you under stand how the FDA is cracking down on doctors and where the changes he made may be better for him its certainly not in your best interest . Tell them you are suffering and you need it addressed now or an emergency referral to someone willing to do the right thing and help . If my doc did this to me I would fire him for it . I'm pissed for you .   
Title: Re: An on-going thread
Post by: Miss Philicia on October 14, 2014, 09:29:53 am
I agree with Jeff -- the timing is unacceptable Betty. If he doesn't want to handle continuing on what you have been on why don't he refer you to a pain management specialist so you can continue what you have been on? (I actually wasn't aware you'd been on pain meds for nine years but perhaps I am being forgetful). It is definitely unethical to taper someone off too quickly. I would address this forcefully with the doctor, not the NP if possible.
Title: Re: An on-going thread
Post by: wolfter on October 14, 2014, 10:05:39 am


Here's a picture just for you. (there are cat haters here y'know) I present you "October Cats".


Greg, I know you will find the strength!

Love you guys.
m.

HEY you, lol.  Just for the record, I don't hate cats.  I hate irresponsible cat owners.  Ohio has ridiculous laws that basically dictate that there is no recourse even when you have 100's of cats roaming your property.  Every time we have a family of coyotes move in, the county immediately moves to eradicate them.  GOOD GOD, they eat cats and we should be promoting their existance.  :) 
Title: Re: An on-going thread
Post by: mitch777 on October 14, 2014, 10:40:32 am
I agree with Jeff and David. Too quick and poor timing! Grrr... Hope you can knock some sense into his/her head soon.

It's not the end of the world but I got a phone call from my attorney this morning to tell me that she needed to postpone my hearing because she has to have some medical procedure done. She didn't say what it was. So... it will be moved from Nov. 14th to an unknown date in December with most likely little notice. Ugh!!
Title: Re: An on-going thread
Post by: wolfter on October 14, 2014, 10:53:15 am
I agree with Jeff and David. Too quick and poor timing! Grrr... Hope you can knock some sense into his/her head soon.

It's not the end of the world but I got a phone call from my attorney this morning to tell me that she needed to postpone my hearing because she has to have some medical procedure done. She didn't say what it was. So... it will be moved from Nov. 14th to an unknown date in December with most likely little notice. Ugh!!

Mark, I would adamantly show my scorn and explain how that's unacceptable.  Insist that she send a representative and make sure that person is up to speed on the entire case. 
Title: Re: An on-going thread
Post by: mitch777 on October 14, 2014, 11:04:07 am
Mark, I would adamantly show my scorn and explain how that's unacceptable.  Insist that she send a representative and make sure that person is up to speed on the entire case.

I would show my scorn if she was getting a hangnail taken care of but it sounded more serious. I can't really blame her for this. Just disappointed in the delay. Her law firm consists of her and one other. I would feel more comfortable with her since we have worked together on this for over 2 1/2 years already. Now, lets hope that I don't need some medical procedure that day. lol.
Title: Re: An on-going thread
Post by: Miss Philicia on October 14, 2014, 11:33:49 am
See, I told you that you need a prescription for klonopin during this legal process. Or maybe lorazempam.
Title: Re: An on-going thread
Post by: Wade on October 14, 2014, 03:12:44 pm
Hey Betty , Miss P  & Jeff always seem to have good advice to offer.
I know It's hard to switch docs , but they are right , you have broken bones in your leg and ankle  !!! , this is no time to cut back your pain meds.
Sounds sadistic to me !
Hope things get better for you  ,Wade
Title: Re: An on-going thread
Post by: Miss Philicia on October 14, 2014, 05:33:31 pm
So, I now have two sleep apnea studies scheduled  -- they went ahead and assumed that I will test positive and the second one is for the CPAP titration study. Oct. 28th and Nov. 1st. This way in the event my neurostimulation trial is no responsive and I need to go on narcotics I'll have this sorted out. My pulmonary doctor says that current there is one current CPAP model that records information on a microchip to quickly record information for use in pain management with narcotic use. Also, he thinks my the acid reflux I've been having this past year is most likely related to the return of obstructive sleep apnea as it forces air to mess with your lower esophageal sphincter. But it can also be multi-factoral if something like celebrex that I've been on during the same time period is contributing to it, so I'm going to try going off of that and see if that helps, as I've been on priolosec for a few months and while it's helped it's certainly not eliminated the situation.
Title: Re: An on-going thread
Post by: mitch777 on October 14, 2014, 05:40:16 pm
See, I told you that you need a prescription for klonopin during this legal process. Or maybe lorazempam.

Ya well, I just switched meds 3 days ago from Isentress to Intelence. I've noticed already that I am sleeping better so that in itself should prove helpful if it continues. Slept 7 hours the past two nights after putting up with about 5 or 5 1/2 hours since the beginning of the year. Still a bit miffed at my ID doc for delaying the change when I complained in late February.

The legal process is only a fraction of my stress as you know. I want to get to "know" my new med before adding another but a new med may still may be in the cards.

Off tomorrow for another joyful steroid injection. I'm going to try to remember this time that I was put under. lol.
Thinking of having Kenny write something on the back of my neck to amuse the doc. Looking for suggestions. :)

I saw you just posted David. Good luck getting that figured out. I've been on Prilosec too and the past 3 months it seems to have not helped as it has in the past.

Title: Re: An on-going thread
Post by: Miss Philicia on October 14, 2014, 05:47:01 pm

I saw you just posted David. Good luck getting that figured out. I've been on Prilosec too and the past 3 months it seems to have not helped as it has in the past.



I actually set up my iPad to audio record my sleep last night -- I only did for the first 1 hour 15 minutes because by then I had an acid reflux issue. If it happens it happens an hour into sleep, and I have to get up out of bed and cough it out, drink some water and sit up for a bit before going back to bed propped up on two pillows for a couple of hours before being able to sleep regular. But listening to the audio is torture -- sounds dreadful.

I knew it was bullshit two years ago when I had that nasal surgery and the follow up sleep study said my apnea had disappeared. If that was true it only lasted six months. Boyfriends of mine have complained about my sleep almost all of my life, and I think it's why I developed hypertension by the age of 40, that combined with HIV. It's a very good thing that I don't drive a car.
Title: Re: An on-going thread
Post by: mitch777 on October 14, 2014, 05:55:21 pm
There are way too many openings for humor in your last post but I will refrain. Again, good luck.
Title: Re: An on-going thread
Post by: BT65 on October 15, 2014, 08:38:31 am
M, I did love the kitty picture. Sorry I didn't mention it earlier, I just haven't been in the best of moods. I would be livid regarding the attorney situation. If she has a law partner it would seem that (s)he would be able to handle whatever cases your attorney is having to put on hold. Of course I understand medical emergencies, who understands that better than we LTSers? Just poor timing and handling. But, if you have faith in her, that's important.

David, sorry you're going through the apnea thing again. I hope they can get it all sorted out in a timely manner.

About firing my doctor.... I do believe that is what should be done. The question is, is this the right time? I mean, if I got into see another doctor, would (s)he prescribe pain medication right away? Or how long would I have to wait? Questions to ponder, obviously not for a lengthy time period. Tomorrow I see that nurse practitioner and will not only address it with her, I will also make an appointment with the actual doctor. I called a few pain doctors and in light of the recent crackdowns, they all require not only a family doctors referral, they also require a person's medical record get faxed over. Then the office contacts the person if the doctor decides to see him/her. Probably wants the record to look for people who have drug seeking behavior. Which I get.

So I will address this. I have to.

While I have the motivation I need to shower. I'm hoping if I rest again today I will be ready to work this weekend.

I just saw on the Today Show that Neiman Marcus has this perfume called Fantasy, which will be for sale for the holidays, for $475,000.  I will begin to accept my appreciation gifts, of this perfume, beginning in November. Lol
Title: Re: An on-going thread
Post by: wolfter on October 15, 2014, 09:28:39 am
Ya well, I just switched meds 3 days ago from Isentress to Intelence. I've noticed already that I am sleeping better so that in itself should prove helpful if it continues. Slept 7 hours the past two nights after putting up with about 5 or 5 1/2 hours since the beginning of the year. Still a bit miffed at my ID doc for delaying the change when I complained in late February.



I would suggest that perhaps, you've not learned to be as assertive as Wolfie.   ;D  For many, Isentress is a wonder drug and it does its job quickly.  However, I developed such severe insomnia that I literally thought I was loosing my mind.  Only getting a few hours sleep per night was in many ways worse than some of the early meds I took. 

I slept way too much after dropping the Isentress for probably the first month.  I now regularly sleep 7 - 9 hours when given the opportunity.  And I no longer have to drink a couple of glasses of alcohol to assist with sleep which is definitely a band aid approach since alcohol doesn't achieve the same level of sleep.

Betty, that sounds like such a cluster fuck of actions.  I so truly feel for you and others here who constantly deal with pain.  I'm so fortunate to have dodged this issue so far.  And I definitely know how you all feel regarding the sleep issues. 

I'm making great strides now that I have the knee hardware out.  The limp is now completely gone and I should be running soon.  I did an hour long power walk yesterday which felt great.  My little toothpick leg needs built up after 2 years of continual issues with it.

MissP, I know you've been diligent but it certainly seems as if they're missing something.  Certainly hope they discover reason and offer some viable sollutions.

The other Greg and I have developed a schedule that works pretty well for now.  I head to his place and stay Wednesday and Thursday.  He then comes here on Friday and leaves Monday morning, straight to work.  So we only have to miss each other on Mondays and Tuesdays.  This past weekend, I took him to his first demolition derby in Lancaster. 

Title: Re: An on-going thread
Post by: Miss Philicia on October 15, 2014, 09:57:51 am

MissP, I know you've been diligent but it certainly seems as if they're missing something.  Certainly hope they discover reason and offer some viable sollutions.

With the sleep apnea?

No, my doctor chose the nasal surgery 2 years ago because he thought it would provide me the option to forgo a CPAP and I had concerns with those because I can have claustrophobic/constrainment issues (my brother used to torture me as a child by rolling me up in carpets and leaving me in them for hours), plus it need to be done anyway to open up my nasal passages and make me breathe less through my mouth. He advised me it might not work for long, but that also it might -- but that if I felt the apnea return I should come back. But yes, overall I can feel the muscles in my through collapse in that brief moment between consciousness and sleep, so much so that I often wake myself from this loud gagging sound. I'm sure surgery is an option but would prefer something less invasive. I'm ever so tired of surgery.

I should have gone back to him before now and mentioned doing so to my HIV doctor but he seemed to act like it was my imagination and I was dealing with enough other things so I waited. And it is true I've been dealing with a lot of other things.

So now before going home for Thanskgiving I have other than two sleep studies five other medical appointments. Wouldn't be so bad except that they are all jammed into the next two weeks instead of spread out over the next month.

Booked my Amtrak train to DC for Thanksgiving this morning so that's done, and I'll get to try out the new Silver Line metro (the one being built to Dulles Airport) for the first time to Wiehle-Reston East/Reston station which is still a 25 mile drive from my parent's home. The Silver Line, phase one, just opened three months ago. They won't finish building the rest for another four years but then it will only be a 12 mile drive home, or 4 miles if my parents do like they say and move into and apartment in a senior living community.
Title: Re: An on-going thread
Post by: mitch777 on October 15, 2014, 06:11:56 pm
Betty, Hopefully a new doc would see clearly that now was not the best time to cut back so drastically on your pain meds. Maybe even your current doc will rethink his decision after talking with him although I wouldn't have thought he did what he did to begin with.

No need to apologize for your recent moods. It's another LTS prerogative when times get tough, especially with the pain you have been facing.

It is with much regret that I am informing you now that I cannot quite come up with enough cash for the Neiman Marcus perfume for the 1%.  :( Perhaps a knockoff from Perfumania at $20. a bottle?

I would suggest that perhaps, you've not learned to be as assertive as Wolfie.   ;D  For many, Isentress is a wonder drug and it does its job quickly.  However, I developed such severe insomnia that I literally thought I was loosing my mind.  Only getting a few hours sleep per night was in many ways worse than some of the early meds I took. 

I slept way too much after dropping the Isentress for probably the first month.  I now regularly sleep 7 - 9 hours when given the opportunity.  And I no longer have to drink a couple of glasses of alcohol to assist with sleep which is definitely a band aid approach since alcohol doesn't achieve the same level of sleep.
 

I'm making great strides now that I have the knee hardware out.  The limp is now completely gone and I should be running soon.  I did an hour long power walk yesterday which felt great.  My little toothpick leg needs built up after 2 years of continual issues with it.


Greg dearest, I know I have some memory issues but I believe your Wolfe assertiveness was lacking far more than mine when it comes to the Isentress issue. You had sleeping issue much longer than I and I was pushing YOU to seek a change in meds for many many months. I on the other hand started pushing my doc for a change in less than a year even though my Trazadone worked pretty well for the first 9 months. Just sayin'.  ;)

So happy to hear that your leg is back up and running although by the sound of it lately it is often probably up... well... just up.

Had my second injection and forgot to write something clever on my neck (no thanks to anyone here, Ha!) to amuse my doc. Still one more to go so keep those ideas pouring in there's still time. Hope to see more improvement than I did after the first injection. And... I still had no better luck remembering being put under. lol. The actual procedure only takes about 10 minutes but the whole ordeal took 4 hours from leaving and arriving back home. I'm bushed.





Title: Re: An on-going thread
Post by: wolfter on October 16, 2014, 05:19:00 pm
Perhaps my Boniva is working.  I had another incident when I got home.  Of course it has been rainy and windy and I have a huge oak tree over the front of the house.  The steps and deck were covered with wet leaves.

I should have swept them off before attempting to unload the truck but on way down for the 2nd load I went right down on my bony ass.  Not a bit of soreness left.

See, told you all I was going to grow up and be big and strong.  :)
Title: Re: An on-going thread
Post by: leatherman on October 16, 2014, 08:10:05 pm
I went right down on my bony ass.
bubblewrap. whatevs.  :-* ;D
Title: Re: An on-going thread
Post by: BT65 on October 17, 2014, 06:14:58 am
Well Greg, you are officially a tough ass lol.  I'm glad you didn't injure anything with your fall.

M, I have actual used Perfumania a couple times when I have just wanted a small bottle of something. I usually buy perfume once or twice a year and include lotion when I am stocking up.    I'm glad your procedure went well. How effective is that treatment and how long does it give you relief (if it does at all)?

I had two appointments yesterday. The first was at the ortho's. They took an X-ray and said my ankle has not yet started to heal. The doctor told me he doesn't know how I am walking as much as I am. It was comical when I first went back because the doctor summoned a wheelchair. Then he wanted to know where my fracture boot was, so I had to tell him it's impossible to drive with that on lol. He didn't know I had driven myself so I had to tell him I am not in the same financial category as he is and therefore cannot afford a driver lol.

The second appointment was with my regular doctor and surprisingly he agreed to halt the pain med taper while I have these orthopedic issues going on. He also informed me he was ordering a mammogram and I got my flu shot. Oh, I told him I will be running out of pain meds a little early and he said that was fine, just to call him.

Today I have to be at work at 1 for a meeting,then will work through until around 8. Then I stupidly agreed to work from 7am to 10pm tomorrow. We'll see if I can get through that lol.
Title: Re: An on-going thread
Post by: wolfter on October 17, 2014, 10:03:05 am
At least you don't have to deal with the pain med issue during your recovery.  Does the ortho guy have any explanation why your bones aren't healing yet?  Seems awfully long?
Title: Re: An on-going thread
Post by: harleymc on October 17, 2014, 09:26:58 pm
Early days yet but....
I think I've found 'him', 'the one'.

I don't want to jinx it by saying to much just yet (only been two dates so far).
Title: Re: An on-going thread
Post by: Jeff G on October 17, 2014, 10:44:57 pm
Early days yet but....
I think I've found 'him', 'the one'.

I don't want to jinx it by saying to much just yet (only been two dates so far).

 :) :) :)
Title: Re: An on-going thread
Post by: BT65 on October 18, 2014, 03:39:58 am
At least you don't have to deal with the pain med issue during your recovery.  Does the ortho guy have any explanation why your bones aren't healing yet?  Seems awfully long?

I didn't ask him Greg and maybe I should have. I'm gues it has to do with my bones being so brittle. My regular doctor has ordered the scan of my parathyroid, I am just waiting for it to be scheduled. Then once they figure what's going on and hopefully there's a solution to the issue, I can start the med.
Title: Re: An on-going thread
Post by: mitch777 on October 18, 2014, 05:39:34 pm
Harley... another  :).

Betty... I'm so happy to hear your doc came to his senses about your pain meds. And yes, you need to stay off of your foot for it to heal dearest.

In answer to your question about my injections... 2 down, one to go. I saw about a 10% improvement with each one. I have no idea how long it will last. It seems to vary widely from patient to patient. Keeping my fingers crossed that it is long lasting because it's really a pain in the neck (pun intended) to go through it. No Excedrin Migrain allowed 7 days prior so it's been a pain, (ha), to combat my headaches through this period.

Greg... good to hear your bum was strong enough to take the punishment of your fall. :)

In other news...
I have a "sure thing" new appointment for my hearing, January 21st, but will be first in line if there are any cancelations prior. What's another month? >:(

Loads of stress on the home front and feeling the pressure taking over me lately. A few people here and my long time friend have been helping me keep things in perspective as much as I allow I guess and I thank them all.


Title: Re: An on-going thread
Post by: Theyer on October 19, 2014, 07:49:56 am
Hi everyone.

Forgive the absence, things all got very aides and when I was not at the Hos petal I was preparing to get there.

Since Oct 12 been battling a chest infection , scared each time I woke up it would have developed to Phewmonia .

Bone Density Scan was very disappointing so what with all that and having a differcult time getting appointments fixed with Denistry and the Nuero people I am feeling a bit batterred and bruised.

However a head not having a temp gives a deal of clarity, about to take the dog for a walk .first one since Oct 11 , hope very much this is not just a blip but the beginning off a period off "health" that will mean all appointments attended and consistency in my hassling down the appointments the Docs say they want but there booking admin people just do not have space in diary to give.

Think I have caught up on all your developments . has not been the best off times dear doughty fighters has it , though Harley ,s news sounds tantalizing

Mitch i am assuming tenions on the home front are to do with medium term long term plans past discussed and not something new.Please correct if wrong , hope they work out well though.

Betty I am entering a period off Pain control change though the important difference in my situation ,  I am in full agreement and it is not being imposed on me.

Basically I am looking at all possible reasons for my blackouts as this is what leads to the broken bones and one year plus spent trying to repair them.

I am getting angry at the difference in response from medicos during calamity times and when the calamity has passed. Reason being the reason for the calamity remains the same during both times as I am still having prolonged periods off being wobbly and seconds off time un consions so the same Danger times for Breaking something.

Your big Thanksgiving shindig is approaching so I wish you well so all off that, any how the Walk awaits much love everyone and how are you doing Jeff? and Miss P am I right in thinking you have started Pain Meds ?

Anyway love to all from me
Title: Re: An on-going thread
Post by: wolfter on October 20, 2014, 08:34:05 am
Glad to see you back posting Michael. 
Title: Re: An on-going thread
Post by: wolfter on October 22, 2014, 11:00:38 am
Early days yet but....
I think I've found 'him', 'the one'.

I don't want to jinx it by saying to much just yet (only been two dates so far).

How exciting.  Certainly wishing you best.
Title: Re: An on-going thread
Post by: mitch777 on October 22, 2014, 06:21:51 pm
Hope you have better days ahead Michael. We all could use a group 6 months of improved health news. Say hello to Mia for me.

And yes, it's the same issues that I brought up earlier. The sh*t is getting nearer to the fan and I'm not liking it! lol.

------

So, I had my appointment today with my ID doc and expressed my disappointment (gently but honestly) with his poor followup lately. He immediately apologized. He then began to explain the hospital cutbacks and the battle he is fighting to maintain the current services we patients get. He wasn't trying to blame it all on that but wanted me to know how it's been affecting his time. He did clue me in how to get things moving faster if need be. The bottom line... I'm losing respect for the hospital itself. I could see for the first time how much he is fighting and the toll it is taking on him. It's just sad.

VL- UD
CD4- 849 (down from 965 and down further from 2 testings ago at 1066 but not fretting it)
%- 36 (down a point or two, no big deal)

blood pressure highest ever at 155/99.

still have high red blood cell count which was a big disappointment.

picked up Vitamin D tabs. 2000 mg.

ok, enough with the lab report.

Wiped out.

Oh! Three people asked me if I had my flu shot yet while I was there including my doc. He said there have already been cases in our area. Seems kinda early. Unfortunately I can't get one yet due to the steroid injections in my neck. Last one is next week and I will be trotting my ass to CVS two weeks after that.

Stopped at BJ's and bought cat treats for 25% less. Made my day! lol.

That's at least part of it in a nutshell.


Title: Re: An on-going thread
Post by: Jeff G on October 22, 2014, 06:25:25 pm
Not a bad update all in all . How is the neck and shoulder?
Title: Re: An on-going thread
Post by: wolfter on October 22, 2014, 06:43:04 pm
thinking of you buddy.  I know numbers don't indicate anything when we're having issues.  That BP reading is a bit concerning.

Please excuse my ignornace, but how is what's happening with the hospital relate to the care you're receiving from your doctor?
Title: Re: An on-going thread
Post by: BT65 on October 22, 2014, 06:59:36 pm
Your bp is pretty high M.  What is going to happen with that?
Title: Re: An on-going thread
Post by: Wade on October 22, 2014, 11:30:29 pm
Hey M ,
you on BP meds ?
CD4s & VL sound pretty good, even if CD4s are down some
Title: Re: An on-going thread
Post by: Theyer on October 23, 2014, 09:38:31 am
Thanks all .
Having a very clumsy morning coffee grounds decorated the floor and fridge for some hours decided it was Domestic Action Art .When it was dry hoovered it up. Also flooded 2ashtrys with Tea decided it was a disgusting mess as my health worker was here and , bless him, wild dogs could not stop him from taking over and cleaning it up.

Have also just discovered by accident that my chemist who deliver a weeks supply off my so called non HIV drugs will also deliver the Pain patches and steroids which is good as I don.t think I would be safe out there today. Havoc being created just walking Living room to Bathroom. Cascading Dwoulling sticks this time
Title: Re: An on-going thread
Post by: mitch777 on October 23, 2014, 11:34:22 am
@Jeff- About 15-20% improved. One more to go and it better be a good one! lol.

@Greg- I thought I explained why. Doc is understaffed and spending much of his time fighting further cutbacks. Not a pretty situation. And thanks.

@Greg ,Betty, and Bubba- I'm on BP meds. This last BP reading was out of the norm but it has been creeping up in the past few months. Still a bit high and has been around 142/90. I think I need to discuss it with my PC doc.

@ Michael- Sorry to hear your mobility still sucks. Do you think a walker might be of more help than the sticks?
Title: Re: An on-going thread
Post by: Theyer on October 23, 2014, 03:52:40 pm


@ Michael- Sorry to hear your mobility still sucks. Do you think a walker might be of more help than the sticks?

Darling Mitch ,

Because I love you I had a Diazipine Sherry before I composed the following.
I have had to use a Walker.
I never did adjust to it.
At least with a wheel chair you can enter the dam Olympics.
And run folk down.
Its Sticks for out side or a super agile wheel chair there is no way I am going to be mugger bait.
I will end this now, coz I love you , I would suggest that walkeris not a topic to engage Michael Henry TheyerON/i].

With my tender hearted love mhtv
Title: Re: An on-going thread
Post by: mitch777 on October 23, 2014, 05:05:42 pm
Darling Mitch ,

Because I love you I had a Diazipine Sherry before I composed the following.
I have had to use a Walker.
I never did adjust to it.
At least with a wheel chair you can enter the dam Olympics.
And run folk down.
Its Sticks for out side or a super agile wheel chair there is no way I am going to be mugger bait.
I will end this now, coz I love you , I would suggest that walkeris not a topic to engage Michael Henry TheyerON/i].

With my tender hearted love mhtv

Well, ok. Never to be mentioned again as long as my memory holds up. Too funny. How about.... oh never mind. lol. Diazipine Sherry sounds delightful.
Title: Re: An on-going thread
Post by: Theyer on October 24, 2014, 06:05:00 am
Oh come on How about What?

Hugs
mhtv
Title: Re: An on-going thread
Post by: wolfter on October 24, 2014, 11:17:36 am

@Greg- I thought I explained why. Doc is understaffed and spending much of his time fighting further cutbacks. Not a pretty situation. And thanks.



You did.  I'll just blame the AIDS, dementia, or vino.  Or perhaps a combination there of.  :)
Title: Re: An on-going thread
Post by: mitch777 on October 24, 2014, 04:41:20 pm
You did.  I'll just blame the AIDS, dementia, or vino.  Or perhaps a combination there of.  :)
I've had my moments. lol.

Oh come on How about What?

Hugs
mhtv

I'm not telling.

btw, your initials sound like a network station. Makes me curious what the program content would be.

Title: Re: An on-going thread
Post by: harleymc on October 27, 2014, 02:00:41 am
Michael
I've been putting on my serious thinking cap.
Current ambition walk the dog
A wheel chair might make you mugger bait....

You need a dog team and a sled  ;-)
Title: Re: An on-going thread
Post by: BT65 on October 28, 2014, 07:37:22 am
M, yes I think you should talk to your doctor about your BP.

Michael, I'm actually on a walker right now. I use it on and off.


Well I've been having serious pain in the part of my leg where the fracture is.  The fracture boot helps ankle wise, but it makes my leg swell terribly where the leg fracture is. I mean it makes my leg look deformed. I'll be asking about this today when I see the nurse practitioner at the ortho's office.

I miss my laptop! And now I need to buy a new chord for this iPad. While I am grateful to have this device, I liked my laptop much better. This keeps having "issues" come up that make me nuts. I swear, I will not own another Apple device.

I know I haven't been on here much. I've been working and doing stuff around here.  Last Thursday the ASO I worked at had their 25th anniversary party. It was a very formal affair. The food was awful other than the salad lol. Other than that it was very nice. I saw some people I haven't seen in quite awhile, like there was a nun there who started the testing and prevention department, and I hadn't seen her since the middle 90's.  All in all, glad I went.

I hope all's well with my comrades.  Jeff, I have thought about calling you a few times, but I don't know if it's convenient for you.  You too David.  But I will call. M, I know you've called me in the past but I didn't save your number. So give me a call sometime (and anyone else who has my number).   Love you all!
Title: Re: An on-going thread
Post by: Miss Philicia on October 28, 2014, 11:42:17 am
While I am grateful to have this device, I liked my laptop much better. This keeps having "issues" come up that make me nuts. I swear, I will not own another Apple device.

Like what issues? I'm sure I could help.

If we need to do it over the phone let me get past this week of my two sleep apnea studies as I'm a bit tapped out with appointments.
Title: Re: An on-going thread
Post by: Jeff G on October 28, 2014, 12:08:43 pm
Betty ... you can call me anytime 24/7 . I mean it .
Title: Re: An on-going thread
Post by: mitch777 on October 28, 2014, 06:58:57 pm
Hey Betty,

So you didn't save my number huh? lol. (sent you a pm) Hope your doc figures out a way for you to get relief from your pain. Sounds miserable. :(

Headed out tomorrow for my final injection and hope this is the one! Can't wait to be done with this so I can take an Exedrin pm when needed. (not allowed for 7 days prior to each jab) Also can't have the flu shot for 2 weeks after the last shot and my ID doc said that there have already been cases here. I'm also going to start monitoring my BP. If it remains high I will be contacting my PC doc.

Happy Halloweenie!



Title: Re: An on-going thread
Post by: Jeff G on October 28, 2014, 09:49:44 pm
BETTY UPDATE . Her fractures in her ankle and leg are growing because she won’t stay off it and lets see what else ... her diabetic toe is infected and festering as we speak and she has pink eye . Tune in next week, Im predicting either venereal diseases or a heart murmur. I was talking to Betty on the phone and after we went over her list and began on my current its always something list we both just busted out laughing . Im all seriousness what do you say to a person who has to work for a living taking care of disabled people when she has major fractures herself ??? . I do not think I could do it . 

Poor Betty ... I am trying to persuade her to change her forum name to Calamity or something ... any suggestions ?
Title: Re: An on-going thread
Post by: BT65 on October 29, 2014, 05:59:57 am
Lol Jeff, I love you.

Yes Jeff is correct, I have an infected big toe on my right foot and May have pink eye.  One of the clients in the home I work at has it and when I was putting his eye drops in last Saturday I forgot to wear gloves.  My bad.  I may not have it but my eye has been very bloodshot. 
Tune in for more fun......
Title: Re: An on-going thread
Post by: Miss Philicia on October 29, 2014, 09:33:51 am
So, the ever fair Miss P was diagnosed for the fourth time with sleep apnea last night. Yes, that many diagnoses sounds excessive but there's an explanation behind them all dating back a dozen years or so. I'll only focus on the last two which were the "severe" readings, the last one was 2011 and I had follow up nasal surgery and then a follow up sleep study clearing me of apnea -- all well and good except within 6-8 months I had a bad feeling that it had come back. Assuming I was a crackheaded hypochondriac I ignored such feelings, except when I was home with Momsums & Dadsums to complain and have them listen in on my nocturnal emissions and they'd verify that I sounded like a pig at a slop trough. Still, I put off returning for testing until my new pain med guru and I had a discussion of what we'd be doing if this lame-o neurostimulation contraption doesn't end up working and since obviously it will be some type of opioid when I mentioned my previous sleep apnea history he insisted on my going and being retested.

(or have I mentioned this entire backstory already here... if so I apologize)

So I had my millionth sleep test last night and OF COURSE within 90 minutes when I got up to pee the tech guy came in and told me he could already tell we were dealing with severe apnea readings, and wanted to move to titrating with a nasal CPAP halfway through the night. The hope would be that this would save me from having to return for a dedicated CPAP titration study if my pulmonary specialist was satisfied with the readings once he reviewed them. So we shall see how that goes. Hopefully I will not have to return tomorrow night for a repeat performance.

That said, just getting 1/2 nights sleep with the CPAP even though they are not a fun mechanism (though I must say a nasal-only one is much, MUCH smaller than the ones they offered patients 12 years ago) I can tell having proper oxygen reaching my blood stream will be offering me MUCH MUCH in the way of a reduction of fatigue.

Now if I can get some resolution in the pain department, even if only by a half, I will be a new man indeed. Honestly I feel as if I've lost about 6 years from my life with all of this by the time it's all said and done. I think 2008 was the last year I can say I felt any degree of "normal" -- with the pain part. As far as apnea goes as far back as 2001 I has lower end readings for it so who knows how long I've had issues breathing while sleeping. I think possibly all my adult life because every boyfriend I've had has complained incessantly about it.
Title: Re: An on-going thread
Post by: Jeff G on October 29, 2014, 09:47:33 am
Sounds like progress Miss P !
Title: Re: An on-going thread
Post by: mitch777 on October 29, 2014, 05:32:37 pm
BETTY UPDATE . Her fractures in her ankle and leg are growing because she won’t stay off it and lets see what else ... her diabetic toe is infected and festering as we speak and she has pink eye . Tune in next week, Im predicting either venereal diseases or a heart murmur. I was talking to Betty on the phone and after we went over her list and began on my current its always something list we both just busted out laughing . Im all seriousness what do you say to a person who has to work for a living taking care of disabled people when she has major fractures herself ??? . I do not think I could do it . 

Poor Betty ... I am trying to persuade her to change her forum name to Calamity or something ... any suggestions ?

YIKES!! I only wish our dear Betty would come to the realization that doctors orders with this much going on need to be followed as much as taking your meds regularly. An infected toe being a diabetic isn't something to take lightly!! My grandmother lost her leg due to this and it's why I get so upset. Fractures growing? Hmm....

Betty, once again, if you don't give your body a chance to heal you will be no good down the road for those you want to help. Place the oxygen mask on yourself BEFORE assisting others darn it all! Mother Mark will be watching you missy. :P Please be exceptionally good to yourself for the rest of the year. NO excuses. Your roommate should realize that you should not be doing heavy shopping.

As for her new forum name, at this point it's Stubborn Sylvia. >:(

Sorry to come on so strong but YOU probably would give the same advice to one of your clients.

Meenie Mark sending my love.
Title: Re: An on-going thread
Post by: wolfter on October 30, 2014, 04:39:20 am
David, I truly feel for you.  I know the struggles I had with my insomnia and how it affected me. 

Betty, I'm shaking my head wondering how we can make you get well.  Perhaps we can tie you up and make you stay still for a while? 

Mark, been thinking about you a lot lately and am hoping everything is well.  I'll probably give you a holler this morning as I feel guilty for ignoring my friends. 

Jeff, WTF, you don't complain much so we think you lead a perfectly well life.  ;) 

Other than that I apologize for not being too present of late.  Things are changing so quickly in my life of late that I'm on a whirlwind.  Kinda weird that I tended to roll my eyes and passively listen to a lot of advice here but take it to heart now that a certain person suggests it.

Smoking way less, drinking way too much less and eating way more.  :)  I topped 150 lbs now so it's a change to worry about it for the right reasons.  I now get the "eye" every time I mention calorie counts.



Title: Re: An on-going thread
Post by: BT65 on October 30, 2014, 05:44:01 am
Mother Mark, I realize I should listen to the doctor and do what he says. The thing is it's just a terrible time to be taking any time off. It's the holidays and I have grandkids I need to buy presents for.

Greg, I don't think there's much you guys can do. It means a lot that you all listen to my ramblings.

David, sorry about your sleep issues. I hope things look better soon!

Something else happened to me a couple days ago. The chord for my iPad is trashed. So, I have to wait on my housemates son to get up so I can borrow his iPhone 5 chord to charge it.  I have no idea what happened to my chord, but I am tired of all this shit that keeps going on. I'm grateful his chord works, but it's very inconvenient.  I know that people end up paying more than what the product is worth, but I am seriously thinking about going to Rent-a-Center and getting a laptop.

Well this only has a 69% charge left so I should shut this off for awhile. I love you guys. Thanks for letting me ramble. Oh by the way, I am still smoking, but much less. I know it slows down healing.
Title: Re: An on-going thread
Post by: wolfter on October 30, 2014, 07:30:59 am
I could probably have started a new thread to discuss a regular topic but my energy level dictates that's not the way to go. 

I've often discussed the topic of stigma and I have strong opinions about it.  One of my older co-workers hung around to speak with me tonight.  we've never had a particarly pleasant relationship.

She needed to talk to me.  Her 33 year old neice killed herself because of the stigma of being gay and shaming her family.  She wanted to know how some of us deal with it all. 

I explained my total belief about stigma.  It is not an outside influence but rather our own internalized belief about how others view us.  I've said this enough to make it seem I know all the answers.  She wanted to know how I became confident enough to accept my sexuality. 

Stigma only exists to the extent that people allow.  Other peoples' opinion quit being a force a long time ago.  I'm truly grateful that I have that mindset and believe it with my core being. 

Before we can change others' perceptions, we have to adopt our own beliefs. 
Title: Re: An on-going thread
Post by: mrtoad on October 30, 2014, 09:37:30 am
I could probably have started a new thread to discuss a regular topic but my energy level dictates that's not the way to go. 

I've often discussed the topic of stigma and I have strong opinions about it.  One of my older co-workers hung around to speak with me tonight.  we've never had a particarly pleasant relationship.

She needed to talk to me.  Her 33 year old neice killed herself because of the stigma of being gay and shaming her family.  She wanted to know how some of us deal with it all. 

I explained my total belief about stigma.  It is not an outside influence but rather our own internalized belief about how others view us.  I've said this enough to make it seem I know all the answers.  She wanted to know how I became confident enough to accept my sexuality. 

Stigma only exists to the extent that people allow.  Other peoples' opinion quit being a force a long time ago.  I'm truly grateful that I have that mindset and believe it with my core being. 

Before we can change others' perceptions, we have to adopt our own beliefs.

Your combining stigma with internal homophobia two different things.They can go hand in hand,but not always.It's easier to not care what others think when you have support. When you don't , and it's your whole family and God knows how many others shunning (if that's all it was), it's not so easy.
You should have asked the aunt how supportive she was to her niece . I hope the family feels a different kind of shame now. About themselves .
Dealing with internal homophobia is different for everyone.Some had it imbedded stronger,longer,and deeper.Stigma is a much broader topic than just this.A family won't let you visit a sick friend because they're all hush,hush about them dying from aids.yes,oddly they know you already know,but it doesn't matter.That's just one example of many.A stigma can definitely lead to real world physical things , and a "mindset" of your own doesn't quite make everything ok then.

Sorry I rattle on,but have had alot of stigma towards me in the last few years.We have a right to,and it's not wrong thinking, Imho , to feel loss,sorrow and even anger towards it.But let's put blame where it belongs.On them, not ourselves.We live in a age where science proves we are born gay, you'ld think that would count for something.
Title: Re: An on-going thread
Post by: mitch777 on October 30, 2014, 05:30:22 pm
Mother Mark, I realize I should listen to the doctor and do what he says. The thing is it's just a terrible time to be taking any time off. It's the holidays and I have grandkids I need to buy presents for.


Betty dear, I said NO excuses and I meant it! I know I said this to you before but your grandkids want your health more than presents. If they are too young to understand it now I know they will later on. I think your daughter would agree.

Anyway, I'm glad you cut back your smoking. Now to get you to sit still!!

Sorry to hear about your computer problems. You have my empathy.

Love you.
Title: Re: An on-going thread
Post by: wolfter on November 02, 2014, 09:37:02 am
Another amazing weekend.  Not sure if I mentioned it, but I switched hours at work so I can have Saturday and Sunday off.  Now that I have a life and all.

It got really cold here last night and I brought an air matress in the LR in front of the fireplace and started a huge roaring fire.  Laid and watched the late Ohio State game and sipped sangria.  End up falling asleep and we slept there all night.  :)  how cute, acting way too young for our ages.  I got up early and just stared at him resting so peacefully.

Title: Re: An on-going thread
Post by: Miss Philicia on November 04, 2014, 10:30:26 am
1) second attempt at CPAP set up/delivery begins in two hours

2) playing phone tag in an attempt to pin down the date of my outpatient surgery for the neurostimulation device 7-day trial. Supposedly this will occur on 8 December so I will know before going home for Christmas if it's something that I will be moving forward on in terms of actual full implantation. Otherwise they will move on to opioid treatment, but probably wait for a couple months stable readings with my sleep apnea to do that.

3) my acid reflux issues have been solved -- evidently it was my Celebrex that was causing it. I began taking that medication for arthritis back in February and if I'd thought more carefully I would have made the connection. My HIV doctor thought that was causing it but added Prilosec to address it, which at first seemed to work but then after a month or so I was back to having it -- always nocturnal reflux ~1 hour after onset of sleep. My apnea specialist thinks it was also multi-factorial in that apnea can exasperate such things because it forms a vacuum situation on your upper stomach sphincter muscle allowing acid to rise into your esophagus. Regardless, I halted celebrex exactly three weeks ago and have had no further instance of nocturnal acid reflux, though I am still taking Prilosec for six weeks per doctor's orders and then trying doing without.

4. Halting celebrex full on though means, of course, the return of my achy joints from arthritis, though fortunately thus far what has shown up on any x-rays is "mild" oust-arthritis which is still unpleasant enough that I have no desire to know what moderate or worse arthritis feels like. Hopefully if/when I go on stronger pain meds that will help mask some of this issue.
Title: Re: An on-going thread
Post by: BT65 on November 05, 2014, 07:16:56 am
Greg, your weekend sounds delightful.  I'm so glad you're having some good times.

Ms P, I hope the cpap device is effective and normalizes your breathing.  As far as the arthritis, I'm glad you mentioned the GI issues with the Celebrex.  When I took it I did develop GERD symptoms despite being on Protonix.  Since having these fractures I was switched to Ibuprofen since I can take that throughout the day (the Celebrex effectiveness ceased after about 5 hours). 

Tomorrow I go see my doctor to fill out some work papers.  The boss said they can make accommodations and put me on lighter duty dependent on what the doctor says.  So we'll see.  I believe I've reported being off last weekend at the employer's insistence. 

Otherwise today is my best friends birthday.  Sunday we're having a dinner for her at her favorite restaurant.  I still need to buy her a card.  I got out yesterday thanks to a friend taking me shopping.  He actually drove one of those electric carts out to me so I could maneuver throughput the store, which was nice.  I hadn't done grocery shopping for awhile.

Oh, I wanted to mention arthritis, since Ms P brought it up.  Besides having AVN in both knees, I also have severe osteoarthritis.  When I wake up in the morning, it takes me about 10 minutes of getting balanced and in a position where I can walk without beyond severe pain. While I know part of it is my fractures, not all of it is.  I have been surprised at how well my left knee has handled the extra pressure put on it (leaning on it constantly).  Maybe that Syn Visc has been effective.

That's it for now.  I'm trying to decide if I'm going to go back to sleep now, eat breakfast, or pee.  Maybe I will do all three lol.
Title: Re: An on-going thread
Post by: Miss Philicia on November 05, 2014, 10:43:32 am
Update: I had my first CPAP sleep night and it went amazingly well. First step is to watch TV for 30-60 minutes with the mask on your face, or at least the straps so that you get used to it, then get in bed and hook the hose up to the machine and press "go"!

Don't know about you folks with older models, but mine is very high tech and allows for a programmable "ramp up" session while you are falling asleep. My apnea therapy setting is "11" but I have it programmed to begin at "4" and gradually increase over a 40 minute period to "11" so by that time I am asleep and subconsciously adjust to the oxygen forced pressure. And I just checked my machine's data recording at I had a solid 6.5 hours of continual therapy. I was in bed for 7.5 hours so actually that's a good reading especially for the first night. I did't wake up a single time from discomfort

Also, my machine has a built in humidifier so I don't wake up feeling at all dried out, and the levels for that are also all adjustable.

Oh, one more thing -- my neurostimulation trial implant outpatient surgery will occur on 8 December and it's for 7 days. After that I'll know how we will proceed. I must feel a minimal 50% reduction in pain to qualify for an actual full implant, and if I do not then we move to an opioid based treatment though looking at the calendar my bet is he will not want to begin that until after my first visit with my sleep apnea doctor which is on 14 January. So the wheel turns ever so slowly on the pain front, unfortunately. Which probably means once again I'll be screwed if I try and have my 50th Birthday celebrations in NYC in February, but I am determined to do so. edit: sorry I see I already mentioned this down below, but the date wasn't completely confirmed to me until this morning.

(http://i58.tinypic.com/a5ddkx.jpg)
Title: Re: An on-going thread
Post by: mitch777 on November 05, 2014, 01:17:06 pm
David, Nice to hear your CPAP is working so well and that you don't find it uncomfortable. Good luck with all of the pain stuff!

Betty, Hopefully after your leg heals and you are more mobile your arthritis will improve.

Day 5 on my Adivan. I didn't notice anything different so I took a second pill today just to see if I turn into a werewolf or a panda. Other than that, all is pretty decent other than my usual daily headaches, fatigue, etc. Oh, and a pesky gut ache that won't leave me alone.

Update on my cervical steroid injections:
The pain in my tricep has improved about 50%
The pain in my forearm has improved about 30%
The numbness in my forearm and hand improved about 10%

Not great but not too bad either.

Title: Re: An on-going thread
Post by: J.R.E. on November 05, 2014, 06:12:49 pm
 ???

I had a follow up appointment today with my primary care doctor. This was to discuss labs taken on 11/3/14.

The doctor's concerned,  because on the urine test, there appears to be Red blood cells in the urine.

    TEST                 RESULT             RANGE
URINE RBC/HPF----- 7 ( HIGH)-------0-3

Red blood cells in urine could indicate:

    Kidney and other urinary tract problems, such as infection, tumor, or stones
    Kidney injury
    Prostate problems
    Bladder or kidney cancer


So, she ordered another urine test and some more blood tests, scheduled for 11/19/14, and depending on those results, a c-scan could be ordered for the abdomen area.

Otherwise :

TOTAL CHOLESTEOL ---- 201

TRIGLYCERIDES--------- 156

HDL CHOLESTEROL------ 64

LDL CHOLESTEROL ------ 106

TC/HDL-----------------3.1

LDL CHOLESTEROL CALC---106

GLUCOSE---------------108 ( the doctor really would like to see this below 100


All other tests were within range,...


So,....Back to the clinic on the 19th, to try to find out whats going on.

I haven't felt sick.  ???

EDITED TO ADD I haven't noticed any blood in stools or urine


Ray
Title: Re: An on-going thread
Post by: mitch777 on November 05, 2014, 06:20:00 pm
???

I had a follow up appointment today with my primary care doctor. This was to discuss labs taken on 11/3/14.

The doctor's concerned,  because on the urine test, there appears to be Red blood cells in the urine.

    TEST                 RESULT             RANGE
URINE RBC/HPF----- 7 ( HIGH)-------0-3

Red blood cells in urine could indicate:

    Kidney and other urinary tract problems, such as infection, tumor, or stones
    Kidney injury
    Prostate problems
    Bladder or kidney cancer


So, she ordered another urine test and some more blood tests, scheduled for 11/19/14, and depending on those results, a c-scan could be ordered for the abdomen area.

Otherwise :

TOTAL CHOLESTEOL ---- 201

TRIGLYCERIDES--------- 156

HDL CHOLESTEROL------ 64

LDL CHOLESTEROL ------ 106

TC/HDL-----------------3.1

LDL CHOLESTEROL CALC---106

GLUCOSE---------------108 ( the doctor really would like to see this below 100


All other tests were within range,...


So,....Back to the clinic on the 19th, to try to find out whats going on.

I haven't felt sick.  ???

EDITED TO ADD I haven't noticed any blood in stools or urine


Ray

Hope they figure that out Ray. On the other hand your cholesterol levels are pretty darned good. Keep us posted.
Title: Re: An on-going thread
Post by: wolfter on November 05, 2014, 08:51:17 pm
trying to read through this all and be supportive.  I appreciate you all and you've all helped me through some darkness. 

Title: Re: An on-going thread
Post by: guitargal on November 06, 2014, 02:30:48 am
I just want to say hello…

Hello!

I read the last few pages to see what you all have been up to..
WHEW!

Amazing great and awesome how supportive you all are..Kind thoughtful intelligent.

Toad had some good points about stigma..and people with broken bones in the leg are supposed to rest!
Being on pain meds sucks, wish I knew why i had pain and could make it go away..tethered to the doctor's office for the scripts, the crappy way one feels if they wait too long between doses and then the pain gets ahead of them..but better than not being on them. I was denied for months and layed in bed crying.not eating not sleeping..what kind of doctoring is that! all because of the "crack down" in my town..and I had never taken pain meds in my life..

i digress..
just needing some support and when i visit the LTS here I feel normal..

thanks people!
Title: Re: An on-going thread
Post by: Jeff G on November 06, 2014, 03:06:14 pm
I talked to Betty today ... Last night she was walking across the kitchen to put a plate in the sick and her leg broke and she is now in a cast . She is uncomfortable but hanging in there like she always does . It’s the leg with a fracture I think . Prayers and positive thoughts for Betty please .
Title: Re: An on-going thread
Post by: Miss Philicia on November 06, 2014, 03:25:02 pm
I'm sorry? I think something is missing from that sentence -- she was just walking across the room... something about a plate (?) and her leg just suddenly broke for no reason? How odd. Any ideas from the doctors on what's going on? How awful.

I suppose putting her in a cast will be one way to keep her tied down, though she should probably be strapped into a bed at this point.
Title: Re: An on-going thread
Post by: mitch777 on November 06, 2014, 05:20:19 pm
Oh no!!!
Title: Re: An on-going thread
Post by: Jeff G on November 06, 2014, 05:30:03 pm
I'm sorry? I think something is missing from that sentence -- she was just walking across the room... something about a plate (?) and her leg just suddenly broke for no reason? How odd. Any ideas from the doctors on what's going on? How awful.

I suppose putting her in a cast will be one way to keep her tied down, though she should probably be strapped into a bed at this point.

Nothing missing ... she was just taking a dish from the table to the sink and she said her leg popped so loud her roommates heard it .

I would never say I told her so when I told her to stay off her feet cause I am not that kind of guy ... but I told her so .
Title: Re: An on-going thread
Post by: Miss Philicia on November 06, 2014, 05:44:29 pm
I just spoke with her and had it explained.
Title: Re: An on-going thread
Post by: Jeff G on November 06, 2014, 06:49:37 pm
I just spoke with her and had it explained.

Im happy for you .
Title: Re: An on-going thread
Post by: harleymc on November 07, 2014, 05:22:45 am
I keep pleading with my bit of squeeze to strap me to the bed but no luck so far....

I'm sure that even if I had a broken leg he would demand the dishes get washed.
Has my bloke been seeing my Betty on the side?
Title: Re: An on-going thread
Post by: wolfter on November 07, 2014, 07:45:56 am
So far this week, I've installed about 600 sq feet of laminate by myself and the body feels it this morning.  I could barely move this morning when I got up.  With all the bones issues over the last couple of years, my muscle mass has went to shit.  I've been working muscles I forgot I had.

And since I still have about 1200 sq feet more to install, I broke down and accepted some offers of help this weekend.  I tend to be stubborn and don't like accepting help unless it's absolutely critical. 

I meet with a bone specialist later this month at OSU who has vast experience with osteoporosis and HIV.  Hopefully I'll get some answers to why so many us are developing powdery bones.  And more importantly, what can be done to prevent further loss and maybe how to correct the damage that's already done.
Title: Re: An on-going thread
Post by: Miss Philicia on November 07, 2014, 10:21:13 am
As an aside for those of you with bone issues and are on Viread/Truvada, the formulation for that new "pro-drug" version of tenofovir was just filed by Gilead for FDA approval, but only in their combo pill with Stribild. While not useful if you are on another combo there was this little blurb in the write up on Poz.com (http://www.poz.com/articles/TAF_Stribild_761_26374.shtml):

The NDA application also contains data from Phase III studies that tested the TAF-including Stribild among virally suppressed people with HIV who switched from another antiretroviral regimen to the combination drug, as well as among those with kidney impairment. Research on the individual components of the new Stribild is also included in the application.

If you are not aware of TAF it's a version of tenofovir with much lower toxicities -- read the entire write up at that link for a better explanation.
Title: Re: An on-going thread
Post by: Wade on November 08, 2014, 08:52:07 pm
Hey MP,
A little behind in the thread,  I didn't realize you wear that every
night . Guess It's worth it if it works and gives you a good night sleep.
Insomnia is a miserable bitch , went through it for periods when my Meds were
switched , but not the long periods you experienced.

Glad It's comfortable enough for you to sleep , and hope it continues to work for you. Do what we have to do.   When in Feb is your Big 50 Birthday  ?
Title: Re: An on-going thread
Post by: Theyer on November 10, 2014, 03:25:18 am
Miss P,

Am I right in also thinking that the condition you have as well as cutting up your sleep also greatly cuts down on the oxygen in your blood.??
Any how it was good to read that they had improved the design off the space pinkish thing you sleep in to the extent that you slept unhindered. Here,s to nights off zzzzzzzzz for you.
M
Title: Re: An on-going thread
Post by: Jeff G on November 10, 2014, 09:33:18 am
In the last 6 months, probably longer I have had one good week . It was last week, I woke up one day and thought WTF is going on here, I actually feel good .

I have a fever of 100 and some kind of bladder or kidney or maybe prostate thing going on. I do not come online and post very often about my health issues because they never really go away and I am in constant pain and seem to go from one infection to the next . I have been on antibiotics a staggering amount of time in the last 6 years .

The infections started when my cd4 count improved and I was taken off Bactrim ... my doctors finally convinced me that there are no connections between being off a maintenance dose of antibiotics that I took for 15 years  and my chronic infections and said that there is no basis in science to suggest a connection .

Im going to the doc at 11 and see what he suggest ... Im sick to death of being sick .
Title: Re: An on-going thread
Post by: Miss Philicia on November 10, 2014, 10:03:59 am
All right children, let's clear some things up. Sleep apnea doesn't mean one has insomnia -- that's an entirely different sleep issue. Sleep apnea comes in two forms, obstructive and central, the first being the most common. What happens with obstructive sleep apnea is that during sleep you wake up many times an hour (actually often every minute when it's severe) for brief seconds because your airway muscles will not support keeping the -- except that you do not consciously wake up. So it sounds not like common snoring if you have a bed partner, but more like a pig digging around in dirt with his/her snout.

And yes, this reduces blood oxygen saturation but it's not something that seems to show up in my HIV blood work (carbon dioxide blood work is always normal)  -- and mind you I have had a sleep apnea diagnosis since 2001, though at the time the reading was "mild", and severe apnea diagnosis since 2011 so I don't know at what exact year it reached severe in that period. Roommates have complained about my snoring since I was a freshman in college, so I think I may have some sort of long term defect. btw, a severe apnea reading is >30 apnea episodes per hour.

The CPAP I was prescribed is actually a snazzy $1200 unit, fully automated (these are actually called "Auto-CPAP machines". Aside from coming with a dry box technology humidifier (eradicates all water seepage issues even if the unit is knocked over during sleep, and monitors your bedroom climate to determine proper settings automatically) as well as "Advanced Event Detection and Response" (Auto detects and tracks leaks, snoring, Flow Limitation, Apnea Hyponea Index, Hyponea, Periodic Breathing, Respiratory Effort-Related Arousals, Clear Airway Apnea, and Obstructed Airway Apnea. All of this detection technology is tracked using a standard SD data card). It also detects you exhaling pattern and adjusts the inward flow automatically.

So it's more than just an air pressure machine as you can see -- it's rather more like that but with everything automated by a small computer chip. But what it's NOT doing is giving me extra oxygen, it's just taking oxygen from the environment (and yes there are two filters!)

ps: I achieved 7 hours of therapy last night (therapy reading meaning maximum H2O pressure pre-set by my sleep specialist). I have it set for a lower intake of air (7 instead of my therapy setting of 11) for 25 minutes during which I fall asleep. It's a bit uncomfortable to try and fall asleep with it going full blast at the 11 setting, at least for now.

Any more questions?
Title: Re: An on-going thread
Post by: Wade on November 10, 2014, 10:14:22 am
Hi Jeff ....No I have never heard you complain , you are always supportive of everyone ,and some of your posts crack me up !
I hope you get to the bottom of this , and start feeling well again.
Good luck at the Doc today.

All My Best ,Wade
Title: Re: An on-going thread
Post by: Jeff G on November 10, 2014, 10:16:22 am
Hi Jeff ....No I have never heard you complain , you are always supportive of everyone ,and some of your posts crack me up !
I hope you get to the bottom of this , and start feeling well again.
Good luck at the Doc today.

All My Best ,Wade

Thanks Wade !
Title: Re: An on-going thread
Post by: mitch777 on November 10, 2014, 05:16:05 pm
In the last 6 months, probably longer I have had one good week . It was last week, I woke up one day and thought WTF is going on here, I actually feel good .

I have a fever of 100 and some kind of bladder or kidney or maybe prostate thing going on. I do not come online and post very often about my health issues because they never really go away and I am in constant pain and seem to go from one infection to the next . I have been on antibiotics a staggering amount of time in the last 6 years .

The infections started when my cd4 count improved and I was taken off Bactrim ... my doctors finally convinced me that there are no connections between being off a maintenance dose of antibiotics that I took for 15 years  and my chronic infections and said that there is no basis in science to suggest a connection .

Im going to the doc at 11 and see what he suggest ... Im sick to death of being sick .

It's about time we hear about what you constantly go through. I get the skinny but most people are going to think you just plug along without a care in the world. Having a rare week of feeling good is something I relate to as I bet some others would too. It's a support forum, or so I've been told.

Hope they get this figured out once and for all so you get your next allotted week of feeling like Jack LaLaine. (sp)

Hugs,
Mark
Title: Re: An on-going thread
Post by: Jeff G on November 10, 2014, 05:20:31 pm
Thanks Bark . Its just another one of my prostate infections ... antibiotics and a big ass shot to kick start them .
Title: Re: An on-going thread
Post by: BT65 on November 10, 2014, 05:25:04 pm
Jeff, I love yu.  Call if you need to. Or I may call you later lol.  Did you like my purple cast?
Title: Re: An on-going thread
Post by: Jeff G on November 10, 2014, 05:31:14 pm
Jeff, I love yu.  Call if you need to. Or I may call you later lol.  Did you like my purple cast?

I love the purple cast . When I was a wee boy my girl friend broke up with me when another class mate broke his arm and got a cast ... she thought it was so very cool and told me we could get back together when his cast come off . That whole year I secretly wished I had a broken bone and a cool cast for everyone to sign .
Title: Re: An on-going thread
Post by: Theyer on November 11, 2014, 04:08:10 am
In the last 6 months, probably longer I have had one good week . It was last week, I woke up one day and thought WTF is going on here, I actually feel good .

I have a fever of 100 and some kind of bladder or kidney or maybe prostate thing going on. I do not come online and post very often about my health issues because they never really go away and I am in constant pain and seem to go from one infection to the next . I have been on antibiotics a staggering amount of time in the last 6 years .

The infections started when my cd4 count improved and I was taken off Bactrim ... my doctors finally convinced me that there are no connections between being off a maintenance dose of antibiotics that I took for 15 years  and my chronic infections and said that there is no basis in science to suggest a connection .

Im going to the doc at 11 and see what he suggest ... Im sick to death of being sick .


At last , A post about your chronic lack off health , folk need to know Jeff that that the last 6months.  ( yeah right ) you have had no health. I have no doubt that healthy days are ahead for you dear heart , wee /&chest infections are horrors for us to get rid of. So please do all you can to get well ,
Love
Michael
Title: Re: An on-going thread
Post by: Miss Philicia on November 11, 2014, 06:13:51 am
Yet another night of only six hours of CPAP sleep -- I just can't seem to sleep longer. And I know that's two nights in a row that my chin strap is off when I wake up.

... what to do what to do. I'll give it until Friday and if that keeps coming off I guess I'll call somewhere and see what alternatives there are for that issue. The issue is important because the chin strap was to address what my body does when entering into the REM/deep sleep stages, and if you know anything about sleep stages that 20% that is normal for REM/deep sleep is your body's most important in terms of addressing energy/fatigue as well as reparative work in your brain for memory. And coincidently your REM sleep state is at its longest the last hours that you sleep.
Title: Re: An on-going thread
Post by: BT65 on November 11, 2014, 06:39:36 am
I talked to Jeff last night and he was resting so I have confidence in his recovery. 

If I get 6 hours sleep at night, I consider it a good nights sleep.  Last night I went to sleep around 11pm, and got up at 5am.  Woke up once at 3am but went back to sleep. This pattern has been going on for a couple weeks, where I go back to sleep instead of getting up in the middle of the night. 

But I realize we all have different sleep needs.  I hope yours improve, MP.
Title: Re: An on-going thread
Post by: Jeff G on November 11, 2014, 09:26:23 am
I'm feeling better today . The doctor was pretty confident on what antibiotic to use but he sent my urine to a lab to see whats best to treat it with anyway . 
Title: Re: An on-going thread
Post by: Miss Philicia on November 11, 2014, 10:08:07 am
I'm glad that you are feeling better. Next time disinfect your large fire-engine red butt plug.
Title: Re: An on-going thread
Post by: Jeff G on November 11, 2014, 10:45:54 am
I'm glad that you are feeling better. Next time disinfect your large fire-engine red butt plug.

Its old and orange now but thank you very much .
Title: Re: An on-going thread
Post by: mitch777 on November 11, 2014, 08:30:01 pm
So...
I've been keeping track of my medical visits (of any kind) since 1/1/2011 for my disability case. I also started printing out my thoughts before I see my Psychiatry/Therapist appointments. I wondered if it was a good idea but she assured me that people with anxiety often feel it is an easier and a more honest way to communicate. I agree.

Anyway, my first sentence was that this is visit #187 and I have yet to get a lollipop.

She offered a Riccola. (sp?) lol.

Title: Re: An on-going thread
Post by: wolfter on November 13, 2014, 04:43:22 am
I sure have been missing out on a lot but am thinking of you all and wishing continued improved health.

I didn't post about it first in case something went wrong, but I managed to get on the roof yesterday to clear all the leaves.  The ladder says not to use the top as a step but I had no choice.  :)  Getting up was easier than coming down but no new mishaps to report.  Then I went on to rake and bag 12 huge bags of leaves.  Of course my allergies will play hell for a couple of days but it needed done.

The love life situation is still going well.  I've always found it quite easy to find someone to go to bed with, more difficult to find someone to wake up with.  LOL  I guess my slutty AMG days are over. 
Title: Re: An on-going thread
Post by: BT65 on November 13, 2014, 07:56:15 am
M, I guess a Riccola is better than a kick in the head.  Lol.  I've been thinking about going back into therapy.  When I am able to get around.  My self esteem has taken some serious hits.  I hope your visits are good ones and that you get the help you need.  Quite a few visits, but I realize if counting weeks, it's pretty normal.

Greg, that's a lot of outdoor work.  I'm glad you didn't fall off the ladder.  I hope your allergies don't give you too many difficulties.  I'm happy to read your relationship is continuing to do well.  I can totally relate to it being easier to have one nighters vs longer term relationships.  Wishes for continued happiness.

Well, I hope everyone else is doing well.  I'm going crazy around here and am definitely going to have to get a hobby. Lol. Any suggestions are welcome. 

Betty



PS.  It's snowing!  And it's sticking! Ick!
Title: Re: An on-going thread
Post by: wolfter on November 13, 2014, 01:39:29 pm

Well, I hope everyone else is doing well.  I'm going crazy around here and am definitely going to have to get a hobby. Lol. Any suggestions are welcome. 

Betty



PS.  It's snowing!  And it's sticking! Ick!

I use my sewing machine a lot during down times.  I love making clothes and I could do it easily while crippled up.  I have a feeling you're a bit like me when it comes down to inactivity.  I go absolutely stir crazy if I can't be productive. 

Yeah, it's snowing here too.  We're not supposed to be above freezing for at least a week.
Title: Re: An on-going thread
Post by: mitch777 on November 13, 2014, 05:52:17 pm
Betty, Some might think a kick in the head is what I need. lol.

Greg, On another ladder? I just read somewhere recently that you can add an extension to a leaf blower with PVC pipe with a curve on the end to clean gutters without a ladder. Maybe a good project for next year? THIS IS NOT A STEP. lol.

As for the snow.....
Ugh, ugh, ugh!
Expecting a dusting to 2" to wake up tomorrow. :(

Title: Re: An on-going thread
Post by: Theyer on November 14, 2014, 05:52:16 am
Betty--  I can understand the self esteem bit taking a hit , its not rational but I did feel I had some how failed by breaking bones, however when I butched the thing up by saying it occurred in a Mountaineering accident I briefly felt better until I realized that creating false histories  was some what adding to the Mental Health concerns.

Greg ---sometimes I think your ambition is a head to toe cast.However I remind you off the free accommodation in London , new Hubby can also come , I will move out. The list off jobs will be taped to the fridge , Enjoy!

Jeff-- Hope your reading this feeling Good.
David -- If success was always the result off perseverance 8 hours sleep will be yours,

Mitch  I am about to start a treatment diary. Always shied away from one as I thought it would be depressing then seeing my Fat Hospital File with VOL--18 marker Penned on it made it less depressing.

Kind off Jealous about the snow, I know the reality is differant but I do love looking at it.
Title: Re: An on-going thread
Post by: Miss Philicia on November 15, 2014, 07:27:55 am
So finally, on my 11th night of using that CPAP machine, I have gotten 7.5 hours of sleep. What an achievement!

And now it's just 3 more weeks until my Neurostimulation implant surgery and trial.
Title: Re: An on-going thread
Post by: mitch777 on November 15, 2014, 05:05:51 pm
So finally, on my 11th night of using that CPAP machine, I have gotten 7.5 hours of sleep. What an achievement!

And now it's just 3 more weeks until my Neurostimulation implant surgery and trial.

Progress!
Title: Re: An on-going thread
Post by: BT65 on November 15, 2014, 05:18:18 pm
Good news Ms P!   How difficult is it to sleep with that on or don't you notice it because you're getting good sleep?

And Jeff, how are you?  Hmmmm?

I'm doing pretty good but my chest muscles hurt.  It's funny, because it feels like it's a bad case of pneumonia, but when I breathe deeply my lungs are fine.  So it's just from me pulling my body weight on the walker.  So that makes me feel like a body builder lol.  Also I believe I am ready to try stairs.  Just start outside with 2, then slowly graduate to the stairs in here.
Title: Re: An on-going thread
Post by: Miss Philicia on November 15, 2014, 07:50:41 pm
Good news Ms P!   How difficult is it to sleep with that on or don't you notice it because you're getting good sleep?

Honestly it's not as bad as I thought it would be. Getting to sleep I have no problem with actually. Probably takes me 15 minutes on average, and I actually toss and turn less with this on. And oddly in 11 days I haven't had to wake up and pee a single time. It's only the last hour of sleep that I wake up and sometimes have to adjust the "nasal pillow" as it's called because it will go slightly off my nose and the air leaking out wakes me up. So it's a matter of forcing myself to stay in bed and catch another hour of sleep, which I am training myself to do.

Maybe in another week I'll actually achieve the magical 8 hours. 7.5 hours is fine though. Though thus far I am still finding myself napping midday if I lay on the sofa, though some days I've managed not to. I didn't nap today actually.
Title: Re: An on-going thread
Post by: Theyer on November 20, 2014, 05:18:54 am
Good news Ms P!   How difficult is it to sleep with that on or don't you notice it because you're getting good sleep?

And Jeff, how are you?  Hmmmm?

I'm doing pretty good but my chest muscles hurt.  It's funny, because it feels like it's a bad case of pneumonia, but when I breathe deeply my lungs are fine.  So it's just from me pulling my body weight on the walker.  So that makes me feel like a body builder lol.  Also I believe I am ready to try stairs.  Just start outside with 2, then slowly graduate to the stairs in here.

Betty--I am thinking that all this has been checked out with Phsiotherapist with the technique for turning on the stairs covered as well as the descent.

Using the walker for the first time gave me a nagging ache either side off the base off my neck. Holding the cast up bum cheek did spasms if I ignored the initial pain . My preferred way off getting around the Hos was backward in a visits wheelchair using my good leg for propulsion \braking and nifty turnabouts.


Miss P---I am glad progress continues .

Jeff ---Tell us what goes on , people are concerned
Title: Re: An on-going thread
Post by: Jeff G on November 20, 2014, 08:47:37 am

Jeff ---Tell us what goes on , people are concerned

Today is a good day . My biggest issue is the chronic pain issue but its nothing new to me and I most times cope well with that and have accepted it as part of my life . What gets me down is the constant low grade infections I get and the fact that I don't really always feel like doing things or getting out to see friends, travel .

I do not down play my problems but the truth is many of the people on this forum and in my life deal or are dealing with much more than my load to bare. I can lay down when I feel bad, I have good doctors that look out for my health and insurance to pay for it all . I have a nice home and I am comfortable and can make ends meet and not sweat the basics so all in all things could be worse for me. When I have a crisis or need help working it out I know there is support here for that and I wont be let down but my issues are nothing new and they are not going to get any better so I don't spend much time talking about them except with my therapist and pain management docs .   
Title: Re: An on-going thread
Post by: Wade on November 20, 2014, 09:57:24 am
Hi Jeff ,
Chronic pain and constant low grade infections are a LOT to deal with.
I don't know how you handle it as well as you do.
I was in pain with both my knees for many years , it does affect your life
and sometimes others don't understand . I still have pain in many of my joints
from OA , but it is tolerable , or like you said it is part of my life .

I know your pain is from a different source , and is worse ,and I truly feel for you.
You have a great attitude , and sense of humor . I too fell bless to have a nice home , good medical care ,and I can lay down when I flat out feel like shit.
I know many can not. Never say never, I hope maybe they will figure this shit out eventually ,and you will be pain free and well again . Hope you start having more good days.
                         All My Best ,Wade
Title: Re: An on-going thread
Post by: Miss Philicia on November 20, 2014, 10:28:58 am
I'm starting to wonder if I will ever get my pain issues sorted out -- it's actually worse now because a month ago I went off my arthritis medication to see if that was the cause of my recurring nocturnal acid reflux issues (even though they'd thrown prescription daily prilosec at me). The good news is that solved the issue completely, so I'm now off both celebrex and prilosec, but now of course my arthritis has come raring back and combined with my neuropathy (thus far not really treated), podiatry issues, and sleep apnea/CPAP it's definitely contributing to my waking up too early every day. I think I only slept 5 1/2 hours last night.

very over it all
Title: Re: An on-going thread
Post by: Wade on November 20, 2014, 10:58:49 am
I rely on over the counter anti inflammatory drugs , for my arthritis
I also have a 325 mg Bayer aspirin in my AM slot,
The wonder drug ! , not good on an empty stomach, is also a blood thinner.
My lipid panels are always good Cholesterol stays between 120-130 triglycerides 110
I don't know if it helps or is all in my head  ! think it relives some of the stiffness

I only had neuropathy once , it was many years ago when taking videx
the pain was horrid, felt like both my legs were in a vice. I sympathize
with everyone who suffers with it.
 ( my spelling is so bad , the spell check says add to dictionary for some of my words ! )  Oh Well....
Title: Re: An on-going thread
Post by: BT65 on November 20, 2014, 04:14:14 pm
Michael, the doctor hasn't said a thing yet about physical therapy, but I imagine he will after some time.  I can make it down and up the garage steps, which are only 2, but one is pretty steep.

Jeff, you know I can relate to the pain thing, you and I have talked about it many times.  It is a bitch to deal with every day, I know.  You do it well,though.  I wish we could waive it away.  Hang in there. 

Ms P, I thought you were sleeping better? I tried Celebrex but it always wore off before bedtime.. Not sure if it caused GERD or not, because I take a Protonix every day.  Anyway I went back on Ibuprofen 600, which I take 4 times a day.  I do hope that things improve for you. 

I still have insomnia but it doesn't seem to be as bad as it was, in that I'm not getting up at 3am.  I actually go back to sleep until around 5am.  Some nights that means only 5 hours of sleep, but it's better than it was. 

That's something to be very grateful for. 




Title: Re: An on-going thread
Post by: Jeff G on November 20, 2014, 05:08:15 pm
I did get the result from that cognitive test thingy I did awhile back . I have A.D.D but I always kind of knew that anyway .
Title: Re: An on-going thread
Post by: mitch777 on November 20, 2014, 06:28:50 pm
Pain, broken bone mobility, insomnia, infections, neuropothy,etc. ...  I guess we old timers just underplay it all after living with it for awhile. It becomes the norm.

That's not to say we don't keep trying to better the ailment of the moment.

I'm bushed so I won't be replying to each of you tonight but I do hope you all find improvement in whatever bugs you most.

I went to my Neurologist today. Same allotted 15 minutes of time. :( I told him that I got an overall improvement of about 25% after my injections. He then suggested Botox again at a higher dose. Not just for my daily headaches but he thinks injections in my shoulders might help with the tremors I have been getting in my left hand and more importantly my bobble-head neck. (a recent thingy since the steroid injections) Jeff told me that I caught it from Katherine Hepburn. This might be true.  ???

Jeff, I'm not surprised about the ADD diagnosis but you never have any attention problems with making people laugh.

Love you guys.
Title: Re: An on-going thread
Post by: J.R.E. on November 20, 2014, 06:58:38 pm
???

I had a follow up appointment today with my primary care doctor. This was to discuss labs taken on 11/3/14.

The doctor's concerned,  because on the urine test, there appears to be Red blood cells in the urine.

    TEST                 RESULT             RANGE
URINE RBC/HPF----- 7 ( HIGH)-------0-3




Ray


I had another urine test done  ( 11/19/14)  at the VA clinic. I didn't have my cell phone with me today, but a nurse called me back ( I missed the call-and got the message),   and wants me to call the clinic tomorrow.

So,...  I  will call tomorrow, and find out what's going on.  Doctors and staff , don't usually call from the VA, so something might be going on, OR, They could say the results of the urinalysis was "Normal", and no further action is necessary.


Will give a follow up as I find out more tomorrow !


Ray
Title: Re: An on-going thread
Post by: Jeff G on November 20, 2014, 09:59:52 pm
I was settling in for the evening when I got a call from the hospital that my aunt who had surgery to clean the plaque out of her neck artery was now on life support . Its not looking good for her so I will be in and out of here for next few days . I am going back the hospital to sit with her tonight as I do not want he to be alone .
Title: Re: An on-going thread
Post by: BT65 on November 20, 2014, 10:55:41 pm
You're such a good person, Jeff. Your aunt doesn't know how lucky she is to have you.
Title: Re: An on-going thread
Post by: weasel on November 21, 2014, 09:29:06 am


     Jeff ,
             I'm sending a prayer for you and your Aunt .
     Hoping all goes well .

                                     Carl
Title: Re: An on-going thread
Post by: J.R.E. on November 21, 2014, 11:07:58 am

I had another urine test done  ( 11/19/14)  at the VA clinic. I didn't have my cell phone with me today, but a nurse called me back ( I missed the call-and got the message),   and wants me to call the clinic tomorrow.

So,...  I  will call tomorrow, and find out what's going on.  Doctors and staff , don't usually call from the VA, so something might be going on, OR, They could say the results of the urinalysis was "Normal", and no further action is necessary.


Will give a follow up as I find out more tomorrow !


Ray


Just to give a follow up,...  I called the VA clinic this morning, and "EVERYTHING" was A-OK with the urine sample I supplied on Wednesday. No RBC in the urine !!



Ray
Title: Re: An on-going thread
Post by: Buckmark on November 21, 2014, 11:21:15 am
Ray -- So happy that your urine test turned out well, and showed no red blood cells.  I had a bit of a scare with my urologist who found them in my urine a few months ago.  Then we realized that it because of my blood thinners.  I was tapering off Coumadin for an upcoming procedure, switching to Lovenox daily, and had my portacath flushed with heparin.  The Lovenox and Heparin were both within 2-3 hours of my urine test.  Duh!

Jeff -- I am so sorry to hear about your aunt.  I am glad you can go and be with her!    Prayers on the way for both of you.
Title: Re: An on-going thread
Post by: Wade on November 21, 2014, 01:24:43 pm
Great news Ray !

Jeff , you have some tough days ahead , my heart goes out.

            Wade
Title: Re: An on-going thread
Post by: mitch777 on November 21, 2014, 03:24:38 pm
Geez Jeff, you sure are making the hospital rounds a lot lately. Such a good nephew!

My thoughts are with you and your Aunt.
Title: Re: An on-going thread
Post by: Jeff G on November 21, 2014, 08:21:03 pm
The situation with my aunt was very bleak and I was certain she was not going to make and the doctors where doubtful as well . Around 2 this afternoon I was sitting by her in ICU and she woke up and reached for my hands and two hours later they removed her breathing tubes and we were laughing and joking around, it really was miraculous .

I will be up there at the hospital tomorrow afternoon and all night with her … she is pretty beat up from the chest compressions and the CPR and needs help and support . All and all  I am a happy man …. very tired but happy .
Title: Re: An on-going thread
Post by: Wade on November 21, 2014, 08:34:15 pm
That's great news  !!!   NOW.. you need some rest...
Glad for the VERY HAPPY ending !!!
Title: Re: An on-going thread
Post by: BT65 on November 21, 2014, 08:50:58 pm
Great news,comrade. Please get some rest!  I'm here if you need me.
Title: Re: An on-going thread
Post by: Wade on November 21, 2014, 09:17:27 pm
Got my lab results today , still UD , T Cells still in upper 400s , have stayed there for years . got lipids earlier this week on portal site ,  Cholesterol 138 ,
triglycerides 90
glucose 86 ,  the rest all good too  !!   Will be moving into our new house in about
two  weeks , Can't wait . Not far away , just one dirt road over  ! LOL , love the neighborhood .

Floors are being sanded and stained starting today ,the rest is just tying up small stuff . Know where I'll be turning 60 ....God willing and the creek don't rise !
Won't gush anymore tonight !
Title: Re: An on-going thread
Post by: BT65 on November 22, 2014, 05:07:40 am
Good news on the labs!  I'm very impressed with the cholesterol and triglycerides.
Also, congrats on the new house, how exciting!

Betty
Title: Re: An on-going thread
Post by: Wade on November 22, 2014, 08:20:17 am
Thanks Betty,
I don't know why my lipids are so low ?
I eat what I want , on meds that usually raise numbers.
prezista ,norvir,isentress,and truvada ,vitamin D supplements
that finally went back into range. oh made a mistake , triglycerides are 110
were 90 last labs , hard time remembering all those numbers !

also take valcyclovir as a preventative,I got a herpe on my eye ball
about ten years ago,
went blind ,and eventually got a cornea transplant. But that's another story.
Take my 325 mg bayer aspirin also. Who knows  ??

You take care of your leg, so you can get your knees done. You seem to have a high tolerance for pain , and  would probably do great.
They want you up and walking right away. So your back in action in no time !
You Be Well,Wade


Title: Re: An on-going thread
Post by: Miss Philicia on November 23, 2014, 10:35:57 am
I finally slept over eight hours last night with my new CPAP machine. I was using the wrong nasal attachment size for the last 2 1/2 weeks. They didn't tell me that they were different sizes in the packet.

#majfail
Title: Re: An on-going thread
Post by: Jeff G on November 23, 2014, 10:38:38 am
That's great news Miss P . I still have been putting off a sleep study and need to do one .
Title: Re: An on-going thread
Post by: Miss Philicia on November 23, 2014, 11:41:36 am
That's great news Miss P . I still have been putting off a sleep study and need to do one .

Since you've been on opioids long term you really need to go have one done.
Title: Re: An on-going thread
Post by: mitch777 on November 23, 2014, 09:09:44 pm
Wade, sounds good! I only wish I had your cholesterol levels. :P

David, happy to hear the larger size was available. :)

Betty, just wondering if you have seen your outdoor cat at all. ???


Me? Well I've been rapidly loosing energy the past two months. I'll give it til January and if there is no improvement I might consider going back to Isentress. Sleeping better but much more tired all day long. Maybe it's the Ativan but I only started taking that about 3 weeks ago. Maybe seasonal disorder or just getting older... or simply too many combinations.

Would rather have insomnia and have more energy. Frustrating!

Anyway, Happy Thanksgiving everyone!

Pillow time. :-*

Title: Re: An on-going thread
Post by: aztecan on November 23, 2014, 09:26:20 pm
Hi gang,

Jeff, I am glad to hear your aunt is doing much better!

David, I didn't know there were different sizes, either.

Wade, I envy your lipids, a lot.

I have been somewhat absent recently, although checked in to read now and then.
My CEO decided I needed help, with work that is. So, she asked me to proceed with creating a new office in Gallup.
I hand-picked the case manager there. He is an old friend who was a case manager for another agency that went belly up. He is a wonderful asset both because of his experience and his ability to speak Navajo, which I have tried and failed to learn.
So, I had to arrange for him to travel to Albuquerque to be interviewed by everyone. Then, my boss called and insisted I be there as well.
So, did that and all went well.
Last week we spent much of the time searching out a location for the new office. We found what I think will be a good location. I managed to haggle a little bit with the landlord and I think we got a good deal.
Then went shopping - retail therapy of sorts. So far, I have bought two new desks, file cabinets and other things.
So, things are moving forward.
I can't remember if I mentioned my new job title? If I did, just bear with with.
I am not the northwest regional supervisor for my agency. I still have my clients, but I may transfer some over to the new guy. We'll see.
So, hope all of you are doing well. Just a quickie update.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Wade on November 24, 2014, 11:45:33 am
hey Mitch,
I'm on isentress too ,
I sleep well also , but am always tired .
that's one of my biggest complaints... Fatigue
Title: Re: An on-going thread
Post by: mitch777 on November 24, 2014, 06:18:20 pm
hey Mitch,
I'm on isentress too ,
I sleep well also , but am always tired .
that's one of my biggest complaints... Fatigue

Hey Wade,

I'm not currently on Isentress. I switched to Intelence and that's when the fatigue got worse. Sleeping better now. Go figure.

Betty,
Thanks for the chat today. Talking to a friend makes my day every time!  :-*

Mark and Jeff,
I give you guys BIG credit in quitting a life long habit. It's on my to do list but I'm just not ready with all of what is going on in my life.

Dermatologist appointment today and eye doc tomorrow. Geez, I need to get cooking!!

Title: Re: An on-going thread
Post by: Wade on November 24, 2014, 06:51:00 pm
Oh ...OK ,
No rhyme or reason  !
everybody's  body reacts differently
I have no energy , seems to come in spells'
 ( or so I call them , I am from the south ya know )

Happy Thanksgiving to you too !
Title: Re: An on-going thread
Post by: wolfter on November 25, 2014, 01:03:10 am
It's going to take me a while to read through all the posts and I hope you all know how much I care about you all.  I've been freakishly busy and life is such a whirlwind at the moment. 

I managed to weather the nasty storms we had today and still made it to the OSU med center.  I'll update all I learned about my weak ass bones later.  I learned a lot and really liked the doctors (yeah I said it plural).  :) 

I'm having a TG dinner here.  I got tired of family chaos and indecision and simply stated my plans without offending anyone I hope.  so now it has grown and I'm preping like hell. 

Greg is taking a half day Wednesday so he can come early and help with the last day details.  He tickles the shit out me when he asks questions that simply require a huge laugh.  We're still in a bit of a mindset of our youth, but when he asked if it would be weird with him staying?  If they snoop and find our videos and toys, that's their bad.

hugs all while I go snooping around
Title: Re: An on-going thread
Post by: wolfter on December 02, 2014, 04:32:20 pm
Well I finally started kicking this illness in the ass.  For a week and a half I've had some sort of chest infection going on that almost sent me to the ER.  Greg was insistent that we should go but I think he still frets about any sniffle I have. 

Greg and I are progressing nicely.  I think we both thought it would simply be a matter of picking up where we left off.  WRONG.  2 decades of life experiences changes people and we quickly discovered that.  But fortunately, we have better communication and are working through things correctly. 

We're leaving next Saturday for Hilton Head for a week long vacation.  Hoping people can chime in on some fun things to do in a typically older resort area.  His parents own the vacation condo so the price is right.  :)  It was cute the way they asked us if we could do them a favor and spend our vacation there to look after the place.  Since they're older, they don't get there too often these days.  So I'm to do any maintenance that might be needed and Greg is to do a thorough cleaning.

Then 6 days of fun and sun.
Title: Re: An on-going thread
Post by: BT65 on December 04, 2014, 05:38:43 am
Greg,  there must be some nasty bug going around, my sister has been pretty ill for the past week and 1/2.  It's a pretty aggressive bug.  I'm glad you will be spending some time in a warmer climate for awhile.
Title: Re: An on-going thread
Post by: Miss Philicia on December 04, 2014, 07:30:09 am

We're leaving next Saturday for Hilton Head for a week long vacation.  Hoping people can chime in on some fun things to do in a typically older resort area. 

Make day trips to Savannah (less than an hour away) and Charleston (2 hours). Both have great restaurant scenes, Savannah is more "arty" probably while Charleston has more money. You'll want to research and find specific "Lowcountry" cuisine restaurants as that is different than the broader "Southern" food. It's more similar to food in New Orleans.

Beaufort is even closer by and the second oldest settlement in SC, so there are nice historic buildings.

Anyway, aren't you flying into Savannah? You could always do that city before heading to Hilton Head or maybe do it on the return trip instead of making an extra day trip.
Title: Re: An on-going thread
Post by: Miss Philicia on December 04, 2014, 12:52:29 pm
so some updates on MOI:

My pain doctor had to cancel my neurostimulator implant surgery, which was a partial implant for the 7-day trial session, originally scheduled for Dec. 8th due to a family emergency, and there wasn't another opening to do it until Jan 26th. I told him that was too long to wait considering I've been seeing him since the end of August and have had zero progress with anything. Even longer if one considers that both my podiatrist and neurologist were trying pain med issues since Spring 2013.

So he decided to go ahead and skip to starting methadone treatment for pain, and says if that doesn't provide enough relief we can do the neurostimulator later as an adjunct therapy instead of raising my dosing too much with methadone, mostly because I think having sleep apnea (even though it's now being resolved with a CPAP) can be risky in terms of respiratory arrest.

But at least I will, hopefully, get some partial relief before going home for Christmas. Pain was so bad at Thanksgiving that on the car trip back I could not drive for more than one hour.

CPAP use is better though still not where I'd like it to be, but part of that is because I had to go off Celebrex due to reflux issues now my arthritis issues have gotten so much worse. I wake up most mornings with horrible back/shoulder/neck pain. I guess basically I just have pain everywhere now, either from worsening neuropathy or worsening arthritis. Oh, and I also read somewhere that long-term untreated sleep apnea (which I had) can cause and/or exasperate neuropathy, so perhaps mine is multi-factorial (meaning also from meds I took in the 90's as well as HIV itself). On top of that using opioids for neuropathy treatment can make my apnea worse, so it's kind of a clusterfuck.

My dentist also cancelled two appointments in a row back in October and November so I've yet to have my final crown put in my mouth -- I've had a temporary in there now for 3 months. That will finally be fixed tomorrow, followed by a cleaning the next week. Then I still have one more cavity to have fixed in January, though by then I am sure they will find more.

Otherwise I'm picture perfect with my HIV: 1677 cd4 count/56% -- amazing how worthless that is.
Title: Re: An on-going thread
Post by: J.R.E. on December 04, 2014, 02:15:10 pm
 ugh,....

I have my Colonoscopy consultation tomorrow morning at 9:30 @ Bay Pines. Will probably get my appointment set up tomorrow, on that visit. I am hoping this can be done in March, but we"ll see what they come up with.

I have some labs ordered by my ID doctor for December 10th, and hopefully that will be it until the follow up consult on January 29th.

Otherwise, all is as well as it can be !


Ray
Title: Re: An on-going thread
Post by: mitch777 on December 04, 2014, 06:46:23 pm
On top of that using opioids for neuropathy treatment can make my apnea worse, so it's kind of a clusterfuck.
That just sucks. In fact your whole post is disheartening.

Quote
Otherwise I'm picture perfect with my HIV: 1677 cd4 count/56% -- amazing how worthless that is.
pretty on paper isn't it? ha!

Sorry you are dealing with so much pain David. Be careful if you decide the opiates are your only option.

Title: Re: An on-going thread
Post by: Miss Philicia on December 04, 2014, 07:24:32 pm
Be careful if you decide the opiates are your only option.


If you mean double-dipping to get high no, I am not worried about doing that. If I did that it would mean having to go days with nothing, or worse having withdrawal. It will be all strictly by the book.

Plus by the time I see my sleep apnea doctor in mid-January I will have been on methadone for one month and he'll be able to see what, if anything, it's doing to that issue compared to the month I've now done without any pain meds.
Title: Re: An on-going thread
Post by: Buckmark on December 04, 2014, 09:01:04 pm
On top of that using opioids for neuropathy treatment can make my apnea worse, so it's kind of a clusterfuck.

That about sums it up, regrettably.  Sorry you are going to have to resort to opiods, I know it's a last resort.  Pain management doctors have a lot of tools in their arsenal, but a solution to neuropathic pain is still very elusive.

Quote
Otherwise I'm picture perfect with my HIV: 1677 cd4 count/56% -- amazing how worthless that is.

Can I borrow some of your CD4s, please?
Title: Re: An on-going thread
Post by: aztecan on December 04, 2014, 10:03:26 pm
Damn, David. I see pain management issues pretty often, but none compare to what you've been going through.

I hope the methadone works for you. Be careful with your gut. Opiods have a way of stopping up the works, so to speak.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Miss Philicia on December 04, 2014, 10:53:34 pm
Be careful with your gut. Opiods have a way of stopping up the works, so to speak.

HUGS,

Mark


I'm not to worried about that. I have to take 12mg of loperamide daily plus 6 capsules of Creon (pancreatic digestive enzymes) every day for control of severe diarrhea. I'll probably just be able to cut those out and have regular bowel movements even on opioids. We'll see.
Title: Re: An on-going thread
Post by: BT65 on December 05, 2014, 07:54:27 am
David, good luck with the Methadone.  I've taken it twice in the past for pain.  Just don't run out, Methadone withdrawals are no joke. 

I hope it works for you and gets the pain under control, or at least knocks most of it out.   

Betty
Title: Re: An on-going thread
Post by: wolfter on December 05, 2014, 09:01:23 am
You guys' stories with neuropathy make me grateful that this is one thing I've avoided.  It sounds horrendous.  David, I truly hope you get some relief from this. 
Title: Re: An on-going thread
Post by: wolfter on December 05, 2014, 09:09:07 am


Anyway, aren't you flying into Savannah? You could always do that city before heading to Hilton Head or maybe do it on the return trip instead of making an extra day trip.

Goodness no, we couldn't afford to fly so we're driving.  (he is)  :)  He already knows I fall asleep immediately when riding so it'll be a quick trip for me.  He packs as heavily as I do so the checked baggage cost for both of us for a week long trip when be cost prohibitive.  We had the trunk full just for a 3 day West Virginia trip a couple of weeks ago. :o

We're sitting down this evening to do a quassi agenda.  He's spontaneous as hell and I'm rigid in planning so we have to compromise.  I like structure and he likes the freedom to do whatever.  And we're trying to make dinner plans with a couple of my AM buddies since we'll be going right through their areas.

Other than that, I've still not gotten over this nasty chest shit.  I've known several people around here who have had it.  2 of them ended up with pnuemonia.  EEK.  Been there done that too many times during the AIDSY days and hope I avoid that.  It appears to get better then BAM! 
Title: Re: An on-going thread
Post by: leatherman on December 05, 2014, 10:09:08 am
And we're trying to make dinner plans with a couple of my AM buddies since we'll be going right through their areas.
I'm excited as hell to see you again!! It's been too long since Seattle. I've really got to try to get back up to Canton this Spring and will have to include time to swing over and visit y'all.

I'll get to meet the other Greg too - and see if he is deserving of you ;) LOL

but, for heaven's sake, get better soon! and don't bring your aidsy pneumonia down to me  :P I don't have time to have teh aids again LOL
Title: Re: An on-going thread
Post by: AlanBama on December 05, 2014, 01:57:38 pm
It's nice catching up on all of you, and our respective journeys with AIDS.  Hope everyone manages to have a nice holiday season. My cancer ordeal has pretty much killed Christmas for us; we'll see how it goes. 

Miss P, sorry about your pain issues.  I've been on CPAP since 2009, and it has helped me so much.  My partner is on it also.  It's a traveling road show if we go somewhere; just going to Birmingham yesterday we had to take the feeding tube, pain meds, and all related paraphernalia.  It is not an easy thing to fall asleep with something strapped to your face (think "Alien").

I found out yesterday that I most likely will not be able to eat "real" food for at least 6 months. Talk about a downer! They took 35 lymph nodes from my neck ; the cancer was not encapsulated in several of them. So they're pushing me to prepare for radiation.   Lord, grant me the strength to deal with this, without driving my partner, family, and friends crazy; plus I'm still trying to hold down my little job;  it pays the rent and car payment!

Much love going out to you all --  ALAN
Title: Re: An on-going thread
Post by: Miss Philicia on December 05, 2014, 03:56:31 pm

I found out yesterday that I most likely will not be able to eat "real" food for at least 6 months. Talk about a downer! They took 35 lymph nodes from my neck ; the cancer was not encapsulated in several of them. So they're pushing me to prepare for radiation.   Lord, grant me the strength to deal with this, without driving my partner, family, and friends crazy; plus I'm still trying to hold down my little job;  it pays the rent and car payment!


The food issue, I'm sure, will drive you insane. Hopefully 2015 will be better for both of us (well, and others in this thread dealing with adversity -- this year has been unkind to so many hasn't it?)
Title: Re: An on-going thread
Post by: Miss Philicia on December 05, 2014, 04:08:24 pm
btw, as some of you may remember at the beginning of the year my liver numbers were so out of range that I had to go get an ultrasound at the hospital, and they remained elevated with my April and July tests but decreasing each time slightly. Magically as of my October tests both the AST and ALT number were within range, and not just by a hair either. One was 5 under normal and the other was 9 under acceptable. We'll see how that goes along but it's not like I've made any changes with what goes into my body during that period. The last time both numbers were within range was 2 years ago.

But at least a tad bit of good news to share.
Title: Re: An on-going thread
Post by: mitch777 on December 05, 2014, 08:41:29 pm
Oh my! So much to catch up on here.

@Alan, first comes a big hug. I can't believe you are working through all of this with such a positive attitude. My memory sucks but aren't you on disability and if not wouldn't it be a good idea at this point? I hate to suggest how others go forward (but I do at times,lol) but you need to get the weight off of your shoulders of finances if it's at all possible. I'm certain that your partner, family and friends will be with you without hesitation but I understand your concern. I feel the same way often. Hang in and go forward the best you can sweetie.

@ David, I did not mean to imply the double dipping thingy. Just was concerned about the opiates. Thanks for the update and good news about your liver #'s. Yay!

@ Greg, Get over that bug soon!! I remember going through something similar. It seems to get better and then Wham! Back again. A chicken soup infusion will hopefully knock it out before your trip. Have fun!!

Update on myself...

Went to the pain clinic this afternoon. First time since my cervical injections. They tried to push an appointment at my first meeting (2 months ago) to consult with a neurosurgeon. I said no at that point. "how about if we just get through these injections first!" is what I said.

So today it was the same push. I felt that it was a bit of a factory but I conceded to at least meet. He tends to book up far in advance which is fine with me. Hopefully no sooner than February and I told them as much. Ha!

Physical therapy has helped me in the past but they closed the nearest one to me last year. I simply do not have the energy to drive 30 minutes each way several times a week for a temporary solution and I told them so.

I can't remember if I ever mentioned this online but I have been dealing with a wart problem on my left hand for over 1 1/2 years. Nothing seems to be helping but I'm going to start a new thread. My immune system according to my ID doc seems to have developed holes even with a decent (850ish CD4 count and an UD VL).

It makes me wonder by his description if those holes are there when it comes to my cognitive issues too.

32 years a guinea pig and the years go by. *sigh*

Geez, that was a long post!

Title: Re: An on-going thread
Post by: Wade on December 06, 2014, 09:01:26 pm
Alan ...... A Very Special Holiday Wish for YOU  !!!
You are one of the bravest people I know !!
I hope and wish with all my heart you will taste Christmas dinner
Maybe not for a while.....But March is a Good time for a special Dinner !!!

Keep up that Wonderful attitude ...
Who ever that is that smiles on us ,
I Know Will Be Watching Over You !

Be Well , My Friend...   Wade

 
Title: Re: An on-going thread
Post by: wolfter on December 09, 2014, 11:22:48 am
After some trial and error, I think I was actually suffering from severe allergies.  I've always blocked all heat ducts in my bedroom and somehow that elluded me when I put down the new floors.  The register vent was right beside the bed and I think I've been breathing in dust all night long.

A few days ago, I blocked the vent and it seems to have worked.  So a combination of the room being too warm and breathing dust appears to have been the culprit.  I was wondering why the only issue I had was breathing and nothing else.
Title: Re: An on-going thread
Post by: aztecan on December 10, 2014, 11:20:25 pm
A bit of an update.

I had to schedule a visit with the doctor. I had described some problems and he decided I needed a full once-over.

There may a problem with my stomach or small intestine. So, I am being referred to a gastrointestinal specialist for an endoscopy.

Seems I may have an ulcer. I guess we'll see once they scope me.
He (the doctor) already broached the subject of making a few changes.

I take 40 mgs of Protonix, which the doctor said should have already taken care of any ulcer issues. That is why he was concerned, because I have had this problem now while taking the proton pump inhibitor.

The doctor hinted I may have to stop taking the Naproxen I take for joint pain. I take 750mgs a day.The down side to that is I am not aware of something to replace it, meaning I might have to go without pain control. That isn't something I relish.

I may have to drop the niacin I take to help boost my HDL cholesterol as well. That won't make me sad. I have been flushing a lot lately for some reason.

I know this year has been tough for a number of us. My issues pale in comparison to many of them.

But there are times when I just want to say "enough" and go out for a hot fudge sundae.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Jeff G on December 11, 2014, 08:50:31 am
Hi Mark . I was suffering the same and had an ulcer although I was on a proton pump inhibitor. The cause was H pylori and after a course of meds I was much better, I'm certain you doc will look to see if you have H pylori as its the culprit for ulcers many of the times .

I got into tummy distress when I had a pinched nerve in my neck and had to take over the counter meds ... the effects of goody powder and the H pylori really made a mess of my stomach but all is well now . Please let us know how you make out on your testing .
Title: Re: An on-going thread
Post by: Miss Philicia on December 11, 2014, 10:19:01 am
Mark, in similar fashion I had to halt Celebrex (same class of med as Naproxen but supposedly more GI friendly) due to recurring nocturnal reflux issues. I take chondroitin/glucosamine from the vitamin shop now, per doctor's suggestion, and it does help some but perhaps only half as well.

I still wake up every morning with bad back/neck pain though.
Title: Re: An on-going thread
Post by: mitch777 on December 11, 2014, 06:29:47 pm
Mark,

Gut issues are amongst my worse nightmares. I've had issues but always pretty temporary. Hope all of these changes works out for you!

m.
Title: Re: An on-going thread
Post by: BT65 on December 11, 2014, 08:39:24 pm
Mark, sorry about your tummy problems.  I take Protonix also and know how strong it is, I hope it's nothing serious!

What are you going to do about your pain?  Maybe something like Toradol?  It's a very mild pain killer,doesn't effect judgement etc.  I just know how pain is, and you certainly don't need to put up with it. 

Please let us know how you're doing.  If you were here... I know a really good local frozen custard place that has wonderful sundaes!
Title: Re: An on-going thread
Post by: wolfter on December 12, 2014, 08:36:36 am
Wishing you well Mark.  It does seem overwhelming at times, but we all push on. 
Title: Re: An on-going thread
Post by: Miss Philicia on December 12, 2014, 05:16:26 pm
My year of dental work is finally finished -- 12 visits down (root canal, two crowns, two cleanings and maybe a filling), next one isn't until June for routine cleaning. Finally a break. I also had 4 appointments in 2013 and 4 in 2012.

At least I still have all of my original teeth -- none yanked.

I'll have to do a final tally of all medical appointments in a couple of weeks to close out the year. I'm sure you're all on the edge of your seats. (not)
Title: Re: An on-going thread
Post by: Jeff G on December 12, 2014, 05:38:59 pm
My year of dental work is finally finished -- 12 visits down (root canal, two crowns, two cleanings and maybe a filling), next one isn't until June for routine cleaning. Finally a break. I also had 4 appointments in 2013 and 4 in 2012.

At least I still have all of my original teeth -- none yanked.

I'll have to do a final tally of all medical appointments in a couple of weeks to close out the year. I'm sure you're all on the edge of your seats. (not)

You certainly have had a rough go of it in the last couple of years . My doctor informed me today that I had to stop putting off a sleep study … so I may be c-pap bound like you soon .
Title: Re: An on-going thread
Post by: weasel on December 13, 2014, 02:09:07 pm


  Hi Mark
              , I hope all is going OK .

        Hoping you get good news , HUGS ,  Carl 
     
     
Title: Re: An on-going thread
Post by: Miss Philicia on December 13, 2014, 03:24:37 pm
You certainly have had a rough go of it in the last couple of years . My doctor informed me today that I had to stop putting off a sleep study … so I may be c-pap bound like you soon .

It's really not bad sleeping with a CPAP. Just go have it done. I am getting a good 7 hours every night but I do still find myself napping an hour on the sofa midday. I don't think it's the CPAP I think it's waking up a little early and then feeling pain issues, not just my feet and legs now but my entire back.
Title: Re: An on-going thread
Post by: wolfter on December 15, 2014, 08:25:30 pm
Well, I'm updating from not so sunny Hilton Head Island.  Sure wished it could have been much warmer as it's almost too cool outside to wear shorts and tanks tops.  We're staying in a very quaint condo that is adorable.  We're spending a lot of time just resting and relaxing.

We did have have a little spat about eating and such.  I don't go on vacation to spend hours preping for dinner hour, getting ready, choosing a place, travel, sitting at a table, and investing copious amounts of time to an activity that just sucks times away.

We compromised in that we will go out to eat twice this week and simply grab a bite to eat when each of us feels hungry.  :) 

Absolutely loving the morning walks on the beach when the sun comes up.
Title: Re: An on-going thread
Post by: Wade on December 15, 2014, 09:19:15 pm
Hey Friends ,
Just got moved into the new house. first time to take a few,
Has been hectic and never ending, I'm fucking tired !!!  but all is well.
Gave my new knees a workout...

Just catching up,
Mark ,sorry about your stomach problems. the niacin is natural, but does make you flush. Hope you don't have to give up your pain meds.

David, You are really getting put through the wringer this year
I feel blessed I don't have the pain issues , and hope there is some relief soon.

Jeff...Now you need a sleep study too
Hope you don't end up having to wear a mask also
They say you get used to them , but we have all gotten used to a lot of things,
doesn't make it any easier.

Greg, Good thing your Boniva is working,
sounds like your getting WAY too much for someone with brittle bones !!!
Glad things are going well for you and yours !

Betty , You were on the last page ,but pretty sure you fell again !
Stop That !!    Hope your bone meds work .
Sounds like your getting around better though , glad to hear .
You don't sound the type to depend on others. I can relate to that !!

Mitch ,  Not going to lick you after 32 years !
knew someone with a similar wart problem , will look for your thread .

Me...I eat and drink everything they tell me not to, seems to be working !
did take a spill down the new cellar stairs , landed side ways on both knees, SHIT !
was sore the next few days , scared the hell out of me ,called the surgeons nurse, said the replacements are not as fragile as you would think. I was good as knew in a couple days.
 Everyone be well,  Wade
 
Title: Re: An on-going thread
Post by: Jeff G on December 16, 2014, 08:07:28 am
It's really not bad sleeping with a CPAP. Just go have it done. I am getting a good 7 hours every night but I do still find myself napping an hour on the sofa midday. I don't think it's the CPAP I think it's waking up a little early and then feeling pain issues, not just my feet and legs now but my entire back.

The pain issues are what wakes me up too . I'm going to go have the study done and would not be surprised either way if I have apnea or not . I have always had crazy dark circles around my eyes even when I was a kid and my docs always make allot out of them asking if I am sleeping or stressed out ... they ask me that at 10 and now they ask me that at 52 ... so I will go and have the study done and we shall see wont we . 
Title: Re: An on-going thread
Post by: Miss Philicia on December 16, 2014, 08:56:22 am
The pain issues are what wakes me up too . I'm going to go have the study done and would not be surprised either way if I have apnea or not . I have always had crazy dark circles around my eyes even when I was a kid and my docs always make allot out of them asking if I am sleeping or stressed out ... they ask me that at 10 and now they ask me that at 52 ... so I will go and have the study done and we shall see wont we . 

Actually the easiest way to tell is to record yourself while sleeping (for us single folks). Just use an app on your tablet or phone to do it, and you'll only need to record an hour or two. If you can hear what sounds like a pig's snout rooting around in the dirt then you have obstructive sleep apnea.

However, you could also have central sleep apnea -- it's much less common in the larger population but it's more common for patients on long term opioid treatment. I would suspect your doctor is also being prudent because of this issue.
Title: Re: An on-going thread
Post by: Jeff G on December 16, 2014, 09:06:14 am
Actually the easiest way to tell is to record yourself while sleeping (for us single folks). Just use an app on your tablet or phone to do it, and you'll only need to record an hour or two. If you can hear what sounds like a pig's snout rooting around in the dirt then you have obstructive sleep apnea.

However, you could also have central sleep apnea -- it's much less common in the larger population but it's more common for patients on long term opioid treatment. I would suspect your doctor is also being prudent because of this issue.

I fell asleep very early sitting up in bed last night and woke myself up making said pig noises but I'm hoping it was because my air was cut off from my head falling forward from sitting up. I will try a cpap if I have too but I am very skeptical because I am all over the bed at night and I can see me dragging that machine off the table . I will try . 
Title: Re: An on-going thread
Post by: J.R.E. on December 16, 2014, 09:14:56 am


I received my bottle of " Golytely" in the mail Saturday.  My colonoscopy is scheduled for February 2nd.

Bottoms up !  :)


I also have another dermatology appointment set for January 29th, to get another spot removed.

Had some labs taken last week, waiting on those results (CD 4 and Viral load )



Today we we heading down to St. Pete.  It's time for the 6 month renewal of Ryan White.  I have to be there at 11:30.  I think we"ll leave a little early, as there's a very, very thick fog out there this morning.



Ray


Title: Re: An on-going thread
Post by: Miss Philicia on December 16, 2014, 11:07:20 am
I fell asleep very early sitting up in bed last night and woke myself up making said pig noises but I'm hoping it was because my air was cut off from my head falling forward from sitting up. I will try a cpap if I have too but I am very skeptical because I am all over the bed at night and I can see me dragging that machine off the table . I will try . 

The tubing is 7 feet long. Stop making excuses and book your appointment. Please report back within four hours. Thank you.
Title: Re: An on-going thread
Post by: aztecan on December 16, 2014, 09:45:24 pm
I have my consultation with the gastroenterologist the morning of Jan. 29th.

I didn't know I needed a consultation, but I guess I do.

I did talk with my HIV doc today. We have agreed it is time to eschew the niacin. Its efficacy is questionable anyway, and I am tired of the flushing. It is bad enough now that it wakes me from a sound sleep.

So, that's one change I can make, anyway.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Jeff G on December 16, 2014, 09:48:49 pm
The tubing is 7 feet long. Stop making excuses and book your appointment. Please report back within four hours. Thank you.

Im waiting on them to call me and set a date and then I will let y’all know what I find out after the test .
Title: Re: An on-going thread
Post by: Miss Philicia on December 16, 2014, 10:15:41 pm
btw, as of yesterday I have a bottle of methadone sitting on my desk. However, after going over my calendar (i.e. holiday travel) and looking at the "big picture" of my first titration schedule to the second one, as well as my next month follow-up with my pain doctor to assess my progress, I think I will wait to start it next week. I'm afraid of always "living paycheck to paycheck" with the prescriptions and not having at least a week reserve.

Anyway, at least I've made it to this juncture. It's now been 7 months since I first saw my neurologist and 4 months since seeing this pain doctor. Seems a bit long but one has to build a bit of trust before they will put you on something like this.

And it can't come to soon as everything seems to have kicked up a notch in the past couple of months.

My doctor is being very conservative with the titration and dosage, or so my pharmacist said. Which is good because evidently for methadone with an opioid-naive patient (as opposed to someone switching from another opioid) the first month is when any problems can arise.

This is a big step for me because I feel like once I take it I'll be on this stuff forever.
Title: Re: An on-going thread
Post by: Jeff G on December 16, 2014, 10:21:07 pm
Im wishing you the best of luck Miss P .
Title: Re: An on-going thread
Post by: Jeff G on December 16, 2014, 10:26:28 pm
I forgot to add my pain doc added a small dose of cymbalta … I think I tried to before and I couldn’t tolerate it but who knows … I will give a go and see .
Title: Re: An on-going thread
Post by: Jeff G on December 17, 2014, 08:37:13 am
I took that first small dose of cymbalta last night and I am really out of sorts today and am having trouble concentrating. I have a bad history with antidepressants and told them so .
Im a bit aggravated ... I feel like I am suffering through this just to please some doctors who should have taken the time to read back far enough in my chats to know that this was not a good idea . I will give it two weeks just to be fair and maybe I will adjust . I have company coming for the weekend and a party to attend Saturday night and if I am feeling like this I will be miserable . End rant . 
Title: Re: An on-going thread
Post by: Miss Philicia on December 17, 2014, 09:34:21 am
Oh, you know I have the same problem with anti-depressants going back 15 years. I've never found one I could tolerate, and like you give them a couple of weeks (of hell) to adjust and it never works.

My last attempt was about 14 months ago citalopram (Celexa) which, like Cymbalta, they really like pairing with chronic pain folks. I was actually surprisingly OK on it until they increased my dose, then I felt like going to the ER. I couldn't sleep, my heart was racing, I felt like my breathing was shorter, panic attacks -- and then the clincher was extreme bruxism (already had that and wore a night guard but this increased it into a daytime habit which still has not gone away) and finally electrical jolts in my jaw. And you could visibly see that effect. Ask Granny, she saw them when she visited me and I'd even been off the med a couple weeks by then. This entire episode was so bad and traumatic that I couldn't even log onto these forums to tell anyone about it. In fact I think this might be the first time I've mentioned it in any detail.

I tried Cymbalta a decade ago when it was first FDA approved. I think I did OK on it for a month but then my blood pressure went up and they took me off of it. Yes, that's a possible side effect but my BP had been at the upper end of normal range before going on it for a while, but Cymbalta definitely took me over the point where they made me go on hypertension medication (at age 40 no less).

It's all horribly frustrating, isn't it?
Title: Re: An on-going thread
Post by: Jeff G on December 17, 2014, 09:49:10 am
Yeah ... it is very frustrating . I'm like you Miss P, I always do every thing my doctors ask of me or try anyway and will give this go . I have been having a bit more depression lately so maybe this will help if I can get used to it, maybe . I cant help be a bit pessimistic because of the dreadful things I went through in the past with antidepressants, Trazodone is the only one I have ever tolerated .   

I remember your reaction the meds ... scary stuff .
Title: Re: An on-going thread
Post by: J.R.E. on December 17, 2014, 09:59:31 am
I have my consultation with the gastroenterologist the morning of Jan. 29th.

I didn't know I needed a consultation, but I guess I do.


HUGS,

Mark


Hi Mark,..

Didn't I read that you may be having and endoscopy done?  This is probably the reason for the for the consult.



Take care/ Good luck----Ray
Title: Re: An on-going thread
Post by: mitch777 on December 17, 2014, 05:12:03 pm
There's too much going on here to keep up with! Been feeling aidsy lately with fatigue and weakness, nausea and migraines, acid hand, etc. so have only popped in quickly.

I'll just give all my best wishes to you all in dealing with your ailments, tests, new meds, doc appointments, procedures and the like.


Title: Re: An on-going thread
Post by: Theyer on December 18, 2014, 04:13:29 am
Been trying to catch up , I hope the experiments in pain control work out David &Jeff,
I have cut out the hydrmorph tablets replaced with Pregabalin a success as long as you can tolerate no sex .cut the Fentalyn patch from 300 to250 . During chest cold had to add paracetamol to deal with joint & muscle pain. Been cutting down the morph in the hope off increased energy ,The Doc wants it cut due to evidence about morph losing effect with long term use.
Title: Re: An on-going thread
Post by: mitch777 on December 18, 2014, 04:58:00 pm
Been trying to catch up , I hope the experiments in pain control work out David &Jeff,
I have cut out the hydrmorph tablets replaced with Pregabalin a success as long as you can tolerate no sex .cut the Fentalyn patch from 300 to250 . During chest cold had to add paracetamol to deal with joint & muscle pain. Been cutting down the morph in the hope off increased energy ,The Doc wants it cut due to evidence about morph losing effect with long term use.
Geez Michael, I just can't keep up with you.
Sending you love and huggers in your recovery.
Title: Re: An on-going thread
Post by: BT65 on December 18, 2014, 08:38:12 pm
Jeff, STOP THE CYMBALTA or you will sabotage your party plans this weekend. No use putting yourself through misery.  Just tell the doc in a couple weeks that it's not working out, give your list of side effects etc.

Michael, good luck cutting down the pain meds.  Just be careful not to go too quickly.  I hope everything works out. What is going on with your joints now?

I feel aids-y also M.  Muscle aches, nausea, chills; and not just because it's 28F here lol.  I'm under my electric blanket, and down-alternative comforter.  I'm going to shut out the light in a few. 

Maybe this is a bad time of year.  End of year stuff for many people.  All types of viruses (not just our unique one) flying around the air.  And for some, the holidays are depressing.   I know my housemate tells me regularly of all the mentally fragile people she sees, flipping out right now due to worsening of depression. 

I hope everyone is able to get ahead of their pain issues, whatever they may be, and keep pressing on.  Because, what else can we do?
Title: Re: An on-going thread
Post by: Miss Philicia on December 19, 2014, 12:58:52 pm
Finally -- off to my FINAL MEDICAL APPOINTMENT of 2014! I've had four appointment just this week, along with two separate jaunts to the pharmacy.

Christmas vacation begins Monday with my return via Amtrak to DC.

ps: I changed my mind and began my methadone Wednesday night. The starting dose is so low I don't notice anything at all in terms of sedation or any other side effect, nor has it decreased my pain one bit. I suppose once I titrate to the next dose in 2 weeks that might change. Then again it might not until we raise again a month from now. Who knows.
Title: Re: An on-going thread
Post by: mitch777 on December 19, 2014, 05:19:28 pm
Finally -- off to my FINAL MEDICAL APPOINTMENT of 2014!

Funny, I have one more to go myself and never used to think in those terms until about 4 years ago. Aging with hiv is such a delight.

Hope the methadone starts working on a low dose. Have a safe trip and enjoy your holidays!
Title: Re: An on-going thread
Post by: Theyer on December 20, 2014, 04:31:31 am
Funny, I have one more to go myself and never used to think in those terms until about 4 years ago. Aging with hiv is such a delight.

Hope the methadone starts working on a low dose. Have a safe trip and enjoy your holidays!

I re booked a appointment last week so I could say " I,ve no more appointments till next year "

Ditto about the methadone.
Title: Re: An on-going thread
Post by: aztecan on December 20, 2014, 10:59:05 am
Well, the weather finally got colder, and my joints are talking to me. So, that can only mean winter is here!

I have decided to try to put all the physcial stuff on the back burner and enjoy my next week in Ouray, Colorado. I need the getaway, and Ouray is a beautiful little town nestled in the Rockies, under about five feet of snow, probably.

My stomach issues have ramped up a bit. I had a few glasses of wine and I think that didn't go over well.

But, I am determined to have at least one week if fun before I start having to address things.

I probably won't be back until after Dec. 27, so I wanted to wish everyone a Happy Holidays.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Jeff G on December 20, 2014, 11:09:48 am
Happy Holidays to you Mark ! . Enjoy your trip and recharge your batteries or discharge them, that can be fun too ! 
Title: Re: An on-going thread
Post by: wolfter on December 20, 2014, 11:26:47 am
Have a great vacation Mark.  Maybe I'm just getting old but I'm finding vacations are more work and stressful than just staying home.  :) 

Hoping everyone has a great holiday season and can temporarily put on hold all the woes we struggle with regularly.

David, hope you have a great visit with the family.

Being in a relationship with someone my age who is negative hit home the realities of this virus over the last week.  Trying to keep up with his energy level exhausted me and I tried to downplay it.  We've done several little excursion jaunts since being together and it's quite draining.

I'm going to have to be honest with him shortly that I don't have the ability to continue this course. 

And to top it all off, my OADAP expires December 31st.  I think this is probably my 10th case manager in a few shorts years and she is now on maternity leave.  She gave me the contact information for the person who will be covering her case load.  Yet to receive contact back.  I emailed the case manager supervisor just to CMA that I've been trying to complete everything.

So I have about 3 weeks of meds left with expiring OADAP and my insurance changing Jan 1st.  I already see where this train is heading and have given my doctor's office a "heads up".

OH, and I've been on my best behavior for the longest time and have already warned the other Greg that I plan on letting loose at our Company Christmas party this evening.  :)  Hoping to convince him to drink a little so we can have raunchiness later tonight like we did in the early years. :o
Title: Re: An on-going thread
Post by: Theyer on December 21, 2014, 05:25:12 am
Enjoy your holiday Mark , Querry or whatever it's called sounds just the job. I am pleased to read That others take holidays from all things medical. Unill the6 th of Jan only a full on medical emergency will get me sitting opposite a Doctor. .

I head off on the 23 back on the 27  . Three hour train journey with dog and the 2 million people leaving London that day the return journey 4.5 hours due to engineering works. This is my 1st long journry in nearly a year and I do have some butterflies . However having a disable train card means as well as30% off the train ticket you can also be ferried to your seat before the rest off the mighty hoard this is great if you are knackered/wobbles and have luggage and a dog.

Dearest Greg try not to judge this relationship with the one you had , your both different now the past is past and other clichés. Hugs m
Title: Re: An on-going thread
Post by: mitch777 on December 21, 2014, 05:27:39 pm
Mark and Michael,

Enjoy your getaways guys! As exhausting as they can be (I hear you Greg), I think most times I find that they actually ratchet up my energy level, even if it's just temporary and adrenaline induced.

I just booked a trip in March to Palm Springs as we both need to look at it as one of the places we may move to soon. Time to see if it's even an option. Also, we haven't gotten away in the winter for 5 years or more and we both need the distraction from everyday stresses.

Happy Holidays!

m.

Title: Re: An on-going thread
Post by: BT65 on December 21, 2014, 09:43:14 pm
David, I hope you have a wonderful time over Christmas!

Mark, get rid of the stress!  Seriously, I hope you're able to unwind.

Michael, I hope you have a wonderful holiday, and that you weather the train ride with all life and limb unharmed.  That's cool you have that pass.

M, I'm so happy you will be taking a vacation.  I think you've needed one for a long time with the stressors you've been going through. 

Greg, unfortunately tomorrow I have a medical appointment, but I still have my sense of humor.  The other day, had my car started, I would have driven to my credit union to deposit some money, through their drive-through.  That way I wouldn't have to get out of the car. I had it all planned...I was going to put my walker right outside the car door, for when I got home (still can't walk without the cane), and I had been practicing using the petals.  Damn car wouldn't start.  Must have been a higher authority intervening lol.

I seriously hope everyone has a wonderful holiday season!!  I'm so glad we have one another!
Title: Re: An on-going thread
Post by: wolfter on December 22, 2014, 11:48:03 am
Damn girl, you really need to stay put.   :o

On a bit of a funny note, I made an observation to myself that in the Durango, I wouldn't be able to drive it if i was on crutches.  How odd is that?   lol  So I'll rename one of my trucks; "the injury mobile" since I can drive it as long as either leg is working. 
Title: Re: An on-going thread
Post by: Theyer on December 23, 2014, 04:13:31 am
Mark and Michael,

Enjoy your getaways guys! As exhausting as they can be (I hear you Greg), I think most times I find that they actually ratchet up my energy level, even if it's just temporary and adrenaline induced.

I just booked a trip in March to Palm Springs as we both need to look at it as one of the places we may move to soon. Time to see if it's even an option. Also, we haven't gotten away in the winter for 5 years or more and we both need the distraction from everyday stresses.

Happy Holidays!

m.



So it is now"we" is it
Can I come?
Have you thought off the bottom off
Florida ? One off the little islands that speed boats visit at 3am and then leave.
Michael
Title: Re: An on-going thread
Post by: Theyer on December 23, 2014, 04:30:31 am
I am now returning Monday due to the wonderful bloke at Virgin disabled Tavel office , who rang me back said that travelling on the Friday would be Hell in words that would not get him sacked.

He advised me to go on Monday , had already reserved me tickets and reserved my seat. This journey will take 2.5 hours instead off  4.5 hours. Plus the journey is direct.

So better get out of bed and pack.

Good luck every one hope all is peace and love for u all .
M

Title: Re: An on-going thread
Post by: mitch777 on December 23, 2014, 05:27:46 pm

So it is now"we" is it
Can I come?
Have you thought off the bottom off
Florida ? One off the little islands that speed boats visit at 3am and then leave.
Michael

It's we for now at least. lol. You certainly are welcome to come my dear. I (not sure about the "we" here) plan on checking out the ASO and hopefully a couple of open houses to see how far our money will go.

As for Florida...
No.  :P
A nice place to visit but I'm sleeping at 3am and would miss the boat.  ::)

Good to here that you are getting an extended vacation if I read that right and a shorter trip to boot!

Peace and love to you too my determined English warrior.

m.



Title: Re: An on-going thread
Post by: wolfter on December 24, 2014, 09:58:34 am
Wanted to wish my fellow LTS a great holiday season. 

I've been hesitant to share my latest injury after reading how much worse many of you have it. 

A couple of weeks ago, a past commander from another post stopped by.  He immediately reached out to shake my hand.  Of course being retired military, he gripped my hand like it was a grenade.  Almost immediately felt my little finger snap.  I come in contact with many people whom I probably should shake hands with but have decided to do the fist bump from here on out.

Didn't bother going to the doctor over it and it's finally mending and I can bend it again. 
Title: Re: An on-going thread
Post by: BT65 on December 24, 2014, 11:16:34 am
Ouch Greg! It always hurts to have anything break.  And it's significant for you.  I'm glad you're on the mend.

And yes, happy holidays everyone!
Title: Re: An on-going thread
Post by: wolfter on December 24, 2014, 01:46:03 pm
The upside was how little I had to do on vacation.  I hate pulling the broken bone excuse, but hey, might as well benefit from it some how.


I truly wish you all the greatest holiday season ever.  Another year closer to that magical 30 year mark.  Even typing that brought the surrealness home.  Expecting to hopefully live to be 30 and in a blink of eye to be surviving at the 30 year mark.

Respect and hugs to all.  Now I have to log off for a day and half and enjoy the holiday instead of posting about it....lol


Title: Re: An on-going thread
Post by: leatherman on December 24, 2014, 10:40:43 pm
Almost immediately felt my little finger snap.
I knew I should have sent bubble wrap home with you as an early Christmas gift!
Title: Re: An on-going thread
Post by: Miss Philicia on December 25, 2014, 10:04:49 am
MERRY CHRISTMAS! Santa brought me recurring boughts of liquid diarrhea this year. I must be the only person who can take opioids and still have diarrhea issues.

I'll probably get diaper rash next.
Title: Re: An on-going thread
Post by: weasel on December 25, 2014, 06:33:58 pm
MERRY CHRISTMAS! Santa brought me recurring boughts of liquid diarrhea this year. I must be the only person who can take opioids and still have diarrhea issues.

I'll probably get diaper rash next.

     
Merry Christmas Miss Philicia , May the new year bring plesant stools .   As always , Love , Carl
Title: Re: An on-going thread
Post by: LongTimeSurvivor on December 26, 2014, 12:45:58 pm
Is there any way to have these threads show the newest comment at the beginning instead of page 13?
Title: Re: An on-going thread
Post by: leatherman on December 26, 2014, 01:28:25 pm
Is there any way to have these threads show the newest comment at the beginning instead of page 13?
yes! Click on the word USER over in the left hand menu. then click "Look and Layout" in the "Modify Profile" section of the middle column of menus. then in the 3rd column, tick the box marked "Show most recent posts at the top"

Just keep in mind that anytime anyone says "see above" or "^^" what it now means is "see below" or "VV"

I've had mine set this way since the beginning and love it. ;)
Title: Re: An on-going thread
Post by: LongTimeSurvivor on December 26, 2014, 11:44:32 pm
Thanks very much leatherman, such a sweetie...kiss, kiss...hug, hug....
Title: Re: An on-going thread
Post by: Theyer on December 27, 2014, 09:28:58 am
Darlings hope you all survived the physco drama we call Christmas , I have and at times have been energetic enough to join friends for a good walk , currently in training for a further walk tomorrow. But any holiday that emphasises loved ones is set up to be shall we say  mixed. With our histories is it not my Luvly ones .

Anyway on we go the load somewhat lighten by recourse to this thread all me love
Michael
Title: Re: An on-going thread
Post by: Theyer on December 27, 2014, 09:34:41 am
MERRY CHRISTMAS! Santa brought me recurring boughts of liquid diarrhea this year. I must be the only person who can take opioids and still have diarrhea issues.

I'll probably get diaper rash next.
If memory serves me right you are on tiny wee dose that your bowels will laugh at ,
As to forth coming nappy rash I do hope not be generous with the moisturiser. Hope the rest off the stay is tickerty boo .
Michael
Title: Re: An on-going thread
Post by: weasel on December 27, 2014, 11:37:28 am
     We had a nice quiet Christmas  :)

     Bob and I ate like pigs  ;D

    New years resolution , no eating !

   *****************************************
   new topic :   MY MEMORY IS GOING TO HELL !

    I have " lost " my rings ,     my fine silverware and assorted crap !

    I'm going into a depression over this .   I wanted to use the fine Silver
    for Christmas Eve dinner , Could not find it .
     Later I thought I would pretty up and my rings are no where to be found ?

    It appears to be getting worse !   , knowing in ten years I will remember
    where they are  :'(
   
    I've been working at a neighbors house building cabinets and  fabulous
    closets  :D     It is nice to get out of the house . Nice thing , it's next door .
    here in the Ozarks that means 3 miles away ....    ;)

                                 Happy New years to all my  LTS's   :-*

                                                               Carl


  P.S. :  Edited to continue writing
Title: Re: An on-going thread
Post by: bear60 on December 27, 2014, 04:40:11 pm
I just want to say HI.
 Had a decent Christmas, it was QUIET which is what I needed,  as this has been a year full of drama with several friends.  Sometimes I think I am experiencing THEIR problems more than mine.  NO, its not David. David, honey....you just eat too well then pay the price.  He probably had turducken for Xmas with a chaser of plum pudding and butter sauce...lol.
As for me, been on STRIBILD and like it a lot. My CD4 count now stable at 426 and undetectable.  Not  smoking has been my single biggest feel better accomplishment.  I have all the same problems with breathing and snoring and pig noises at night and try to keep my head up but am all over the bed.  I think that's why the cat wont get near my bed. Well, I'll try the CPAp thing if someone I know quits smoking.
Hi Mark
Hi Theyer
Hi Weasel
Hi LTS
all
Title: Re: An on-going thread
Post by: Wade on December 28, 2014, 10:16:19 am
Hey Carl,
My memory has gone to hell too !
Mentioned it in other threads , one with one tampa
We moved into a new , larger house which doesn't help

I end up finding what I was looking for eventually , but usually by mistake
think sometimes stress is a factor , my mind goes into mysterious places
when overloaded . Considering we sold our house and built a new one and moved twice, and had a knee replaced this year , not surprised !

Don't sweat it Carl, scares me too sometimes . some of it is just our age !
We had a Great Christmas too , Good friends ,lots of laughs , and WAY too much food . There's a diet in my future . Forgot what I was going to say ,so........

              A Very Happy New Year To Everyone !!!
 
Title: Re: An on-going thread
Post by: Jeff G on December 28, 2014, 01:35:12 pm
WOW ... I just got gas for 1.98 a gallon .
Title: Re: An on-going thread
Post by: Wade on December 28, 2014, 02:05:05 pm
Wat  !!  is that how much siphons cost now ?
Title: Re: An on-going thread
Post by: BT65 on December 28, 2014, 03:05:11 pm
WOW ... I just got gas for 1.98 a gallon .

It's been under $2/gallon here for about a week. 
Title: Re: An on-going thread
Post by: mitch777 on December 28, 2014, 05:19:44 pm
Ahhh... Connecticut. $2.69.  >:(
Title: Re: An on-going thread
Post by: Wade on December 28, 2014, 06:04:09 pm
Still 2.75 in Cape Cod    !!!
Title: Re: An on-going thread
Post by: Jeff G on December 28, 2014, 06:09:04 pm
Still 2.75 in Cape Cod    !!!

I would pay 2.75 a gallon to live in cape cod LOL .
Title: Re: An on-going thread
Post by: mitch777 on December 28, 2014, 06:19:51 pm
I would pay 2.75 a gallon to live in cape cod LOL .

I'm guessing it would cost about 600k to buy a 900 sq ft condo in P-Town. Is that about right Bubba?
Title: Re: An on-going thread
Post by: Wade on December 28, 2014, 07:07:28 pm
I don't know for sure . I'm not in P-Town ,we're in Eastham .Close
to the Wellfleet border. cheaper and more desolate.
P-Town is big bucks though.

Where are you in Connecticut , didn't realize you were in New England.
Title: Re: An on-going thread
Post by: aztecan on December 29, 2014, 12:27:23 am
Happy holidays to one and all.

I have just today returned from a week in Ouray, Colorado. It only snowed about six inches where we stayed, but the temps at night were brisk.

Friday evening, we all decided to go to the hot springs at Ridgeway, Colorado, about 15 miles or so from our home away from home. They are clothing optional, which can be fun.

Of course, I forgot my flip flops, so I had to trudge through the snow to get to the main pools in my birthday suit and bare feet. Amazingly, it didn't really bother me too much.

It was absolutely delicious! The pools were hot and steamy, and the air temperature was about 15 degrees F. It was really fun to be toasty warm yet have snow falling on your head.

Of course, leaving the pool to head for the dressing room was something special. I more or less sprinted, as best I could on the ice and snow.

All in all, it was a wonderful experience.

I hope everyone had a great holiday season, whatever they celebrate.

Now, I'm ready for spring.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on December 29, 2014, 12:40:32 am
that sounds absolutely awesome.  I chose to have a great holiday season also regardless of the chaos of being human and alive.  :) 

And my indvidual, non denomination entity chose to put the official white zin drinking holiday immediately following a few days of stress  count down begins
Title: Re: An on-going thread
Post by: J.R.E. on December 29, 2014, 11:33:38 am
Mark,!


Sounds like you had a great and relaxing time.  You deserve it !!


Ray  8)
Title: Re: An on-going thread
Post by: mitch777 on December 29, 2014, 05:06:15 pm
@Mark...
I was envying your trip after seeing your pics on FB. What a beautiful trip that must have been.

@Bubba...
I live in the small hamlet of East Haddam. It's half way between Old Saybrook and Middletown along the Connecticut River.
Title: Re: An on-going thread
Post by: BT65 on December 29, 2014, 06:14:10 pm
Mark, that sounds amazing!  I just don't know how I would handle going through snow with bare feet. Sounds worth it though. 

I am also ready for spring-late spring.

Betty
Title: Re: An on-going thread
Post by: Wade on December 29, 2014, 09:25:36 pm
Mark,
Your trip sounds awesome !
nothing like being naked in the snow...or so they tell me..  LOL
glad you had a great time , you were due.

Hey M,
Your not far from the Cape, and I'm only 20 minutes from P Town
You need to stop in for a visit next time you go !
Title: Re: An on-going thread
Post by: weasel on January 01, 2015, 10:38:10 am
Still 2.75 in Cape Cod    !!!


   
Gasoline is $2.02 in the deep woods of the Ozark Mountains  :)

                                                                  Makes it easier to travel to Saint Louis  :D

                                                                                                       Carl
Title: Re: An on-going thread
Post by: Miss Philicia on January 01, 2015, 12:09:47 pm
Miss P has not filled a gas tank since 1989. :P
Title: Re: An on-going thread
Post by: Dachshund on January 01, 2015, 12:26:31 pm
I paid 156.9 a gallon yesterday. Thanks Obummer.
Title: Re: An on-going thread
Post by: weasel on January 02, 2015, 10:56:36 am
I paid 156.9 a gallon yesterday. Thanks Obummer.

       NICE  :)

                                                           Carl
Title: Re: An on-going thread
Post by: Theyer on January 04, 2015, 02:40:30 pm
UK approx $6 a gallon .
Title: Re: An on-going thread
Post by: Miss Philicia on January 04, 2015, 02:55:46 pm
So, as of four days ago I doubled my methadone. Thus far there's been no appreciable difference, or maybe a hair's width. Obviously I will need to go a bit higher but that doesn't surprise me. I see my pain doctor again in ten days.

Otherwise I think I have a cold now.
Title: Re: An on-going thread
Post by: mitch777 on January 04, 2015, 06:16:15 pm
So, as of four days ago I doubled my methadone. Thus far there's been no appreciable difference, or maybe a hair's width. Obviously I will need to go a bit higher but that doesn't surprise me. I see my pain doctor again in ten days.

Otherwise I think I have a cold now.

Bummer X 2.

I had hoped the lowest dose would work for you and now a cold.  :( 

------

I've been feeling like a slug for the past week and my headaches the past month have been the worst in about a year. Also have been feeling pressure/pain behind my eyes since the 1st. Not constant but disconcerting never the less. Add to that gut issues, gurgles, gas, and nausea.

On the plus side... I printed out some Residual Functional Capacity forms that apparently my attorney never heard of for my disability hearing on the 21st. I gave one to my Psychiatrist and another to my ID doc.

I have yet to see the one from my ID doc but he called me and said he would be very thorough and will be adding addendums. He also said that my degenerative discs alone should qualify me. I believe the one from my Psych doc will be very helpful as she circled "marked" or "extreme" on every question.

Meet with the lawyer on Friday. First time in 6-7 weeks. ::)

------

Haven't heard from Betty here lately and hope she has encouraging news.



Oh, and gas here is still at 2.69 although I used the grocery points the other day and only paid 2 bucks a gallon. Yay! Cheapest fill in about 5 years.

Getting ready for an evening of Downton Abbey. The season is so short but I understand it costs a million per episode to make.

nuff rattling on. 





Title: Re: An on-going thread
Post by: BT65 on January 05, 2015, 06:39:54 am
Michael, $6/gallon?  Wow.

M, I'm here. I see my ortho doctor later this afternoon, if we don't get snowed in.  I believe I have another break on the outside of my leg.  Whenever I lift it or put any weight on it, it feels like there's an arrow being shot into my leg.

It sounds like you are dealing with a hell of a lot physically, M.  I really hope you get some kind of relief. Do you take pain meds?  I wonder with your headaches if they're at all stress related because of the upcoming disability hearing?  It sounds dreadful.

I need to eat something and get around.  I have much to do prior to the doctor. 
Title: Re: An on-going thread
Post by: Theyer on January 05, 2015, 08:11:17 am
David----what is your dose now ? Hope the cold goes quick

Mitch----your constant plaguing conditions must have such a debilitating affect I hope the encouraging comments from the ID Doc help but I guess the only thing that will help is too have it over and done with plus a nice loud YES.


Betty---- Good luck with it all ,
I presume all this traveling has to be done in snow ?

Me---- the new boiler refuses to work due to " low water pressure" been told by the council that I am top priority & can expect a engineer anytime in the next 24 hours .
My nose flows thinking off devising a nose nappy.
Watched " Quartet " v.good found the closing credits moving . Would move into that home without too many complaints , Better reflection off Britland than Downtrodden Abscess ,
Title: Re: An on-going thread
Post by: Miss Philicia on January 05, 2015, 09:59:08 am
David----what is your dose now ? Hope the cold goes quick

I'm only on 5mg twice a day. The titration would probably be 10mg twice a day. I've read of patients having to take 80mg daily for proper relief. Also the analgesic effect varies from patient to patient anywhere from 4-8 hours so they may have to have me take it 3 times a day.

Also thus far this drug doesn't make me feel at all high or sedated.
Title: Re: An on-going thread
Post by: Theyer on January 05, 2015, 12:36:16 pm
David---Not a high dose you would have to be very sensitive to feel any effect.
I hope you get your ideal dose soon so you enjoy the relief off greatly reduced pain ,made me want to sing it from the roof tops

Title: Re: An on-going thread
Post by: BT65 on January 05, 2015, 02:47:27 pm
Yes, Michael, it's through the snow and frigid temps.  It's like 3F Her right now. Even though I am looking forward to talking to my doctor, I'm not looking forward to going out. Not at all. I better go have a ciggie before my sister gets here to pick me up. I won't be able to have another one for about 4 hours. 
Title: Re: An on-going thread
Post by: guitargal on January 05, 2015, 04:31:23 pm
Hope you all had a nice holiday season. Mine was ok, I have been crying off and on since November because i miss my son.. My son is far away, out working in LA with children  through Americorps. I want to go and see him but not sure if I want to spend what little money I have to go there for a visit or to save some more cash and move down to Florida.

my hubbys family was here and they live here,  so we see them ALL the time. They just come and go as they want and I have no privacy. (his son in our house with his finance and it is driving me crazy)

I did not shop for gifts. ...usually I make people things. but just couldn't get it done this year.. I did get hubby some PJ pants from Jocky. and I made a calico pillow with ruffles for my sons' girlfriend. we decorated our big yucca tree again this year..as bringing in a christmas tree is a lot of work and we have a small house and I have a yucca, an avocado and a lemon tree already!
.
In laws brought us a rib roast to cook for Christmas dinner. That was a treat, although no one helped me cook or clean up. One young adult asked if she could help, I asked her to clear off the kitchen table, she did and then disappeared.. I was tired after so I went to lay down for a bit. Hubby also and he fell asleep.. At about 8 PM i went to the kitchen and nothing was put away. The young adults just went off to their rooms and living room and left the stove table and counters.

 I started cleaning up, step daughter in living room , didn't even ask if i wanted help. Now, even if I didn't want or need help, it would have at least been nice if someone asked…they do not understand that for me to just do the basic house chores i have to take pain meds to function. that when i do feel well i don't want to spend that time being a maid..and that is what it seems to me... my time of feeing well gets spent doing the daily house work..i am resentful.

I have been living in a constant state of being annoyed. I do not want to spend the last years of my life feeling pissed off all the time..

Glad to hear you had a great trip Mark. A friend of mine went to a hot spring in the winter with the snow and the photos he sent me were awesome.

Gas here is around 2.69 also. I have not been out , driving or pumping gas much and have not checked the prices lately. When the other states were enjoying under $3 a gal, we were still way above that.

Propane for heat is very low this year. yeah, now i can turn the heat up and not freak out, although we just got a $350 electric bill because we also have elect heat for rooms that do not get warm by the Rinnai heater that is in the living room.

My hubby/partners adult son, 24, has been living with us for a year! and then his fiancé moved in 5 months ago..They do not pay rent, they spend their money on having things and eating out..they got a new car loan.. and here I sit annoyed they live here... I thought by now they would have saved money to get their own place but the way they spend their money i don't see it happening... I hope they have plans to move out soon..they are good kids,, i just want my privacy back so much. It has hurt our relationship, hubby said he will not ask them to move..I said someone has to because it is not working this way..
If they do not move soon i feel that i may have to figure out a way to move out myself.

ah so the new year is going to be …?

best to you all
Title: Re: An on-going thread
Post by: Miss Philicia on January 05, 2015, 08:49:26 pm
Awesome! Yesterday's cold has turned into bronchitis. This should prove an enjoyable week. :-\
Title: Re: An on-going thread
Post by: Jeff G on January 05, 2015, 08:50:49 pm
That sucks big time … feel better Miss P .
Title: Re: An on-going thread
Post by: Theyer on January 06, 2015, 03:44:33 am
Awesome! Yesterday's cold has turned into bronchitis. This should prove an enjoyable week. :-\
Your prone to Brom ,hateful thing anyway do what you do and make it history
Yes, Michael, it's through the snow and frigid temps.  It's like 3F Her right now. Even though I am looking forward to talking to my doctor, I'm not looking forward to going out. Not at all. I better go have a ciggie before my sister gets here to pick me up. I won't be able to have another one for about 4 hours. 

Some how the extreme cold makes all these things much harder. I thought you would have had to give up driving ,,but it will still be there. Hope all went well at the Docs. Take care Betty .


Guitar Girl ----After reading your post I was  left angry. You seem to be putting up with stuff though not escaping feeling resentful not a good place.
I have no children but if anyone stays longer than a month they pay there fair way .Must confess I do not understand how these kid adults get away with it , But then somehow without it being discussed I knew that I had to pay Expenses to Parents.
Though one thing is certain unless you and partner change things , these kid adults will continue having you two paying out for them , while they drive there new cars to the
Party.
Title: Re: An on-going thread
Post by: BT65 on January 06, 2015, 08:32:39 am
Well kids, I was a direct admit to the hospital from the doctors appointment yesterday.  I will be having surgery tonight.  The doctor wanted me in because he does not want me walking around.  He took a couple X-rays which showed that the bone was about ready t re-break and come through the skin.

So here I sit.  Just ate breakfast, the last meal I can have until after the surgery.  I will probably be back to bitch throughout the day lol.  I would truly appreciate all good thoughts, vibes, energy, prayers etc.
Title: Re: An on-going thread
Post by: Jeff G on January 06, 2015, 08:38:46 am
I'm am relieved to hear you finally got the help you need with this so the healing can begin and we can find a way to get you to AMG so we can finally meet face to face . Hugs .
Title: Re: An on-going thread
Post by: Miss Philicia on January 06, 2015, 10:03:33 am
At least they caught it in time, Betty.
Title: Re: An on-going thread
Post by: BT65 on January 06, 2015, 10:47:54 am
I am fortunate, I know, that it was caught prior to my bone going through my skin.  I was telling the doctor how much it was hurting, just like it did prior to my previous fractures. 

I really want a cigarette lol.  I threw my nicotine patches in my bag before leaving to come here, thank God.  My spare e-cig ran out of steam earlier. 

For some reason the hospitalist didn't order my Ibuprofen.  So I have some achy joints.  The nurse is supposed to check on this, sometime.  She said when I am ready to go home, they will have my meds right lol.  He also didn't order my Metformin, which I have no clue as to what the reason would be.  Ah, life in the fast lane.

Jeff, I will definitely try my best to make it to Memphis, I think if I can make that bus I was telling you about, it should be doable.  I could always drive, though really wouldn't relish driving by myself. 

My sister is on the phone, so I better get off.  Thanks guys!
Title: Re: An on-going thread
Post by: mitch777 on January 06, 2015, 12:50:39 pm
Wishing you my best with your surgery Betty! No wonder why you have been in so much pain. yikes!

Do you have any idea how long you are in for?


Oh, and David... hope you get over it quick. You seem to come down with this much too often. Ugh.


hugs,
m.
Title: Re: An on-going thread
Post by: Miss Philicia on January 06, 2015, 01:30:16 pm

Oh, and David... hope you get over it quick. You seem to come down with this much too often. Ugh.

Actually my cough got under control quickly, but my temperature went out of control last night which is NOT a sign of bronchitis. At one point it was 102.6F when I woke up this morning (sheets were soaked), but I took a couple of Tylenol and now it's averaging 97-99F so I'm not going to freak out unless it gets worse again. If it does I'll call my doctor tomorrow. I'll still keep taking Mucinex just in case for my cough.

I think maybe I caught that strain of flu going around that the flu vaccine didn't work against.

ps: just talked to Betty on the phone and she seems all set for her surgery.
Title: Re: An on-going thread
Post by: BT65 on January 06, 2015, 01:49:54 pm
M, not sure how long I will be in, the doctor seems to think it won't be too long. Thanks.

David, thanks for calling.

I have a pretty bad headache, likely from lack of caffeine and nicotine, so I am going to try to sleep for awhile. I will try to keep people updated after surgery.
Title: Re: An on-going thread
Post by: Wade on January 06, 2015, 08:13:02 pm
Hey Betty,
Hopefully your out of surgery, and everything went well,
usually will give nothing for pain that will thin your blood before surgery
maybe no metformin , so your BS won't drop too low with no food in your stomach.

Good thing they caught it before a new break !
Could be a rod in your leg is what was needed to begin with
My thoughts are with you tonight 

Wade
Title: Re: An on-going thread
Post by: Jeff G on January 06, 2015, 08:16:43 pm
Betty went down to surgery at 4 PM, she texted me as they were taking her down . I just bet it will be tomorrow before we hear from her .
Title: Re: An on-going thread
Post by: Wade on January 06, 2015, 08:40:59 pm
Hope she's looped and feeling no pain  !!
Sleep Well
Title: Re: An on-going thread
Post by: aztecan on January 06, 2015, 11:20:18 pm
Wow, I am glad the doctor caught the problem before it broke again.

I will be keeping Betty in my thoughts.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on January 07, 2015, 09:35:14 am
Betty, certainly hope all is going well.  Been away too much to stay on top of all that is going on with everyone and am wishing everyone well.
Title: Re: An on-going thread
Post by: Theyer on January 08, 2015, 03:07:04 am
Betty,

Much love ,thank the Gods you made the appointment sending all the hope in the world to you ,

Much love
M
Title: Re: An on-going thread
Post by: mitch777 on January 08, 2015, 04:31:19 pm
Betty, Betty! It's time to wake up dear.

Hope all went well with your surgery and are free of that awful jolting pain.

hugs,
m.
Title: Re: An on-going thread
Post by: aztecan on January 12, 2015, 11:23:38 am
It was a rather rough weekend.

I was having a lot of COPD issues and was relying heavily on the rescue inhaler. I must remember to get that refilled.

I also made the mistake of having pasta (rice, of course) with marinara sauce. I don't eat it that often and didn't think about it aggravating the digestive issues.

It did.

OK, no more pasta with red sauce. 

After reading of Alan's trials on his thread, my petty problems don't really amount to that much.

I guess I just have to be more careful about what I shove in my cake hole.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on January 13, 2015, 11:20:02 pm
Mark, have you considered a humidifier?  We recently got one and I can't believe the huge difference in my breathing...especially at night.  It also aids in sleep.  Never once did I consider this in the past and it probably would have assisted with the sleep issues all along.

Greg came down with the flu....UGH.  I feel so bad for him.  He insisted on going to his place as he was worried that he'd make me sick.  I couldn't convince him that it was too late anyways as I've already been exposed so it wouldn't make a difference.

Other than that, we've been so busy and on the run.  I finally had a conversation with him that it's too much.  His energy is incredible but mine has ebbed quite a bit.
Title: Re: An on-going thread
Post by: leatherman on January 13, 2015, 11:49:49 pm
I finally had a conversation with him that it's too much.  His energy is incredible but mine has ebbed quite a bit.
thumbs up! its always better to talk about stuff before anyone gets resentful ;)
Title: Re: An on-going thread
Post by: Miss Philicia on January 14, 2015, 04:41:21 pm
So I had my first post-CPAP doctor appointment today. I've now gone from 70 apnea episodes per hour (yes, that's how bad my reading was) to 1.6, which my doctor said is remarkable. They are happy if a patient gets the number down to 25% of the baseline. For anyone here who thinks they might have sleep apnea get it checked out -- nothing scarier than hearing that 70 number.

I also had my first post-methadone pain doctor appointment this morning (busy day!) and am now doubling it to 20mg/daily for two weeks, then 30mg (10mg three times/day) which he says he will not let me go above due to my apnea issue. We also rescheduled my neurostimulator implant surgery for the end of February, but that will get cancelled if I feel enough pain relief once I am up to that 30mg. Otherwise we'll proceed with it.
Title: Re: An on-going thread
Post by: mitch777 on January 14, 2015, 06:04:37 pm
I'm a bit behind here catching up...

Mark, Sorry you are having trouble with the COPD and digestive issues. As Betty often says, if they affect you it is important or something like that. Sounds like a very uncomfortable weekend and I hope you have seen improvement! I agree with Greg. I find it much easier to breathe with higher humidity.

Mikie, Agreed! No sense in hiding that your energy level is lower.

Greg, ^. I'm so happy that you and the other Greg are doing well from what I see. GO OHI! (Greg will know what this means. lol.)

Michael, Just a hello and hope you are doing well these days and keeping yourself upright. You have been a good spirit lifter of late. Me, not so much but hopefully soon I will get back on track.

David, Wow! The sleep apnea thing is great news! 70 times per hour? Yikes!!! Can I assume you are feeling more rested after this huge improvement? (well, maybe not so much if your pain keeps you up) Best of luck with the new dosage.

Me, I've been having crappy headaches, GI issues and nausea above and beyond the norm lately. I'm sure it's due to the stress of my hearing. ONE WEEK TO GO!! Spent yesterday in bed and would have today if I didn't have a doc appointment.

Tomorrow will be my last appointment with my attorney before showtime. I'm still not sure why her lawyer partner is coming along but maybe they have a tag team kind of approach. lol. Whatever works!

Betty, I know this is mixing threads here but I do hope you are going to behave this time and follow the docs orders. Everyone is looking forward to seeing you at AMG  and you only have 6 months to go.  :)

Hugs.
Title: Re: An on-going thread
Post by: guitargal on January 14, 2015, 09:21:58 pm
gee i don't check in for a bit and so much is happening  and all the love and caring you all give to each other! whew..

betty, best to you and your recovery!

i see the  ID docs tomorrow. i drove down to bean town today and got a hotel because i just was not sure if i could do the trip all in one day by myself .
I canceled last time because of fatigue..
...lately i am so so so tired..i fall asleep at the wheel after 40 minutes..not good..not right.. but it is what it is and will cope with it the best i can..

menopause hot flashes, insomnia stress hiv IDK..all of the above..

primary care doc at home has got to go.. i can't find a new doctor up there..waiting lists, no new patients..The receptionist at my practice said i could not just switch to a different doctor within the practice..they have 5 doctors in that office..why? I have not been happy with him since 2012..
.…he just is not concerned about my GFR<50 again…last blood tests he did were in November and no change in meds, no new tests  and my T went down quite a lot in Nov as well..…good thing i am here in Boston and feel well cared for..it is just such a trip for me alone..

so get this….This is the last straw with the primary in VT....i had a cyst on my leg,  left calf..weird.. like i guess an ingrown hair gone crazy huge pimple!! size of a nickel..… i go to the PC just before christmas.. and they say hot compresses  it will probably pop..so then it grew faster and bigger, like a Quarter size.. ugh!
 and i go back   2 weeks later and they  said they will open it and clean it..ok good. finally.. may have a scar..oh well!

 so i am laying on the exam table nurse holding my hand, chatting with her to take my mind off of the incision..my primary brought in a resident to assist..

they cut and start cleaning  yeowch ! it started hurting and he said he will numb it more.. i look down and…..

Neither of them had on GLOVES!!!! i say "every thing ok down there? you have done this before right?

so i lay back down in utter shock...and they clean some more and i look again and my PC had then put on 1 glove..the resident none still..the resident did the cutting and assist cleaning...

 WTF!  i have been in doctor hell for 4 years…and that was the icing on the cake.. i have a call in with the  patient advocate from the hospital the practice is affiliated with, and the practice office manager.

  Next week will have to file formal complaint..this is the idiot who kept giving me tenofovir and then stribild with undiagnosed CKD 3…i say i need an attorney!   I am not very trusting of many doctors anymore…

so here i am where people actually know what they are doing..!!
Boston put me on their list right away and  treated the HCV  last June, July,& August  when the new meds came out for the type 1A  that i had...and cleared me of that…they listen and do tests and alter meds and really seem to care..

 then also.. good news here is that the adult son and his girlfriend from my man's first marriage. will most likely be moving over to our cabin that is across the yard, this weekend!!!! as mom in law who has been there is heading south for the winter.!!!!

yay!! my man and i will have privacy at last…
and those kids will have to get their lives together and move from the property eventually.. i have no respect for the way they use their dad..
they are in their mod 20's and just need to fly from the nest.

i would never have done that when i was young.I worked had old cars and lived in a few crappy places..all part of learning and living..being independent..
.even when i did have to borrow money from my mom i made payments as often as i could to pay her back.

i have no respect for them now..too bad, they caused the tension by wearing out their welcome.. i used to like them.they are good kids, not drunks or druggies..but hey..they ruined it... did not respect my privacy by mooching  and staying so long...and just because they are going over to the crappy cabin, they still have a roof over their heads  and heat and electricity and live rent free…
the boy does much of the yard work, so that is something..we have a lot of land..but the girl has never once mopped or used the vacuum..

what will i do if they get married and have kids!  oh the drama !

ok i blabbed enough thanks .....time for some Downton abbey..who was it that mentioned it recently! ?  and now i started watching it from the beginning and cannot stop!
 oh Dear!
Title: Re: An on-going thread
Post by: wolfter on January 16, 2015, 07:51:45 pm
Looks like I'm heading up to Mount Vernon when I get off work in the morning so I can tend to Greggie.  His flu isn't getting any better and he sounded horrid when I spoke to him on the phone this afternoon.  He a typical man that avoids doctors at all costs and assumes he can beat this on his own. 

I'd have someone cover for me tonight and head that way but it's so far and it's so dark.....lol  And I'm still adjusting to driving this big SUV.  Been driving that small S10 for so long that it fits like a glove.  I keep forgetting how huge this Dodge is.  I've already bumped into things twice....oops.
Title: Re: An on-going thread
Post by: aztecan on January 17, 2015, 11:53:07 am
Humph!

I broke my toe yesterday.

I won't bowl tonight, darn it.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on January 17, 2015, 11:55:09 am
Humph!

I broke my toe yesterday.

I won't bowl tonight, darn it.

HUGS,

Mark

Are you feeling left out of the "broken bones" club?  :)  hope it mends quickly. 
Title: Re: An on-going thread
Post by: leatherman on January 17, 2015, 02:03:31 pm
I've already bumped into things twice....oops.
now, now. we were just talking about the hardship of driving in the "big city", not "bumping" into things  :o ;D
Title: Re: An on-going thread
Post by: OneTampa on January 18, 2015, 10:07:39 am
Humph!

I broke my toe yesterday.

I won't bowl tonight, darn it.

HUGS,

Mark

Mark, hope you are healing from your broken toe.

Best.
Title: Re: An on-going thread
Post by: wolfter on January 18, 2015, 01:20:42 pm
now, now. we were just talking about the hardship of driving in the "big city", not "bumping" into things  :o ;D

This isn't a driving issue...lol  I'm so used to my little S10 that has a flat faced front end.  The way this
Dodge is made, You can't see where the front end stops.  Then you add the huge bumper to the mix that you also can't see, and it's quite easy to "tap" things.  Since then, I'm catching myself parking several feet short and have to redo it.
Title: Re: An on-going thread
Post by: aztecan on January 20, 2015, 11:01:25 pm
Why do you think I drive a Fiat?

HUGGLES,

Mark
Title: Re: An on-going thread
Post by: Jeff G on January 21, 2015, 01:46:43 pm
Update on cymbalta ... or I should say cymzombie .

My pain docs asked me to try it for a month, next Tuesday will a month and I see my doc that day and I will discontinue the drug . Cymbalta reminds me a bit of Atripla with the dark thoughts and dreams ... I have been sleeping about 14 hours a day on this med and I cant wait to stop taking it . I always do what my doctors ask of me so I can honestly say I do my part in staying well or being a little better but this past month has been the worst in 10 years . Its time for a nap now .
Title: Re: An on-going thread
Post by: Miss Philicia on January 21, 2015, 03:31:59 pm
That sounds awful. I would have given up after 2 weeks. Oddly when I took Cymbalta I don't recall feeling anything, but it raised my blood pressure so I went off of it. Sleeping 14 hours a day obviously is not acceptable.

Are they going to have you try something else or are you just going to cut them off on that subject?

ps: now that I'm off Gapabentin completely I don't feel like eating a bag of Doritos every day. My libido hasn't really returned though. It might have disappeared for good now.
Title: Re: An on-going thread
Post by: Jeff G on January 21, 2015, 06:23:54 pm
That sounds awful. I would have given up after 2 weeks. Oddly when I took Cymbalta I don't recall feeling anything, but it raised my blood pressure so I went off of it. Sleeping 14 hours a day obviously is not acceptable.

Are they going to have you try something else or are you just going to cut them off on that subject?

ps: now that I'm off Gapabentin completely I don't feel like eating a bag of Doritos every day. My libido hasn't really returned though. It might have disappeared for good now.

Unless they have invented something new in the last month there is nothing new for me to try … Thats the tiresome thing of it all, I am never going to get better but they keep wanting to try the same failed things over and over again and I am just frustrated with them now and will put a stop to it come Tuesday … Im done .
Title: Re: An on-going thread
Post by: Tonny2 on January 21, 2015, 07:14:17 pm
Unless they have invented something new in the last month there is nothing new for me to try … Thats the tiresome thing of it all, I am never going to get better but they keep wanting to try the same failed things over and over again and I am just frustrated with them now and will put a stop to it come Tuesday … Im done .

     ojo    Hi Jeff, I'm sorry, I didn't know you were going through all this, with me eye problems, sometimes it is impossible to read all the threads....I found out what an anxiety attacks were after taking Cymbalta, so I stopped using it, it was given to me for pain...I hope I wish I could help you, I can just send you a big hug and hope you feel better....more hugs      ojo   
Title: Re: An on-going thread
Post by: mitch777 on January 21, 2015, 07:18:14 pm
Unless they have invented something new in the last month there is nothing new for me to try … Thats the tiresome thing of it all, I am never going to get better but they keep wanting to try the same failed things over and over again and I am just frustrated with them now and will put a stop to it come Tuesday … Im done .

I know the feeling as I'm sure David does. Hate it when the treatment turns out worse than the ailment itself. Another trip around the merry-go-round as my Neurologist says. "Tell me when you want to get off".
Title: Re: An on-going thread
Post by: Wade on January 21, 2015, 08:59:36 pm
Mark.
Think warm is better than cold for a broken toe,
just don't injure yourself worse trying to get it there !!!  LOL
And Jeff.... You Will Get Better....We Need You !!
Title: Re: An on-going thread
Post by: wolfter on January 22, 2015, 01:19:14 pm
I just couldn't imagine existing constantly in pain and truly feel for all of you that do. 
Title: Re: An on-going thread
Post by: Jeff G on January 22, 2015, 01:28:34 pm
I just couldn't imagine existing constantly in pain and truly feel for all of you that do. 

Its physically and emotionally draining and requires you to develop coping skills to deal with it as well as having reasonable expectations about how much relief treatment can bring .
Title: Re: An on-going thread
Post by: Tonny2 on January 22, 2015, 02:10:52 pm


     ojo       good for you Jeff, I must admit that there are times that I have thought in throwing the towel, for the same reason you mentioned, but I'm still fighting to try to solve my eye and pain problems...keep fighting my friend...hugs      ojo
Title: Re: An on-going thread
Post by: Theyer on January 22, 2015, 03:07:32 pm
All off our condition are very common in LTS , perhaps though not the pain off a ulcer . Although I have stopped any further investigation into why I need three to recover from any physical activity I am continuing with the Osteo clinic and hope to have my Drug regime by the end off the week + the Dental work .
Good news the Drug treatment for my low blood pressure is working , so therefore a drop in falls.


50days on anti -bees made me winch Jeff , I sorry you have been thro that.
Title: Re: An on-going thread
Post by: wolfter on January 22, 2015, 03:31:09 pm
I'm sure I posted in another thread, but I return to the osteo doctors in the big city Monday.  They're bone specialists, but I think they're more like money suckers.  I have to call by tomorrow to decide if I'm rescheduling or canceling this appt.

Well, I am.  I suffered Boniva for over a year.  Knowing I could not leave the house for at least 2 days, scheduling it around priorities, and then being told it was all in vain?  How do they know?  It's important any my doc agrees ( I think). 

Obviously, I have bone issues but I can't get it out of my head that we should at least see if the current treatment saw a trend?
Title: Re: An on-going thread
Post by: AlanBama on January 22, 2015, 03:35:53 pm
Jeff, cymbalta turned me into a zombie; I hated it.   They have my partner's 92 yr old mother on it in the Nursing Home -- she's now zombie-fied.   I am glad you are stopping this drug.

Hope you have a better month in Feb.

HUGS, Alan
Title: Re: An on-going thread
Post by: Jeff G on January 22, 2015, 03:50:57 pm
Jeff, cymbalta turned me into a zombie; I hated it.   They have my partner's 92 yr old mother on it in the Nursing Home -- she's now zombie-fied.   I am glad you are stopping this drug.

Hope you have a better month in Feb.

HUGS, Alan

Thanks Alan … my probs are small fries to yours and Bettys, if the worst of my problems are sleeping too much and being bitchy I should not complain . Dr Clark called from our clinic today to offer support and an expedited appointment so help is on the way .

I hope you are feeling better and mending . Hopefully you guys can make it to AMG this year… I think its going to be a huge success .
Title: Re: An on-going thread
Post by: Miss Philicia on January 22, 2015, 04:53:05 pm
On the other hand I have a close friend (non poz) who has Fibromyalgia and has gotten great relief from Cymbalta. Obviously it works for some people and works very well.
Title: Re: An on-going thread
Post by: Wade on January 22, 2015, 08:41:30 pm
OK , haven't read much good about Cymbalta for a pain med , much the same as other posters have stated , but  have no personal experience.

I am very lucky also to not suffer from constant neuropathy pain ,had it for a short time in the early 90s,it was hell !  my heart goes out to those who do, I can't imagine what that's like. I have arthritis in many of my joints , but it's not the same I know.

Had my six month follow up with my orthopedic surgeon today, and got before
and after x-ray pics from both knees  , I don't know how to post them or I would share ! anyone who can guide me through it feel free to Pm me, shit I can't even figure out how to use the emotions !

Hope to make it to AMG after all these years in Aug ! Would be nice to put faces with names !
 
Title: Re: An on-going thread
Post by: Tonny2 on January 22, 2015, 08:57:31 pm

      ojo      pain is pain buddy bubba..I never have been in any af AMG...where do I find information abou it....and don't worry about not knowing how to upload pictures, sometimes I don't even know my name, lol...hugs     ojo
Title: Re: An on-going thread
Post by: Wade on January 22, 2015, 09:07:23 pm
Hey Tony , you and I are on the same page ! Go all the way down to the last
forum. pretty sure it will be in Memphis in August , I'm bringing a cooler for my underwear if I make it !!!
Title: Re: An on-going thread
Post by: aztecan on January 22, 2015, 09:23:17 pm
I have neuropathy, but nothing like some of you do. Mine is mostly like walking on shards of broken glass.

Ironically, when I went to the hot springs the day after Christmas, and had to walk through snow and ice barefooted to get to them, it didn't bother me in the least. Actually, I think walking around in 15-degree weather made them numb, which was actually a relief for me.

Regarding AMG, yes, please take a gander at the last section here, at the bottom. It will be in Memphis and the dates, etc., are there as well.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Tonny2 on January 23, 2015, 02:30:48 pm


       ojo      Thanks bubba and Mark, for the info, but I guess keep forgetting I'm legally blind and it would be difficult to make it by myself...thanks anyway...I guess I have to start getting rid of my fears of being around by myself.....hugs     ojo
Title: Re: An on-going thread
Post by: BT65 on January 23, 2015, 10:05:42 pm
Greg, they're telling you that you taking Boniva did nothing?  I missed that.  And you had to stay home for two days when taking it? Was that because you felt like you had the worst flu-y aches ever?  That's why I stopped the Fosamax, just wondering if it was like that for you with the Boniva. 

So, what, if anything, will you be going on?
Title: Re: An on-going thread
Post by: wolfter on January 24, 2015, 09:40:21 pm
That's my entire issue Betty, they refused another bone density scan after all this time and simply want to swtich meds.  I can't get my head around how we would even know if the Boniva did any good at all.  And suggesting a daily injection when not even seeing the results of the last regimen?  Not real keen.

Taking Boniva required that I did it when I knew I could stay home for 2 days.  There were a host of issues with it.  Fatigue, achiness, and worst of all?  Running to the restroom constantly and begging that you made it in time.  The first day was usually spent in my bed mere feet from my personal toilet.  I made it MOST of the time.  lol

Title: Re: An on-going thread
Post by: BT65 on January 25, 2015, 06:21:08 pm
Yes!  That's exactly why I stopped Fosamax, though admittedly I had more horrible pains than the runs, though I had that also.  I have to have labs, and if everything is okay, I'll start the Forteo.  I have to quit these constant breaks.

But, they won't even order another bone density?  I'd like to know the real reason for that.  It doesn't sound right.  Sorry you're going through all this, aggravating.
Title: Re: An on-going thread
Post by: Miss Philicia on January 25, 2015, 07:17:40 pm
I know Medicare rules only allow a bone density scan once every 24 months so maybe that's part of it, wolf? If "medically necessary" they allow more but maybe your doctor wasn't going to jump that hoop, though I don't see why you wouldn't qualify. Did you confront the doctor on this billing issue?
Title: Re: An on-going thread
Post by: wolfter on January 25, 2015, 07:37:02 pm
Actually, Medicare didn't want to pay for the original scan as it didn't appear medically necesary.  My doctor did jump through hoops to get them to cover the typical 80%.  I explained that I would pay the entire cost this time but my doc said he's confident that he could explain why it's needed.

My doc agrees with me and he wants to see what transpires at my appt tomorrow.  I already know that I'm not switching meds without seeing how well the current one did.  It's another case of being my own advocate and not blindly accepting what someone says that doesn't have any vested interest. 

I plan on going to the Columbus appt but will insist that I'm not comfortable making such a radical change without appropriate knowledge. 

As part of this switch, I had to do a 24 hour urine collection that I've never had done before.  I had regular urine tests but this was showed a 24 collection result of 537.7  My regular creatinine is normal but the extended one if way off.


thanks all, just another hurdle in this lifetime of issues.
Title: Re: An on-going thread
Post by: wolfter on January 26, 2015, 09:05:23 am
Betty, the bone doctor is highly recommending Forteo also.  I guess it's sorta irrational to worry about side affects but I kinda worry that if I had reactions to Boniva and switch to a daily med that I'll be constantly incapacitated.

I'm hoping like hell that the roads won't be too horrid as I attempt city driving.  I'm already the person that other motorists pass and flip off and it'll probably be much worse today.  On most of the stretch along the interstate it's 70 mph.  Wolfie never needs to drive that fast again, even on a dry summer day.  :)
Title: Re: An on-going thread
Post by: Theyer on January 26, 2015, 09:36:14 am
Wolf it seems to me neglectful to refuse a LTS a Density Scan given how many off us have Osteo

Tomorrow I have my appointment with the Osteo Team to discuss and start my new treatment.Obviously I am hoping to be able to take and benefit from whatever is prescribed but I am wondering is one told is keep taking the drugs as the side effects will wear off?

This is crucial to me if I want to avoid casts. Today my balance and blood pressure is all over the place due to chest cold ( I am hoping )

I will Post tomorrow's outcome and would be grateful to get feedback.


are you home Betty . No more anti
Bees Jeff ? I will go a searching .
Love to all
Title: Re: An on-going thread
Post by: wolfter on January 26, 2015, 09:43:55 am
Michael, my ID doctor did order a BDS which is how it was determined the severity of my osteo issues.  He ordered the Boniva which I've been on for a while but it was determined that I should see a specialist as I continued to have more broken bones.  All the literature says Boniva actually takes a while to work and might actually cause further bone loss in the short term before it starts strengthening the bones.

I could deal with the side affects of that drug as it's a short period each month.  I guess those of in the "powdery bones" club can start sharing further experiences with the treatments. 

OH, and I fell off the deck last week which I didn't mention.  I slipped and fell about 3' and didn't break anything so the Boniva might actually be working. 
Title: Re: An on-going thread
Post by: Miss Philicia on January 26, 2015, 01:43:22 pm
I've never had a bone density scan. I've inquired about it but my doctor sees no need for one if I am not experiencing anything indicative of such an issue. Medicare used to not cover them for preventative base line measurements but I think that recently changed so I should ask my doctor again about this now that I am about to turn 50, don't you think? I'm putting it in my notes to ask him for our next appointment.
Title: Re: An on-going thread
Post by: wolfter on January 26, 2015, 01:49:09 pm
I've never had a bone density scan. I've inquired about it but my doctor sees no need for one if I am not experiencing anything indicative of such an issue. Medicare used to not cover them for preventative base line measurements but I think that recently changed so I should ask my doctor again about this now that I am about to turn 50, don't you think? I'm putting it in my notes to ask him for our next appointment.

My doctor has changed his entire mindset about getting a baseline due to the huge number of patients who are experiencing this issue.  Most of us won't present with the need until an injury happens.  I never thought about it until then either.  Who would?

My doctor indicated almost half of his patients tested so far show some form of bone loss.  I guess this might be the next bane for LTS.
Title: Re: An on-going thread
Post by: Tonny2 on January 26, 2015, 01:58:43 pm


       ojo      I asked my primary doctor for a bone density test, some years ago, the results came back and he told me that my bones look like an old man's bones, I showed my ID doctor the results, he said that he wasn't concerned aboout it, so, I just let it go and I haven't have another test done, I hope I don't get any broken bone as I'm a LTS, cross your fingers....hugs, ah, 20 years taking meds        ojo
Title: Re: An on-going thread
Post by: BT65 on January 26, 2015, 08:02:36 pm
I was able to get a bone density done the first time, about 13 years ago. Medicare covered it, and it was a screening. 
David, I would say you should get a bone density done. I would want to see where I'm at definitely.
Title: Re: An on-going thread
Post by: wolfter on January 27, 2015, 12:13:44 pm

       ojo      I asked my primary doctor for a bone density test, some years ago, the results came back and he told me that my bones look like an old man's bones, I showed my ID doctor the results, he said that he wasn't concerned aboout it, so, I just let it go and I haven't have another test done, I hope I don't get any broken bone as I'm a LTS, cross your fingers....hugs, ah, 20 years taking meds        ojo

Hope this doesn't sound harsh, but why would you just "let it go" ?  If my ID doctor said he wasn't concerned about something so serious I'd doubt his overall abilities.  I don't think a "cross your fingers" approach is adequate at all.  Perhaps it's time to broach the subject assertively with him after witnessing what so many of us are experiencing.  A few of us are prime examples of how difficult it is to mend our broken bones once it happens. 
Title: Re: An on-going thread
Post by: wolfter on January 27, 2015, 12:20:47 pm
My osteo team impressed me.  They truly listened and answered my questions thoroughly.  I will be eligible for another a medicare covered bone scan in May so I'll continue the Boniva until then and then they can compare the difference between the 2.

Unfortunately, there are not a lot of studies for them to reference with bone loss and aging with HIV much less where men are concerned.  Most of what is known is based on studies involving women.

They strongly urged me to consider the Forteo and I was honest with them that I didn't feel I would  be adherent.  They appreciated my honesty and understood my fear of needles.  Hell, I still hyperventilate when having blood drawn.  They even have to constantly tell me to breathe.  Since the twice yearly injections (done at their facility) require a prior authorization, they're going to go ahead and start on the approval process.
Title: Re: An on-going thread
Post by: BT65 on January 27, 2015, 05:19:38 pm
I'm glad you're confident in your osteo practitioners.  I will be looking forward to seeing how your bone scans compare.  Someone told me that osteoporosis meds weren't proven to work, but that's been awhile ago. 

Title: Re: An on-going thread
Post by: guitargal on January 30, 2015, 01:06:38 pm
Its physically and emotionally draining and requires you to develop coping skills to deal with it as well as having reasonable expectations about how much relief treatment can bring .

jeff, cymbalta did not help me. i stayed on it for about 8 months .idk why..they were throwing so many pills at me i was not able to make decisions i guess..i started with 5  mg oxy and then  cymbalta and then a month later they added lyrica and klonapin  i was in bed all day ..for months..they, the docs,  didn't care at all…
 i went off lyrica then they added low dose ritinin to combat all the down tired feelings..i "woke up' enough to realize the meds were not doing shit and got off of everything but the oxy.

.was hard to withdraw from the cymbalta..i had to open the capsule and take 1/2 the beads then toughed it out…
 
you only being  a month should be ok.

this pain thing is very hard to deal with mentally.over 3 years now and i still can't cope...i am kind of ok if i take the right amount of oxy, too much and i am out of it all stoned and hate that feeling..too little and my whole body pain comes roaring back and i get afraid  angry and upset..

my relationship is falling apart..i tried CBT, EMDR, water physical therapy, acupuncture massage..nothing works!

the neuropathy in my feet is not bad..off and on..it is the fibromyalgia..it started when they took me off hiv meds and then back on..
like an IRIS thing..

now they want me to try welbutrin..works with the dopamine and noreprephrin  sp? instead of SSRI…

i read about ketamine experiments. ..oh god no..

oh and i tried nortriptaline..have you? all tired and it made me cry..

and yeah..i have ostepenia..have not had a bone scan since fall of 2011.. they don't care. no one ever mentions it at the doctors..primary or ID..i won't take the osteo meds..so i guess it does not matter…i just do not go out in the snow and ice…so i am shut in for now..i am only 53  WTF!?
Title: Re: An on-going thread
Post by: Jeff G on January 30, 2015, 01:16:10 pm
I'm off the cymbalta now . I have not really ever found any thing that significantly helped with my chronic pain except for narcotics and since I have been on them for years now they are not working as good as they did any more and I cant keep going up on the dose so I am weaning my myself off pain meds . Before I got back on them life was hard but I got by and I am sure I will again . If things progress as they are now I should be narcotic free in a month. I wont lie, I feel really crappy but its just for a month . I took myself off pain meds once to make it easier to move to another state so I know what I am getting into . My doctors are aware of what I am doing .
Title: Re: An on-going thread
Post by: Tonny2 on January 30, 2015, 02:29:05 pm


       ojo       Hello everyone...welcome to the club, where pain meds don't help anymore...what's next?.....@Jeff, have you tried nortriptyline?...it helped me when I started with my neuropatic pain a long time ago, I was on 50mg and Vicodin 2x500mg three times a day (tho I only used twice a day)...it doesn't help anymore, I just take norco 5mh 2x5mg, when my pain is to strong, especially my eye pain, I add half more to my dose of norco....sorry my friend, we have to learn to live with the pain, right?    hugs             ojo
Title: Re: An on-going thread
Post by: Jeff G on January 30, 2015, 02:59:29 pm

       ojo       Hello everyone...welcome to the club, where pain meds don't help anymore...what's next?.....@Jeff, have you tried nortriptyline?...it helped me when I started with my neuropatic pain a long time ago, I was on 50mg and Vicodin 2x500mg three times a day (tho I only used twice a day)...it doesn't help anymore, I just take norco 5mh 2x5mg, when my pain is to strong, especially my eye pain, I add half more to my dose of norco....sorry my friend, we have to learn to live with the pain, right?    hugs             ojo

I will have to ask my doc if I have tried nortriptyline … I probably have .
Title: Re: An on-going thread
Post by: Miss Philicia on January 30, 2015, 06:17:09 pm
Nortriptyline was the first med my neurologist tried on me in combination with gabapentin. It did nothing for me except cause very severe dry mouth -- which I already have from two decades of lots of medication but this made it unbearable. I didn't last more than a month on it I think this past summer.
Title: Re: An on-going thread
Post by: Wade on January 31, 2015, 09:41:50 am
Jeff....
I truly hope this works out for you
It's a gutsy thing your doing , but you always seem up for a challenge !
Wishing you the very best
Wade
Title: Re: An on-going thread
Post by: Jeff G on January 31, 2015, 10:00:47 am
Jeff....
I truly hope this works out for you
It's a gutsy thing your doing , but you always seem up for a challenge !
Wishing you the very best
Wade

Thanks ... its actually going remarkably well as far as the taper goes and I am taking it in stride and even getting a little bit of sleep ... not much but a little . The pain is a separate issue and I will have to assess that when the tapering is not a factor .
Title: Re: An on-going thread
Post by: wolfter on January 31, 2015, 12:27:27 pm
Accepting that Humana gets to make medical decisions for me instead of qualified medical professionals.  They denied covering Boniva through both the initial denial and subsequent appeal.  SOB's.  My doctor explained that this has been my regular course of treatment and need to stay on it until my next bone scan.

So through the process, I opted for the every 6 month shot that will be administered in my doctor's office.  She said they'd work on the preauth but quickly rec'd a call from the person in charge of billing.  Since this is a medical procedure done in the office, it's actually billed straight to Medicare instead of Humana.  HMMM.....  At least it's covered I guess. 
Title: Re: An on-going thread
Post by: mitch777 on January 31, 2015, 01:31:19 pm
Accepting that Humana gets to make medical decisions for me instead of qualified medical professionals.  They denied covering Boniva through both the initial denial and subsequent appeal.  SOB's.  My doctor explained that this has been my regular course of treatment and need to stay on it until my next bone scan.

So through the process, I opted for the every 6 month shot that will be administered in my doctor's office.  She said they'd work on the preauth but quickly rec'd a call from the person in charge of billing.  Since this is a medical procedure done in the office, it's actually billed straight to Medicare instead of Humana.  HMMM.....  At least it's covered I guess.

Greg,
Grrr...
Glad you at least got it covered. I'm wondering if you may not have those awful side effects with the shot as opposed to the pill. Even if you do it would only be twice a year.

m.
Title: Re: An on-going thread
Post by: J.R.E. on February 01, 2015, 10:27:19 am
 :P :P :P :P


It's colonoscopy prep day !!   :P :P  OH FUN !! The last one was five years ago.   My last meal was a Sandwich, at 8:00 last night. ( Saturday))

According to the VA's Instructions for  a colonoscopy, Nothing solid is to be eaten today ( Sunday ) .  I can have clear broth/ bouillon and clear liquids during the day today, to remain hydrated.

The Golytely Solution, will start around 5:30 this afternoon, and will take between 3-5 hours to complete.  If I remember rightly, the last time I did this I had the solution down pretty quickly.

I've got some gator aid/ apple juice/ white grape juice,.. to replenish myself during the early evening hours, and during the prep,  and nothing by mouth after midnight. Colonoscopy is scheduled tomorrow morning at 9:00, we'll leave the house about 7:30 AM.

On the plus side,  it's a beautiful day today, highs are going to be in the upper 70's, so that means we will take a swim and this afternoon at 2:00, and sit in the jacuzzi.

Then shortly after, all the fun begins !  :o


These are the instructions from the VA.  BOTTOMS UP  ::)     !.  I'm going to mix the solution now an keep in the fridge until 5:30. It taste better cold.


(http://i1047.photobucket.com/albums/b473/exrrje/HPIM1091_zpsksbmy7zd.jpg)
Title: Re: An on-going thread
Post by: Jeff G on February 01, 2015, 11:05:40 am
Well Ray, let us know how everything comes out and if there will be 6 more weeks of winter .

Best of luck with your test !
Title: Re: An on-going thread
Post by: J.R.E. on February 01, 2015, 11:15:54 am
Well Ray, let us know how everything comes out and if there will be 6 more weeks of winter .

Best of luck with your test !


 :D

I wonder if it would be inappropriate, to bring a shoe box with me tomorrow, and ask the doctor to please return any rings, bracelets, or any other jewelry,  that he may come across, during the procedure !   ;D


Ray  8)
Title: Re: An on-going thread
Post by: Jeff G on February 01, 2015, 11:20:13 am

 :D

I wonder if it would be inappropriate, to bring a shoe box with me tomorrow, and ask the doctor to please return any rings, bracelets, or any other jewelry,  that he may come across, during the procedure !   ;D


Ray  8)

He should be more worried about the groundhog  ;) .
Title: Re: An on-going thread
Post by: Wade on February 01, 2015, 11:21:18 am
Sounds like you got a pawn shop goin on up there !
Good luck !
Title: Re: An on-going thread
Post by: aztecan on February 01, 2015, 08:47:13 pm
Hey Ray,

Your getting in one end, I the other. I have my endoscopy tomorrow morning.

I fully expect they will find nothing, but one must humor one's doctor.

No golightly for me this time. But I did have to go off the pain meds (NSAIDS) which I take daily to reduce the pain levels.

None since Thursday. I really felt it yesterday and today.

Hope all comes out well for you tomorrow, jewelry and all!

HUGS,

Mark
Title: Re: An on-going thread
Post by: J.R.E. on February 01, 2015, 09:16:11 pm
Hey Ray,

Your getting in one end, I the other. I have my endoscopy tomorrow morning.



HUGS,

Mark


Good luck Mark !!  Hope all the results are good !!


I started the Golytely @ 5:10, and am now just finishing the last glass. ( 4-hours)  UGH,....   It started working quickly after the third glass.


I think I can say my colon is completely cleaned and flushed out !  :P

Hopefully I'll get a good sleep tonight, but oh man, am I hungry !  Ed said he"ll treat me to a steak tomorrow for lunch !  8)


Ray


Title: Re: An on-going thread
Post by: pozniceguy on February 01, 2015, 11:52:06 pm
hey  guys just  jumping in to add my   prostate biopsy  to  the list  of  Probes  that seem to be happening ,  first  one , wont  know  results  till  thurs afternoon

Nick
Title: Re: An on-going thread
Post by: wolfter on February 02, 2015, 12:45:28 pm
hey  guys just  jumping in to add my   prostate biopsy  to  the list  of  Probes  that seem to be happening ,  first  one , wont  know  results  till  thurs afternoon

Nick

OH NO, did they find masses that had to be removed?  Sending you my best.

Title: Re: An on-going thread
Post by: wolfter on February 02, 2015, 12:46:21 pm
I've not been probed lately except for the voluntary pleasurable kind.   ;D
Title: Re: An on-going thread
Post by: Miss Philicia on February 02, 2015, 02:20:44 pm
Because we've been discussing this issue please be sure that you see/read this thread I just put up

Screening for bone fracture risk should be routine for over-40s with HIV, new guidelines recommend (http://forums.poz.com/index.php?topic=57628.0)
Title: Re: An on-going thread
Post by: J.R.E. on February 02, 2015, 04:31:19 pm
 8)

The colonoscopy exam went great !     One polyp was removed, and internal Hemorrroids were noted. The doctor said everything looked good, and he was pleased how well I followed directions on the prep. The colon was clean !  :)

I also got to watch this being done on the monitor.  So that was kind of interesting. I didn't go asleep, and watched from the beginning to end. The procedure lasted about 40 minutes.

I was always aware of the Hemorroids, But they have not been an issue now for over ten years, and the doctor suggested, that I leave these alone, that they are not a problem.


Last week on Wednesday, I had a Dermatology appointment.  I had another Squamous cell removed.  ( At least that's what the doctor believed it was).  So a chunk was cut out on my left arm again.

I will know more when the biopsy results come in. 

The Dermatologist also prescribed two medications for me.


The first photo is of "FLUOROURACIL 5% CREAM

This is to be applied every day, to the tops of my hands and the top of the left forearm. This will treat for pre-cancers, and will be used for 4 weeks. I understand this cream can make your hands and arms look like crap, as the medication does it's job. May cause a sunburned look, along with possible blistering and peeling.

(http://i1047.photobucket.com/albums/b473/exrrje/HPIM1094_zpsqikrothf.jpg)


This second photo is of "TRIAMCINOLONE ACETONIDE 0.1 % CREAM

This is to be applied to the affected areas, twice a day, to hands and forearms, in case that first medication causes too much burning and/or irritation. This will help to calm that possible reaction.

(http://i1047.photobucket.com/albums/b473/exrrje/HPIM1093_zpsw6eruduu.jpg)



Hey Nick,....Good luck with your upcoming exam !!!


Ray
Title: Re: An on-going thread
Post by: mitch777 on February 02, 2015, 04:46:40 pm
Geez, so much going on here lately.

Congrats and best wishes to you all!

Nick, hope you get terrific boring results on Thursday!
Title: Re: An on-going thread
Post by: Tonny2 on February 02, 2015, 05:52:53 pm


      ojo      good for you Ray, I decided to be asleep while my colonoscopy...good luck with your arm...hugs       ojo
Title: Re: An on-going thread
Post by: mitch777 on February 02, 2015, 06:35:08 pm

      ojo      good for you Ray, I decided to be asleep while my colonoscopy...good luck with your arm...hugs       ojo

I'm with you Tonny. They can send me the video later. lol.
Title: Re: An on-going thread
Post by: J.R.E. on February 03, 2015, 10:42:01 am

I will know more when the biopsy results come in. 




Dermatology just called me.    It was a squamous cell that was removed, on Wednesday. No further action needs to be taken at this point, all of it was removed.


Ray
Title: Re: An on-going thread
Post by: Jeff G on February 03, 2015, 11:21:17 am

Dermatology just called me.    It was a squamous cell that was removed, on Wednesday. No further action needs to be taken at this point, all of it was removed.


Ray

I am glad to hear this update, thanks !
Title: Re: An on-going thread
Post by: Tonny2 on February 03, 2015, 01:36:53 pm


      ojo     Hi Ray...happy to hear that...hugs        ojo
Title: Re: An on-going thread
Post by: Wade on February 03, 2015, 08:27:35 pm
That's Great news Ray !
I had the same cream prescribed for spots on my head , arms,
and chest . We didn't wear sun screen back in the day,
we were brown as berries ,and beautiful ! now we have spots !
Title: Re: An on-going thread
Post by: aztecan on February 04, 2015, 12:27:37 am
The endoscopy went fine. They found no evidence of ulcers, which was suspected, nor any scarring or damage to the esophagus.

So, that was good news.

All that was found was a polyp in my stomach. I didn't know you could get polyps in your stomach, but apparently, you can.

So, the excised it. I go back on the 16th to find out what the biopsy shows. I am not overly concerned about it.

Because of the polyp, I couldn't go back on my pain meds right away. I can't start again until Thursday.

I don't like being without them, but what's to do?

HUGS,

Mark
Title: Re: An on-going thread
Post by: Wade on February 04, 2015, 08:47:13 am
I never heard of a polyp in your stomach either ?
But the rest sound like good news !
Title: Re: An on-going thread
Post by: J.R.E. on February 04, 2015, 10:44:04 am
That's Great news Ray !
I had the same cream prescribed for spots on my head , arms,
and chest .


Thanks all,  I'm going to wait a couple of weeks until this crater ( from the Biopsy) heals completely on my left arm.  Then I will start on the FLUOROURACIL 5% CREAM. Hopefully the stuff will work with the least visual unsightliness . This skin crap is a bugger !


Mark,,  Glad to hear your endoscopy went well !


Take care---Ray
Title: Re: An on-going thread
Post by: pozniceguy on February 04, 2015, 02:12:46 pm
schedule  to  get  results  tomorrow  but  thought I  would  put  s few  details  up  for those that  hadnt  done this  particular probe.... super  machine  actually a Sonogram   with a  device  that  cuts  little  "cores"    from  more than  20  location  precisely  mapped on the  Prostate...each  sample  core is  placed in a specific  container in a  box of sample bottles  labeled by  location....  Dr  has a  recording of  whole  procedure   and will will  check  test  results  against  visual of that  location

bad  news  (  sorta)  is that  you tend to piss blood  for a few days   and  absolutely  no  sex  alone or other wise  for  2 weeks

so  expect  a session to last a while  tomorrow  especially if  any  further action is needed

just one  more item  to add to  your  "golden years"  list 

Nick
Title: Re: An on-going thread
Post by: mitch777 on February 04, 2015, 06:25:47 pm
Great news Mark. Pain meds are within sight!

Ray, Good to hear that they got it all. I hate the skin crap too. lol.

Nick, Interesting description. Hang in there for the next two weeks and I hope no further action will be needed!!

------

Me? Well i've been a bit crankier than usual lately and haven't posted much. Dealing with getting my lawyer to submit necessary stuff to the ALJ. All was submitted yesterday! Yay! Now it's a matter of waiting.

Feeling rather crappy lately. No big deal but have been having horrible fatigue, GI issues and my degenerative disks are causing more tremors in my left arm and head. Feeling more like Katherine Hepburn.

I have an appointment with a neurosurgeon Friday to discuss it and hope there will be alternatives to surgery as I've heard that it's the last thing one wants to do if you can avoid it. We shall see.

Having more issues with concentration lately but I'll chalk that up to stress and the winter doldrums. Both my mind and my yard are fluffy these days. Can't wait to get away next month for a few days in warmth and sunshine.

My two minutes are up.  ;)
Title: Re: An on-going thread
Post by: Tonny2 on February 04, 2015, 07:22:01 pm


      ojo     Hi Mitch, sorry to hear about what you are going through, here it goes a big bear hug, I hope and it makes you feel better  ;p                 ojo
Title: Re: An on-going thread
Post by: mitch777 on February 05, 2015, 02:17:06 pm

      ojo     Hi Mitch, sorry to hear about what you are going through, here it goes a big bear hug, I hope and it makes you feel better  ;p                 ojo

Thanks Tonny! I'll manage. Just another day in the life of a dinosaur. Hugs back sweetie.
Title: Re: An on-going thread
Post by: Tonny2 on February 05, 2015, 09:31:29 pm


     ojo      Hi Mitch....I'm having my own issues my friend, when I was in Mexico last month, my neuropatic pain was awful, I was blaming it to the weather, but now, back at home (Ohio),the pain is still pretty bad, I don't know what else to do, I take vicodin for it, but it doesn't help anymore...but, like you, I'll manage, it is what it is, right?  ojo
Title: Re: An on-going thread
Post by: mitch777 on February 05, 2015, 09:51:17 pm

     ojo      Hi Mitch....I'm having my own issues my friend, when I was in Mexico last month, my neuropatic pain was awful, I was blaming it to the weather, but now, back at home (Ohio),the pain is still pretty bad, I don't know what else to do, I take vicodin for it, but it doesn't help anymore...but, like you, I'll manage, it is what it is, right?  ojo

 
It is what it is but you are one of a handful here that continues to keep my spirits up by your generous concern toward others in the midst of the obstacles you face yourself. Trying not to lay it on that thick but it is what it is. Ha!  :)

I hope you find some relief.
Title: Re: An on-going thread
Post by: Tonny2 on February 06, 2015, 02:35:16 am


        ojo     Hi Mitch...thanks for your kinds words, being here, it helps me to forget my pains, and knowing that i'm not the only one dealing with some issues, make me feel stronger....hugd buddy           ojo
Title: Re: An on-going thread
Post by: wolfter on February 06, 2015, 03:00:01 am
Lordy, we're all a pitiful bunch.  :)  Sending absolute positive energy to all. 
Title: Re: An on-going thread
Post by: BT65 on February 06, 2015, 09:06:03 am
Well, I got an infection in one of my incision sites, so I'm on antibiotics.  But I don't take it lying down!  Day before yesterday, I went out shopping (grocery).  At one store, I walked in with my cane, got into one of those electric carts, and proceeded to get groceries there.  The man who was bagging helped me by taking my groceries to my car. 

The next store I went to, did the same thing.  Only this store's parking lot was full of ice and snow, so it wasn't so easy to navigate. Got an electric cart, did my shopping there, but no one there helps out with getting groceries to the car. So, I tried to take the cart to my car, but it wouldn't go over the ice and snow. I got stuck 3 times. Finally someone passing by asked if they could get someone. I asked her to please get a store employee. 

So when the employee came out, I asked him to stay with the cart while I got my car, which he did. But that meant I had to walk again over the ice and snow, with my cane. It goes very, very slow when I only use my cane.  Anyway, got that done, got home, carried everything inside (while using my walker, I'm so talented lol). 

Yesterday I went to the store that was helpful, and the parking lot was clear from the sun being out, so I was able to take the cart out to my car.  By God, I don't like being held down. 

Still on the walker mostly. I am doing physical therapy exercises, and practicing walking with the cane.  But, it goes very, very slow when I use the cane, and I can only walk with it for a short distance.  Then my knee and ankle get very weak, and I have to go back on the walker. 

The doctor told me before that people can put full weight on this type of leg surgery, in a week. I disagree.  At least with me. Now I can lift the opposite leg up while standing on the one that had surgery, which obviously means at that point full weight is going onto that leg; but I cannot do it for long, or continue doing it over a period of time.  Still weak.  But, it is better than it was.  So, that's something.

M, I'm sorry you're not doing well.  So, your lawyer has to send more stuff to the judge?  Isn't this over yet?  I may have missed something.

Tony, I hope you're feeling better.  I have severe neuropathy, so I feel ya.

Hope all is okay with everyone else. 

Betty
Title: Re: An on-going thread
Post by: mitch777 on February 06, 2015, 04:40:57 pm
Betty,

It's nice to hear you are getting better! Just glad you didn't fall on the ice and break another bone! btw... were you shoveling with your walker? Maybe I missed that.

As far as my hearing goes, the judge asked my lawyer to submit some more crap. She did and now it's just the wait.

----------


So... I did NOT get the news today that I had expected from the neurosurgeon. I had hoped he would say that my discs have more time to degenerate before surgery was needed but no, they will be calling me soon to set up a surgery appointment.

They will be removing 2 discs in my neck and replacing them with a fused spacer made partly of my own bone and partly from cadaver bone.

They will be coming at it through an incision in the front of my neck about 2-3" long. Only one night in the hospital at least and he said the recovery time is pretty quick to be able to do my normal daily activity. Then there will be 3 months of wearing something around my neck for at least 4 hours a day.

Oh joy.
Title: Re: An on-going thread
Post by: Tonny2 on February 06, 2015, 05:39:35 pm


     ojo    Hi Mitch, cadaver bone?...did you talked to your doc about possible rejection from your own body?...just a thought...hugs and best of luck..who is Betty?     ojo
Title: Re: An on-going thread
Post by: mitch777 on February 06, 2015, 05:52:15 pm

     ojo    Hi Mitch, cadaver bone?...did you talked to your doc about possible rejection from your own body?...just a thought...hugs and best of luck..who is Betty?     ojo

I haven't gotten that far. I will need to do some research on this whole thing. What cadaver bone wouldn't be happy as a clam living their life vicariously through me anyway? lol.

Betty is BT65. :)

Hugs and thanks!
Title: Re: An on-going thread
Post by: Wade on February 06, 2015, 08:25:03 pm
Mitch,
What shitty news !
No more shoveling for you ,
sure your dealing with the everything frozen thing too , be careful !
good luck with SSI .
Stay Well ,Wade
Title: Re: An on-going thread
Post by: BT65 on February 07, 2015, 05:11:26 am
M, no, I didn't shovel with my walker.  I had the shovel in one hand, then when I needed to move I had my cane in the other.  That way I was able to lean on both.  It's tricky lol.

I'm so sorry to read about the needed surgery. Boy can I relate to having to have surgery done, though yours is a different kind.  Write down all your questions.  That's what I did.  I also googled the type of surgery I was to have done and checked on the reputable websites. 

Is this surgery going to give you relief?  Are your migraines related to this?  I'm sure you'll do your research.   

I'm just getting tired of having to use the walker.  My knee is still weak where the incision is, and my ankle is weak from the previous break.  Continuing on with the physical therapy exercises.....

Betty
Title: Re: An on-going thread
Post by: mitch777 on February 07, 2015, 12:46:38 pm
M, no, I didn't shovel with my walker.  I had the shovel in one hand, then when I needed to move I had my cane in the other.  That way I was able to lean on both.  It's tricky lol.

I'm so sorry to read about the needed surgery. Boy can I relate to having to have surgery done, though yours is a different kind.  Write down all your questions.  That's what I did.  I also googled the type of surgery I was to have done and checked on the reputable websites. 

Is this surgery going to give you relief?  Are your migraines related to this?  I'm sure you'll do your research.   

I'm just getting tired of having to use the walker.  My knee is still weak where the incision is, and my ankle is weak from the previous break.  Continuing on with the physical therapy exercises.....

Betty

I really really would have loved to see a video of your shoveling technique. lol.

I should have written down my questions but I honestly wasn't expecting that surgery would be necessary at this point. I do plan on checking out the web for more info.

The surgery should give me relief from my arm pain/tingling/numbness but not sure about the migraines. My neurologist has said he thinks that these discs might be the cause. We will see.

I did remember to ask the neurosurgeon about my tremors in the left hand and my bobble head and surprisingly he said that tremors are usually not related to disc issues. hmm...

Sorry to hear how frustrating your recovery is but I'm sure time and TLC will eventually get you back walking on your feet. Hang in. :)


Wade, thanks for the support. I don't really do too much shoveling as Kenny tries to get it done before I can get outside. I help but not much.

Title: Re: An on-going thread
Post by: pozniceguy on February 07, 2015, 07:35:02 pm
Mitch  so  sorry  about the  surgery  thing... hate  surgery... always  issues  other than the original  problem ... years ago  had  a problem  with  disc   a little  lower  on back  but  the  recommendation  was  to  Fuse or  replace  them  by  going in  from  front  cut  rib cage  move lungs  and  other  things out  the way    when put  back  take  6 or more  months  to get back  to "normal"
alternate  was to  wear  a"brace  for  about  6 months"   and let  bones  fuse...I  took that  route .... actually  took 14 months before they let me take it off... they  tend to be very optimistic  about  "healing"

not to  scare you  but  be prepared  for other Issues..


as  for  current  prostate issue  ..had  chat with  DR... found  that  2  areas  had  cancerous  cells  ..this  condition  has  ratings  for   combo  of  type /aggressiveness...  uses  10 points  10  means  they  drag you to  hospital  from  DR  office..  6 or less mean  you  wait  and  watch  for a while  could be years.... I  am 7..this  number means  surgery  not  recommended  but other  options can be  considered...so  off to the  Oncologist  to  determine  what options  to  consider...


the  never  ending story  begins....


Nick
Title: Re: An on-going thread
Post by: mitch777 on February 07, 2015, 08:08:07 pm
Mitch  so  sorry  about the  surgery  thing... hate  surgery... always  issues  other than the original  problem ... years ago  had  a problem  with  disc   a little  lower  on back  but  the  recommendation  was  to  Fuse or  replace  them  by  going in  from  front  cut  rib cage  move lungs  and  other  things out  the way    when put  back  take  6 or more  months  to get back  to "normal"
alternate  was to  wear  a"brace  for  about  6 months"   and let  bones  fuse...I  took that  route .... actually  took 14 months before they let me take it off... they  tend to be very optimistic  about  "healing"

not to  scare you  but  be prepared  for other Issues..



as  for  current  prostate issue  ..had  chat with  DR... found  that  2  areas  had  cancerous  cells  ..this  condition  has  ratings  for   combo  of  type /aggressiveness...  uses  10 points  10  means  they  drag you to  hospital  from  DR  office..  6 or less mean  you  wait  and  watch  for a while  could be years.... I  am 7..this  number means  surgery  not  recommended  but other  options can be  considered...so  off to the  Oncologist  to  determine  what options  to  consider...


the  never  ending story  begins....


Nick

Thanks Nick. Don't you go worrying about me now. I do expect the healing process to go beyond what was described as I doubt they, or any other doc for that matter has performed it on a 32+ year Poz guy. Another experiment for the records.  ???

Well, I'm glad you weren't rated an 8,9, or 10 anyway! It may be a never ending story that hopefully won't require much along the way although I certainly can understand the never ending story part of it.

Sending my best your way!

Title: Re: An on-going thread
Post by: BT65 on February 07, 2015, 08:21:43 pm
Nick is right about doctors being optimistic abou "healing."  My bone surgeon said some people are full weight bearng within a week after getting a rod put in. Well, I bet they don't have two other breaks to deal with lol.  My ankle is still pretty weak.

As far as my shoveling, well, the shovel was pretty heavy so I could lean on that with most of my weight. M, if I could have video'd it I woulda sent it to you lol. 

I'm so sorry you're having those issues with your neck and all the secondary issues. Sounds very painful and frustrating.  You'll be in my daily anxieties/prayers.

Betty
Title: Re: An on-going thread
Post by: mitch777 on February 07, 2015, 08:24:17 pm
Nick is right about doctors being optimistic abou "healing."  My bone surgeon said some people are full weight bearng within a week after getting a rod put in. Well, I bet they don't have two other breaks to deal with lol.  My ankle is still pretty weak.

As far as my shoveling, well, the shovel was pretty heavy so I could lean on that with most of my weight. M, if I could have video'd it I woulda sent it to you lol. 

I'm so sorry you're having those issues with your neck and all the secondary issues. Sounds very painful and frustrating.  You'll be in my daily anxieties/prayers.

Betty

Thanks Betty, you will be in mine as well. :)
Title: Re: An on-going thread
Post by: aztecan on February 08, 2015, 06:50:02 pm
Hi all, a lot to catch up on here!

Mitch, I'm sorry to hear about the surgery recommendation. Please keep us posted as things progress.

Betty, dumplin, let someone else shovel the damn snow!

Nick, I am sorry to hear of the prostate cancer. There is way too much cancer going around these days. Please keep us posted on how things are going.

I will be keeping all of you in my thoughts.

As far as my news, well, it was interesting. After they found the polyp in my stomach, the doctor decided to share some information with me.

They are relatively rare, about 1 percent of the population will get them.

There are three basic types. All can be malignant and stomach cancer can easily result from them.

The good news is, mine was not, so I'm pretty OK. No H. Pylori either.

I haven't seen the gastroenterologist, but my HIV doc can access the medical records, they are on the same computer system. I will see the gastroenterologist on the 16th.

So, we have no clue why I get the weird pains I get.

But after being told I probably have ulcers, then having a mini cancer scare instead, I'm not going to worry about it.

In fact, I think I will make something special for dinner tonight, Welsh lamb pasties with a spinach salad and fresh pineapple sorbet.

HUGS,

Mark
Title: Re: An on-going thread
Post by: pozniceguy on February 08, 2015, 11:53:06 pm
Mitch  and  Mark  thnx  I  am not  particularly  worried  about the options  My  Dr  told me  what  the possibilities are  and  sort of  recommended one    will  chat with  cancer specialist  about  his take on treatment...  I  have already  decided  against  "chemical"   which actually is series of Estrogen  shots....which  is  supposed  to  shrink  prostate  but  grows  breasts  and a butt....dont  think  thats for me...others  are  variation on  Xray,  radioactive pellets    and  various  combinations of the  two

interested to  hear  his opinion

Nick
Title: Re: An on-going thread
Post by: BT65 on February 09, 2015, 04:53:42 am
Geeze Mark, ulcers?  Those can be quite painful.  My ex brother-in-law had those and was a terrible alcoholic. One time he drank so much his ulcers started bleeding.  He couldn't even hold down water and ended up in the hospital. 

I hope yours stay non-irritated.  As for me and the snow, we, I like to do what I can.   

Betty
Title: Re: An on-going thread
Post by: aztecan on February 11, 2015, 09:51:36 am
On a light note, I received my lab results from the doc today.

CD4 is still OK at 986 (41%) and an undetectable viral load.

My cholesterol is OK, although still marginal.

I guess that isn't too bad.

HUGS,

Mark
Title: Re: An on-going thread
Post by: mitch777 on February 11, 2015, 11:29:22 am
Nick, Good luck with your visit with the cancer specialists. I personally wouldn't mind 1/2 of the estrogen pill option... the half that adds a few pounds to the butt anyway.

Mark, Glad to hear that most everything turned out ok. Your numbers are great too!

Me, Well I'm getting tired of this snowy and cold weather and keeping my fingers crossed every time I go to the mailbox. Nothing much else going on in the igloo for now. Just plodding along with my usual maladies.
Title: Re: An on-going thread
Post by: Tonny2 on February 11, 2015, 01:53:23 pm
Nick, Good luck with your visit with the cancer specialists. I personally wouldn't mind 1/2 of the estrogen pill option... the half that adds a few pounds to the butt anyway.

Mark, Glad to hear that most everything turned out ok. Your numbers are great too!

Me, Well I'm getting tired of this snowy and cold weather and keeping my fingers crossed every time I go to the mailbox. Nothing much else going on in the igloo for now. Just plodding along with my usual maladies.

      ojo     Hey Mitch,,,I can be your mailman, just let me know...hugs     ojo
Title: Re: An on-going thread
Post by: J.R.E. on February 12, 2015, 07:31:19 pm


I received the letter in the mail today, in regards to my colonoscopy on 2/2/15.

The polyp was a " Hyperplastic Polyp".  It was benign.  So it looks as though my next colonoscopy will be in 2020.

Well, ..Here's the letter...


(http://i1047.photobucket.com/albums/b473/exrrje/HPIM1096_zpsrobths0d.jpg)
Title: Re: An on-going thread
Post by: mitch777 on February 12, 2015, 07:50:14 pm
      ojo     Hey Mitch,,,I can be your mailman, just let me know...hugs     ojo

Ok Tonny. They show up around 10:30 AM. :)

Ray, I'm a year overdue for my next colonascopy. Time to get it scheduled I guess after my neurosurgery.  ::)
Hope I get a 5 year break. That procedure just sucks beans. Congrats!

ps- that letter looks like it was almost typed with a typewriter. lol.
Title: Re: An on-going thread
Post by: wolfter on February 19, 2015, 05:36:22 pm
Had a lot going on of late and apologize for not interacting more.  Trying to figure out how and what to do with this property. I've worked my ass off on it and have gotten it to the point where even I was surprised the amount of equity we have.

My brother and I worked through it all and discussed out options.  His wife absolutely loves this place even though they live in what I would consider a dream home and location.  They recently paid off their house and we own this one outright. 

And since I expect to soon be living with someone else, I need to think smartly through my next steps.  We settled on a deal where we'll break ground in the spring for a smaller home on one of our vacant lots.  Once completed, they'll move in here.

With as many uncertainties that I've experienced in life, I want to guard against potential issues.  We've decided that I'll build me a 1200 sq ft garage with an equal size garage apartment above it.  That also stops us from paying the ridiculous flood insurance premiums. 

It won't cost me anything as they'll make the loan payment generated from renting their home.  This is such a total win/win and can barely wait.  Since I'll be the general contractor, I'm sure I can build it correctly to my standards and a much reduced price.  So neither of us will pay anything for rent/house payments.
Title: Re: An on-going thread
Post by: leatherman on February 19, 2015, 07:54:08 pm
Since I'll be the general contractor, I'm sure I can build it correctly to my standards
since you'll be the general contractor, wrapped in bubble wrap, ......
right? you meant to mention the bubble wrap but just forgot, right. LOL

wow! That's all good news and good planning.

after a quick check to see what forum this is, let me also say, wow! Can you believe you're making long-range big plans like this?!?! To have nearly been a bunch of dead men not all that long ago, isn't it amazing to be this alive?!? ("And since I expect to soon be living with someone else") and this in love?!? Nice ;)
Title: Re: An on-going thread
Post by: wolfter on February 20, 2015, 11:30:23 am
Some days, it does all seem surreal.  In the hospital, dying of AIDS at 26 years old and suddenly close to turning 50.  My most vivid memory during that hospitalization was listening to my doctor telling the family that my passing was imminent and soon.  I was pretty ok with that until the hospital priest came in and gave me last rites....OH HELL NO, it pissed me off and forced an internal fortitude to fight.

Perhaps we're different from our negative counterparts as I cherish each birthday and am not bothered in the least by aging.  :)



Title: Re: An on-going thread
Post by: Wade on February 20, 2015, 02:26:39 pm
That's so bizarre, I was in the hospital and was told on the second
day, was not responding to the Bactrim ,
and would not make it through the night. they couldn't get my
oxygen level up high enough and my organs would start shutting down.
Obviously they were wrong.
The weird part is they sent a priest to my room too !
I'm not even catholic , I rang for the nurse and told her to
get him the fuck out of my room !
 All his babbling about my sins set me off !

We built a new house and are living happily too ,
and not suddenly will be turning 60 in a few weeks !
Go Figure.
Title: Re: An on-going thread
Post by: Theyer on February 22, 2015, 06:46:50 am
Hello one and all,
Been away walking in Lancashire AONB Bowland Forest with large group off friends. Did me tons off good. With the help off other completed walks that I would off said no to before going. One particular one consisting off thin muddy path with a immediate drop to fast flowing river / long assents / lots off differcult obstacles to manage along the way / 5miles  or there abouts.

Walking poles very useful as are helpful patient friends.

Back in London now with Dental work tomorrow and hospital Thursday. Blah blah.

As soon as dental work is either finished or there is a gap off 4 weeks I am off to Orkney.
Easter will be spent in Suffolk so good flat walking and beaches .
This is what I want more off.   Country and the ability to walk in it.

Hope all is well with you all will check thro for news tonight
Love Michael
Title: Re: An on-going thread
Post by: BT65 on February 22, 2015, 09:30:01 am
Michael!  We were worried about you!  Mitch just posted wondering where you were.  I'm so glad you're able to go for long walks and can enjoyed it.  You deserve it with everything you've been through. 
Much love-
Betty
Title: Re: An on-going thread
Post by: Theyer on February 22, 2015, 03:09:54 pm
Sorry to cause worry , no wi-fi where I was no phone signal unless you stood apon a chair half way out the window in the old maids room. Had thought I had successfully posted on the train going up , guess the train connection broke oh bother.
Title: Re: An on-going thread
Post by: Wade on February 22, 2015, 04:08:01 pm
Hi Michael,
Sounds like your doing great ,
A five mile walk on rough terrains is quite a work out !
Easter by the sea sounds great !
How's your weather ?
Title: Re: An on-going thread
Post by: wolfter on February 23, 2015, 08:30:13 am
That's so bizarre, I was in the hospital and was told on the second
day, was not responding to the Bactrim ,
and would not make it through the night. they couldn't get my
oxygen level up high enough and my organs would start shutting down.
Obviously they were wrong.
The weird part is they sent a priest to my room too !
I'm not even catholic , I rang for the nurse and told her to
get him the fuck out of my room !
 All his babbling about my sins set me off !

We built a new house and are living happily too ,
and not suddenly will be turning 60 in a few weeks !
Go Figure.

I could easily be upset with the hospital for my treatment during the dark ages, but they were ill equiped to deal with virus as it's a small town, unremarkable hospital.  They pretty much simply provided palliative care at the time. 

I was obviously so sick that I couldn't hold down food or water.  I suddenly woke one morning and was starving.  I rang for a nurse and explained that I was hungry.  It was so weird how fantastic I felt.  She had a horrid look of fear on her face.  Immediately called for the shift doctor who promptly came in and examined me.

I hadn't noticed anything weird until I was almost done eating.  It was then that I noticed my skin was bright orange.  I was informed that I was co-infected with HepB and my liver was shutting down.  Soon, my pancreas followed.  Some how, I cleared that on my own and regained some health.

I disputed the diagnosis and it  caused issues with my spouse.  He obviously knew how HepB is spread and we had been together a long time and he obviously knew I wasn't an IV drug user so that only left cheating as a way of contracting it.  I believe I convinced him, but I'll always have that lingering doubt.

Fast forward to my new ID doctor a few years back; he tested me for all strains of Hepatitis.  It was only then I learned that I had never been exposed to that virus.  I lived for almost 2 decades thinking I had HepB only to find out that I didn't.  He even vaccinated me against it. 

Title: Re: An on-going thread
Post by: mitch777 on February 23, 2015, 02:17:57 pm
Hello one and all,
Been away walking in Lancashire AONB Bowland Forest with large group off friends. Did me tons off good. With the help off other completed walks that I would off said no to before going. One particular one consisting off thin muddy path with a immediate drop to fast flowing river / long assents / lots off differcult obstacles to manage along the way / 5miles  or there abouts.

Walking poles very useful as are helpful patient friends.

Back in London now with Dental work tomorrow and hospital Thursday. Blah blah.

As soon as dental work is either finished or there is a gap off 4 weeks I am off to Orkney.
Easter will be spent in Suffolk so good flat walking and beaches .
This is what I want more off.   Country and the ability to walk in it.

Hope all is well with you all will check thro for news tonight
Love Michael

Hey Michael! I was beginning to get worried about you and then you come back having had some wild adventure. Good for you and welcome back!

Hope all goes well with your dental work so you can enjoy some time in Orkney. As Betty said, you deserve it.

Love and hugs,
m.


Title: Re: An on-going thread
Post by: weasel on February 24, 2015, 10:27:43 am
Some days, it does all seem surreal.  In the hospital, dying of AIDS at 26 years old and suddenly close to turning 50.  My most vivid memory during that hospitalization was listening to my doctor telling the family that my passing was imminent and soon.  I was pretty ok with that until the hospital priest came in and gave me last rites....OH HELL NO, it pissed me off and forced an internal fortitude to fight.

Perhaps we're different from our negative counterparts as I cherish each birthday and am not bothered in the least by aging.  :)

    Thank you  Wolfter & Bubba ,
                                                 I've been is such a down mood after I turned 60 last August .
   It is good to see others view on this aging thing .
     I know I shold be thrilled with each and everyday  but some days are hard  :-[

                                                                                                            Carl
Title: Re: An on-going thread
Post by: Wade on February 24, 2015, 11:00:07 am
Hey Weasel,
60 is a good thing !
What bothers me is everything moved around,
What used to be here is there,
 
What used to be there is here,
Something's are missing altogether !

Saw myself in a three way mirror last summer trying on a bathing suit,
Thought someone else was in there with me !
Surly that's not my ass,and who let the air out of it !
Oh Well LOL.....
Title: Re: An on-going thread
Post by: wolfter on February 27, 2015, 04:15:18 am
Goodness, I never expected I'd make it to 50 and it had nothing to do with AIDS.  I'll be damn fortunate if I make it to 60.  A lot of people who told me that if I didn't change my ways or I'd die young are now dead.   :) 

One thing I vowed to do early on if I survived was to try and enjoy each and every day even if it wasn't a great one.  I'm here on this earth for such a short period of time that I want to enjoy it on my terms. 

I'll never understand the mindset of the likes of the Koch brothers and many others.  Miserable existance if you ask me, having the ability to be so generous yet absorbed in selfish greed and disliked so badly.  How these types of people don't realize that being hated isn't a great legacy.
Title: Re: An on-going thread
Post by: Theyer on February 27, 2015, 05:13:05 am
It's a paradox this ageing thing  , we do all we can to stay alive yet get depressed with the reality off ageing . I also have days when I beat myself up for not greeting each day as though I where  Maria von Trap on E , all because I have battled through a few might die months .

In our position , sorry in MY position I think I would be mad not to be depressed at times , for some situations it's the healthy response. What is not healthy is doing nothing about it once it's been recognised.

So hugs to all , double hugs to birthday men & women ....Carl &  David spring to mind.

I am about to tie on my apron , nipple half a breakfast E and do some decorating
Title: Re: An on-going thread
Post by: Miss Philicia on March 03, 2015, 11:48:27 am
I've been remiss with updates on my on-going efforts at treating my chronic acute neuropathy pain. As previously mentioned I began opioid treatment (specifically methadone) which had to be titrated slowly because of the nature of this specific medication's half-life. I've now been on 30mg/daily for a month, and it's only been partially successful. They may raise it to 45mg/daily but that will be the final amount they're willing to do because of my sleep apnea issue, even though the treatment for that is entirely successful.

So during this past week I went forward with the one-week trial of a neurostimulator device. The device during the trial clips on your belt and is attached to lead wires, which were inserted during outpatient surgery into my back, hooking somehow to my spinal nerve (at the bottom as that's closest to where my pain is located, being my feet). The first several days I thought the whole process was useless and not working, but once I got used to the electronic sensation and could handle increasing the frequency levels to the highest setting I suddenly was getting quite significant pain relief. Beyond any relief I have experienced with these opioids.

Today I went in to have the lead wires in my back removed, and I've now scheduled the full surgery for a neurostimulator implant for March 19th.
Title: Re: An on-going thread
Post by: Jeff G on March 03, 2015, 12:05:15 pm
Thats great news Miss P, you deserve a break after all you have been through .
Title: Re: An on-going thread
Post by: Tonny2 on March 03, 2015, 12:59:43 pm


         ojo      good for you Miss Philicia...good luck with your procedure, I will thinking about you that day, thanks for sharing, I will look into the info you sent me..hugs    ojo
Title: Re: An on-going thread
Post by: wolfter on March 03, 2015, 08:10:34 pm
That's great news David.  As I've said before, I'm ever so grateful to never have experienced  that level of pain that you and others have.
Title: Re: An on-going thread
Post by: mitch777 on March 03, 2015, 08:25:18 pm
I missed this until now. I last thought it wasn't working but it sounds promising now.

Geez, between your implant and apnea devices you are wired to the max.
Title: Re: An on-going thread
Post by: pozniceguy on March 04, 2015, 12:50:17 am
just  a follow up  on  visits  to  Oncologist....decided on a  treatment   for  the low level   prostate  cancers   will  start  thurs (  5  mar)  with  inplant of  markers  for  targeted  radiation...(  Dr  claims  over  95%  success). then  a  Mapping session  of the locations to  concentrate  xray treatment....  then  the  bad news....5  days a week  for  8  weeks  20 min  session...outpatient.... claims  little  side effects...from most patients.


apparently  this  is an Xray  machine  guided  like using  GPS  coordinates  but  this  uses the  "markers"  to  triangulate  position on prostate  like   satelites    are used   for  GPS

Nick
Title: Re: An on-going thread
Post by: harleymc on March 04, 2015, 03:36:40 am
PNG,
it's interesting how treatments vary from patient to patient, clinic to clinic, country to country. I have a friend who has some radium pellets inserted to tackle a prostate tumour.
He's getting a bit tired of the glow in the dark jokes, but so far it seems to be working for him.
Best of luck with your treatment.
Title: Re: An on-going thread
Post by: Wade on March 04, 2015, 11:12:07 am
Hi Nick,
Hope all goes well, and the side affects are minimal .
Also hope you don't have too far to travel.
Wade
Title: Re: An on-going thread
Post by: wolfter on March 04, 2015, 12:57:55 pm
Here's to hoping your're part of the 95%.  Take care of yourself and best wishes buddy.
Title: Re: An on-going thread
Post by: pozniceguy on March 04, 2015, 02:04:09 pm
thnx  guys     discussed  treatment options  including the  "Pellets"  seems  most  Drs  stop using that  one recently  too  many long term  side effects to  other organs  around  the prostate   (  colon and some  muscle)  also  a  "one day  treatment"   6 hrs of  chemical drill  though  tubes inserted  directly  in prostate..very  invasive..very  hard on patient (  6  hours of  being  "sling position"with  chemical  drips )  so  bad news  clinic is one of two in Dallas  uses this  technique   both  more  than  30  miles.... this  clinic  primarily  Prostate  patients... other  primarily  breast  cancer
so  just  plan  to be a  "traveller"  for the  next  months

BTW   Greg   I  plan  to  be  a survivor   made it  so far  with the  bug  over  20 years  not letting this be the  "killer"


Nick
Title: Re: An on-going thread
Post by: Tonny2 on March 04, 2015, 02:28:53 pm


      ojo     hello pozniceguy, just want to say to you, good luck, I will be sending you good vibes during your treatment...hugs    ojo
Title: Re: An on-going thread
Post by: mitch777 on March 04, 2015, 03:22:06 pm
Nick,

Best wishes for you during your treatments. It all sounds promising.

m.
Title: Re: An on-going thread
Post by: aztecan on March 15, 2015, 04:57:15 pm
Hi all,

A few interesting things have happened recently, which I thought I would pass along.

First, my doctor said he recently learned that using Advair Diskus inhalers with integrase inhibitors isn't a good idea. I don't remember the particular medication in the Advair, but the bottom line is he switched me from that to Serevent and Qvar.
So, now I use two inhalers in the morning and two at night.

The second interesting thing is I finally figured out why I have been such a clutz.

I have lost most of the feeling in my fingers. I guess it is from the neuropathy.

I really have to concentrate when I pick up or carry something because I will just suddenly drop whatever it is.

I have a client who was telling me how she handles this. She always looks at her hands when she is carrying something.

Sounds like good advice to me. I just wish I hadn't taken so long to figure it out.

Live and learn, live and learn.

HUGS,

Mark
Title: Re: An on-going thread
Post by: Wade on March 15, 2015, 05:15:47 pm
Hi Mark,
Sorry to hear your getting that numbness in your hands,
Sounds like a real pain in the ass !!

Also that your having trouble with your inhalers , are they helping ?
I just turned 60 , I was a heavy smoker till ten years ago,
And worry if COPD is in my future,time will tell .
Be Well , Wade
Title: Re: An on-going thread
Post by: BT65 on March 15, 2015, 08:05:40 pm
Mark, I've had that trouble with dropping things the past couple years due to the neuropathy. Anymore I just try to concentrate on what it is I'm needing to carry, as some things are more fragile than others lol. 

Hadn't heard about the Advair, interesting.  My doctor put me on, God, now I can't remember what she put me on unless I click over to my thread lol.  Terrible.  I know it wasn't Advair though. 

Good luck navigating neuropathy in the upper extremities.  Not something I've mastered.  You're probably better at it.  (Sorry, I've got major brain farts.). I blame that on the breathing treatments they're forcing me to endure lol.
Title: Re: An on-going thread
Post by: wolfter on March 16, 2015, 09:20:39 am
Numbness in the extremities, yeah I definitely relate.  I've raised these concerns for a while now but there is no way I can look at my hands while carrying things as I'm sure I'd end up falling or walking into something.  :)

Now I need to check if ProAir inhalers cause the same issues.  I use mine in the morning then at night.
Title: Re: An on-going thread
Post by: mitch777 on March 21, 2015, 03:52:32 pm
Add another one to the dropsy list.

While I have a problem with my left arm/ hand due to degenerative disk disease I still find myself dropping things with the other hand as well. Also, I've noticed increased klutziness with my feet. I don't have neuropathy nor use an inhaler but feel that it is a more general neurological problem, at least for me.

I try not to let it bother me but I do often wonder about it getting progressively worse.

While in Palm Springs I noticed that my Parkinson's-like "bobble head" tremors were getting much worse. I asked about it months ago when I saw the neurosurgeon and was told that it most likely wasn't related to my disk issues so I guess it's just another thing to keep an eye on. :P

Speaking of Palm Springs...

We had a wonderful time! There were a few days that I really wasn't feeling well but expected.

We took a look at several condos that we think might be in our price range. Liked 2 out of 5. We were relieved to hear that the electric bill would be FAR cheaper than our oil bill is here.

The people were so friendly and I got the sense that PS has a wonderful sense of community. Everyone that I spoke to said they felt the healthcare was very good.

Kenny seemed (for the most part) to love the city and I think has finally come around to the idea of moving there.

Came home last night to 27F and snow flying on our drive from the airport. 2" last night and another inch this morning. We still have over a foot on the ground!

I want spring and I want it now!!! Ha!

Title: Re: An on-going thread
Post by: BT65 on March 21, 2015, 06:42:00 pm
M, I'm so glad that you all had a good time and are resolved to make that your new home.  I'm sorry about your Parkinson's symptoms.  It's frustrating, I get it.  And I understand.  We get it.  Just hang in.  I mean, what else can we do, right?  I just keep telling myself to keep moving.

Sorry you're dealing with that continued winter weather.  That sucks.  We're just getting out of the freezing weather, it's in the 50's here.  It's like a miracle. But, in a couple days it's supposed to be in the 30's. Typical spring.   

Anyway, glad to have you back!
Title: Re: An on-going thread
Post by: Wade on March 22, 2015, 04:14:54 pm
Hey Mitch ,
Glad you had a good time !
The snow is really leaving us fast now that the sun is out,
and high in the sky.
Don't fret spring is on the way !
Title: Re: An on-going thread
Post by: Tonny2 on March 23, 2015, 12:51:28 pm


         ojo      Hello Mitch, just to send you a big hug, its on your way       ojo
Title: Re: An on-going thread
Post by: mitch777 on March 23, 2015, 05:43:23 pm
Thanks Betty, Wade, and Tonny.

Sunny today but no melting. 31F was our high but the coming week looks good so I think it might be safe to say goodbye to winter.

I had expected to come home with a message regarding my upcoming neck surgery appointment. I called them this morning and left a message but my call wasn't returned.

Was hoping to get this over with in April and had also hoped that my disability approval letter would have arrived already so that I could even think about AMG this year. There's still time I guess.







Title: Re: An on-going thread
Post by: wolfter on March 30, 2015, 12:48:22 am
It is going to take me quite a while to scan through all the threads.  I hate when I'm absent for such a long period of time but my schedule has been a pleasant hell lately. 

Title: Re: An on-going thread
Post by: wolfter on April 07, 2015, 04:00:37 pm
I'll be having my BDS next month and hope it shows improvement.  Although it doesn't really matter now that Humana won't approve the drug.  I'm not doing the injections as I would have to drive to downtown Columbus every month and pay $100 for each appointment.
Title: Re: An on-going thread
Post by: Wade on April 07, 2015, 05:00:02 pm
Hey Wolfe,
Good luck next month,you need strong bones !
Keeping things crossed for you.
Saw my ID doc today , is calling in a script for tybost to replace nasty Norvir
Maybe will help with Lipo issues.

Hope my insurance approves it as I just got Norvir.
We will see
Title: Re: An on-going thread
Post by: wolfter on April 07, 2015, 05:11:54 pm

Saw my ID doc today , is calling in a script for tybost to replace nasty Norvir
Maybe will help with Lipo issues.

Hope my insurance approves it as I just got Norvir.
We will see

Not sure if you saw my comments about Norvir?  I switched out Isentress for Norvir and Prezista due to severe insomnia issues.  Not sure why as I had a previous experience with this medication.  I'm sure it helps some, but for those like me, this was a horrid drug.  I was so sleep deprived that I was anxious to get some rest.  Well, I got what I asked for.  I slept 12 - 14 hours a day and felt droggy.  After 3 months and constantly buying new underwear, I switched back.

Now I'm back to a few hours sleep per night but what's one to do?  The lesser of the 2 evils!  At least my productivity is back into high gear.  I am directly responsible for my horrible resistance profile so it's all in stride.  Starting in the late 80's, I took the newest and best things available but could only last so long before the quality v's quantity aspect reared its head.
Title: Re: An on-going thread
Post by: Wade on April 07, 2015, 08:22:41 pm
Hey Wolf,
I do remember, think we were in the same thread ,oh well doesn't matter.
Mean time I also take issentress along with the prizista and Norvir .
I have been taking nasty Norvir since the liquid form.
Many years now , I'm done ! Lipo yuk !

I had a problem with insomnia years ago , I think when I started sustiva, could
Be wrong. I was miserable and cranky ! Not much good at work either,
I need 8 hrs a night or I'm no good . Long story short I started then on a sleep aid,
One at bed time , out like a light and sleep all night.
Still the same dosage after ten years . Not on any anti depressants or pain meds
To interact though.
Title: Re: An on-going thread
Post by: BT65 on April 08, 2015, 01:09:44 pm
I'll be having my BDS next month and hope it shows improvement.  Although it doesn't really matter now that Humana won't approve the drug.  I'm not doing the injections as I would have to drive to downtown Columbus every month and pay $100 for each appointment.

They won't approve the med the dr prescribed for you? 

Why would you have to drive to downtown Columbus every month?  Didn't you say you have a needle phobia anyway?  I believe my doctor only has me approved through next month so far.  I'm hoping they approve 2 year's worth of Forteo.  That's the required treatment time. 
Title: Re: An on-going thread
Post by: wolfter on April 08, 2015, 01:18:02 pm
Humana doesn't approve most Osteo drugs.  There are a couple but I am still mad as hell that they can decide my medical care.  If I go for the monthly injectable, Medicare pays for it since it's considered a medical procedure.  (a shot).  I will discuss with my doctor if he's able to do the procedure and such.  I don't do well with big city driving and don't feel like committing to it every month.

There is no way I could get to the point of injecting myself.  We were supposed to use a needle on ourselves in nursing school and I thought I'd fail as I never did do it.  She gave me a pass since I had no issue poking the volunteers.  :)
Title: Re: An on-going thread
Post by: BT65 on April 08, 2015, 01:24:42 pm
But I take the Forteo every day, how are you going to do it once a month?
Title: Re: An on-going thread
Post by: wolfter on April 08, 2015, 01:27:12 pm
But I take the Forteo every day, how are you going to do it once a month?

Forteo is a daily injectable, but there are 2 others also.  I can't recall their names right now but one is monthly and other is every 6 months.  My specialist said as a minimum, I should do it at least monthly although they recommend the daily Forteo.
Title: Re: An on-going thread
Post by: BT65 on April 08, 2015, 01:35:16 pm
Forteo is a daily injectable, but there are 2 others also.  I can't recall their names right now but one is monthly and other is every 6 months.  My specialist said as a minimum, I should do it at least monthly although they recommend the daily Forteo.

Oh yes!  Reclast and something else, can't remember.  Do you know what you're going to do?
Title: Re: An on-going thread
Post by: wolfter on April 08, 2015, 01:47:16 pm
I have one dose left of Boniva which is monthly.  At that point, we'll see if this drug did any good in the 2 years I've been taking it.  I don't see why we would possibly switch out meds before determining if it worked.  I'd think my doctors would also want to know this information as they readily admit they don't have a lot of knowledge concerning bone loss and HIV.

Title: Re: An on-going thread
Post by: BT65 on April 08, 2015, 02:30:43 pm
Mine don't either.  As usual, we're the guinea pigs.
Title: Re: An on-going thread
Post by: pozniceguy on April 10, 2015, 05:57:19 pm
hey  guys  just  checking in  about  the prostate  Xray  treatments finished the  4th week  no  real issue  so far  just a few  extra  trips  to the  toilet  to pee  hope  this is as bad as it gets...4wks to  go
  Nick
Title: Re: An on-going thread
Post by: pozniceguy on April 10, 2015, 06:05:34 pm
Mitch   so  sorry to hear  about the  "dropping"  issues    I had a period of  "stumbling"  in the  early  days  because  of  neuropathy  in feet  kept  "missing" the  edge of the  steps..   vastly improved  with  practice   and some  help  from  a few days in the  Rehab room   with a trained  person
PS  sounds great.... I  know a few  guys  that moved there  (have to look  for their address)..they also  bought a place in Mexico   and  move  back  and forth  every  few months.   both places  are  really  friendly  and open minded  they tell me

Nick
Title: Re: An on-going thread
Post by: BT65 on April 11, 2015, 04:25:51 am
Oh yes!  Reclast and something else, can't remember.  Do you know what you're going to do?

I believe the other one is Prolia.  I think that's it.
Title: Re: An on-going thread
Post by: wolfter on April 12, 2015, 02:03:50 pm
I believe the other one is Prolia.  I think that's it.

Yep that's it. 

On a dreaded side note, the insomnia is back; almost worse than ever.  It must and has to be the Isentress.  Another things I've discovered is that this drug must also block the feelings of hunger.  When I switched it out, I suddenly had an appetite and wanted food.  Now I'm no longer having hunger pains and must remember to eat.  There something in that there drug

OK, now off to look at an antique bedroom suite that I'll probably buy.

luvs and hugs.
Title: Re: An on-going thread
Post by: mitch777 on April 12, 2015, 05:14:00 pm
Greg,

Did you try to increase your dose of Trazadone to 100mg as I mentioned? The max dose is 200mg so it may be worth a try. I'll repeat this again to you... I had insomnia too while on Isentress and my doc prescribed 50mg. I gave it two weeks and called him to up the dose to 100mg. It did the trick for a long period of time for me anyway.

I think your loss of appetite could also be related to lack of sleep. Just a guess. Ask your doctor.  :)
Title: Re: An on-going thread
Post by: wolfter on April 13, 2015, 09:22:21 am
Greg,

Did you try to increase your dose of Trazadone to 100mg as I mentioned? The max dose is 200mg so it may be worth a try. I'll repeat this again to you... I had insomnia too while on Isentress and my doc prescribed 50mg. I gave it two weeks and called him to up the dose to 100mg. It did the trick for a long period of time for me anyway.

I think your loss of appetite could also be related to lack of sleep. Just a guess. Ask your doctor.  :)

Not yet, I chose instead to add a 3rd glass of wine to my sleep ritual.  I've really have to get past this negative idea of taking these types of meds.

When I switched off the Isentress, I immediately started having a ravaging appetite and actually gained too much weight too quickly.  And now, it's back to where I don't feel hunger pains and therefore forget to eat.  So far, I've lost about 7 pounds so I won't address this until I get my ideal weight back.  Only about 7 lbs to go to achieve that.

This begs the question; Is there some component of Isentress that disturbs the ability to experience hunger pains?  I've not found a single link where anyone else has experienced it so it's probably just my uniqueness?
Title: Re: An on-going thread
Post by: Wade on April 13, 2015, 09:45:29 am
I've not noticed any change in my appetite,nor have I read
any place that to be a side affect. That doesn't mean anything though
everyone's different where side affects are concerned.
You do need to make sure to get enough sleep though.
I absolutely can't function on less than 8-9 hours.
Title: Re: An on-going thread
Post by: wolfter on April 13, 2015, 09:50:32 am
I purchased a new mattress set last week thinking perhaps my old one might be part of the problem.  Think I might be replacing it already.  I've always purchased extra firm but this one just seems too stiff.  I moved to the couch last night and slept about 4 hours straight.  Perhaps I need to get one that's more plush.

I'll put this existing one in one of the guest rooms which might assist with guests not staying too long....lol
Title: Re: An on-going thread
Post by: BT65 on April 13, 2015, 09:58:05 am
Greg, lol.  I take Stribild now, and only sleep about 5 hours.  I wonder if some of it is aging with HIV.  Of course I can't ask my doctor; he doesn't know.  We can make educated guesses, can't we.  Maybe a combination of aging and menopause.  I know just having menopause can cause sleeplessness, as can aging.  What a fun combo to have (not)!

Betty
Title: Re: An on-going thread
Post by: wolfter on April 13, 2015, 10:07:09 am
Greg, lol.  I take Stribild now, and only sleep about 5 hours.  I wonder if some of it is aging with HIV.  Of course I can't ask my doctor; he doesn't know.  We can make educated guesses, can't we.  Maybe a combination of aging and menopause.  I know just having menopause can cause sleeplessness, as can aging.  What a fun combo to have (not)!

Betty

I think I'm too young to be suffering from menopause but perhaps these toxic drugs caused me to start early?   :o
Title: Re: An on-going thread
Post by: BT65 on April 13, 2015, 10:14:48 am
Yes, Greg, I would say that is the case lol.
Title: Re: An on-going thread
Post by: wolfter on April 13, 2015, 10:38:41 am
OK, been lollygagging all morning to avoid doing anything productive.  But since one of my trucks is in a precarious place in my yard, I should address it.  I went to the lumber yard to purchase material for my new deck and had what I'll call a bout of good luck.  I noticed on the return trip that the brakes felt spongy.  When I turned onto my road the pedal went right to the floor.

By the time I reached my driveway, I had nothing.   :o  Luckily, the yard was so wet that it aided me in stopping.  I blew a wheel cylinder and lost all my brake fluid.  Thankfully it happened here instead of when I was in town on the busy highway. 
Title: Re: An on-going thread
Post by: mitch777 on April 13, 2015, 04:24:35 pm
Not yet, I chose instead to add a 3rd glass of wine to my sleep ritual.  I've really have to get past this negative idea of taking these types of meds.

Alcohol will only compound the issue of REM sleep. It may GET you to sleep but it won't keep you sleeping. You really do need to get past your phobia dear. I would bet you might be more open minded about Trazadone if you spoke to your doc OR the other Greg. lol.

Quote
This begs the question; Is there some component of Isentress that disturbs the ability to experience hunger pains?  I've not found a single link where anyone else has experienced it so it's probably just my uniqueness?

It might beg the question that your lack of sleep is the cause of your appetite loss. ;)

And YIKES about your truck brakes!

Title: Re: An on-going thread
Post by: Joe K on April 13, 2015, 06:59:56 pm
Greg,

I second the use of Trazadone as a sleeping aid.  I've tried every sleeping pill and they all made me feel drunk the next morning.  Even half-doses, same effect.  Then I tried Trazadone... it really works.  The half life of the drug is 4 hours, so within 8 hours the entire dose is out of your system.  The difference I found is that Trazadone does not "put" you to sleep, rather it "allows" you to sleep.

You would also need to avoid excessive alcohol while using it and a delightful side effect, can be really nice wood.  It comes in various strengths, with max dose of 200mg.  I use 100mg tops and I get the best sleep.  I awake alert, refreshed and I don't need to take afternoon naps.

Joe
Title: Re: An on-going thread
Post by: mitch777 on April 13, 2015, 07:48:23 pm
Thank you Joe. Sometimes another voice of reason can help. Your experience is the same as my own. 

I'm not so sure about the wood but I doubt Greg ever had a problem with that! lol.
Title: Re: An on-going thread
Post by: Joe K on April 13, 2015, 07:54:56 pm
Thank you Joe. Sometimes another voice of reason can help. Your experience is the same as my own. 

I'm not so sure about the wood but I doubt Greg ever had a problem with that! lol.

Mark,

With all the psych meds I take, I'll take all the help I can get in the lumber department.   ;)

Joe
Title: Re: An on-going thread
Post by: Jeff G on April 13, 2015, 08:43:14 pm
Trazodone is my friend .
Title: Re: An on-going thread
Post by: wolfter on April 13, 2015, 08:53:17 pm
I still have my prescription of them.  I think my doctor taught me a lesson.  He'll do whatever I want if I badger him.  Then he monitors my stupidity and acts.  :)  The older I get, the more I realize most people I know should take a mood stablizing substance.   If you google meigs county ohio and marijuana you'll discover why those boring ass family members sat in chairs and laughed for hours. 

OH, and if you can't tell, we had fire and drinks tonight.
Title: Re: An on-going thread
Post by: wolfter on April 15, 2015, 08:18:52 am
OK, I've self medicated for the last 2 nights.  I have a 50mg prescription for Trazadone  but it's pretty much stockpiled now as I try to avoid taking them.  I upped it to 100mg and have slept pretty well both nights.  I slept  restfully for a full 6 hours last night.  Thanks all!

OH, and I actually need the antithesis of a wood assistance drug. 

And as I suspected, it almost has to be the Isentress that causes my extremity numbness.  The hands and arms aren't bad as they don't cause me to fall but simply drop shit.  But I'm having to be super careful with my jelly legs once again.  OH the joys of horrible resistance issues. :o

Title: Re: An on-going thread
Post by: Jeff G on April 15, 2015, 09:39:52 am
OK, I've self medicated for the last 2 nights.  I have a 50mg prescription for Trazadone  but it's pretty much stockpiled now as I try to avoid taking them.  I upped it to 100mg and have slept pretty well both nights.  I slept  restfully for a full 6 hours last night.  Thanks all!

OH, and I actually need the antithesis of a wood assistance drug. 

And as I suspected, it almost has to be the Isentress that causes my extremity numbness.  The hands and arms aren't bad as they don't cause me to fall but simply drop shit.  But I'm having to be super careful with my jelly legs once again.  OH the joys of horrible resistance issues. :o



I have the jelly leg thing ... forgive me if you have already answered this but have you had an MRI or CT scan done of your spine ? My docs assure me my leg problems are disk related and I have an appointment on the 28 th to do more test to see what can be done about it .
Title: Re: An on-going thread
Post by: wolfter on April 15, 2015, 01:28:58 pm
I have the jelly leg thing ... forgive me if you have already answered this but have you had an MRI or CT scan done of your spine ? My docs assure me my leg problems are disk related and I have an appointment on the 28 th to do more test to see what can be done about it .

More than I care to remember.  :)  With the ole crypto, all the testing procedures required poking, prodding, and taking pictures.  I'll respectfully disagree with my doc at my upcoming appointment as he thinks a lot of my residual issues are related to that horrific disease.

BUT....it totally stopped when I was off the Isentress and these issues returned fairly quickly after resuming it.  But if I'm correct and it's an affect of the medication then it's moot.  I'd rather be clumsy and continue to fall rather than ever again take norvir.  Twice now with the same horrid results.  Or maybe I simply didn't notice the issue as I slept half the day and was still too exhausted to do much?   :o
Title: Re: An on-going thread
Post by: Jeff G on April 15, 2015, 07:42:46 pm
More than I care to remember.  :)  With the ole crypto, all the testing procedures required poking, prodding, and taking pictures.  I'll respectfully disagree with my doc at my upcoming appointment as he thinks a lot of my residual issues are related to that horrific disease.

BUT....it totally stopped when I was off the Isentress and these issues returned fairly quickly after resuming it.  But if I'm correct and it's an affect of the medication then it's moot.  I'd rather be clumsy and continue to fall rather than ever again take norvir.  Twice now with the same horrid results.  Or maybe I simply didn't notice the issue as I slept half the day and was still too exhausted to do much?   :o

OMG … sounds like you might have aids or something . I sometimes feel just as in the dark about whats going on with my body after seeing doctors then I did before I went to see them .
Title: Re: An on-going thread
Post by: wolfter on April 16, 2015, 03:31:44 am
OMG … sounds like you might have aids or something . I sometimes feel just as in the dark about whats going on with my body after seeing doctors then I did before I went to see them .

I've got me vintage AIDS....circa 1986.  :)
Title: Re: An on-going thread
Post by: mitch777 on April 16, 2015, 06:31:26 pm
I don't have a jelly leg but I have become more clumsy these past few years. When I saw my neurosurgeon he asked me if I had been having this going on. I said yes and he attributed it to the nerves being pressured in my neck. We shall see.
Title: Re: An on-going thread
Post by: wolfter on April 18, 2015, 09:07:43 pm
shout out to you all.  Read the forums for a while this evening and was devoting caringness and that stuff.  Is it just me and are LTS just worn and want to enjoy what we have left and instead of wallowing in what we've lost? 

Title: Re: An on-going thread
Post by: wolfter on April 23, 2015, 03:04:22 am
shout out to you all.  Read the forums for a while this evening and was devoting caringness and that stuff.  Is it just me and are LTS just worn and want to enjoy what we have left and instead of wallowing in what we've lost?

NOTE TO SELF:  "don't post buzzed in these forums as it's not like FB where you can delete your incoherent posts the next morning"  LOL 
Title: Re: An on-going thread
Post by: BT65 on April 23, 2015, 07:11:18 am
NOTE TO SELF:  "don't post buzzed in these forums as it's not like FB where you can delete your incoherent posts the next morning"  LOL 

Lol Greg.  There used to be a famed member who would post drunk all the time.  You could always tell because he would always cuss every other word.

So I went to the ortho's office a couple days ago and was told that though the bones seem to be healing, I sprained  my right foot.  I don't know if I did this working outside or cleaning inside lol.  Today it feels like I broke two fingers on my left hand.  Anyway...

Every toe except the big toe on my right foot, is turning under on the end.  The nurse practitioner said it's called "claw foot" and said the only way to fix it is to do surgery that would involve breaking them and putting pins in them.  I said "that's not happening." 

Betty
Title: Re: An on-going thread
Post by: wolfter on April 23, 2015, 12:03:33 pm
Betty, isn't that the same type of procedure that David recently had done?  I remember cringing reading his accounts of the procedure.

I've not seen Mark post any follow up so I'll have to call and check up on him.  I was thinking about him Tuesday when my new mower was delivered.  My 20+ year old Craftsman finally crapped out.  I had mentioned to him last Fall on the phone that I needed to wax my mower that he thought was hilarious for some reason.

Perhaps I'm just strange as I totally clean my mowers after each use and apply car wax to the entire thing including the underside.  I was laughing about it as I applied fresh wax to my brand new mower.

Title: Re: An on-going thread
Post by: Buckmark on April 23, 2015, 12:10:03 pm
...
Perhaps I'm just strange as I totally clean my mowers after each use and apply car wax to the entire thing including the underside.  I was laughing about it as I applied fresh wax to my brand new mower.

You have entirely too much time on your hands...

Title: Re: An on-going thread
Post by: wolfter on April 23, 2015, 12:24:43 pm
You have entirely too much time on your hands...

It's amazing how much time one actually has when only needing a couple of hours of sleep per day.  :)

On a side note, my 31 year old chevy truck is leaving me this weekend.  It's kinda strange as it is a reminder of happier times and I've had it all of my adult life.  Since I have a newer pickup and an SUV, it really is time to downsize as my driveway looks like a used car lot.  Plus all the taxes, tags and insurance!!!!

I gave it to a buddy that volunteers a lot around our post.  It still runs perfectly so at least it'll have a little life left.
Title: Re: An on-going thread
Post by: mitch777 on April 24, 2015, 05:30:18 pm
Betty. Please stop that! You are running out of bones to break!! Also sorry about your toes. Geez, I would have thought that they could have taped them with some metal supports to prevent that from happening but what do I know. And now another sprained foot and possible broken fingers? Ugh, ugh, ugh.

Greg, the underside too? I would bet that your old mower went to the graveyard looking just like Joan Rivers.  ;)

You have entirely too much time on your hands...


This^.




Title: Re: An on-going thread
Post by: wolfter on April 26, 2015, 11:04:47 am


Greg, the underside too? I would bet that your old mower went to the graveyard looking just like Joan Rivers.  ;)

This^.

:)  We have a "junk guy" who drives around  collecting scrap metal.  I always contact him when I have anything that he can make a few bucks from.  He thought my Craftman mower was too new to scrap and said he might try fixing it.  I explained that it's over 20 years old and he didn't believe me at first.  I told him that it's probably the magnetto as it has no spark and I was simply ready for a new one.

There are several reasons why one should  wax the carriage.  It not only protects against rust but also aids in clean up.  Grass doesn't stick to it and clean up is much easier. 
Title: Re: An on-going thread
Post by: mitch777 on April 26, 2015, 11:25:42 am

There are several reasons why one should  wax the carriage.  It not only protects against rust but also aids in clean up.  Grass doesn't stick to it and clean up is much easier.

I only grow non-stick grass and my carriage has never rusted... well, at least not on my mower anyway. :)
Title: Re: An on-going thread
Post by: Wade on April 26, 2015, 12:54:17 pm
I think my mower is non -stick ,
Big clumps fall off when I take it down the cellar stairs every Fall....
Title: Re: An on-going thread
Post by: wolfter on April 29, 2015, 09:23:20 am
I don't normally google symptoms and such after medical professionals can't find underlying causes of issues.  But after once again studying this "bulls eye" scar on the back of my calf, I got to thinking about past procedures.

About 15 years ago, I found a tick on my inner thigh while camping in Hocking Hills.  By the time I returned home I had the telltale signs of a Lyme infection.  Immediately met with my old doctor and a blood test confirmed my infection.  Was simply given a 7 day antibiotic treatment and we never addressed it again.

Perhaps because it was because he didn't know much about this infection, but there should always be follow up tests to verify that the treatment worked.  It's not uncommon to have to continue treatment beyond the initial period.  And it's now known that a week of antibiotics doesn't usually clear the infection.

After googling long terms symptoms, it was like "AHA" as it looked like it was pretty much describing every symptom I've experienced especially about vision fading in and out. 
Title: Re: An on-going thread
Post by: Wade on April 29, 2015, 11:12:09 am
Hey Wolfe ,
Your right, I always thought treatment was for several weeks.
Then a re test.
Title: Re: An on-going thread
Post by: BT65 on April 30, 2015, 05:38:31 am
God Greg, that sounds awful.  Please get to a good doctor and get it checked!

I think I may have broken something else in my right lower leg, possibly ankle.  Not sure, I'm going to wait and ice it today to see if the extreme pain and weakness goes away.
Title: Re: An on-going thread
Post by: Wade on May 01, 2015, 10:23:49 am
Betty ,
I hope you haven't broken anything else !
You've been through so much. You should probably get to the hospital.

I have had numbness in my hands and feet the past few months.
Have read many of others posts about their neuropathy and the pain .
Wonder if this is in my future also.
Is this how it starts ?  Seems worse in the am.

I had a bout years ago while taking the old drugs, felt like my legs were in a vice .
The pain was horrible,
went away when,  if I remember correctly the videx was stopped .
Have not had any problems since.

My ID doc asked me if I've had any numbness or tingling a few weeks ago,
of course I said no . Stupid on my part, but I had bigger fish to fry that visit.
My arthritis has worsened in other joints and I wanted off Norvir.

Well enough of my bitchering , just wondering about the numbness.
Wade

Title: Re: An on-going thread
Post by: BT65 on May 01, 2015, 04:31:16 pm
Yep, I have another brake.  It's on the side, right above the ankle. The bone isn't completely through the skin, but it is poking the skin out.  So I'm wearing the moon boot. I'm so sick of this shit I don't even know what to do.  My nephew's wife has a shower tomorrow and my grandson has a birthday party Sunday.  I may not be able to get to either. 

Somebody give me some drugs!
Title: Re: An on-going thread
Post by: Miss Philicia on May 01, 2015, 06:10:43 pm
:( ugh Betty -- I can't even keep up with how many times this has happened now
Title: Re: An on-going thread
Post by: mitch777 on May 01, 2015, 07:43:04 pm
:( ugh Betty -- I can't even keep up with how many times this has happened now

me neither.

I just get really annoyed when I constantly read quotes from you like this:


  I don't know if I did this working outside or cleaning inside lol.  Today it feels like I broke two fingers on my left hand.  Anyway...
 
Betty

You are better than this and yet you continue to ignore your own body. You laugh it off as if you are in denial of the part you play in all of this mess.

I REALLY try to avoid being judgmental due to your pain but this has gone too far. I only say this because I love you dearly.

The Betty I know has the strength to listen to herself with reason even though times are as tough as nails. Doing otherwise in denial is a recipe for further pain.

You have described your history in great detail and I'm feeling like I'm losing you.

If I were in your shoes I don't know if I would do any better so please don't take my comments more than simply expressing my concern for you.

Please just put yourself as priority #1. Apply your oxygen mask on yourself before helping others.

 :-* :-* :-*

Modified to add:

You have given me so much support since day one. My issues have been different than your own, usually minor in comparison and yet you clearly let me know that my issues count.  It is a rare thing these days for such compassion.

hugs,
m.
Title: Re: An on-going thread
Post by: BT65 on May 02, 2015, 06:24:54 am
Thanks Ms P and M.  M, I understand your frustration, but I have to live my life as normally as possible.  When I worked outside I was sitting down.  I don't run races, nor do any hard labor.  I offer my support to you because you're my friend and that's what friends do.  This latest break happened just like my other ones-from walking.  I'm still taking the osteoporosis med but results can take 6-9 months, unfortunately. 

I'm wearing the moon boot and trying to stay off of it as much as possible.  Today my nephew's wife is having a baby shower.  Tomorrow my grandson is having a birthday party.  If I can't get someone to drive me to the birthday thing I won't go since I can't drive with the moon boot on. My roommate is going to the shower, so she'll be driving today.

I don't like the breaks either, trust me.  They're tiring.  They're draining, not online physically but emotionally.  I can't do things I want and need to do.  I had just put my shower chair away and I had to get it back out.  But I suppose it could be a lot worse.

Betty
Title: Re: An on-going thread
Post by: Tonny2 on May 02, 2015, 01:35:10 pm


           ojo       Hello Betty, I'm sorry about all you have to go through, I haven't read the whole thread due to my eye issues, but, we have to keep fighting, it is what it is, we are still alive, and fighting for the people we loves us, it's worthy it keep fighting...hugs            ojo
Title: Re: An on-going thread
Post by: mitch777 on May 02, 2015, 06:57:39 pm
Betty,

I think I came down a bit too hard on you. My apologies. Without knowing you are sitting while working outside it's hard for me to know unless you say so, same goes for housework although I find it hard to believe much can be done off of your feet. Maybe it's time to get into an assisted living arrangement to heal and give your bones a break (no pun intended).

I really have a tough time even imagining how frustrated you get yourself. The balancing act of trying to live as normal as a life you can while dealing with these constant broken bones is not something to sneeze at.

Thought of giving you a long overdue call tonight but somehow my memory popped into gear. Hope you have a great time at the shower.

 :-*
Title: Re: An on-going thread
Post by: aztecan on May 02, 2015, 11:05:56 pm
Hey Gang,

I thought I would drop a quick note to catch you up. While its been a bit stressful the past few months, the past week really decided to pile it on.

First, one of my clients, one whom I've known for 15 years, died suddenly last Sunday. Very unexpected, it was a suspected heart attack. He was doing great one day, dead the next. I haven't heard what the autopsy revealed as yet.

He was 20 days younger than me.  :o

His wife, also a client, isn't taking it too well. I have been helping the family with the funeral arrangements, etc.

UGH.

Then, April 30 and May 1, I attended the annual state HIV update. There was a lot of focus on Hep C and PREP this year.

There are some new things on the medication front.

There is a new combo pill combining Atazanavir (Reyataz) and Cobicicstat. So, those needing a PI-based regimen can now look at a single pill rather than having to take the PI and Norvir, which also should decrease gastrointestinal complications.

The new replacement, or should I say, reformulation of Tenofovir should be coming soon. It apparently works even better than the original. That should help those who have renal issues and breathe new life into the backbone combo pill Truvada.

The new guidelines detailing which meds are now considered first-line also has changed, and Atripla is now officially a second-line medication, as is Sustiva. The ongoing revelation of CNS side effects from Sustiva helped that relisting.

Now, integrase-inhibitor-based regimens such as Tivicay, Stribild and Triumeg are looked on most favorably.

There was quite a bit of discussion about cardiovascular side effects of Abacavir, since it has resurrected itself and is now one of the favored meds, especially for those with renal issues.
Yes, Abacavir dose convey some cardiovascular risks to those prone to those issues. But, how great a risk it is depends on the person's individual risk factors for heart problems, apparently.

I can't take it, I have the hypersensitivity to that medication.

This presentation was given by Dr. Joel Gallant, who used to be with Johns-Hopkins, but now is at Southwest Care Services in Santa Fe. He really is quite an interesting man.

There also was a presentation on LTS mental health. Nothing really new, but at least they are acknowledging that we do have some issues that should be recognized that are much different from those issues faced by the newbies.

Such issues as fatigue (in general), as well as pill fatigue, general depression, survivor's guilt and the overall sense of loss many of us feel, including the loss of a purpose in life now that the AIDS epidemic has been turned into a "chronic manageable condition."

Also brought up is the increasing rate of suicide among LTS's. Some are using direct methods, like a gun to the head, while others are simply stopping their meds and letting HIV take its course.

This seems to be a growing trend and is something that took some of the medical professionals by surprise.

I wasn't particularly surprised. I've had a couple of people choose to die in recent years.

Of course, the first night, several of us got together at the hotel bar at the end of the day and had a few cocktails. Well, more than a few.

Dirty martinis. Not my usual, and they went down way too smoothly. The only thing missing was our Wolfie.

Anyway, it has been a bit hectic and next week looks like another foray into chaos.

Guess we have to keep on putting one foot in front of the other.

HUGS,

Mark
Title: Re: An on-going thread
Post by: wolfter on May 03, 2015, 10:10:18 am
Damn Betty!  I so feel for all you're struggling with.  Hopefully your new bone drug will start working soon. 

best wishes dear.
Title: Re: An on-going thread
Post by: wolfter on May 03, 2015, 10:19:01 am




Dirty martinis. Not my usual, and they went down way too smoothly. The only thing missing was our Wolfie.

Anyway, it has been a bit hectic and next week looks like another foray into chaos.

Guess we have to keep on putting one foot in front of the other.

HUGS,

Mark

We must have been channeling each other as I also had a few dry martinis yesterday.  First ones in ages.  Probably since our lavendar martini afternoon in Seattle.

I have been exhausting myself beyond belief and finally made some changes at work that won't require me to be constantly working.  I'm a control freak and it's difficult for me to task things but I must.  I worked 21 hours straight yesterday.  We held a huge benefit yesterday and and I got there at 3:00 am.  There were so many activities that needed my precision.

We have our official summer reopening of our outside bar area today and I tasked a few people to get it ready.  I'm almost anxious wondering if it'll be done to my expectations.  So I'm purposely not going there until 2:00.  That gives me an hour to correct any issues.  ;)  We unofficially opened yesterday so a lot of the work is already done.
Title: Re: An on-going thread
Post by: mitch777 on May 03, 2015, 06:45:56 pm
Mark,

First of all I am so sorry to hear of the loss of a client that you have known for so many years. I'm sure you are a great comfort to his wife.

To be honest, I would prefer to "go out" suddenly. It might not be much comfort to family or friends but a sudden death other than suicide would be my choice if I even had one.

Thanks for the great description of your conference! So many topics!

It was heartening to hear that the medical community is finally coming around to see what Sustiva can be capable in doing with some of our cognitive issues.

My doc also recently mentioned Triumeg as an option.

The "new and improved" Truvada sounds great!!! I also discussed this with my doc. My kidney function tests have crept up lately. I think this was the med he said was causing it. It gets confusing retaining all of this med talk at times in the docs office.

I love a dirty martini but one is my limit. Premium vodka and premium olives are a must. Then I move on to something more soothing to the tummy.

-----

So...
I'm on day 12 post surgery. My best description was that the first 3 days were pure misery, the next 3 days were "at least it's not pure misery", and going forward has been better almost every day. I am impressed with the progress and in another 6 weeks or so should be back to my "normal" self. Ha!

I take a valium at night as a muscle relaxer as my shoulder binds up but other than that all is improving. My left arm pain and numbness have pretty much disappeared and my headaches have been minor and not daily for the first time in over 4 years!  Of course I am still taking it easy and medicated to a point but all seems very encouraging at this juncture.



Title: Re: An on-going thread
Post by: weasel on May 04, 2015, 09:34:40 am


So...
I'm on day 12 post surgery. My best description was that the first 3 days were pure misery, the next 3 days were "at least it's not pure misery", and going forward has been better almost every day. I am impressed with the progress and in another 6 weeks or so should be back to my "normal" self. Ha!

I take a valium at night as a muscle relaxer as my shoulder binds up but other than that all is improving. My left arm pain and numbness have pretty much disappeared and my headaches have been minor and not daily for the first time in over 4 years!  Of course I am still taking it easy and medicated to a point but all seems very encouraging at this juncture.

   I am so glad to hear this Mark !    It is very important to have ones head correctly attached    :)

  Hopefully  you will feel like new very soon .   

                                                                                                   Carl

   
Title: Re: An on-going thread
Post by: Jeff G on May 19, 2015, 03:34:31 pm
I spent and hour and 45 minutes of agony in an MRI/CT scan tomb today . I am on pain meds for another condition that has somewhat masked the pain I have had for years in my neck and spine and its getting so I just cant ignore it any more. There probably is nothing that can be done about it but I sometimes lose control and get jelly leg now so it was high time to assess the issues. I was in so much pain I just wanted to crawl out of the machine but I powered through anyway .

Im going to Palm Springs next month to see if I like it there and if so I will list my house to sell next spring for sell. I have loved living here in this house but I wont be able to keep up with the maintenance many more years and now is also the best time to get the most for this house and move on . I have been needing to shake things and up and start a new chapter in my life and I feel now is the time to do it .   
Title: Re: An on-going thread
Post by: wolfter on May 20, 2015, 08:09:23 am
Jeff, that procedure torments me.  I always hyperventilate.  They now give me a mild sedative beforehand.  I'm not sure how heavier people deal with it as I feel so damn cramped.

Also, isn't the cost of living in CA outrageous?  Best of luck on whatever you decide. 
Title: Re: An on-going thread
Post by: Jeff G on May 20, 2015, 08:18:14 am
Jeff, that procedure torments me.  I always hyperventilate.  They now give me a mild sedative beforehand.  I'm not sure how heavier people deal with it as I feel so damn cramped.

Also, isn't the cost of living in CA outrageous?  Best of luck on whatever you decide. 

Oddly enough the condo prices in Palm Springs are dirt cheap for very nice condos. The water situation in California does not apply to PS as they have their own aquifer that are managed well and they do not share water with the rest of the state because its not economically feasible to pipe or move the water elsewhere . One of the biggest cost of living in PS California is electricity so you have to be careful where you buy .   
Title: Re: An on-going thread
Post by: mitch777 on May 20, 2015, 06:32:06 pm
Geez Jeff,

I have had my fair share of MRI's but have never spent more than 45 minutes in the tube. Ugh. You would think by now that they could at least find a way to make it more comfy like with high grade goose down or sumpin'.

Maybe you need some neck bone surgery. You already have the recipe.  :)


Also, isn't the cost of living in CA outrageous?  Best of luck on whatever you decide. 

Ya, electricity is about the highest in the country (Connecticut isn't much better btw) and gas prices are also through the roof but there are ways to mitigate the high electric bills by signing up with the utility company to allow them to cut power to your home first if needed. It sounds awful but there are restrictions as to how long they can shut you off and it saves tons of money. As far as gasoline prices goes... who cares? Everything is within a few "mere" miles away.  ;)

I found the food prices comparable to here. Alcohol is cheaper. Cigarettes are very cheap but quitting is cheaper yet.  Realestate taxes are reasonable. Overall, it's not that bad.


Im going to Palm Springs next month to see if I like it there and if so I will list my house to sell next spring for sell. I have loved living here in this house but I wont be able to keep up with the maintenance many more years and now is also the best time to get the most for this house and move on . I have been needing to shake things and up and start a new chapter in my life and I feel now is the time to do it .   

Ditto.

I look SO forward to the change myself. Better to shake things up now while we are able. A new chapter. Yep.

Hope you have at least 5 places lined up to see on your visit to get a better feel about the town. Kenny and I did and it really helped. You can do it in one day, well, at least we did.

Meanwhile....

We are hard at work here getting things done on the house before we list it next spring. Kenny has been working on finishing up with the gingerbread and soffit work and I have been doing the prep work in our front hallway for painting project #1.

It's just the beginning of a long haul.

I'm not online much these days. I am pooped already! lol.



Title: Re: An on-going thread
Post by: Wade on May 20, 2015, 08:39:55 pm
Hi Guys,
I've had so many MRIs I'm surprised I don't glow in the dark !
Jeff , I hope you don't need surgery too .

I think it's great you guys are shaking up your lives,
When we moved and it was like starting a new chapter as you said.
It was totally a new adventure and did my soul good.
We are very happy and have no regrets.

The bitch of it was moving , and sorting through 30 years of shit !
No place is perfect, enjoy the ride is what I say.
I have to keep the sea near, even if the climate is different I'm happy.
Go where your heart takes you, being scared and unsure
ends up being part of the fun !


Title: Re: An on-going thread
Post by: Jeff G on May 20, 2015, 08:41:28 pm
Hi Guys,
I've had so many MRIs I'm surprised I don't glow in the dark !
Jeff , I hope you don't need surgery too .

I think it's great you guys are shaking up your lives,
When we moved and it was like starting a new chapter as you said.
It was totally a new adventure and did my soul good.
We are very happy and have no regrets.

The bitch of it was moving , and sorting through 30 years of shit !
No place is perfect, enjoy the ride is what I say.
I have to keep the sea near, even if the climate is different I'm happy.
Go where your heart takes you, being scared and unsure
ends up being part of the fun !




Thats the spirit !
Title: Re: An on-going thread
Post by: BT65 on May 21, 2015, 06:06:00 am
Jeff darling, I hope they can figure out what is going on with you.  Sounds awful.

Last night when I took the moon boot off, I noticed two humps in my right leg. One is where the current break is, the other one is huge and is where the rod screws is.  I have no idea why it's swollen there other than residual stuff from the surgery.  Well, what can you do.  Just continue on. 

I have an appointment with a primary care doctor but not until July.  Trying to get into one earlier but have had no luck yet.  I know I need to get labs done to check my hemoglobin.  Maybe when I go back to the ortho doctor I can get them to order one.     

Betty
Title: Re: An on-going thread
Post by: Jeff G on May 21, 2015, 07:13:35 am
Jeff darling, I hope they can figure out what is going on with you.  Sounds awful.

Last night when I took the moon boot off, I noticed two humps in my right leg. One is where the current break is, the other one is huge and is where the rod screws is.  I have no idea why it's swollen there other than residual stuff from the surgery.  Well, what can you do.  Just continue on. 

I have an appointment with a primary care doctor but not until July.  Trying to get into one earlier but have had no luck yet.  I know I need to get labs done to check my hemoglobin.  Maybe when I go back to the ortho doctor I can get them to order one.     

Betty

If you have to go to the emergency room it would be better than waiting ... waiting has not worked out for you one single time during this rough period ( under statement ) so I hope you get your tush to the doc today .
Title: Re: An on-going thread
Post by: BT65 on May 29, 2015, 07:54:27 am
Doing better I believe though I fell a couple days ago.  I don't believe anything was fractured since I'm still able to walk lol.

I'm back to working the other job I had prior to November of last year.  So far so good.  I like to be busy.  Which reminds me I have to take a shower.
Title: Re: An on-going thread
Post by: Wade on May 29, 2015, 08:11:34 am
Good to hear your doing better !
Title: Re: An on-going thread
Post by: leatherman on May 29, 2015, 08:21:46 am
Doing better I believe though I fell a couple days ago.  I don't believe anything was fractured since I'm still able to walk lol.
goodness! when we order another roll of bubble wrap for Wolfie, we'll order two and send one to you. LOL

Glad to hear you're not more broken and glad to hear you're keeping busy. :D
Title: Re: An on-going thread
Post by: wolfter on May 29, 2015, 09:48:44 am
Goodness Betty.  I certainly hope this all resolves soon.  luvs

I go in for another bds next week.  We'll see if Boniva did any good before deciding on the next course.  My ID doctor was in complete agreement with doing this before switching meds.  He understood my frustration as this isn't simply about me.  Since little is known concerning bone loss and HIV, I'd think they would like to see the results of my 2 year course of treatment. 

Also went and had my blood drawn yesterday for the western blot for my lyme infection. 
Title: Re: An on-going thread
Post by: Tonny2 on May 29, 2015, 12:32:57 pm


       ojo      glad to hear that Betty....hugs          ojo
Title: Re: An on-going thread
Post by: BT65 on May 30, 2015, 06:46:16 am
Mikie, I believe if I could wrap my legs in bubble wrap it would really help,  though then I may start breaking my arms lol.

Greg, will be very interested to see how your bds turns out and if the Boniva made a difference.

I appreciate everyone's support,  both on the forums and off. It's not over, but hopefully nothing else will break,  at least for a long enough time that I can get a breather.
Title: Re: An on-going thread
Post by: wolfter on May 30, 2015, 03:23:28 pm
did something so stupid this morning that I simply laid where I landed for a spell.  It's only fuuny since nothing is broken.  How in the hell that you forgot spending an entire day taking down a dilapidated deck is  beyond normal comprehension.

I was planning on being to work around 4:00 am but overslept a tad.  In my rush, I forgot the deck was gone.  Lots of bruising and scrapes, but nothing serious
Title: Re: An on-going thread
Post by: BT65 on May 31, 2015, 05:30:40 am
Greg, I don't know who needs Mikie's bubble wrap worse, you or me.  I'm glad nothing was broken. 

Yesterday was the first day I was able to wear a shoe all day instead of a moon boot cast.  Do you all know how long it's been since I have been able to wear two shoes?  Since late November.  I was so excited!

Last Tuesday I got the nerves around my knee burned.  The dr told me it could take up to two weeks before I feel pain relief.  It was the left knee.  Of course then I fell on it but I believe I only jarred it.  Here's hoping anyway.

Betty
Title: Re: An on-going thread
Post by: Buckmark on May 31, 2015, 12:29:04 pm
did something so stupid this morning that I simply laid where I landed for a spell.  It's only fuuny since nothing is broken.  How in the hell that you forgot spending an entire day taking down a dilapidated deck is  beyond normal comprehension.

I was planning on being to work around 4:00 am but overslept a tad.  In my rush, I forgot the deck was gone.  Lots of bruising and scrapes, but nothing serious

I'm envisioning the opening credits of The Dick Van Dyke Show, where he trips over the ottoman.   :P   I'm glad you weren't hurt more seriously.   :)

Title: Re: An on-going thread
Post by: wolfter on June 01, 2015, 03:11:53 pm
I'm envisioning the opening credits of The Dick Van Dyke Show, where he trips over the ottoman.   :P   I'm glad you weren't hurt more seriously.   :)

Thanks Henry.  I've always, and I mean ALWAYS been like his character.  Wasn't a problem until I aged.  :)  OH, and I got my official invitation to AARP in the mail Saturday.  I guess a golden buckeye card is next.  I still have 4 weeks until I'm no longer in my 40s.
Title: Re: An on-going thread
Post by: Wade on June 02, 2015, 01:58:13 pm
Hey Wolfe,
Glad you weren't hurt , your bone medicine must be working.
Would have probably been funny as shit to see you walk out
the door and just disappear... LOL... should be on video !
must have looked like Ellen's game ...Know or Go  !

Betty....I think you need one of those blow up bounce houses
the kids play in at amusement parks !  ....  LOL
Title: Re: An on-going thread
Post by: wolfter on June 03, 2015, 03:47:45 pm
Got the official results of my Lyme Western Blot back.  I don't have enough markers to be considered having the disease.  I'll always test positive since I previously had lyme disease.

Also had my bone density scan done this morning.  Will be anxious to get the results but the tech did make a few comments even though she's not supposed to.  Of course she's not trained to actually interupt them, she has done them long enough to do so.  It was of her opinion that I've reverted back to only having osteopenia.  If so, that's a huge improvement.
Title: Re: An on-going thread
Post by: wolfter on June 07, 2015, 11:21:01 am
I've not had time to compare my latest results to my original ones but simply see the results.  I'm now in the osteopenia category instead of osteoporosis.  I'm going to assume that the Boniva actually is working but wait until I consult with my doctor.  Humana does not cover it any longer but I think with these latest results, he will be able to present a case why it's justified.
Title: Re: An on-going thread
Post by: BT65 on June 07, 2015, 05:55:46 pm
Wow Greg, that is wonderful that, in this case, you were able to take a step back.  I would certainly hope that Humana will continue the Boniva coverage.  Great news!

Betty
Title: Re: An on-going thread
Post by: wolfter on June 09, 2015, 06:23:33 am
Thanks Betty. 
Title: Re: An on-going thread
Post by: Wade on June 09, 2015, 09:02:20 am
Things like this make me crazy !
Why would they not cover something that is obviously working ...
Good luck , and give em hell Greg !
Title: Re: An on-going thread
Post by: mitch777 on June 13, 2015, 05:31:25 pm
Ditto.^

That's great news Greg! Good luck with Humana. ugh.

I wonder how they came up with that name anyway. Maybe it was meant to mean Human? Awe. We can't help you with that.
Title: Re: An on-going thread
Post by: wolfter on June 16, 2015, 06:56:22 am
After speaking with my doctor, the news isn't actually as good as it appears.  The slight improvements in my spine and hip area barely put me in the osteopenia category.  It only improved by .01 on both the T and Z scores.

But the femur scan showed a marked decrease.  In 2013 my T score was -1.7 and the Z score was -1.1

The latest scan shows a T score of -2.2 and the Z score is -1.5

That's a significant difference in just 2 years.  So I'm switching to the once monthly injection of prolia.  At least this one is already in the formulary.
Title: Re: An on-going thread
Post by: BT65 on June 16, 2015, 07:40:23 am
Sorry to hear that Greg.  Hopefully the Prolia will cause improvement.

About my getting though nerves burned...it didn't help.  I'm still having a lot of pain.  I think my knees are a bit beyond the help the burning could do.  But, I have a sweet Chihuahua in my lap who apparently thinks I'm a cool human, so all's well. 

Betty
Title: Re: An on-going thread
Post by: Wade on June 16, 2015, 10:28:59 am
Greg, hope your new bone med works,
it has to be frustrating because it's such a slow process to
achieve any results. Good Luck !

Betty, sorry to hear the procedure on your knees is not helping,
glad you have your little friend on your lap !

Wade
Title: Re: An on-going thread
Post by: Wade on June 16, 2015, 10:39:16 am
I just finished the last of my Dr's spring cleaning,
had my Colonoscopy yesterday , the love tunnel is clean !
No polyps , lesions or anything else they look for, so
I'm good for another ten years, my last one when I turned 50 was
the same . Been a busy month for dr appointments , glad it's over !
Wade
Title: Re: An on-going thread
Post by: wolfter on July 01, 2015, 10:26:14 am
After further research, my doctor decided Reclast was a better option since it has already been tested on men with good results.

So I sat in the infusion chair for an hour receiving the medication.  I thought the side affects of Boniva were bad but this is worse.  In short order, I became very dizzy and confused.  My blood pressure skyrocketed which isn't a known reaction.  By the time we were finished the BP was almost critical. 

It slowly returned to normal but here it is a day later and I still don't feel "right".  Perhaps it was because I didn't follow the suggested recommendation of eating a full meal beforehand.  I just didn't see how eating would affect the infusion.  And now I'm still too nauseous to eat.

Thank goodness this is only once a year.  I researched this drug after the fact and many people have the same issues for several days.