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Author Topic: best numbers after nearly 20 years  (Read 11256 times)

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Offline leatherman

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best numbers after nearly 20 years
« on: June 22, 2010, 01:33:27 am »
I had lab work done this past week and wasn't going to see the doc to get results until next week. However, I've been having a bad problem with my shoulder and went in to see the nurse practioner today. Since it could be bursitis, or arthritis, or (eek!) avascular necrosis, we going to start to figure it out with an xrays scheduled on friday

Surprisingly my lab work was already back and boy was it surprising! ;D These numbers are the best I've had in two decades. Yessiree ;D, I've hit over 300 for a third time in all these years! Still holding with an undetectable viral load, instead of the normal 250-ish cd4 count, I beat the old record of 311 with an all-time high of 318! WooHoo!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Boze

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Re: best numbers after nearly 20 years
« Reply #1 on: June 22, 2010, 01:38:42 am »
Well done!
==========
Aug08 - Seroconversion
Mar10 - Diagnosis; cd4 690 - VL 19,000
Apr10 - cd4 600
May10 - VL 4,500
Jun10 - started Atripla ; VL 113
Jul 10 - UD vl, CD4 590
Aug 10 - UD, CD4 810, 52%
Nov 10 - UD, CD4 980

Offline Jeff G

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Re: best numbers after nearly 20 years
« Reply #2 on: June 22, 2010, 01:42:15 am »
Congrats Mikie ... You can splurge now . We should have a CD4 party and the tcells are on you LOL .

It took me 10 years to go from 70 back to 500 and I intend to keep doing what it takes to keep those numbers up .
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Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #3 on: June 22, 2010, 01:52:08 am »
Congrats mikey.  Fuck everyone has more Tcells than me.  I really am jealous :P

Offline Jeff G

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Re: best numbers after nearly 20 years
« Reply #4 on: June 22, 2010, 01:54:10 am »
Congrats mikey.  Fuck everyone has more Tcells than me.  I really am jealous :P

Should we feel smug ? I don't do smug well  ;)
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Offline Inchlingblue

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Re: best numbers after nearly 20 years
« Reply #5 on: June 22, 2010, 02:04:21 am »
Mikie, that's really amazing . . . didn't you change meds not too long ago? If so, do you think that might have had something to do with it?

Offline phildinftlaudy

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Re: best numbers after nearly 20 years
« Reply #6 on: June 22, 2010, 07:39:17 am »
Congrats Mikie!  Onward and upward   :)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline veritas

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Re: best numbers after nearly 20 years
« Reply #7 on: June 22, 2010, 08:03:48 am »

Mikie,

Great news!  Keep-um moving!

v

Offline HippieLady

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Re: best numbers after nearly 20 years
« Reply #8 on: June 22, 2010, 09:31:48 am »
Congrats Mr. Leatherman!
~Katie~
Diagnosed HIV+ April 30, 2010

Current CD4-638  VL-UD  11/2013

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #9 on: June 22, 2010, 10:13:12 am »
We should have a CD4 party and the tcells are on you LOL .

It took me 10 years to go from 70 back to 500 and I intend to keep doing what it takes to keep those numbers up .
lordy, it's taken me 20 years to get from 5 to above 300, so I don't think I'm gonna splurge with them quite yet. :o
If my cd4s are still up at my next labs, then we'll party. ;)

But that won't be until Oct! I like that too. for those 10 "sick years", I had lab work done about every 6 weeks, so it's awfully nice to be able to go for months and months now between tests. All this feeling well and fewer testing over the last 4 years is still so novel after being so gravely ill for about 15 years. I have no idea why I took to becoming "weller", especially through a time when I lost my last partner; but, knock on wood, I'm not complaining about it. Oh no! I'm just commenting on what an oddly wonderful turnaround it's been. ;D

Mikie, that's really amazing . . . didn't you change meds not too long ago? If so, do you think that might have had something to do with it?
I changed Videx EC and Viread out for Truvada back in March. Like I told JG, if my numbers are still up in October then I'll see about crediting the med some. ;) Historically though looking at my tcell graph, the next point to plot should either be of an insignificant change or should fall lower.

But don't mistake that for negativity. I haven't been in a hospital in 13 years and have been by just fine with 250-ish tcells for 6-ish years so even if my next counts are back below 300, I won't be sad, nor will I be surprised. I'm just a realist and my graphing says that the next count is a drop.

Unlike my viral load chart. Look at how pretty that line has straightened out down there at "Undetectable" for so long. WooHoo!

See what getting the right meds and Love will do for you. ;) That big change around the end of 2004 was from getting a regimen that didn't make me puke everyday and was when I told my partner I would do my damnedest to stick on the new meds (even though I was still puking 4-6 times a month) to stay alive for him. When he was hospitalized, for some reason the barfing stopped. I haven't barfed again in the just over 2 years now since he passed away. ;)

For the time being, I'm going to credit the rise on my body being happy to be living back down South and away from those horrendous cold snow-filled Yankee Winters; and on this most awesome tan I'm working on lounging out in the pool.

Congrats mikey.  Fuck everyone has more Tcells than me.  I really am jealous :P
don't be jealous. think of it as an example. :-*
In another 20 years, maybe you'll finally hit over 300  :D
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline WillyWump

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Re: best numbers after nearly 20 years
« Reply #10 on: June 22, 2010, 10:34:19 am »
Great news Mikie! Congrats :)


*points and laughs at Heckraiser*

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #11 on: June 22, 2010, 10:39:15 am »
Great news Mikie! Congrats :)


*points and laughs at Heckraiser*

-Will

Dead to me.

Offline WillyWump

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Re: best numbers after nearly 20 years
« Reply #12 on: June 22, 2010, 10:49:25 am »
Dead to me.

You know I love you, Mmwah! ;D
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline BlueMoon

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Re: best numbers after nearly 20 years
« Reply #13 on: June 22, 2010, 12:46:47 pm »
Inch by inch, row by row
Gonna make those t-cells grow

Congratulations on the milestone, Leatherman.
It's a complex world

Offline tednlou2

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Re: best numbers after nearly 20 years
« Reply #14 on: June 23, 2010, 04:18:26 am »
Very good news.  Mikey, did you say recently that you are now able to take a med that you use to be resistant to?  It seems like that was you.  If so, that is also interesting news. 

Waiting for your post when you hit 400...

Offline Andy Velez

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Re: best numbers after nearly 20 years
« Reply #15 on: June 23, 2010, 07:14:07 am »
That's very good news indeed, Mikie.

Here's to that trend continuing. And that's not negotiable.

Cheers.
Andy Velez

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #16 on: June 23, 2010, 09:46:11 am »
Mikey, did you say recently that you are now able to take a med that you use to be resistant to?  It seems like that was you. 
i had a resistance to epivir, which also works against emtrivia (in the truvada). However, that mutation is a "bad" mutation which makes the HIV less viable. It's sort of a self-destroying mutation in the long-run (and if under treatment)
about a decade ago my HIV strain mutated causing Epivir to be ineffective. The drug Emtriva is also non-effective when that mutation is present. However, that mutation causes the HIV to be "defective" and unable to reproduce itself. After nearly 10 yrs of meds, and approx 6 years at undetectable, my mutant strain of HIV has for all intents died out and I am now able to use Truvada (which contains Emtriva) and have the drug be effective once again against the HIV in my system.

Waiting for your post when you hit 400...
don't hold your breath though. LOL if it took me 18 yrs to gain 313 tcells, it should take roughly another 7 years or so to gain that next 100. ;D :D

Thanks for all the "pats on the back" y'all. Like I keep telling this new doc, new case manager, and new friends here in SC, if they could have only seen me 5 years ago. I was weaker, thinner, and just all around sicker.

Between the years of recovering from the bouts of PCP and pnuemonia to the years of near-daily barfing from the meds, I was quite the mess. Add to that the depression of being told over and over for 10 yrs that my numbers were so bad that death could be as close as 3 months and grieving the loss of my first partner, well, I'm just surprised the depression didn't finish off what the HIV hadn't destroyed.

That's why I give such credit to my dogz for helping me stay alive. :-* In reality I had made plans for their care and I never actually dreamed I'd end up out-living so many of them.

But credit has to go to my second partner too. Now that was the shocker - falling in love again. :-* It was my commitment to him (to take the meds, to stay alive, so he wouldn't end up standing by my grave like I had been standing at Randy's grave) that really turned my life around. But lordy, just like I never dreamed that I would live past 40 (because of how sick I was), I sure never dreamed that it would be me standing at Jim's graveside.

I could have really given up then; but how could I backslide and waste my new-found health that I had gained back for his sake? No, now I just press along, wondering why I was the one to outlive friends, lovers, and pets. However I have learned to try to enjoy every minute I've got now cause losing all those loved ones sure has been ample proof of how fragile life is and that there's no time to waste.

Unless of course, it's time wasted in reading, lounging at the pool, working in the yard, going to the amusement park, etc.  ;)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #17 on: June 23, 2010, 09:48:50 am »
Isn't your smoking cessation quite recent too?  You might be able to chalk some of those extra T-cells up to that.

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #18 on: June 23, 2010, 09:55:08 am »
Isn't your smoking cessation quite recent too?  You might be able to chalk some of those extra T-cells up to that.
1 year and 148 days ;D

and if I won the lottery (though I would have to start buying tickets) I would go right back to smoking. 8) As it is now though, and as I just told the doc the other day (when we were discussing the shoulder problem), I only think about the cigs now when someone else mentions them. (mmmmm I want a smoke now)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #19 on: June 23, 2010, 12:52:33 pm »

don't be jealous. think of it as an example. :-*
In another 20 years, maybe you'll finally hit over 300  :D

Congrats on the good numbers Mikie. 
I despise the song Love is in the Air, you should too.

Offline Jeff G

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Re: best numbers after nearly 20 years
« Reply #20 on: June 23, 2010, 02:13:06 pm »
Good numbers , a pool and new pair of underoos . yooz gotit ah going on !
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Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #21 on: June 23, 2010, 02:21:21 pm »
Good numbers , a pool and new pair of underoos . yooz gotit ah going on !


And he's got a bunch of blow up dolls to play with.  Wonder where the 2 liter are?? LOL
I despise the song Love is in the Air, you should too.

Offline Jeff G

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Re: best numbers after nearly 20 years
« Reply #22 on: June 23, 2010, 02:26:34 pm »
This may be his vacation pics form sea world ... notice the orca sneaking up on him . Danger Danger Will Robinson .

I only pick on people I admire if its any consolation  :-*
« Last Edit: June 23, 2010, 02:32:42 pm by jg1962 »
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Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #23 on: June 23, 2010, 02:39:51 pm »
Wonder where the 2 liter are?? LOL
I already have 5 or 6 trash bags full of empty 2-liter bottles.
I don't know if there will be a Pooltag 2010;
but as an ex-boy scout, it never hurts to be prepared. LOL
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #24 on: June 23, 2010, 02:47:47 pm »
I already have 5 or 6 trash bags full of empty 2-liter bottles.
I don't know if there will be a Pooltag 2010;
but as an ex-boy scout, it never hurts to be prepared. LOL


Oh man that is too fricking funny!!
I despise the song Love is in the Air, you should too.

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #25 on: June 23, 2010, 06:11:43 pm »
Oh man that is too fricking funny!!
We did two Pooltags (06, 07) and Jim had the best float with the Star Trek "Enterprise"

and the most "unrideable" float was this palm tree



each float (we had five or six each year) had music and costumes
pictures and movies at Pooltag and Pooltag2
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jeff G

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Re: best numbers after nearly 20 years
« Reply #26 on: June 23, 2010, 06:35:41 pm »
That looks like allot of fun !!!
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Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #27 on: June 23, 2010, 07:48:40 pm »
We did two Pooltags (06, 07) and Jim had the best float with the Star Trek "Enterprise"

and the most "unrideable" float was this palm tree



each float (we had five or six each year) had music and costumes
pictures and movies at Pooltag and Pooltag2

Despite everything Matty has posted here this is the funniest thing I've seen in these forums.

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #28 on: June 23, 2010, 08:01:43 pm »
Despite everything Matty has posted here this is the funniest thing I've seen in these forums.

I thought the time I told a guy he was wearing a Captain America t-shirt was pretty darn funny even though I got a 7-day TO.
I despise the song Love is in the Air, you should too.

Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #29 on: June 23, 2010, 08:03:18 pm »
I thought the time I told a guy he was wearing a Captain America t-shirt was pretty darn funny even though I got a 7-day TO.

Before my time?

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #30 on: June 23, 2010, 08:14:52 pm »
my late partner and I saw the Redbull "Flugtag" event up in Cleveland where people built "flying" craft and their teams would push these craft off a pier into Lake Erie. With skits and costumes, the goal was to "fly" the furthest.

With my 2-liter plus Coke-Cola addiction, we came up with an idea ("Pooltag") to use the huge amount of pop bottles I was accruing. We had our friends built floats using the bottles and masking tape. Then dressing up in costumes and adding music, the goal was just to get across the pool without drowning.  :D Jim's birthday of July 29th was a perfect time each year in Ohio to have such a crazy pool party.

We had Cleopatra on her barge, Disney's Pocohantas and Alladin, Huckleberry Finn on a raft, Jim's Enterprise, my Phantom of the Opera boat ride (the part of Christine played by the dolphin), a pirate boat with cannons, and even a doggie in a pet store.

We had a ton of games including a hula-hoop ring toss game (tossed to ring floating pop bottles marked with points). A great time was had by all and everyone was a winner receiving gold-sprayed 20-oz pop bottles. For dessert at the cookout afterwards we had a hamburger-shaped cake, pizza-shaped cheesecakes and small mini hamburger-shaped cookies with icing.

mikie
(who is very, very sad thinking about how much he misses Jim; but also very happy remembering these good times he had with Jim.)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #31 on: June 23, 2010, 08:17:10 pm »
Honestly that sounds like the best kind of "home grown" birthday party ever.  Very creative of you two.

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #32 on: June 23, 2010, 08:19:51 pm »
even though I got a 7-day TO.
yeah, but you skated by so far after using the b-word in that other thread.  :D
(or maybe it's ok for you hetros to say that. LOL)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline hope_for_a_cure

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Re: best numbers after nearly 20 years
« Reply #33 on: June 23, 2010, 08:23:19 pm »
This is the BEST news I have heard all day!  You are obviously doing things right.  I was not online much during the last couple of days and am truly glad to see this. 

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #34 on: June 23, 2010, 08:24:02 pm »
Before my time?

Check it out... what sucks is you cannot see his avatar.  He was being abusive towards a female member in another thread.

http://forums.poz.com/index.php?topic=7734.msg89889#msg89889
I despise the song Love is in the Air, you should too.

Offline Miss Philicia

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Re: best numbers after nearly 20 years
« Reply #35 on: June 23, 2010, 08:26:19 pm »
Despite everything Matty has posted here this is the funniest thing I've seen in these forums.

You've obviously not seen Matty in a Gucci thong cavorting around Bondi Beach with his Klingon blow up flotation toy.
"I’ve slept with enough men to know that I’m not gay"

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #36 on: June 23, 2010, 08:28:28 pm »
yeah, but you skated by so far after using the b-word in that other thread.  :D
(or maybe it's ok for you hetros to say that. LOL)

Mikie, it's never ok for you to say breeder.  Even if you take off the "er" and say "Breedah"... it's still bad, we've been oppressed ever since Bo Derek married John.  
I despise the song Love is in the Air, you should too.

Offline Hellraiser

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Re: best numbers after nearly 20 years
« Reply #37 on: June 23, 2010, 08:47:45 pm »
Check it out... what sucks is you cannot see his avatar.  He was being abusive towards a female member in another thread.

http://forums.poz.com/index.php?topic=7734.msg89889#msg89889

This thread was full of win.  You got banned for doing what though?  Just calling him out on his shirt or the whole threatening him with violence bit.

Offline leatherman

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Re: best numbers after nearly 20 years
« Reply #38 on: June 23, 2010, 08:51:34 pm »
it's still bad, we've been oppressed ever since
ROFLMAO :D

(oh! and you know laughter is good for ya too. I bet I just gained another 10 cd4s with that laugh)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline phildinftlaudy

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Re: best numbers after nearly 20 years
« Reply #39 on: June 23, 2010, 08:57:15 pm »
Mikie: The pool pics were great --- looks like one of the best parties I have ever seen --- I wish I could have been there.... I actually went thru the whole page reading and looking at each pic/captions, everything.


And Skeebo - I was thinking the same thing when I saw the "b" word --- I said to myself "oh oh...."  although i don't know why it offends people.... 
 :)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline skeebo1969

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Re: best numbers after nearly 20 years
« Reply #40 on: June 23, 2010, 10:39:49 pm »
This thread was full of win.  You got banned for doing what though?  Just calling him out on his shirt or the whole threatening him with violence bit.

I didnt get banned for anything related to this.  I think the TO was for flame baiting or something, justified anyway you look at it.  I look back at some of my posts and find that I was extremely passive aggressive in some, not really my style.  I am not making any excuses but since January when I quit Atripla I feel that I've changed emotionally.

The offense that got me banned kind of has a funny story to it.  Don't get me wrong I broke a forum rule, one that I think is probably one of the worst one's to break.  Sock puppetry is pretty janky if you ask me, especially when used to fool people in a support forum. 

We had some guy who used to create threads asking: what your favorite color in a Crayola Crayon box was, if you preferred boxers or briefs, or what your favorite sitcom was.. you get the idea.  The guy comes in one day and gets himself a 7-day TO for something, I can't remember though what for.  He immediately comes up with the bright idea to make another profile.  What was fucking hilarious and I dont think many people caught it was he went into his own, underwear, crayon, or what have you threads and answered the total opposite of what he did under his original profile.  I thought it was funny and went to bed.

The next morning after smoking a blunt (ut oh), I came up with the bright idea to create another account.   I decided to make another account (skeebo1968) and come in telling everyone what my favorite crayon color was.  I'm sitting at my terminal and the thread disappears before my very eyes.

My stomach turned, I feared the worse.....

All of sudden...  THE THREAD REAPPEARED!!!!!

Oh, thank you jesus!!! Wait... I didn't log out......  What's going on??? 

You can look up the rest...  I sat around for two years watching ya'll from the sidelines and coach wouldn't put me in.
I despise the song Love is in the Air, you should too.

 


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