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Author Topic: HIV and SSDI Continuing Disability Review Policy Change  (Read 898 times)

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Offline Ptrk3

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HIV and SSDI Continuing Disability Review Policy Change
« on: March 19, 2017, 03:36:19 PM »
Effective March 1, 2017, Social Security Disability Insurance (SSDI) case officers have been instructed not to screen out a Continuing Disability Review (CDR) for SSDI recipients because of a HIV infection.  Disability recipients who qualified because they have HIV will now be subject to routine reviews of their eligibility status every one to seven years.

The story appears in the March 15, 2017, edition of "The Body."

link to story:


reference link:


From the story in "The Body," referring to SSDI recipients:

"..you should NOT be freaking out, according to HIV benefits expert Justin Hayford, a legal advocate at Legal Council for Health Justice (formerly AIDS Legal Council of Chicago). He told TheBody.com that this change has been years in the making.

"I'm surprised it hasn't happened sooner," he said, given that, since at least 2000, Social Security has no longer considered HIV diagnosis alone to be a stand-alone cause for ongoing inability to work.

All the change means, he said, is that people who get SSA disability because of their HIV will have their case reviewed every few years along with everyone else on SSA. (Only people living with HIV who have certain other conditions, such as certain lymphomas or sarcomas, will be excluded from the need for review).

But, even when or if your review happens, it's likely your SSA won't be taken away because you may have other diagnoses that qualify you for disability, such as chronic neuropathy, diarrhea, fatigue, depression, anxiety, bipolar disorder, heart disease, diabetes -- or any other number of conditions that often go hand in hand with an HIV diagnosis (especially among HIV long-timers).

The most important thing to know and do? Be meticulous in documenting all your health issues with your doctor, even if they include things such as neuropathy, fatigue or gastrointestinal problems that you've lived with so long that you no longer bring them up at doctor visits. Having them on the record will be crucial when and if your disability benefits do come up for review. (And even that may depend on how much staff SSA has.)

This cannot be stressed enough. "Make sure your doctor is putting these things in your medical record if SSA does a review!" insisted John Peller, president/CEO of AIDS Foundation of Chicago, to TheBody.com)."

« Last Edit: March 19, 2017, 03:53:20 PM by Ptrk3 »
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Offline Lagniappe4

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Re: HIV and SSDI Continuing Disability Review Policy Change
« Reply #1 on: October 18, 2017, 12:51:13 AM »
I read that ones own doctor will not be involved in the CDR but a MD chosen by SS.
That does not make sense but it's on the government's website that announced the change in CDR for HIV+.


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