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Author Topic: One month on Study drug...  (Read 4753 times)

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Offline Christine

  • Member
  • Posts: 1,069
One month on Study drug...
« on: November 15, 2006, 04:59:01 pm »
Hello Everyone,

Today is the one month mark on the study drug, GS-9137. The first two weeks were not bad; mild nausea, mild diarrhea, a stoned kind of feeling in my head, and vivid dreams. Week three the nausea, and diarrhea became worse, and I started vomitting.

In week three I also had the weird hallucinations, and phone calls that I made during the night which I can not remember. The doctors think it is the Ambien. I stopped taking it, and so far the weird stuff has stopped.

Week four was better. Nausea very mild, no vomitting, still have some diarrhea, stoned feeling is less, but the dreams are still pretty vivid.

I made the mistake of scheduling my pentamidine treatment (pcp prophylactic) today before my study appointment. I have to fast for the study appointment. So between the deep breathing with the pentamidine, and not eating I almost passed out. Once I got some food in me, I felt better. Shaky, but better.

My set of labs drawn last month before starting the GS-9137, are as follows:
cd 4- 9
cd 4%- 3.2
vl- 176,000

All the others labs, with the exception of the hemoglobin (which is 10.5; normal for women is 12-14) are really good. I knew about the anemia, so that is not a surprise.

I have the genotype and phenotype results; they are not good, but again I wasn't surprised by that either.

So, not good, but not over yet. I will keep fighting this little f*cker as long as I can. I'll keep you updated on things are going.

Thanks for listening.
Christine
Logged
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline thunter34

  • Member
  • Posts: 7,374
  • His name is Carl.
Re: One month on Study drug...
« Reply #1 on: November 15, 2006, 05:16:27 pm »
Battle on, girlfriend!  Keep on fighting!

Tim
Logged
AIDS isn't for sissies.

Offline RapidRod

  • Member
  • Posts: 15,288
Re: One month on Study drug...
« Reply #2 on: November 15, 2006, 05:56:55 pm »
Keep up the fighting spirit.
Logged

Offline Iggy

  • Member
  • Posts: 2,434
Re: One month on Study drug...
« Reply #3 on: November 15, 2006, 06:42:14 pm »
.
« Last Edit: January 12, 2007, 07:47:51 pm by Iggy »
Logged

Offline Teresa

  • Member
  • Posts: 1,755
Re: One month on Study drug...
« Reply #4 on: November 15, 2006, 06:52:39 pm »
Christine,

Keep up the fight. I bet in no time you will be kicking its little ass!

Sending you good thoughts and know that you are in my prayers!

BIG HUGS
Teresa
Logged
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: One month on Study drug...
« Reply #5 on: November 15, 2006, 07:12:11 pm »
Hello Christine,

Just want you to know that I am thinking about you, and sending all the energy I can, your way !!! Hang tough!!


All My best---------Ray
Logged
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 UPDATED: As of April, 2nd 2024,Viral load Undetectable.
CD 4 @593 /  CD4 % @ 18 %

Lymphocytes,total-3305 (within range)

cd4/cd8 ratio -0.31

cd8 %-57

72 YEARS YOUNG

Offline Nadine

  • Member
  • Posts: 1,253
  • Member since: August 2005
Re: One month on Study drug...
« Reply #6 on: November 15, 2006, 07:44:12 pm »
Hang in there Christine....
We are all sending you good thoughts and prayers...I know for a fact it helps!
Logged

Offline Jena

  • Member
  • Posts: 101
  • To God Be The Glory!
Re: One month on Study drug...
« Reply #7 on: November 15, 2006, 08:34:32 pm »
Christine
 Hang in there Honey, keep believing this new stuff is going to be the one that kicks the virus's ass! I'm praying for you Sweetie

Hugs
Jena
Logged

Offline Blixer

  • Member
  • Posts: 712
Re: One month on Study drug...
« Reply #8 on: November 15, 2006, 09:01:41 pm »
Christine,
Keep on fighting!  Hope that you get good numbers after your first month on the meds.
Logged
David
Diagnosed 1/9/06
8/27/2007 CD4 598, 29%, VL 58 (72 wks)
11/19/2007 CD4 609, 30%, VL < 50 (84 wks)
2/11/2008 CD4 439, 27%, VL <50 (96 wks)
5/5/2008 CD4 535, 28%, VL <50 (108 wks)
10/20/2008 CD4 680, 28%, VL <50 (132 wks)
Changed to Atripla in 2012
1/14/2013 CD4 855, 35%, VL <40

Offline anniebc

  • Member
  • Posts: 6,185
  • AM member since 2003
Re: One month on Study drug...
« Reply #9 on: November 15, 2006, 09:38:50 pm »
I'm with everyone else...keep the fight going and keep us up-dated.

Thinking of you and sending you nice warm hugs from NZ..

((((hugs)))))
Jan :-*
Logged
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Eldon

  • Member
  • Posts: 2,664
Re: One month on Study drug...
« Reply #10 on: November 15, 2006, 10:46:51 pm »
Hey Christine,

It is good to hear from you. I am also extend my BEST wishes that your Viral Load decreases and that your cd4's increase with this study that you are on.

Do your BEST to remain "positive" at all times as it does have a "positive" effect on your immune system and Yes, you guees it right...the "negativity" has an opposite effect.

Make the BEST of each Day!
Logged

Offline Mynewlife+

  • Member
  • Posts: 14
  • There is only one of you in all the universe
Re: One month on Study drug...
« Reply #11 on: November 15, 2006, 11:01:42 pm »
You will do great Christine... I know..

Best to you always..

M
Logged
Share your knowledge, we know too much to waste it.. Share your joy, we all want it... Share your pain, it won't last forever.. Nothing does.
Me

I live in turbulence to rest in peace after

You live you learn
You love you learn
You cry you learn
You lose you learn
You bleed you learn
You scream you learn
ALANIS MORISSETTE

Offline Christine

  • Member
  • Posts: 1,069
Re: One month on Study drug...
« Reply #12 on: November 16, 2006, 12:38:21 pm »
Thanks everyone!

I feel all your good thoughts and prayers, and I know they will help. I will keep you updated after next month's appointment.

Thanks again,
Christine
Logged
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline Queen Tokelove

  • Member
  • Posts: 6,031
  • Smokey the Smurf
Re: One month on Study drug...
« Reply #13 on: November 16, 2006, 01:08:09 pm »
Keep up the fight, Christine.....
Logged
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

Offline ndrew

  • Member
  • Posts: 695
  • ....-.-.-.-.-.....
Re: One month on Study drug...
« Reply #14 on: November 16, 2006, 08:47:57 pm »
My thoughts are with you as you do this work!

Luv and support,
Drew
Logged

Offline blondbeauty

  • Member
  • Posts: 1,787
Re: One month on Study drug...
« Reply #15 on: November 16, 2006, 10:34:24 pm »
I am thinking of you here in Panama, Christine.
You will get better.
Kisses.
Juan
Logged
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933
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